#and I can actually do this with CF

[t4tozier]

any mobility aid users with fatigue and (mostly) no pain? i’m trying to figure out if there’s anything i can do to help with my fatigue when i still have to like. go out into the world

my friend let me borrow an extra cane of theirs but i only used it for a short trip to the mall so i don’t think i got a full idea of what it would do to help me, they use forearm crutches now and i’m feeling like that might be helpful for being able to rest on them? i don’t have chronic pain but when i can’t sit down i’d like to have something i can rest on a little without hurting my wrist.

most mobility aid users that i’ve seen so far have chronic pain in addition to fatigue or other issues so i don’t know if their advice is the most applicable to my specific situation. so if anyone has any recommendations for specific types of aids or even a particular cane brand, etc that works for them that would be much appreciated

[mixed-up-metaphors]

unfortunately i will not be explainign this either

good luck following along, numbering the parts barely helped lol (also my handwriting is a disaster)

[mosscaps]

the arguments against self diagnosing any illness sound very funny when you’re a chronically ill guy that’s been trying to get diagnosed for almost a decade with something 90% of doctors don’t even believe in or blatantly don’t care about and they will say directly to your face “yeah so you have all the signs of this and we’ve ruled out a lot of other things but we just don’t know enough about it so we cant diagnose you” and diagnosis wouldn’t even get you the resources you need because those resources barely exist in the first place slash we don’t know what would help because, see above, medical professionals deny the existence of this very real condition or set of conditions, and so there isn’t enough funding or research behind it. the ouroboros of a terrible healthcare system should not stop you from trying to determine what resources you need even if that means just saying you have the thing so you can move forward. if you need treatment for xyz symptoms, even if you do not necessarily have the condition most associated with those symptoms, you still need treatment. there is not a real house md out there cooking up the perfect diagnosis to your condition while violating many professional and ethical boundaries that i would absolutely let him violate if he could, you know, accurately diagnose and treat me. instead you have to do what you can do with what you have and if you disagree that it is necessary to “”play the system”” to get potentially life saving care, then you have never had the marginalized usamerican experience and i wouldn’t wish it on my worst enemy but if you keep insisting self diagnosis is the problem, instead of like, the horrors of capitalism, i wish you stuck in a doctors office for an hour and a half only for them to suggest you might feel better if you take a multivitamin or lose some weight.

[liebelesbe]

had to get up before 11am to go to a doctors appointment, you know what that means! (nap time)

[hellyeahsickaf]

Welp

My food isn't even ready to be taken out and I feel like throwing up so fuck me I guess

[a-walking-fandom-reference]

yesterday was productive i showered and i cleaned up and organized my things… today i have been sleeping on the couch next to the window where my cat sleeps in a sun beam

[dimiclaudeblaigan]

"sway" you? like, buddy, the only reason you even joined them was because they defeated you in war, not because you believed in their cause.

also "the right thing" is a pretty good summary of "why the fuck are you with our enemies fighting for them when they invaded our home and forced this on us".

don't mind dimitri in the screenshots he ends up in like almost all my screenshots that have nothing to do with him bc aux battles

[scorpiusmalfoylovesoscarwilde]

what do you mean my disabilities disable me 😟😟😟😟😟😟 what do you mean they aren't just funny little things that make me quirky and I can joke about 😟😟😟😟😟😟 what do you mean they're actually delibitating and prevent me from doing things 😟😟😟😟😟😟😟

[sleepless-in-starbucks]

<3 ( ˘ ³˘)♥ ( ˘ ³˘)♥ ( ˘ ³˘)♥

<3

[elektroyu]

Back from the psychiatrist, where I get my sick leave slips. Today my usual doc was sick so someone else took over and let me tell you. Medical gaslighting, she was really good at that.

[swordsonnet]

unstoppable force (my desire to write) meets immovable object (my chronic illness)

[devotedlystrangewizard]

my desire to see the other routes vs my desire to replay cf over and over and over and over a

[oneofthestartrips]

I wish I knew what was wrong with me. I've barely been able to move or think or focus for days. I wish I knew if it's depression and working out would help. I wish I knew if it was cfs and working out won't help. I just wish I had a manual to tell me what to do to make this stop.

[mayax81]

.

[hellyeahsickaf]

I got those no rinse bath sponges, like the kind they use in hospitals and I should have invested in them sooner. I'm making food right after using them since it saved me a fair amount of spoons. Most of the time I can't shower and have a meal in close proximity to each other. I just hope I can physically eat what I'm making

[haedia]

Some chronic condition grumbles for the day

Goddamn. Today was just all about my body taking a highlighter and underlining pen to my medical shit and reaffirming that yes, I do have ME/CFS and Post-Exertional Malaise shit.

I had too many days of "activity" lately. At least, of the mental stimulation variety. Physical? pfft. No, not really. But all the effort I was able to put into my most recent art piece, plus the fitful, broken sleep I've had two of the past three nights, meant that today has been mostly me teetering on the edge of a fatigue crash. It's felt like after 9pm or even midnight for me since 2pm. I crashed out for a few hours after 3ish? I don't know. My best friend (whom I picked up at the airport earlier) woke me for dinner a little before 6 maybe? The brain fog takes away my ability to process time when it's bad enough. So I'm not entirely sure how things went down after we got home.

I still feel like I've been through the wringer. But at least I'm not getting the orthostatic intolerance shit? (yet). I don't have too bad of fatigue nausea either. And my skin is only a little achy today. So. There are some small victories even if I feel like trash in every other way.

God, I hate having this condition. It's a grief-inducing, life-shrinking existence.

I can only hope that I don't wake up feeling worse tomorrow. Better isn't a guarantee; it hasn't been in years. But not worse is what I hope for.

It's something.