#adult services are going to be around alongside nurses
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It feels like every time life gets to be slightly okay everything goes wrong
#my mom has stage 4 terminal cancer#we dont know how long she has she wants to fight it#adult services are going to be around alongside nurses#my dad is worried theyll take her and put her in some sort of care home and honestly i dont know how to feel#ive already cried and gone through some pre death grief#but like. ive been taking care of her giving her meds and keeping her as clean and dressed as i can#but she just threw a toddler esque fit#and i understwnd shes in pain but nobody prepares you for your mom suddenly deteriorating#im only 23 🙃#life sucks right now#i dont want her to die but also helping her as always been difficult and now its worse
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Meet The Staff of Misery High
Among other adult background characters terse from the show, you have the main four as staff. Alongside dishonorable mentions such as the Schwarzetigers, the professor (nurse), Chez (lunch lady). Aswell as new characters and counseling.
The more activate being these four, though presented as two.
[With a list of the others]
THE STAFF OF MISERY HIGH
AKA. THE ALDUTS
Lucuis Heinous. VII. | | Jezbelle Blue Horns
- PRINCIPAL - SECRETARY
- 50 - 45
- Mayor of Miseryville - Wife of Lucius
- Husband to Jezebelle
- Man of Misery & - Woman of Luxury
- Father of Beezy - Mother of Oswin
- Undress - 50's, Goth
- Aries - Cancer
Managing the school we have, Samy as Vice Principlal and Head admininastaor, Jez as Office Secretary at front desk and of course, Lucuis Heinous the Seventh as principal. The one keeping track of all the delinquents at Misery High.
Molotov's there too as the school's coach. His time of service being used as drill sarge.
Lucuis Heinous the Seventh
Crating the school only to have a place to put the already miniscule amount of teens in Miseryville. Stealing the idea from Heloise. Most importantly keeping his lowlife of a son and Two Shoes out of town's way. They and the all the other students now have to suffer in every teens hell, a High School.
Creating the school for the sole purpose of keeping the small amount of teens in Miseryville at bay, in order to keep track of their whereabouts. Creating every teens eternal hell, a high school.
His most notebale mark of misery to date. Still keeping his position as mayor. You'd think he'd have quite the workload ahead of him. Thankfully, that's what the Welcoming Comittee is for. He'll just send it off to Heloise.
Welcome to Misery High.
Jezebelle
Best dressed in office. Barely doing her job. Answering the phone with her stylish acrylics. If you have a problem, take it up with her husband, "Oh Lucuis~".
Samy
Still Lucius's by Lucius’s side. In charge of all office goings on and students events, mostly the drama club. Directing, casting, screenwriting and stage playing. Now put as V.P., perhaps there's more respect this time around.
Molotov
Drill Sargent. Miltary man. Putting these maggots to work everyday. Ensuring his soldiers are as fit as possible.
#Misery High#Misery High AU#Character Profiles#Alternate Universe#AU#Jimmy Two Shoes#Highschool AU#fanwork
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Prehistoric female hunter discovery upends gender role assumptions
Researchers have generally thought that only prehistoric males hunted—but what if evidence against that idea has been lying in plain sight for decades?
Hunting woman
A reconstruction of what hunting may have looked like in the Andes Mountains of South America 9,000 years ago. Based on the toolkit found in the female burial, archaeologists believe the hunter may have worn tailored leather clothing tanned with red ocher.
Matthew Verdolivo, UC Davis IET Academic Technology Services
Randall Haas, an archaeologist at University of California, Davis, recalls the moment in 2018 when his team of researchers gathered around the excavated burial of an individual lain to rest in the Andes Mountains of Peru some 9,000 years ago. Along with the bones of what appeared to be a human adult was an impressive—and extensive—kit of stone tools an ancient hunter would need to take down big game, from engaging the hunt to preparing the hide.
"He must have been a really great hunter, a really important person in society"—Haas says that’s what he and his team were thinking at the time.
But further analysis revealed a surprise: the remains found alongside the toolkit were from a biological female. What's more, this ancient female hunter was likely not an anomaly, according to a study published today in Science Advances. The Haas team’s find was followed by a review of previously studied burials of similar age throughout the Americas—and it revealed that between 30 and 50 percent of big game hunters could have been biologically female.
This new study is the latest twist in a decades-long debate about gender roles among early hunter-gather societies. The common assumption was that prehistoric men hunted while women gathered and reared their young. But for decades, some scholars have argued that these “traditional” roles—documented by anthropologists studying hunter-gatherer groups across the globe since the 19th century—don’t necessarily stretch into our deep past.
While the new study provides a strong argument that the individual in Peru was a female who hunted, plenty of other evidence has long been lying in plain sight, says Pamela Geller, an archaeologist at the University of Miami who is not part of the study team.
Tools
The toolkit found in the burial includes projectile points; hefty rocks likely for cracking bones or stripping hides; flakes for scraping and cutting; and nodules of red ocher used to preserve hides.
Randy Haas, UC Davis
"The data is there,” Geller says. “It’s just a matter of how the researchers interpret it.”
Whose tools?
When archaeologists excavated the burial, they found a colorful array of 24 stone tools. Among them: projectile points for taking down a large mammal; hefty rocks likely for cracking bones or stripping hides; small, rounded stony bits for scraping fat from pelts; tiny flakes with extra sharp edges that could have chopped the meat; and nodules of red ocher that could help preserve the hides. Scattered around the site were fragments of the bones of animals including ancient llama relatives and deer.
In initial discussions about the toolkit, the researchers presumed the owner was male, perhaps a prominent figure of society, or even a chief of the group. “I’m as guilty as anyone,” says Haas, who has been working in the region since 2008. “I thought yeah, that makes sense with my understanding of the world.” Back in the lab, however, close inspection of the bones suggested the physiology of a biological woman. To confirm, they analyzed a protein that forms tooth enamel and is linked to sex.
Importantly, the team cannot know the individual’s gender identity, but rather only biological sex (which like gender doesn’t always exist on a binary). In other words, they can’t say whether the individual lived their life 9,000 years ago in a way that would identify them within their society as a woman.
Challenging assumptions
The 2018 discovery does pose a challenge to gender binaries commonly assumed for our early ancestors: Men acted as hunters, women acted as gatherers. This assumption comes from studies of modern hunter-gatherers, where men more frequently are responsible for the hunt while women bear the most responsibility for caring for children, says Arizona State University’s Kim Hill, who specializes in human evolutionary anthropology and was not part of the study team. “You can’t just stop in the middle of stalking a deer in order to nurse a crying baby,” Hill says via email.
Yet inferences from present-day hunter-gatherers have limits. For decades, Geller says, some archaeologists have argued that the simple view of male hunters and female gatherers is in fact an oversimplification. “With few exceptions, the researchers who study hunting and gathering groups—regardless of which continent they work on—presume that a sexual division of labor was universal and rigid,” she says. “And because it is commonsensical, they then have a hard time explaining why female-bodied individuals also bear the skeletal markers of hunting or have hunting tool kits as grave goods.”
When researchers have found signs of this discrepancy in the past, Geller says, “usually they don’t say anything, as if ignoring the evidence will make it go away.”
Hunting would likely require as many able-bodied adults as possible to increase safety and efficiency—regardless of their biological sex. After a child weans, the mother could be available to assist in big hunts, says Kathleen Sterling, an archaeologist at Binghamton University, who was not part of the study team. But even with babies, hunting could still be possible with community nursing assistance.
The meaning of burial goods
Spurred by their 2018 discovery, Haas’s team then dug in to reports of past excavations of early hunter gatherers throughout the Americas. Many past studies have unearthed similar presence of stone hunting tools in burials with biological females, yet each case isn’t necessarily clear cut. For some, the sex is not definite. In others, disturbed contexts made it uncertain if stone tools and remains were buried at the same time. And in still others, the few projectiles found in the burial could have even been murder weapons interred with their victims.
But when Haas’s teams reviewed the individual cases as part of a larger data set, they found that of the 27 of 429 burials with individuals of known sex who are were buried with hunting tools, 11 are female—including the newly identified remains—while 16 are male. The many uncertainties (such as disturbed context and sex identification) are present in burials of both males and females, Haas says. So even when the most uncertain cases were excluded, the abundance of burials with hunting tools among females and males remain similar.
“These patterns are not at all what you would expect in a population if males were [the only] hunters,” Haas says.
ASU’s Hill says he’s not yet fully convinced that the female individual buried 9,000 years ago was actually a hunter in life. Burial goods, including hunting tools, could have been placed there because of symbolic or religious beliefs, he cautions.
Did the newfound toolkit belong to the buried individual? Sterling challenged the inquiry itself. “We typically don’t ask this question when we find these toolkits with men,” She says. “It’s only when it challenges our ideas about gender that we ask these questions.”
Geller adds: “There’s so much mental gymnastics that go on trying to explain these things away.”
The toolkit discovered in the 9,000-year-old burial was quite diverse, including both precious implements, like projectile points that are challenging to make, as well as more mundane tools, like stone flakes that can easily be crafted by smashing rocks. This hints the tools weren’t some type of offering; rather, it points to the objects being used by the individual in life, Haas contends. There’s also strength in the numbers, with an abundance of females now found to have been buried with tools throughout the Americas, Sterling adds.
For Geller, the debate has important implications for today. “There’s so much gender disparity going on right now, if we were to presume that there’s something that biologically predisposes us, then you’d be able to justify that gender disparity,” she says. “To me that’s dangerous, and completely unsubstantiated.”
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I will say, I am hungry again and I have a few ask for your Willumity/Vinira headcannons. HOWEVER to be fair to you. This time I will restrain myself and simply ask for you to share any headcanons you want to share as of now!
You can ALWAYS ask for more Willumity.
