#my mum had to help me
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just woke up from a 2 hour nap that i took as soon as i got home and when i sat up and looked down blood just spew out onto my shirt
#i freaked out#but it’s normal#i can’t feel anything and when i drank it all dribbled out lol#my mum had to help me#i’m so sad i can’t eat#i want a burger 🍔#the nurse i’ll look like a chipmunk for the first few days … 🐿️#i hope i heal fast and it just takes a week cuz i wouldn’t be able handle 2 weeks or more
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I FED UP WITH THE ARGUMENT
#i had an argument with my mum help me win#my polls#polls#tumblr polls#poll#socks#mismatch socks#matching socks#fashionblr#fashion tumblr#shitpost
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ok so this is Extremely specific but it's the middle of the night and i can't stop thinking about it: anyone who was/is involved in the les mis fandom, did i hallucinate the enjolras cosplayer who made a fan novel and also a fan film and then later was exposed for cheating on his partner, divorcing them and abandoning his child with cancer to go and become a jewish lawyer or was that something that actually happened
#ramble#pLEASE this is bugging me so much i remember him from my theatre kid teen years and i cannot for the life of me remember his name#i've been on some cold medicine that's basically a horse tranquiliser for the past couple of days and it turns my brain to soup#i'm on a 'can't remember the name of the song' type google trip rn except nothing is working bc this is something like 5 people know about#is this COMMON KNOWLEDGE pls help#i think it was a short film i know for a fact he wrote a book bc i remember wanting to get it at the time#he was blonde that's all i remember#edIT I CAN'T REMEMBER IT BUT HE HAD A SUPER FANCYPANTS SURNAME AND I'M P SURE HIS MUM WAS QUITE FAMOUS???#that's not a dig btw my surname is pendragon i can't say anything
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here is the root of the root and the bud of the bud!!
✷(print shop)✷
#mine#original#euheuhe hello..i hope everyone is having a good day#we are going on a bird boat thing on wednesday im very excited about it#what else.....me and my bf went on a walk on sunday and i saw damsel flies and shield bugs and a duck with 13 ducklings#i bought a jellycat sun bag which is now all i talk about#ive started reading assassins apprentice by robin hobb!!!! its so good!!!!#im so excited there are so many books in the series to read#i doubt i will like all of them but i will give them all a go#today i will stop and hve dinner n then walk the dog and then do exercise and have a bath#and then i will. play zelda#and then tomorrow i will do shop stuff and also help my mum buy a bench apparently#i need to buy snacks also. i hve a snack stash in my rooom bc of mental illness purposes and i am low.....need snacks#maybe i will do that tomorrow. brain schedule is full up for today sorry#also. unrelated. i have my period???? again????? ive already had it this month hello i dont need another im good im all done#my hormones r going ??OAGHGHGHUH#also i want like . cute bra. but like not a bra like just cloth thats like. tit shaped. a bralet? is that what that is? no idea#anyway. hve nice evening. or else.#i have a headache#OH ALSO. i need to legally chnage my name SKFSABJSBK#put that on th todo list#i cant rmemeber how 2 do it i think it was very straight forward n cost like. £10 or smth
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Impulsively shoving a guy's hand in your mouth after having the thought "oh just like when my little sister used to prick herself on a rose thorn" and then immediately being treated like a pet who ate something they shouldn't have? Wonderful. Thank you, Thane.
(also not pictured is Thane apparently trying to scrape your tongue with his hand BEFORE pouring the holy water down your throat because NO. BAD.)
