Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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"spence?"
"hm?"
"when did you get home?"
a more awake you would be squealing, thoroughly excited he came home early from his trip, but the early hours have hardly begun to bring light and you're struggling to even open your eyes to look at him. your cheeks still widen into a pleased smile though, turning into his warmth and humming, confused, when your hands find the rough fabric of his coat.
"a few hours ago," he says, voice rough, eyes still shut. one arm across his eyes, blocking the minuscule light, the other a vice around your waist. his voice is slow, deep in his chest, caught on the sleep he obviously wishes to keep. but he still turns his face toward the sound of your voice, smile creeping up at the corners of his lips, willing to entertain you despite his fatigue.
"are you still wearing your shoes?" you ask, voice teasing, scooting up in his arm to nudge your nose against the curve of his jaw. you press a kiss there, the point where his bone hits a right angle, lips tingling from the stubble you find.
"no," he says, voice honest, "i know better than that."
"no shoes, but your belt is still on?" you tease, fingers dragging across the leather. you don't care, not beyond a genuine concern for his comfort, but you enjoy teasing him in this way, skimming your lips across the rough skin of his chin in not-quite kisses.
"i took my gun off," he complains in a half-hearted groan, lifting his arm to peek at you out of the corner of one eye. "hi," he says, voice still soft, somehow deeper with affection, dimples the star of the show on his cheeks.
"hi," you say, tilting your head back and lifting your arm to cart your fingers through his mess of hair. "welcome home."
he smiles, reaching around with his other arm to gather you up and drag you across his chest in a bear hug, chuckling at the squeal you let out, sighing against your hair. he presses a firm kiss there, right above your ear.
"we will have to wash the sheets, though. it was really gross for me to not change, i was just exhausted, sorry."
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