#dipgawareness

[rainbow-brite13]

Another year, another #HopeThroughHollis golf tournament. ⛳💚🍀 #mostbestdays #teamcozzi #togetherwewillenddipg #defeatdipg #morethan4 #dipgawareness #papagogolfclub #tgen (at Papago Golf Club) https://www.instagram.com/p/CUTGyUqvkwx/?utm_medium=tumblr

[browndavisblog]

Proud to support @cristianriverafoundation thank you @pulseinternationalrealty #fundraiser #fundraising #curing #dipg #dipgawareness #comfortisthegreatestluxury #interiors #architecture (at Miami Beach, Florida) https://www.instagram.com/p/CVOO4NzJE6T/?utm_medium=tumblr

[k9invest]

This is our poster pup @its_the_k9_kubo_show he had the opportunity to swing by to pay his respects to his lost friend Lucy. One year really flys by, we lost Lucy on 09/30/2020 to #dipg while she was in the hospital Kubo enjoyed visiting her and bringing a bit of joy to her day. Thank you all who have showed Lucy’s little company she started before her passing @lilkornslimefoundation a little love in the past. They still keep it going to honor her and use the funds to help other families who are battling DIPG. We often get caught up in the hustle and bustle of life, take a little moment to call an old friend or sibling, maybe a parent. We have today, tomorrow isn’t promised… #k9invest #family #dipgawareness #dipgangel #k9 #lilkornslimefoundation #support #showsomelove #thankyou #repost (at Forest Lawn Cemetery, Cypress CA) https://www.instagram.com/p/CUy8dBlrCbT/?utm_medium=tumblr

[roxymanning]

Close to this time last year, I was up late scrolling on social media. And I came across a friend’s feed who had reposted @littlemissmomma’s post about her then almost three-year-old daughter, Stevie, who had just been diagnosed with DIPG, a rare + aggressive cancer with a 0% survival rate. I was absolutely heartbroken for this family, and I felt such a deep connection to the Stocks, even though we had never met. Later that summer, my family and I took a road trip to Zion. My daughter and I, wearing our #starsforstevie t-shirts, took a hike up to one of the mountains, and said a prayer for little Stevie, who had passed only six weeks after her diagnosis. We never forgot about Stevie, nor her amazing family. And it was so special to welcome @littlemissmomma on the @womenontopofficial podcast this week. It was full circle. It was magic 🪄 Ashley was kind enough to be an open book with us, talking about the depths of her pain, and how she is navigating her grief journey. She made me realize that no matter how much pain and suffering that we each have gone through, all of us have had to endure pain, and it’s the one thing that unites all of us. So I would invite you to take a listen to this week’s @womenontopofficial pod. It is truly one of the most raw, honest, and heartfelt episodes we have ever done. And we are better now knowing Ashley for it. She is a gift to this world, and will move mountains, you will see 💫 You can listen to her bravely share her story wherever you get your podcasts. And the link is also in my bio ❤️ #womenontop #podcast #podcastsforwomen #podcasterlife #podcastformoms #podcastforwomen #podcastshow #grief #womenontopnation #womenontoppodcast #roxymanning #littlemissmomma #stevielynnstock #ashleystock #dipg #dipgawareness #griefjourney (at Los Angeles, California) https://www.instagram.com/p/CLfWh2bpAg6/?igshid=1w3j1rs88hi11

[ahah1127]

Have you ever heard of DIPG?

I’m going to take a break from gossip for a moment to get serious ... and sad. Have you ever heard of DIPG? It stands for  Diffuse Intrinsic Pontine Glioma, which is a brain tumor. This type of brain tumor attacks the brain stem, and usually attacks in children. When a child gets this diagnosis, the cold ugly truth is that his or her parents are essentially told “your child is dying, and there’s not much we can do about it”.  I cannot imagine much worse in this world than a parent being given that news.

I learned about DIPG when a friend’s son was diagnosed with it a little over a year ago. He underwent radiation to extend his life, followed by an experimental treatment that showed promise in the beginning, but was not enough to save him.  He died March 1 of this year. 

Today would have been his 11th birthday. It’s been weighing on me a lot today that this mom who last year had to be told her son was dying and there was nothing that could be done today does not get to race around buying cupcakes and candles to celebrate with her son. Parents deserve hope - and they should get to hug their kids on their birthdays.