#bewitching sinners#palmier baker#thane verashkova#accidentally ingesting vampire blood because of big brother impulses is wild#also the reason hes so alarmed is bc in that world you kinda soulbond to others and thats how you soulbond as a vampire#you drink each others blood and so hes flipping out because while he hasnt had your blood yet#hey your ex is going to absolutely kill me if we bond on accident and i dont think i wanna die like that!#which is VERY cool to know thank you thane im so glad your concern is actually less of being bound#but about being murdered thats really cool#also the fact thane is found in the library studying with arshem my beloved ex and is BRIBED TO LEARN RECIPES#by arshem with vials of mixed blood hes just CASUALLY CARRYING is like hey man#thank you for being group mum i love you for it#and then later on arshem actually is like oh thane you can drink my blood later since you havent fed for a while#and thane is super chipper about it like HECK YEAH THANKS !#hey boys youre adorable thank you for existing in this incredibly fucked up world#im in a choke hold with this otome im sorry#you ever try to be nice to a guy and think surely this will help him a little bit then you get background lore#and you realize youre probably making things A LOT WORSE FOR HIM by being nice#im going through it with my emotions as i learn about palmiers actions pre game swap so like#dude please i am BEGGING YOU palmier please have ONE redeeming quality in you at some point#i want to adopt one of the love interests as my son though and im obsessed with the fact he can speak fish#my son can speak to the fish and he gives me fish as a present bc i might need it later#and i do actually in fact need said fish later for another quest#thankyou my son i love you and i appreciate you youre amazing#gonna have to draw arshem at some point and everyone will immediately go yeah that makes sense
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I've been rewatching Mushishi and hhh this series is everything to me..!! One thing I just love so much is how it could've been so easy to make Ginko a quiet, brooding and all-knowing, morally pure type of mysterious guy, but he's so not?
He's expressive and funny and likeable and calming and kind of rude! He genuinely cares, but doesn't always fulfil his promises. He's very smart and has a ton of knowledge, but he very often doesn't have the answer to a problem. Sometimes he even gives advice or takes steps that end up doing more harm than good. He's also not above pranking, haggling and downright scamming people lmao.
In conclusion, I love him very much and would like to be his friend :3
#he's the type of person who shows up randomly after months (or let's be honest: years) and it's just nice to hang out and chat#mushishi#ginko#finally found a way to get Dutch subs so that my mum can watch along#I'm so glad I can share it with her.#I've had some attention problems which made it hard for me to watch stuff I need subtitles for#but watching it together helps a lottt#so I'm finally truly watching it again T_T#I hope my mum wants to watch House of Five Leaves with me as well - it's been too long since I watched that too
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the australian government is trying to legislate kids under sixteen off of social media. so, if you are aussie and under sixteen, you won’t be allowed to have a sm account on sites like twitter, tiktok, facebook, youtube—and more.
i know our relationship with minors, as fic writers who write for other adults, is rocky at best. the rise in self-censoring and shame-based attitudes among readers in general is helping to kill any and all artistic curiosity in the next generation, which in turn makes it actively hard to be in shared, online fan spaces. it’s easy to blame the kids, but at its heart i think this is an active adult failure. our younger generations have gotten the raw end of the deal, in many ways; one of them being allowed to grow up alongside of material that they should’ve never had free access to, not without guided parenting.
And that’s the thing. the answer isn’t banning them. the legislation involved means that social media companies will be the ones to face the penalties (the fines) if minors break the new laws. which means—what? censorship gets even worse, in an effort to be even more kid friendly? Government-interest friendly? this talk started happening in the thick of the pro-palestine marches, as the movement was trickling into universities and highschools. And okay, let’s say it’s not that—what else could this be about? could it maybe have something to do with the fact that the australian government wants to implement a Digital ID nation wide?
"This one is for the mums and dads,” Albo, Anthony Albanese, our prime minister and prime dickhead, says in the announcement. “They, like me, are worried sick about the safety of our kids online. I want Australian families to know that the government has your back.”
But this isn’t about protecting kids. At the very best, they’re selling it as a scapegoat—like, oh! Haha, now you can just tell the kids it’s illegal!! It completely ignores the reality that people have to parent these humans. Like, it’s giving people, at best, an excuse to continue being lazy. They don’t have to sit down with their kids and the things they’re engaging with, anymore—because they’re banned from it! Instead having conversations about the media they encounter, it’s okay! You don’t need to worry about that anymore! The australian government wants to pretend this is about protecting kids from predators or online bullying, instead of parents confronting the fact they’ve created little assholes with unfettered access to tools to harass people with, or let their kids walk into traps because they haven’t taught them basic internet safety.