A L W A Y S
But!! Since you’ve given me free reign to just play in this sandbox, that’s exactly what I’m gonna do
We all agree that Luz is hella ADHD. This girl will talk for HOURS about the shit she likes. If something grabs her attention, she wants to know everything about it. She doesn’t like being told to do things, but she loves being asked to do things. For example: if someone tells her she needs to do a thing her brain will immediately click into the “No” position and will refuse to budge. If someone asks her to do something, her brain clicks to “help? I can help? I can help with a thing for this person? Yes! I’ll help this person with this task because it will make them happy! Yes! I can help!” This is why acts of service resonate so strongly with her.
I don’t know what mental diversity looks like on the Boiling Isles considering how just. Horror-based everything is? But I’m 100% on that autistic Amity train. She has to do things a Certain Way or she’ll teeter on the edge of a meltdown. She refuses to touch/eat certain textures. She usually doesn’t know what the appropriate response/reaction is to a given conversation, especially with her socialite friends, which is why she just remains a cool mask of indifference. She’ll inspect every detail of anything that’s handed to her. She’s incredibly smart, but doesn’t always know how to convey what she knows and understands into words other people can understand. The only people allowed in her personal space are her siblings. Eventually that also stems to Luz and Willow, maybe more as she grows more comfortable with herself? But usually anyone getting in her space is overwhelming and alarming. Defo has a hard time regulating/processing her emotions.
I need to make an entire post dedicated to Augustus Porter because my boy deserves it, but I’ll toss some random things here. He has a signed poster from the head of the Illusionist Coven framed on his bedroom wall. He and his dad have bi-weekly after-dinner standup comedy sessions with each other (Perry has kept a secret journal of all of Gus’s best jokes he’s done over the years that he reads whenever he needs a pick-me-up).
Perry and Eda knew each other in school in passing. Their social circles overlapped but they were never hanging out in the same groups. When Gus is very little (like, maybe 3 or 4?), Perry takes him to the market to just wander around and they find Eda’s Human Collectibles Stand. She and Perry catch up, he introduces her to his son, and Eda (ever the saleswoman) pulls out some shiny human thing that Gus is immediately taken with. In between her and Perry catching up, Gus asks her a million questions about the thing he’s been given and then even more questions about other stuff at her stand. She actually finds it really fun to show off her human shit to someone so enthralled by it. She makes some stuff up here and there just to mess with him, but he’s too young to realize it’s a joke or not true, and takes everything at face value. We all know Eda likes to get a little theatrical with her sales pitches; she does the Salesperson act with everything Gus asks her about. She lets Gus take a couple items home just because he was such a riot and Perry insists he pay for something, but Eda just waves them off and tells him that this is just an investment in a lifelong customer. She had no idea how right she was because Gus defo became obsessed with human culture from that point on. He also picked up on Eda’s super theatrical sales pitches (because he thought it was funny and because he thought that’s just how you’re supposed to show human stuff to people) and began showing off his own “human collectibles museum” to his dad with the same theatrical voice. Perry plays along with this too (as a news anchor he’s got a great announcer voice) and ta-da! That’s how we get the boy we all know and love today. It’s 100% Eda’s fault, but Perry definitely encouraged it because it made his son so happy. That’s also why Gus doesn’t seem especially perturbed at meeting Eda for the first time in ep 3. Or for interjecting his new Human Knowledge in the moment she was patting Luz’s head. He’s used to having conversations with her about human junk whenever she has her stand up. Eda’s secretly relieved that one of Luz’s new friends is actually someone she kinda knows. It’s Perry’s kid, and Perry’s a good guy. His little squirt seems to be growing up to be pretty good too.
Eda scoffs at “nerdy” shit as if she hasn’t owned the Clawthorne Braincell her entire life. “She worked twice as hard” “-that just made me work harder than you!”. Eda’s extremely smart and extremely talented. She likely created the secret room of shortcuts entirely on her own. She probably studied in the school library constantly, but under the guise of causing mischief. And like. She probably did both. She was a potions track kid so she probably knew all the best ways to make stink bombs that she could leave hidden in the shelves. She hated school because she was so limited and stifled; she only wanted to learn magic and was told no at every turn. So when she learned magic on her own, yknow, without the guidance of a teacher, there’s bound to be some major fuck ups. Once she’s fine-tuned her mistakes though, she absolutely turns them into pranks. You say I’m not allowed to study multiple tracks, bumpikins?? Well how’s THIS!!! How’s THAT for focus??? (Half of her pranks were also just her showing off and desperately hoping to prove that she could learn any type of magic and couldn’t be constrained to just the one. Bump recognized this of course, but he had strict guidelines to follow and no Luz Noceda to call him out for it.)
Camila treasures her daughter more than life itself. I personally refuse to headcanon anything to do with her extended family or why she’s a single parent (too many variables and options that could be addressed in the show), but I do know that she loves Luz more than anything. It’s exhausting being a single mom, working as a nurse, and trying to be there for her ADHD daughter when the rest of the world doesn’t seem to want her. It hurts her so much to see her baby, the light of her life, her Luz, be brushed aside and written off as “the weirdo”, or bullied, or even outright hated by some people just because she’s a little different. She’s had to have some words with the school staff for how they treat her on occasion. Did you see that Principal’s death glare in the first ep?? He hates her. Camila’s there not just because she’s Luz’s parent, but also to act as a barrier between the principal and Luz. She would move Heaven and Earth for Luz, but it can be a lot when you’re the only adult around. I truly believe she wanted Luz to go to that camp to learn how to be friends with kids that didn’t already know her or her quirks. Even she sounded unsure of what they would do at that camp, but she had full faith that this would be Luz’s opportunity to make friends with other kids that could teach her to like....more mainstream stuff. So she could learn how to mimic their (hopefully, toned down) behaviors. She just wants her baby to be accepted by others.
This next one’s a doozy so hold on to your butts
Lilith is technically smart. And I mean that in a literal sense - she can read and understand the fundamentals of magic, the concepts and execution of complex spells, recite entire chapters of Boiling Isles history, you name it. Many adults in her youth called her gifted because of it. All she actually did was absorb the information and regurgitate it when asked. She thrived on the praise she received. What made her different from her sister is that she never wanted anything more than to do as she was told. Her biggest goal? Her dream job? Was to just be given orders by the Emperor. I’m sure there’s all sorts of flowery propaganda surrounding that, advertising how incredible it is to be in the Emperor’s Coven, what an honor it is to work alongside the witch that can speak to the Titan. But it’s literally just. Taking orders. And knowing you’re somehow better than everyone else because you’ve been selected to be among the elite. She never strived for anything more; she never wanted to do anything else but enforce the Emperor’s will because that was “the highest honor” a witch could have. As a result (or in conjunction rather) she lacks literally any amount of foresight. There’s only one braincell in the Clawthorne Family and her sister has it because this dumbass doesn’t think about anyone but herself. Instead of talking with Eda about what they should do when they were told there was only one spot left in the Emperor’s Coven, she walked away. Only thinking of how she could secure her victory. She didn’t ask Eda how she felt about the situation, she didn’t let Eda speak her mind about what her own desires were; Eda made it clear enough that she just wanted to be by Lilith’s side, she didn’t care what that meant. She just wanted to be with her big sister. Eda tried to reach out to her to discuss their cirumstances, but Lilith just walked away like the broody, self-centered teenager that she was and resolved to cheat her way to victory. When Eda knew this was her dream. Why would she think Eda would take away her dream???? She could’ve asked Eda to throw the duel? She could’ve asked her to fake the match? Or even fake sick? Or just not even shown up! If she didn’t show up it could’ve counted as a forfeit and Lilith would’ve earned the spot by default! But no, she had to ruin her sister’s entire life in an act of cowardice and dishonor because she’s so full of herself and didn’t read the fine print. She loves her sister, of course she does, but she’s so self-absorbed that she’s never seen Eda for who she actually is and wasted both of their lives as a result. And this is all just analysis of her character and that flashback, this isn’t even headcanons. I think if she has any amount of respect for her sister (she doesn’t), her redemption will have to go far far beyond an apology and taking on half the curse. When I say Lilith is a dumbass, this is specifically what I mean. She doesn’t think about how her actions will affect those around her. She was the Head of the Emperor’s Coven, literally one of the most powerful positions she could possibly be in on the Boiling Isles and still sacrificed Amity’s dignity and years of hard work just so she could be ensured that she could one-up her sister. She did this in front of everyone in attendance of that Witches Duel. She risked Amity’s credibility as a witch, as a Blight, and as a person just to fuel her own ego. It’s no wonder Amity was so upset; the witch she’s been idolizing her whole life didn’t think she had what it took to best a human that couldn’t do magic in a witches duel. That can fuck up your self esteem something fierce. And Lilith hardly seemed to give a shit!!!! She didn’t care that she just trashed Amity’s reputation in front of dozens of spectators!!!! I’m v bitter about Lilith as a character in case you couldn’t tell.
If I had to throw a headcanon in, I’ll toss one in that sterling and I have discussed: Lilith literally doesn’t know how to live her life as an independent adult. Sure, she knows how to like. Make herself some easy dinners? But that’s literally only because she used to make herself and Eda dinners when they were kids. Beyond that, she has no fucking idea. She can do the basic household chores any teenager knows how to do, but she’s lived in the Emperor’s Castle with the rest of the Coven since she joined. It’s kind of like living in a college dorm; food and a room is provided, there’s maybe a laundry service, she’s never had to pay taxes in her life (not that Eda does, but yknow). The only things she buys for herself (if she doesn’t make it herself) is her hair dye and books. When she first moves in to the Owl House, she has no idea how the household chores are done. She’s on House Cleaning Duty Eternally and the first......I’ll say year. Eda will wake her up by banging pots and pans over her head once every month and scream-singing about how it’s House Cleaning Day, pull out her lawn chairs and some lemonade, and she and Luz (and sometimes King) will just sit back and relax and watch the show that is Lilith trying to clean Hooty. Hooty does not like to cooperate with her (partially because Lilith is a special friend and partially because he knows how much joy it brings Eda and Luz to watch her struggle).
