#giving yourself good advice
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deuashi bonding time. as requested
I THINK THEYD BE REALLY CUTESY GROCERY BUDDIES!!! like to imagine one day ashi needed to go to sam’s shop to get some stuffs but didn’t want to call up ace cuz he had basketball practice. so then she called up deuce and they had a really funsies time!!! 🫡 she felt bad but he said it felt good helping someone out HAHAHA. next day ace got wind of it and got a little butthurt tho
yyyyeah
#THEYRE SO CUTE ACUALLY. THEYRE REALLY SWAG?#deuashi such a cute duo. smth smth embrace all of yourself and use that to reach your full potential!!! don’t shun it#grocery nights are also lowkey therapy nights but like. friendship! they could give eachother good advice I think. WAHWHA#all platonic BTW <3#twstshi#ashi tamadai#deuce spade#twst deuce#twst oc#twst yuu#twst#disney twst#twst wonderland#twst fanart#twisted wonderland#twisted wonderland yuu#ace trappola#twst ace#he’s here too. ig#ashipiko draws ♪
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Mr J I'm heading to Wendy's. You want anything?
ABSOLUTELY NOT. I’M ON A STRICT DIET OF BLACK COFFEE AND THE WHINING OF MY PHOTOGRAPHERS!
#HERE.#TAKE SOME CASH AND BUY YOURSELF SOMETHING GOOD#DONT SAY I NEVER GIVE YOU ANYTHING!#daily bugle advice column
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any tips for beginner artists?? I love ur art !!
thank you!!! Im not great at giving art advice but i can try lol…
here are some rules i try my best to follow to this day when im aiming to improve:
make art a habit: mileage isnt everything, but it certainly helps!! It’s much harder to improve if youre rarely creating.
dont be afraid of making mistakes, but always try to understand the mistakes you make. If something doesn’t look right, try your best to figure out why!! you’ll get better at catching yourself with time.
get to know the tools you already have instead of fixating on the tools others use. i find that beginners especially tend to obsess over the brushes/programs/tablet/etc. that their favourite artists have, but the truth is that artistic skill is transferable between mediums and no single tool is going to magically make you a better artist. its very easy to get caught in this trap, and i still do sometimes!!
draw the things you want to draw, even if you know they’re beyond your current skill level. taking risks goes hand in hand with my second point—the more mistakes you make, the more you’re going to learn!! and remember that you can always redraw a bad drawing.
go into a drawing knowing roughly what you want to create. mindless doodling is an easy way to make yourself believe that you have no ideas, and it can lead you to hate the act of sitting down to draw. you don’t have to know exactly what the finished product will be like, but make sure you have a tangible goal!!
these aren’t concrete rules you HAVE to follow by any means, but they are things that i wish someone had told me when i started out. i hope you find them useful!
#ask#i wrote more than i expected haha#Art school has done this to me#i dont like giving advice like “learn how to draw x first” because i honestly think that you should start drawing things you like#I really think you can start anywhere and still become really good#i didnt really start learning fundamentals until i had graduated high school and thats the only thing id suggest#The earlier you learn the fundamentals the better#but dont make yourself hate art by stopping yourself from trying things you havent learned yet
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Just batbros being brothers and vibing over how Bruce is being a diva
All jokes aside, though, I love how Dick is telling Tim what he needed to hear back when he was Robin but never got to hear.
#dc comics#dick grayson#dc universe#tim drake#red robin#robin#I just know Dick bangs his head against a wall whenever Bruce starts his shit up#love big brother Dick giving his little brother advice#“You have to se yourself free...”#crying#batfam#batfamily#batman#These writers need to stop ruining Bruce's character#hes a good dad i swear#hes just emotionally constipated
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Hey, sorry if this is a bit of a personal question - and feel free to ignore it if it is - but how did you know you wanted to start hrt? I am someone who IDs as transmasc and knows in an ideal world, I would've loved to have been born a guy. But the idea of going on hormones is terrifying because I can't figure out if I really want it... I worry about regretting it, or it making me 'unappealing' physically, or my friends judging me for it. Did you ever struggle with similar worries?
I think every person thinking about and starting HRT goes through this. A rite of passage, if you will, and also not a bad thing to do. HRT is a big step, some of the changes (especially on T) are irreversible. It's good to think through if it's a choice that's right for you or not.
