#juvenile rheumatoid arthritis

[thicc-mothman]

its actually super fucking lonely not knowing anyone else with the same illness i have. ive only met one other person with it irl and were not friends we dont talk. i havent met anyone online with it (to my knowledge) and its so so fuckin ostracizing. ive got my fair share of supportive friends who can understand what i go through but no one who truly gets it. its exhausting.

[pixiedustandbluebutterflies]

Who needs fidget toys when you have fluid build up in your joints?

[thefoxyprince]

TW: gender dysphoria, ftm, 🍒 size, exercise mentioned.

Being disabled with mental health issues and financial issues has made my transition journey a lot harder than I had originally thought it would be, but I’m back on track and excited for what the testosterone will do!

I’m also looking forward to hopefully one day get top surgery and bottom surgery as I am a transsexual male. In the mean time I’m trying not let my gender dysmorphia drive me insane 👍🏻

I fought and continue to fight for the life I want, sometimes I’m surprised I’m still here… but anyways, let’s fucking go!!!!!

- Fox

[jiateen]

How am I supposed to love a body I’ve only ever viewed as a prison?

[lukahaslosthismind]

I'm sick and ill never get better

There is no cure

I'll be forced to watch my peers run and jump and play while my own body breaks down

Joints swelling and discolored the pain nearly unbearable

And yet I'm forced to bear it

I'm supposed to be to young for this

I'm supposed to have a healthy body until I'm at least 20

I wish I could get better but I'm getting worse

I'm falling and the pain is near constant

I'm going to die like this and never get better

[butyoucouldberadiant]

I’ve made a excel chart about my joint pain to help me know the answers to tell my rheumatologist when I see him next week. My mother is perplexed and says not to show him the chart I’ve made (it’s color-coded!!!!) because then “he’ll send you to a different type of doctor,” but I am genuinely puzzled as to how I am meant to consolidate 3 months of data in my head otherwise????

[rhythm-catsandwine]

Adding to this.....

Healthy people don't understand how frustrating it is when tests come back "Negative" or "Normal". It is not always a good thing!!!!!!!

Cus you know something isn't right, and your doctor(s) keep saying nothing is wrong or to drink more water, get more protein, lose weight or eat more vegetables or work out more. Then you know it is NOT that, especially the weight thing!!!!

Finding an answer can give enormous relief, and since physical and mental health are so closely related, it can make you feel better physically, too.

Then, you can research and join support groups and learn certain lifestyle changes that can help.

I don't think healthy people realize how for chronically ill people getting a diagnosis isn't sad or even disappointing for us, it's a relief and a vindication. So many people with chronic illnesses take many years to get diagnosed, and are told that 'it's just anxiety/your period/psychological' or that we're exaggerating or that everyone experiences that, so for us getting a diagnosis is being told that we weren't faking it and that this wasn't normal and it's also finally knowing what exactly is going on in our bodies.

I think many healthy people think of it as if it were them being told they have this lifelong debilitating illness, and they would feel awful because they are going from perfectly healthy to disabled, but they don't fully realize that we already have all the symptoms and impacts of said chronic illness and that we are just finally finding out the name, and that knowing what it is means that we have access to more treatments and more knowledge as to what we can to do alleviate our symptoms.

[mandytistic]

I'm eating an apple crumble

[harmeet-saggi]

Juvenile Rheumatoid Arthritis

Juvenile rheumatoid arthritis (JRA), also known as juvenile idiopathic arthritis (JIA), is a form of arthritis that affects children. JRA causes inflammation and pain in one or more joints. The cause of JRA is unknown, but it may be the result of an immune system response gone wrong. It is not contagious.

[flamingo--ing]

hi uh, happy disability pride month

my doctors arent listening to me +insurance issues, and im in a really bad state

if anyone feels able and willing, heres my medical wishlist

https://www.amazon.com/hz/wishlist/ls/Z8N3WSK3ZLQ9?ref_=wl_share

thanks :)

[spooniestrong]

Tomorrow!

World Arthritis Day is observed every year on October 12 to raise awareness. Most people think Arthritis only means joint inflammation but, in reality, Arthritis is an umbrella term used to describe around 200 conditions that affect joints, the tissues that surround the joint, and other connective tissue. 💙🥄

[thicc-mothman]

slams head againts wall dear god why does the rain have to make me hirt so much i love the rain why am i in pain from it please cant i just enjoy something for once

[pixiedustandbluebutterflies]

My doctors @ me re: my arthritis and osteo issues

[baravaggio]

Any followers who are considering filling the void in their life with a pointless masters degree want to do one about why it feels like everyone talks about wielding/receiving the strap but no one talks about good old fashioned tribadism

[luckyburgerz]

juvenile onset arthritis is so fucking humiliating sometimes. yeah sorry honey we cant go on that date that we've been planning today. yeah no its just that its slightly colder than usual and my immune system has decided that my hips have the flu. yes we're only barely in our 20s but i need the same accomodations as my grandpa after having extensive surgeries. fucking christ.

[butyoucouldberadiant]

Question for JIA people -

I thought I was having a flare up on Friday cause all my joints hurt so bad. But then Saturday I had a sore throat so I thought perhaps I’d misread the joint pain and it was more body aches (even though it was in the joints 🤷🏻‍♀️). So, I looked up sore throat with JIA and the Internet said that was a thing (because it can cause swollen lymph nodes)? Which I have never heard? Anyway, that’s my only symptom apart from the joint pain, and I want to find out if I’m contagious cause I’m lonely and want to see friends. So, my questions:

1. Do you get sore throats with your JIA? If so, does the outside of your throat get swollen or no? Do your other lymph nodes also have to be swollen?

2. How do you differentiate a swollen throat due to JIA from one due to sickness?

3. When my pain is really bad my joints tend to also be swollen. Is yours ever bad without them being swollen? Mine are not swollen but my elbows are killing me, so.