Oof I could go on but this is already one hell of a post huh? Sorry (not really) for dragging Lilith so hard; not a joke, tumblr made me split hers up into two bullet points because it couldn’t comprehend my ranting for so long in one bullet point. I do love sharing these with y’all though, they’re so much fun and I’m so glad you guys like my rambling. <3333
#prinxly inquiries#wam-hope#the owl house#toh headcanons#toh meta#luz noceda#amity blight#augustus porter#gus porter#perry porter#edalyn clawthorne#lilith clawthorne#camilia noceda#camila noceda#long post#lmao warning for y’all I defo drag Lilith through the mud in this one#finally an excuse to release all my pent up rage and explain why I think she’s such a dipshit
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Understanding The Distinctions In Between A Will And A Trust Fund
Living Wills And Also Development Directives For Medical Choices
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If You Don'T Intend To Utilize A Lawyer
Sign Your Will In Front Of Witnesses.
To Determine That Will Take Care Of Your Minor Kid
Trick Documents To Have Alongside Your Last Will And Also Testament.
When Should You Obtain Lawful Advice To Compose Your Will?
Full An Estate Tax Form.
Making Use Of A Lawyer To Write Your Will
What Is Probate?
What To Anticipate From Your Lawyer
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To Identify Who Will Care For Your Minor Children
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Agency has become a key concept within history, especially since the rise of the “new” social history. But many historians treat agency as a uniquely human attribute, arguing that animals lack the cognitive abilities, self‐awareness, and intentionality to be agents.
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God had a wife, Asherah, whom the Book of Kings suggests was worshipped alongside Yahweh in his temple in Israel, according to an Oxford scholar. In 1967, Raphael Patai was the first historian to mention that the ancient Israelites worshipped both Yahweh and Asherah.
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It's likewise a wonderful opportunity to have one-to-one time with your child. If you're not sleeping at the exact same time as your infant, don't bother with keeping your home quiet while they sleep. It's good to obtain your child used to resting with a specific quantity of noise. Some quickly rest with the evening, while some do not for a long time.
keep documents of the amount of hours you work as well as the number of hrs you are furloughed (i.e. not functioning). still have the ability to claim the furlough grant for the hrs their flexibly furloughed workers do not work, contrasted to normal hours they would have worked in that duration.
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Is libertarian free will?
Metaphysical libertarianism is one philosophical view point under that of incompatibilism. Libertarianism holds onto a concept of free will that requires the agent to be able to take more than one possible course of action under a given set of circumstances.
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Meet The Staff of Misery High
Among other adult background characters terse from the show, you have the main four as staff. Alongside dishonorable mentions such as the Schwarzetigers, the professor (nurse), Chez (lunch lady). Aswell as new characters and counseling.
The more active being these four, though presented as two.
[With a list of the others].
THE STAFF OF MISERY HIGH
A.K.A. THE ADULTS
Lucius Heinous Vll | | Jezebelle Blue Horns
- PRINCIPAL - SECRETARY
- 50 - 45
- Mayor of Miseryville - Wife of Lucius
- Husband to Jezebelle
- Man of Misery & - Woman of Luxury
- Father of Beezy - Mother of Oswin
- Undress - 50's, Goth
- Aries - Cancer
Managing the school we have, Samy as Vice Principlal and Head admininastaor, Jez as Office Secretary at front desk and of course, Lucuis Heinous the Seventh as principal. The one keeping track of all the delinquents at Misery High.
Molotov's there too as the school's coach. His time of service being used as drill sarge.
Lucius Heinous the Seventh
Crating the school only to have a place to put the already miniscule amount of teens in Miseryville. Stealing the idea from Heloise. Most importantly keeping his lowlife of a son and Two Shoes out of town's way. They and the all the other students now have to suffer in every teens hell, a High School.
Creating the school for the sole purpose of keeping the small amount of teens in Miseryville at bay, in order to keep track of their whereabouts. Creating every teens eternal hell, a high school.
His most notebale mark of misery to date. Still keeping his position as mayor. You'd think he'd have quite the workload ahead of him. Thankfully, that's what the Welcoming Comittee is for. He'll just send it off to Heloise.
Welcome to Misery High.
Jezebelle Blue Horns
Best dressed in office. Barely doing her job. Answering the phone with her stylish acrylics. If you have a problem, take it up with her husband, "Oh Lucuis~".
Samy
Still Lucius's by Lucius’s side. In charge of all office goings on and students events, mostly the drama club. Directing, casting, screenwriting and stage playing. Now put as V.P., perhaps there's more respect this time around.
Molotov
Drill Sargent. Miltary man. Putting these maggots to work everyday. Ensuring his soldiers are as fit as possible.
The Students of Misery High
Based on classic 90's archetypes, set in high school. You have the core three (as well as others) all sorted to fit their niche.
Basic Character Info, extend to learn more.
[Others will be posted soon].
MEET THE CAST
MAIN THREE
Jimmy Two Shoes | Heloise | Beezy J. Heinous
- JUNIOR - FRESHMAN - SENIOR
- 16 - 14 - 17
-Prep - Goth - Stoner
- Cheerleader - Welcoming Committee
- Capricorn - Libra - Taurus
Jimmy is now head cheerleader, Heloise is now head of student body, in charge of all goings on, and Beezy, is just Beezy.
..............................................................................................
Jimmy is now head cheerleader, based on his preppy attitude from the show he's here to spread cheer throughout the tortuous walls of Misey High.
Heloise is head of student body put of charge of the school's own Un-Welcoming comitte, which basically means, as always, she has more work than she's paid for. Working under Lucuis yet again, first for the town, now for the school. Sorting through paperwork, teachers reports and of course, welcoming in new students.
Beezy however, doesn't have a clique. He's a one man operation, too unbothered to make more friends than Jimmy, spending his days sleeping ontop the bleachers and smoking the devil's (Lucy's) lettuce.
All students are colored coordinated to their grades (Freshman in red, Sophomore in brown, Juniors orange and Seniors green).
#Misery#MiseryHigh#Jimmy Two Shoes#character bios#illustration#illustrator#story#original art#art#artist
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Gay and Sober
I’m intimidated by the thought of writing about this. There are multiple reasons as to why I perhaps shouldn’t express these thoughts. However, I have a problem. I have a problem and I feel as though trying to articulate it will help me cope. It is my hope that friends and family members will read this and understand my struggle. Maybe they or someone on the internet could also find solace in my story.
Basically, I have a drinking problem. Call me an alcoholic. Call me an addict. Any term under the umbrella of substance abuse likely applies. I write this at twenty four. Looking back over the past liquored up eight years of my life, the most traumatic experiences and biggest setbacks I’ve endured have had to do with alcohol. I pinned a guy in my dorm to the ground at eighteen and nearly got expelled from university. I went psychotic at twenty-one, experiencing auditory hallucinations and paranoid delusions. My psychiatrist deduced that it all transpired because I went off of my psychoactives cold turkey and started to self-medicate with wine. That turn of events forced me to withdraw from school for almost a year. In that time, I left random objects on my university president’s doorstep and nearly got arrested for trespassing. I also showed up drunk to the undergraduate library after withdrawal from classes and had to be escorted out by police. My relationship with alcohol is distinctly self-destructive and volatile. In March, I got hit by a motorist after a night out of drinking. I had recently quit a managerial position after over two years working there, lined up a prospective job with greater pay, and a couple of my coworkers bought me Jack Daniel’s as a farewell present. I wrote a goodbye letter that evidently still has a place of honor in the store. It was a bittersweet goodbye, but I was leaving a staff that I knew was going to miss me. From my end, that feeling was mutual. I also had a solid positive reference in my back pocket from my time there. I was ecstatic. To leave a job I really didn’t like was fabulous. To feel as though I was moving on in my career was even better. It was time to celebrate, of course! So, I imbibed. I guzzled hard liquor by myself and went to my usual haunt. I drank more there and tried to ride home on my bicycle. That’s when it all happened. The injury was severe. I sustained contusions on both sides of my frontal lobe and cracked a few bones in my skull. Emergency services were called and I was rushed to the hospital. There, it was determined that I was at a .27 blood alcohol content. Had I consumed a couple more drinks that night, I would have been legally dead. At the hospital, I was put into a medically induced coma and given a room in intensive care. The coma lasted roughly a month and I received inpatient physical, occupational, and speech therapy for another month before discharge. Multiple doctors, nurses, and therapists told me that based on the severity of the injury, I was expected to be discharged by November. I remember visiting the intensive care unit after being moved to the rehab unit. Multiple doctors and nurses who managed my case expressed verbal and physical disbelief that I was standing and walking. Several entered the unit for their shift, saw me, and would throw their hands in the air and turn around before greeting me. I don’t know the totality of their experiences in medicine, but I imagine several of their cases don’t end up walking and talking a month after coming out of a coma. They were unquestionably shocked to see me so relatively well.
