#representation of chronic illness in books
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disabled-dragoon · 1 year ago
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The Disability Library
I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.
And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!
As always, if there are any at all that you want me to add, please just say. I'm always looking for more!
Edit 20/10/2023: You can now suggest books using the google form at the bottom!
Updated: 31/08/2023
Articles and Chapters
The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012
Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017
How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019
Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018
Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019
Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004
Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020
Books
Fiction:
Misc:
10 Things I Can See From Here, Carrie Mac
A-F:
A Curse So Dark and Lonely, (Series), Brigid Kemmerer
Akata Witch, (Series), Nnedi Okorafor
A Mango-Shaped Space, Wendy Mass
Ancillary Justice, (Series), Ann Leckie
An Unkindness of Ghosts, Rivers Solomon
An Unseen Attraction, (Series), K. J. Charles
A Shot in the Dark, Victoria Lee
A Snicker of Magic, Natalie Lloyd
A Song of Ice and Fire, (series), George R. R. Martin
A Spindle Splintered, (Series), Alix E. Harrow
A Time to Dance, Padma Venkatraman
Bath Haus, P. J. Vernon
Beasts of Prey, (Series), Ayana Gray
The Bedlam Stacks, (Series), Natasha Pulley
Black Bird, Blue Road, Sofiya Pasternack
Black Sun, (Series), Rebecca Roanhorse
Blood Price, (Series), Tanya Huff
Borderline, (Series), Mishell Baker
Breath, Donna Jo Napoli
The Broken Kingdoms, (Series), N.K. Jemisin
Brute, Kim Fielding
Cafe con Lychee, Emery Lee
Carry the Ocean, (Series), Heidi Cullinan
Challenger Deep, Neal Shusterman
Cinder, (Series), Marissa Meyer
Clean, Amy Reed
Connection Error, (Series), Annabeth Albert
Cosima Unfortunate Steals A Star, Laura Noakes
Crazy, Benjamin Lebert
Crooked Kingdom, (Series), Leigh Bardugo
Daniel Cabot Puts Down Roots, (Series), Cat Sebastian
Daniel, Deconstructed, James Ramos
Dead in the Garden, (Series), Dahlia Donovan
Dear Fang, With Love, Rufi Thorpe
Deathless Divide, (Series), Justina Ireland
The Degenerates, J. Albert Mann
The Doctor's Discretion, E.E. Ottoman
Earth Girl, (Series), Janet Edwards
Everyone in This Room Will Someday Be Dead, Emily R. Austin
The Extraordinaries, (Series), T. J. Klune
The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart
Fight + Flight, Jules Machias
The Final Girl Support Group, Grady Hendrix
Finding My Voice, (Series), Aoife Dooley
The First Thing About You, Chaz Hayden
Follow My Leader, James B. Garfield
Forever Is Now, Mariama J. Lockington
Fortune Favours the Dead, (Series), Stephen Spotswood
Fresh, Margot Wood
H-0:
Harmony, London Price
Harrow the Ninth, (series), Tamsyn Muir
Hench, (Series), Natalia Zina Walschots
Highly Illogical Behaviour, John Corey Whaley
Honey Girl, Morgan Rogers
How to Become a Planet, Nicole Melleby
How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn
How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn
Hunger Pangs: True Love Bites, Joy Demorra
I Am Not Alone, Francisco X. Stork
The Immeasurable Depth of You, Maria Ingrande Mora
In the Ring, Sierra Isley
Into The Drowning Deep, (Series), Mira Grant
Iron Widow, (Series), Xiran Jay Zhao
Izzy at the End of the World, K. A. Reynolds
Jodie's Journey, Colin Thiele
Just by Looking at Him, Ryan O'Connell
Kissing Doorknobs, Terry Spencer Hesser
Lakelore, Anna-Marie McLemore
Learning Curves, (Series), Ceillie Simkiss
Let's Call It a Doomsday, Katie Henry
The Library of the Dead, (Series), TL Huchu
The Lion Hunter, (Series), Elizabeth Wein
Lirael, (Series), Garth Nix
Long Macchiatos and Monsters, Alison Evans
Love from A to Z, (Series), S.K. Ali
Lycanthropy and Other Chronic Illnesses, Kristen O'Neal
Never Let Me Go, Kazuo Ishiguro
The Never Tilting World, (Series), Rin Chupeco
The No-Girlfriend Rule, Christen Randall
Nona the Ninth, (series), Tamsyn Muir
Noor, Nnedi Okorafor
Odder Still, (Series), D. N. Bryn
Once Stolen, (Series), D. N. Bryn
One For All, Lillie Lainoff
On the Edge of Gone, Corinne Duyvis
Origami Striptease, Peggy Munson
Our Bloody Pearl, (Series), D. N. Bryn
Out of My Mind, Sharon M. Draper
P-T:
Parable of the Sower, (Series), Octavia E. Butler
Parable of the Talents, (Series), Octavia E. Butler
Percy Jackson & the Olympians, (series), Rick Riordan
Pomegranate, Helen Elaine Lee
The Prey of Gods, Nicky Drayden
The Pursuit Of..., (Series), Courtney Milan
The Queen's Thief, (Series), Megan Whalen Turner
The Quiet and the Loud, Helena Fox
The Raging Quiet, Sheryl Jordan
The Reanimator's Heart, (Series), Kara Jorgensen
The Remaking of Corbin Wale, Joan Parrish
Roll with It, (Series), Jamie Sumner
Russian Doll, (Series), Cristelle Comby
The Second Mango, (Series), Shira Glassman
Scar of the Bamboo Leaf, Sieni A.M
Shaman, (Series), Noah Gordon
Sick Kids in Love, Hannah Moskowitz
The Silent Boy, Lois Lowry
Six of Crows, (Series) Leigh Bardugo
Sizzle Reel, Carlyn Greenwald
The Spare Man, Mary Robinette Kowal
The Stagsblood Prince, (Series), Gideon E. Wood
Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver
Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]
The Storm Runner, (Series), J. C. Cervantes
Stronger Still, (Series), D. N. Bryn
Sweetblood, Pete Hautman
Tarnished Are the Stars, Rosiee Thor
The Theft of Sunlight, (Series), Intisar Khanani
Throwaway Girls, Andrea Contos
Top Ten, Katie Cotugno
Torch, Lyn Miller-Lachmann
Treasure, Rebekah Weatherspoon
Turtles All the Way Down, John Green
U-Z:
Unlicensed Delivery, Will Soulsby-McCreath Expected release October 2023
Verona Comics, Jennifer Dugan
Vorkosigan Saga, (Series), Lois McMaster Bujold
We Are the Ants, (Series), Shaun David Hutchinson
The Weight of Our Sky, Hanna Alkaf
Whip, Stir and Serve, Caitlyn Frost and Henry Drake
The Whispering Dark, Kelly Andrew
Wicked Sweet, Chelsea M. Cameron
Wonder, (Series), R. J. Palacio
Wrong to Need You, (Series), Alisha Rai
Ziggy, Stardust and Me, James Brandon
Graphic Novels:
A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews
Constellations, Kate Glasheen
Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber
Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein
Frankie's World: A Graphic Novel, (Series), Aoife Dooley
The Golden Hour, Niki Smith
Nimona, N. D. Stevenson
The Third Person, (memoir) (Non-Fiction), Emma Grove
Magazines and Anthologies:
Artificial Divide, (Anthology), Robert Kingett, Randy Lacey
Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg
Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench
Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe
Nothing Without Us, edited by Cait Gordon and Talia C. Johnson
Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson
Unbroken: 13 Stories Starring Disabled Teens, (Anthology), edited by Marieke Nijkamp
Uncanny #24: Disabled People Destroy Science Fiction, (Anthology), edited by: Elsa Sjunneson-Henry, Dominik Parisien et al.
