#and I can actually do this with CF

[almostfini]

Urgent Action Needed

Link to article

This article is from a week ago. Now they're saying they're also cutting telehealth access to Medicare aka seniors and disabled people! People will DIE if this happens. News is mostly reporting it misleadingly as "coverage extended to March 31" in other words they are CANCELLING healthcare access to disabled/elderly people to save a few bucks.

Please reblog and contact your congress people if you're in the US

[t4tozier]

any mobility aid users with fatigue and (mostly) no pain? i’m trying to figure out if there’s anything i can do to help with my fatigue when i still have to like. go out into the world

my friend let me borrow an extra cane of theirs but i only used it for a short trip to the mall so i don’t think i got a full idea of what it would do to help me, they use forearm crutches now and i’m feeling like that might be helpful for being able to rest on them? i don’t have chronic pain but when i can’t sit down i’d like to have something i can rest on a little without hurting my wrist.

most mobility aid users that i’ve seen so far have chronic pain in addition to fatigue or other issues so i don’t know if their advice is the most applicable to my specific situation. so if anyone has any recommendations for specific types of aids or even a particular cane brand, etc that works for them that would be much appreciated

[mixed-up-metaphors]

unfortunately i will not be explainign this either

good luck following along, numbering the parts barely helped lol (also my handwriting is a disaster)

[liebelesbe]

had to get up before 11am to go to a doctors appointment, you know what that means! (nap time)

[hellyeahsickaf]

Welp

My food isn't even ready to be taken out and I feel like throwing up so fuck me I guess

[a-walking-fandom-reference]

yesterday was productive i showered and i cleaned up and organized my things… today i have been sleeping on the couch next to the window where my cat sleeps in a sun beam

[dimiclaudeblaigan]

"sway" you? like, buddy, the only reason you even joined them was because they defeated you in war, not because you believed in their cause.

also "the right thing" is a pretty good summary of "why the fuck are you with our enemies fighting for them when they invaded our home and forced this on us".

don't mind dimitri in the screenshots he ends up in like almost all my screenshots that have nothing to do with him bc aux battles

[sleepless-in-starbucks]

<3 ( ˘ ³˘)♥ ( ˘ ³˘)♥ ( ˘ ³˘)♥

<3

[wackyworldcomics]

Was relistening to "Popular" from Wicked and immediately realized that Ryo is a lot like Glinda. I am stupidly obsessed with this strange little man who won't be in the pilot, but boy will you get to see him later on (mostly to the annoyance of Claire and Atka, but they still see him as a friend). Man- I wish I had the energy to color this. In the future, I might find the time. Because "Popular" is their relationship to a T.

Anyways- please ask me about Cave Finders! Pilot coming out whenever I get to it! @wackyworldcomics

[haedia]

Some chronic condition grumbles for the day

Goddamn. Today was just all about my body taking a highlighter and underlining pen to my medical shit and reaffirming that yes, I do have ME/CFS and Post-Exertional Malaise shit.

I had too many days of "activity" lately. At least, of the mental stimulation variety. Physical? pfft. No, not really. But all the effort I was able to put into my most recent art piece, plus the fitful, broken sleep I've had two of the past three nights, meant that today has been mostly me teetering on the edge of a fatigue crash. It's felt like after 9pm or even midnight for me since 2pm. I crashed out for a few hours after 3ish? I don't know. My best friend (whom I picked up at the airport earlier) woke me for dinner a little before 6 maybe? The brain fog takes away my ability to process time when it's bad enough. So I'm not entirely sure how things went down after we got home.

I still feel like I've been through the wringer. But at least I'm not getting the orthostatic intolerance shit? (yet). I don't have too bad of fatigue nausea either. And my skin is only a little achy today. So. There are some small victories even if I feel like trash in every other way.

God, I hate having this condition. It's a grief-inducing, life-shrinking existence.

I can only hope that I don't wake up feeling worse tomorrow. Better isn't a guarantee; it hasn't been in years. But not worse is what I hope for.