That said, it's also Just A Thing You Can Do. I first started really questioning my gender at the end of 2020 (thank you, Elliot Page, for coming out and making me go "oh shit, you can do that?"). I got a therapist to talk about gender... Mid 2022? And started hormones spring 2023, top surgery a year later.
Before getting the therapist, I spent over a year Just Thinking About It. And a lot of the thoughts were around the changes on T and if I'd like them or not or if I'd regret them. If I'd be ugly, after being conventionally attractive as a woman.
It hits a point, though, where eventually you have to pull the plug one way or another. I spent a lot of time thinking about how my body would change on T. A Lot. With longing. I caught myself putting things off Until I Knew For Sure and because I didn't want to do it while being perceived as a woman. I was sitting, treading water for a hypothetical Later that I could start moving towards at any time. I was scared for the Teenage Round 2 phase, and didn't want to spend months being "ugly and awkward", but then the months passed anyway and I was still in the same spot.
HRT isn't an all-or-nothing thing, you can ease into it on a low dose. My doctor started me on a low dose and we ramped up over months. Some T changes can start pretty quickly (voice dropping, bottom growth - this isn't true for everyone, but was true for me). If these changes excite you, make you feel good - great! Keep going! If they scare you, feel wrong - stop. Assess. Figure out what about it isn't right (a gender therapist for all of this process is a Huge Help). In early days if you stop T, the changes can revert, for the most part. But you can always stop at any time.
The bigger thing I actively worked to wrap my head around before starting HRT is - Who Cares If You're Wrong? What's right for you now might not be right for you later. The idea of detransitioning was scary to me, society has such a weird spotlight on it, the Right uses people who have detransitioned as props against transition. But it shouldn't matter. At the end of the day, if I do change my mind, I'll know myself better, and I don't think it's wrong to chase and find comfort in your own body.
A year+ on T, I've mostly made it through the ugly duck phase, I think. I was lucky, I didn't get bad acne or get too oily or anything (after having horrible acne in my first puberty). Most of what I dealt with was the chronic baby face, where I was getting read as male but a teenager - I'm almost 30 and a woman wanted to card me over a free T-shirt at a baseball game because it had beer logos on it. After some middle months of changes and going "oh my god what am I doing" and not feeling confident in how this was all going to turn out, I think of myself as relatively attractive and I think I'm just going to get more vain as my beard comes in. Some of that is physical, sure, but I think a significant amount of that is me feeling more confident in myself and liking the body I'm in more. I was never a selfie or picture person, now I am. I joke I'm like a budgie, always looking at myself if there's a reflective surface nearby. I'm more excited to exercise, I'm interested in lifting weights for the first time, I'm curious what my body on T can do and become. Keep your eyes on the pieces that are going well, the changes exciting you, and let the rest catch up.
My social circle helped a lot. I'm very lucky and blessed to have great friends and family, all of whom are supportive. If you don't have friends who are supportive of you, that are judging you for exploring yourself rather than lifting you up for it, it's a sign to expand the social circle and find ones that are. Family is harder, but that's a thing you have to navigate for yourself and find your own boundaries for.
So, there's no ~one moment~ where you're 100% certain that medical transition is right for you. It's a huge unknown and you're changing the body you've had your entire life. At some point, though, you just have to jump and see how it lands. Part of being alive is making mistakes and doing things you might regret.
That said, the regret rate for trans people is something like 3%. The regret rate for knee surgery is something like 20%. Trust yourself.
