#health Care

[cloakedsparrow]

If the doctor suddenly has a diagnoses that was previously dismissed (or never even discussed with you) after this and you suspect they're just trying to make the problem (ie the patient they can't diagnose or get rid of) go away, ask for a copy of all your test results as you are, naturally, going to get a second opinion. Nine out of ten times, they will just as suddenly realize that there's another option to explore. It's almost like they don't want their shady practice to be peer reviewed. Go figure.

The other one out of ten, the doctor will happily give you said results because their hands are tied by insurance/hmo/whoever and they are just as frustrated as you are.

Useful information

[spacedocmom]

Doctor Beverly Crusher @SpaceDocMom If your "goal weight" requires you to starve yourself and/or push your body past pain thresholds with excessive exercise, that "goal weight" is neither a healthy nor a sustainable weight for you. Say no to toxic diet culture. emojis: black heart, blue heart, masked, spoon 5:50 PM · Nov 2, 2024

[politijohn]

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[typhlonectes]

[opalsong]

I absolutely adore being a lifeguard and swim instructor. I'm so passionate about it. I love being on the front line to pool patrons. I love having a job that when I leave the building, I don't have to think about it. Where I can work hard when I'm there and then turn off my work-brain when I leave. I love doing my part and not having to make any of the big, overarching decisions. I love that my job has very little impact on my life when I'm not at work. But the steadily decreasing pay combined with tighter and tighter budgets and continuing stupidity from upper management and a complete and total lack of recognition from the company (I hit 20 years of work and didn't even get an email about it) means that I'm retraining to something new. (Which is in health care so all the same problems probably still exist but at least I'll be paid enough to make rent now.)

The reason people don’t want to work is that it’s just normal for them to be in bad work environments.

My issue with working at Walmart wasn’t the work itself I was doing. It was the circumstances around it. The concrete floor, lack of places to sit, having to put up with asshole customers, not getting time off for injuries, and bad pay.

If I had been given shock pads to stand on or a few chairs to rest on sometimes, if they paid me a livable amount of money and I was allowed to yell back at asshole customers, if they had given me any amount of training, I would happily work part time folding clothes all day and telling people where the swimsuit section is.

I’m a creative type. I’m a writer. I’m pretty smart, even. But if I could make a living folding shirts and listening to podcasts in one ear and helping people find the scented candles for 30 hours a week? I would. Leaves some mental space free for me to brainstorm. Lets me catch up on my reading with audiobooks.

But instead I was treated so badly by upper management and customers that I’m like legitimately a little frightened whenever I step into a Walmart now. And I only worked there for three months a few years ago.

I’m a good lower level worker. When I’m treated well. I like finishing tasks. I like being helpful. I like having some time to talk to coworkers and some time alone with my thoughts. I’m a frickin team player. And that’s how I was at my first job. I was treated well by my supervisor. I was trained. They were patient with me. I was so good at being low on the totem pole at that job because I was valued and felt like I was being listened to. I was able to sit still when there was nothing left to do which made it feel less bad when we were on a time crunch. I didn’t mind working hard at that job because it was fun even though I was doing all the low level stuff that the supervisors didn’t want do.

But at Walmart I was like that for all of two days. Then I figured out that nobody appreciated my work and if I worked in my normal people pleasing manner I’d kill myself because their standards were high and the rewards for meeting them were low.

So I slowed down. I started avoiding customers. I started taking a lot longer to get to my breaks and to come back from them. I became worse at my job because no matter how good I was at it there would be no reward, no appreciation, and I’d just be pushed further beyond my limits.

My only level of happiness from that job came from the people who were working with me. The old ladies and my department manager who made sure I wasn’t overextending myself. The one other young man working in the clothing department who always got sent with me to unload the heavy stuff and commiserated with me about the shoulder injuries, the hurting feet we were too young to have.

But none of that was enough to make me stay. We were constantly understaffed. I was constantly abused by customers and not able to do a thing about it. I was not paid much at all. So as soon as I had enough saved up for what I was trying to do and my last semester of college was about to start I handed in my two weeks.

I would have found a way to stay if I liked that job. If I liked that job I would’ve pushed myself to my mental limits to finish college and keep that job at the same time. Heck that job could’ve been a rest from college. A place to get away from it. But I hate that job so I got out as soon as I could.

