#and the other has epilepsy
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the fact that they made it illegal to make ads louder than programs on tv in 2010 but haven't updated it to apply the same regulation to streaming. who do i have to call.
#jack facts#like do they think we don't notice#i truly do hate it here#i really do think that we should get to a ''you ruined it for everyone'' threshhold with ads at this point tbh#circulating ads should be a need based allowance#below a certain nw you can circulate as many ads as you want provided they follow guidelines#then above a certain nw you get a quota. you can have x number of ads circulating at a time.#and i don't mean distinct different ads that can be put wherever. no. if you have an ad on youtube that counts as one#and if you put the SAME AD on a different platform or tv channel or at the fucking gas station pumps or on a billboard or ANYWHERE#each different instance of the ad counts as another ad in your quota!#& if you have like a 1min skippable + a 30sec unskippable v of the same ad on the same platform. that counts as two. FUCK you.#and then above another nw line. you cannot have ads at all. bye you don't need them they serve no purpose they are just annoyances.#also paying influencers to hawk your shit counts as ads! fuck you!! paid word of mouth is not actual wom that is also an ad! fuck you!!!#oh u want ppl to rec ur product & u don't have any ad spots left?? well sugar you better have a fucking good product then lol :) fuck you#also if a co breaks an ad reg that co and any co it owns/parents can never make another fucking ad ever again in its existence#AND if a ceo breaks an ad reg w one co then disbands it and makes a new co and breaks ad reg w that one#then the CEO or any co they have ANY % ownership or investment in can never make an ad ever again. FUCK you.#charities/nonprofits and sole proprietorships get one (1) appeal to a total ad ban#that's IT!! ENOUGH!!!!! ENOUGH!!!!!!!! FUCK YOU!!!!!!!!!!!!!!!!!!!!!#AND ONE MORE THING. ''pay us not to see ads on our platform/app/other thing'' should also be illegal.#''pay us for basic ass functions'' illegal. pay to win. illegal. sale/product announcements in things that are not press. illegal.#creating an ad or listing for something that doesn't exist and only manufacturing it after it is purchased. illegal.#ads that are full screen when a user has not already selected full screen on a video player. illegal.#pop up ads. illegal.#ads with audio on a platform that doesn't. illegal. video ads on a platform that doesn't have video. illegal.#ads w epilepsy triggers. illegal everywhere forever always w out needing to be reported by consumers. cannot be circulated in the 1st place#ads w graphic violence or soundscapes that mimic it. see epilepsy triggers.#ads for things that are not actually consumer products. illegal.#anything else u want to circulate like an ad must go thru other regs to qualify as psa or edu. if it doesn't qualify tough shit get fucked.#[insert gif collage of people talking extensively while wildly gesturing for emphasis here]
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finds character i relate to immensely, immediately starts projecting
#discovered some mikey epilepsy headcanons one time. can’t find ‘em but they made me really happy so i’m throwing some in#2012 mikey centered because… well…. i’m me#but i have rise mikey ones too#2012 mikey mostly has absences and auras and other less serious kinds of seizures#though he will occasionally have tonic-clonics and other such seizures#he tics regularly because i do and i want a character that does too#(my tic is basically just i crack my neck and sometimes it goes too hard and it really hurts)#i could go on but i don’t have time for that rn lol#tmnt mikey#tmnt leo#tmnt donnie#2012 mikey#2012 leo#2012 donnie#tmnt#tmnt 2012#feel free to ignore (not 100% proud of the second drawing)
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gentle reminder that human health does not fit into a binary system and nothing is ever really fully a mental or physical disability
stress can have significant effects on physical health, more than you'd think
and the basis of any mental disability is still physical, that's why it's possible to develop medications for it
#salt baby talks#ignoring the fact that exclusionism is counterproductive to advancing any kind of disability agenda#the biology just straight up doesnt support it#neuroinflammation and things like increased cortisol levels are a big deal#they can affect any of my 'physical' disabilities#sometimes more than any other factor#and theres evidence of changes in the brain and the rest of the body with basically every 'mental' disorder#thats why we have things like SSRIs or antipsychotics#epilepsy is limited to the brain but this one is always physical#parkinsons is at its core a loss of dopamine in the brain#alzheimers has predominantly mental symptoms#yet we dont call that a mental disorder#and they are equally as disabling as physical conditions!#i would know#i have 'both'#and if you disagree#make your case and ill happily discuss this further#i do have to wonder if maybe undercutting this#is that same negative societal bias that occurs with things like depression and anxiety and PTSD#where people think you should just 'get over' it#that the logic is that 'physical' disabilities are MORE disabling because 'you can just get over mental disabilities'#which isnt true ftr most mental disorders are lifelong and chronic#people are deemed treated for a mental health condition when theyre subclinical or in remission or in control of their condition#not when theyve returned to 'normal' because its not going to happen#disability#chronic illness#ableism#mental health#and yes i am cognizant of the fact that when people say this they mostly mean mental health disorders like mood disorders#i phrased this the way i did because a) its mental health conditions that are usually the target of this and b) we can have meds for both
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Knowledge is a blessing because you can put it in your fanfics, and a curse because you can't ignore when other fanfics get it wrong. And also for other reasons I suppose.