#my two favorite posts I've seen online that helped with my transition#are the one that said ''the time will pass anyway'' in response to learning a new skill and being bad at it in the beginning#and a response to the question ''how did you know you were trans?'' of ''i thought about it''#because i didn think about it! a lot! a lot a lot!#and the time does pass anyway#the cliche advice is ''cis people dont think about this stuff'' and its true#or if they do they conclude they're good where they're at and how they identify rather than twisting themselves in knots over being sure#only you can decide if you're ready to take the plunge and try hrt#i do recommend getting a therapist to talk it through with#especially the social side of transition because that is scary#even if you have people you know will accept and support you it still puts you in a very vulnerable postion and it takes courage#the therapist also helped me talk through a lot of my fears about if i was ugly on the other side of transition#and the answer to all the social fears is always ''it won't matter to the right people''#i already had the right people around me but if you don't you can find your right people#a thing i reminded myself a lot too is to give people a chance#to keep ourselves safe we assume the worst so we can brace ourselves for it - that we will not be accepted and will have to defend ourselve#but i kep reminding myself it was not fair to assume the worst of people - especially certain family members#so its good to prepare yourself for the worst - but you also have to give people a chance to surprise you#i was So Scared of telling my aunt and and grandma. they were the last people i told because i was so afraid#but i did and they were nothing but supportive#they don't get it. we aren't going to talk about it. but we dont need to - they're doing their best and i am loved#good luck on however you choose to do things and find your happiness#hrt#gender#ask response#boy stuff
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unfortunately those Cutting and Deep h3ather havril3sky ask polly "here's why you're lonely/here's the empathy failure holding you back" excerpts everyone loves to post
are just permanently recontextualized for me by her series of op-eds about how everyone in her family is an incomprehensible one-dimensional pod beast with completely unlovable preferences for things like "starbucks drinks" and "conversations about their lives", which she tolerates, with enormous difficulty, only through a sense of duty and a bunch of rationalizations about how actually it makes her sexier and cooler that she's willing to endure it
#like. i don't actually know enough about the typical content of one of her Actually You're Failing To Do This Empathetic Basic Mental Action#And That's Why You Have No Friends In Your Thirties and/or Are Constantly Beating Yourself Up For Things columns#because i'm a little generically allergic to that kind of thing#but the excerpts seemed pretty reasonable? sensible people i respect like them? the written content was always the kind of thing that seems#like something a reasonable person might form as a generalized observation based on their social experiences?#but uh. she DOES have an op ed about how listening to her husband tell her about the walk he went on is an experience she only gets through#by imagining that tolerating it makes her beautiful and feminine by contrast to his grizzled broken-down Man Nature#so i. feel like that should have some ramifications for her likely ability to do social modeling and give actually good advice#box opener
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i love my friends so much. i feel like yesterday i had a lot of shit going on in my head and i woke up to my friend explaining things in a way that put my mind at ease. i dont feel as anxious anymore because i know i was overthinking. i think my dad said it best when he told me that he thought my wonderful brain of mine just wants to think problems are bigger than they actually are. he is right! im just inexperienced in life and half of the time im scared im doing something wrong but- HEY. i need to be more confident in making mistakes. making mistakes doesn't define me as a person!! i need to stop worrying about doing life right and just live for the sake of living and doing what makes me happy!!!!!!!
#thank u blake. u really helped#also nessa!! thank u for that reblog about your perspective on my one post about feeling lost career wise#it helps me to know im not the only one living this life because holy fuck i can feel confused sometimes because.. am i doing this right?#and you know what? theres no correct path that i think there is but im just not good without a direct direction. it makes me a little#anxious about things#i dont know if its because i have some form of a disorder but i function better when i plan stuff out and give myself something to#decompress the problems and thoughts because in my brain theyre just all stuck and clumped together#and that can get a bit scary and overwhelming!!!#im just glad i have people that care about me. it means literally everything to me#so even if i dont 100% reply dont think i dont care because literally any ANY advice or kindness you show to me means the world#we're all just living this little life and we might as well make the best of it#people care..... thats just.... its good... it makes me feel less alone that people do#i love my friends so much#evennnn if we dont talk every day or are only mutuals in passing!!! it literally means a lot if people show me kindness#like holy shit!!! your older than me? and your dealing with a similar experience??? and your telling me that its okay??? and that itll be#okay?????#like#just the reassurance that things will be okay and work out and that im not the only one dealing with a feeling like mine#idk sometimes i just feel like im crazy and like my thoughts make no sense?? you know?? but yall get it#im glad that i have people who are older than me in my life cause yall have experienced stuff that i can use to be better#like your life experiences can help me in a way that can make a difference on my perspective on things#its why i like talking to my coworkers. because theyve seen things and done things i havent and their perspective can teach me potentially#i just dont feel so overwhelmed with life when i talk to people who understand#i feel so young and yet old enough to know but even the people who are older dont know so im sort of on the right track i suppose depending#on how you look at it#so- im just gonna live my life and smile because!!! you gotta.#you gotta surround yourself with people who can enrich you and teach you things for the better and make you want to grow#some of you are like that#you may not know that#but that kindness means so much
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ok i'm finally watching only boo ep9 ('s scenes with shone) and is this really what people were mad at shone about? oh my god...? didn't moo sign a contract that said he wouldn't date while he was a trainee????? am i not remembering that correctly?