We can give parents hope when told their kids have cancer if we devote more to researching pediatric cancers. The drugs that prove effective against cancer are so strong that we can’t just translate what is done for adults into kids.  Currently, 4% of cancer research dollars go to pediatric cancers in general.  I opened this by asking if you’d ever heard of DIPG because right now, 0% of cancer research dollars go towards DIPG research.  We owe parents of these kids more - and we really owe the kids themselves more.

So I’m remembering my friend’s son today be spreading the word. If you didn’t know about DIPG before, hopefully the next time you hear about it you’ll know a little more about what it is. If you have a chance to advocate for increased funding for research of pediatric cancers, please do. If you want to put money towards it yourself, St Judes does wonderful work for families facing pediatric cancer, and does research for DIPG.  The ChadTough Foundation and the Michael Mosier DIPG foundation are also two charities started by families who lost children to DIPG. Both raise money for research and for supporting families whose children are going through treatment now trying to extend their lives.

If you made it this far in this blog, thank you for reading.

[joseamares]

#repost @cristianriverafoundation ・・・ Tickets are going fast for the 11th Annual Cristian Rivera Foundation Celebrity Gala. Reserve your ticket by clicking the following link: cristianriverafoundation.org/gala-table-tickets.html. This special event is hosted by our proud board member & Anchor of the award Winning NBC’s, “Today in New York” Darlene Rodriguez & Cristian Rivera Foundation Chairman Of the Board, Andy Epstein. The 11th Annual Cristian Rivera Foundation Celebrity Gala will take place on Wednesday, November 13th, at 6pm at Capitale in New York City. This highly anticipated annual event was started 11 years ago to raise awareness and support the innovative clinical trials at Weill-Cornell Medical Center. The gala’s namesake is in honor of Cristian Rivera, a young boy who lost his battle with DIPG, but inspired his father and countless other to fight for other children and families impacted by this horrible disease. The special night includes some of New York City’s top socialites and legendary stars, all in which support the Cristian Rivera Foundation. See you there! . . . . . #CristianRiveraFoundation #CRF #LetsCureDIPG #DIPG #DipgAwareness #DefeatDipg #DipgResearch #CureDipg #FightDipg #BrainTumorAwareness #DipgAngels #FullSteamAhead #Stars #Progress #CRFGala (at Capitale NYC) https://www.instagram.com/p/B3NFJKLJi8R/?igshid=1nuqr5e5eovyk

[queennstarner]

My heart is so heavy. Another little girl, sweet Anna Ortega passed away from DIPG today 😭❤️ I'm so sorry that this horrible disease took it's toll on you, but so glad you got to have the best time in Hawaii with your family

[chele20035]

(via https://www.youtube.com/watch?v=Ithy8_owm8k)

So sad... this sweet angel lost her fight with DIPG on July 10th... she was only nine. @mores2sl

[4luvofnailart-blog]

"Cotton Candy Fluffy Cloud Wax Unicorn Melts" from @kksmagicalcreations Beautifully decorated melts with sparkle and detail, almost too pretty to melt!!! I definitely have to agree that I didn't want to melt this at all! It is so pretty and smells so good, I just wanted to sit it on my desk and have it for decoration. But I wanted to be true in my review, so I broke off a small piece and melted it. It melted easy and the smell was even better than just sitting, so I'm glad I did! It definitely had a sweet cotton candy smell and made me want to go find some at the store! 💗💙💜💗💙💜💗💙💜 #teamaddiemae #unicornstrong #fightlikeahooligan #defeatdipg #dipgawareness #kksmagicalcreations #waxmelts #unicornwax #cottoncandywax

[alexduartenyc]

This is for the foundation that I stand and work with. @johngungierivera thank you for the fantastic friendship but most important a cause that I want to support for a life time!! Swipe to view more😘Designed exclusively for http://cristianriverafoundation.org This is going with @johngungierivera @riveramarketingandmediagroup #cristianriverafoundation #crf #tcrf #letscureDIPG #DIPG #dipgawareness #defeatdipg #dipgresearch #curedipg #fightdipg #5K #artrepost #artbuyer #publicartnyc #artmagazines #newvisualcollective #newartcollection #internationalartist #internationalart #art_mags #visialnews #infoart #artnewsmag #art_worldly #art_news #artnewspaper #donations #donation #raiseawareness PLEASE PLEASE PLEASE, go to http://cristianriverafoundation.org/donation.html (at Wynwood Walls & Art District, Miami) https://www.instagram.com/p/BwDs72-BC2t/?utm_source=ig_tumblr_share&igshid=1la40hci8uiwl