Basically, I almost died. Mortality was clarified for me in March. The physical toll alone was nothing short of traumatic. In spite, I’m happy that my recovery has gone so unexpectedly well. I’ve gained 25 pounds of muscle back, I was discharged from outpatient therapies after two weeks, and I’m now looking at the possibility of returning to work. However, I’m not totally well right now. Despite all of the strides I’ve made over the past three months, I know I have an immense amount of work to do to get healthy again. However, I’m ill at this point for reasons unrelated to the somatic impact of my auto accident. The psychological consequences of my injury came later and asymmetrically. With the physiological component consuming most of my time, energy, and focus initially, I simply didn’t know how what happened was going to impact my mental health. With BPD on my diagnostic record, I’ve been depressed, anxious, and occasionally psychotic for much of my adult life. I’ve been in and out of psychiatry and psychotherapy since I was 18 years old. I’ve been hospitalized for psychological reasons twice. Having a degree in psychology and women’s studies, I know the annals and the phenomenology of mental suffering. Through both talk therapy sessions and undergraduate study, I am familiar with coping mechanisms and understand quite a bit about mental illness as a whole. With that said, the knowledge doesn’t necessarily lead to better mental health outcomes for my own struggles. I shouldn’t be drinking at all. In certain traumatic brain injury cases, to consume alcohol is to possibly have a seizure. I also developed blood clots in the hospital and was put on a powerful blood thinner. I’m off that prescription now, but it could have had complications with hard liquor. None of that kept me away from the bottle. I experienced a radical shift. Prior to the injury, I was working overtime hours every week and dating someone I was passionately in love with. He had a key to my apartment after one week of love drunk stupor. Suddenly, I was unemployed and single, my boyfriend breaking up with me in a hospital bed. It was jarring. That particular adjustment was perhaps as traumatic as the injury itself. I had free time and loneliness and ample opportunity for self loathing. Libations were perfect to indulge that stress and sorrow. Got a problem? Pour some plastic jug vodka on it. Let’s Popov off. I mentioned that I had a history of making serious, lasting, and self destructive decisions by drinking prior to March, but I was always able to control myself. I could stop. Now, I can’t. I can consume an entire fifth of eighty to one hundred proof liquor in one evening. If there’s some leftover when I wake up hungover, I drink it that morning. I can’t handle my liquor anymore. I’ve permanently damaged some friendships by sending weird and alarming text messages when I’m blackout drunk. Normally comprised of suicidal ideation, they’re pathetic pleas of “kill me.” Alongside the profound lack of self control, that depth of depression is what’s particularly alarming to me. I don’t want to get sober, but if I keep going like this, I’m going to die. It’ll be at my hand or with a broken bottle. Maybe both. At the least, my liver will fail or I’ll withdraw into delirium tremens or develop Korsakoff’s amnesia. Something. I’ll say again: I don’t want to get sober. However, little of that has to do with alcohol’s effects on my brain and body. Those certainly are factors, but it’s not the bulk of the story. I don’t need a drink to get through the day. It’s fun to be drunk! I like to party. I like relaxing inhibitions, but I don’t need a drink to function. The social and celebratory elements of drinking make it harder to leave behind. I’ve quit abusing other substances in the past because I was almost always using by myself. I like people more than I like drugs. Alcohol is different because that line between people and drugs is blurrier. There’s a distinctly social component to drinking that bears salience to my life. I’m gay. Bars and clubs, the spaces relegated to LGBT people by dominant culture, are centered around the sales and consumption of alcohol. That’s a fact. I’m also a drag queen, who are hired in part to facilitate that commerce. Alcohol was in the room when I first started to meet other gay guys at sixteen. Its omnipresence throughout my gay young adult experiences make it that much more difficult to go without. Booze is sometimes like an old friend; it has been my chaperone for years.
To leave alcohol behind would make me profoundly anxious, thinking that I would be leaving my friends behind too. My community matters to me. If there’s anything that the experience of surviving traumatic brain injury has solidified in my mind, it’s that I matter to my community as well. I’ve made friends in these spaces for years now. The gay bar has been a critical component to my sense of self and I’m terrified to lose that. A friend of mine might read this portion and roll his eyes. He once told me something like “People you party with are not your friends. They’re people you party with.” That may be true, but it’s connection. There’s a multitude of research literature on how social connections lead to better life expectancies and health outcomes. Unhappily married people tend to live longer than content single people for a reason. I don’t know how to mesh sobriety with my network of relationships in the nightlife scene. These people have welcomed me and held me, laughed with me and wept with me. I’ve devoted so much time and energy to drag performances to express my love and gratitude for my community. I don’t want to be without the people I’ve met in part through drinking. I wouldn’t be here without them. At the same time, many people in my nightlife existence know that I have a problem. I went out the other weekend for a going away party. After leaving the club, I went to my friend’s place and had a 2:00 AM conversation with another friend who didn’t accompany us out to the club. He’s mentally ill, but high functioning, and deeply empathetic. We relate. I asked him about our friends’ perception of my alcoholism. He expressed that even before my accident in March, people would notice how drunk I’d get on a regular basis. He said that some people get that drunk “every six months or so.” With me, it was “like every other week.” He went on to comment on my overall melancholy and bleak outlook on life. He said, “Sometimes, when I see you, it’s like you woke up and happiness wasn’t even a possibility.” Being a depressant, alcohol feeds into my psychological dependency for crisis and sorrow. RuPaul asserted that Katya, Brian McCook, had an addiction to anxiety in season seven of RuPaul’s Drag Race. I feel that. I’m realizing just how intensely accustomed I am to feeling depressed. In drag, I’ve rejoiced in sorrow on stage for years. On multiple occasions, I’ve walked into the bar in full drag makeup and the first thing I hear is “what’s wrong?” It’s not even that the glass is half empty. For me, the glass was never there. To be sad is almost comforting in its combination of introspection and self pity. It’s especially affirming when you feel as though you have a right to that lowness. As Bright Eyes once said, “Sorrow is pleasure when you want it instead.” That pleasure has grown old. I want to do more than just survive in spite of crisis. I’ll say this: I don’t know if I’m going to get sober from alcohol. In my recent brief attempts at sobriety, I’ve recognized just how much temperance culture permeates United States media. You’d be challenged to walk down the main street of any major city and not see at least one advertisement for liquor. The push and pull relationship of Puritanical abstinence from indulgence and the American civic duty of reckless consumption is powerful. That relationship is also undeniably profitable. With that said, my pro and con list of continuing to drink is getting grimmer. What I need to do becomes more obvious after each fifth of bottom shelf whiskey, with each morning I wake up hungover, and within each inebriated, suicidal cry for help. To those of you who have been on the receiving end of my substance abuse, I’m sorry. My brother recently found me in my apartment, eyes rolled in the back of my head from drinking to excess. I’ve fallen down stairs at the local gay bar, making an absolute fool of myself. I’ve said alarming, dreadful things in person and online that I regret terribly. In total, I’ve damaged relationships that I’m never going to repair. The problem is when I’m alone. If I’m at the bar and not drinking around you, don’t think it’s completely because of what I’ve expressed here. More than anything, just know that I have a drinking problem. It exists unarguably within and outside the context of my near death experience. I wrote that I was unsure of how to simultaneously be sober and be present at the spaces where I’ve made loving relationships. This is my attempt. Know that I want to be around, but I simply can’t do it like I used to. I need to get sober from alcohol. At the very least, I should. It’s going to be a tall order, but less lethargy and fewer depressive episodes sound fabulous. Thank you.
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Benefits Of Nursing Care At Home
Nursing at-home care or in-home care are interchangeable phrases. The meaning behind these phrases is providing care to someone in the comfort of their own home. Nursing care at home allows patients to access professional nursing care without having to go to a residential or institutional nursing home. The whole process is supervised by trained nurses who look after every medical and physical need of the patient. The professional caregivers at RisingCare try to form an interpersonal bond with the patients which allows them to understand the patients’ needs and concerns better and provide emotional support too.
How Does Nursing At-Home Care Benefit A Patient?
It is a stressful event for the family members of a person who gets admitted to a hospital or health care facility. RisingCare eases their concerns and worries by providing nursing care at home so that the patient can stay around their loved ones. there are numerous benefits of nursing care at home, some of which are –
Reduces the risk of infection – Some High-Risk patients might run the risk of contracting infections if they are exposed to the risky conditions that prevail in a hospital or medical facility. Receiving the same professional attention in the familiarity of their own homes without running the risks of infections is what makes in-home nursing care great.
Support with diet and nutrition – after a certain age, adults fail to take care of their own needs and need assistance. A professional caregiver takes care of the adults and makes sure they get the necessary nutrition. Especially adults who suffer from chronic diseases or are recently discharged from the hospital need assistance with their diet. They have various restrictions when it comes to food and also various things they need to intake. A trained nurse who specializes in nutritional counseling can cater to the needs of such aged people.
Proper medication management – seniors tend to be on various prescriptions due to the several ailments that come with old age. It can be confusing for them to remember when and how to take every medicine especially if they live away from their family. A caregiver looks after their medical requirements and makes sure they take all their medicines on time and in prescribed doses.
Companionship – seniors suffer from loneliness as they grow old. They feel distant from their families as the members grow busy with their personal lives. This takes a toll on their mental well-being. To avoid such circumstances, rising care provides nursing at-home care which helps the old ones gain a trusted friend at home, who also looks after their wellbeing. The caregiver accompanies the senior in playing games to running errands.
Personalized care – home-care nursing services provide one-on-one personalized care and attention that the patients need. A patient tends to feel more secure in the comfort of their own home while going through treatment. the caregiver does not have to tend to several other patients other than the client which makes the experience warmer. The caregiver's entire attention goes towards improving the quality of life for the patient.
Why Choose RisingCare To Be Your Provider Of Nursing At-Home Care?
RisingCare has been a provider of in-home nursing care for quite some time now and they are one of the most reputed companies in and around Kolkata which provide the best services. Their rates are very budget-friendly and affordable which makes them easily accessible. For families, an in-home caregiver can just be a helping hand who shares the responsibilities the family has regarding the senior. Or, they can be a companion for the patient while the family is away. Families tend to juggle their daily lives alongside the needs of their elderly. Often, they fail at becoming the support system the senior citizen might need. To fill in this huge gap, a caregiver is appointed who efficiently takes care of the patient's needs.
#nursing care at home for elderly#nursing at home care#nursing attendant at home#qualified nurses for home care#nursing service in kolkata#trained nurse for home
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Psychologist vs. Psychiatrist: What’s the Difference?
Similitudes and contrasts
Their titles sound comparative, and they're both trained to determine and get individuals to have emotional well-being conditions. However psychologists and therapists aren't something very similar. Every one of these experts has an alternate instructive foundation, training, and job in treatment.
Therapists have a physician certification alongside cutting edge capabilities from residency and a specialty in psychiatry. They use talk treatment, meds, and different medicines to treat individuals with emotional well-being conditions.