#ALSO UHHH#THIS DRAMA IS A LITTLE TOO META#AND I'M KIND OF OFFENDED THAT THE MESSAGE SEEMS TO BE THAT PUBLIC FIGURES HAVE TO DISCLOSE THEIR PERSONAL LIVES#OTHERWISE IT'S ''DISHONEST''#THAT'S A PRETTY DAMN BIG SWING THERE GMEME#KIND OF THROWING YOUR TALENT UNDER THE BUS AREN'T YOU?#drama liveblog#this might be the first time i've seen someone in a drama give good advice and yet we're supposed to think it's bad lol#plus i think your fans are mostly going to be concerned about you having a 20 year old lover when you were in high school my guy#you'd be protecting kang more than yourself
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🌟
I reblogged this ask game and then failed to finish the answers to any of the asks i got. whoopsie. better late than never.
Anyway let's try the director's commentary of the train king scene from pez dispenser debris.
I love the train king intro. it's so fun and goofy. it's just got some really fun humor to it in my mind. I had so much fun writing it.
it is a completely pointless scene.
It has no plot relevance. Train king is not the chekov's gun hanging bravely on the wall of that fic. It will have no overarching effect on the plot. So why the fuck is it there?
Well, because it was fun.
Pez dispenser debris has lived in my head for at least two or three years now. Not in the exact form it is now, but it's a very old and much-adored story of mine. I was incredibly fond of it. I tried to write it years ago, and got as far as the first scene, which was originally Izuku and Mirio walking along the street and running into the bus hijacking, which led to the rogue quirk.
It was a good starting point. It's where the action actually started. But it just didn't feel right to me.
So it sat in my drafts for a long time, collected dust, and I spun my wheels on other projects for a while. I went back to it, and tried again, and the new first scene was Izuku rushing in late for the meeting with the realtor. It still didn't feel right. it gave more development to Izuku and Mirio's relationship before we hit action, but something just wasn't right.
Train King was just a silly reason i made up for why he was late. The scene originally wasn't shown, only mentioned in a single sentence. And then I decided--fuck it, it would make for a fun scene. just do it for shits and giggles.
And I had fun writing it. Which means it's probably the only reason why i hit publish on pez dispenser debris to begin with instead of leaving it in my drafts. Because I was in a state of extreme burn out when i started writing that fic, and the train king scene led me to realize what that fic needed to be for me: just something fun and silly to write.
Technically speaking, pez dispenser debris is very sloppy. There's a huge amount of pointless asides and flashbacks that don't contribute to the plot in any way. the entirety of chapter four could be deleted and it would be the exact same fic if i just slightly edited the conversation between aizawa and izuku in chapter six. I legitmately wrote chapter four, said "wow, that was pointless," and hit publish
because I liked it anyway. Like, what the fuck is the point of the backflip treaty? Dabi's extremely reluctant semi-redemption? Absolutely nothing. I just had a good time writing it and thought other people would have a good time reading it.
it wasn't meant to be """"good"""" art. it was meant to be fun, and that's what it was. I had so much fun writing my silly little flashbacks and asides. All of my fics have those kinds of background stories and scenes that exist in their "universe," and most of them never make it into the fics because it wouldn't be plot relevant and it wouldn't make for """"good""" art. With pez dispenser debris, I wanted to just give myself permission to write something fun and silly with as many pointless scenes as i wanted. And train king started that.
#pez dispenser debris#this isn't abandoned by the way i just have majors writers block on my everything right now#we are beating chapters with sticks#god pez dispenser debris is so fun#it was never meant to be the sort of story that i'd consider “”good“” writing#i did a lot of things in it that I'd never do in one of my original works for example#because i just wanted to make silly art for a while#and it was just so so fun#i think writing advice for the most part is bullshit but if you take any from me it would be to give yourself permission to make bad art#if i was trying i could probably cut 40k words off that fic and have the exact same plot but it wouldn't be nearly as fun
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People always get real weird about Beyoncé right before she drops an album. Hate that for her.
