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cuttlefishkitch · 4 years ago

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hello! i haven't talked to you before, but ron said that i could ask you for some advice on writing eds? (i'd like to know things to avoid/common things that could come up in everyday life that would be good to mention/the sort of aids and stuff they'd have maybe?/anything else you think is relevant)

Hi! Sorry this took so long, a combination of ADHD and chronic pain slowed me way the fuck down. Thank you for being patient!

EDIT: WEIRD HEEL THINGS I FORGOT!!

So, before I get into this I should probably say I technically haven’t been diagnosed with Ehlers Danlos Syndrome (EDS for anyone reading) because it’s one of those syndromes that takes forever to get diagnosed with (it took a friend of mine’s mother over 30 years to get dxed). Many doctors, and everyone I know who does have EDS agree with me that it’s probably what causes my chronic joint pain and some of my other chronic issues. But just because three separate doctors have said “Yeah Probably” doesn’t mean I’m diagnosed!! Only a geneticist can do that!! And they had two-three year waitlists BEFORE the apocalypse happened.

I am diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Small Fiber Neuropathy, and potentially misdiagnosed with Fibromyalgia (once I get properly tested for EDS I might get undiagnosed with this because I don’t have most of the main symptoms of Fibro, but I got diagnosed with it anyway because it’s what doctors misDX you with when they don’t know what’s wrong with you and don’t want to do more tests).

All that said, I’ve done a lot of research about EDS (mainly because it’s the only thing that explains all my symptoms since doctors seem incapable of doing so), and know a few people who have either confirmed or suspected EDS, so I’ll link to some stuff, talk about the symptoms that often come with EDS, explain how the symptoms I have affect me, because just because someone’s not diagnosed doesn’t mean they aren’t having symptoms, and probs elaborate a bit about writing physical disabilities and chronic pain in general because it’s super important to me!

So RESOURCES aka how to make sure your post never sees the light of day because you’re linking things and tumblr hates it when people give other people information!!

Youtubers! If you want to know about the day to day of living with EDS or any disability or chronic illness I super suggest finding a youtuber that makes videos about their life. My EDS favorites are

Jessica Kellgren-Fozard

Annie Elainey

Amy Lee Fisher

Websites! If you’re asking random folks on tumblr I’m assuming (and hoping) you’ve already done the basic WebMD google searches and looked over the seemingly ridiculous lists of symptoms and related conditions, so here are a few websites that are made more for people than for doctors.

The Ehlers Danlos Society

OhTWIST (That’s Why I’m So Tired)

ChronicPainPartners (the fact that they have an entire section of articles called “Dealing with Doctors” should really tell you something)

Books! If you feel like doing actual reading! I suggest reading books written by people with Ehlers Danlos, to get a feel for how they portray themselves. I’m not saying steal, but it’s probably a good point of comparison to see how your portrayal feels. (haven’t actually read these b/c my ADHD doesn’t let me read)

Ria Ruse by Morgan S. Ray (a superhero book with a disabled super MC!!)

Mysteries of Maybelle by Imani Benfell (Imani is still in high school and has already written and self-published a book cause she didn’t have enough representation for herself how cool is she!!)

Bodies in Motion by Liana Brooks (tw for pregnancy problems and miscarriages in the link, because it’s a blog post talking about integrating EDS symptoms into the story without explicitly naming them as such)

OKAY, now for some rambling about EDS SYMPTOMS!!!

Ehlers Danlos is one monster of a genetic condition in complexity and variety. There are THIRTEEN different identified types of EDS, it often comes with Mast Cell Activation Syndrome (MCAS) and/or POTS, and can lead to various other conditions like gastroparesis, chiari malformation, craniocervical instability, and/or bad teeth. So if you’re going to be writing a character with EDS consider what other comorbid conditions they might also have. I’m mainly going to be talking about Hypermobile EDS (hEDS) because it’s what I probably have and what I’m most familiar with. That said there is a lot of overlap in symptoms with the other varieties.

I started typing this section and realized I was going to have to break it down even more so we’re going to talk about Chronic Pain, Unstable Joints (Dislocations and Subluxations), Skin Things, Mobility Issues, and Other Weird Shit and how those things get addressed separately.

Gonna get the Other Weird Shit out of the way first. Because EDS is a malfunction of connective tissue it can fuck up all sorts of random things. For instance, I and many other people w/ hEDS have trouble swallowing. Shit gets stuck in my throat, I sometimes choke on and have to cough up food, and pills can be hard to swallow, which sucks cause I take A Lot Of Pills. If it doesn’t cause full-on gastroparesis it can cause IBS or other digestive problems b/c the digestive tract is mostly made of connective tissue. It can potentially cause heart problems even if they aren’t as big of a risk as in some other forms of EDS. Premature osteoarthritis is common because what you need is more joint pain. And Fatigue OH BOY THE FATIGUE. And of course the headaches, can’t forget those pesky migraines can we!

AND piezogenic papules!! I completely forgot!! Piezogenic papules are little white bumps that appear when you put weight on your heel. In some people they hurt, but in others they don’t. They’re technically tiny little herniations of fat peaking through the fascia in the heel. They were added as part of the diagnostic criteria for hEDS in 2017!

Now for Skin Things cause it’s not as big a thing in hEDS as it is in other forms. Basically, in a lot of forms of EDS, the skin is extra stretchy and extra delicate. It bruises and tears easily, people with the extreme versions of this can accidentally scratch something into an open wound if they aren’t careful. My skin is pretty soft and sensitive, I def have the typical velvety skin, and as is pretty par for the course of someone with hEDS my skin is a little stretchy, and sorta delicate. I’m not as tissue-papery as some people get, but I almost always have at least one mystery bruise or scrape b/c existing is hazardous. Most of scars are also pretty normal, unlike the extremely papery and atrophic scars (though I have a few tiny acne scars that are atrophic) that are common with other kinds of hEDS. Something that I DO have is Lots of Stretch Marks, all over my thighs, and even down to my calves. Which wouldn’t be abnormal, except for the fact that I’ve never been over 145 lbs and I’ve never been pregnant. Having a lot of stretch marks or striations in the skin without due cause happens because the structure of the skin isn’t as strong as it is in people with a normal amount of connective tissue.

I don’t have to worry as much about my skin but people that do are usually very careful with adhesives because they can irritate or tear the skin, which sucks when you need a lot of bandaids cause your darn skin won’t do its job.

Now on to the meatier stuff and since I’m mostly working backward let’s do Mobility Issues!! These can happen in loads of ways, but a lot of what causes these in people with EDS are the other two things I wanna talk about. Unstable joints lead to increased risk of injury when doing stuff people with fully functioning joints can do.

For context, I’m an ambulatory wheelchair user, meaning I can walk, but a lot of the time it’s better if use a chair. Mine is mostly for my POTS symptoms, but the fact that my legs aren’t also in absolute agony is a big plus. I use a custom manual wheelchair with a SmartDrive (b/c I’m very fucking fortunate and have good insurance) whenever I leave the house and have to be “walking” for more than a few minutes at a time. I can’t fully self-propel in a manual chair because it would be damaging to the joints in my arms and hands, but the smaller chair is easier to maneuver in less than accessible spaces (like almost everywhere). There was about a month-long span where I used a very cheap and very bulky electric chair while I was waiting on the ideal set up I have now. Before that, I also briefly used, and sometimes still use, an up-right posture cane.

People with EDS have widely varying mobility issues because of how uniquely it can manifest. My cane only gave me a little help with balance because if I used it in any prolonged capacity any pain it took away from my legs was relocated to my arms, and as an artist, my arms are more important to me!

If you’re going to write a character with EDS having mobility issues as a result of their EDS the best thing to do is to narrow down their specific needs. Are their knees complete and utter garbage but their shoulders and wrists strong? Maybe they can get away with using a cane. Can they not stand for longer than 5 minutes because of the vertigo from their POTS? Maybe they need a manual wheelchair. Would propelling themself damage their back and arm joints? An electric chair might be necessary! Plenty of people with EDS use all sorts of combinations of these aides to get around their life, consider how your character’s good and bad days would be. Do they have back up plans if they overestimate themselves? There can be a lot to manage, but don’t let it scare you off! Sometimes I try and make it into a resource management game (because I’m a game designer and that’s what I do), to make evaluating my energy and mobility needs more fun!

But now let's tackle some of the reasons those mobility aides might be needed. Unstable Joints.

Ever stepped wrong and rolled your ankle? It hurts for a few steps and then kinda fixes itself, or maybe it bothers you for the rest of the day and you put it up and ice it when you get home? When I was walking around outside my house that would happen AT LEAST once a month, usually more. Some times I’m sitting wrong and when I get up my knee isn’t a knee anymore and decides to just give out from under me. My knuckles are made of unruly popcorn and they Don’t Want To Stay Home!! Oh! And my shoulder is more often out a little out of its socket than it is fully in.

Unstable joints lead to Dislocations and Subluxations of varying intensity, and some people get them more frequently than others. Some can be severe enough to necessitate hospital visits and even surgery, some subluxations are so banal (like my fUCKING SHOULDER) that you just learn to live with the pain.

If a character is going to be in high action, combat-heavy scenarios, chances are they’re going to be popping out joints left and right. Hell, depending on the severity of their joint laxity they could be doing the same sitting at a desk. Again, it’s incredibly varied. I’d suggest setting some sort of baseline for yourself, of what a character’s joints can and can’t stand up to, and maybe do some research on which joints are most likely to pop out in general (hips and shoulders are big culprits being the wacky ball and socket motherfuckers they are). Then maybe have something pop out or hold up every so often when it shouldn’t cause hey! EDS is kinda just like that! Unpredictable!

Some ways people manage joint laxity is with braces, KT tape, and physical therapy. Braces come in many different forms, since I’m currently getting pretty much no treatment for my shitty joints I use mostly compression braces made for sporty people. It really is amazing how much a bit of tight fabric can do to keep my wrist in place.

More specialized braces often have solid parts to prevent the joints from hyper-extending (bending the wrong way) and causing further damage. If you ever see someone with what looks like diamond shaped rings around a bunch of their finger joints, chances are those are Ring Splints, and are there to keep the finger shaped like a finger. I want to get my hands on some and get some on my hands Very Badly, because my fingers hyper-extend SO MUCH when I type, and it makes my hand pain way way worse.

KT tape is another thing people often use. It’s stretchy tape you put on your skin and it basically functions kinda like a second ligament as well as reinforcing the joint and keeping the bones mostly where they’re supposed to be. The problem with this is a lot of people with EDS have very sensitive and fragile skin like I mentioned before, so KT tape can cause allergic reactions, chronic skin irritation, or just straight up take the skin with it when someone goes to remove it. Hence a lot of folks are really careful with it.

Physical Therapy is kinda the best (and only) treatment for joint laxity aside from Very Invasive and sometimes Highly Experimental surgery. It focuses on strengthening the muscles around the joints so they can do the work all those bone ropes made of body glue can’t. The problem is finding a physical therapist that 1) knows what EDS even is, 2) knows you have it, and 3) knows how to treat it without doing stuff that’ll Phucking Hurt You Worse!! Because exercising wrong with EDS can do Permanent Damage!!!

Again most folks use a combination of all of these things, or have next to no access to them b/c healthcare sucks.

Anyway, on to one of my favorite topics, Chronic Pain!! One of the reasons this post took me so long!!!

Chances are if your character has chronic pain as a result of their EDS there are gonna be some things they hate, including stairs, rain, thunderstorms, stairs, hills, uneven terrain, oh and did I mention stairs??? It’s going to vary person to person, but almost everyone I’ve met with pain from EDS has complained about their knees. For me the most debilitating pain is in my fingers and wrists. They’re by far my least stable joints but I use them constantly for stuff like drawing, typing, and sewing.

Because my joint pain is so wide spread, like most people’s with hEDS, it effects every single part of my day to day life. I can’t carry a heavy ceramic plate, open a bottle, or even use my computer without pain. It’s practically impossible for me to get comfortable in any position be it sitting or laying down, and as you can imagine that makes it hard to sleep a lot of the time. Moving too much hurts, but so does sitting still. I’m constantly taking braces on and off or cracking/stretching my joints so they pop back into place and hurt less.