It's something.

[hellyeahsickaf]

I got those no rinse bath sponges, like the kind they use in hospitals and I should have invested in them sooner. I'm making food right after using them since it saved me a fair amount of spoons. Most of the time I can't shower and have a meal in close proximity to each other. I just hope I can physically eat what I'm making

[sadlittlestray]

i have bad flu aches rn (from cfs not from the flu i'm in the middle of moving) but i cooked a meal before the ingredients went bad :) i made golden curry

[dimiclaudeblaigan]

I'm... kind of confused about this? Like Ignatz is basically saying the only way for people to move forward is by continuing to fight and destroy? That's a pretty awful message in general, but coming from Ignatz it just feels weird. It sounds like he's just accepted war and that it's just... something that happens so we should shrug it off and move on?

I know this game tends to have very strong pro-war/pro-invasion messages which is already really gross to me, but it went from being annoying and icky to just making me feel disgusted. Also, Ignatz of all people shouldn't just shrug his shoulders and be like well that's just the way of things, I guess! There's an active war going on so it makes sense that towns could be rebuilt and destroyed again. It doesn't mean just give up on it.

Also really doesn't feel like an Ignatz thing to say.

[thebibliosphere]

Hope this isn't offensive (feel free to ignore if it is) but what illnesses do you have? I always see very detailed posts from you about different types of hyperspecific injuries or illnesses and I was wondering if you're just super well informed or have all of them.

Which is very helpful and cool for people who need the info, and I'm sorry if you are experiencing all those.

Oh, Christ. Right this is going to be a lot 😅

Conditions I have been diagnosed with as of 2024:

Ehlers Danlos Syndrome

Mast Cell Activation Syndrome

Dysautonomia/POTS/autonomic failure (they all mean a similar thing. I just have them all listed in my file because no one can decide what I actually have beyond “nervous system broke”)

Chronic Migraines

Hemiplegic Migraines

Cluster Headaches

Cranial Instability (caused by my EDS + neck injuries)

Trigeminal neuralgia

Occipital Neuralgia (caused by the cranial instability)

Binocular Vision Disorder

PMDD (likely linked to the MCAS)

Probably endometriosis but it’s unconfirmed.

Interstitial cystitis (definitely caused by the MCAS)

GERD (a symptom of my MCAS)

Pernicious Anemia (likely linked to the EDS and MCAS. I don’t absorb nutrients from my food as well as I should which is common when MCAS damages the GI tract.) which lead to hemolytic anemia in 2019 aka the “Almost Died For Real” year.

ADHD.

cPTSD

Dysthymia or “double depression”

“Probable ME/CFS” is in my file, but with everything else going on chronic and debilitating fatigue is pretty much unavoidable so my doctors are like 🤷🤷‍♀️

I had an intestinal perforation a few years ago that lead to severe diverticulitis that took about a year and a half to heal, but that’s healed now save for the occasional bout of nerve pain.

Uuuh… I think that’s it… (wait and see my spouse/friends chiming in with “you forgot about x”)

So yeah.

Chances are if you see me talking about it, I have it. I do sometimes talk about other conditions that I’ve learned about over the years of navigating my own stuff, but I will always defer to the lived experiences of others when it comes to their own conditions.

It’s a lot to deal with. Most of it links back to the MCAS/EDS/Autonomic failure.

Or as we like to call it: the generic trifecta of bullshit.

[unveilandresist]

by January 10th 1 in 3 people will have had this wave of covid. covid causes long term damage with each infection and wears down your immunity. you do not want this. there is no cure for long covid or me/cfs and there is a significant chance (last I checked I think it was 1/5 infections) of getting long covid that increases with each infection. please protect yourself and your loved ones by wearing a mask. variants have become more transmissible so a n95 or kn95 is the minimum protection to keep yourself reasonably safe(r) from getting covid.

it is important to understand often viruses do not simply clear up and go away. like chicken pox and shingles or what we now think of as polio that is actually post polio syndrome. polio symptoms were mild and 75% of cases are asymptomatic. we do not yet see the full scope of what this virus will do over our lifetimes. as someone who had my entire life derailed by me/cfs after having mono, (almost 10 years ago! it hasn't gotten better!) we have to take pathogens more seriously if we care about ourselves and our communities.