#beyonce#beyoncé#you've got azealia banks of all people trying to give beyoncé career advice like ma'am? i think she's good.#you've got people accusing beyoncé of copying them over the most basic shit like *checks notes* braiding her hair?#and you've got all the 'beyoncé is a bad singer/is overrated' truthers coming out of the woodwork yet again#like pls at this point you're just embarrassing yourself#i swear beyoncé is so secure in who she is and what she's doing that it sets people off#often on very wrong and disprovable tangents#and since they know she never publicly defends herself they get a little too comfortable being openly rude and dismissive of her
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Someone in the ed anonymous server who’s totally recovered posting a picture of food and the scale is so obviously in the picture, you aren’t sneaky, sorry buddy
#tw ed#asher says stuff#firmly standing on my theory that no one ever truly recovers from an ed#because if they actually recovered they probably wouldn’t still be dedicating so much of their time to being like one of the top mods in#the server or to giving advice to people on how to get better#you surround yourself with that shit for a reason I think#and even if it’s for good intentions you will inevitably pull yourself back in if you’re letting yourself be surrounded by currently#disordered people with no intention of getting better
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the thing about not fucking up my sleep schedule during the summer so that i don't end up having to suffer through a week of insomnia to fix it (aside from this being a new experience for me, usually i manage to unfuck up my sleep schedule in a day or two) is that staying up all night reading during the summer is literally the reason i stay alive. it may sound dramatic but i spend the whole work year subjecting myself to a hateful schedule of being up before the sun, and the reason i survive it is because i know come january I'll have night after night of reading for hours and hours and hours uninterrupted, peaceful quiet. I've been doing this since I was a child, it kept me going back then too, it's kept me going my whole life. i can't afford a lot of expensive pleasures like traveling, or buying that new gaming pc I've wanted for years, but i can stay up until 6am reading every day for a month. yes I'd love to avoid going through the hell week I've just endured ever again, but if you ask me to sacrifice my favorite summer passtime literally what's the point of being alive
#all due respect to my adhd doctor but you don't fix my sleep schedule by sending me into a depressive spiral that sounds like a bad idea#“wake up at the same time every day” yeah no thanks I'd literally rather die than give sleeping in during the weekends and holidays#how is “subject yourself to allowing capitalism to control your schedule every day for the rest of your life” good advice to anyone#“get up at 7.30 even when you don't have to”#hell will freeze over before i set an alarm on a sunday#if that's the solution thanks i don't want it#I'm also pretty sure the insomnia had more to do with everything going on than with my sleep schedule being backwards#alext txt
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“Drew only does casual”
“Drew doesn’t do commitment”
Ok that’s fine, but girl are you good with that??
#choices rwb#choices roommates with benefits#choices#choices stories you play#playchoices#like you realize there’s probably thousands of other students on campus#you can and should talk to other guys#esp considering Drew has no problem talking to other girls#MC really be acting dumb and bitchy af#Samira is better than me bc I’m only gonna give you advice for so long#people who are always in drama and always have the same problems are annoying#and I’ve never been the type to let someone ruin my peace for long#so do what you wanna do/keep making life harder for yourself whatever#just don’t come crying to me when the shit that I said was gonna happen happens#bc you refused to take the advice I already gave you multiple times 🤷🏽♀️#we can be cordial hope you have a good life but sorry we can no longer be friends#choices app
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Omg I laughed when my teacher fell over. But i wasn't laughing at her pain I was laughing at the absurdity of what happened. Cam you relate, like autism laughing at wrong times. I always feel bad but I can't stop myself from smiling or laughing.