Psychologists have a postgraduate education, like a PhD or PsyD. Most ordinarily, they use talk treatment to treat emotional well-being conditions. They may likewise go about as specialists alongside other medical care suppliers or study treatment for whole therapy programs.
The two sorts of suppliers should be authorized in their general vicinity to rehearse. Therapists are likewise authorized as clinical specialists.
Peruse on to get familiar with the contrasts between the two and how to choose which you should see.
Contrasts by and by
Specialists and psychologists utilize various instruments to treat emotional well-being conditions. Now and again they work in various conditions.
Specialists
Specialists can work in any of these settings:
private practices
clinics
mental clinics
college clinical centers
nursing homes
penitentiaries
recovery programs
hospice programs
They regularly treat individuals with a psychological well-being condition that requires prescription, for example,
tension problems
consideration shortfall hyperactivity issue (ADHD)
bipolar confusion
significant despondency
post-horrendous pressure problem (PTSD)
schizophrenia
Therapists analyze these and other psychological well-being conditions using:
mental tests
one-on-one assessments
lab tests to preclude actual reasons for manifestations
Whenever they've made a determination, specialists may allude you to a psychotherapist for treatment or recommend drug.
A portion of the prescriptions therapists recommend include:
antidepressants
antipsychotic prescriptions
state of mind stabilizers
energizers
narcotics
In the wake of prescribing medicine to somebody, a therapist will intently screen them for indications of progress and any results. In view of this information, they may make changes to the measurement or sort of drug.
Therapists can likewise recommend different sorts of medicines, including:
Electroconvulsive treatment. Electroconvulsive treatment involves applying electrical flows to the brain. This treatment is generally held for instances of extreme discouragement that don't react to some other sorts of treatment.
Light treatment. This involves using fake light to treat occasional sorrow, especially in places that don't get a ton of daylight.
While treating kids, therapists will begin with an extensive emotional well-being examination. This causes them assess the a large number underlying a kid's psychological wellness issues, including passionate, intellectual, instructive, familial, and hereditary.
A specialist's treatment plan for kids may involve:
individual, gathering, or family talk treatment
prescription
discussion with different specialists or experts at schools, social offices, or local area associations
Psychologists
Psychologists correspondingly work with individuals who have emotional well-being conditions. They analyze these conditions using interviews, overviews, and perceptions.
One of the enormous contrasts between these emotional well-being experts is that psychologists can't recommend drug. Be that as it may, with extra capabilities, psychologists can right now recommend prescription in five states:
Idaho
Iowa
Illinois
Louisiana
New Mexico
They can likewise endorse drug in the event that they work in the military, Indian Health Service, or Guam.
A psychologist in Dubai can work in any of similar settings as a specialist, including:
private practices
medical clinics
mental medical clinics
college clinical centers
nursing homes
jails
restoration programs
hospice programs
They ordinarily treat individuals with talk treatment. This treatment involves sitting with the specialist and talking through any issues. Over a progression of meetings, a psychologist in Dubai will work with somebody to help them better comprehend their manifestations and how to oversee them.
Intellectual social treatment is a sort of talk treatment that psychologists regularly use. It's a methodology that centers around helping individuals beat negative considerations and examples of thinking.
Talk treatment can take numerous structures, including:
one-on-one with the specialist
family treatment
bunch treatment
While treating kids, psychologists may survey zones other than psychological wellness, including intellectual functioning and scholarly abilities.
They may likewise perform sorts of treatment that specialists ordinarily don't do, for example, play treatment. This sort of treatment involves letting kids play uninhibitedly in a protected den with not very many standards or cutoff points.
By watching kids play, psychologists can gain insight into troublesome practices and what a kid is awkward expressing. They would then be able to show youngsters relational abilities, critical thinking abilities, and more sure practices.
Contrasts in training
Notwithstanding contrasts practically speaking, therapists and psychologists likewise have distinctive instructive foundations and training prerequisites.
Specialists
Specialists move on from clinical school with one of two degrees:
specialist of medicine (MD)
specialist of osteopathic medicine (DO)
Become familiar with the distinction between a MD and a DO.
In the wake of getting a degree, they take a composed test to get authorized in their state to rehearse medicine.
To turn into a practicing therapist, they should finish a four-year residency. During this program, they work with individuals in clinics and outpatient settings. They figure out how to analyze and treat emotional well-being conditions using prescription, treatment, and different medicines.
Specialists should take a test given by the American Board of Psychiatry and Neurology to become board-affirmed. They need to get recertified at regular intervals.
A few therapists get additional training in a specialty, for example,
dependence medicine
kid and juvenile psychiatry
geriatric psychiatry
criminological psychiatry
pain medicine
rest medicine
Psychologists
Psychologists complete master's level college and doctoral-level training. They can seek after one of these degrees:
specialist of theory (PhD)
specialist of brain research (PsyD)
It takes four to six years to procure one of these degrees. Whenever they've acquired a degree, psychologists complete another to two years of training that involves working with individuals. Finally, they should take a test to get authorized in their state.
Like therapists, psychologists can likewise get speciality training in zones, for example,
clinical brain research
geropsychology
neuropsychology
therapy
criminological brain research
kid and young adult brain research
Choosing between the two
A therapist might be a superior decision in the event that you have a more unpredictable psychological wellness issue that requires prescription, for example,
extreme despondency
bipolar confusion
schizophrenia
In case you're going through a troublesome time or need to chip away at better understanding your musings and practices, a psychologist might be a superior choice.
In case you're a parent looking into treatment for your kid, a psychologist might have the option to give various kinds of treatment choices, for example, play treatment. A therapist might be a superior decision if your kid has a more perplexing mental issue that requires drug.
Remember that numerous basic psychological wellness conditions, including melancholy and nervousness, are frequently treated with a combination of drug and talk treatment.
In these cases, it's regularly useful to see both a specialist and a psychologist. The psychologist will do standard treatment meetings, while the therapist oversees prescriptions.
Whichever specialist you decide to see, ensure they have:
experience treating your kind of psychological wellness condition
a methodology and way that causes you to feel great
enough open appointments so you don't need to hold on to be seen
Financial contemplations
In the event that you have insurance, you may have to ask your essential consideration specialist for a reference to both a therapist and a psychologist. Different plans may allow you to see both without a reference.
On the off chance that you don't have insurance and are worried about treatment costs, you actually have choices. Consider reaching out to neighborhood schools with psychiatry, brain research, or conduct wellbeing programs. They may offer free or ease administrations given by graduate understudies under proficient watch.
A few psychologists additionally offer a sliding-scale installment choice. This permits you to pay what you can bear. Try not to feel awkward asking on the off chance that somebody offers this present; it's a genuinely basic inquiry for psychologists. In the event that they will not offer you a response or appear to be unwilling to talk about costs with you, they're presumably not a solid match for you, in any case. Tags:
Special Needs Center In Dubai, Marriage Counselling In Dubai
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Elderly Care and Companionship
Aged is Everyman! It is a vicissitude living condition, but it’s natural and happens for everyone. Whether rich or poor, well or unwell, competent or disabled, full of hope or despairing, everyone when aged is one. This is the most sensitive time in one’s life where constant care and companionship are needed. Usually, older adults suffer from multiple physical and mental challenges, and because most people in the family are working, they don’t get the care they deserve. Read the information stated below and select a responsible companion and reputable organization for your family’s roots.
The Value of Friendship
Friendship is a highly vital and most valuable thing for everyone regardless of the person’s seniority. The importance of friendship is realized when you reach a specific age. However, with time it is hard for older people to connect with strangers due to a number of circumstances. There are physical, emotional, and mental changes that a person undergoes while they enter this new stage. It’s challenging for them to visit their friends and family, and therefore, to ensure that in this new stage, they don’t feel isolated, one must invest in companion care. Nursing and companion care will provide the elderly with the exceptional support and friendship they require. They will talk to them; commute them to their families or friends’ places to ensure that they are socially active and content.
Companionship comes with the vision that no one should ever feel like they are unattended or alone!
With age, older adults worldwide tend to get lonely and believe that they are socially isolated. AARP (American Association of Retired Persons) recently reported that more than 42 million Americans are identified as being lonely. Another sample survey of a target audience of 50 to 80 years identified “one in four people said they feel isolated from other people at least some of the time, and one in three say they don’t have regular companionship.”
This feeling of isolation over the year can seriously impact the senior citizens’ mental and physical well-being—loneliness results in stress disorders and anxiety which affects the person’s will to live. The physical impact of the same is increased risk of cardiovascular diseases and other such chronic illnesses. Feeling isolated from the family has a ripple effect on the old, resulting in mood changes, unstable eating habits, neglect of hobbies, and lack of love for people around.
As we reckoned, lack of companionship is problematic, but what happens when elders are socially active and connected to the outer world? Studies on senior citizens portray that when a person is socially viable and has a constant companion to take care of their needs, their chances of leading healthy lives increase drastically. It lowers their rate of chronic illness and improves their physical and mental health. Elders who are not confined to the four walls of their home due to lack of attention are observed to portray lower rates of dementia, high self-esteem, and overall better health conditions.
What Is Elderly Care?
Elderly care and companionship worldwide are developing out to be a very sturdy, flexible, and advantageous alternative to support elders’ difficult years. This companion support is affordable and beneficial as it ensures that no one feels left-out and, instead, regardless of age, enjoys their life to the fullest.
Companionship is all about recognizing seniors’ needs and wants and channelizing that understanding to nurture a meaningful relationship. Furthermore, companionship experts’ other responsibility is to ensure that the older person must stay active and lead an enriched lifestyle. A senior companion’s definition might be a little vague because they fulfill many roles, such as that of a friend, nurse, confidant, or even an ally, but their responsibilities are crystal clear. A responsible companion from a reputable organization will indulge the elders in exercises, share meals with them, swap stories, or simply just sit with seniors to talk or watch a film or listen to/them humming a song because sometimes that’s exactly what one needs.