Also being in pain makes everything else That Much Worse. I get tired way faster than I did before my pain was this bad (I had chronic pain for a while before actually realizing it wasn’t normal to not be able to walk down the block without feeling like your foot bones are trying to escape). My sensory issues and anxiety disorder are more easily aggravated because my base level of comfort is way worse. It fucks with my depression. And OH BOY does it make my ADHD worse because being in pain is fucking distracting as hell and makes it harder to make decisions and switch tasks. Also my ADHD often makes my other symptoms worse cause I forget to take my meds, don’t drink enough water, or can’t find my fucking braces because the item eating black-hole that comes with ADHD stole them. The intersection of mental and physical disabilities is probably a rant for another time though, so back to chronic pain.

Does it suck? Yes, undoubtedly. Is this incredibly debilitating? Of course it is, I spent the last several months unable to feed myself without assistance because there was a staircase between my room and the kitchen and I could only manage to climb it once a day. Is it overwhelming? Definitely, I’ve frequently broken down crying from a combination of pain and frustration because I’m having a bad day and there’s no relief to be found. Am I able to predict when it’s going to rain with uncanny accuracy because any change in barometric pressure makes me feel like every bone in my body is trying to kill it’s neighbors? You bet your fucking ass I am!! Does it sometimes make me irritable, angry, and occasionally dismissive of when abled people get cold or a temporary injury because the stuff they’re complaining about is my life every single day and all avenues of treatment and recovery I have could take years and still not entirely solve my issues? Yeah, and while I deserve a little extra patience I also have to be sure to check myself because I don’t want to turn into someone who’s nasty to be around. Do I sometimes need to sleep for 17 hours straight because it’s raining, I have migraine, and I’m in too much pain to be conscious? Yup, sometimes a few days in a row. Does living in constant pain mean I’m unable to do all the things I want to and does that sometimes make me wanna curl up in bed and never leave? Yeah, it happens.

But! And here’s the big important but, that’s not everything! I still write, draw, and talk to my friends!! It might take me a little longer but I get there. I’m still happy and excitable and make the time to write out five page long posts about EDS because it’s something I’m passionate about! My chronic pain doesn’t stop me. I refuse to let it. I never really wanted to go mountain climbing anyway, so I’m perfectly happy being able to make it up and down the six steps in my house, even if sometimes I have to sit and bump down them on my ass, or crawl up them like a cat. Chronic pain isn’t all I am. It isn’t a fate worse than death. It isn’t the only thing your character should talk about (though I do talk about my pain a lot cause I’m a complainer about almost everything). You can have your character be hindered by their pain, realistically they would be. You can have them seek comfort, support, and relief. Other characters can commiserate and be sympathetic, but it doesn’t mean their whole life is going to be one big pity party, that would be incredibly fucking boring. I know I’d be bored out of my mind.

All that said dealing with chronic pain, especially from EDS, is Complicated. Physical Therapy is the gold standard, but like I said before it can be a long and difficult process, and isn’t always accessible. Stabilization methods like I talked about before can help prevent pain, or reduce it by keeping bones mostly where they belong. Heat and cold help joints, relax muscles, and reduce inflammation but keeping them applied is rough and the relief doesn’t always last. Doctors prescribe anti-depressants, anti-anxiety, and sometimes even anti-epileptic medication to help manage pain, but everyone’s mileage with those varies. And I’m not at all qualified to talk in-depth about narcotics or other heavy duty pain-meds, but suffice to say the war on drugs fucked shit up for people that legit need that kind of help BIG TIME.

Now for my closer/bonus rant about EDS and Disability Writing in General!

Everyone always says write what you know, so if you really want to do disabled people justice, get to know disabled people! Make friends with disabled people, get involved with advocacy groups, consume content made by disabled creators both about disability and not! Disabilities are so fucking diverse, even EDS is such a complex disorder, and comes with so many potential co-morbidities, that practically everyone with it has a unique experience. There’s no way I can fully explain everything in a tumblr post. Hell, even if I could talk to you for hours probably couldn’t give you enough info to answer all your questions (especially since I’m still in diagnosis hell :,) ), so talk to a wide range of people with EDS and other disabilities!! I know it sounds like a lot of work but trust me, disabled people are some of the strongest, raddest, coolest, people you will ever meet that it won’t feel like it.

And don’t be afraid either, the fact that EDS and other disabilities are so wildly varied means that you have a little bit of wiggle room with your character’s experience. There’s so little disability rep out their I think people are WAY to scared to try their hand at writing it. So long as your character is a fully developed person in addition to being disabled, you give some logical thought as to how it would affect their life, and you don’t make their disability the butt of any joke it isn’t difficult to avoid ableist writing. PLEASE WRITE MORE DISABLED PEOPLE AND PEOPLE WITH CHRONIC PAIN/CHRONIC ILLNESS!!

Okay that’s it, again sorry it took so long for me to get back to you! My fingers were being little pests about it, and my ADHD (which is honestly more disabling than everything else a lot of the time lmao) was being an asshole! Hope this helps, and feel free to ask me more questions if you need clarification! It might take me a bit but I do love talking about this stuff.

#neela-chaan #ehlers danlos syndrome #EDS #hEDS #hypermobile ehlers danlos #disability #writing advice #disability writing #Chronic Pain #asks #SORRY THIS TOOK SO LONG IM JUST SLOW #also i'm sorry the formatting is such a wreck #my adhd won't let me go back and fix it #and i've already spent way too much time

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urghost-andurboo · 4 years ago

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accessibility products i’m in love with

eye buy direct in general - just ordered pink tinted lenses to see if they help with light/screen time migraine triggers

triple bristle tooth brush

shower chair

large rolly cart for groceries and laundry

comfy shoes

ninja blender

costco pre packaged snacks (especially clif kids bars, guacamole cups, yogurt and yogurt drinks. trying to like trail mix and cheese sticks but it’s def forced at this point)

salt lamp, string lights, nightlights, lamps

lower brightness feature on roku tv display

weighted blanket

comfort objects, very in love with small stuffed animals right now

multiple journals and many pens

tarot deck and book

tent

coloring books

really just. books. i love books so much

organizing my house to be adhd and spoonie friendly (this is a work in progress but basically putting things as close as possible to where i actually use them)

simplifying my wardrobe and relying on a specific set of clothing that fits different sensory needs while still matching my style enough (also a work in progress)

social media in general. tumblr for memes and silly expressions of my thoughts. messenger, signal, snapchat, text for pictures or just talking or making plans. zoom and teleparty and facetime and phone calls for hanging out. reddit for disability and queer’s very vague sense of solidarity. i hate instagram but i might start using it again for sharing artwork.

ipad

youtube, academic journals, google, books for learning health information

procreate and notability

different thicknesses of socks, lots of different kinds of shoes to slip on

a pop socket with lip balm - that way i always have chapstick bc i always have my phone

heat wrap and ice packs

yoga mat, blocks, yoga wheel

these aren’t products really but just things that help:

cats

rats

a cuddly partner and a lovely introvert roommate friend who understand + accommodate my access needs

physical touch in general

financial stability, stability in general — generous grad student financial aid and good insurance from my parents

being part time in school

acupuncture

therapy (individual and group)

psychiatry, neurology, endocrinology

general self knowledge, empathy, compassion

knowing what makes my pain worse and better. knowing that chronic illness is an illness that i can’t control. i can make it easier but i can’t make it go away. accepting and appreciating that life is worth living always, despite the rough times.

being forced to stay at home because of pandemic

i made a little box of low spoon activities to do (a crossword book, coloring books, tarot deck, kids book)

i made another smaller box with a little journal, a pen, one comfort object and one stim toy, and two pill bottles — one for holding positive affirmations and another for putting away dark thoughts (i feel like dried herbs could amplify this actually. i’m thinking rosemary and chamomile, for remembering kind words and soothing energy for first pill bottle, and garlic for banishing bad thoughts for the other.) ((side note: i think it would be such a fun project to apply herbalism/kitchen witchcraft to dnd magic items and spells))

special interests, media in general

hobbies

creativity

school is something i care about and want to learn about and like learning about. and it’s directly applicable to a career i’m interested in. and it is online which is so helpful

living outside of the city - it is so quiet and we have so much space

things i want:

to find my headphone charger so i can use my favorite headphones again 🥺

extras of everything. but especially pens and another glucose monitor

more chapstick

continuous glucose monitor !!!!!

headphones i can sleep in

a cushion that somehow makes sitting on the floor comfortable (is that a thing?)

more organizational space. maybe just shelves that fit in the hall closet!!! or just intentionally organizing things using the storage things we already have

easier access to migraine meds

to not have the looming anxiety of losing insurance and therefore access to meds and treatment that have allowed me to make my life so comfortable

#disability #bipolar #autistic #adhd #migraines #actually bipolar #actually autistic #spoonies #low spoons #privilege

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barbariccia · 5 years ago

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well, before we jet off anywhere, we better drop in on our friends old and new, the ones we’ll be directly working with.

hey, joker, how’s the new normandy treating you? any lingering ptsd from watching your old friend and commander get spaced saving you from the same fate? feel ready to fly? excellent!

Joker: Can you believe this, Commander? It’s my baby, better than new! It fits me like a glove! And leather seats! Military may set the hardware standard, but on a first-gen frigate they could care less if the seats breathe. Civilian sector comfort by design.

EDI: The reproduction is not intended to be perfect, Mr. Moreau. Seamless improvements were made.

joker........... does not like EDI. EDI is a blip in the machine to him, an ultimately unnecessary addition to the thing he considers to be his real arms and legs, so to speak. and EDI has terminals all over the ship, including one right next to joker, which communicates with him regarding piloting necessities that a human can’t manage in even half the time it manages.

worth noting, by the way, that despite EDI’s blobby avatar, it’s designed to have a feminine voice; a little lower than might be considered traditionally feminine and echoing with robotic undertones, but feminine nonetheless. it is very easy to consider EDI a she from just its voice alone, but at the end of the day it’s an AI, completely synthetic.

Joker: We’re staying, though, right? I mean, this seat is real leather.

Shepard: Good to see you’re keeping it all in perspective, Joker.

Joker: Uh, leather.

he spins away from you, but we grab the back of the chair - metaphorically speaking - and yank him right back. not so fast, mister, it’s been two years. the first thing we ask is how he feels about the normandy, has he settled in? and he wants to put it through its paces, to find out just how similar it feels to fly. EDI chimes in to say that it’s against safety standards - you know, those things that joker flew us right into the heart of during the battle of the citadel.

Joker: Commander, can we shut this thing off? I don’t need it in my day-to-day.

Shepard: If you don’t want to hear it, turn the damn sound off.

Joker: That doesn’t change anything. It’s still watching. Like some creepy kid staring at the back of your head in comp-sci. You just want to... punch him. But he’s “special” and sets fires or something.

Joker: ...Okay, a little too far there, but you know what I mean.

well, good to see that the old joke of “people with disabilities hate other people with different disabilities” still rings strong.

you go right ahead.

next we ask him about the good old days, because... well. it’s been two years for him, sure, but i guess shep’s still trying to adjust to that.

Joker: They seem like the good old days now, but come on. It was hell at the time. Geth, Saren, Sovereign. And then we got dumped. We’re stuck in a weird place, sure, but back then it wasn’t all sunshine and bunnies.

Shepard: What happened to the rest of the old crew? I heard most survived.

Joker: Most did. Pressly didn’t. The rest of us just sort of drifted apart. The Alliance didn’t care. I don’t think they liked all the non-humans in your crew. We were your team, Commander. With the Normandy destroyed and you gone, there wasn’t much keeping us together.

yeah, we really were the glue holding the team in place. a real shame - but then, there’s no reason for them to have stayed. not the non-humans, anyway, which is a sweet term and one that i’m getting on board with immediately, because i’ve never liked the term “aliens” in a galaxy where... well, humans are also technically aliens from a different perspective!

Shepard: What about the people we’re picking up?

Joker: Well... I would never say anything against Miranda. And expect to survive the reprisal. And Jacob is way too nice a guy for the number of ways he knows how to kill people. Uh, that’s just my opinion, though. There’s really no need to go spreading it around.

like i’ve mentioned before - yeah, they really do both feel like kaidan and ashley replacements, but weaker, too. miranda’s closed-off just for the sake of being closed-off at this point, rather than ashley’s mistrust of non-humans but willingness to fight with them if ordered to, and... okay, jacob and kaidan actually have a fair amount in common insofar as “nice dudes, also deadly dudes”. jacob doesn’t have a little bouffant, which is a point in his favour, imo.

hell, while i’m here i’ll talk to EDI.

Shepard: I want to know more about the people I’m working with.

