#disability polls

[intervex]

Survey: flags & coinings for combinations of intersex and disability

SURVEY URL: https://forms.gle/d6fUWH7jXBTmEBdS9

In the survey I specify ten different ways that intersex people can identify with disability. I show you 13 different flags which play with disability & intersex visuals in different ways, and I ask you to rate which use cases are most suitable for each flag.

The second page then does the same deal, but with proposed terms. If flags aren't your thing you can skip the first page and go straight to the coining section. 💛

Based on how long it took a friend to do the survey, it will probably take about 15 mins to complete.

EDIT TO CLARIFY: you do not have to be both disabled and intersex to fill in the survey! I ask you on page two if those terms apply to you, so just be clear if you're not disabled/intersex. 💜 I think flags & terms should be ideally legible to out-groups, so the feedback is appreciated! But if there are ties I will prioritize the data from people who are both intersex & disabled.

Yesterday, I posted three flag designs for ways that intersex and disability can go together, and I put up two polls on coining terms. And I got really constructive feedback! Thread is here, also see replies. People had suggestions for alternate coinings and use cases that I have incorporated into the survey.

The survey does not ask you for personal information and I am not collecting emails. If you're logged in with Google it will hopefully save your progress. I turned on the options for people to edit their responses after submission (you'll need to save the special url!) and the option to see other folks' responses.

You can answer the questions in any order. You can skip questions as you desire. You don't have to justify any of your answers.

At the end of the month (September 2024) I'll post the results on this tumblr. If you want a reminder to look for the results, I recommend adding a reminder to your calendar on Oct 2 to come back here. 💜

These are the 13 flags in the survey. In order of appearance, they are:

And under the cut I'll list out the nine use cases. If you have Long Covid like me you might want to have this tab open beside the survey so you can refer to the different use cases.

The ten use-cases I specify are:

"Any reason": Intersex person who identifies as disabled (for ANY reason). Would include ALL of the following cases.

"Variation-specific": Intersex person who considers their specific intersex variation to be a disability. May or may not view other intersex variations as disabilities (e.g. "CAH is a disability but Klinefelter's is not"). Does NOT imply this person accepts the medical model of disability.

"Personal case(s)": Intersex person who considers their personal intersex variation to be a disability. May or may not view others with the same variation as disabled. (E.g. "My CAH is disabling but not everybody has the same experience"). Does NOT imply this person accepts the medicalization.

"Intersex as part of disability community": Intersex person who considers the intersex community to be a member of the broader disability community and/or that intersex rights/justice should be considered part of the disability rights/justice movements. Again, does NOT imply a medical model of disability.

"Debility by intersexism": Intersex person who has a disability caused by intersexist violence. Would include chronic pain from IGM, PTSD from medical trauma, PTSD from bullying, mobility limitation from surviving a hate crime. The term "debility" is used in disability studies for disablement that is caused by structural violence, often implying a slow wearing out from perpetual minority stress.

"Iatrogenic disability": Intersex person who has an iatrogenic disability. Iatrogenesis is when medical intervention causes disease/disability - such as chronic pain caused by surgery. The term applies regardless of whether the surgery was consensual or involuntary. Somebody who *chose* to get genital surgery that wound up causing chronic pain would fall under this category, but *not* the previous category (debility).

"Commonly correlated disability": Intersex person with a disability which is commonly correlated to their intersex variation. Like Deafness and MRKH. ADHD and EDS are known to be more common amongst intersex people.

"Unrelated disability": Intersex person who has a disability that to them is clearly unrelated to being intersex. Like they acquired a disability through being a combat veteran, and so to them there's no link between this disability and being intersex.

"It's complicated": Intersex person who is disabled and the connection between the two identities is complex and not easy to pin down. Maybe they have a disability where it /might/ be linked to being intersex but they don't know. Or they can't draw a neat distinction between disabling and non-disabling parts of their intersex variation. Or they read the last seven cases and are like "wow I have none of that clarity about how my intersex variation relates to being intersex".

"Any-linked-reason": Intersex person who is disabled and they see *any* kind of link/connection between being intersex and being disabled. The link can be vague/messy! Umbrella category that would encompass #2-7 and #9 (everything except the "unrelated disability" group.)

Tagging @queercripintersex @posting-stuffies @headpainmigraine @intersexflags @daydreamerdisease @interachive since you all chimed in with feedback on the original thread. 💜

[sconesfortea]

Question for those with chronic illnesses/conditions/disabilities, with variable & inconsistent symptoms, are you currently having somewhat of a flare?

I am, for no reason I can think of, as are quite a few of my chronically ill friends that I've spoken to. Wondering if it's a coincidence so:

Please share if you vote 😊

[learningfromlosing]

....for a friend that I definitely already have 👀

[loooongfurby4444]

*all types of sign language are valid as hell

Because I can’t fit it all in the poll-

1- Neurodivergent, deaf, and I know sign language

2. Neurodivergent, deaf, and I don’t know sign language due to difficulties with fine motor skills

3. Neurodivergent, deaf, and I don’t know sign language due to other (non hand related) language learning difficulties

4. Neurodivergent, deaf, and I don’t know sign language for another reason

5. Neurodivergent, not deaf, and I know sign language

6. Neurodivergent, not deaf, and I don’t know sign language due to difficulties with fine motor skills

7. Neurodivergent, not deaf, and I don’t know sign language due to other (non hand related) language learning difficulties

8. Neurodivergent, not deaf, and I don’t know sign language for another reason

*Obligatory begging to reblog*

[headpainmigraine]

The 'neuropunk' tag is desert dry, despite this being the 'neurodivergent website'

I get comments from ND people who have no idea neuropunk is even a thing.