Not just that, but in addition to all these filling and empowering friendship roles, a senior companion fulfills many more responsibilities. Refer to the list stated below to understand more.
Help with ADLs (Activities of Daily Living): Senior companions are trained individuals who are able to render support to individuals with their daily life activities. They assist people who are physically affected due to age and help them sit, stand, walk and perform every life activity with ease.
Maintains grooming and hygiene: After a period in life, a person becomes dependent on the other. Even to do a simple task, they require help. An elderly caregiver will support elders even in personal things like bathing, nail chopping, and other such hygiene and grooming activities with the utmost care and no judgment.
Transportation services: For seniors who cannot drive anymore, having a person who can drive them from one place to another is godsend support. These elderly caregivers allow the individuals to transport from their home to their doctor’s appointments, social activities, religious services, etc., without relying on their family. When an elder can go shopping or on fun outings, it is often highly transformative and empowering. They can do whatever they wish to without suppressing their needs because the family member is busy with his/her schedule. Being supported at every step and having a trustworthy driver at their service keeps the elders happy and content with no trace of loneliness.
Housekeeping and Laundry Services: Caregivers are trained to perform every activity that the seniors require. They are also professionally equipped to provide the customer with laundry and other housekeeping services to ensure that the elderly reside in a clean, comfortable and cheerful ambiance.
Facilitation of shopping, cooking, and serving meals: A happy stomach is the first cornerstone for a happy soul. Unfortunately, it is hard for elders to go out shopping and cook a balanced meal due to physical challenges. Ender caregivers come to play here. These caregivers involve the older people in every step, from making a store list to menu planning. As they are equipped with a transportation facility, if elders wish to go shopping themselves, they can do it without any problem. After shopping and cooking, the caregivers dine out alongside them to ensure that they don’t feel lonely. The companions also persuade them to share a story or relax and enjoy the pleasing company.
Medication and exercise reminders: While senior companionship is a non-medical service, these supporters can help keep an eye on the gray and examine whether they’re keeping up with their medication and training regimens. When it comes to exercising, these companions can also encourage the older adult to remain active, safe, and healthy.
To sum it up, we believe that companion care can shoulder seniors by meeting their essential needs and ensuring that they stay active and social. Furthermore, they are an excellent fit for those who require personalized attention, social support, and regular assistance above and beyond what a working family can ever provide.
If you wish to receive the help of reputable elderly care and companion, visit Run Errand Run and avail your loved ones of the best elderly care in Millville, Buena, Brotmanville, and Alliance in Vineland and New Jersey. They render in-home care and nursing services for older adults who need a little extra care and support in their gray days.
Source: Elderly Care and Companionship
#seniorshomecareservice#elderlyhomecareserviceinnj#bestelderlycareserviceprovider#runerrandrun#seniorsCompanionship
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Family picking up the pieces almost one year after mother-of-three died on Christmas day – Leicestershire Live
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It has almost been a year since Chanel Platts said her final goodbyes to her mother, Debbie, who died on Christmas day.
Debbie Platts was diagnosed with lung cancer in 2018 at the age of 43. The diagnosis came as a shock to her family as she was healthy and showed no symptoms.
For her daughter Chanel, life changed overnight.
Now, almost 12 months after her mum’s passing, the 25-year-old is learning to ‘piece herself back together’.
“My mum hadn’t been poorly and she was quite healthy so it was a complete shock to us at the time.
“But her main concern was us – she wanted me and my sisters to have the support we needed,” Chanel told LeicestershireLive.
‘Mum was so precious and beautiful’
Chanel lived at home with her mum and her mum’s husband, Sam while her two sisters lived with their partners.
“We are all around the same age, we’re all young adults but I was still really dependent on my mum so when we found out, it was almost like a role reversal overnight.
“All of a sudden, I was looking after her,” she said.
The 25-year-old said she didn’t have a father figure but Sam, her mum’s husband also stepped into that role “almost overnight too”.
Debbie had chemotherapy treatment after she was diagnosed, but sadly, by the end of the year, the cancer had spread to her brain.
“That’s when she deteriorated quite rapidly. She regressed and almost became like a child.
“In some ways, it was a bit easier when it got to that point because before when she was forgetting things, it was harder to lift her up emotionally.
“When she regressed further, we didn’t have to explain everything to her,” she said.
Chanel added: “Sometimes, when people are really unwell, they can become angry or confused, and rightly so. But mum – was just so precious and beautiful.”
The 25-year-old recalled special moments with her mum during her last year.
“One day, while we were watching TV, mum’s eyes lit up at a dancing sloth from a sofa advert and she just had to have it,” Chanel said. “I looked for it everywhere and when I finally got it she just loved it. She took it with her everywhere.”.
Debbie took her toy sloth with her to the LOROS hospice, where she was looked after in the weeks before she died.
Nearly a year on, Chanel has spent a year grieving and coming to terms with losing her mum and “best friend”.
She said: “For a while you’re on autopilot but then as the months go but you start to break bit by bit and I really did hit a low point.”
After her mum’s initial diagnosis, Chanel began working part-time to take care of her, alongside Sam. But as her conditioned worsened, Chanel eventually left work altogether.
The then, 23-year-old adapted to a new lifestyle and learned to stifle her feeling while caring for her mum.
“Everything changed, even me as a person – including what I liked and didn’t like or what I felt like doing.
“So when the funeral was over and eventually things started to quiet down, I had to find myself again and learn about this new version on myself. I just thought, “where does that leave me now?”,” she said.
Since Debbie passed away, Chanel said that her belongings have been left as they were.
“Mum’s bag is still where she left and so are her shoes. But we will get to that in our own time,” she said.
After leaving her previous job, Chanel returned to a new job last week and said she was learning to grieve “outside of her comfort zone where there are triggers everywhere”.
As Christmas approaches, she and her family are hoping to make it as special as they can, despite the difficulties they have faced while grieving in the lockdown.
This year Chanel is supporting LOROS Hospice’s Winter Warmer raffle, something she felt her mum would be proud of.
“Supporting LOROS, who were so good to mum in the weeks before she died as well as to us, really helps me. By raising awareness of their great work I get to talk about mum and how amazing she was.”
Before she died, Debbie wrote a popular blog, called the ‘Nurse with the Big (C)urse’, which she used to tell her cancer story with positivity and humour.
“She helped people through her blog and I wanted to continue her good work, her positivity,” says Chanel.
“I think that’s her legacy and I’ll try to carry that on as much as I can.”
from TAXI NEAR ME https://taxi.nearme.host/family-picking-up-the-pieces-almost-one-year-after-mother-of-three-died-on-christmas-day-leicestershire-live/
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Breastfeeding – Nurture the gift of life
Women are blessed to feed a new life naturally and with an indefinite amount of dedication to nurturing as the newborn opens its eyes into the world. And these blessings are seen with different angles and thus give rise to different perceptions. Breastmilk is a boon to human life. Little do we know and even more little do we accept that breastfeeding is a boon for an infant's health. This miracle liquid that occurs all by itself in the breast glands of a new mother is filled with protection and strength. But the urban wave does not allow busy women to dedicate herself to this extremely responsible and sensitive phenomenon. Also breastfeeding is seen as a taboo by many as a woman can't expose herself to feeding her little one out and about. But if seen it as a natural process, there is nothing she is doing which should raise biased roars. She is not only filling the tiny little tummy of the infant, she is passing on strength, power and sensitive emotions to the baby. First immunization for the baby. Health professionals and WHO recommend that breastfeeding should begin within the first hour of a baby's life. It should be allowed as often and as much as the baby wants. It helps to develop/improve immunity and to address mortality and morbidity related to major problems. like malnutrition, neonatal infections, diarrhoea, jaundice, pneumonia etc. Breastmilk provides all the energy and nutrients that the infant needs for the initial months of life. As per WHO, Infants should be exclusively breastfed for the first six months of life to achieve optimal growth and it should continue for up to two years or beyond. Breastfeeding has many benefits for both, mother & child Breast milk comes with natural antibodies. The infant feed lacks in these powerhouses.6 to 8 months of breastfeeding should be followed religiously. Alongside, soft food is also highly ecommended from the sixth month onwards. Breastfeed saves the mother from dangers of ovarian cancer, breast cancer and Type II diabetes. While it saves the child from diseases like adult obesity, diabetes and lack of intelligence. Create an exclusive new mom zone Around the world, many Health facilities have started with a progressive approach toward breastfeeding. Dedicated areas that are extremely hygienic and equipped with nurses or mid-wives to train the new mother and infant to breastfeed. A certain level of health safety is to be maintained while performing this process to keep the new mum and baby safe. Go on woman. You are gifted with the power to raise a powerhouse for the future. Breastfeed your infant. These tips are brought to you by myHealthmeter Services. myHealthmeter's Integrated Wellness Program by is a unique approach towards holistic health and wellness as per the need of modern-day corporate workforce. To know more visit www.myhealthmeter.com
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This UAE-funded sustainable initiative is transforming lives
Video Credit: Edited by Sonia Shah
Launched on 18th December 2019, 20by2020 is a UAE-led humanitarian initiative between the Zayed Sustainability Prize and varied companions which embrace Abu Dhabi World Market, Abu Dhabi Fund for Improvement, Mubadala Petroleum, 12 months of Tolerance and Masdar.
The initiative oversees the donation of applied sciences and sustainable options, developed by earlier winners and finalists of the Prize, to weak communities around the globe. The fast impression of deploying these transformative options to beneficiaries situated in last-mile communities is centred round bettering entry to scrub power; clear water and sanitation; entry to well being companies; and addressing challenges in starvation, malnutrition, and agricultural productiveness – all of that are objectives outlined within the world Sustainable Improvement Agenda for 2030.