I want to work. I want enough money to live sort of comfortably. I want to have some tasks to do to give my creativity a rest. I want to be a part of something. But the way that modern corporate run work environments are set up does not give me any of the things I actually want out of a job. And I think that’s the same for millions of people right now. A lot of people would happily spend their lives as a waitress or an Uber driver or a warehouse worker or a farmhand or any other “low skill” job you can possibly think of. But with the way the world works right now those jobs are absolutely miserable. It doesn’t have to be that way. I know because I’ve had a fulfilling part time minimum wage job that I looked forward to going to every week. A job where I was listened to and allowed to sit when I needed to. I miss that job. Especially now since I’ve realized that’s not the standard. It should be. People should look forward to going to work or at the very least not get mild ptsd whenever they set foot into a Walmart.

[liberalsarecool]

We need to end lobbyism as we know it. Corporate bribery is the worst way to provide a human right like health care.

Sad that $800 million/year in bribes costs us $650 billion/year in savings.

[creature-wizard]

Since folks are exhausted from hearing about Project 2025 and Agenda 47, here are some reasons to feel hopeful about Harris

(It would be wonderful if folks could reblog this, a lot of people are feeling very discouraged right now and could use the morale boost!)

[brujaporfavor]

Yeah, one time my insurance wasn't used for an office visit and so they charged me the daily rate for an uninsured person which was cheaper than if I had actually used my own insurance.

[becausegoodheroesdeservekidneys]

My sister rang me today.

Ever since she was six, she's had pain in her legs, which turns into pain in her hips and back for stretches of time. She's tried for years to get a diagnosis, with absolutely no joy. As a kid they thought she had collapsed arches in her feet; then it became clear her feet were fine, but something was wrong with her tendons; and then in her 20s they just shrugged it off with a "We'll never know probably" and that was that. She keeps on top of it with daily yoga, generally, though flare ups happen periodically. If she has to pause the yoga for some reason, she fairly rapidly regresses. Currently she has plantar fascitis again, which has halted everything once more, so right now she's back into a pain slump.

Anyway, she called me today while going from Doctors to pharmacy to get the codeine they've prescribed her for it.

"I think one of my yoga moves to help the fascitis might have exacerbated the legs," she said. "Trouble is, there's never been a diagnosis. I just have to trial and error what might help."

... And I had one of those lightbulb moments, you know? My brain suddenly went "Wait hang on, this is very familiar isn't it?" and rang the bells of memory.

"Did they ever test you for fibromyalgia?" I said.

They had not. It's never been suggested, even. My sister said she'd look up the symptoms and see if it chimed, and rang off.

Fifteen minutes later, she calls back.

Turns out she got to the pharmacy and gave them the prescription. While waiting, she googled fibromyalgia symptoms and found the NHS website.

"It was like someone had written a profile of me," she tells me on the phone. "Like, spookily, scarily accurate to me, right down to the temperature regulation bit. It felt like a practical joke."

And of course, as she stood there in the pharmacy, suddenly staring at the age of forty at the apparent answer she's been trying to get since she was six years old, she burst into tears.

"Oh no!" Said the pharmacist, hurdling the counter in a single leap and scattering the queue (I am exaggerating for humorous affectation.) "Quickly! Come into our little exam room, we'll get you tissues and water!"

My sister was duly ensconced into a Safe Place, and encouraged to cry it out. It took several hiccuping minutes, but finally, she managed to calm down and get back to an Extremely Watery Smile.

"Do you want to talk about it?" the pharmacist asked sympathetically.

"It's just..." my sister said, overwhelmed and searching for words. "My whole life I've been in pain, and they've never found why..."

"Ah," said the pharmacist thoughtfully. "Have you explored fibromyalgia?"

...

"TWICE IN ONE DAY," my sister yells on the phone to me later. "HOW THE HELL HAVE TWO SEPARATE PEOPLE ON THE SAME DAY FINALLY GIVEN ME THE ANSWER, AND NEITHER OF YOU IS A DOCTOR"

Anyway she has a doctor's appointment for tomorrow to discuss it, so we'll see

[infiniteglitterfall]

know someone who enjoys horror stories? share this one! it's true!

hahahahahahahahahaha aarrggghhhhhhhhhh 3,000,000 deaths due to COVID-19 last year. Globally. Three million. Case rates higher than 90% of the rest of the pandemic. The reason people are still worried about COVID is because it has a way of quietly fucking up your body. And the risk is cumulative.

