#health rant

[wakandamama]

If you notice a small child in your personal life is a avid toe walker past the age of 4 or 5.

CALL IT OUT TO THE PARENTS🗣 PLEASE🗣

Inform them to get the child into physical therapy to train them out of it.

Sincerely- a 23 year old adult who is dealing with chronic leg pain, chronically tight calves, hyperextended knees and hip alignment issues.

The amount of times I'll be with my aunts talking about my leg issues they go off on a 'Oh, well you've been a toe walker since you were a toddler. We thought it was so cute! And you used to be so flexibly and did the splits all the time!'

MY ACLS ARE HOLDING ON BY TWO THREADS AND MY CALVES HAVENT RELAXED SINCE 2010 KIMBERLY🗣🗣

I PHYSICALLY CANT SQUAT PROPERLY ANYMORE IN MY 2Os SHIRLEY 🗣🗣🗣

MY HIPS FALL PUT OF PLACE IF I SLEEP TOO HARD GLENNA🗣🗣🗣

Yall could have said something!!!🗣🗣🗣

[densewentz]

health rant under cut bc I'm exhausted

so my neurologist and i had a lovely talk today at my follow up appointment where she informed me that a) she's leaving the practice this month and has no idea who's going to take over my case and b) that my ms numbness is probably going to be permanent since there's been no change whatsoever since I got out of the hospital so thats. great. And the fact that there's literally nothing I can do to combat the numbness doesn't haunt me at all.

And summer is just BARELY here and already the heat is literally crippling me guys like. I can't go outside for more than a half hour without getting so viciously fatigued and numbed over. My brain gets foggy and I can't think and it's not like I loved the heat before but goddamn. My entire right side from the tits down is just a void of either nothingness or a tourniquet

which, the goddamn MS hug shit. i swear any time i try to do an activity it feels like someone is putting my chest through a trash compactor and I end up feeling like i can't breathe. It makes it hard to do anything, which obviously is just straight up tanking my mental health. God forbid I have to walk somewhere even mildly warm because at this point that's basically my kryptonite.

At any rate I'm just trying to get by day to day but boy it is hard. And all I can think about is if all the stupid fucking doctors I saw months ago when I first went numb hadn't just looked at me and saw a fat hysterical woman then maybe they could have gotten me on the steroids right away back when only part of my torso was numb rather than my entire gd body from the bust down. If they'd done their job and not just written it off as anxiety for a month then I could have stopped the progression of the numbness and still be able to do something as simple as hold a fucking flip flop on my foot.

Good things are I have my ice pack and my new AC for my room so at least there's one place I'll be safe this summer. Gonna start working on art again and try to keep up with writing although godspeed to me because that executive dysfunction is coming for my ass lol

long story short, doctors are assholes and ms blows ✌ deuces

[snaitf]

Fun fact: one of the weirder side effects of Covid can be nerve inflammation. Last time i got it in 2022, i couldn't feel the bottoms of my feet for 15 days after my fever broke. I couldn't wear shoes - ended up going to work in obnoxious Chewbacca slippers. Aaaand I got covid about a week and a half before my big vacation to Disney world. :/ It was weird. I couldn't tell if my feet were sore from walking all day. Couldn't feel if I was forming blisters. Had no idea that my feet and socks were WET cause it was raining the first day and my shoe leaked. It was a really disconcerting experience.

All that to say, I got Covid AGAIN and the nerve thing is happening AGAIN. Just my left hand this time, and it's not... as bad? It's mostly that "on the edge of falling asleep" buzz, but it won't go away. Not affecting my grip strength, and I can still feel temperature and (in some fingers) texture. It's just really fucking annoying.

Time to break out the vitamins. x.x

[galacticturnip-art]

“I’m tired of making the same mistake over and over again.”

[amusementofaprincess]

I swear my body just hates me.

I’ve been getting dizzy when I stand up, I was blaming it for a few days on getting up too/not drinking enough water.

I drank plenty of water Friday, and I am currently more dizzy that I was before.

Like standing for more minutes make the floor spin. And when I go from sitting to standing my vision goes grey and my ears start to ring. It doesn’t matter how slowly I stand up.

My BP is on the low side normally (thanks to meds and genetics) and when I stand my heart rate shoots up. It’s normally on the high side (80s/90s) and it’ll go up to like 130 on me.

It’s like I finally get my skin and joints sorted (aside from the fact that I burned in the shade, while wearing sunscreen on Thursday) and body wants to throw something else at me.

I’m staying at my mom’s tonight - I live alone and don’t want to worry about standing up to fast, fainting and squishing a cat.

At least the hallucinations haven’t come back as far as I know. I don’t really have a way to know if those barely audible voices are real or not when I’m in an apartment with neighbors above, below and next to me.

