#possible hEDS

[chondrocladia]

starting to get scared that my dream job might never be accessible to me because my health is declining and the time i can spend standing before pain starts radiating from my midback and feeling like i'm about to pass out/collapse is rapidly decreasing and my general joint pain and fatigue is getting worse

all i want is to be a marine biologist and do field work but if i keep getting worse idk if that's gonna be possible

[wizardsaur]

Being whatever brand of hypermobile I am - (diagnosis pending) - my fingers bend backwards. All of them. All the time. At the very last knuckle.

Which isn't the best when I'm trying to do literally anything. But especially when I'm trying to create things like drawing or crochet.

I need ring splints, so affordable recommendations are appreciated.

[dandelion-system]

Okay I’m trying. I am.

I’ve got loads of physio stuff I can do go try and strengthen my joints and reduce pain. I’m going to go to the gym on Fridays. I’m taking supplements. I’m going to try acupuncture again. I’m doing positive thinking and visualisation. I’m eating well. I’m pacing as much as my life allows. (If I paced the way I needed to I would do one thing for one or two hours each week and spend the rest of the time resting. Which isn’t feasible considering I have at least three in person lectures a week)

I’m trying everything. I’m even trying reflexology, which I don’t really believe works. I can’t take it anymore. When my life was just college and home, it was fine. But it’s not anymore. Life is opening up for me and not able to take part because I’m in too much stupid pain. I need to not be in pain. I need to be able to walk properly and sit down without my legs going numb. I need to be able to wear a goddamn bra with my shoulder subluxing(I think.) I need to be able to do anything with at least less pain.

I can’t stand this anymore. I just want to live a life and not just be alive in a tiny corner watching it all pass me by.

[strawberrycat18]

Every day I wake up and my body isn’t swollen and everyday I realise that doing anything makes my body swell up for some reason.

Is it caused by pots? Should I keep trying to get my doctors to diagnose me heds?

I don’t know! But anyway, sorry body, for continually doing things I know hurt you.

[rowansrealm]

I finally have an appointment to see a rheumatologist on October 7th. I’m not sure how much they will be able to do but it is at least a step in the right direction.

[barcodeboy]

I get a lot of imposter syndrome regarding the fact that I'm disabled. I don't have any diagnoses or know what's wrong with me (I have some guesses but don't know for sure) I don't need mobility aids at this point. I am able to hide the fact that I'm disabled and I don't need anyone's help.

But I am disabled. And I am in constant pain.

But I do find myself wishing I was 'more' disabled. Because maybe then doctors would take me seriously. Because maybe then my family would take me seriously. I almost wish I would hurry up and lose more mobility so that I could finally get help

[starlightlovesspace]

vent post about talking to my mom about getting mobility aids

bruh, I decided to talk to my mom about asking my doctor for mobilty aids, like a rollator or something due being more indepent and going to comeptions for my school, trying to get a job, etc and she goes 'they should have places where you can sit and you have a note saying where you can rest when needed plus you don't want to walk around with a walker' bitch I just passed out because I couldn't sit anywhere without possibly taking a chair that might be used soon, I think I need something, and I explained that to her and she went 'we'll see' with an attitude saying no

Please note I have POTs and Joint hypermobility and possible hEDs

[poognthebrainbois]

@mg-makintosh: It's chronic pain disorder my dear.

Me: No, I'm a werewolf. Awoo.

[tekitothemagpie]

Stain the realest character ever.

[kaffkanya]

it makes me sick to my stomach thinking about how spock — touch telepath, by the way — touches jim and accepts his touch so freely, almost without hesitation, but denies touch from others. like, okay, you can argue he has his cool vulcan telepathic shields on all the time, but, surely, surely, he can feel jim's mind buzzing, electric and agitated, brushing against his own. like humans brush hands with the one they like.

and he shouldn't think about it, but maybe he does. maybe in the quietness and stillness of his meditation, he feels the ghost of jim's psychic, burning, tingling. like lips feel hours later after a kiss. the memory of it.

but then, he's sure jim isn't even aware of all this. so he keeps touching him and letting himself be touched. and it could mean nothing.

[tamaharu]

times yoo joonghyuk got a little silly with it:

when kdj was going through it in peaceland/during the 24hr vacation and then he turned and looked and yjh was over there chilling making Delicious Food

when he and hsy scammed anna croft that one time

surely he had to have done at least one silly bit to get out of a movie in the theater master dungeon

when he was bantering with hsy over Space Google Docs during the epilogue

when he was beating up kdj and said it "was for making [him] eat dirt"

when he used kdj as a surfboard

[800-dick-pics]

Help Me Get New Mobility Aids!!!

Happy Disability Pride Month! I initially wasnt going to make a post to try to get new mobility aids/tools, but I really need them, so what the hell.

I am a multiply disabled Black lesbian and I have been without proper supportive mobility since the start of the pandemic. I had many of my things broken or thrown away during this time period, and I thought I could go without but its been so long and I really cant anymore.

I need smart/ergonomic forearm crutches because regular forearm crutches wreck my fragile hypermobile wrists, I need braces for both legs and ankles, a shower bench and detachable showerhead. All of this combined is a bit over $550.

I REALLY need this, esp the crutches! My mobility and bodily autonomy would be GREATLY increased If I was able to get these items. I

CA: $sleepyhen

VN: wildwotko

Dm for P@ypal

TLDR?: Disabled Black Lesbian needs new mobility aids for increased mobility and autonomy.

[chrliekclly]

ummm first time becoming self conscious about the way you act with your best friend because of some middle school bullies :)

[lokh]

also i think if roleswap laios and canon laios met theyd immediately start fighting.

[snowaftermidnight]

wanted to draw smth for the birthday boy lol

[dumnslut]