I'm going to say that again: the risk is cumulative.

It's not just that a lot of people get bad long-term effects from it. One in seven or so? Enough that it's kind of the Russian Roulette of diseases. It's also that the more times you get it, the higher that risk becomes. Like if each time you survived Russian Roulette, the empty chamber was removed from the gun entirely. The worst part is that, psychologically, we have the absolute opposite reaction. If we survive something with no ill effects, we assume it's pretty safe. It is really, really hard to override that sense of, "Ok, well, I got it and now I probably have a lot of immunity and also it wasn't that bad." It is not a respiratory disease. Airborne, yes. Respiratory disease, no: not a cold, not a flu, not RSV.

Like measles (or maybe chickenpox?), it starts with respiratory symptoms. And then it moves to other parts of your body. It seems to target the lungs, the digestive system, the heart, and the brain the most.

It also hits the immune system really hard - a lot of people are suddenly more susceptible to completely unrelated viruses. People get brain fog, migraines, forget things they used to know.

(I really, really hate that it can cross the blood-brain barrier. NOTHING SHOULD EVER CROSS THE BLOOD-BRAIN BARRIER IT IS THERE FOR A REASON.) Anecdotal examples of this shit are horrifying. I've seen people talk about coworkers who've had COVID five or more times, and now their work... just often doesn't make sense? They send emails that say things like, "Sorry, I didn't mean Los Angeles, I meant Los Angeles."

Or they insist they've never heard of some project that they were actually in charge of a year or two before.

Or their work is just kind of falling apart, and they don't seem to be aware of it.

People talk about how they don't want to get the person in trouble, so their team just works around it. Or they describe neighbors and relatives who had COVID repeatedly, were nearly hospitalized, talked about how incredibly sick they felt at the time... and now swear they've only had it once and it wasn't bad, they barely even noticed it.

(As someone who lived with severe dissociation for most of my life, this is a genuinely terrifying idea to me. I've already spent my whole life being like, "but what if I told them that already? but what if I did do that? what if that did happen to me and I just don't remember?") One of its known effects in the brain is to increase impulsivity and risk-taking, which is real fucking convenient honestly. What a fantastic fucking mutation. So happy for it on that one. Yes, please make it seem less important to wear a mask and get vaccinated. I'm not screaming internally at all now.

I saw a tweet from someone last year whose family hadn't had COVID yet, who were still masking in public, including school.

She said that her son was no kind of an athlete. Solidly bottom middle of the pack in gym.

And suddenly, this year, he was absolutely blowing past all the other kids who had to run the mile. He wasn't running any faster. His times weren't fantastic or anything. It's just that the rest of the kids were worse than him now. For some reason. I think about that a lot. (Like my incredibly active six-year-old getting a cold, and suddenly developing post-viral asthma that looked like pneumonia.

He went back to school the day before yesterday, after being home for a month and using preventative inhalers for almost week.

He told me that it was GREAT - except that he couldn't run as much at recess, because he immediately got really tired. Like how I went outside with him to do some yard work and felt like my body couldn't figure out how to increase breathing and heart rate.

I wasn't physically out of breath, but I felt like I was out of breath. That COVID feeling people describe, of "I'm not getting enough air." Except that I didn't have that problem when I had COVID.) Some people don't observe any long (or medium) term side effects after they have it.

But researchers have found viral reservoirs of COVID-19 in everyone they've studied who had it.

It just seems to hang out, dormant, for... well, longer than we've had an opportunity to observe it, so far.

(I definitely watched that literal horror movie. I think that's an entire genre. The alien dormant under ice in the Arctic.)

(oh hey I don't like that either!!!!!!!!!) All of which is to explain why we should still care about avoiding it, and how it manages to still cause excess deaths. Measuring excess deaths has been a standard tool in public health for a long time.

We know how many people usually die from all different causes, every year. So we can tell if, for example, deaths from heart disease have gone way up in the past three years, and look for reasons. Those are excess deaths: deaths that, four years ago, would not have happened. During the pandemic, excess death rates have been a really important tool. For all sorts of reasons. Like, sometimes people die from COVID without ever getting tested, and the official cause is listed as something else because nobody knows they had COVID. But also, people are dying from cardiovascular illness much younger now.