I'm willing and open to talk with people who want to understand better what covid does to our bodies and how we can best practice community care and also harm reduction if we're stuck in unsafe situations at home or work (certain mouthwashes and nasal sprays can help).

if you're watching what's happening in Palestine and live in the US, the government doesn't care about your life either. They lied about palestine and they lied about covid too. It is not just a cold.

[lunavrse]

WHAT YOU HEARD

LANDO NORRIS

summary ★ : streets are saying yn finally broke up with her loser boyfriend and guess who couldn't be happier? if you guessed lando, you'd be wrong, it's actually her (but lando's a really close second).

category ★ : smau.

notes ★ : disregard all times and dates, they don't matter. all spelling mistakes are intentional. with that out of the way, finally someone other than charles even though i still have like 2 drafts for him that i need to finish. ntm on the banner and article 😶‍🌫️. when you get to the hello kitty reactions pls just scroll💀 it was funny when i made it but now it's just... and i cba to remove it. sorry this is so short 🙏.

part 2

yn_ln added to their story.

user00: oooh, girl's night????

user01: love seeing my fav wags out and about

user02: what happened to your foot? hope you're okay🫶

yourfriend: lils on her phone probably texting alex🙄 they make me sick w how cute they are

user03: y'all look so good🥴

user04: I just know that club's hot as satan's arsehole, how do you look so good? what's your secret🎤

alex_albon: please bring my girlfriend back in one piece🙏

yn_ln: nah, she's my girlfriend now😪

user05: no ezra? break up abeg

maxfewtrell replied to your Close Friends story : did you forget she's on your cf

landonorris: do you think i'm stupid? obviously i removed her before posting this

maxfewtrell: so you do have a working brain cell🤗 congrats🎉

monaspencer replied to your story : wasteman is hilarious but deserved.

alex_albon replied to your Close Friends story : may your efforts fail 🤞🙏

landonorris: WOW🤣🤣

alex_albon: nothing personal mate🤷‍♂️

landonorris: WDYM nothing personal, you're literally cursing me😒

randomfriend replied to your story : VINDICATION!!! i knew you couldn't read🥳

alex_albon replied to your Close Friends story : why did he have to be such a simp, now i owe lily and mona money

yn_ln: you're a millionaire, you can afford it, so suck it up king👑🫶🏽

monaspencer replied to your Close Friends story : you just made me 200€ richer😘

yn_ln: i actually don't want to know...

lilymhe replied to your Close Friends story : now alex owes mo and i money, thank you🙏🏻

yn_ln: glad to be of service?

landonorris replied to your Close Friends story : i wonder who that handsome guy is

yn_ln: some stray i found wandering around and out of the goodness of my heart, i decided to bring into my home

landonorris: you're not funny

yn_ln: then why were you laughing at all my jokes earlier?

landonorris: i was laughing at how bad they were😕

yn_ln: sure...

charles_leclerc replied to your story : tangled on a date? how romantic

yourfriend replied to your Close Friends story : this doesn't look very "im done w yt men" 🤔

yn_ln: you're in my business, don't do that😁

yourfriend: but it's so interesting 🥴

⤷ end note ‧ ★ : made a cute lil divider so hopefully it distracts you from everything else😋. honestly this took so long bc i was mostly working with vibes, no writing, no thoughts, just vibes. i don't know how some of y'all are so fast, like you guys amaze me, my goal is to just get more than 1 smau per month out. also i will no longer be writing for charles leclerc bc someone said he looked like noah schnapp and i can't unsee it 💀💀 gonna have to change the drafts🥲