I have mixed feelings. Like any other (reasonable) adult, I worry about what kind of effects this much freedom to this much knowledge and drivel and personality can do to someone younger, someone who hasn’t like—had to learn how to make their way through a world where people are messy and a little weird and sometimes outright unlikable, but you have to still be professional about it, you know? I worry about things like micro-trends running the fun and excitement of digging in and finding some niche fashion that becomes your personality. I worry about status symbols like the right makeup and fitness pants and waterbottles getting popular too fast, and then cycling out just as quickly and creating a pace that kids without means can’t participate in as fast. I worry about podcasts run by sigma-pus males or whatever, tradwives selling glamour under the pretense of housework, like, so much of it. But these are all things that you as a parent have to negate!!! Like. You can’t just ban kids from the internet and then expect them to be normal about things whenever they’re allowed back—you have to teach them to be, to handle it. You have to teach them!!
I am saying this as an adult. An adult who likes adult things, and likes them in an open, easily-accessible space. An adult who would actively benefit from minor-free social media. There are things as an adult creator that I wanna talk about, or write about, in ways that aren’t always age-appropriate (or at all!!) for a younger audience. And look��my personal view has always been that as a fanfic writer, my responsibility to you guys (adults and sneaky-little-minors alike!!) has always been to warn appropriately on or in the fics themselves. That’s it. You get the warning labels on the tin, and you decide what to do with that afterwards. It’s not always perfect because I’m not perfect. I will make mistakes. I might not tag for something specific that ends up being a trigger for you. But the thing with fanfiction and fanfic communities is that we generally have to trust each other. I might miss a warning, but you have to trust that that mistake wasn’t a deliberate effort to hurt you. I have to trust that you guys know your own boundaries and will engage—or not!!—accordingly. I opt to treat my space here, my blog, as an open-one. Because it is! It’s a public blog LOL. If you have a tumblr account, then you have access to it! So, I try to treat this space like a public conversation in a café, or a foodcourt. Maybe I slip a raunchy little book over the table to you, and we make one or two rude jokes, or otherwise a stray rando catches the tail-end of a more serious conversation—but it’s all things I would be comfortable (enough) discussing with someone in a space where maybe I don’t know everyone involved, you know? I benefit from the knowledge that oh well, at least I don’t have to worry about local kids getting on here. 💀 But—I hate that for them!! Do I trust younger readers? Not always!!! I worry that they’ll get caught in the wrong feedback loop, that they don’t like, investigate claims or challenge information for themselves, that they’ve never had to! And hey, to be completely fair, I don’t always trust proper adult readers with that either LMFAOOO, but the point is that kids get more grace and more worry from me because they are still actively learning to be apart of things, of communities. And I think banning them from that is ultimately a mistake. To protect someone you have to teach them what to look out for, how to engage safely, how to trust themselves. And that’s not what’s going to be achieved here. This social media ban is a useless bandaid in the face of bigger problems (housing crisis, inflation, the AUKUS submarine thing i don’t even want to talk about it its stupid) that the government is waving around to distract everyone with. And it’s working. Because people would rather sit there and scroll on facebook, or whatever, instagram, instead of actively parenting.
#it makes me big mad bc my mum was like—probably my biggest champion when it came to reading#like she wouldn’t ban me from reading certain books. if i ever picked up something she had concerns about we would talk about it together.#and yeah that’s different from actively being on social media BUT a lot of what i learnt through her trust in that carried over to how i —#—engaged with the internet as an older kid and teenager and young adult#anyways i think it’s a slippery slope !!!!!!! fuck all governments they’re all evil#things like this seem bengin or even helpful but they only serve to tighten the noose around us all further!!!!!
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okay i can't find that post any more
but i worry about the trans girls who have gaping holes where their personalities should be.
it takes a lot of effort for a person to sustain your continued spiritual and psychological existence. i've met these trans girls, and i've tried to help (or I think I've tried to help). but the deadliest part of this is that to build yourself up brick by brick requires you to fight against the currents that want you dead, that want you to be the empty husk of a human being.
that's why the whole please stay alive thing is such a resonating statement; you need to stay alive for your own sake.
in the home city that means trying to find your own shelter when rent can easily cost you a third of your wage and landlords fucking suck. that means looking for a job that won't fucking deadname or misgender you, that you can tolerate. that means surviving. that means leaving clingy and transphobic family behind and uprooting what the home city believes should be your entire support system. that means trying to live, to get to the point where you can get hormone therapy, hair removal, bottom surgery.
i can't promise that things will get better. but if you know someone like that. if you know a trans girl like that. please. keep them alive. and help them fight. help them be themselves, and grow and bloom again.
we don't have much in the home city, but there are resources. places. things that we are doing and building so that we don't lose people. allies that are fighting alongside us.
because we will win. and when we win, i hope we don't have to mourn.