EDI: Much of that data is classified. Do you have a specific inquiry?

HOO boy EDI ain’t wrong about that! almost everything you can ask her won’t net you answers; it merely tells you that there’s a block preventing it from giving you the information you seek. it does, however, give you some basic info on cerberus.

EDI: Cerberus is organized into task-oriented cells. Each operates in isolation. Members from one cell cannot recognize the members of another. Each cell’s agents are led by a single operator. We are called the Lazarus cell, which is directed by Operator Lawson.

that’s miranda.

well, our other questions are blocked, so fuck it. how you getting on, EDI?

EDI: Mr. Moreau does not trust me. It offends him that I am installed aboard “his ship’s” computers.

Joker: Yeah, the last Normandy did just fine without an AI reminding me the airlock is ajar.

you can ask it about the meaning behind its name (an acronym of Enhanced Defense Intelligence), and what it does, which is electronics operation, weapons guidance and jamming ... and collection of data for TIM, which we shouldn’t be surprised about. it also has hidden achievements; items it’s programmed for that even EDI doesn’t know what their function is, due to some of its hardware being kept offline. it’s happy (???) enough to work for us, though, since organic beings will never be as quick as AI tech.

EDI: This is a role that can only be filled by an Artificial Intelligence. Unfortunately, we are suspect.

Joker: Might have something to do with how an AI almost destroyed galactic civilization. Just putting it out there.

ok, lovebirds, enjoy your married life.

joker isn’t the only member of the original crew, actually. go down to the medical bay, and you’ll be met with none other than karin chakwas, who was notable in me1 for... uh, telling us about kaidan’s migraines.

Shepard: I’m shocked. You’re serving on a Cerberus vessel now?

Chakwas: Surprising, even to me. Yet, here I am.

Chakwas: The kind of trauma you endured would’ve changed most people, but not you, I see. Welcome back, Shepard.

uh, let’s not get too hasty there.

chakwas is set up comfortably enough, serviced by all the equipment she needs, but she’s missing private reserves of... whatever supplies. she’s also missing a bottle of brandy that she was saving “for a special occasion”, and we can promise we’ll keep an eye out to replace for her if we can see it.

Shepard: Doctor, you’ve been with the Alliance for years. Why leave now?

Chakwas: After the Normandy was lost, the surviving crew was reassigned. I was stationed at the Mars Naval Medical Center. A very respectable position, but it wasn’t on a starship. I’ve spent most of my life on war ships, never knowing what the next mission might bring. I’m used to the hum of engines, the creaking of bulkheads, that subtle vertigo when the momentum dampeners kick in. Life planet-side is just too static, too boring.

Shepard: You’re not the Cerberus type, though.

Chakwas: I don’t work for Cerberus; I work for you -- on a mission that may be crucial to the survial of the human race. I have faith that your dealings with Cerberus will be ethical. I trust you, Commander.

uh... sure, i guess.

Shepard: There’s a very good chance this mission will be one-way only. Are you prepared for that?

Chakwas: I’ve been through the Reclaiming of Shanxi, the Skyllian Blitz... We survived the Battle of the Citadel and the destruction of the Normandy together. I’ve lived a full life -- no regrets. I’d like to make sure the crew gets the same opportunity.

this is way too much responsibility, oh boy. oh boy!!!!

#mol plays me2 #squad: joker

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help-on-four-paws · 5 years ago

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How I Help My Girl as a Medical Alert and Response Dog

To read the original blog post, click here.

TW: self-harm mention

This photo was taken while I was just finishing up doing Deep Pressure Therapy for my girl. I moved to her legs because her body had already started responding to the pressure I'd been putting on her chest earlier, so she just needed some final grounding before this episode passed. You can see from my face how seriously I take my job!

A Medical Alert Service Dog performs a trained behaviour to indicate that their handler is about to have or is currently having a medical episode,* and a Medical Response Service Dog helps a handler who has a medical disability. Both types of Service Dogs can assist with a range of medical conditions, from epilepsy to type 1 diabetes, and from postural orthostatic tachycardia syndrome to narcolepsy, and everything in between. It's not uncommon for a dog who is a Medical Response Service Dog to also be a Medical Alert Service Dog, because we dogs are perceptive creatures with strong noses and will often pick up on our handler's changes in body chemistry. Remember, though, that a Service Dog under the ADA must be "individually trained" in the task(s) that they perform for their disabled handler. This means that a dog who performs a natural medical alert does not qualify as a Service Dog in the US unless that alert is reinforced by the handler (or a trainer) since the Service Dog must be "trained to take a specific action" under the ADA. As a Service Dog for my girl, I am both a Medical Alert and Medical Response Service Dog because I perform tasks both that alert her to a medical episode and that are in response to medical episodes.

Because my girl has such a broad range of symptoms, I also have a variety of alert behaviours so that I can tell her exactly what's going on with her body.

As I explained in my post about my Psychiatric Service Dog tasks, I alert my girl to rising anxiety and incoming panic attacks through a variety of her body's signals. One of the very first tasks I learned to help my girl was pawing with increasing intensity in order to interrupt her when she starts nervous-scratching or picking at herself. Her anxiety causes her to do this unknowingly, often to the point where she bleeds, and since the scabs that form become itchy, the cycle can continue quite easily -- so the trick is interrupting the cycle so that she can catch herself before she starts bleeding, which is exactly what I do! This pawing also acts as an anxiety alert because the scratching indicates that her anxiety is rising close to the point of "no return." I can also alert to increasing heart rate or elevated cortisol as signs that her anxiety is rising, as well as to her anxious "hand flapping" that she does as a physical anxiety tic, and I use a paw for these as well so that all anxiety alerts are clumped together into one behaviour.

A couple years ago, my girl added a hypoglycemia alert to my repertoire of tasks. Her GI issues are understandably the (most likely) culprit of her drops in blood sugar, which itself causes an assortment of un-fun symptoms, but the situation is even more nuanced than that: thanks to my girl's chronic nausea, she often doesn't want to eat, but she has to be careful because blood sugar dipping too low can be a trigger for her migraines, which can last multiple days. As you can imagine, my girl is grateful for any kind of preventative action! My hypoglycemia alert can tell her when she absolutely needs to push past her nausea, even if eating causes its own form of discomfort, because that discomfort is the lesser of the two potential evils. I currently alert with a nose "boop" when her meter reads 80 mg/dL or lower. Sometimes I do a "chin rest" with a serious look on my face, and although this is my default "there's something wrong with you but I'm not formally trained to alert to it" behaviour, my girl has learned that sometimes I do this instead of a nose boop . My girl hasn't yet figured out if this is because her low blood sugar stems from two different causes, and since I'm a dog, I can't really communicate my reasoning to her. For the time being, we're treating it as a training glitch, and she keeps reinforcing the "boop" whenever I offer the "chin rest" instead. When I learned my hypoglycemia alert, I also learned the Breath Check command, where my girl leans down so I can sniff her breath better. This behaviour helps reassure my girl that my alert was a true alert and not just an accidental nose boop, because if I still give the nose boop after a Breath Check, then my girl knows to definitely check her blood sugar.

If you've read this far, you've already learned that my girl has migraines, and they most likely have a genetic component to them because they run in her family. Although my girl knows some triggers for her migraines -- pressure changes due to thunderstorms, low blood sugar -- these migraines are tricksters and don't always let her know what causes them. That's where I can help! I have a migraine alert where I gently "mouth" my girl on the hand in order to let her that a migraine is coming on. This behaviour lets her know to take her migraine medication, which can help lessen the impact and also duration of the migraine (however, it's not perfect and sometimes her migraines ignore medication completely). We haven't figured out a way for me to tell my girl how long her migraine is going to last, since it would be helpful to know if one is going to last 9 days or only a few hours, but hey, at least I can sometimes give her a bit of warning and that's better than nothing!

My newest medical alert (that I'm still perfecting, by the way) is to my girl's fatigue crashes. For a period of time after my girl exerts herself either physically or mentally, even to an extent that most normal people would consider "minor," she experiences a major energy crash, often accompanied by a "flare up" of other symptoms like chronic pain, anxiety, overstimulation (aka lots and lots of tears), or headaches and even her migraines. With these crashes, she can often barley think coherently, let alone function like a normal person, and even walking can sometimes feel like an insurmountable feat. When I give her an alert to an impending fatigue crash, I'm letting her know that she's going down fast so she needs to get herself ready for that, whether it's getting water to put beside her bed, finding the nearest dark and quiet space, or emailing someone to cancel plans while she still has the brain power to do so. Anyone who knows my girl knows that her face has it's own "alert" -- her cheeks turn lobster-red immediately before a fatigue crash. However, my alerts help for two main reasons: first, fatigue crash-to-lobster face isn't a 1:1 ratio and my girl can crash without lobster-ing, and second, fatigue crashes can happen in a time frame ranging from immediately after an exertion to a day or so after doing the exertion. My absence of an alert reassures my girl that she has at least a little more time to live her life normally, so my alerts offer her some predictability, which is nice to have when your chronic illness is largely unpredictable.

I want to take a moment to note that my medical alerts vary in how good I am at performing them. Medical alerting has probably been my biggest training struggle, so my girl and I still practice with scent samples quite frequently (and if you want to learn how I was taught to alert to medical episodes, click here).

If I alert my girl to her rising anxiety or an impending panic attack, one of the ways she can respond to that alert is by asking me to perform Deep Pressure Therapy (DPT), which is a form of firm sensory input that results in a calming effect for the body. I do DPT for my girl by lying on her chest preferably, especially because it forces her to take deep breaths instead of hyperventilating, but I can also lie across her legs if we're not in a situation where she can lie down fully. My body weight acts to quiet her sympathetic nervous system, which is responsible for her "fight or flight" response, and instead activates her parasypathetic nervous system, which is responsible for her "rest and digest" response and therefore is associated with decreased anxiety. As a result, her panic symptoms decrease, and she can eventually continue her life as normal. DPT may look like "just cuddling," but - scientifically - it's so much more! I can also do deep pressure therapy for her chronic pain, most often my girl's hips. My body heat acts like a hot water bottle to soothe her joints.

When my girl has one of her migraines, I can respond by doing forward momentum pulling, where I act like a dog-sized tugboat by pulling into my harness. Many people think of migraines as "just a headache," but migraines are actually a neurological problem. My girl's migraines "scramble" her brain and make it short-circuit on her, even if she has taken medication to get rid of the pain. Navigation can be a little tricky with a brain that's not cooperating, especially in a crowded area. Add in light sensitivity due to the migraine and navigation can be just downright difficult. But that's where I can help! Because my forward momentum pulling as a guiding aspect to it, I make sure that my girl gets safely where she needs to go. She can just close her eyes against the light if need be, and I'll weave around people and other moving obstacles as needed. The pulling aspect of this task also helps with my girl's balance, which is often thrown off by her brain's migraine "scrambling." I know how to find a few locations, lead her to a handful of important people in her life, and follow an indicated person. Sometimes words are tricky when my girl has a migraine and she'll trip over her words while trying to tell me where to go or what to do, but luckily I know her well enough after four years of being her pup that I can interpret her vague gesturing pretty accurately.

Of course, I can also perform forward momentum pulling when my girl's fatigue is flaring, even if I often do it to save her energy. When I pull her along, she doesn't use quite as much energy while walking and therefore doesn't get tired as quickly as she would walking on her own. Of course, the energy saved isn't vast, but every little erg of energy is necessary when you start your day short on spoons. When I do forward momentum pulling for my girl when she's experiencing fatigue, it can make a huge difference in whether or not she can accomplish a task.

Moving to a home with more space has meant that I've been able to expand my tasks in migraine response. Over the course of the past year, I've learned how to open doors using a special tug, as well as closing them with my nose. I have slowly begun learning how to turn light switches on and off all by myself. Being able to close doors and turn off the lights is helpful for my girl's migraines because she can get very light and sound sensitive. However, the pounding in her head gets worse with any small movement, so if I can save her getting out of bed, I prevent her from having to endure that pain. Similarly, I can do both of these tasks when my girl is having a high pain or fatigue day and appreciates whenever I can save her from doing even small actions, like when I help her undress at night.