Uncanny #30: Disabled People Destroy Fantasy, (Anthology), edited by: Nicolette Barischoff, Lisa M. Bradley, Katharine Duckett
We Shall Be Monsters, edited by Derek Newman-Stille
Manga:
Perfect World, (Series), Rie Aruga
The Sky is Blue with a Single Cloud, (Short Stories), Kuniko Tsurita
Non-Fiction:
Academic Ableism: Disability and Higher Education, Jay Timothy Dolmage
A Disability History of the United States, Kim E, Nielsen
The Architecture of Disability: Buildings, Cities, and Landscapes beyond Access, David Gissen
Being Seen: One Deafblind Woman's Fight to End Ableism, Elsa Sjunneson
Black Disability Politics, Sami Schalk
Borderline, Narcissistic, and Schizoid Adaptations: The Pursuit of Love, Admiration, and Safety, Dr. Elinor Greenburg
Brilliant Imperfection: Grappling with Cure, Eli Clare
The Cambridge Companion to Literature and Disability, Barker, Clare and Stuart Murray, editors.
The Capacity Contract: Intellectual Disability and the Question of Citizenship, Stacy Clifford Simplican
Capitalism and Disability, Martha Russel
Care work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha
Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach, Dr Amitta Shah
The Collected Schizophrenias: Essays, Esme Weijun Wang
Crip Kinship, Shayda Kafai
Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook, Jules Sherred
Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies, Anne Waldschmidt, Hanjo Berressem, Moritz Ingwersen
Decarcerating Disability: Deinstitutionalization and Prison Abolition, Liat Ben-Moshe
Demystifying Disability: What to Know, What to Say, and How to Be an Ally, Emily Ladau
Dirty River: A Queer Femme of Color Dreaming Her Way Home, Leah Lakshmi Piepzna-Samarasinha
Disability Pride: Dispatches from a Post-ADA World, Ben Mattlin
Disability Visibility: First-Person Stories From the Twenty-First Century, Alice Wong
Disfigured: On Fairy Tales, Disability and Making Space, Amanda Leduc
Every Cripple a Superhero, Christoph Keller
Exile and Pride: Disability, Queerness and Liberation, Eli Clare
Feminist Queer Crip, Alison Kafer
The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs, Leah Lakshmi Piepzna-Samarasinha
Growing Up Disabled in Australia, Carly Findlay
It's Just Nerves: Notes on a Disability, Kelly Davio
The Immortal Life of Henrietta Lacks, Rebecca Skloot
Language Deprivation & Deaf Mental Health, Neil S. Glickman, Wyatte C. Hall
The Minority Body: A Theory of Disability, Elizabeth Barnes
My Body and Other Crumbling Empires: Lessons for Healing in a World That Is Sick, Lyndsey Medford
No Right to Be Idle: The Invention of Disability, 1840s-1930s, Sarah F. Rose
Nothing About Us Without Us: Disability Oppression and Empowerment, James I. Charlton
The Pedagogy of Pathologization Dis/abled Girls of Color in the School-prison Nexus, Subini Ancy Annamma
Physical Disability in British Romantic Literature, Essaka Joshua
QDA: A Queer Disability Anthology, Raymond Luczak, Editor.
The Right to Maim: Debility, Capacity, Disability, Jasbir K. Puar
Sitting Pretty, (memoir), Rebecca Taussig
Sounds Like Home: Growing Up Black & Deaf in the South, Mary Herring Wright
Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms, Ilana Jacqueline
The Things We Don't Say: An Anthology of Chronic Illness Truths, Julie Morgenlender
Uncanny Bodies: Superhero Comics and Disability, Scott T. Smith, José Alaniz 
Uncomfortable Labels: My Life as a Gay Autistic Trans Woman, (memoir), Laura Kate Dale
Unmasking Autism, Devon Price
The War on Disabled People: Capitalism, Welfare and the Making of a Human Catastrophe, Ellen Clifford
We've Got This: Essays by Disabled Parents, Eliza Hull
Year of the Tiger: An Activist's Life, (memoir) (essays) Alice Wong
Picture Books:
A Day With No Words, Tiffany Hammond, Kate Cosgrove-
A Friend for Henry, Jenn Bailey, Mika Song
Ali and the Sea Stars, Ali Stroker, Gillian Reid
All Are Welcome, Alexandra Penfold, Suzanne Kaufman
All the Way to the Top, Annette Bay Pimentel, Jennifer Keelan-Chaffins, Nabi Ali
Can Bears Ski?, Raymond Antrobus, Polly Dunbar
Different -- A Great Thing to Be!, Heather Alvis, Sarah Mensinga
Everyone Belongs, Heather Alvis, Sarah Mensinga
I Talk Like a River, Jordan Scott, Sydney Smith
Jubilee: The First Therapy Horse and an Olympic Dream, K. T. Johnson, Anabella Ortiz
Just Ask!, Sonia Sotomayor, Rafael López
Kami and the Yaks, Andrea Stenn Stryer, Bert Dodson
My Three Best Friends and Me, Zulay, Cari Best, Vanessa Brantley-Newton
Rescue & Jessica: A Life-Changing Friendship, Jessica Kensky, Patrick Downes, Scott Magoon
Sam's Super Seats, Keah Brown, Sharee Miller
Small Knight and the Anxiety Monster, Manka Kasha
We Move Together, Kelly Fritsch, Anne McGuire, Eduardo Trejos
We're Different, We're the Same, and We're All Wonderful!, Bobbi Jane Kates, Joe Mathieu
What Happened to You?, James Catchpole, Karen George
The World Needs More Purple People, Kristen Bell, Benjamin Hart, Daniel Wiseman
You Are Enough: A Book About Inclusion, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso
You Are Loved: A Book About Families, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso
The You Kind of Kind, Nina West, Hayden Evans
Zoom!, Robert Munsch, Michael Martchenko
Plays:
Peeling, Kate O'Reilly
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With an extra special thank you to @parafoxicalk @craftybookworms @lunod @galaxyaroace @shub-s @trans-axolotl @suspicious-whumping-egg @ya-world-challenge @fictionalgirlsworld @rubyjewelqueen @some-weird-queer-writer @jacensolodjo @cherry-sys @dralthon @thebibliosphere @brynwrites @aj-grimoire @shade-and-sun @ceanothusspinosus @edhelwen1 @waltzofthewifi @spiderleggedhorse @sleepneverheardofher @highladyluck @oftheides @thecouragetobekind @nopoodles @lupadracolis @elusivemellifluence @creativiteaa @moonflowero1 @the-bi-library @chronically-chaotic-cryptid for your absolutely fantastic contributions!
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skys-archive · 4 months ago
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Does anyone know some comic/web comics or manga with physically disabled characters, especially main characters or strong supporting roles?
For example I really relate to Kakashi from Naruto due to my chronic fatigue, and I know FMA has many disabled characters and I plan on reading and/or watching it. I like fantasy but I'd also love some more realistic world ones, like Saiki k being a pretty good allegory for disability. (Even though that's technically still fantasy lol)
I'm really loving to hear any of these with disability, whether it can be read that way but isn't canon or invisible disabilities or whatever. I'd especially love to see mobility aid users, like Charlotte Webber from spiderverse comics (she uses forearm crutches! Like me! And a wheelchair when she's not fighting crime!) or various characters from FMA.
I don't really read webcomics usually so I don't know any of thos examples but I'd love to hear some of those too.