People are having strokes and heart attacks younger, and more often, than they did before the pandemic started. COVID causes a lot of problems. And some of those problems kill people. And some of them make it easier for other things to kill us. Lung damage from COVID leading to lungs collapsing, or to pneumonia, or to a pulmonary embolism, for example. The Economist built a machine-learning model with a 95% confidence interval that gauges excess death statistics around the world, to tell them what the true toll of the ongoing COVID pandemic has been so far.

Total excess deaths globally in 2023: Three million.

3,000,000.

Official COVID-19 deaths globally so far: Seven million. 7,000,000. Total excess deaths during COVID so far: Thirty-five point two million. 35,200,000.

Five times as many.

That's bad. I don't like that at all. I'm glad last year was less than a tenth of that. I'm not particularly confident about that continuing, though, because last year we started a period of really high COVID transmission. Case rates higher than 90% of the rest of the pandemic. Here's their data, and charts you can play with, and links to detailed information on how they did all of this:

Here's a non-paywalled link to it:

https://archive.vn/2024.01.26-012536/https://www.economist.com/graphic-detail/coronavirus-excess-deaths-estimates

Oh: here's a link to where you can buy comfy, effective N95 masks in all sizes:

Those ones are about a buck each after shipping - about $30 for a box of 30. They also have sample packs for a dollar, so you can try a couple of different sizes and styles.

You can wear an N95 mask for about 40 total hours before the effectiveness really drops, so that's like a dollar for a week of wear.

They're also family-owned and have cat-shaped masks and I really love them. These ones are cuter and in a much wider range of colors, prints, and styles, but they're also more expensive; they range from $1.80 to $3 for a mask. ($18-$30 for a box of ten.)

[batboyblog]

Things Biden and the Democrats did, this week #16

April 26-May 3 2024

President Biden announced $3 billion to help replace lead pipes in the drinking water system. Millions of Americans get their drinking water through lead pipes, which are toxic, no level of lead exposure is safe. This problem disproportionately affects people of color and low income communities. This first investment of a planned $15 billion will replace 1.7 million lead pipe lines. The Biden Administration plans to replace all lead pipes in the country by the end of the decade.

President Biden canceled the student debt of 317,000 former students of a fraudulent for-profit college system. The Art Institutes was a for-profit system of dozens of schools offering degrees in video-game design and other arts. After years of legal troubles around misleading students and falsifying data the last AI schools closed abruptly without warning in September last year. This adds to the $29 billion in debt for 1.7 borrowers who wee mislead and defrauded by their schools which the Biden Administration has done, and a total debt relief for 4.6 million borrowers so far under Biden.

President Biden expanded two California national monuments protecting thousands of acres of land. The two national monuments are the San Gabriel Mountains National Monument and the Berryessa Snow Mountain National Monument, which are being expanded by 120,000 acres. The new protections cover lands of cultural and religious importance to a number of California based native communities. This expansion was first proposed by then Senator Kamala Harris in 2018 as part of a wide ranging plan to expand and protect public land in California. This expansion is part of the Administration's goals to protect, conserve, and restore at least 30 percent of U.S. lands and waters by 2030.

The Department of Transportation announced new rules that will require car manufacturers to install automatic braking systems in new cars. Starting in 2029 all new cars will be required to have systems to detect pedestrians and automatically apply the breaks in an emergency. The National Highway Traffic Safety Administration projects this new rule will save 360 lives every year and prevent at least 24,000 injuries annually.

The IRS announced plans to ramp up audits on the wealthiest Americans. The IRS plans on increasing its audit rate on taxpayers who make over $10 million a year. After decades of Republicans in Congress cutting IRS funding to protect wealthy tax cheats the Biden Administration passed $80 billion for tougher enforcement on the wealthy. The IRS has been able to collect just in one year $500 Million in undisputed but unpaid back taxes from wealthy households, and shows a rise of $31 billion from audits in the 2023 tax year. The IRS also announced its free direct file pilot program was a smashing success. The program allowed tax payers across 12 states to file directly for free with the IRS over the internet. The IRS announced that 140,000 tax payers were able to use it over their target of 100,000, they estimated it saved $5.6 million in tax prep fees, over 90% of users were happy with the webpage and reported it quicker and easier than companies like H&R Block. the IRS plans to bring direct file nationwide next year.