#when you're reading an amazing fic that gets all the details right UNTIL suddenly there's a scene where you know relevant technical details#and it's so so incorrect#just read something otherwise amazing that had some very clueless medical inaccuracies. still overall a great fic but that moment was#so deeply frustrating. seizure first aid is one of the biggest and most dangerous first aid misconceptions so it's pretty alarming that#many people would and do make this exact mistake in real life. don't put things in people's mouths when they're having a seizure PLEASE!#they can choke on it but they will not choke on their tongue i promise#also don't hold them down. put something soft under their head move them away from dangerous stuff and then just keep an eye on them.#it's not hard people are just deeply misinformed#oh and time it. always time a seizure because over 5 minutes is alarming even for someone with epilepsy. if that happens or if seizures are#not normal for them then you need to call emergency services#this has been a frustrated rant#why do i know this? because i read a fic that got it right was curious and took an online first aid class about it#the other thing fiction gets horribly wrong is that many seizures do not look the way people think they do. that's just one type of seizure#hylian rambles#fanfic reader problems
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Telling people that they don't have a disorder that is highly mis-characterized and largely misunderstood because they don't present as the dude from Split is wildddddddd
#i remember learning about this from my MOMS psych textbooks back in like#2015#okay#systems have SO MANY formations#not all of them are going to present as a dude who has no idea whats going on#because in those systems theres a separation between the “host” alter#and the Original Alter#theres a severe divide in those cases which is why its so noticeable that theres a personality split and why its the only form of plurality#people think is valid#others are different lmfao#im not Going to get into the medical history of the epilepsy and trauma and whatnot#but plurality is COMMON#honestly and truthfully#back when i first was getting diagnosed for this#BECAUSE YES I'VE SEEN TWO PSYCHS ABOUT THIS AND HAVE HAD IT AFFIRMED IN SPITE OF MY LACK OF#“TRADITIONAL DID PRESENTATION”#anywah back when i was seeing shrinks for it because i was heavily fragmented at the time i knew of two other people#in my social circle#who were also systems#one had been in the process of gettin diagnosed on and off for about seven years#another was my age at the time (19) and starting the process like i was with a shrink who was#AFFIRMING US#BECAUSE WE DONT WANT TO HAVE THIS SHIT#AND WE WERE LOOKING FOR OTHER SOLUTIONS
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idk if I’ve ever said this on here before but I have epilepsy (haven’t had a tonic clonic seizure since I was 16, knock on wood) but a couple of times a year when I don’t get enough sleep or I’m stressed I will feel really “seizurey” for lack of a better word, I can feel the electrical energy in my brain and I get this awful feeling of impending doom. yeah feeling that today :(
#definitely need to get back on my seizure med#I was diagnosed at 13 and it was bad from like 13-15 but has greatly improved so I’m really thankful#but it’s so scary to know my brain can just do things like that randomly#also most people with epilepsy have a rescue med on hand to stop a seizure which is usually a benzo like klonopin#but I’ve never been prescribed one and I wish I had them just in case#I need to ask#other#tw: health issues
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The motherfucker who decided that the new building at my school desperately needed a hundred foot tall, enormously bright, constantly blinking and flashing LED screen inside the building in a place where unless you are on the third floor you literally cannot avoid seeing it (in the form of reflections if you're lucky, with your eyes if you are not) should be, and I mean this, fucking shot