I'd also be interested in fanfics that take non disabled characters in canon and write them as disabled.
Anyway yeah please I want to read disability representation and I prefer to get my media visually or from world building I already know
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thedisabilitybookarchive · 2 months ago
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'The Reformed Vampire Support Group'- Jinks, Catherine
Disability Rep: Fictional Chronic Illness; Chronic Fatigue; Chronic Nausea
Genre: Paranormal; Urban Fantasy; Mystery
Age: Young Adult
Setting: Australia
Additional Rep: Vampires
For more information on summaries, content warnings and additional tropes, see here:
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chronicallyillbookwyrm · 1 year ago
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I'm hoping to start reviewing books for the sake of neurodivergent people, queer people, and people with physical disabilities. Basically marginalized groups.a With that in mind, what are some things that you lovely peeps wish was included in book reviews and recommendations? Also if you are looking for books with a certain type of representation. Reblog and comment plsssss!! Love y'all 🫶
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checkoutmybookshelf · 1 year ago
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Regency Romantasy
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So...it has been brought to my attention that I perhaps have a type, and this book ticked a lot of really good boxes for me. It's regency-inspired. It's fantasy. It's a romance. It has a chronically ill main character. It has sewing and fashion. Literally 90% of the characters are LGBTQIA. It has a BALCONY SCENE for crying out loud. It even has a gossip columnist who might be better than Lady Whistledown (do NOT come for me, Bridgerton Fandom, I said what I said). I could go on, but at that point I think we would have completely dissolved from actual review to screamed list of things I enjoyed, so let's rein it in for a minute and talk A Fragile Enchantment.
I'm going to start with setting, because while this book is regency-inspired, it also plays a little fast and loose with other historical inspirations. The reality of the blight and famine in historical Ireland (and frankly also the troubles and every time that Ireland revolted against England) was that it came after the regency, but here Niamh is the first generation after a similar event and subsequent revolt in her home country of fantasy Irel--I mean Machland. She has grown up surrounded by survivors of the blight and revolt, and like everyone who reads Maus learns, generational trauma is a BITCH. So when our dressmaker protagonist is invited to make the wedding clothes for the son of the king who murdered her people, it's politically and emotionally charged. Add to that the fact that Niamh's magic is hereditary and weirdly murdery, and yeah, things are emotional as heck.
Possibly I shouldn't relate quite so hard to a protagonist who is literally hurting herself for people who ultimately couldn't give a damn about her, but that IS my villain origin story, so all I had for Niamh was compassion at how hard a position that is to be in.
Niamh herself is beautifully written, and Saft balances all the threads tied around and pulling at Niamh's heart just beautifully. Every choice is complex and fraught, and so-deeply-ingrained-she-doesnt-even-notice-it impulse to shape herself around other people's pain and grief and comfort them instead of sitting with her own feelings is just stunningly well executed without feeling dramatic or indulgent.
Niamh is so desperate for friends, and the little ring she constructs around herself couldn't be stranger or more wonderful. From the enraged, grumpy Kit to Sinclair to Rosa and Miriam, this found family is wildly unlikely and prickly, but they fit between each other's thorns just perfectly.
And speaking of people having thorns...we need to address Kit Carmine. Younger son of a mad (and abusive before he went mad) king with an alcohol problem and green magic, our boy is GRUMPY. And BLUNT. And honestly I love him for that, because those thorns are hiding a very stressed out, distinctly squishy center. And also one that is deathly afraid of hurting people, because that's also a thing.
Kit is so tangled up between rage and duty and the few people he cares about that he and Niamh really have to work to develop a compassionate understanding based on wildly different personalities. And then you add all the imperialist and decolonizing stress between them plus the fact that KIT IS LITERALLY ABOUT TO MARRY SOMEONE ELSE and it's a whole deal.
There are so many wonderful moments in this book, it was a delight from start to finish. I objectively have more to say about this book, but I want to avoid spoilers here to inspire y'all to go read this book. I promise, it's worth it. Now, go get it and read. *shoos you toward the bookstore/library/tablet/place you get your books from*
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littleevil0ne1 · 2 years ago
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I'd like to take this time to thank Chloe Liese for gifting us the autistic rep we deserve and the hot bisexuals making out in a bookstore scene that we NEEDED
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pipperoni32-blog · 2 years ago
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Fourth Wing
By Rebecca Yarros / 5 stars
Man. I don't know where to start with this one. There's so much I want to say. I absolutely love the dragons, and the relationship the riders share with them. The way that they can talk to each other. The world they are in is often cruel, but I felt like it wasn't dwelt on overly so. On top of the world being so realized and fleshed out, you can picture everything. The writing is so good, and the pacing is spot on.
Then there's the personal aspect. From the very beginning, I sent excited texts out to my friends who were also reading - "Violet has janky joints like me!" Even before I finished the book and had it confirmed that Rebecca Yarros also has EDS, I'd connected to Violet on a deeper level. Is Violet a character study on EDS? Does she live my reality and show the severity of my symptoms? No. But she lives in an unstable body. She lives in pain. For once, I got to look at a character through one of their biggest flaws, their biggest liabilities and say "she's like me! And she's awesome!"
Plus, can I just say that the way Tairn (and Andarna) accept her weaknesses and help her realize her strengths? That they know her limitations, and work with them so she can be the best she can be. Even if that support comes in Tairn's grumpy way. Not her dragons alone, Xaden also does, but he's a whole 'nother thing. If I hadn't thought it before, it's confirmed. Guys, I want a dragon!
And then, oh yeah. There's Xaden. He's a category all to himself. My words cannot do Xaden Riorson justice.
I'm still in the book coma that came from finishing this book. Maybe some day I'd be able to do a review that encapsulates the gratitude, the representation, and just the general enjoyment I felt reading this book. I didn't want it to end. I'm so ready for the second one. I'm ready to start listening to the audiobook so I can rest and still get to be in this world.
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thatbitch151 · 1 year ago
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I’m currently character building for a novel I’m going to write in a dystopian world. Are there any disabilities y’all want to see in there?
I wish there was more representation of disabilities and chronic illness in fantasy, science fiction and action genres.
Not just a side character with 30 seconds of screentime. An important character that doesn't just exist to further the storylines of other characters. I want a character that doesn't get "cured" or healed. A character that stays disabled and/or chronically ill. A character that isn't afraid to ask for help. One that doesn't think they're a burden and doesn't try to hide their disability/ chronic illness.
I want to see how it affects them, not just know they're disabled/chronically ill and it jist never gets mentioned again. I don't mean it should be their entire personality but being disabled and or chronically ill can affect many parts of life.
I just wish there was more representation of disabilities and chronic illness that shows every part of it. Especially in fantasy and science fiction it's lacking.
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wahlpaper · 11 months ago
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The Year My Life Went Down the Toilet Review
The Year My Life Went Down the Toilet by Jake Maia Arlow
CW: Poop, Divorce, Parental Fighting, Internalized Queerphobia, Low Self Esteem, Anxiety, Medical Descriptions, Tween Angst, Mentioned Racism, Ableism
5/5
Libby (the app) recommended Jake Maia Arlow's The Year My Life Went Down the Toilet to me. This was likely because I asked my library to add Arlow's How to Excavate a Heart. This is the first book I've read by them, but I know they're going to continue to be one of my favorite authors. This book was filled with Queer, Jewish, and chronic illness representation! The story wasn't a reflection of my life or anything close, but I still found myself relating to the feelings of the characters. I'm glad Arlow wrote a character as complex as themself.