Opening and closing doors has led to another task that I'm currently working on: retrieving a bottle of ginger ale from a specific spot in the fridge. In order to complete this task, I need to know how to open the fridge with a tug, grab the drink in its special holder (since its glass and therefore slippery), deliver the bottle to my girl in another room, and then return to close the fridge. Assuming I'm in my girl's bedroom with her, I would also have to open and close her bedroom door as well. That's a lot for a pup to remember to do! It's taking a lot of practice (and many treats!), but I'm starting to learn what I need to do. Once I've perfected this task, I'll be able to respond to my girl's bouts of bad nausea by bringing her a bottle of ginger ale.

You may have noticed that there's a lot of overlap between my psychiatric tasks, my mobility tasks, and my medical alert/response tasks. One symptom can be helped by many tasks, and one task can simultaneously help many symptoms. My girl's health issues are often interconnected and have similar symptoms, so it makes sense that my tasks can overlap to help multiple aspects of her health. I have a lot of aspects of my job, it's true, but I'm a pup that needs a job and needs to be mentally stimulated -- my foster mom knew this when she was trying to find me a fur-ever home, and so far, thanks to my girl's ever-fluctuating symptoms, there's been no shortage of work for me to do in this fur-ever home. And as a bonus, I get paid with fetch, and that's a pretty good trade-off in my opinion!

* Some people classify Medical Alert Dogs as only those dogs who alert their handlers before a medical event occurs, but we're including dogs who alert both before an episode and during episode (e.g. since dogs who assist diabetics are usually called Diabetic Alert Dogs, even though most of the time, they're alerting to a handler's already high or low blood sugar level - although some also alert to rapidly rising or rapidly lowering blood sugar levels).

If you missed Part 1 of this series about how I help my girl as a Psychiatric Service Dog, click here. And if you missed Part 2 of this series about how I help my girl as a Mobility Service Dog, click here.

#medical alert dog #medical response dog #service dog tasks

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eeee-lye · 7 years ago

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galileoace replied to your post:

I am so damn sick of Mum using her memory problems...

She sounds narcissistic, I wonder if hey memory problems are unconciously selective. Wherein memories that contradict her false self image are simply ‘forgotten’.

She has difficulty with memory in aspects that have nothing to do with remaking reality, and dementia is in her side of the family--it is legitimately something she experiences and is scared of, fairly so. I have no doubt that she doesn’t remember every time she claims she doesn’t. I’ve seen too much forgetfulness over the last few years to believe otherwise. She hasn’t done anything about it as far as I know (I don’t mean treatment, but seeking a diagnosis to give herself and her family context) but it’s real.

I want to be cautious about using the word “narcissistic” because folks with NPD often get treated quite horribly as a result, even though there’s a difference between someone being narcissistic and someone having NPD (not to mention that a lot of discussions about narcissism tend to be shockingly ableist about NPD in specific and personality disorders in general). I think it’s easier just to judge her based on her actions alone: they’re abusive.

But does she have a remarkable ability to forget things that don’t serve her? Oh, yes. I mean, on Tuesday she closed the back door when the air con was on, and when I told her that she needs to not close the door (it’s evaporative air con and if the door’s closed, there’s a seal that makes opening/closing any other door in the house impossible, aside from risk of mould) she told me that of course she didn’t do it, even though she was the only person who went outside after the air con was turned on. She didn’t even apologise after I said this. The first words out of her mouth are always the ways in which she is innocent or that she remembered to do something another time so the time she forgot just doesn’t matter. Unless it’s very minor, or something happened in which no way could it be her fault (in which she’ll give you a massive lecture on her innocence and how dare anyone think she be anything but) it either didn’t happen or wasn’t her, no matter the evidence otherwise. It means there is no way in which I can ever have a conversation about her failings, and Dad backs her up.

(Like today Dad told me I also remembered the conversation wrong, and didn’t hear Mum say that my aunt’s tablet only had a front-facing camera, even though Dad wasn’t in the room for the whole conversation.)

And so many of the things she forgets have a not-coincidental relationship with comments and actions that have hurt me. Like she doesn’t remember Dad pinning me against the wall even though being shoved made me knock a statue over, which broke. The statue is still in our lounge room, glued together, but in Mum’s world, Dad didn’t get so mad he physically assaulted me. (Who knows how the statue got broken to her?) Or it doesn’t matter she forgot to close her bedroom door when donning perfume today because she remembered the other day, even though her perfume is a migraine trigger and my health is dependent on her doing so. (I really feel loved when my parent chooses smelling nice over my health. Yet Mum has stopped using a cleaning spray that was making Dad feel sick, but not wearing her perfume.) Mum didn’t pressure me into doing my deb, Dad never ranted at me because the sleeve of my long-sleeved T-shirt came down past the sleeve of my jumper, so on and so forth. I can never talk about how much these people have hurt me because it just didn’t happen, and while I don’t believe that to be deliberate, it’s so hard.

(They actually are better than before I moved out the first time. I will give them that, and I do appreciate their providing of a roof and food and internet, giving me a space to be while my pain stops me from doing so much. I just wish their generosity didn’t have to come with so much awful attached.)

But as someone who has spent a lifetime desperately apologising to people and reassuring them that it’s me for a variety of reasons related to being mentally ill, autistic and in chronic pain, I find it unbearably offensive to see her constantly push the “I don’t remember so you’re wrong” line--it hurts me in ways beyond the mere gaslighting. I never get to stop apologising for my disabilities, never, so it’s a slap to the face on a whole other level to see her use hers this way.

Although I will say that Mum isn’t alone in being spectacularly awful about being disabled: Dad has hearing loss, enough that it is impacting his day to day life, and instead of going to the doctor and investigating a hearing aid so that he might hear better, he rages at everyone else for not speaking clearly enough. You can imagine that my autistic self catches the worst of this, since I struggle to speak clearly, especially when tired or stressed.

I wish I had the magical ability to not react, but I don’t. Sometimes I do, no matter how much I try, and it makes everything so much worse. All the psychologists who talked to me about just not reacting never quite understood that I don’t have an allistic’s control over my tearducts and hands and words, that sometimes I’m reacting before I have a choice in the matter, and however I react to anything, it’s always in ways that make everyone else angrier still at me, because Dad is allowed to rage about my not speaking clearly enough, but I can’t flap my hands and run from the room when I’m angry.

And it started pouring rain here, so I couldn’t go out anywhere after all, and I’m stuck in my room with nothing to eat. Fuck my life today, honestly.

#galileoace #reply #personal #please don't reblog this post #abuse #family abuse #emotional abuse #invalidation #gaslighting #physical abuse mention #family #family things #frustrated #autism things #autism #long post #disability #disability things #ableism

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l-a-r-r-yspellslove · 5 years ago

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The 5,000 Question Survey - Part One

1. Who are you? Hi, I’m Ronda. 2. What are the 3 most important things everyone should know about you? one - I try to be as non-judgmental as possible. two - I say fuck a lot. three - I like to make stuff and bake stuff and write stuff and draw stuff. 3. When you aren't filling out 5,000 question surveys like this one what are you doing? Reading, watching tv, writing, making stuff, working on puzzles, babysitting my niece. 4. List your classes in school from the ones you like the most to the ones you like the least (or if you are out of school, think of the classes you did like and didn't like at the time). art, french, theater, math, uhhhh history, science. From high school, like 10 years ago :/

5. What is your biggest goal for this year? uhhhh to be more financially responsible. I’ll have less money once my niece starts kindergarten in the fall and that means I need to spend less and figure out other ways to make money. 6. Where do you want to be in 5 years? Fuck, I don’t know. The future gives me anxiety. Like, major anxiety. 7. What stage of life are you in right now? The I’m completely fucked up and don’t know where this is going stage. 8. Are you more child-like or childish? Child-like. 9. What is the last thing you said out loud? “She said they were having a weiner roast.” 10. What song comes closest to how you feel about your life right now? Girl - Maren Morris or Don’t Let It Break Your Heart - Louis Tomlinson 11. Have you ever taken martial arts classes? nope. 12. Does your life tend to get better or worse or does it just stay the same? mostly the same. Pain days are worse. Energetic days are better. 13. Does time really heal all wounds? As a spoonie, I say no. 14. How do you handle a rainy day? Well, rain tends to trigger a migraine, so I spend it in bed or wishing I was in bed. 15. Which is worse...losing your luggage or having to sort out tangled holiday lights? Losing your luggage. 16. How is your relationship with your parents? I have a good relationship with my mom, I think. We get along and all. My dad, on the other hand, I don’t talk to much. I feel like as I’ve gotten older, I’ve realized more how things that happened when I was a kid affected me. And he used to yell a lot and I’d hide in my room and cry. So. Yeah. Will you miss them when they are gone? I’m sure. 17. Do you tend to be aware of what is going on around you? Sometimes 18. What is the truest thing that you know? Life isn’t fair. 19. What did you want to be when you grew up? uhhh, when I was really little I remember wanting to be a teacher. Later, I wanted to be a translator. I remember at one bible camp I thought I could learn obscure languages and translate the bible for them. When I was in college, I started to realize I wanted to be a writer I think, but I majored in Marketing because it seemed like a safer option and I was too far into a business degree before I realized I hated business. And yeah, so I minored in English Lit. And that degree hasn’t ended up doing me any good because I ended up applying for disability not too long after graduating college. 20. Have you ever been given a second chance? I can’t think of a specific instance, but I’m sure I’ve been given many. 21. Are you more of a giver or a taker? Giver. 22. Do you make your decisions with an open heart/mind? Try to. 23. What is the most physically painful thing that has ever happened to you? a Chiari headache. 24. What is the most emotionally painful thing that has ever happened to you? when my grandpa died. 25. Who have you hugged today? no one. It’s Saturday and I’ve been home alone most of the day. 26. Who has done something today to show they care about you? I can’t think of anything today. My mom did some of my laundry yesterday, so I guess I’d count that. And H is always doing sweet little stuff. 27. Do you have a lot to learn? Always 28. If you could learn how to do three things just by wishing and not by working what would they be? Coding - I mean, I know little things, but if I could be like a computer whiz, it’d be great. Mastering photoshop - Same as above, basically. and uhhhhmmmm, maybe like knowing every language or at least every major language fluently?

29. Which do you remember the longest: what other people say, what other people do or how other people make you feel? How they make me feel. 30. What are the key ingredients to having a good relationship? Communication, trust, consideration. 31. What 3 things do you want to do before you die? A - have a meaningful romantic relationship B - impact someone’s life in a significantly positive way C - travel around Europe 32. What three things would you want to die to avoid doing? A - running a marathon B - living completely alone in the world C - reading After and its series 33. Is there a cause you believe in more than any other cause? equal rights 34. What does each decade make you think of: The 19.. 20's: flapper dresses 30's: idk like the depression? 40's:the war? WWII? 50's: poodle skirts and Grease 60's: idk, ummmm, yeah, i got nothin’ 70's: totally blanking 80's: lots of colorful clothing and big hair? was that this decade? 90's: childhood, Friends, friends, elementary school 2000′s: junior high, high school, graduating high school

10′s: college, the decade that America voted orange scum into the presidency

20′s: hopefully the decade that America votes better

35. Which decade do you feel the most special connection to and why? I feel like this is such a 90s kid answer, but I guess the 90s because it was before everything started drastically changing so much. Like, technology and stuff. 36. What is your favorite oldie/classic rock song? Old Time Rock and Roll the kinda music just soothes the soul. I reminisce about the days of old. With that old time Rock and Roll. 37. What country do you live in and who is the leader of that country? USA, orange scum. If you could say any sentence to the current leader of your country what would it be? Eat dirt and die trash. 38. What's your favorite TV channel to watch in the middle of the night? TVLand it used to be before the age of netflix and streaming and such 39. What Disney villain are you the most like and why? is the Cheshire Cat a villain? Because I want to answer him, because he has no direction and is terrible at giving directions haha 40. Have you ever been a girl scout/boy scout? I was a girl scout from kindergarten through 7th grade. 41. If you were traveling to another continent would you rather fly or take a boat? Fly 42. Why is the sky blue during the day and black at night? I dunno. Something to do with the sun. 43. What does your name mean? Grand 44. Would you rather explore the deeps of the ocean or outer space? Outer space. 45. Word association What is the first word that comes to mind when you see the word: Air: water Meat: balls Different: same Pink: fluff Deserve: reward White:clouds Elvis: hair Magic: sparks Heart: filled Clash: titans Pulp: fiction 46. If you could meet any person in the world who is dead who would you want it to be? Walt Disney 47. What if you could meet anyone who is alive? Harry Styles 48. Is there a movie that you love so much you could watch it everyday? Frozen and Frozen 2 and all of the Toy Story’s 49. You are going to be stuck alone in an elevator for a week. What do you bring to do? enough food for the week I assume is included. Laptop, ipad, a few books, chargers for laptop and ipad, a sudoku book, yarn and crochet stuff 50. Have you ever saved someone's life or had your life saved? I don’t think so.

