#orthostatic hypertension

[neuroticboyfriend]

shoutout to POTSies with orthostatic hypertension. we don't get as much attention as our hypotensive peers, and it's harder to know how to take care of and advocate for ourselves because of that.

remember to listen to your body. rest. hydrate. eat. stretch. stay within your limits and dont push it. you don't need to put yourself under more stress. you deal with enough.

[forbidden-salt]

New Art/ Sticker

Down Bad Tachy at the Gym

By Forbidden Salt by Holly

Hey everyone! Here’s a piece I just finished titled "Down Bad Tachy at the Gym." Inspired by Taylor Swift's "Down Bad," this artwork humorously yet poignantly depicts the struggle of managing POTS (Postural Orthostatic Tachycardia Syndrome) while trying to stay active. For those of us with POTS, even the gym can be a battleground.

I hope this piece resonates with anyone who’s faced similar challenges and can find some solidarity and humor in the shared experience. As always, my goal is to spread awareness and understanding through my art.

You can find more of my work on my Etsy shop, Forbidden Salt. I'm continuously adding new pieces, so stay tuned!

🔗 Link to Etsy shop

[solarianvoidthearoace]

Knocking back those electrolyte/ salt tablets with thrice the recommended dosage because I skimped and didn’t take them daily like I said I would

(Also I sweated on my walk through 9°C (48°F) weather)

[alrightiiaphrodite]

ended up in the ER yesterday after having high BP, dizziness and nausea. finally had someone (other than my PCP) listen to me and the doc did a bunch of tests and orthostatic levels. my BP goes way up upon standing which causes dizzy spells, nausea, etc. finally will be going back to cardiology as well as being sent to an EDS specialist. i'm ready to have answers for the disabilities that are taking over my life

[headpainmigraine]

This was a pretty interesting article, not only about the difference between vasovagal syncope and POTS,

But ALSO about the poor practice of relying solely on a tilt table test to diagnose POTS.

The # of times I've heard from other ppl with POTS that the TTT is the definitive word, and the importance of heart rate, it made me doubt the very firm diagnosis from my neurocardiologist.

I know, too, that there are people here who have POTS, but who are hypertensive instead of hypotensive. I hope this info helps you and anyone else with less 'clear cut' POTS who might bee doubting their diagnosis.

[agendergenderqueermasculenbyguy]

I plan to make electrolyte popsicles (again)

Yay orthostatic dysregulation

[problem-project]

The way I almost screamed in excitement today when my new doctor took me seriously and believes how bad my migraines are, so were trying a new medication?? AND she sent me to a cardiologist to hopefully get a POTS test ordered?? 🙌🙌🙌

[torchickentacos]

Does anyone here have hyperadrenic pots specifically? If so, how do you manage symptoms, and do you still experience blood pooling in extremities? I also have Ehlers Danlos if that’s relevant. I know tumblr’s no medical professional but with more rare subtypes, you kinda just do what you can, I want to hear experiences.

[titfor-tat]

I’m sorry I’m thinking about the second mukbang video again like Dan what do you mean you passed out cause you got up too quickly seeing Phil’s hair and more importantly Phil what do you mean you just thought he was twerking in reaction to you hair how is that more logical than him fainting

[aelianated-star]

Nothing like almost passing out while peeing to humble you

[jovialcloudqueenisnotonfire]

both high and low blood pressure run in my family, which means that it averaged out so that i have a normal but somewhat volatile blood pressure (i get dizzy when i stand up)

[neuroticboyfriend]

"while POTS can be life-changing, it is not life threatening" i am going to beat you over the head with a bat. does hypertensive POTS mean nothing to you.

[forbidden-salt]

✨ New Art / Sticker Alert! ✨

😵‍💫 That Presyncope Haze - Forbidden Salt by Holly 😵‍💫

Hey everyone! I'm excited to share my latest piece, "That Presyncope Haze." This artwork captures the surreal and often disorienting experience of presyncope, a common symptom of POTS (Postural Orthostatic Tachycardia Syndrome). Inspired by Taylor Swift's "Lavender Haze," I wanted to convey the feeling of being enveloped in a dreamy, purple fog, yet finding beauty and strength in the midst of it.

Through swirling purples and hazy textures, I hope to evoke the same sense of ethereal beauty and complexity that "Lavender Haze" brings to mind. As someone living with chronic illnesses, creating art is my way of expressing and coping with these experiences. I hope this piece resonates with others who navigate similar challenges and brings a sense of understanding and solidarity.

You can find more of my work on my Etsy shop, Forbidden Salt. I’m expanding my collection, so stay tuned for more stickers, prints, and even some crystallized books and trinkets!

Thank you for all your support and for joining me on this artistic journey. Let's continue to spread awareness and positivity together!

🔗 Link to Etsy shop

[solarianvoidthearoace]

If you have POTS/ orthostatic intolerance and like baking, you can tweak the salt dosage in your pastries to your taste and needs

But watch out! (because you might be baking for other people who aren’t salt-deficient and that can get awkward)

[salt-baby]

...hopefully when you say salt water therapy you don't mean drinking salt water? that's just generally speaking a bad idea for humans and will absolutely make you sick

the high salt diet for me was difficult at first mostly because I was pushing myself too hard towards too high of a goal. turns out there's a big difference between mg of sodium and mg of salt, and also I wasn't failing at pots management just because I couldn't manage 3L of water that day.

additionally, a lot of doctors want it all to be dietary - it's just not possible. not only was I never able to eat enough, I was also miserable. nowadays I use electrolyte mixes, Pedialyte, and salt capsules (the vitassium ones) along with like soup broth or instant ramen. I tend to also over salt my food just a tad. in my experience, find your favorite way to drink water and keep it nearby, and with the extra salt it becomes much easier to meet hydration goals.

I also take advantage of how much water I have to drink - turns out the best way to thermoregulate for me is to drink ice water.

referring to this kind of salt-water therapy (ie, 10g of salt and 2-3L of water a day), it would seem odd to me that this would result in direct side effects that would force someone to drop it. it is entirely realistic to me that it isn't enough to see an improvement in symptoms, doesn't fit into someone's lifestyle or makes them miserable, or could be exacerbating a hidden condition.

'I have not met a single patient who hasn't tolerated salt water therapy' -- what my doctor told me today.

Fellow people with POTS... have any of you not tolerated salt water even after a while? Or have I managed to fail even at being ill?

[headpainmigraine]

Shout out to the people with hypertension and POTS, who feel like imposters or isolated from the community because the 'ALL THE SALT' memes don't apply to you.

Your diagnosis is valid.

Just because your presentation is atypical, doesn't mean it's misdiagnosed.

Don't listen to anyone who tells you otherwise.