In The Year My Life Went Down the Toilet, Al is diagnosed with Crohn's Disease at age 12. She has been pooping a lot, often having to run to the bathroom in urgency. She's not feeling good, physically or about herself, but it's made worse by her mother's constant worrying and the thought that she may lose her best friend, Leo. While Leo is busy finally following his passion by joining the school musical, Al gives in to joining an IBD (Inflammatory Bowel Disorder) peer support group. Things start looking up for Al, but how long can it stay like that? Will her secrets or her stool come out first?
Although the pacing in Arlow's novel was hard to follow at times, I have zero other complaints about how it was written. This book invoked an impressive balance of emotions from me. There were funny moments, relatable ones, ones that made me annoyed with Al or other characters, and ones that brought me close to tears. There were just enough characters to make Al's life feel real, but not to overwhelm the audience. I know that middle-grade novels aren't for everyone, but I love how wholesome they are. They can tackle poop, anxiety, fights among friends, divorce, and big promises broken while still being sweet and healthy. Writers for adult romances could learn something from them, especially through the middle school romance featured in The Year My Life Went Down the Toilet.
The copy I listened to of Arlow's book had an Afterwards by the author. They talked about being nervous about writing a character who is queer and Jewish and has a chronic illness that involves poop. They worried about people calling it silly or too much, which I imagine bigots would do with even just one of these. Arlow figured that if all three were true for them, they could be true for Al too. I'm so glad they did! I don't have Crohn's, but these three things are true of me. I appreciate the representation very much and can empathize with Al and her friends. The diversity representation in this book includes anxiety, non-binary, racial, and aromantic. Nothing feels shoehorned, it all matters.
Singling out the queer rep, I appreciate that almost every character is a part of the queer community. It's highly unrealistic in TV shows where there are a bunch of straight characters and one queer one. We flock together. I also appreciate that this is just a slice of Al's queer identity journey. It's not the beginning or the end. It's unlikely that we figure it all out quickly. Al knows she likes girls and gets the chance to like a specific one. She tries out a label for herself, but she doesn't sound 100% sure of it, but that doesn't get resolved. She makes a non-binary friend who uses "she/they" pronouns (pronouns beautifully woven throughout the narrative) and starts to question if maybe that would work for her. She's in the stage that older trans people might call an "egg". Someday after the story ends, she may just find herself hatched as a non-binary person.
As multiple characters are Jewish, the audience gets to experience a nice sample of different personal relationships to the religion. Al and her mother aren't very religious, but they care about their Jewish identity. Leo and his mother are more religious. His mother runs a Jewish bakery and uses a lot of Yiddish. Leo is dealing with the realities of being a biracial Jew. He doesn't look much like his mother and doesn't "look Jewish". There's also Sephardic Jewish representation, although not as heavily explored. If you're looking for Jewish joy, you'll absolutely find that in The Year My Life Went Down the Toilet.
As long as medical descriptions don't deter you completely, I definitely recommend Jake Maia Arlow's The Year My Life Went Down the Toilet. Either you can relate to the chronic illnesses of the characters or you can learn a lot about it. You'll be treated to the sweetest cast of characters along the way in addition to Jewish food ideas. If you're looking for your next bathroom read, this is the one!
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orfisheus · 1 month ago
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The Problem With the Eddsworld Fandom's Depictions of Red Leader/Future Tord, A Disabled Perspective
Disability is a contentious concept for most of society, with most either treating us with disgust, confusion, refusing to treat us as human, or to see our struggles as what they are. Ableism affects all people in many different ways, but as someone who focuses a lot of my energy in fandom spaces, the pervasiveness of ableism with how media and their fans interpet and react to disabled characters is a very personal situation for me. While many may argue that an ignorance to these topics in fiction has little bearing on real life, the prevalance of these tropes have echoed and led to feelings of othering for many disabled people, and oftentimes support the same notions that lead to the day-to-day ableism in our own personal lives.
In recent years, I have experienced this most often with the prevalance of negative disability tropes perpetrated by fanfiction surrounding the character of Tord, also known under the alias of Red Leader in some fanworks. It is a problem not just common in the Eddsworld fandom. A more recent, and much larger fandom in Mouthwashing also shares a common trend of repeated ableism in fan depictions and interpretarions of disabled characters. Most fan creators are unaware of these tropes and the harm that they cause, but as a disabled person, I am unable to ignore it.
For context on myself, you can call me Fish. Get it? Or"fish"eus? I like to think I'm funny. I am a mentally ill, disabled, and neurodivergent creative who has niche interests in representation in media and the intersection of intersectionality and fandom spaces. I experience chronic pain due to a multitude of conditions, all of which are invisible disabilities. I am NOT an amputee or have a facial difference, like the character I am analyzing. I can only speak based on my own research in my attempts to portray him positively, but I want to mainly focus on the ableist tropes I see and the real life effects they have. That is something I CAN focus on, because I've been dealing with it for years from conditions that came onset later in my life. I will be speaking from that perspective, but will be doing my best to try to educate on what I do know from my research to help authors, artists, and creatives create a better portrayal of him in fanworks.
The most common tropes I see with him are what I will call "The Disabled Villain", "The Innacurate Disability", and "The Ignored Disability". There are a few tropes in each, but for ease of organization (and the sake of your (and my) time), I will be talking about them together in these sections. There are also overlaps in many, but I will define the main issues with them.
The Disabled Villain
James Bond, Wonder Woman, The Witches. You name it. You have most likely seen this trope at work in cinema. A malicious evil-doer is revealed to have a "horrid" face symbolic of the true evil within their soul, while the beautiful, able-bodied hero is meant to stop them. It's a trope as old as time, one that goes back to even Plato. Tropes are tropes, people subvert them, so a few cases down the line may be excusable. But that has not been the case For many years, the most prevalent form of representation for disabled people was in these villains. Imagine if the only representation you had for yourself was narratives surrounding how the way you look or what your disability is and have it only be equated to evil people. It leads to a villainization of disabled people. People react to facial differences with disgust, because they are "shown" that it is "evil", or "ugly", or equal to being a horrible person. As stated by The Nora Project, "According to the book Disabilities: Insights from Across Fields and Around the World, disabled students are two to three times more likely to be bullied in comparison to their nondisabled classmates. The disabled villain trope contributes to this phenomenon in overt and subtle ways. For example, the trope implicitly encourages fear of disability and difference, while validating, and even elevating, those who fight against the evil, Disabled Villain. Bullying based on fear and disdain is almost a natural consequence of the trope when viewed in this light". Another big issue is that disabled characters have not been given space to exist outside of villainy. There are not many complex narratives surrounding them. This leads to our disabilities being downplayed, us being dehumanised, and we are seen more like props in real life, or simply tools to achieve a message in a narrative.
Tord's disability is never explicitly shown in the show. It is something more prevalent in Fanon, specifically in fanworks that focus on the "Future" era of the show's timeline, where the narrative and outside discussions on the show implies a high tech society, potentially dystopian, potentially a consequence of his actions. These ideas have taken a life of their own in the fandom, with many creators fully expressing these ideas. The problem arises when Red Leader falls in line with this trope. In many works, he is the sole disabled character, a figure of pure evil, or given little nuance in the narrative. Artists illustrate his scars as bright red, crimson, or, in TBATF, green. For some reason. In this way, they attempt to highlight the villainy by equating him with common symbols of evil: facial differences and disabilities. Unfortunately, these are not just symbols. These are conditions and scars that real people have, which the fandom tends to ignore in favor of dramatization.
This was a trope I most commonly saw explored in fanfiction when I first joined in 2016/17. The show, unfortunately, subtly and accidentally perpetrated it by having the only character visibly and irreparably "damaged" by the giant robot fight be Tord, despite the fact that Tom, who had a whole missile directed at him and got buried under a house, was fine with at most a leg injury and a cut on his arm. Luckily, we have grown past the need for ableist tropes, and the faults of the show can be left in the past!