51. Make up a definition for the following silly words... Fruitgoogle: verb. To search the web without aim. Ambytime: noun. The time at which to amble around. Asscactus: noun. A prick who knows and doesn’t care that he’s a total prick. 52. What was the last thing you made with your own hands? Crochet dress for my niece. 53. What was your favorite toy as a child? I remember this big semi truck that I loved a lot. 54. How many TV’s are in your house? Four 55. What is your favorite thing to do outside? I don’t like going outside, tbh. I guess I’d say swimming, though. And I don’t really like to do that much, sooo 56. How do you feel when you see a rainbow? Happy 57. Have you ever dreamt a dream that came true? Oh yeah. 58. Have you ever been to a psychic/tarot reader? Nope. 59. What is your idea of paradise? An endless library filled with every book, tv show, movie, musical, play in existence with and super comfy chair and an endless supply of whatever food I could think of wanting. 60. Do you believe in god and if so what is he/she/it like? God is love. 61. Do you believe in Hell? Everyone carries a little piece of hell around inside of them. 62. What one thing have you done that most people haven't? uhhh crocheted an entire blanket? 63. What is the kindest thing you have ever done? I have no idea. 64. Are you a patient person? Some days. 65. What holiday should exist but doesn't? Reading day. 66. What holiday shouldn't exist but does? Columbus Day 67. What's the best joke you ever heard? fuck, i don’tknow 68. Where is the most fun place you have EVER been? Disney World, duh. 69. Is your hair natural or dyed? dyed but my roots are showing terribly because my hair grows so fucking fast. 70. Do you have any deep dark secrets or are you pretty much up front? I’m fairly upfront, but not many people know I write fanfic, especially don’t know that I write smutty fanfic haha. 71. What is under your bed right now? A lot of storage stuff and my suitcase that is also storing blankets i believe 72. If you were in the Land of Oz would you want to live there or go home? I don’t think they had WiFi, so I’m gonna say go home. 73. If you drive do you frequently speed? Just a little 74. What is the world's best song to dance to? Best Song Ever hahahahahahaha 75. What song was on the last time you danced with someone? I cannot remember the last time I danced with anyone or by myself. I don’t really dance much. Maybe high school prom lol or maybe ZTA formal 76. Do you prefer Disney or Warner Brothers? Disney 77. What is the first animal you would run to see if you went to the zoo? penguins 78. Would you consider yourself to be romantic? yes 79. If the earth stopped rotating would we all fly off? i don’t think so? 80. What is the one thing that you love to do so much that you would make sacrifices to be able to do it? write 81. If you (and everyone) had to lose one right or freedom, but you could pick which one everyone had to lose, what would you pick? the right to own/use a gun for anything other than hunting wild animals. and only the animals that you’re supposed to be allowed to hunt like deer and stuff. 82. If you had to choose would you live on the equator or at the North Pole? There isn’t even a place to live on the North Pole, is there? What kind of question is this? I will answer the South Pole because that’s where people do live (scientists but still) and there are penguins.

83. Would you rather give up listening to music or watching television? oh god. Don’t make me choose. 84. What do you think makes someone a hero? I think hero is more of a verb than a noun. And putting others’ needs ahead of your own. 85. What cartoon would you like to be a character in? Frozen. 86. Name one thing that turns your stomach: like, seed pods or whatever they’re called that have all the uneven little holes and stuff? I don’t even know what they’re called exactly but the give me the fucking heebiejeebies 87. What was the last thing you paid for? Yarn 88. Are you a coupon clipper? Sometimes 89. Get anything good in the mail recently? I finally got Louis’s CD that was included in my concert ticket purchase today. 90. Which would you rather take as a gym class...dancing, sailing, karate, or bowling? bowling 91. In Star Trek people 'beam' back and forth between different places. What this means is they stand in a little tube and their molecules are deconstructed and sent to another tube somewhere else where they are reassembled. Only problem is when the molecules are deconstructed the person is dead. When they are put back together it is only a clone that has all the dead person's memories. So... Is the person who gets beamed the same person on both ends? Technically, it’s a clone, but clone’s are the same person basically? So no? But soft of? 92. What insects are you afraid of? Bees, wasps, anything that has a stinger. 93. If you could print any phrase on a T-shirt, what would it say? Dude, this is 2020, you can totally print any phrase you want on a t-shirt. I’m currently contemplating a Golden Girls shirt, though. Either ‘Picture It Sicily 1922′ or ‘Eat dirt and die trash’ 94. What's the most eccentric thing you have ever worn? I wore a rainbow tutu to pride? Does that count? And my hair is currently blue, so I feel like probably that. 95. If you could pick one food that you could eat all you wanted but it would have no effect on how much you weigh, what food would it be? OREOS 96. What are your parents interested in? uhh, my dad watches a lot of tv and my mom likes to craft and hoard crafting supplies basically. 97. Have you ever caught an insect and kept it as a pet? I had a caterpillar that I kept and was disappointed when it turned into a moth. Have you ever caught and tamed a wild animal? No. 98. What is more helpful to you, wishes or plans? Wishes 99. When do you feel your life energy the strongest? when i’m writing 100. You are spending the night alone in the woods and may bring only 3 items with you. What do you bring?

phone (with flashlight and a full battery), sleeping bag, and water

#the 5000 question survey #personal #me #whatever i was bored and i've had this thing bookmakred to do forever

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missvoltairine-blog · 8 years ago

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Like listen: I get that it can be hard to see someone blogging about stuff that makes them angry, or reacting to mistreatment in public. That’s why no one is forced at gunpoint to read my blog! I have talked a LOT on this blog about having a hard time with certain things, struggling with a deep sense of injustice in general, and like, post-traumatic anger. I think pretty much all of my mutuals and most of my long-time followers get where I’m coming from with this stuff. It’s fine if you don’t, but don’t, like, try to minimize the impact of having a group of people spread the rumor that I abused my abusers, or am a sexual predator for identifying some of what happened to me as sexual assault, and don’t do this “you’re just as bad as them” thing.

My problem with most of these people isn’t just “they said mean stuff about me”. People say mean stuff about me on tumblr all the time; if I got mad about every person who made a mean or presumptuous comment about me, that would be ridiculous. This isn’t a case of people just gossiping and being catty about each other. My problem is that these people have said mean things, gossiped, and been catty IN ADDITION TO exhibiting an ongoing pattern of behavior that I feel is fundamentally exploitative and manipulative and creating an environment that is deeply unhealthy, mired in dishonesty, and actively enabling of Bad Stuff. That’s why I’ve spent so much time talking about what specific red flags look like, how to spot them, your (general “you”) right to emotional, physical, and sexual boundaries, etc.

I feel like the best thing that could come out of this is maybe I can use it as a kind of case study for explaining how manipulation and certain kinds of bullying, harassment, and abuse work. I think one (maybe the only) really good thing that came out of the whole autismserenity and repstar3 debacle recently was that a lot of people started talking about recognizing red flags in someone who is a danger to children, and how abusers justify and downplay their behavior! More than anything I want people observing this happening to understand that it’s not okay, and to understand WHY it’s not okay, and to get a better sense of what to look for and how to pick up on manipulation and abuse. A tag I’ve been trying to implement consistently for stuff like that is “the mutual bullshit society”. When I lay out stuff like exactly how Carmen’s behavior towards tvtropesofficial was manipulative, it’s partially for this reason - I want people to know that someone doing that shit IS behaving manipulatively, so they can recognize it if it happens to them.

The other reason I feel compelled to lay this stuff out precisely is because, like... look: I lived with people who actively gaslit me. I don’t mean they disagreed with me, or even that they disagreed with me in an abusive way (although they did both of those things); I mean they systemically and deliberately set out to undermine my ability to trust my own perceptions of things. They would damage my stuff and then hide the evidence and tell me that I had damaged or lost the stuff when I couldn’t find it, and I’d feel crazy, and maybe weeks or months later find the stuff where they’d hid it in a crawl space or whatever. They would tell me that specific incidents that I remembered with absolute clarity never happened and that I wouldn’t be able to remember anyway because I was “blackout drunk”; I literally drank alcohol twice the entire time I lived with them, and got drunk once out of those times, and they were not even there when that happened. (They also used this lie about my drinking to dismiss the migraines I was getting with increasing frequency as a result of the psychological and physical stress of living with them and like, constantly doubting myself.) They made up stories about things I supposedly had said and done that I had no memory of because it had never happened and then punished me with verbal and sometimes physical violence until I agreed that those things must have happened. After I left they told our mutual friends I was a liar and that they couldn’t believe a word I said and that I would say they were abusive and that if I did it was proof that I was crazy and they weren’t abusive at all - so by the rules of their own game, me calling this (and other things they did) abusive was... proof that it never happened.

When you go through something like that, it’s really easy for shit like this to make you feel destabilized and upset! So the other part of why I feel the need to lay this out is, honestly, for reassurance. Writing out my specific, concrete problems with these peoples’ behaviors helps me solidify and trust in my perceptions of these situations. I don’t feel as crazy when it’s down in black and white.

Like I said, it’s fine if you don’t get this or can’t relate to it. It’s my own shit, and reading my blog is absolutely a zero-obligation experience. It is frustrating to me to have this spun as like, “well, aren’t you just doing exactly what they’re doing” by someone who clearly doesn’t respect the idea that I might have disabled anonymous question asking for a reason relating to my own abuse.

Anyway, this got long, and I want to get something done this evening after spending most of my day sick in bed, so, later.

#abuse tw #the mutual bullshit society

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suzanneshannon · 5 years ago

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What the web still is

Being a pessimist is an easy thing to fall back on, and I’m trying to be better about it. As we close the year out, I thought it would be a good exercise to take stock of the state of the web and count our blessings.

Versatile

We don't use the internet to do just one thing. With more than two decades of globally interconnected computers, the web allows us to use it for all manner of activity.

This includes platforms, processes, and products that existed before the web came into being, and also previously unimagined concepts and behaviors. Thanks to the web, we can all order takeout the same way we can all watch two women repair a space station in realtime.

Decentralized

There is still no one single arbiter you need to petition to sign off on the validity of your idea, or one accepted path for going about to make it happen. Any website can link out to, or be linked to, without having to pay a tax or file pre-approval paperwork.

While we have seen a consolidation of the services needed to run more sophisticated web apps, you can still put your ideas out for the entire world to see with nothing more than a static HTML page. This fact was, and still is, historically unprecedented.

Resilient

The internet has been called the most hostile environment to develop for. Someone who works on the web has to consider multiple browsers, the operating systems they are installed on, and all the popular release versions of both. They also need to consider screen size and quality, variable network conditions, different form factors and input modes, third party scripts, etc. This is to say nothing about serving an unknown amount of unknown users, each with their own thoughts, feelings, goals, abilities, motivations, proficiencies, and device modifications.

If you do it right, you can build a website or a web app so that it can survive a lot of damage before it is rendered completely inoperable. Frankly, the fact that the web works at all is nothing short of miraculous.

The failsafes, guardrails, redundancies, and other considerations built into the platform from the packet level on up allow this to happen. Honoring them honors the thought, care, and planning that went into the web's foundational principles.

Responsive

Most websites now make use of media queries to ensure their content reads and works well across a staggeringly large amount of devices. This efficient technology choice is fault-tolerant, has a low barrier of entry, and neatly side-steps the myriad problems you get with approaches such as device-sniffing and/or conditionally serving massive piles of JavaScript.

Responsive Design was, and still is revolutionary. It was the right answer, at the right place and time. It elegantly handled the compounding problem of viewport fragmentation as the web transformed from something new and novel into something that is woven into our everyday lives.

Adaptable

In addition to being responsive, the web works across a huge range of form factors, device capabilities, and specialized browsing modes. The post you are currently reading can show up on a laptop, a phone, a Kindle, a TV, a gas station pump, a video game console, a refrigerator, a car, a billboard, an oscilloscope—heck, even a space shuttle (if you’re reading this from space, please, please, please let me know).

It will work with a reading mode that helps a person focus, dark and high contrast modes that will help a person see, and any number of specialized browser extensions that help people get what they need. I have a friend who inverts her entire display to help prevent triggering migraines, and the web just rolls with it. How great is that?