Constructing on the UAE’s stewardship as a worldwide chief in philanthropy and worldwide improvement, the 20by2020 initiative echoes Shaikh Zayed’s humanitarian imaginative and prescient, which sought to foster constructive collaboration between individuals and organisations, for the advantage of all.
The initiative amplifies the optimistic impression of the Zayed Sustainability Prize by widening the attain and accessibility of sustainable options to remodel hundreds of lives for the higher.
Designed to have interaction and create lasting impression, the donated options are supposed to deal with challenges associated to well being, meals, power and water, and empower nations and folks by means of know-how and options wanted for sustainable progress.
Presently in its first section, the 20by2020 initiative has already deployed sustainable options within the well being and meals sectors in Nepal, Uganda and Tanzania, impacting over 20,000 moms and new-borns and offering entry to nutritious meals to 50,000 individuals day-after-day. These will quickly be adopted by energy-related options in Jordan and Egypt. Deployments in Cambodia, Indonesia, Bangladesh, Madagascar and Costa Rica shall be rolled out subsequently, and the remaining 10 nations shall be introduced as a part of the initiative’s second section.
NEPAL: SOLAR SUITCASES FOR SAVING LIVES
Many villages in Nepal both lack complete entry to electrical energy or undergo from excessive energy outages a number of instances a day — placing pregnant moms and infants in danger. Midwives at birthing centres depend upon mild from candles, flashlights, cellphones and oil lamps whereas conducting the childbirths — which is largely ineffective and unhygienic.
Photo voltaic Suitcases developed by We Care Photo voltaic, a US-based non-profit organisation and winner of the Prize’s 2019 Well being class, had been donated to well being centres, impacting greater than 6,000 moms and new-borns in Nepal.
Workers at Walankha well being centre studying to function the photo voltaic suitcase Picture Credit score: Equipped
The Photo voltaic Suitcases are highly effective sufficient to mild typical birthing centres, comprising largely four-room single-storied buildings. Set up of this resolution at well being centres ensures availability of efficient and environment friendly supply companies.
Amrit Wanim, an auxiliary nurse midwife, has been working on the Walankha well being centre for 13 years shares, “The Solar Suitcase has been an absolute game-changer for us! We are in a much better position to provide better delivery services to the community and are able to help more women.”
UGANDA: LET THERE BE LIGHT
20by2020 is impacting greater than 12,000 moms and new-borns in Buikwe, Uganda.
Eve Nabuwanuka, a 31-year-old registered midwife, who works in Buikwe, says, “I love working with new mothers and babies and my passion for post-natal care inspired me to study midwifery at a nearby school in Jinja.”
Eve’s struggles began when she was appointed as a midwife at Buikwe Well being Middle in 2016. Poor infrastructure, restricted provide of medicines, inadequate supply devices and no grid electrical energy made her work troublesome.
Counting on paraffin candles made night-time deliveries significantly difficult for her. “You cannot meet your own expectations,” she says. “You are forced to refer a patient to another facility just because of the lack of light and end up feeling that you are not able to deliver the care that people need.”
Eve remembers an evening the place the candle ran out in the midst of a supply. Though she was in a position to efficiently ship the newborn, it brought about a extreme harm that would not be attended to within the darkness. “We had to wait until the morning to attend to the patient.”
The set up of a Photo voltaic Suitcase has ensured availability of supply companies and remedy by means of the evening. The well being staff not refer routine circumstances to different services and the amount of deliveries have elevated from 10 to 30 per 30 days.
TANZANIA: LIFESAVER FOR CHILDREN
Sanku, a non-profit organisation based mostly in Tanzania and winner of the Prize’s 2019 Meals class, has enabled 10 millers throughout Dar Es Salaam to fortify their flour with lifesaving vitamins. These millers collectively present round 50,000 adults and youngsters with entry to nutritious meals, each day.
Khalima Juma, a 33-year-old mom, was raised by her grandmother, alongside along with her six siblings, gaining access to just one meal a day.
Khalima at her Ugali stall in Dar es Salaam Picture Credit score: Equipped
“While growing up, I lost my friends to malnutrition,” she says. “It was very common to hear of children being born with stunting and retardation because of the lack of nutritious food.” Having witnessed such hardships early on in life led to an apprehensive first being pregnant for her.
APPLICATIONS OPEN FOR ZAYED SUSTAINABILITY PRIZE 2021
The Zayed Sustainability Prize is now open for submissions for the 2021 awards.
The Prize’ US$three million annual fund rewards organizations and excessive colleges with US$600,000 in every of its 5 classes that are Well being, Meals, Power, Water and World Excessive Faculties. The World Excessive Faculties class is cut up into six world area winners, with every winner in a position to declare as much as US$100,000 to begin or increase a venture of their college or area people.
For extra details about the submissions course of and analysis standards, go to zayedsustainabilityprize.com.
Make your mark and apply today.
This content material comes from Attain by DailyKhaleej, which is the branded content material staff of GN Media.
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Medicare Supplement Plans: Compare Different Policies Side-By-Side
Medicare supplement plans are a great way to help fill in the gaps and supplement the costs of Original Medicare. Supplemental policies are not comprehensive medical insurance, but they can be invaluable at alleviating out of pocket expenses for aging adults. To help you understand your options, we are going to give an in-depth look at each Medicare supplement policy and what it covers.
Comparing Different Medigap Plans
There are ten standardized Medicare supplement plans, also known as Medigap policies. Not all policies are available in each state. However, Louisville, KY and throughout the state of Kentucky, all residents are fortunate to have access to all 10 plans. Medicare Supplements are named with letters for simplicity purpose but have no correlation to the letter names of Original Medicare Part A and Part B, Medicare Advantage Part C, and Prescription Drug Coverage Part D. Here is the breakdown of each policy and how it works.
Plan A
Plan A is not to be confused with Medicare Part A, the two have no correlation. Medigap Plan A has the fewest benefits out of the 10 Medigap plan options. Because Medigap is offered through private insurance companies, the cost can vary but Plan A tends to be the most affordable. Plan A helps to cover the hospital costs and coinsurance for Original Medicare as well as the first 3 pints of blood if a transfusion is necessary.
Plan B
Plan B is not to be confused with Medicare Part B, the two have no correlation. Plan B is only marginally more popular than Plan A and includes only one additional benefit: the payment of your Part A deductible. Other than that, Plan B is identical to Plan A.
Plan C
Plan C is one of the mid-range Medicare Supplement plans that is marginally more popular than either Plan A or B. Plan C covers 8 out of the 9 available Medigap benefits. The only other Medigap plan option with more benefits is Plan F. The only Medigap benefit that Plan C does not include is coverage of Medicare Part B excess charges. Again, Plan C is not to be confused with Medicare Part C, the two have no correlation. Medigap Plan C covers the following:
Medicare Part A coinsurance and hospital costs
Medicare Part B coinsurance or copayment
First 3 pints of blood
Part A hospice care coinsurance or copayment
Coinsurance for skilled nursing facility
Medicare Part A deductible
Medicare Part B deductible
80% of foreign travel emergency care
Plan D
Medigap Plan D should not be confused with Medicare Part D, which is the prescription drug coverage option for Medicare beneficiaries. Plan D covers 7 of the 9 possible Medical benefits including everything Part C has with the exception of your Medicare Part B deductible.
Plan F
Plan F is the most popular option available today and also covers the most Medicap benefits. It may also be one of the most expensive options, but has a high-deductible option that can lower your premiums. If you choose the high-deductible Policy F, you must meet a yearly deductible of $2,300 before it covers anything. Medigap Plan F covers all 9 of the available Medicare Supplement Insurance benefits which includes:
Medicare Part A coinsurance and hospital costs
Medicare Part B coinsurance or copayment
First 3 pints of blood
Part A hospice care coinsurance or copayment
Coinsurance for skilled nursing facility
Medicare Part A deductible
Medicare Part B deductible
Medicare Part B excess charges
80% of foreign travel emergency care
Plan G
The only difference between Medigap Plan F and Plan G is the Medicare Part B Deductible. This is covered in Plan F, but is not covered in Plan G.
Plan K
Plan K is a cost-sharing policy. That means that it reduces your costs, but doesn’t offer full coverage. For example, instead of covering the entire Medicare Part A deductible, it only pays 50%. Plan K does include an out-of-pocket limit, and if you hit that limit your Plan K will start paying 100% of covered costs. In 2019, the out-of-pocket limit was $5,560. Plan K is not a very popular option because it requires more out of pocket costs than any other policy.
Plan L
Medigap Plan L is also a cost-sharing policy, similar to Plan K – but works a little different. Plan L pays for 75% of covered services, and you pay the other 25%. The out-of-pocket maximum in Plan L is also much lower. In 2019, the out-of-pocket limit is $2,780 rather than $5,560 in Plan K.
Plan M
This is one of the newer Medigap policies, introduced in 2010. It is a mid-range policy, similar to both Plan N and Plan D. It offers partial coverage for 7 out of 9 benefits including:
Medicare Part A coinsurance and hospital costs
Medicare Part B coinsurance or copayment
First 3 pints of blood
Part A hospice care coinsurance or copayment
Coinsurance for skilled nursing facility
50% of Medicare Part A deductible
80% of foreign travel emergency care
Plan N
Plan N was also introduced in 2010, alongside Plan M. Plan N is identical to Plan D, except for the Medicare Part B coinsurance coverage. Plan N is also subject to two copayment structures, requiring up to $50 for certain emergency room visits and up to $20 for physician office visits. If your brain feels a little bit like alphabet soup, we understand. This is a lot of confusing information. Each of the Medicare Supplement plans is similar with just slight (but important) differences. To make things even easier, here is a chart that puts all of this side by side.