... Not.
Disability tropes have simply evolved in how the fandom treats Tord. Even if it is now done with more consciousness and sympathy towards his character, ignorance still prevails. Let's talk about common pitfalls people fall into when writing him.
The Inaccurate Disability
In fanon perception, Red Leader is an amputee with a high tech prosthesis and a facial difference resulting from burn scars. Like many disabled characters, he suffers from a collective fandom lack of research. But never fret! That is what I have subjected myself to for the past four years, so your friendly neighborhood disabled Fish can tell you how to right your fandom wrongs! Just kidding! Take this as a pointer, and do your own research.
As is common with fictional prosthetics, his arm prosthetic is treated as a perfect fix for his amputation. It acts just like, if not better than an actual arm. The issue with this is that is isn't realistic. Yes, I know, I'm criticising Eddsworld fanfiction for not being realistic. STAY WITH ME HERE. Once again, if it was one instance, or a few, that explored prosthetics being incredibly functional in science-fiction, then it could be a cool concept. But when every sci-fi work has it, then that is no longer a concept. That is a misconception. And I have interacted with people who believed that prosthetics were 100% functional! The thing is, like all disability aids, it does not suddenly make us able-bodied. For example, I have ear defenders that I wear when I experience pain within my ears. But that does not mean my hearing will now become normal, and I will no longer experience pain from the sound I'm hearing. What WILL happen is that I will straight up not hear you. Like, literally. Can you repeat that? I had my ear defenders on. Oh, you're saying that my ear defenders aren't prosthetics and are not a fair comparison? Well, that's fair, but take this as an illustration of a disability aid and how they differ from able-bodied experiences. Also, many prosthetic users do many things without their prostheses, and some even prefer NOT to wear them. Blogs that explicitly cover disabled representation, such as @/cripplecharacters, have posts that cover WHY many amputees are not fans of this trope. The problem comes with that it erases disability, and yet also treats us like we are given a space at the table of representation. It's just another way that authors avoid actually doing research.
Other things that people tend to ignore are how burn scars, or any scars, would not only appear on a character, but also affect them. I have seen, aside from skin tones that looked like they were picked out of a crayon box instead of what would appear on a person, teeth exposed, wounds that look as if they are fresh from the explosion YEARS after they occurred, and what I like to call "paper shredder" scars. Because instead of them looking like burn or shrapnel scars, it appears as if his skin was put through a shredder. Once again, another consequence of the show's at most-30 second scene with questionable decisions that made massive ripples in the fandom. With the injuries Tord received, it is most likely that he would have two kinds of injuries: a burn on 18% of his body (minimum, based on rule of 9s), and/or shrapnel scars from debris. While shrapnel scars would manifest as darker scars, the burn scar would likely be a hypertrophic scar, as "70% of patients develop hypertrophic scars following burns" (Finnerty et. al). The scars, when healed, are warm toned on the boundaries of their areas and cool in between. When on a pale skintone, they are not too dissimilar, and would therefore not have such a drastic color difference as seen on skin. They would also not go down to the bone or skin, as that would be a completely different kind of injury, and are also commonly done to make him look "scarier", which then aids the Disabled Villain trope. It also treats these scars and injuries more like a work of fiction, rather than something that many real people have experienced, adding to continuous misinterpretations of real life disabilities and facial differences.
For writers wanting to include consequences of burns, what would be more likely to be affected are his hearing, vision, and nerves on the right side of his face, as burn scars can go as deep as nerve endings. Also, burn scars, especially third degree burns, require treatments, such as burn-specific skincare. Scars, especially burn scars, can affect you and become disabling. For artists, the main thing I don't see artists do is draw him with damaged hair follicles. Burn scars damage the scalp and eyebrows, preventing hair growth. I am sorry, but he would not still have fluffy, luscious hair. Do not kill me. He just wouldn't. And if you are saying that he had it in the show, I can't hear you because my ear defenders are on, but I hope you heard me, as we've gone over that the show is inaccurate and we should do our own research.
Even well intentioned authors and artists ignore many aspects of the disabilities he would likely have!
Which brings us to the last trope...
The Ignored Disability
Many well meaning people intend to give him nuance by trying to avoid the Disabled Villain trope. Accidentally, however, they end up completely ignoring his disabilities instead.
Just like the high-tech prosthetic, the real disabling aspects of having a disability are at best rarely mentioned. I have seen, in some fanworks, that he goes straight from amputation to having a prosthetic. And that is where his disability ends. Because the prosthetic ends up being a fix-all situation. Authors refuse, or forget, to include aspects of amputation, such as the healing process, stump or phantom pain. Artists will cover up his scars with a helmet or a mask, another trope that undermines his disabilities and attempts to brush it under the rug. I understand that there is a discomfort for able-bodied authors in thoroughly exploring how a character feels about their disability. That is something I think we should. Avoid. If you're not familiar with the experience of being that minority, you do not need to add commentary on it. And if you do, and it just falls into more negative tropes, I will send a salmon cannon at you (/j). However, I do not agree with brushing every disabling aspect of his life under the rug.
People can assume it's not a problem, like it isn't something blatantly apparent. But, if you assume that disability and being disabled is not a "big thing", you end up where your medication is denied because your insurance refuses to see your common procedure as not a necessary medical intervention because you're "too young". And that is not fiction. That is what inspired me to write this essay, because the day that I got that news was the same day I sat down and told myself that I needed to share my perspective on the perception of disabled characters by honing in on one of my favorite characters and how the fandom treated him.
Disabled characters deserve to be included in media, disability and all, with care given to how their life would operate as a result and what they would experience with their specific disability. That's why many people recommend sensitivity readers who can give proper insight upon that disability and can advise people to properly portray it.
But if you cannot afford or access that resource, what can you do?
Fish's Non-Cohesive List of Ways I Tried to Write Tord as a Non-Amputee Without a Facial Difference
Do research!! The more you are to try to understand what you are writing about, the less you are to misinterpret or misrepresent it.
Look into resources that focus on portraying disabled characters, especially with those you wish to write about. Read blogs, research tropes that are common in disabled characters, and hell, read medical journals. They can provide great insight (<< nerd who likes reading medical journals)
Include more disabled characters. Make the other boys be disabled! Want to be canon compliant? Create OCs who have disabilities! I have a bunch! It's 2024! Be cringe and be free! The character's disability would go against the traditional narrative form of "usefulness"? I'm an animator who can't wear headphones and a theatre performer who can't physically handle the volume of a band. And yet, we find ways to persist, to exist. We will always find our way to live in the way we want to, in whatever way we can.
Look into disability activism. Learn the difference between the Medical Model and Social Model of disability. Know what an invisible disability is. Listen to us when we say that we don't want to be treated as special or an inspiration for simply living (inspiration porn). The more you are aware of what we struggle in real life, the more aware you will be to not repeat those mistakes in your fiction.
Write what you can. Highlight little talked about aspects of having a burn scar or being an amputee, such as the recovery, or treatment for the chronic pain, or how different he would be in battle due to decreased depth perception. As a disabled author, I have personally touched on the experience of gaining a disability later in life, and how he copes with it. Now, not all of y'all can do that. But that is a personal experience I do have, and it is something I have highlighted in my own work. So, while I couldn't tell you the ins and outs of having a burn scar or a prosthetic arm, I could describe the shock and frustration that comes with suddenly experiencing difficulties, or even being unable to do what you had done before.