lol look people falling can be very funny there’s a reason there are complications of it (my favorite are the pool and ice fails lol) and my general rule is is that laugher is the best medicine but… in general unless the person who fell is laughing it’s not okay to laugh, as that person is likely not only hurt but embarrassed so be mindful of that. In some cases you can show concern first then turn is funny but again it depends on the situation and person on whether that’ll be okay with them. For example if I tripped in my heels and someone laughed it doesn’t feel very good it feels like I’m being made fun of, but if I tripped then made a joke about oh to be woman and having to wear heels and laughing at myself being clumsy then I’m inviting others to join in… as far as not being able to control it or whatever it’s hard for me to think of a specific example, I’m older than I was so I think I have developed the skills to not do that I suppose. But if I think about it, it seems like my strategy is to have someone who I can whisper in their ear and they’ll laugh secretly with me not at someone in a mean way but a did you see that typo in the slideshow... XD
#oh my are you okay is always a good answer :) and laugh if they laugh. if they don’t laugh to yourself or you can also turn it to yourself#and say like I’m glad you’re okay I almost face planted the other day and laugh at yourself… it made even help elievate their embarrassment#<3#I don’t know… what am I a yes talk now lol XD….#hello there#autism#someone help me I’m giving out unsolicited advice again…… ooops
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*waves* I want to start off by saying that your works have been a huge comfort in my life over the years. They've helped me through some really trialing times and I'm forever thankful for everything you've done, even when life hasn't been kind to you. I've slowly been coming to terms with the fact that I have chronic pain, maybe fatigue too, unknown still. But it's been a hard pill to swallow, I feel so angry that I can't do stuff. Do you or any of your followers have advice for accepting this?
Hi anon,
Firstly, I'm so sorry you're going through this process, especially one that also involves fatigue, because fatigue is a son of a bitch. (You can - to a degree - treat some forms of pain, but there's almost nothing out there for genuine fatigue except rest and the core needs, and even then, it rarely listens).
My advice is going to be from stuff I've mostly learned for myself, but everyone's journey is different. What I like to tell myself might hurt someone else, so if I say anything here that doesn't work for you, remember it's important to find your own things too.
If necessary, look for support groups, if you have no diagnosis yet but have chronic pain and fatigue, groups for ME/CFS (Myalgic Encephalitis / Chronic Fatigue Syndrome) and Fibromyalgia are probably the best places to start.
As for advice, the first is that it's normal to be angry and it's normal to feel betrayed (by your body and by a very ableist society) and it's normal to feel sad and upset. Acceptance isn't the absence of these feelings, it's not a place you get to where you transcend these emotions, because it's normal to grieve what the course of life has taken from you. And part of the journey of chronic illness re: accepting where you find yourself, is also accepting the emotions that come with it, even if they feel really ugly or you don't want them. Not being able to do stuff you used to do, or the way you used to do it - of course you'd be angry, because that's loss. And loss by nature, creates grief.
Acceptance is the moment - for me - where you have a bad day re: anger and resentment and can stop and go 'oh of course I feel this way, I have lost a lot, but even though I'm annoyed or angry at my body today, I'm going to be kind to it and care for it to the best of my ability, because I'm sick, and that's what I'd want to do for anyone who was this sick. And I'm going to check if I need to ask for help, and remember that I don't have to do this alone.'
There might come a time when you're ready to brainstorm and problem solve, or days where you have more energy. For example, I can't hike for hours anymore, and haven't been able to for years. But I can stop and think 'what did I like most about hiking?' And it would be - the things in nature I can see. Well, I can still get out to nature, especially on accessible paths, or places that have carparks and botanical gardens. Or it would be physical exertion - well, I can do purposeful physical exertion with very gentle physiotherapy, it's not the same, but it still gives me a feeling of physical accomplishment. Or it would be I really like being in nature - thankfully there are a lot of places you can be in nature if you have friends or Ubers to take you there, and you can also bring nature to you re: plants in the home.
Generally speaking, getting creative with what is lost is part of the process of acceptance. But it doesn't always come straight away, and it doesn't always come without resentment. I have days where I'm still fiercely, fiercely angry that I can't do the things that I used to do. The fact is, the world is ableist, friends have internalised ableism, I'm often feeling guilty or frustrated that I can't do things when I just...can't do them and it's not my fault. I'm just sick.
Definitely consider organising some kind of therapy or even vent sessions with someone you trust (who has the capacity to handle it, though not many folks do, understandably) - medical trauma, and the experience of a chronic illness, can be traumatic. And look around for a good doctor and professional support network.