#ral.txt#trans#transblr#please fucking live...#i've been trying to befriend this person for a while. she messages me when she's in pain.#i wince a bit whenever that happens because i've genuinely had my hands full. it didn't help that she was exiled as a Weird Girl#and being a Weird Girl in the home city can really be deadly#i mean i was younger when she got exiled from the server i was moderating and i tried to keep her around#but the community resisted and hated the fact that I did that#either way i'm trying to get her back into the fold but she literally detransitioned because she came out to her mum who went ballistic#i'm sitting there a bit helpless really. i can't offer shelter; i live with my dad.#i can't force her to go to the trans shelter either but i said that was an option in case she got kicked out#either way that would only be a short-term solution...#she has to help herself. she has to persist in the face of her (immigrant Mandarin-speaking) parents. she has to live...#but i'm not sure what I can do except try to soothe the pain...
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#So rn my parents are overseas at this gathering with family friends#And one of them got married + had a kid 11 weeks ago#All of this in the span of less than a year btw#And he’s 15 years older than me but rlly fun etc the kind of guy that feels at most 6-7 years older yk#And it feels wildddd cuz he was the rlly like mischievous (?) Kind of guy in our friend group#and it felt a bit weird to know he was expecting a kid since I found out a few months back but today my mum told me her name and everything#And I’m feeling super weird again like I can’t imagine him as a serious responsible dad buckling down yk#But also he can be serious when he needs to be so that coupled with his sense of humour means he’s going to be a great dad in sure#But it’s making me rethink whether or not I want to have kid(s)#maybe it’s just vanity but I feel like pregnancy would rlly wreck my body both looks and health wise#Like that is 9 months of commitment idk if I can handle it 😭😭😭#but sometimes i daydream abt what it would be like to have kids with the guy im 90% sure I’ll be marrying in like 7 years#and it makes me feel soooooo. like I want to do all that with him#and I feel like he would be level headed enough to help me through wtv insecurity or anxiety I’m feeling now#Idk idk#personal
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shows up to the tea party with this
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mHMmmm slup slurp slurp slurp slurp slurp slUrp sLURP slurp s
#ducky in his pond :D#wait nonono i take back my slurps i dont wanna destroy his natural habitat :(#this reminds my of my birthday cake a few years ago#(mum made a duck pond!!!!!!!!!! shes the bestest ever)#so thank you veryveryveryvery much for that#also reminds me of blue wkd#which reminds me of when anne and dianna had their tea party and accidentally drank marillas medicinal wine instead of the raspberry cordia#so.#we are anne and dianna now#youre definitely anne#because youre super smart#and youre super creative#and youre the kindest ever#and you bake yummy treats that i know shed love#(caterpillar biscuits)#(actually speakin to her right now an she says she wants to help make the next batch)#and you both love being in nature#and you both make frens with animals#and you never judge#but you always listen#and you always see the best in people#even when they dont see it in themselves#typing this on my laptop so i cant do emojis but just tend theres 1 billion purple hearts bcos i love you sososososo much <3#although i dont think im a dianne...#maybe im a cole#bcos he likes art#and by the end of the show he moves in with a wealthy lesbian widow which as we all know is my greatest ideal#or maybe im a ruby#bcos shes a hopeless romantic#(and she cries a lot but hey)
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Was thinking while watching that scene where Pol tells Ada about her abortion.
Polly really doesn't take on the mum role in the family to my mind, or even the matriarch/aunt tbh. And I think, there was some summary somewhere that referred to her as the consigliere and while she does perform a certain bouncing-board, plan formation role with Tommy (and only with Tommy, and only with insight into certain parts of his plans; I'm struggling to think of times the others listen to her without Tommy backing her up, S3 as example of when they don't), her other behaviours in the family also mean this isn't her role at all.