I ask that, if you are willing to do better, or to start on the right foot, you take what I have written, reflect on it, and treat disabled characters, and in turn, disabled people, better from here on out.
Fiction is not reality, but the way we deal with it is reflective of who we are and what we believe. The boundary for our own personal being does not suddenly stop within fiction. When we interact and interpret it and create for it, it is integral that we remain conscious that bigotry runs rampant, albeit often as an unseen force, within fandom spaces, and do our best to counteract that.
I have doubts that the new eddisode will treat this topic with the same respect. I hope you can all go forward with what you have read in this WAY LONGER than I expected essay, and do what those grown British men cannot. Even if they erase it, retconn it, or do not treat it with respect, let's all go forward and do better!
As for always, you can discuss more in the tags or my inbox!
I hope you have a wonderful life,
Fish
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thedisabilitybookarchive · 1 year ago
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'The Second Mango'- Glassman, Shira
Disability Rep: Severe Food Intolerance
Genre: Fantasy, Romance
Age: Young Adult
Setting: Fictional: Perach
Additional Rep: Jewish Themes, Lesbian MC, F/F, F/M, Platonic Female Friendship, POC
For more information on summaries, content warnings and additional tropes, see here:
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blindbeta · 1 year ago
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Hello! I have two questions, so I'll send two asks in case you want to answer them separately. First, a lot of your posts suggest writing multiple blind characters into your story to help avoid tokenism. However, when I try to write multiple blind characters, they always stand out or feel shoehorned in. Do you have any advice for writing multiple blind characters more "casually" so they don't feel as out of place?
Examples of How to Write Multiple Blind Characters Using The Owl House
Hello. Thank you for your questions! I actually started on this months ago and returned to it answering this question here.
I suspect this is what stops many writers, although they aren’t aware of it. This feeling of forcing representation is the result of society’s ableism and it can be difficult to recognize or deal with.
It might help to think about the reverse- isn’t it strange that so many characters in books and shows are abled? Isn’t it strange that so many disabled characters have no community?
When you write multiple blind characters, you are giving your blind character a community.
Another thing that might help is to show different characters having different conditions and different ways of dealing with their blindness. This is a technique I use all the time. You can even list all the blind characters and their characteristics so you can consider them all at once. For fun, we’ll use The Owl House. I feel that using all-ages examples might help writers feel comfortable engaging with the material.
The following will contain discussions of external and internalized ableism. It will also contain heavy spoilers for The Owl House up to the show’s finale.
Here is an example I came up with:
Main character, Luz, has a low vision in both eyes. She uses a cane for nighttime, mostly, but she feels like more of an outcast when she uses it at school, compared to the enthusiasm with which she used it and showed it to her classmates when she was a child. She stopped using a cane before entering high school. She packs it for camp just in case and uses it all the time on The Boiling Isles. There, she feels more comfortable using it every day. She is eventually able to use her cane and other assistive devices, whether magical or non-magical, whenever she needs to. Growing up, she struggled in school due to neurodivergence and not always getting her accommodations or maybe even struggling to ask for accommodations. She is happy to find that Eda and Hexside are able to accommodate her without making her feel othered. Although she has felt rejected in the past, she is able to fully embrace her blindness once more, celebrating a part of her in a way she was able to as a child. Also, she has several copies of The Good Witch Azura books in regular print, large print, and audiobook forms.
Eda, her mentor, had total enucleation in one eye and wears a prosthetic. How did she lose her eye? She doesn’t remember, now stop bugging her. Due to macular degeneration, her vision isn’t so good in the other eye and is decreasing over time. She doesn’t use a cane after struggling against her mother in childhood. She can use her Palisman or King as guides if she needs help. (King appointed himself her unofficial guide demon.) Her visually impaired partner, Raine, has gently and jokingly encouraged her to do what helps, including using assistive devices. After they started dating again, Eda feels comfortable using Raine as a guide, which also gives her an excuse to cozy up to them. Eda eventually comes to terms with her blindness much like her chronic illness. When she and Raine go on walks, she jokingly makes them carry things, stating if they want her to use a guide demon or a cane so bad, they can lend her a hand considering she only has one. She switches between the cane and guide depending on what suits her that day. Raine also supports her in her times of vulnerability. She can also have her phone or use spells to read, but reading is for nerds so she would rather have someone else read to her, such as her sister, Luz, Raine, or King.
Principal Bump is blind with residual vision and uses a guide Paliman to help him navigate and magnify things if he needs it. When he had Eda as a student, he was excited to help a student with similar experiences, but he quickly learned she was a troublemaker.
Willow is totally blind and uses a fluffy guide demon. She also has a cane decorated with flowering vines, which she enjoys using because she can have interesting tactile feedback. She was born blind and doesn’t struggle with her blindness beyond the occasional frustration with ableism or lack of accessibility. Her dads are very supportive and helpful. They sent her to Hexside hoping having a blind principal would assure she would get accommodations. She enjoys using magic with physical and textural elements, which is why she tried the magical school tracks she chose.
Gus is also blind with a bit of remaining vision. He enjoys looking at colors and lights. Gus chose to focus on illusions because they make interesting shapes and colors, providing his brain with a lot of sweet, sweet stimulation. Gus also enjoys that a track that is very visual is something he can excel at. He met Willow when complimenting her on how pretty her plants looked, describing to her what looked like a colorful blossom on a vine. He uses a cane to navigate, finding it more helpful for stairs and general independence even if canes aren’t quite as popular on the Boiling Isles as magically assisted options such as Palismans and guide demons. He also enjoys using something more similar to what humans use, as he is very interested in humans. He feels very comfortable with his blindness, finding a similar outlook in his friend Willow. Together, the two feel more understood. Willow and Gus pass Braille notes to each other in class. Gus prefers to have his spelled books or illusions read to him, though.
Amity deals with internalized ableism stemming from a need to be perfect, as well as many terrible implications from her parents that she doesn’t let on hurt her. She concentrates on not letting her disability stop her, as that’s what a Blight does. She has low vision, similar to Luz, and progressive vision loss. Unlike the other characters, she does not have much positive support. Principal Bump tries to encourage her to use the many aids and accommodations provided by the school, surprised that she knows the Boiling Isles equivalent of Braille, but only because her parents thought it would give their child an edge and because she attended the same early childhood classes as Willow. Amity politely rejects his help and goes on the be the top student just to prove a point to everyone (a.k.a her parents). She grows up being friends with other kids who say ableist things, leading to Amity feeling even more pressured to rely on her remaining vision. Eventually, her relationships with Luz and Willow help her to accept herself. She is able to act more authentically. This includes confronting her former friends, apologizing to the people she bullied, and attempting to use a cane at school. She is surprised to find that nothing really changes and a few people, including her siblings, even comment on her cane use positively. Willow also shows her how to get her phone to read to her, as well as use the spelled books you can buy that read out loud, which helps reduce eye strain. The similarities between her and Luz helps to strengthen their bond, but otherwise their relationship is unchanged from canon. Amity also has another troublesome barrier to asking Luz to Grom, such as how to make the note accessible. She ends up going with large print and high contrast ink. If she can read it, she knows Luz will be able to.