#red rambles#this building is like a spit in the face to anyone who gives a damn about accessibility#they also only have two elevators to serve this building AND the library next to it (both high-flow buildings with a lot of classes in them#i hate this fucking building man. it's gorgeous it has giant windows (i love this about it) and they had to go out of their way to make it#yes i love taking the stairs. yes i like running up the stairs because i am an energetic little freak. i dont like running up the stairs#behind a bunch of people slowly limping their way up because the elevators are so fucking full all the time and complaining about#how exhausted they are. this doesn't really happen to me in the other buildings.#also the fucking MIGRAINE SCREEN#what if someone has light sensitive epilepsy#if its tripping my migraines THIS BADLY it is definitely going to fuck someone else up
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Realized last night that my epilepsy that seemed to onset last October has actually been happening my entire life, my family just thought it was really bad night terrors or sleep walking. And as a teenager I thought I just got stuck sometimes and also that I was being haunted by 3 ghosts and that two of them wanted to kill me. reframing_my_entire_life.exe ×͜×
#laney says stuff#seizure hallucinations are uhhhhh no joke really fucking scary#only realized because I had a seizure the exact same as a “night terror” I had as a teen minus the ghost hallucination part#really wish epilepsy education had been better when I was younger#I've spent my entire life wondering what the hell has been wrong with me#and I'm so behind on college assignments because every day I have 3-6 seizures#i'm so exhausted#I don't hallucinate much anymore but if I see some shit again I will FLIP#been trying for weeks to catch up with college but every other day another fuckin think happens & I just can't focus#:(((((((#vent post#I just don't know what to dooooooo at this point but wake up every day & roll into another revelation & struggle & struggle & struggle
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I know van gogh had epilepsy, and the reason for the sunflowers is because he took too much foxglove, and every time I see sunflowers and van gogh, it just feels like a little wave; that I'm not the only person who has suffered epilepsy in silence. It feels what I assume others feel when they see their little symbols for whatever cause or disability. Like a sense of unity and friendship. If I must suffer, at least I can think of van gogh and the sunflowers.


#epilepsy#epilepsy awareness#ive found that if you have a disease that was in the bible no one cares lol#i also do not like other epileptics cause they want tattoos that say “seize the day” and i think that is the worst thing in the world#seizures feel like after you get in a car crash and i dont think anyone who wants to get “seize the day” on themselves#has actually ever had a real seizure#petit mals do not count get away from me with that#anyways im just feeling aggressive and lonely#maybe i will get a sunflower tattoo#i have 0 tattoos#but maybe
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i love my classical studies teacher... bro bought chainmail armour for no reason, let us hold it to see how heavy it is, put it on, and then got stuck in it and had to leave the class to get another teacher to help him take it off 😭
#he was using his keys to open the box the armour was in and struggling a lot so i just passed my scissors to him because Girl can you not—#—tell the keys aren't working?#learning about divination was sick. apparently epilepsy was called the sacred disease in ye olden ancient greece#i was going to say “i'd be a great pythios(?)” because i'm good at acting fuckin crazy but then the seizure thing was brought up and i was—#—just like. oh shit. i'd be an AWESOME pythios!#(i forgor what they were called rip)#in other news it's POURING out here#i guess we know for sure autumn is finally here#woooo..........#misia has a stupid thought
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does this xfinity ad flash fast as fuck for anyone else or is my app just glitched to shit
#ace rambles#i've gotten this ad 3 times and every time it has had an incredibly rapid strobe effect to it#it only triggers when i've got the ad directly centered#i'm incredibly lucky that i don't have epilepsy or any other sort of photosensitive issue that would be triggered by this
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Reblogging again because this is VITALLY important!