She's the wild older sister who is loving and explosive and hurtful, and incredibly, incredibly fragile, afraid and she feels so very scared, vulnerable and alone, most of the time. She just wants all her loved ones to be happy and safe and in achieving that, Tommy is frequently as much of an obstacle as he is the vehicle to get her that. I do headcanon that Polly lives 99% of her life in fear and on that edge of breakdown, it's just that she's lived with it so long she probably doesn't even acknowledge it any more. Her reactivity is so high.
So yeah, it's no wonder Tommy sort of plays that joint patriarch-matriarch role (arranging marriages etc), because Polly is *not* playing the matriarch.
#her stories to ada about that feminine/mother trauma are all sort of--#--with this tone of 'please forgive me please say you understand please say my decisions made sense'#because polly isn't certain in herself#she *acts* certain#idk#wild older sister that everyone including the youngest all have to sort of take care of#some of the way she says things about tommy that help *not at all*#like “he used to sleep out as a kid” pretending he's not out there having a complete fucking breakdown and she doesn't know what to dooooo#(though she *wants* to help she does)#every time she explains his traumas as impossible to avoid because they're gypsy and that's their lot in life#...let me get out my postcolonial lens again#->noting this is also a belief set tommy's mother also had#my headcanon polly absolutely idolised tommy's mother because she lost her mother young; following t's mum around like *her* mum#imagining tommy's mum could 'do no wrong' in pol's eyes
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And she fucking needs to reschedule her appt. She always wants to do it together with someone. But no. Of course you wouldn’t be able to sleep if you never sleep at those hours anyway. Of course not.
And fine. We’ll reschedule bc what other choice is there. But. Yeah. “I’m sorry”
I gave up my weekend to cater to this bc otherwise I could’ve gone another day to get my new Covid vaccine. I could’ve booked for another time. I could’ve used this day to go in and borrow dad’s car so I could’ve gone to a waterfall or beach even though it’s freezing.
And now I’m probably going to have to give up next weekend - ASSUMING there’s appointments left for then. My last two day weekend before my semester starts and I split my days off. Which is fine. It’s my choice. But I was hoping to do some stuff on my own :(.
And she probably doesn’t. Fuck. I still need to take her for bloodwork (overdue) and picking up an updated will since the sis and I are adults now and it might be A Thing that it needed to be updated. And not to be like especially given their health and that they’ve both had Covid now. But. I worry. I’m not really in a position to be able to support the household even if we inherited and there aren’t taxes. But I’d have to hold it together. I’m older.
She won’t drive herself to go do these things.
(But I have to drive myself now if I can’t bus there).
And I get having anxiety. I am anxious too.
But for it to get so bad years and years ago that it severely affects your family AND your family has asked you to get help several times (on a regular basis too. Bc we’re not professionals and can’t really help you. Especially when you don’t even agree to come along and just sit in the car as I drive around) it’s frustrating. (How would we have turned out if you had actually sought help for your mental illness? And why do I just KNOW that you’ll blame yourself for our mental illness. That we have to hide any attempts to better our own so that you don’t blame yourself?)
Who could we have been if any of us had been diagnosed?
I shouldn’t have had to deal with that as a child. In elementary school. Especially when I was already suicidal on my own anyway.
And yes. I resent you.
“I bet you wish for a different mother”
Yeah. One that fucking tried a little bit harder to get help before it got this bad. Before having us preferably. One that when asked to get help - agrees. Even if we’d have to arrange and just get you in the car and escort you there.
One that even occasionally stuck to anything you say you’ll do.
When I couldn’t even rely on you as a child. An older child.
“At least I raised you to not do drugs or lie. Or drink soda.”
I never felt safe to tell the truth of course I lie to you sometimes. I’ve craved nothing more than the sweet release of oblivion sometimes. Painful violence with flavour isn’t fun.
And then now. You’re. Even now. You’re so judgemental. “You’re such a rebel now”
For what?! Getting tattoos?! That I’ve always wanted!!
I am frustrated.
You wonder why I try to go out of the house and do things?
I hate staying here. But where else am I going to have so much space? And not have to pay a formal rent?