[rainbow-brite13]

Beautiful morning for a beautiful event honoring a beautiful boy. 💚🍀 #hopethroughhollis #hth #golftournament #fourthannual #papagogolfcourse #morethanfour #dipg #dipgawareness #tgen #warriors #teamzoey #charliestrikesback #tylerhallseyfoundation #teamkaleigh #teamcozzi #kaylanstrong #bthp (at Papago Golf Course) https://www.instagram.com/p/B2_9ZOin38S/?igshid=1eg4hzacgsa0i

[brushforthebrushgod]

Want to win the exclusive Grak and crumbleberry Bloodbowl star players painted to your spec by a golden demon slayer sword winner? I'm raising money for #alfiebearsjourney who fundraise for research into child brain cancer. The charity is run by a work colleague who sadly lost his young son to this terrible disease. Tickets are £1 each and you can buy as many as you like. The winner will receive the miniatures and if we raise over £1000 then I will paint them up in your choice of colours. It's only a quid, if all my followers buy just 1 ticket we can really make some big money for a bloody good cause. Draw will be at 1900hrs uk time on the 1st may so not long left. PayPal entry money to bbob_no5@hotmail.com #citadelminiatures #gamesworkshop #paintingforgeworld #paintingwarhammer #goldendemon #bloodbowl #goldendemon #alfiebearsjourney #dipgawareness #dipg #warhammer40k #warhammer30k #eavymetal #horusheresy

[k9invest]

The last day of September marks the last day of #childhoodcancerawareness month, it also marks one year since you left this world Lucy. You were so young and happy. You touched so many lives. Your memory will live on with the many hearts you touched. We miss you…. Please go follow @lilkornslimefoundation to learn more about how you can get involved to help other families fighting with childhood cancer. 💛💛💛💛💛💛💛💛💛 #k9invest #lilkornslimefoundation #lilkornslimes #dipg #dipgawareness #support #wemissyou #brokenheart #dipgangel #softballsisters #repost (at Forest Lawn Cemetery, Cypress CA) https://www.instagram.com/p/CUcq4-mlOvX/?utm_medium=tumblr

[roxymanning]

Hiking to the top of @zion.national.park with our #starsforstevie t-shirts on. Anyone who follows @littlemissmomma knows how difficult the last few months have been for her and her family after the devastating loss of her precious daughter, Stevie. And while we have never met this special family, we knew we had to support them and their journey during this difficult time. Hopefully, @littlemissmomma knows that her story has touched so many, and that Stevie’s memory lives on, on the tops of mountains, in the hearts of those who never met her, and of course, in the stars ⭐️ #redcarpetroxy #dipg #dipgawareness (at Zion National Park) https://www.instagram.com/p/CCobdaAJ7BH/?igshid=1udrks55fjbzn

[divineabodeofgod]

World Brain Tumor Day #brain #braintumor #childhoodcancer #braincancer #BrainTumorDay #childhoodcancerawareness #braintumorawareness #cancer #cancerawarness #pediatriccancer #glioblastoma #neurosurgery #treatment #dipgawareness #fightagainstcancer #Awakening #awareness #health #healthylife #life #Science #spiritual #spiritualuty #spiritualscience #awakenings #spiritualawakening #interfaith #AlraTv https://www.instagram.com/p/CP3Zec_nETt/?utm_medium=tumblr

[sharonvered]

I've thought a lot about you today little monkey. I thought of all the things I taught you. All the things you taught me. And mostly of all the things that I wish I could share with you as you got older. Today is your 7th birthday but it's the 2nd one we don't get to celebrate together. A birthday wish I wish for you is that you knew how loved you were. Unconditionally and forever. Auntie loves you ❤️ #loveforliberty #dipg #dipgawareness #pbtf #pbtfstarrynight #forever5