[solarshadow]

Been having a lot of health issues recently and honestly it's been really demoralizing and frustrating. Sometimes I just feel defeated because when I start working on one thing another thing starts acting up and it feels like I'm never going to get better.

And then I spiral because if things are already this bad how are they going to be when I'm older?

And essentially I'm embarrassed and don't want to be a burden or ask for help and it's just 🫠

Trying so hard to be positive about this but it's so freaking hard when I'm dealing with chronic pain constantly.

[changelingsandothernonsense]

Not to be overly tmi but mild rant about endo and not being consistent with replies across platforms under cut.

Tdlr- Ceth's really sick again.

I've been bleeding since like Friday and I'm starting to be a bit concerned with the amount of blood I'm actually losing. I'm having that massive period at the end of a severe endometriosis flair up that was triggered around Easter. It's a bit um...much?

Just got over a migraine but the sleeping I needed to do for that had me bleeding through everything about 3 times so just like...I can't sleep right atm and I'm concerned it could trigger a seizure. Let's not even mention the pain I'm in during this. I have retriggered a vascular burn on my back from how hot I've needed these heating packs...and tbh I'm not happy with having to be high on pain meds. Even if cannabis helps better than anything. I'm just tired.

Going to the doctor soon but urg. It's astounding how few of my body parts work! So naturally I'm overwhelmed and a bit concerned with hourly bleeds so I'm being sporadic on here again. Will post art wips but maybe less replies etc until I get actual spoons.

[witchy-dude23]

I got a wheelchair today and as unbelievably helpful and life changing this will be I still feel weird about it. I was immediately anxious about what people I know would say and that people would think I’m exaggerating and don’t need it. Ugh it’s rough, but the anxiety and whatever else comes with it is worth it to actually be able to leave the house and maybe start living my fucking life.

[blatantescapism]

Cw: teeth, dental malpractice, vent post, don’t worry I have a competent team now

I’ve been going in to the dental school almost every week for more than a year now, getting major work done on about two-thirds of my teeth.

Thanks to the fun combo of weird recessive genes and literal malpractice, my teeth are messed up in interesting and expensive ways.

On the outside, they look fairly normal.

My hobby is watching the students quietly freak out when they see the X-rays.

There’s a committee of professors arguing about the situation with my lateral incisors. Still no agreement, because all options are bad. I was given incredibly botched dental implants when I was too young, and now there’s no obvious way to salvage the upper jaw without a risk of breaching through to the nasal cavity.

While they argue that over, we’ve been slowly working across my lower jaw.

Today was a consultation regarding the botched molar root canal. Because I’ve had dental malpractice on four completely separate occasions.

The endodontist started the visit by being like “Best practice is usually to save the tooth rather than extraction. We will take images and make a plan.”

and I was like, okay, so, FYI, Lidocaine doesn’t work normally on me, when the Third Malpractice Dude originally did this root canal he hit the maximum safe dose only halfway through and then tried to get through the next forty minutes of literally shredding my nerve ends with zero painkiller, and then he gave up and had me come back for a second session, and the same thing happened again, so please don’t do that to me a third time?

She was like ooookay, noted.

I was like so the other thing that happened was a tool broke off inside one of the roots, and the guy couldn’t figure out how to remove it, so he left it in there as packing material? I guess he was getting frustrated with my uncontrollable sobbing and just wanted to be done with that root. That must be how the infection got pushed down to where it’s currently eating at the bone, haha. Anyway that bit of metal is still stuck in there, plus he used another metal rod in the packing?

She was like that’s a complication, but I am an esteemed specialist in repairing root canals, and in the standard xray it looks reasonable.

I was like okay and also I’ve been told that my roots are in a really weird shape, and very close to the major nerve?

She was like well, the 3D images have almost finished compiling, we shall assess all of these factors together and decide.

The 3D images loaded.

We looked at the coronal view.

I was like “Wow. Obviously, NO.”

She was like “Let me help you schedule with Extraction. I have GOT to show this to the attending physician. It was lovely meeting you!”

[cognitivefunk]

this is going to be extremely tmi under the tag (tw health rant, tw emetophobia - do not read, nausea, ect)

I was recently diagnosed (officially) with gastroparesis secondary to the whole Ehlers Danlos Syndrome cascade of symptoms, and I can hardly eat anything at the moment. I vomit every. single. day. and when I'm not puking my brains out, I have this perpetual nausea that feels like I have constant food poisoning or sea sickness. The zofran I take for it barely helps, I'm eating the blandest foods that I can manage, I'm just so tired. So, so tired, and frustrated beyond belief.