Urges are there. But. Can’t. It never helped to hurt myself anywhere near as much I needed. And I have healing tattoo and touch up’s right now. Im ok though. I don’t. I don’t do it like that.
I need food is what I need but fuck I’m annoyed.
#vent#family#shattered fragments#honestly I slept like shit too. I passed out after dinner and woke up about midnight and then had to go back to bed#and convincing myself to get up to brush my teeth took until past two am#but I did sleep#tw#anxiety I guess.#just. lots of family shit#and it’s just. when you rely entirely on somebody else to take you to do things. please.#either admit you’re disabled and try to access the very few benefits that might be available to you#or get in the fucking car when I need you to#and I know it’s not that simple and that disability SUCKS here#but I work full time and go to school and have hobbies and things I like to do#so when I give you my options of when I’m free to help you get to things. for fucks sake I planned my week or month around it.#I’m not a caretaker by any means#but I feel like I have to be#real reason to find love/get married: moving out 😭#but then I’d just feel guilty for leaving. bc then who would help?#and I’d have to probably just drive back and do it all anyway#like hey. mum. you remember how burnt out you were caretaking for grandma? without any other job or school to do?#*you’re going to do that to me*#and I KNOW part of it is almost definitely that we’re nd. but FUCK.#and I’m so exhausted by having to always concede to you.#like we get it. but EVERY SINGLE TIME?#I have other stuff to do too. and you won’t taxi or drive yourself.#just. fuck.#but now I have less than an hour before I need to go for my own. and I need to reschedule hers before I do so she’s not a no show
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Shout out to everyone who was alone when they came out of surgery
I was going to make this trans-specific, but as I was typing I realised this would suck no matter what you had done. So, to people who wanted someone to be there:
I'm sorry you were alone, or if no one could visit until days later when the scary moments had already passed. I'm sorry no one was there to celebrate you coming out the other side.
You made it, you're alive. I'm hugging you and leaving balloons and stuffed animals (that you may or may not want lol) by your bedside.
#skip talks#hearing funny or heart-warming stories about things people said to their loved ones immediately after surgery always hurt just a little bit#hearing about how someone waited up into the small hours for their person to come out/wake up#i wish could've been there for me#but due to a few factors it wasnt possible#i was happy! but also felt really alone and uncomfortable and i was in a shared ward so i couldnt even relax#😩😩#then came home to find mum had tried to 'help' by clearing out my room and rearranging things#i was NOT in the right headspace to receive that well or wirh grace#it made me anxious and ruined my return home#but of course i was the one who had to say sorry for not being grateful 😑#there are typos here but i cant do anything about em im using the app lmao
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i'm so tired
#fell asleep with a headache. woke up with a headache. i know its to be expected but still. id hoped id feel a little better#i wish that my family were able to be more emotional around each other.#the closest we got was when it was just me and my uncle and someone from macmillan called to check in randomly#and i could hear him trying not to cry when he told her that she had died that morning#god i cant stop thinking about how he must feel. after the paramedics left. he was alone from 7am til when i showed up.#so he wrote down everything that happened as a way to work through the what ifs.#reading that was so harrowing. and talking through it to help him conclude that there was nothing he couldve done.#awful awful awful#and my mum has gone into 'practical' mode and wants to just sit and call people and tell them but old people have insane networks#so everyone shes called already knows#i just wish theyd all take a break and just sit with each other
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When it comes to hygiene tasks and self care with disability and chronic illness, its pretty much a constant case of: don't let perfect be the enemy of the good.
Basically: it's better to do something, than to do nothing at all.
TLDR: Just because you can't do something "properly" doesn't mean you shouldn't do it at all. Do it half-way. Do it shitty. Do it barely. Do it on a technicality. But do what you can. Just try, because doing something will help you.
If you don't have the energy to scrub your body with a sponge, just rub soap over your skin with your hands.
If you don't have the energy to wash your whole body with soap, just hit the places where sweat accumulates, or where you're smelliest.
If you don't have the energy to wash with soap AT ALL, just sitting in water is better than nothing. It will wash away dirt and oils.
If you can't bathe or shower at all, a warm wash cloth is your new best friend. If that's too much, then try bath wipes. They're a bit bigger than regular wet wipes, and a bit more heavy duty. They're designed to help keep bed ridden patients clean in hospitals.