Web content can be read, translated, spoken aloud, copied, clipped, piped into your terminal, forked, remixed, scraped by a robot, output as Braille, and even played as music. You can increase the size of its text, change its font and color, and block parts you don't want to deal with—all in the service of making it easier for you to consume. That is revolutionary when compared to the media that came before it.

Furthermore, thanks to things like Progressive Web Apps and Web Platform Features, the web now blends seamlessly into desktops and home screens. These features allow web content to behave like traditional apps and are treated as first-class citizens by the operating systems that support them. You don’t even necessarily need to be online for them to work!

Accessible

The current landscape of accessibility compliance is a depressing state of affairs. WebAIM’s Million report, and subsequent update, highlights this with a sobering level of detail.

Out of the top one million websites sampled, ~98% of home pages had programmatically detectable Web Content Accessibility Guideline (WCAG) errors. This represents a complete, categorical failure of our industry on every conceivable level, from developers and designers, to framework maintainers, all the way up to those who help steer the future of the platform.

And yet.

In that last stubborn two percent lives a promise of the web. Web accessibility—the ability for someone to use a website or web app regardless of their ability or circumstance—grants autonomy. It represents a rare space where a disabled individual may operate free from the immense amount of bias, misunderstanding, and outright hate that is pervasive throughout much of society. This autonomy represents not only freedom for social activities but also employment opportunities for a population that is routinely discriminated against.

There is a ton of work to do, and we do not have the luxury of defeatism. I’m actually optimistic about digital accessibility’s future. Things like Inclusive Design have shifted the conversation away from remediation into a more holistic, proactive approach to product design.

Accessibility, long viewed as an unglamorous topic, has started to appear as a mainstream, top-level theme in conference and workshop circuits, as well as popular industry blogs. Sophisticated automated accessibility checkers can help prevent you from shipping inaccessible code. Design systems are helping to normalize the practice at scale. And most importantly, accessibility practitioners are speaking openly about ableism.

Inexpensive

While the average size of a website continues to rise, the fact remains that you can achieve an incredible amount of functionality with a small amount of code. That’s an important thing to keep in mind.

It has never been more affordable to use the web. In the United States, you can buy an internet-ready smartphone for ~$40. Emerging markets are adopting feature phones such as the JioPhone (~$15 USD) at an incredible rate. This means that access to the world’s information is available to more people—people who traditionally may have never been able to have such a privilege.

Think about it: owning a desktop computer represented having enough steady income to be able to support permanent housing, as well as consistent power and phone service. This created an implicit barrier to entry during the web’s infancy.

The weakening of this barrier opens up unimaginable amounts of opportunity, and is an excellent reminder that the web really is for everyone. With that in mind, it remains vital to keep our payload sizes down. What might be a reflexive CMD + R for you might be an entire week’s worth of data for someone else.

Diverse

There are more browsers available than I have fingers and toes to count on. This is a good thing. Like any other category of software, each browser is an app that does the same general thing in the same general way, but with specific design decisions made to prioritize different needs and goals.

My favorite browser, Firefox, puts a lot of its attention towards maintaining the privacy and security of its users. Brave is similar in that regard. Both Edge and Safari are bundled with their respective operating systems, and have interfaces geared towards helping the widest range of users browse web content. Browsers like Opera and Vivaldi are geared towards tinkerers, people who like a highly customized browsing experience. Samsung Internet is an alternative browser for Android devices that can integrate with their proprietary hardware. KaiOS and UC browsers provide access to millions of feature phones, helping them to have smartphone-esque functionality. Chrome helps you receive more personalized ads efficiently debug JavaScript.

Browser engine diversity is important as well, although the ecosystem has been getting disturbingly small as of late. The healthy competition multiple engines generates translates directly to the experience becoming better for the most important people in the room: Those who rely on the web to live their everyday lives.

Speaking of people, let’s discuss the web’s quality of diversity and how it applies to them: Our industry, like many others, has historically been plagued by ills such as misogyny, racism, homophobia, transphobia, and classism. However, the fact remains that the ability to solve problems in the digital space represents a rare form of leverage that allows minoritized groups to have upward economic mobility.

If you can't be motivated by human decency, it’s no secret that more diverse teams perform better. We’ve made good strides in the past few years towards better representation, but there’s still a lot of work to be done.

Listen to, and signal boost the triumphs, frustrations, and fears of the underrepresented in our industry. Internalize their observations and challenge your preconceived notions and biases. Advocate for their right to be in this space. Educate yourself on our industry’s history. Support things like codes of conduct, which do the hard work of modeling and codifying expectations for behavior. All of this helps to push against a toxic status quo and makes the industry better for everyone.

Standardized

The web is built by consensus, enabling a radical kind of functionality. This interoperability—the ability for different computer systems to be able to exchange information—is built from a set of standards we have all collectively agreed on.

Chances are good that a web document written two decades ago will still work with the latest version of any major browser. Any web document written by someone else—even someone on the opposite side of the globe—will also work. It will also continue to work on browsers and devices that have yet to be invented. I challenge you to name another file format that supports this level of functionality that has an equivalent lifespan.

This futureproofing by way of standardization also allows for a solid foundation of support for whatever comes next. Remember the principle of versatile: It is important to remember that these standards are also not prescriptive. We’re free to take these building blocks use arrange them in a near-infinite number of ways.

Open

Furthermore, this consensus is transparent. While the process may seem slow sometimes, it is worth highlighting the fact that the process is highly transparent. Anyone who is invested may follow, and contribute to web standards, warts and all.

It’s this openness that helps to prevent things like hidden agendas, privatization, lock-in, and disproportionate influence from consolidating power. Open-source software and protocols and, most importantly, large-scale cooperation also sustain the web platform’s long-term growth and health. Think of web technologies that didn’t make it: Flash, Silverlight, ActiveX, etc. All closed, for-profit, brittle, and private.

It also helps to disincentive more abstract threats, things like adversarial interoperability and failure to disclose vulnerabilities. These kinds of hazards are a good thing to remember any time you find yourself frustrated with the platform.

Make no mistake: I feel a lot of what makes the web great is actively being dismantled, either inadvertently or deliberately. But as I mentioned earlier, cynicism is easy. My wish for next year? That all the qualities mentioned here are still present. My New Year’s resolution? To help ensure it.

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What the web still is published first on https://deskbysnafu.tumblr.com/

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6gpymfzi-blog · 5 years ago

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jasonattaman · 6 years ago

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New Post has been published on Dr. Attaman | Pain Management Physician | (425) 247-3359

New Post has been published on https://jasonattaman.com/testimonials-2/

Testimonials

DISCLAIMER: Results will vary from patient to patient. These patients’ testimonials (marked with *) should not be interpreted as a statement on the effectiveness of our treatments for anyone else. We make no claim that our treatments are appropriate for you at all, or that they would be effective. Please do not use the information on this site to make a decision other than whether to contact us for a consultation.

*I am a physician anesthesiologist who has suffered from chronic pain for several years. I have seen many doctors who have not been able to put a complete picture together of my various pain issues. I feel so fortunate that my internist sent me to see Dr. Attaman. He is so thorough in taking a complete medical history, doing a thorough physical exam, and ordering appropriate diagnostic tests to aid him in evaluating a patient’s problems. His bedside manner is excellent. He is compassionate and takes time to explain everything. He asks the patient if he/she understands. He is excellent at injections. I have gotten so much relief already. Unfortunately, many physicians today seem to have lost the art of the practice of medicine. The true meaning of the Hippocratic Oath seems to be disappearing. That is why Dr. Attaman is such a gem and a find for any patient with chronic pain issues. He is kind as well as clinically excellent. I would say he is the best physician I have ever had take care of me.* -Doctor N.B.

*I’m a physician and wanted to write a review as a patient of Dr. Attaman’s this past year. I had been having lower back and sacral pain for about 10 years but due to a busy schedule had never gotten it checked out. I knew it wasn’t life threatening and that I didn’t need surgery. But just wanted to finally address the pain in as noninvasive means as possible. I was trained in the MD track (as opposed to Dr. Attaman’s DO track) and know the limitations of training in my field. We are not taught osteopathic manipulation, and I think the DO training in the musculoskeletal system is in general, stronger. I did see an orthopedic doctor who told me I didn’t need surgery, but could not offer much in the way of diagnosis or treatment. So I specifically sought out Dr. Attaman’s expertise because of his DO background and further training in anesthesiology and pain management. I wanted someone who was capable of doing osteopathic manipulation, but also aware of the care needed in doing a safe manipulation. I brought my medical records and recent films, and he diagnosed and treated me the same day. I have never had an osteopathic manipulation, but about 75% of my pain was addressed with that first treatment. I like that his treatment options are varied, from physical therapy and massage, up to to injections. I was finally able to go to physical therapy because he was able to diagnose my issue. I can’t promise that everyone will have the same results as I did, but I was very pleased with my overall experience with Dr. Attaman. He took the time to make an accurate diagnosis, used precautions by reviewing films, explained to me what he thought the issue was, offered effective and diverse treatment options, and was very professional. His office is very pleasant and staff are also very friendly and extremely helpful. I have since moved from Seattle but wanted to post this because my experience was so positive. Best of luck to Dr. Attaman, his staff, and all his patients.* -Doctor R.D.

*It was a Pain Management Doctor who transitioned me to the right people and for the right diagnosis … not the Neurologist, not the Spine Rehabilitation Specialist, not my PCP. However, when I was referred to a Pain doc I assumed everyone had just given up on me and thought I should just be medicated, so I went out of my way to find one who just said no to drugs. Dr. Attaman in Seattle WA fit that bill, and regardless of where things stand with me today – I will forever be grateful to him.* -Anonymous

*Dr. Attaman is the first one who identified my issue and got me on track for treatment.* -Anonymous

*Dr Attaman was the 6th doctor that I saw, over a period of 3 years, for a chronic pain problem and the first to give me a correct dagnosis and to give me some pain relief. He takes the time to understand the problem and does not use a PA as a filter.* -R.K.

*Dr. Attaman was the best doctor I’ve had (and I have had a great amount) He was very attentve to my needs, and truly listened to me. He looked at different possible solutions and made me part of the decision process giving me a choice. When It was time to have a procedure done he was able to calm me down and reassure me (which is hard to do) He did what was best for me in that situation. I am very satisified with him as a doctor, and a person who is compassionate and truly cares about his patients. If there is anything else I need, or call for another doctor in his field, I will only see him.* -T.G.

*Dr. Attaman is such a blessing. He takes the time to review the history of what the problem is, prior treatments, and is very thorough and precise in identifying the “pain generators”. He then takes the time to map out a specific plan to help and answers all questions. He also does every procedure himself. Even if he is teaching someone else, he does the procedure himself. He is very respectful and mindful of my dignity and treats me as a partner in my healthcare and talks to me not at me. My pain has markedly improved with his help. I have referred several of my coworkers to him. His office does have a policy of not “inviting” patients back who miss an appointment without proper notification. I think this is because he is very much sought after and if you’re scheduled for an appointment and don’t show then you’ve taken up space from someone else who could use his help. However, they email and/or call to remind you of the appointment so really, be respectful and responsible and either cancel or show up. I recommend him whole-heartedly! Wonderful doctor to have on your side! -C.W.

*I have suffered from chronic neck and shoulder pain for over 10 years. Tried all sort of doctors, chiropractors, acupuncture, everything you can imagine. One day, my primary care physician recommended Dr. Attaman; so, I decided to give it a shot. It has been amazing the change since I started seeing Dr. Attaman. After explaining all my symptoms, all different type of treatments and medicines I tried in the past, he suggested that could be related to a not very common condition involving nerve constriction by my muscles, he ordered several MRIs and X-rays to verify the condition. I was impressed by the level of detail he went through to make sure this was the root of my problems. I am in the middle of my treatment and so far it’s been night and day. I cannot think of anybody else more qualified and knowledgeable than Dr. Attaman to treat these type of issues.* -A.G.

*He’s just fantastic. Straight to the point, good bedside manner, compassionate, intelligent, explains things well and a real go-getter! I’ve recommended him to friends, coworkers & acquaintances dozens of times.* -Anonymous

*Has changed my life. I have been out of a wheelchair for 7 months and love every minute of it.* -S.H.