Pain on its own causes fatigue, so look at enrolling in a pain clinic (they have wait lists, so it's good to get the ball rolling now), and make sure that you've had at the very least a blood panel of your inflammatory markers because many causes of chronic pain can be treated or medically supported.
It's worth making friends with some folks who have chronic illnesses and spoonies, or the people who just 'get it' even if they don't. People who will never pressure you when you have to cancel. People who love you when you don't see them for months at a time. People who understand when you vanish from an online conversation halfway through without saying goodbye. These folks are worth their weight in gold.
There's things like - it's worth exploring concepts like mindfulness in chronic illness, as well as pacing (I hate pacing, but the one time I seriously tried it, I felt better and could do more - it's just so frustrating in concept). It's worth writing down the things that trigger bad episodes of pain or fatigue for you, and then thinking of ways to accommodate those things (for example, socialising causes flares for me, so I don't do it often, and I try not to do too much in one week). Research the 'energy envelope' and learn what yours is.
As to the grief and the anger, this is also something you will go through again and again, though the periods of acceptance may last longer, and feel more genuine. We're not trying to stop the emotions of grief and anger, but it is worth learning how to wrangle those emotions when you turn them against yourself, when you look for something to blame and hurt yourself in the process. Remember, if society accommodated disability and invisible illnesses better, your life would probably be a little easier, some things are actually down to how society treats us. If I knew I could access a program that delivered meals because I'm medically too tired to cook, my life would be easier. So when I go 'fuck my body is useless' - the truth is - society is pretty fucking useless, and my body is doing its goddamn best.
But you can be extremely mad at society for dropping the ball on all of this. Or upset. Or disgusted. Or betrayed. It's all valid. Society drops the ball on chronic pain and illness and fatigue every damn day.
The chronic illness train, for nearly all of us, is one that we board eventually, and it almost always has multiple stops. We never just acquire one thing, because age tends to give us age-related chronic illnesses too (arthritis, hypertension, type 2 diabetes, osteoporosis, etc.). These declines can each come as a new shock, and going through one new illness or symptom isn't always going to look as the same process that preceded it. A new chronic illness might feel like nothing at all if it's easy to manage (see my acquisition of allergic eczema) or it might hit you really hard if it comes with pretty reduced mortality (see my acquisition of COPD). You might get decades between one thing and the next thing, or you might not, but it's a train that in the course of humankind billions of people have been on.
The people who treat you badly for being sick are the ones who refuse to believe the train exists and that it's coming for them. They often think that if they live 'well enough' they can avoid the train (they can't). Maybe that was something you once believed as well. I know I did (and sometimes still do).
And as for when we treat ourselves badly for being sick - some of it's grief and trauma, and a lot of it is internalised ableism. Having a chronic illness is not your fault anon. Even though it doesn't feel like it, your body is doing its best for you, and the process of acceptance is learning that we need to also do our best for our body, and that we should expect society to do the same, even though it often doesn't.
Idk if this was anything along the lines of what you're looking for. Tbh I still find it really hard. December just gone was one of the hardest months I've ever had the misfortune of living through not just because of chronic illness but because of my emotional reaction to three new diagnoses I wasn't prepared for, and I spiralled hard when I realised just how sick I was (no one likes to see 'possible severe liver disease' on a CT scan). We never just go through the anger or grief once, but it does get easier, and the periods of time where we just make our lives into a new shape that pleases us become longer.
Anon, you will find new things that please you and fulfill you even as you lose old things. The new things won't replace those old things, but they will bring moments of ease and comfort and joy. We all experience this process. But do chase them down. Look for them when you have moments of energy. Seek them out. The simple things in life that nourish you, whether it's soft blankets, or good food, or a particular movie or show, or a book. Pain and fatigue are bitches, but many of us with it are avid collectors of 'things that nourish, fulfill and are joyous to us.'
I wish you well with it all! The chronic illness train can feel like a very lonely one because it races us away from the people in our lives who aren't on it yet - but the truth is hundreds of millions of us are on it right now, and there will be lots of different types of advice and support waiting for you, and very few of them will deny you your anger at the situation you find yourself in. Very few people find themselves excited to board the chronic illness train, and often you don't realise it's picked you up until you learn you can't get off.