Hunter has an inherited retinal disorder, such as LCA or Stargardt disease. All of his predecessors have had a similar experience and Hunter takes pride in being part of that line. Each Golden Guard has decreased vision compared to the last, it seems. Hunter views his blindness as a part of him. His blindness allows him to adapt in ways others may not have a chance to explore. He becomes aware of advantages he has over the many sighted people he works with. He is known for his talent, adaptability, and resourcefulness. Hunter struggles with photophobia, which his mask helps with. For navigation, he has a cane, as well as his staff, which he prefers to adapt for navigating. It is about chest height and acts similarly to a WeWalk cane. He can use it to teleport and use magic, but it is mostly for identification and navigating if needed. Eventually, he considers switching to a guide demon like Willow’s, which can also offer companionship along with his new Palisman. Hunter can read the Boiling Isles equivalent of Braille, which he uses for labeling, personal note-keeping, and reading when his eyes are tired. He can keep working longer this way, although he does occasionally read or write for fun if he has a spare few minutes. Hunter also makes tactile maps.
There we go. I provided examples of several blind characters in the same place. Many of them know each other and maybe even meet because of their blindness. They all have different types of blindness and different experiences with their blindness, even when compared to characters who are on similar places on the blindness spectrum. I explored how they navigate, how they view their blindness, and ways in which they relate to others. Some struggle with internalized ableism, but not all of them. They have their own arcs related to their blindness, although they have the same arcs and interests as in canon.
Rather than seeing multiple blind characters as an obstacle, view it as an opportunity for characterization. For example, Amity’s experience with ableism is heavily rooted in how she was raised, in how her parents treated her blindness as a defect or something to be ignored. Meanwhile, Luz’s experience with ableism originated in childhood rejection. Compared to them, Willow, Gus, Principle Bump, and Hunter are all thriving. Even Eda is mostly cool with everything, only having a confusing and uncertain relationship with mobility aids. Additionally, Luz is able to let go of and unlearn her internalized ableism as soon as she finds people who accept her. Amity, in comparison, takes much longer to accept herself.
I know that some writers who aren’t blind may feel unequipped to write internalized ableism. It isn’t necessary, but instead something I thought fit Amity’s original character arc. Internalized ableism can be a lot more subtle than this or not feature in your story at all. Luz and Eda might struggle with this as well, but to a lesser degree. It would also be similar to their arcs in canon.
Here are additional character breakdowns because I thought they were fun:
Who uses Braille?
Willow, Hunter, and to some extent, Gus
Braille literacy is declining, so not everyone knows it in this A.U, which is similar to real life. However, I prefer to have at least some of my characters use Braille to push back against that.
Who uses audio to read, primarily or some of the time?
Gus, Amity, Luz, Eda
Who uses regular or large print?
Luz, Amity, Principal Bump
Who uses magnification?
Principal Bump and probably Luz in childhood
Who uses a cane?
Luz, Amity, Hunter, Willow, Eda
However, Luz, Amity, and Eda all struggled to get there to some degree. In real life, few blind people actually use canes despite possibly benefiting from them.
Who uses an animal guide?
Eda, Willow, and, later, Hunter
On the Boiling Isles, creatures participate in training schools and are matched with potential handlers. They are mostly given to adults, although some schools allow kids to apply, such as those in their upper teens. I have a post on guide animals here.
Who has some residual vision?
Luz, Eda, Bump, Gus, Amity, Hunter
Who is totally blind?
Willow
In real life, 85 to 90% of people who are blind have some residual vision, depending on what source you draw from. Most of the cast can still see something, even if only colors, light, and shadow.
I hope this helps. This is my first time sharing something like this. Readers, feel free to use this however you like, for stories or fan art.
-BlindBeta
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checkoutmybookshelf · 1 year ago
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Damn Right the Perfect Queen Uses a Cane
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Fairbanks is somehow simultaneously too small and too large a town. Apparently one of my very best friend's partner has been friend with Elva Birch since they were both teenagers, so that's a degree of Kevin Bacon I was super not expecting but shouldn't have been surprised by, because I KNOW how small a town Fairbanks is. None of which is strictly relevant to why we're talking about the second book in the Dragon Prince of Alaska series, but it is a fun little Fairbanks Fact. Which is even wilder because this book starts in Florida. So let's talk The Dragon Prince's Librarian.
This is, as is typical on this blog for sequels and mid-series books, a SPOILERIFIC REVIEW. Be warned.
Ok guys, I swear we aren't going to do all six books of this series here, and I know I am way overdue for the next Dresden Files book, but where I take just...every single possible issue with how the Dresden Files handles disability, this book handles it SO FREAKING WELL. Tania is realistically tired, realistically has good and bad days, realistically uses mobility aids, and realistically has that all-too-familiar feeling of "No, no, you don't even get to DREAM of being rescued from this situation because a) it will be too painful when it doesn't happen and b) you getting rescued doesn't fix the hideous inequities of the US healthcare system and frankly, that shit NEEDS fixing."
Additionally, I appreciate that Tania doesn't hate her cane. She recognizes that it lets her move and stand independently and it can up her quality of life, if only in small ways. What she hates is that the cane is UGLY. And that is entirely fair, because there is nothing worse than a boring, utilitarian mobility aid that stands out from you and your aesthetic rather than integrating with you. And Rian, absolute PRINCE that he is (pun fully intended), doesn't try to fix or cure Tania, he gets her a beautiful cane that integrates with her personality and aesthetic. That level of support literally made me cry. And then I cried MORE because while Rian couldn't fix the American healthcare system, what he COULD do was donate a ton of equally beautiful canes in Tania's name in such a way that the people who need them most can access them, the process for getting them is as simple and barrier-free as possible, and Rian took care of ALL of this so Tania did not have to expend spoons on it. The care and attention included in how thoughtful and well-executed this was was absolutely breathtaking. Literally, our reality is not this good, and I love that this book took such care and respect with how disability/chronic illness and mobility aids are handled. At no point did any of it feel patronizing, infantilizing, catastrophizing, or an attempt to "fix" something that was "broken" or "lesser." Just A+ no notes, and I don't say that often about representations of disability in books.
The other thing that I just felt in my bones about this book is how the end of Tania's academic career played out. She literally got gatekept and gaslighted because the Small Kingdoms erased every single trace of her master's thesis, her primary sources, and even her ADVISOR (who was paid to disappear, not killed). This very handily gets Tania kicked out of school, and as her health worsens, she also loses her job and health insurance, so by the time Rian shows up at her front door in Florida, Tania's life has literally fallen apart and it is 90% Rian's fault. Which makes the whole fated mates thing SUPER awkward, because she's rightfully pissed with him for torpedoing her degree and academic career, and also he then gaslit the hell out of her about that until he realized they were fated mates, came clean, apologized, and...proposed. It was awkward as hell, you guys.
And let me say, as someone who went to grad school, had someone gone from admitting they torpedoed my life and gaslit me about it to proposing marriage, they would have been super mega deadsies. Like, no questions asked, they just would have been annihilated by the sheer force of my rage.
But fated mates and romance novel, so Tania just mostly spends the whole book going "remember how you torpedoed my thesis?" in varying tones. Rian is literally never living that down, and he shouldn't, because frankly he was lucky to SURVIVE admitting that.
Overall though, I was so happy with the representation of disability and a healthy, positive relationship that includes a disabled person, as well as Tania and Rian as characters, I was willing to overlook insufficient consequences for fucking with a grad student's thesis. Because this book was a delight to read, and it is UNQUESTIONABLY my favorite book in the series.
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ellatholmes · 11 days ago
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Artifice & Access: a disability in fantasy anthology.
It’s long been acknowledged that disability representation is lacking in the fantasy genre landscape, so in this cozy anthology, fourteen writers from around the globe come together to bring you wonderful fantasy stories centering disabled and chronically ill characters.
Teeming with magic, otherworldly creatures, discoveries, and journeys, every story is as thrilling and fascinating as it is passionate and meaningful. Worlds are discovered, lives are changed, and swords are drawn.
