#incurableillnesses

[inopenmarketing-blog]

While I would like to avoid Politics on Social Media, right now I do need to make a shout out to all the people in the World with T1D (Type 1 Diabetes, #invisibleillness &/#incurableillness) TAKE NOTICE before the Provisions in our #ACA or Health Care (for >20 Million Americans) are withdrawn, permanently. Save the Individual Mandate, 👉 save the world! for people who need Protections for their #PreExistingConditions and the (#ACA)!! 💯 https://www.instagram.com/p/CB9TpeRh0XySy7mm2kJKq0unojzKhbnuOgLg8w0/?igshid=40bebhzkxjtz

[donnathecrazycatlady]

Hahaha! Yep!🐈💤😹 💤 💤 💤 #donnathecrazycatlady #donnascclfbpage #donnascclIGpage #cats #catmemes #catlolz #catsaremylife #catlovers #catladyog #catwhisperess #catlife #funnycats #funnymemes #adoptdontshop #bedtime #sleepybitchsyndrome #diagnosisfail #incurableillness #goodnightinstsagram https://www.instagram.com/p/B3DwBGUppHH/?igshid=evhiawgez2h0

[cerulean-rose]

I’ve had enough

I’ve had enough of constantly feeling like I haven’t slept for a month as soon as I open my eyes. My eyelids feel like lead and my throat is reminiscent of the sandpaper I used to use in my crafting projects.

I’ve had enough of feeling my body ache before it’s even moved an inch. I stretch, and my joints scream in unison. This will repeat for the rest of the day, the percussion that underlines my days, beat by beat by beat.

I love my room. It’s my safe place. I can stay here. I can walk around when I can, open the windows and let the sun caress my face.

I hate my room. It’s my prison. I see the same view every day. I experience the weather through windows. I can see all sorts of people, walking, running, driving... living their life as I once did. I can hear laughter sneak into my room and bore into my brain, reminding me of all that I’ve lost. My cell encourages people to stay away.

I’ve had enough of the fact that the simple act of washing my clothes can take days as a time. I’ve had enough of picking between washing my hair or going outside. I had enough of being bed bound for the next 2 days after doing any menial task. I can’t look after myself at all.

It’s not that I can’t deal with being sick. It’s that I can’t deal with everything that comes with it.

[iamokaynowdeb]

Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION

Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION

A Port -A -Cath Placement Through Pocket Insertion

A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life and care thrive vs failure to thrive application for colonic inertia, chronic intestinal pseudo-obstruction syndrome, gastroparesis, chronic migraines, post…

[ddst33]

#MemorialDay we lift up those who have served our nation and made us proud and guaranteed our lives are lived with precious blessings of freedoms #ThankYou served & serving We also remember in memoriam our community members who will #ForEverMoreBeInOurHeartsAndMinds ❤️🌹🕊🕯 #CureGP #Gastroparesis #FGIMD #IBS #HR1187 http://goo.gl/MK8Koz in the #USA ✍🏼 & sharing will ultimately benefit upon passage millions #Worldwide suffering #incurableIllnesses like those in our motility Disorder Bill whether it be #Diabetes #Mito #autoimmunedisease or other #spoonie problems all will addressed and touched by #HR1187 more info and advocacy can be found at http://goo.gl/Nl82G7 with #IFFGD

[inopenmarketing-blog]

My answer to the "Race-Baiting Xenophobe" (according to both Colin Powell and Lindsay graham [2016]) on Twitter; "Somebody should tell you NOT to Repeal #ACA as promised, kicking people like me off insurance 》 economic disparity. The low-premium plans that remain are an insult to healthy people (i.e.: tRumpcare.con). They don't cover a simple toe fungus, while I have #incurableillness (T1D)" #deficitdeadlift No plan for healthcare, even less for the ecomomy: #votethemout (at West Hartford, Connecticut) https://www.instagram.com/p/CBJKKsgBTcKbNIfMl7yFQMWgZL1I3yA77EfDzI0/?igshid=7f9omjm9yolo

[ddst33]

#BigGirlPantyAdvocacy how are ya gonna say we are #Invisible? #awareness for #incurableIllnesses like #gastroparesis #chronicIntestinalPseudoObstructionSyndrome #ColonicInertia #POTS #IBS #FGIMD #mitochondrialdisease #malabsorption #diabetes #EDS #Raynauds #Sjogrens #ChronicMigraines with #malnutrition #dehydration #fatigue WE are #Warriors in #SparklyBloomers with positive optimism #patientadvocates #PositivelyReal Standing together yet using our unique gifts like spices in the foods we cannot digest - we celebrate our differences -our contributions #GPReports --support groups -- increase the beauty of our community each of us being ourselves make this #GPNation #Chronic support/advocacy groups strong with each idea & share. We #HappyDance each #ChronicWarrior #WorldWide til we arrive at #Cures for all.

[ddst33]

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A post shared by Deb(Iamokaynow) (@deb_iamokaynow)

#Soulful #Sunday #ThankYou #simplestofpleasures while #advocate #CureGP #MitoCure #IncurableIllnesses #invisibleIllnesses #Millions ready to see #action with #love @starbucks @dunkindonuts @f0lgers @communitycoffee @onelovepeoplecoffeeshop @barringtoncoffee @barnesandnoble @joescoffeeshop @seattlecoffeescene @krispycremeofficial @mcdonalds #WeWantTosipCoffeeGP ☕️☕️☕️We #NEGU just a lil will send us #overthemoonhappy with a few good prayers meditation & books when you can't eat & absorb nutrients properly. It is #Heavenly simple to sip ☕️. Sneak a lil cardamom, good healthy coconut oil, protein & it becomes life helping #sipstea or coffee real or decaf whichever way you decide you need to roll for your health.

[ddst33]

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A post shared by Deb(Iamokaynow) (@deb_iamokaynow)

#soulful #Sunday #Love #Grace #SundayMorning getting #Spoonies through #chronicillness #Chronic everything #Gastroparesis #MotilityDisorders #POTS #EDS #diabetes #Raynauds #mito #sjogrens #CIP #SBBO #hypothyroidism #hyperthyroidism #Barretts #esophogeal #internalparaplegics #InvisibleIllnesses #IncurableIllnesses stepping into the light #Advocacy #Awareness #Empowerment ourselves & others #Grace lifts us all #support #unconditionallove

[ddst33]

#InvisibleIllness #IncurableIllness #CureGP #GP is #Gastroparesis a #Motility Disorder meaning your digestive tract does not function properly to some degree & that degree may be wide ranging in its severity & its level of varying degrees of symptoms per patient/person to person #ButYouDontLookSick is #aucontraire #ZAP #Antiemetic #Anti_nausea mess allow us to keep up our #gpwarrior status as well as #GPReporters aka #Patient_Advocates aka living to change this quality of life = #QOL WE NEED OUR MOTILITY BILL #HR1187 & representatives from each state to cosponsor it to get it out of committee and move it onto the floor of The House of Representatives https://goo.gl/oCT2nk (I really hope this is accessible to everyone I need a lil feedback on this to be sure it is!)

[ddst33]

#GPReporting on the #InvisibleIllness #IncurableIllnesses of #MotilityDisorders #Gastroparesis #FGIMD please sign & share #HR2311 https://goo.gl/rAJXFG asking our Congressional Representatives to Co-Sponsor our Bill H.R.2311 http://youtu.be/U8mR72tSd7Y