[sentryvt]

Me: Had to go to the ER cuz of gut pain but I feel like I'm okay now

Also me:

:( they fucked my veins up but my lik guy gained a free galaxy

Long story short: went to the ER after a bad pain flare up to the point of struggling to stay conscious (and man it was a struggle), get to ER via ambulance cuz we fear it's pancreatitis again.

They run a bunch of test (blood and urine samples, glycemy test) while they get me Tradonal and other stuff through IV.

Doc comes to check on me and presses down on my abdomen, it's higher than normal and it seems to be my stomach so they give me anticid. Immediately start to feel some relief.

Turns out it's gastritis and im on meds for 4 weeks. Stress was really badly eating at me due to resurfacing trauma and me being in a bad period mentally wise over the past few months

I'm seeing my gastroenterologist tomorrow to talk and stuff. Like getting the MRI and more blood job done too to be extra sure I dont have pancreas issues.

Rn I'm genuinely fine. Exhausted beyond belief but fine. I did end up sleeping Monday away (I have barely any recollection of what happened. Apparently we did groceries?) and I rested plenty with light meals. The very good news to me is that I feel hungry. I haven't felt actually hungry over 3 weeks. Like actual "i need food in my belly" hunger and not "my sugar levels are too low and I havent eaten anything for how ling now?" Hunger.

[abrahamshipwreck]

Whiny peebaby rant

I pay around 300$ for insurance, to see a doctor who is always overbooked and it is legit 4-6 months before I can get an appointment to see them (unless insurance switches my doctors again last minute and I have to repeat the process + New Patient documentation).

If I can get to the appointment without the doctor switching or cancelling the day before (add another few months) I go and I wait at least 45 minutes after my appointment time that I was told to show up half hour early to in the waiting room. I get taken back by a nurse and have vitals done (despite saying I dont want to know my weight they announce it anyway). Obligatory comments how my blood pressure 'seems kinda low' (babe thats the high end for me) I am put into a room to wait an additional 45minutes to an hour.

Doctor shows up, I have about 15 minutes or less to tell them whats been bothering me for the past who-knows-how-long (funny enough none of my symptoms are manifesting that day). Doctor makes comment how I need to 'eat better', 'get more sunlight', 'lose some weight' (despite my BMI being at 20-21 and telling them I have a history of a severe ED). They say its just anxiety. Drink more water. Your copay is 85$. I go home with no answers at all

Two weeks later I get a bill for 275$ for the visit. Its backdated day after my visit. I have about a week to pay it if Im lucky.

So, no, most Americans aren't 'spoiled' because they 'can just make an appointment to see a doctor so soon'. I wait nearly half a year for a wellness check, pay upwards of nearly 1800$ just to wait for the appointment not including the appointment and copay itself. Urgent care can be even more expensive to be seen sooner. That doesnt include if you get to see a specialist, or need a proceedure/labs/gyno work. And I have and pay for insurance. Its WAY WORSE if you dont.

NonUSAmericans really have no idea how bad it is here.

[why-am-ievenhere]

i love that my migraine has toned down after i had to cancel my appointment because of it.

like apt was scheduled for 8 so i would've needed to leave at 7:30, it is nw 7:40 and it is starting to fade a bit. Still not enough that I could drive or like do the exercises bit still enough that the difference is noticeable

[amusementofaprincess]

I hate being chronically ill.

December 27th I went to the ER because I couldn’t pee. I thought I had a bad UTI. In the waiting room my skin literally started getting redder and redder, I was vomiting and I felt worse and worse.

By the time I got seen I was septic. I was admitted and stayed in the hospital from 12/27/23to 1/8/24. I had just started a new just the week before my admission, and I ended up leaving it because I knew it would be a while before I could go back.

I shouldn’t have been sent home when I was so I spent the first week basically unable to do anything or really take care of myself or the cats - my mom had to come help.My insurance paid for a visiting nurse to come 1x a week and I have PT coming twice a week which is really helping (and I do my PT “homework” every day like a good patient)

How am I surviving without a job? My Nana paid my rent for January and February, my mom lent me my car payment for January and I am not paying my heat or electricity because I applied for assistance. I also applied for food stamps and I am still waiting for my unemployment claim to be processed from when my old job let me go.

My next step is apply for disability. I don’t know if psoriasis counts for disability but psoriatic arthritis does. And apparently if I go outside in public I pick up infections no matter what precautions I take. I didn’t ask for septicemia/bacteremia/staph infection in my blood for Christmas.

I asked for socks.

There is a LGTBQ + book shop is opening a 2-4 minute walk from my house. And I can’t walk far enough to get there and I am mad about it.

I am just sick and tired of being sick and tired.

[moonsnightowl]

Endometriosis is a bitch

[freepalestinebastard]

Boycott!!

Now that I have your attention.