*I visited Dr Attaman because a friend had seen a physiatrist for similar neck/back problems. He offered a more useful diagnosis than the doctors I had previously seen for my condition (persistent migraines). And the solutions he advised, physical therapy and a nerve rhizotomy, have done far more to help my pain issues than the many drugs I’ve been prescribed in the past.* -Anonymous

*Dr. Attaman is one of the most amazing Dr’s I have encountered in years. He is very attentive to my pain and was very attentive in offering solutions he thought he may be able to provide. He did not b.s. me in any manner, talk down to me and/or make me feel unwelcome into his practice. He is truly a godsend and although we have not finished treatments he has already made me feel 50% better (3/6 procedures so far). I trust him and will continue down which ever path he feels is neccessary to help me regain my life. Truly amazing man and I am very grateful to have found him.Also his office staff is one of the most amazing I have ever encountered. Smart attentive and spot on. I can not even imagine a better experience!* -Anonymous

*Dr. Attaman is such a blessing. He takes the time to review the history of what the problem is, prior treatments, and is very thorough and precise in identifying the “pain generators”. He then takes the time to map out a specific plan to help and answers all questions. He also does every procedure himself. Even if he is teaching someone else, he does the procedure himself. He is very respectful and mindful of my dignity and treats me as a partner in my healthcare and talks to me not at me. My pain has markedly improved with his help. I have referred several of my coworkers to him. His office does have a policy of not “inviting” patients back who miss an appointment without proper notification. I think this is because he is very much sought after and if you’re scheduled for an appointment and don’t show then you’ve taken up space from someone else who could use his help. However, they email and/or call to remind you of the appointment so really, be respectful and responsible and either cancel or show up.I recommend him whole-heartedly. Wonderful doctor to have on your side! He’s my pain ninja!* -Anonymous

*I worked many years as a Registered Nurse. I ruptured a disc, had surgery, went back to work for a year and then ruptured three more discs and have had disabling back problems including pain and spasms ever since. I saw Dr. Attaman after seeing several other doctors and being told that my options were exhausted. I went to Dr. Attaman seeking out PRP, but after an evaluation he informed me that I was a better candidate for a different procedure (one that he did not make nearly as much money for performing as it was covered by insurance and not a cash pay). I had the procedure preformed and had good results. Although I remain disabled, my quality of life has improved! As a nurse, I have had the opportunity to work with many physicians and know that physicians are just people and there are all kinds. I can truly say that I trust Dr. Attaman, I believe he can help people with chronic pain and that he is exceptional at what he does. He is respectful and caring. I would recommend him to my family members.* -Anonymous

*I observed Jason Attaman treat my wife over several months during 2009 for pain management after two major surgeries and was very impressed with his expertise, medical knowledge, professionalism and patient care and caring. He listens to his patients, answers questions in clear and understanding way, and provides the attention and care they need. He truly loves his patients and cares about them as individuals too. With a nurse and 3 doctors in our family, I know and understand what good doctors are and can do. In my book, Jason is clearly in a league of his own. You will be very happy to have him as your doctor, as indicated by his repeat business, referrals and patients willing to pay for his services out of their own pockets, even when they have medical coverage under their regular medical coverage plans. Simply put, Jason is the best of the best. giving his patients the care and caring they deserve, need and want. My wife’s recovery was significantly helped by Jason’s care and pain management techniques and suggestions. She was very impressed by Jason and recommends him 100% plus with absolutely no reservations to others in need. You shall benefit from his expertise, knowledge and hands-on approach. His sense of humor and people skills will inspire confidence and make you feel better mentally as well as physically.* -L.S.

*I have been dealing with neck/shoulder pain for over 2 years. I have been to two surgeons, acupuncture, a massage therapist, a chiropractor, and other pain management specialist. I wanted to find someone who could diagnose my issue and finally be on the path to a pain free life! Dr. Attaman was fabulous and I would recommend him to anyone who is suffering from pain! Prior to going to him I got an MRI, two nerve root blocks in my C5, a trigger point injection, cortisone shots, the list goes on! What was found in my MRI was a small bone spur on my C5 and I was told by the surgeons they could remove it and fuse my C5 to my C6 (ACDF surgery). I felt I was much to young and kept trying to find someone who was willing to be less invasive but yet still be free of pain. They said some people have bone spurs and don’t feel pain so I wasn’t willing to have major surgery that may not fix my issue.Dr. Attaman looked at everything and really listened to where my pain was and heard everything I had done to try and fix myself. I really thought at this point everyone thought I was crazy for being in pain and yet nothing was working. I didn’t want to take pills every day or have icy/hot patches, ice packs, etc.. just to be able to work and live my life. After two trials to numb my nerves (C5-C7), the pain finally went away and then he burned my nerves on the third time. I was in a bit of pain afterwards but I could tell it was a different pain. A surgery pain and not the pain I had before. I have to say 3 weeks later and I am pain free! There is still a little sensitivity but nothing compared to what I have been dealing with since 2010. I am so happy and feel like myself again! I have been dealing with so much pain for far too long and I wish I had found him two years ago. Thank you Dr. Attaman for really diagnosing me and listening to me the patient!* -R.R.

*I first went to Dr. Attaman for a pain management consultation, because I was having very severe pain in my lower back as a result of disk degeneration problems. I had already seen my primary care doctor and two other pain specialists. I decided to get one additional visit for another opinion, particularly with Dr. Attaman because I read and found out about possible procedures that could be done instead of surgery or cortosone injections. I was impressed with Dr. Attaman from the very first visit. He took the time to fully question me and to review all the medical records I had requested be sent to him. He understood my emotional upset related to the pain that was so intense that I could not sleep and it made it very difficult for me to do my work. He stated that my type of problem could best be helped by a procedure that would actually burn the nerves in that area of the back so that the pain could be reduced significantly. The process was arduous, including three procedures on each side of my lower back, the first two (on each side) being diagnostic probes to locate the actual source of the pain. Once that was accomplished, I then had the main procedure done on each side. Over a period of weeks from the time the procedure was done, my pain level went from a 10 down to a near 0 on both sides of my back. Needless to say, I am very grateful to this experienced and skillful doctor, and would recommend anyone with a similar back problem to consult with him to see if what he offers could truly make a difference in quality of life. Again, it happened for me. The procedures are costly, but were mostly covered by insurance. I am so very pleased with Dr. Attaman and the results I have gotten. I am back to exercising and feeling better than I have felt in years.* -K.E.

*After taking my daughter to see a number of specialists including neurologists, chiropractic, accupuncture and physical therapy, Dr. Attaman diagnosed the original problem stemming from a car accident and explained why some of the other treatments hadn’t worked and why she was in so much pain. Prescribing a new course of treatment, which has been successful, has made all the difference in my teens life as well as validating that “it wasn’t just in her head”!! Can not say enough good things about Dr. Attaman as well as his awesome staff.* -A.C

*Dr. Attaman is about working with the individual needs of his clients and helping them return to function. If you are interested in multi-modal recovery and wish to make gains to get back to living your life, then this is the practice for you to get in touch with.* -P.R.

*I have observed Jason Attaman treat my wife for a year and am very impressed with his expertise, medical knowledge, professionalism and patient care and caring. He listens to his patients, answers questions in clear and understanding way, and provides the attention and care they need. He truly loves his patients and cares about them as individuals too. With a nurse and 3 doctors in our family, I know and understand what good doctors are and can do. In my book, Jason is clearly in a league of his own. You will be very happy to have him as your doctor, as indicated by his repeat business, referrals and patients willing to pay for his services out of their own pockets, even when they have medical coverage under their regular medical coverage plans. Simply put, Jason is the best of the best. giving his patients the care and caring they deserve, need and want.* -L.S.

*Dr. Attaman clearly invests in and cares about his patients. He listens attentively to concerns, demonstrates a sincere interest in progress and effectiveness of treatments, and is open minded enough to consider as well as offer alternative/natural approaches. Overall I am very happy. I have been seeing Dr. Attaman for the past few weeks for the treatment of muscular related issues. After diagnosis, he offered a range of treatment options including both traditional Osteopathic medicine (soft tissue manipulation) as well as western approaches (injections). I opted for the Osteopathic approach as it is more or less natural and side effect free. The results have been excellent. I noticed an immediate improvement after my first session and it’s been a constant progression towards resolution since.

After meeting with Dr. Attaman a few times, I commented that I really appreciated the personal attention and approach he takes towards medicine (spending *real* time with patients – not a rushed 15 minutes, listening to and dialoging about concerns, discussing my holistic well being). His response? “Yeah, I am trying to run a different type of practice here.” I hope his “different” type of practice becomes “the norm”, we could sure use more medical professionals like Dr. Attaman.* -S.B.

*I have dealt with chronic lower back pain for years, worsening within the past 5 years. Having two young kids and wanting a better quality of life, this was not an option for me. After PT from three separate providers, chiropractic care, massage therapy, and pilates I still had pain. I was told from two doctors and a back surgeon that the only way I could relieve my back pain was to have surgery. I was not happy with that answer, so I did a search and found Dr. Attaman. I am SO HAPPY I did. Not only am I pain free, but I can sleep at night, I can walk without limping, and more importantly – keep up with my kids! I feel so fortunate to have found Dr. Attaman and have told my primary about him (along with my entire family and friends). It is so refreshing to have a doctor who truly listens, provides honest advice and suggestions, and has an office assistant who is so organized and quick to return phone calls and e-mail. Even though I always see people in his waiting room, he makes me feel as if I am his only patient.* -W.S.

*I have been seeing Dr Attaman for a couple of months now. Conservative treatment did not work for me and I thought I was going to be in pain the rest of my life. I was referred to doctor Attaman for a second opinion and since the first visit with him I feel that I have hope and will get healthy again. Dr Attaman is very knowledgeable, explains every procedure well, answers all my questions, and always listens. I like that he is confident and professional. I highly recommend Dr Attaman, as he cares for his patients a great deal and has a great team of nurses as well.* -A.V.

*I have been a patient of Dr.Attaman’s for about a year now. After suffering for many years I went from Doctor to Doctor only to be told that for the most part I would have to just live with the pain and go on, as the years went on my mobility continued to slip. Dr Attaman has been a great help to me and is sincere in his desire to make things better. He has done wonders with my low back & leg pain, I used to think I needed an increase of pain meds, but now, The low levels I am on are working I am feeling better than I have in so many years and am lookiing forward to a great summer filled with a much higher level of activity. He is a GREAT Doctor!* -M.H.

*I have been a patient of Dr. Attaman’s since November of 2010. Due to a fall down my stairs I was severely injured. I was numb in both of my buttocks and lower back. I also was in extreme pain. Dr. Attaman performed procedures on my back which relieved my lower back pain. He was sensitive to my individual needs and explained the procedures thoroughly. He answered any questions my husband and I had. I have had lower back pain since my early 20’s. I now have no lower back and are able resume my normal activities. Dr. Attaman has been a wonderful doctor. I feel better than I ever have and now have a very optimistic outlook in regards to a full recovery from my accident. I would enthusiastically recommend him as a Doctor. If you need help and are in pain he is the Doctor to see. He also is just a very nice and caring person. His staff is great, Aubrey handled all the appointments and insurance paperwork. She worked with us to make appointments and procedures as convenient as possible.* -D.D.

*Dr Attaman has helped me a great deal with my back pain. I am very active and it was weighing me down. I had too much planned this summer to be down….and now I wont be!!! Yayyy!!!!* -W.O.

*I have had ACNES (nerve entrapment syndrome) for 4.5 years and was referred to Dr Attaman by my Pain Specialist @ University of Washington to try a procedure called PRP (Platelet Rich Plasma).After extensive research on Dr Arttaman and the PRP i was extremely excited to give this a try and be pain free. In the past 4 years i have seen COUNTLESS doctors… and of them there are only 3 that i would want to treat me and Dr Attaman is one of those 3. His goal is to help me get rid of my pain and he is doing everything that he can to do this. He is KIND and i truly feel that he cares about ME and not just my disease. Each procedure that i have done he has explained to me and to my family so that we can understand how it will fit in the puzzle to fight my pain. I feel that we are a team together to beat the ACNES and i am not just a number as i have felt @ other clinics. I highly recommend Dr Attman and his staff – Aubrey and Consuela – they are THE BEST!! Oh – and it has only been 8 weeks since starting with Dr Attaman and my pain is already at least 50% better and we are still ealry in the recovery process of the PRP and Injections. SO HAPPY!* -T.W.