Just in case
#VERY DAMN IMPORTANT!#My sister has epilepsy and I might add another note here: Absence seizures are very hard to identify without knowing of them first.#I can only note what we experience#Prolonged un responsiveness#although uncommon now she also is vulnerable to tonic clonic but absences are more common#These should be treated the same way as most seizers#also note that it takes a lot of energy out of a person#make sure they're in a safe place#wait for them to make their own choices of what to do next before you help out#and do make sure that they're lying down or are in a safe position during the seizure to protect them#important info#health info#tw seizure#important#vital information#only sharing personal experience to help out others
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bucky and yelena better have a little sister/big brother relationship in thunderbolts* or what is even the point of anything
#personal#my personal post-endgame au has them being each other's main caretakers during their most vulnerable moments#i hc yelena as having epilepsy due to brain damage from being drugged and the only person she trusts to care for her is bucky#pls give me this @ thunderbolts movie
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Absolutely love my dog, but very sad that he's sick on the first day in like a month I've been able to plan to get groceries
#i cant drive with my epilepsy#so i bug friends to help me grocery shop#and obvs christmas plus helping my fam with my uncles house has affected that#im getting sooo low on groceries#and i really cant afford the extra $30 to order grocery delivery#or the extra cost of other groceries
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one of my favorite stupid things about the shitty c-list cdramas i watch (and tbh it shows up in some of the nicer quality ones too) is when a character has some kind of incurable terminal disease that modern medicine is failing can be easily remedied with...
needles. like acupunture.
i think it's bc authors know jack and shit about medicine and can't be bothered/aren't paid enough by webnovel sites or drama producers to research specific illnesses and their treatments but it takes me out every time.
it makes sense in like...wuxia or xianxia, but when it's a modern drama it fuckin kills me. bonus points if the "modern" doctors are listening to wrist heartbeats to diagnose things like literal cancer or if there are magic chinese medicine pills that are complete cure-alls, OR if the "modern doctors" are surgeons (of all specialities, obviously) as well as general practitioners as well as specialists as well magically being renowned experts in chinese medicine and/or are like...nationally known but anonymous Secret Doctors or Magic Doctors or what-have-you.
#cdrama#cdramas#this is especially apparent in the vertically filmed youtube cdramas#those are my ultimate guilty pleasure but it's like they take place in an entirely alternate universe#i mean they're like soap operas so they're not exactly realistic in the first place#but PLEASE tell me why the MLs congenital brain/heart condition/poisioning/cancer/paralysis/epilepsy/whatever#are always magically healed with the FLs silver needle set#just watched one where the wheelchair bound ML recieved FL acupunture treatment and was walking not a day later#no muscle atrophy there!#and another where the FLs dad's tuberculosis or w/ever (coughing up blood condition LOLOLOL that's a whole other subtrope) was basically#CURED by the ML's friend's acupuncture#chinese medicine definitely has it's uses that's for certain but NOT with terminal hospice-inducing illnesses LMFAOOOOOO#UPDATE KEPT WATCHING THE 2ND ONE AND THE MLs FRIEND COULD ALLEVIATE THE DAD'S TERMINAL ILLNESS BUT CAN'T CURE THE ML AFTER HE WAS DRUGGED#WITH AN APHRODISIAC LMFAO MAYBE IT'S BC HE USED NEEDLES FOR BOTH AND IT'S NOT ACTUALLY A CURE ALL LMFAOOOOOO PLOT ARMOR PLOT ARMOR LMFAO
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Save Youssef and Nour
This is Nour, a seven-year-old girl from Gaza. Before the genocide, she was like any other girl her age. Her first year of school was about to begin. She was excited; her parents had just bought her a brand-new backpack and she couldn't wait to show it off!
Just two weeks into her first school year, Israel launched its genocidal offensive on Gaza. Nour's education, along with her childhood, came to an abrupt end.
This is how Nour, and her brother Youssef (12), are living now:


Despite months of campaigning, Youssef and Nour's parents have only managed to raise a little over €7,000. With temperatures already dropping, they're increasingly worried about how they will survive another winter in Gaza. The tent they're living in leaks when it rains, and Salah, the father of the family, has been struggling to secure medicine for his epilepsy.
Initially, the family started the fundraiser with hopes of rebuilding. However, after multiple displacements and several near-death experiences, they’ve made the difficult decision to begin saving for an evacuation.
If you can, please consider donating so that Youssef and Nour may have some small semblance of security again!
[Vetting info / Art by @virfujiwara]
- Donation link (GFM)
Currently at: €7,868 / €70,000
#thank you again to virfujiwara for the art!! ❤️#if you can't donate then please help by sharing#manarsalahfamily3
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