That part sucks. But accepting that it sucks goes a longer way than trying to convince yourself it shouldn't.
#asks and answers#chronic illness#dodgy advice#you don't need to find any peace or meaning in chronic illness#it's just allowed to suck#but if you like to look for peace or meaning or philosophy#might i recommend mindfulness#and also taoism for me#buddhism works for others#tbh i often settle on 'we are imperfect suits of flesh and this was inevitable'#'but damn i really enjoyed that bubble tea right now and that's all that matters in this one second or minute'#you're gonna get so good at collecting things that you love#but give it time#and be patient with yourself#if you love animals#treat yourself like a puppy that's just acquired a chronic illness#a lot of love#a lot of play#a lot of rest#and support when necessary and possible#i have had days where i've had to: if i was a rescue dog how would i treat me' in order to get through it - and weirdly it helps sdaflkfjsa
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I know it's wrong and bad to say this, but sometimes I really hate when my friends have other friends. (specifically when I can't also be friends with those friends) because every time I want someone to hang out with or talk to, the only couple friends I have are always busy with their other friends. when I want to plan something with them, they will always choose the other friends over me. they will cancel plans *with* me as soon as other friends ask, but won't cancel plans *for* me when i ask. they will use up their social spoons on other friends and leave none for me. always putting things with me off or simply not responding at all.
i'm always told by random people when I say I want mkre friends "it's better to have a couple great friends than many aquantances" or something like that. but honestly it sucks because you can't rely on 1-2 people to always be there for you every day or every week when you want or need someone. if you keep asking, you're seen as annoying and clingy and they will ignore you eventually (or worse)
it's annoying that they get to fill their social needs at all times, but I never get to. because i'm never the one that gets to go first in the social queue. and when it gets to my turn, it refreshes and i'm pushed to the back again.
the only solution I can ever think of is being friends with my friends' friends too....but for some reason!!!!!! that never works out!!!! (if my friends will even share their friends with me to begin with)
#and dont even get me started on when i share my friends with each other and they choose each other over me and kick me out lmao#WHY ARE FRIENDS SO HARD#why am i just a little creature that requires certain amounts/types of social interaction that never gets met#and no one wants to do anything about it. and im forced to sit here feeling bad about it because i cant fix it either fbbdbdfghhdhjrhfdj#this whole friend and human interaction and bonding and companionship bullshit is going to be lifelong issue and im not here for it#NO ADVICE IM GIVEN WORKS. IM TIRED OF ONE SIDED BULLSHIT WHERE ONLY I TRY. HUMANS ARE ANNOYING#im like a non human creature that wears human skin and everyone except me knows and they dont want me and i domt know why#i also dont have the energy to do the whole new friends song and dance where you small talk to get to know each other#and share your life stories. i rather just hang out and become friends through enjoyment of mutual enjoyed activity????#or something like that idk#i tried so hard to be friendly to friends' friend last weekend when we all hung out so i can be adopted into their friend group but#they didnt even tell me it was nice meeting me and hanging out and didnt even say bye to me. only to my friends#and i was too sad about that to say it to them instead as they walked away. theyre way more social and good at words#and i was overwhelmed and struggling to speak so i was waiting for the queue to say those things or something#i expected it like an idiot loser becuase i thought i did a good job being a cute gremlin that fits into the group that seems to have#other goofy gremlins like me. i thought maybe they can be “my people” or something. but then they turned around and left#after telling my friends bye. and didnt acknowledge me. and i juat kept smiling and turned around and walked away too#PRETENDING IT WAS FINE. BUT IT FELT BAD. BECAUSE I FAILED TO MAKE A FRIEND WHEN I THOUGHT I DID GOOD WITH THEM FOR ONCE#so “being confident/believing in yourself” like im told to do DIDNT WORK AND IT FELT WORSE THAN DOUBTING MYSELF. YOU LIARS. ugh fhdhdhfhjssk#WHAT DO. WHY LEE BAD AT THIS. WHY IT FEEL BAD. WHY NOT JUST ACCEPT BEING ALONE 99% OF TIME AND GIVE UP. WOULD BE EASIER#lee rants#autism things#i know its rude to invite yourself into a friend group but what if i try anyway 🤪✌️
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