If you don't have the energy to dry yourself after a bath or a shower, just put on a bathrobe and get into bed. If you don't have the energy to get dressed afterwards, just don't. It can wait until you can.
If you don't have energy to brush your teeth for two minutes, honestly, just a cursory scrub is better than not doing anything.
If you can't brush your teeth twice a day, brush in the evenings. It will help take away the build up of food from the day.
If you don't have the energy to brush AT ALL, honestly, just take a cloth and wipe the plaque off your teeth. Rinse with mouth wash after if you'd like. Something is always better than nothing.
If you can't floss twice a day. Try once. If that's too much, try a few times a week. If that's too much, try setting aside a day once a week as a goal. If you can't keep a schedule, do it when you're able to. Hell, I keep some floss next to my bed so that if I forget and don't have the energy to go get it, I can just reach over.
If you can't iron your clothes, don't bother. Wrinkles are fine. Wear jumpers over wrinkly t-shirts. No one will know, and honestly, most people won't even care. If it's really wrinkly and it's A Big Deal And It Needs To Be Ironed, here's my life hack. Step 1: take a spray bottle, and spritz the item of clothing (while you're wearing it is easiest) until it's lightly damp. Step 2: use a hair-dryer on the clothes until they're dry. It gets rid of creases like nobody's business, it's easier than lugging out the iron and ironing board, and you get to have nice toasty warm clothes afterwards.
If you can't fold your clothes, try just hanging them up. It's less commitment. It's quicker to do. Granted, you need to have the space in order to do this, but it is also good at helping you downsize, and lets you visualise exactly what you have.
If you can't put your clothes away, invest in a couple of laundry baskets, and then just keep your clean clothes in the baskets. You can then separate washed clothes into underwear, pants, and shirts baskets. You can just leave them like that. I'm giving you permission to never fold your laundry again if you can't. Just leave it unfolded. Who's going to care? Something is better than nothing. If you can, try to put those baskets into your closet so that you can keep the clutter out of sight, and give yourself a more restful environment.
If you can't separate your clothing out into different categories and wash them "properly" (whites, warm tones, cool tones, darks, delicates / switching between hot & cold washes / paying attention to laundry instructions on the label) then just don't worry about it. If you cold wash your clothes, colours won't bleed. Maybe gradually over the course of dozens of washes there'll be some changes in hue, but it's really not as high stakes as the One Red Sock In The Whites Turns Them Pink trope makes it out to be.
I've pretty much come to the point in my life where if a piece of clothing can't survive the washer and dryer, then it's just not meant to be. I colour separate my clothes, and if I have the energy/remember I'll take my bras and jumpers out of the washing machine to drip dry. But otherwise, I leave it to the universe.
If you can't separate out your recycling, then don't. If you have a large amount of rubbish you need to get rid of but the idea of separating it out properly is stopping you from doing so, then just don't worry about it. I know it's not ideal, but if you have garbage in your room/house and you need to get rid of it, please just get rid of it. Don't let the problem get bigger and harder to deal with. Don't let "doing something properly" get in the way of keeping your living spaces clean. Please. Give yourself understanding.
If you can't wash your dishes, get paper plates. Obviously, it's not ideal, but it is better that you eat food than skipping meals. It is better that you have a clean kitchen, rather than having dishes piling up and making it harder to look after yourself.
If you can't prepare meals for yourself keep making the tasks easier and easier. If you can't do recipes, then simplify. Use pasta sauce from the jar instead of making it. Eat canned soup. Buy food you can just stick in the oven. If you eat fish fingers and microwave veggies every night, it's better than not eating anything at all. It's better than having to fork out money on take-out. If you need ready-made meals, then get them. If you're literally just eating a raw cauliflower for dinner; 1) I see you, 2) me too, sis, 3) something is better than nothing.
These are the basic things you need to do every day to function as a person. They are your activities of daily living. Brushing your teeth. Bathing or showering. Using the bathroom. Getting dressed. Eating. Drinking. Sleeping. Keeping your environment clean. You don't need to do these things perfectly, but they need to happen in order for you to have a decent quality of life.