The Department of Interior announced plans for new off shore wind power. The two new sites, off the coast of Oregon and in the Gulf of Maine, would together generate 18 gigawatts of totally clean energy, enough to power 6 million homes.

The Biden Administration announced new rules to finally allow DACA recipients to be covered by Obamacare. Deferred Action for Childhood Arrivals (DACA) is an Obama era policy that allows people brought to the United States as children without legal status to remain and to legally work. However for years DACA recipients have not been able to get health coverage through the Obamacare Health Care Marketplace. This rule change will bring health coverage to at least 100,000 uninsured people.

The Department of Health and Human Services finalized rules that require LGBTQ+ and Intersex minors in the foster care system be placed in supportive and affirming homes.

The Senate confirmed Georgia Alexakis to a life time federal judgeship in Illinois. This brings the total number of federal judges appointed by President Biden to 194. For the first time in history the majority of a President's nominees to the federal bench have not been white men.

[reasonsforhope]

Less than three months after U.S. Senator Tammy Baldwin and her colleagues launched an investigation into the four major American manufacturers of inhalers, three of the companies have relented, making commitments to cap costs for their inhalers at $35 for patients who now pay much more.

25 million Americans have asthma and 16 million Americans have chronic obstructive pulmonary disease (COPD), meaning over 40 million Americans rely on inhalers to breathe.

Inhalers have been available since the 1950s, and most of the drugs they use have been on the market for more than 25 years.

According to a statement from the Wisconsin Senator’s office, inhaler manufacturers sell the exact same products at a much lower costs in other countries. One of AstraZeneca’s inhalers, Breztri Aerosphere, costs $645 in the U.S.—but just $49 in the UK. Inhalers made by Boehringer Ingelheim, GlaxoSmithKline, and Teva have similar disparities.

Baldwin and her Democratic colleagues—New Mexico Sen. Ben Ray Luján, Massachusetts Sen. Ed Markey, and Vermont Sen. Bernie Sanders—pressured the companies to lower their prices by writing letters to GSK, Boehringer Ingelheim, Teva, and AstraZeneca requesting a variety of documents that show why such higher prices are charged in America compared to Europe.

As a ranking member of the Senate Committee on Health, Education, Labor, and Pensions, Baldwin recently announced that as a result of the letters they had secured commitments from three of the four to lower the out-of-pocket costs of inhalers to a fixed $35.00 rate.

“For the millions of Americans who rely on inhalers to breathe, this news is a major step in the right direction as we work to lower costs and hold big drug companies accountable,” said Senator Baldwin.

A full list of the inhalers and associated drugs can be viewed here.

It’s the second time in the last year that pharmaceutical companies were forced to provide reasonable prices—after the cost of insulin was similarly capped successfully at $35 per month thanks to Congressional actions led by the White House.

-via Good News Network, March 25, 2024

[the-cimmerians]

Vice President Kamala Harris announced this week that the Biden administration is looking to lessen the burden medical debt has on people by purging it from their credit report. This means that even if people have piles of medical debt — one in five Americans say they do — it’s not going to affect their ability to get a mortgage or a car loan. So they will at least have a place to rest their head and a car they can drive to work every day while paying off their medical bills.

Via AP:

Harris said that would make it easier for them to obtain an auto loan or a home mortgage. Roughly one in five people report having medical debt. The vice president said the Consumer Financial Protection Bureau is beginning the rulemaking process to make the change. The agency said in a statement that including medical debt in credit scores is problematic because “mistakes and inaccuracies in medical billing are common.” “Access to health care should be a right and not a privilege,” Harris told reporters in call to preview the action. “These measures will improve the credit scores of millions of Americans so that they will better be able to invest in their future.”

It only seems fair that high medical bills for an emergency or serious illness shouldn’t affect one’s credit rating anyway. It’s not like we’re talking about someone irresponsibly dropping several grand at Versace and then never paying off the credit card bill. Fifty-seven percent of Americans could not afford a surprise $1000 emergency, so the inability to pay off massive amounts of medical debt is hardly a fair reflection of an inclination to default on normal payments — payments you can budget for — on something like a mortgage or auto loan. “Way to be irresponsible by getting cancer, lady! You should definitely be punished for that by not being able to find any place to live!” seems pretty harsh, no?

[whatareyoureallyafraidof]

Also, I'll be voting blue all the way down the ticket, too!

[politijohn]

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