#painblogs

[oidheadh-con-culainn]

it's very important that disabled people are allowed to make bad decisions actually. that we're allowed to do things which cause flare-ups. that we're allowed to take a risk and get it wrong. that not every single second of our day has to be about playing it safe and being well-behaved and staying within our limits

and on the days when we deal with the consequences of those mistakes and bad decisions we're still worthy of a) sympathy and b) pain relief. just as we are if our illness or disability is the result of our choices in the first place

[pilferingapples]

+

[an-ruraiocht]

wishing everyone who thinks they know better than me what my body's limits are and whether a potentially risky task is worth doing regardless a very Go Away

[werewolfetone]

Ear pain so bad I understand why cavemen were drilling holes in their heads

[vastderp]

my rheumatologist had me stop ibuprofen completely, after eating it daily for over a decade to survive. instead, she put me on sulindac. no nsaids allowed while taking it, so until it kicks in, no pain relief. at all.

obviously this killed me deader than dog doo, but i’ve been crawling out of my grave for two weeks. and, my god, it kind of…works?

i just vacuumed and no one breathing down my neck for inspections. and then cleaned out the vacuum. i became the vacuum cleaner. put up pictures for the first time since 2012. fixed stuff.

my everything still hurts but the howling void of just constant misery has dimmed down to like, a single annoying neighbor telling me how to do something (wrong) while i do it.

also my acid reflux that had me choking on barf at night has disappeared completely. if this keeps up i might get to quit a med for a change.

[spockvarietyhour]

who wants to smash my skull in with a hammer, I think once we clear the debris it'll do wonders for this migraine

[natequarter]

when life gives you pain, take it out on fictional characters

[lemeute]

@ my body what is it gonna. take. man. what is it gonna take to be Mostly Functioning For Like 4 Continuous Hours. what is causing your dramatically increased need to Lie Down. I am tryna work with you here. but also what if you just Stopped Doing This! what if you just calmed the fuck down!

[alorz]

pinched nerve is SO unfair and annoying because? Great. half my wrist/hand is numb and i can't feel anything. EXCEPT for when i move wrong and it feels like i'm being stabbed. that's my one little treat. otherwise no sensation. ??????????

[aromantisk-fagforening]

what a good day for a walk. alas

[oidheadh-con-culainn]

every time i make a post about disability i get a lot of comments/tags from people going "i'm not disabled, so I don't want to derail, but... [describes disability]"

like. okay. it's okay if you're not ready to claim the word or don't feel like it's a meaningful part of your identity. but if you're experiencing chronic pain to the point where it's impacting on your ability to do everyday tasks, you are in fact disabled and you are exactly who the post was about so it's definitely not derailing

i think maybe people have a very narrow understanding of what Disabled means that only includes "basic tasks are 100% physically impossible" and not "everyday activities cause me noticeable amounts of pain". but. newsflash...

[dadbodbuck]

Oh no!!! I had no idea it was that bad!!! That really sucks dude. Much support

it's ok!!! no worries. i appreciate your words 💕

[bloomburnburial]

i will say the pain scale with the descriptions is life-changing; it’s just that I frequently forget to refer to it when assigning my pain a number. going around thinking, “why am I complaining about this 3-4 level pain when i used to average around 7 daily” and then looking at the scale and seeing, “ok, this is closer to 5-6 level, definitionally” works wonders to reorient your perspective. (also, 3-4 isn’t particularly fun to cope with on a regular basis either)

[vastderp]

!!!

I DIDN’T NEED ANY PAIN MEDS TODAY!!!!

and i felt better yesterday too. encore, encore!

[oidheadh-con-culainn]

especially because things like hypermobility/heds are usually genetic, so as a kid you go "hey, should my elbows be able to go backwards?" and everyone in your family is like "oh yeah, elbows just do that, that's fine, look, mine do it too", and you believe them, because if your elbows do it and their elbows do it then clearly this is just What Elbows Do

and then eventually you learn it was neither fine nor normal, you just all had the same genetic condition and nobody got diagnosed until one of you made the transition from "bendy" to "actively disabled"

and then your whole family has to re-evaluate a few things

This isn't aimed at any one person, more of a general observation from my comments/inbox over the last few years, but the number of people who say things like "but that's normal" when I describe hypermobility compared to the number of times healthcare providers look at me like I'm a glitch in the matrix is a Ven diagram made up of a single circle at this point.

Like I feel like some people just aren't envisioning the things I'm describing properly and are imagining a normal range of motion, but I also think some of you might want to consider getting evaulated.

Especially when you send me messages like, "There's nothing wrong with me except for my debilitating joint pain, crippling exhaustion, and the fact that blood shoots out of my eyes once a month, but isn't it normal to be able to do X?"

[natequarter]

one thing about constant low-level pain is that it won't ruin everything but it will make you utterly miserable and want to complain all the time