And it breaks my heart, because I know that so many disabled people can't do these things every day. I'm not saying this to guilt or judge, I'm saying that these are basic needs; you deserve these things. These things bring dignity. If a disabled person is unable to do these things, it diminishes their quality of life. It robs them of dignity.
If you need help to do these things, Its okay to ask for help. It's okay to need help. But if you can't get that help and you have to do these things by yourself -- or you just plain want to be independent and do it without help-- then don't hold yourself to standards you can't meet.
Don't let perfect be the enemy of the good. Doing something is always better than doing nothing. Even if it's not perfect. Even if it's not done well. Do what you can.
#lord knows that im still trying to pull myself out of the muck and into independence and dignity#i had to set a rule for myself that i need to wear clean clothes every day. and that i need to wear pyjamas to bed#that one's been hard. sometimes I dont have the energy to do it and i just stay in the same clothes for two days at a time#or i go to sleep in what i was wearing. but when i do follow that rule my quality of life is drastically better#not feeling dirty or gross goes a long way to making you feel more like a person#i also made a rule that im not allowing myself to look frumpy outside anymore. that means clothes that look nice#no more trackies and pj pants and all that stuff. i basically lived in perpetual pyjamas for four years and im over it#i still dress comfortably but the important thing is that i dress. i look put together. i wear things that make me happy#(and i didnt need to buy anything to do so. i just needed to start taking better care of myself)#and i stopped letting perfect be the enemy of the good. i started doing things shitty rather than not doing it at all#and the more i keep pushing with my ADLs the better i feel#what helps is now i dont have to contend with stairs and that has made a dramatic change to what im able to accomplish#ive also finally built up enough strength in my body that im able to go to the shops by myself. so i can buy things to make easy meals#and mum doesnt mind if i just put some things in the oven or air fryer for us for dinner.#i still cant really cook. i felt bad about that for the longest time. i didnt even try bc i knew what id make would be disappointing#or it wouldnt be up to the standards of what everyone else was making. i was so sick of feeling like a let down all the time.#now i just make what i can and my mum doesnt complain bc shes in the same boat.#and yeah. having help would be nice. it would mean id be able to do more than what i can do by myself.#and its great to see how far ive come. but im not a burden. and when i have the accommodations i need i can do a lot more#i do something rather than nothing and my life has dramatically changed since then. ive just gotten better and better.#chronic illness#disability#chronic pain#spoonie#one things for certain and thats that im never going to let myself rely on anyone else ever again.#i never want to be on the other side of that ever again. I don't want to be anyone's burden. i dont want that hanging over me#i do things by myself or i dont do them at all. and god fucking willing i'll never go back to needing as much help as i used to#i really didnt realise just how much of an obstacle living with stairs was in my life. it was the biggest barrier against everything#stairs stopped me from being independent. if i couldnt traverse them i just didnt go anywhere. my world shrank so much#and not having the proper wheelchair shrinks my world even more. im stronger than i used to be but im still severely limited in where i go
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nothing makes me feel like a golden god quite like a new recipe turning out delicious on the first try. unfortunately, conversely nothing makes me feel more 'I am god's mistake' than spending all that time and effort on something and having to make a sandwhich b/c the results were inedible if you want to retain your capacity for delight. the duality of home chef
#it's only been a couple of times in the last like six years I've made something truly unpalatable#(and at least two of them were not on me I think the recipes were misguided from the start in hindsight)#but man it's such a downer every time haha it makes me feel like the ultimate failure. I shame everyone who's ever held a spatula. woe#but NOT TODAY! that shit rocked I did good#I have been slowly leveling up my preparing beans from dry game and I think I'm finally reaching a place of consistently ok results!#(that was never something we did at home when I was growing up and not something my mum does either so I had to start from scratch#it's really a big help to come from a home where we do a lot of communal cooking tho! having some basics down is good)#I am also realizing that if I ever get a partner they are um. unlikely to be quite as contented as me with eating pretty much the same stuf#a good two thirds are just variations on stir fry. for years at a time lol. so expanding my reportoir of recipes could be a wise investment#also I don't care for most meat so also finding good vegetarian/vegan recipes (b/c there are tricks to making it amazing!)
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