*After many years of back pain, I finally got a GOOD dr who sent me to see Dr Attaman. I had tried everything from chiropractors to physical therapy and everything in between. After seeing Dr Attaman, he diagnosed me with arthritis of my lower back. I have since had 2 rhizotomy’s on both sides of my lower back and am mostly pain free. I am able to hike and do all the things I could do before, but was nearly immobile after doing them. Now after I hike, I can drive home and get right outta the car and walk into the house….whereas before, after getting home from a hike, I could barely get outta the car, was unable to bring any of my gear into the house, all I could do was come in and lay flat on the floor for a while. It was awful!!! Now things are fantastic!!! I have climbed Mt St Helens this summer and climbed to Camp Muir on Rainier!!! Thanks Dr Attaman!!! :-)* -W.H.

*After spending several years trying to find some relief with organizations like Stanford and UCSF, Dr Attaman seems like a miracle worker. Taking the time to actually read the health records and a willingness to try looking at a situation from a different perspective brought about a quick resolution… I would recommend this physician to anyone experiencing chronic pain.* -H.K.

*I was referred to Doctor Attaman by a doctor in another specialty. The other doctor told me that Doctor Attaman is good at handling really tough cases. Well, that’s me. For the last 6 years I’ve had trouble just sitting in a chair or driving my car, due to a bad tailbone problem, Prior to seeing him I had chiropractic care, physical therapy and seen a number of competent and caring doctors, going through procedures at three different hospitals, with no change in my condition. Since being treated by him, I’m virtually pain free, in fact I’m sitting comfortably as I write this.* -D.H.

*AMAZING results!!! I am pain free for the first time in years!!! Both my knees done with the PRP treatment and I can walk, run upstairs!!! Anyone with pain problems should see Dr. Attaman!!! I am an Aleut (Alaska Native) from Sand Point, Alaska* -S.W.

*I just got home from an initial evaluation with Dr. Attaman. His office was so accommodating and I was put on a cancellation list after getting my paperwork in and was called the same week! I have a very long and very complex case involving at least 3 nerves and my piriformis and he is the first Dr. to be able to put all my tests together and form a plan. We start next week and I am thrilled he could put it all together and understands I have many different issues going on at the same time and he is willing to see me through them. I have hope of being in less or pain free after 10 years of debilitating pain. So let the journey begin! If you have a complex pain problem see this Dr! He may even save me from one more back surgery that I was planning. Thank you Dr. A!* -M.G.

*Dr. Attaman worked wonders for me. I had a series of muscles spasms occur throughout almost 14 years. The spasms would occur when I shivered from the cold, or when I stretched my upper torso too far. Years later, the spasms progressed. Then the spasms triggered after exercise. With the procedure done by Jason G Attaman, not only can I get stretch my upper torso, and exercise, I HAVE MY GOLF SWING BACK! The weather outside was very chilly this winter, and I may have shivered in the cold, and from then on (after procedure), no acute muscle spasms. The spasms used to stop me in my tracks. When the muscle spams triggered, I couldn’t move, couldn’t breathe, and couldn’t talk because the pain was so excruciating. Now, I am pain-free and pain medication-free and steroid-free. I do not need medication of any sort, because the muscle spasms stopped 99.9%. I may have had a little spasm after wards three or four times, BUT they were short-lived (5 seconds long) and never an episode like before (lasted for hours). I lost nearly 20 pounds since the procedure (I went back to exercise), and my bad cholesterol went way down and my good cholesterol went up very high. Finally, want to emphasize, I GOT MY GOLF SWING BACK!!!!!!!* -R.B.

*I had seen another pain specialist and had been disappointed. I found Dr. Attaman on the internet while looking for another pain specialist. My first appointment with Dr. Attaman was enlightening to say the least. He laid out for me a program of treatment that seemed to be ideal for my problem. I had pain in both hips that had at times been so bad that I was unable to get out of bed. Dr. Attaman’s program consisted of shots in both sacral joints and following that the parting of the nerve going to the area of pain so that the pain ceased. I would recommend Dr. Attaman to anyone who is in chronic pain. He is personable and very capable.* -A.B.

*I first saw Dr. Attaman in March 2011 after I had been ‘fired’ by another Dr. who sent me on my way with a prescription for a tens unit and a reference to see a psychiatrist. It was a hopeless feeling with no viable solution to deal with my chronic pain. I did my research and consulted with several people in the health care field and Dr. Attaman was recommended. My pain stemmed from a combination of issues: arthritis, rotator cuff and a failed disc. Over the past year we have picked off all but the disc. He performed an investigational procedure a few months ago and I am enjoying, on average, about a 60 percent reduction in disc pain. Some days more than others. But for the most part, I can do some light yard work and enjoy some of the activities I used to do without ‘paying’ for it for weeks after. I have come a long way in the past 18 months and I am better today than I was 2 years ago. Dr. Attaman has treated me with respect and understanding and has not been dismissive of my condition. I highly recommend him.* -S.C.

*Dr. Attaman is a wonder! He is an innovative, long term thinking, & caring pain professional. I would highly recommend him. His staff is also competent with a well run office.* -J.F.

*I feel very BLESSED to have found Dr. Attaman. He has much compassion and listens very carefully to all you have to say. His office staff is also very friendly and helpful. Both my husband and I have benefited greatly from his pain management skills.* -N.H.

*I found Dr. Attaman by searching out pain specialists that offer more variety in the types of treatment they provide. I saw Dr. Attaman many times over a period of several months in which he skillfully provided non-steroid treatments to both sides of my lower back. I have had disk degeneration problems that have caused me such high levels of pain that it was very difficult for me to work and even to sleep. His treatments have reduced the level of pain on both sides of my back from a 9 or 10 to a near zero. I am very grateful to this highly skilled, intelligent, communicative, caring, good-bedside-mannered doctor who has given me a signficantly higher quality of life. I am thankful to have found him, and would not hesitate to return to his care if my body is in need of help in the future.* -K.E.

*I was referred by my primary physician to Dr. Attaman after a serious fall. I had arthritis in my lower back, a herniated disc and complete numbness in both of my buttocks and partial lower back and leg. I was in terrible pain. Dr. Attaman performed a rhizotomy on both sides of my lower back. The pain is gone and has not returned this was done in 2011. Because of the arthritis I had suffered lower back pain since my early twenties, after wards no lower back pain. He gave me several steroid injections for the disc to reduce inflammation and I regained some feeling in my buttocks. After these injections the pain subsided in that area. In 2012 I herniated another disc and did require surgery, which I believe will be fine after physical therapy. Dr. Attaman recommended my surgeon, Dr. Jayashree Srinivasan who is the best. After having been a patient at his office for almost 2 years now, I can honestly say he is one of the most caring and compassionate Doctors I have ever seen. His staff was accommodating to our schedule. Dr. Attaman made my husband and I feel as though he was focused on both of us as his patients and would help find the best solutions to our health problems. He is certified in the latest procedures available and will always give the extra effort to ensure his patients are given the best care possible. I recommend Dr. Attaman to anyone who is suffering from pain and needs to find a doctor who can help them.* -D.D.

*I have seen Dr. Attaman over the past year. He has helped me with my shoulder and back pain. He is always professional and caring regarding my needs and expectations. His staff is always pleasant and competent. I would probably had to have surgery if not for Dr. Attaman. I would highly recommend his services to anyone who wants to seek out alternative pain management. Thank you Dr. Attaman for all you do. You are very appreciated.* -J.C.

*Dr. Attaman is a great doctor. I have had the best experiences and results. The most important thing he has given me is “hope”, something I have not had in the long time I’ve been battling chronic pain. He has been able to help me in a way no other doctor has in the short time I have been seeing him. I appreciate his professionalism and skill; he is really fabulous at what he does. He is kind, knowledgeable, understanding, talented, impressive, remarkable, and terrific; all the things you could ever want in a physician. I highly recommended him and will continue to do so.* -D.W.

*My wife has had long term back pain that felt like her back was on fire. After telling our old Primary Care Physician, she was sent to a pain specialist to see if they could help her. After about 6 appointments with this specialist she still had the same back pain as if it was on fire. After we got a new Primary Care Physician, she sent us to Dr. Attaman to see if he could help. After talking to her, he had determined that she had problems in her hips and her lower back. After doing the procedures on her hips, it was the first time in years that she was able to sleep on her side. Dr. Attaman then started working on her back. After injecting Lidocaine in the nerves in her back to insure that he had the correct nerves, he did the first what he called a Nerve Melt in her right side, she has had no pain and now he has started the left side. I hope that she has the same results as the first. She has use less pain pills and we hope that she will not need them. During the procedures, Dr. Attaman explained everything that he was doing. I was with my wife when she had one of the procedures on her hip and Dr. Attaman explained to me what he was doing and showed me how he guided the needle into the area that he was going to inject the pain medication into. He is one of the first Doctor that I have met over the years that has explained every step he was going to do and he really cares about his patients. I hope when I am not on the road so much, that my Primary Care Physician will send me to him to help with the pain from an on the job injury to my lower back so I don’t have to take so many pain pills. I would recommend Dr. Attaman to anyone that has any type of pain, because he is one of the best in the business.* -E.J.

*I had been in pain as long as I can remember. I’ve seen many doctors who were unwilling to look for a cause, instead prescribing pain medicine or simply telling me I needed physical therapy, which I was in too much pain to do. Dr. Attaman reviewed my history and was confident he could help me. I was highly skeptical. After a few relatively simple treatments, I am pain free!! Pain free!! My entire life has changed because prior to seeking Dr. A’s help, my life consisted of nothing but trying to get out of pain. Now I feel as if someone has handed me a new life. I am more than grateful to Dr. A and his staff. And while we strongly disagree on a specific topic, Dr. A always treated me with kindness and respect. I would (and do) recommend him to anyone suffering through pain. There is a light.* -B.R.

*I went to Dr. Attaman because my tendons and ligaments were stretched from an accident that occured more than 40 years ago. The result is that my ulna bone in my left wrist slides out unexpectedly from time to time, sending me in agonizing pain to the emergency room where I have to be anesthestized before they put it back in its socket. I hear that Dr. Attaman did a fairly new therapy where he injects your own red platelets into the affected area and that, in turn, can help tighten the loose ligaments and tendons. I had the procedure done in January of this year. There’s no telling if everything has tightened enough to prevent another dislocation but, for now, all is well. The reason I’m writing this review is that Dr. Attaman and his staff were very friendly, compassionate, and accomodating. They tried very hard to make me feel comfortable and answer my many questions. I would definitely recommend Dr. Attaman to anyone who wanted to have the procedure I did, or who needed assistance with pain management of any type.* -L.P.

*Dr. Attaman is committed to reducing and/or elimiinating pain. He will stay with you until he finds the right answer. I believe he uses the most recent procedures developed to address pain. I used orthopedic docs and physical therapists for years and my pain continued. I am grateful that he has helped me consierably and that he will stay with me as liong as I need him. An added plus — he does not prescribe tons of pain pills.* -S.L.

*I chose Dr. Attaman for 2 reasons – #1 Reviews. Not here, which is why i’m Yelping first, but elsewhere – reviews were stellar. #2 I’m not doing any more drugs. If I went to a pain specialist and they pulled out the RX pad I might have set it on fire. (ok not really, maybe just a page). His website and credentials made me assume that he doesn’t like to do drugs either. When I called to make an appointment, I was asked if my primary would write RX’s for me if needed – I flippin’ LOVE this concept – enough with the 5 different doc’s writing 5 different RX’s with no follow-up or monitoring. Dr. Attaman actually reads the forms you fill out. (These days, any Doctor who does that is worth at least 4 stars). But I didn’t just give him my 15 page form file … I gave him another 15 pages of test results and Doctor notes for 5 months worth of visits. During my exam, Dr. Attaman mentioned a diagnosis that was given by which medical facility – and not only was he right, but he recalled something that happened way back in February. After reading 30 pages of whatthehellisthisgirlsproblem? I didn”t need someone to hold my hand and tell me everything is going to be okay, I needed someone to look at the facts and make firm decisions based on their knowledge and the data. Dr. Attaman did all of the above, he even apologized for all of the dbags before him who did none of it, and as much as I claim to not need “warm and fuzzy” – there aren’t words to describe how NICE it was for someone to take the time to acknowledge my mismanaged care. When I left, I took 3 business cards. 1 for me, 1 for my primary Doc, and 1 for my PT. Maybe Doctor’s just need our help in building their COI’s, less dbag referrals and more healthy happy patients!* -K.M.

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