I'm wondering if that's why so many people who don't have physical disabilities want to use 'cripplepunk' despite not being part of that group, because ND people don't know 'neuropunk' exists (and people with MHI don't know 'madpunk' exists) so they think there's nowhere else to go?

I'd like to see more posts in neuropunk, even though my ND isn't even widely known as a ND - yeah, there's overlap everywhere in conditions, but it's important to have places for people who experience unique difficulties to bitch about them together.

TO THAT END:

Up to now I've been reblogging with the 'neuropunk' tag, but I don't think that's the best way to go about it, only OP and the few people who pass my blog by are going to see it.

I think it might ease tensions in the disability community too.

I don't know, I'm just one guy.

[pileofpawns]

*the worst overall

This applies to all kinds of disabilities, physical, neurodevelopmental, mental illness, and sensory; diagnosed or undiagnosed.

My mental and physical symptoms get worse in the winter and fall (seasonal depression, more headaches/migraines, crappy circulation is more bothersome) when it’s cold and dry where I live, but I know a lot of folks who have worse symptoms in the summer, so I’m curious where the majority lies!

[severalratsinatrechcoat]

hi everyone, i'm doing some digging into CRISPR and the potential of gene modification, but cant find any published surveys of disabled peoples opinions of how it should be used. one of the big talking points in debates around this is wether or not it is ethical to alter the DNA of a developing fetus to prevent a child from being born with a disability. please share any extra context you feel comfortable with!

[slipperyweaver]

POLL FOR DISABLED PEOPLE:

I’m chronically ill and for a while it killed my mental health, so I’m curious what other folks in similar situations have experienced. Please reblog for sample size!!!

[frankiensteinsmonster]

* if they aren't sharing an opinion (I ran out of space)

Personally, I don't expect them to state this if that's literally going to be the Only thing they say, but if they Are going to share an opinion, I expect them to put a disclaimer so everyone can be aware and not let them speak Over phys. disabled people on physical disability matters!

(in fact, while I appreciate the sentiment and there's nothing wrong with it, I personally find it a little confusing when I just see someone in my tags like 🧍🏽"I Am An Abled Bodied Person."

I'm like okay lol you got the spirit)

[theadhdace]

No context until this poll is over, just yes, no, nuance can a cloak be a disability aid. Doesn't matter what for, if you can think of a disability it could help with that counts.

[ithriel-coins]

plain text:

a poll about tiredness because i can't figure out if i'm mentally ill, (physically) disabled, both, or if i just need to eat more protein

option 1: i feel tired daily and it makes me need to sleep

option 2: i feel tired weekly and it makes me need to sleep

option 3: i feel tired less often than weekly and it makes me need to sleep

option 4: i feel tired daily and it makes me need to lie or sit down

option 5: i feel tired weekly and it makes me need to lie or sit down

option 6: i feel tired less often than weekly and it makes me need to lie or sit down

option 7: i feel tired daily and none of the options apply

option 8: i feel tired weekly and none of the options apply

option 9: i feel tired less often than weekly and none of the options apply

option 10: i'm unsure / see results / something else (tags)

end plain text.

please put in the tags or comments your experience if applicable ! i tried my best to include enough options / experiences, feedback is appreciated !

in this poll, "tired" can mean either more tired than your average, or more tired than a healthy person's average depending on which you'd prefer to answer / which is easier to answer !

tagging @chaotic-queer-disaster for reach, lmk if you'd like to be untagged ! /gen (btw hi i don't think we've ever actually talked ! your blog is really cool :3) also tagging @revenant-coining @denimz @mogai-sunflowers

[starful-emporium]

I mean like straight salt, not the tablets or some kind of supplement. just eating a packet of salt with water, something about the taste helps, not just having more sodium in me.

[cosmos-fudge]

the autism won

hyperspecific poll time!

PMDD - Premenstrual Dysphoric Disorder: is similar to PMS, but sufferers find it more intense and draining, often to the extent of depression and/or suicidal ideation. more information (with better explanation)

Menstrual Migraines: migraines typically before or during your period, possibly caused by fluctuations, and a drop in hormones, specifically estrogen and progesterone. more information

self diagnosis counts!!

There's no option for results or having none, if you have none you don't have to vote 👍

You're still encouraged to reblog for reach

If you have better/more inclusive sources/resources, please let me know!!

[completely-random-stuff]

My spouse and I just bathed our two dogs and I am EXHAUSTED. So I'm really curious...

If you're willing to share more information in the comments/tags/replies, I'm also curious how many dogs you have and how bad your ME/CFS affects you in general.