Disabled and chronically ill characters go questing, fighting dragons, healing, and enacting strange magics. Familiar fairy tales are reimagined, and new fairytales are forged, with each story shattering stereotypes and challenging traditional narratives. Come see yourself reflected—or discover something new.
ARTIFICE & ACCESS is an anthology, a collection of 14 short stories from 14 authors around the world, writing from different disability and chronic illness perspectives. This project started as a way to try and contribute to closing the VAST gap of representation in fiction and authorship in publishing, as well as combat some of the harmful narratives and stereoypes disabled people are often written into; It became a collective effort that has connected new friends, encouraged people to see themselves as worthy of being main characters, and more.
100% of the proceeds from this book go towards continueing the uplifting and promotion of disabled and chronically ill writers.
🎉 We had orange Top New Release banners for a WEEK, and are still ranking in the top 50 releases for YA fantasy short stories. 👉🏼 You can buy this book at major retailers and indie book stores -- you just need to ask them to order it in! 📖 If you have a library card, please consider requesting this book so kids who need it (like I did!) can access it more easily. 💖Please leave us a review on Goodreads and Amazon to help continue the project!
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thedisabilitybookarchive · 1 year ago
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[ID: A book cover. The corners and bottom of the book are covered in red vines. A red figure lies at the bottom of the book, above the authors name, on a red chaise lounge. A figure falls towards them, also red. Behind them, a large tower in the centre of the book, surrounded by smaller towers. All are black and pointed at the top. At the top of the tallest tower, a hand, with a finger pointing towards the tower and drop of red blood between the hand and the point. Text over the top of all of this reads, from top to bottom: The title “A Spindle Splintered” in large white capitals across the top half of the cover. A review directly below the title, lower left, in smaller white font, reading “”A vivid, subversive, and feminist reimagining of Sleeping Beauty”-Katherine Arden” The authors name “Alix E. Harrow” at the bottom of the book, in large white capitals. /end]
Disability: Chronic/Terminal Genetic Illness
Genre: Fairy Tale Retelling (Sleeping Beauty)
Series: Fractured Fables
Archive Entry
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A Spindle Splintered
Alix E. Harrow
It's Zinnia Gray's twenty-first birthday, which is extra-special because it's the last birthday she'll ever have. When she was young, an industrial accident left Zinnia with a rare condition. Not much is known about her illness, just that no-one has lived past twenty-one. Her best friend Charm is intent on making Zinnia's last birthday special with a full sleeping beauty experience, complete with a tower and a spinning wheel. But when Zinnia pricks her finger, something strange and unexpected happens, and she finds herself falling through worlds, with another sleeping beauty, just as desperate to escape her fate.
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LGBTQ+ Disabled Characters Showdown Battle for Fourth
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Please be civil in the notes. We will block people if we feel it is necessary. A character being canon LGBTQ+ and disabled was not required to be in this competition. Please check qualifications and propaganda before asking why a character is included. This is not a competition of who is better representation.
Check out the final poll here.
Eda Clawthorne-The Owl House
Qualifications:
She has a magical chronic disorder which has flare-ups, is mitigated by taking medication (potions), and has similar side effects to many real disorders such as fatigue, greying hair, and physical impairment (drains magic, a natural ability of *most witches). Unlike in other stories however, her condition is NOT ever completely cured. It does evolve and become more manageable over the course of the story, but she still experiences symptoms from it. Eda also loses one of her arms later in the story. She does get a replacement hook, but it is never shown whether she has a functional prosthetic or not. Most likely, she only has one fully functioning arm after this. As for being queer, she is in a relationship with a nonbinary person and is all but confirmed bisexual (has a secret box with the bi flag on it seriously why else would she have this). Also the owl house has a Lot of queer characters in it and I mean. just look at her. I would be surprised if she wasn't queer somehow.
Bisexual, and has a curse that affects her day to day life
Bi & lost arm and has a chronic illness metaphorically
Propaganda:
Has canonically dated both men and a non-binary person. Her curse affects her ability to use magic (and at one point outright stops it), which is very important in witch life. Said curse also causes her body parts to fall off sometimes. Many have said her curse is like a metaphor for depression but really it's more like a magic version of a physical disability (although I wouldn't be surprised if she actually also had depression).
Uuuuh she’s great and stuff idk I can’t propaganda well sorry
Harrowhark Nonagesimus-The Locked Tomb
Qualifications:
She's a lesbian and the author Tamsyn Muir has confirmed she's written as schizophrenic, based on her own experience.
Okay SO Harrow is a necromancer nun who is also a huge lesbian. She spends the books of TLT series being super gay and repressed about her emotions for 1. Butch lesbian Jesus and 2. Human Barbie the death of God. She narrates the second book (Harrow the Ninth) and is author-confirmed schizophrenic. She experiences hallucinations thru the whole book and has since childhood. She’s also WIDELY headcannoned as autistic by the fandom (me too) because. Because she IS SO FUCKING AUTISTIC (source: I am autistic too)
Schizophrenic lesbian with a traumatic brain injury
Schizophrenic and sapphic
canonically a schizophrenic lesbian. neither word is used in series, she isn't in a position to get a diagnosis and queer identities are so normalised in the universe that labels just don't get mentioned, but she is written as both by an author who is also both.
Canon schizophrenia Canon lesbian with canon schizophrenia
She's a schizophrenic lesbian with a traumatic brain injury
Propaganda:
The Locked Tomb is pretty popular on tumblr but I might as well submit her anyway
She’s a lesbian necromancer nun. She’s a saint and also woke up the death of God, who is a human Barbie, who she is in love with, tho she’s also kind of married to lesbian Jesus. She’s schizophrenic. She’s scrungly. She puts bread in a drawer. She’s even autistic
Harrow first started hallucinating (visual and auditory) when she was ten years old! The traumatic brain injury and seizures are much more recent. Unironically gotta love a pov protagonist who makes you struggle along with her in sorting out hallucination and false memory to figure out what's going on. Also while Harrow's disability shapes the narrative, the book isn't at all about her being disabled. It's a fantasy/scifi gothic horror novel about being trapped at a work retreat with God.
so many women want her but she’s determined to be in love with the soul of the dead earth trapped in a 10ft barbie doll instead. she’s a lesbian disaster and is trying to deal with both schizophrenia and over 200 actual ghosts haunting her.
a schizophrenic lesbian, written by a schizophrenic lesbian! she's in love with multiple dead women, but she's also a necromancer so that's not as big of an obstacle as it sounds. weird little bone-obsessed necromancer lesbian. I care about her deeply
Author Tamsyn Muir has discussed how Harrow's schizophrenia is modeled after her own experiences. It matters a lot in her eponymous novel, where her inability to trust what she sees and hears is compounded by her self-inflicted lobotomy to save her girlfriend's soul from getting absorbed into her own.
Harrow is one of the protagonists of her series & both her lesbianism & her schizophrenia play major parts in the story. The author has spoken about how she wrote Harrow based on her own experiences, and the authenticity comes through strongly. Beyond that, she's a teenage gothic nun in love with a holy corpse & she's the greatest bone magician ever born. What more needs be said.
She's a lesbian, she's psychotic, she has seizures, she faints regularly and can't rely on her own memory worth shit. And the only reason she's not going to kill god is so she and her girl can escape the cycle of violence. Basically, Harrowhark Nonagesimus is the entire package.
Anything Else?:
Listen. Listen. I’m not doing Harrow justice here. I LOVE her (Submitter 2)
The author is also schizophrenic! Which is pretty cool. (Submitter 3)
The author of the series is openly schizophrenic, and has mentioned in interviews that she's drawing on that experience when writing Harrow :) (Submitter 8)
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