Medicare Supplement BenefitsABCDFGKLMNPart A co-insurance and hospital costs✓✓✓✓✓✓✓✓✓✓Part B co-insurance or co-payment✓✓✓✓✓✓50%75%✓✓First 3 pints of blood✓✓✓✓✓✓50%75%✓✓Part A hospice care co-insurance or co-payment✓✓✓✓✓✓50%75%✓✓Co-insurance for skilled nursing facility✓✓✓✓50%75%✓✓Medicare Part A deductible✓✓✓✓✓50%75%50%✓MedicarePart B deductible✓✓✓Medicare Part B excess charges✓✓✓Foreign travel emergency80%80%80%80%80%80%
Medicare Supplements in Kentucky: How Does It Work?
The state of Kentucky offers all ten standardized Medicare supplement plans through private insurance companies like Humana, Aetna, United Healthcare, Anthem, and Cigna. Regardless of which private insurance company you purchase it from, Medicare Supplement plans with the same letter have the same coverage.
However, each insurance company can determine its own monthly premium. So costs may vary from plan to plan, even for the same benefits.
Your location can also affect your premiums. If you live in Louisville, KY in Jefferson County, you may pay more or less than someone who lives in LaGrange, KY in Oldham County for an identical Medicare Supplement plan.
With so many plans to choose from in Kentucky, it can be confusing or even frustrating to narrow down which policy is best for your needs and budget. That’s where the independent Medicare agents at Braden Insurance Agency come in. We know everything there is to know about Medicare supplement plans in Louisville, KY and throughout the state of Kentucky. So let us help find the best policy for your needs and budget. Schedule a free, unbiased consultation today.
Choose From Different Medicare Supplement Companies
Medicare supplement plans are offered by private Medicare insurance companies, not the government. However, each policy is standardized and the coverage is identical regardless of which company you purchase from.
Since Braden Insurance is an independent agency in Louisville, KY, they can offer Medicare supplement plans from any of the companies at the best price. We work with all the major players in Medicare Insurance including Humana, Aetna, United Healthcare, Anthem, Cigna and more.
The independent agents at Braden Insurance Agency are on standby to answer all of your questions. Call today to schedule your completely free and unbiased Medicare supplement plan consultation. We will help you find the right plan for you.
Enrollment Period Window for Medigap Policies
You are eligible to purchase a Medigap policy as soon as you are eligible for Medicare when you turn 65. Within the first six months, you have a guaranteed right to buy a Medicare supplement plan and cannot be refused for any reason. If you miss the first six month window, you can apply later at any time but may be charged a higher rate or rejected based on your health history.
Medigap Policies: You Don’t Have to Make the Decision Alone
During your free, no pressure, unbiased consultation at Braden Insurance, we cover all aspects of your Medicare needs including:
We will discuss your coverage needs.
Talk about what kinds of plans you can afford.
Our agents will shop around at different companies for the Medigap plan you want at a price that fits your budget.
Together, we will review different plans' pricing structure so you understand how costs may change as you age.
Understanding Medicare supplement plans can be difficult and choosing the right one can be even worse. Our independent agents here to help you make sense of your options and guide you along the path to make the right decision. When you are ready to purchase Medicare supplement plans, work with a company who truly cares. Braden Insurance Agency will make sure you get exactly what you need.
The post Medicare Supplement Plans: Compare Different Policies Side-By-Side appeared first on Bradeninsurance.com
Braden Insurance Agency Inc.
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Louisville, KY 40220
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The Whirlwind: In Conversation with Nico Meyering
“You don’t really have a choice about getting knocked down. You do have a choice between staying down or getting back up.”
The view from this height is breathtaking.
I’m meeting my interviewee for lunch at the University Club, a top-floor members-only restaurant and lounge for students, faculty, and staff of the University of Pennsylvania. I’m a PhD student there, enjoying the Club’s “first year of membership free” perk. And my interviewee is enjoying the large tables.
“Sorry bro, I like to spread out.” Nico Meyering grins sheepishly at me, running a hand through his blonde hair, a nervous habit he will repeat often during our time together. On the table are a spreadsheet, a notepad with some hasty scribbles, a smartphone he uses like a computer, a half-forgotten graphic novel, and a sparse lunch of sweet potato soup, two turkey burgers, and mixed vegetables that he keeps meaning to eat. The phone lights up with some sort of reply and Nico speaks into it, recommending a sleep study and a “trach downsize before decannulation” before adding that he isn’t a medical professional. I admit that I don’t know what any of those words mean.
Nico isn’t a medical professional but he IS a whirlwind.
I met Nico years ago when we were both graduate students at Binghamton University. I thought his energy and constant movement was just the result of too much coffee or the stress of final exams. But here, dressed semi-formally, he’s the same whirlwind from before. The first thing I learn about Nico is that he’s always moving. I’ll learn much more over our hour together.
Nico was born 31 years ago with a nervous system disorder called congenital central hypoventilation syndrome (CCHS). The most notable and life-threatening symptom is the body’s lack of an automatic impulse to breathe, which means people with CCHS need lifelong mechanical ventilation when they sleep. Some need around the clock venting. Other CCHS concerns may include eye/vision issues, speech delays, or digestion issues.
After Nico was born, his mother swung into action, finding other CCHS families and bringing them together to share stories, support one another, and eventually connect doctors to families. A few decades later, those ragtag families are now The CCHS Family Network, Inc., a federally-recognized nonprofit that funds research and raises tens of thousands of dollars for the roughly 1200 people worldwide living with this condition.
Nico has been ever-present; he shows me photos from each successive gathering. He rattles off his various duties: moderating the group’s Facebook presence, being a liaison between people with CCHS and their families, explaining CCHS to general audiences (his TED talk from December 2017, Dis-ABLE-d, has been viewed on YouTube over 500 times), and trying to mentor teens and preteens with the condition.
“We are ninety-nine percent just as healthy or normal as people who don’t have CCHS. We have hobbies and interests and pet peeves and everything. I keep telling people: CCHS is manageable when you stay on top of it. It’s not fatal. It’s not degenerative. We have equal or better life expectancy. We get married, we have jobs, we get stuck in traffic, everything.”
The second thing I learn about Nico is that he jokes as much as he moves: constantly. It’s possibly his humor that has kept him going; while CCHS isn’t fatal, it also isn’t trivial. Nico rattles off over a dozen names of friends he has lost to illnesses made worse by CCHS or to tragic mistakes like falling asleep off their vents. “It’s up to us, you know, to keep their names alive. We gotta keep telling their stories.” He says determinedly. Behind that determination, however, is a measure of sorrow: Nico has lost many friends and he admits that it’s difficult to find new ones. But when he feels like I’m asking too many questions about the sadness, anxiety, and risk of living with rare diseases, he noticeably steers the conversation to a happier topic.
“You don’t really have a choice about getting knocked down. You do have a choice between staying down or getting back up.” He points out, making rare eye contact with me.
At 31, most Americans are building resumes or families. Nico is helping to build a movement. His vision of the CCHS community is larger and more comprehensive than the original group that met once every few years.
“I think something every group needs to constantly work on is inclusion and evolution. Our group is no different. That’s why we had a paper newsletter for so many years and now we’re online. It’s why we were English-language only for a long time and now we have some volunteers who can translate for us. We began by talking mostly about physical health and medical issues, now we include mental health and social issues. Young adults with CCHS were the first people to begin discussing the emotional burden of life with a rare disorder.”
I ask him what else the CCHS Network needs to do.
“We need to keep raising money because that money goes right to funding CCHS research. We’re rare and we’re a small group, so nobody’s gonna save us. We save ourselves. We share research and medical articles on CCHS, but we also need to start dealing with practical questions. I mean, a young couple who find out their baby has this disability aren’t interested in medical articles right away. They need to know about trach care, venting options, and how to talk about CCHS with other people. Chances are that they’ll have to educate doctors and nurses about it all.”
Nico’s in-your-face advocacy didn’t come naturally. He wasn’t outspoken about disability issues and disability rights when I first knew him. He is an introvert and his family is private by nature; Nico thinks it took significant time for them to accept Nico speaking candidly about his disability. And while Binghamton-Nico is different from Philadelphia-Nico, the seeds of change were always there: his early championing of LGBT and mental health issues years ago influenced how he advocates for people with CCHS today. “Whether it’s gay rights or disability rights or any other issue, this is true: if you don’t talk about it there won’t be any progress. You make your own momentum.”
Part of Nico’s value as a patient advocate comes from the bonds he’s formed in progressive communities. He marched alongside Occupy Wall Street, handing out water bottles and band-aids to other protestors. He volunteered with a soup kitchen and still keeps in touch with the guests he served. When a local school district cut sex ed classes, Nico volunteered with a LGBT community center to talk about contraceptives and consent. He protested so much at city council meetings that he eventually got thrown out of Binghamton’s City Hall for promoting services for homeless people, something he still gets visibly annoyed about. Seven years later, though, the people that share his posts and donate to his CCHS fundraisers are those same people he spent so long helping. In the week since our interview I found myself back in Binghamton to see family, and almost everyone I talked to, from the city’s former Mayor Ryan to guests at Nico’s former soup kitchen, remember his name and deeds.
Nico cracks a grin when I mention my Binghamton visit. “The biggest thing I learned there is that you eventually need friends, allies, people in your corner. You can do a lot on your own, but you do more in a team. If we can work together to write a grant or help someone in need, then that’s what we’re gonna do. Eventually the CCHS Network will have to work with biotech or pharma companies to develop a cure, so it’s good practice.”
I ask him about partnerships the Network has formed already and he demurs, but he does offer some thoughts on rare disease partnerships in general: “I was at the Global Genes conference [for rare disease research] back in June, and I can tell you that most research hospitals and biotech companies recognize the need to work with patient advocacy groups. We are no longer ignored. There are maybe some researchers who think they can whip up a cure without patient involvement, but they’ll learn really fast that they need our input because without it they will go bankrupt.” He rubs his goatee briefly, “The market is real Darwinian like that.”
We pause so Nico can send an email to a CCHS family in Michigan. He signs off with an apology for replying so late. When I see his phone wallpaper it’s a woman with long black hair holding a long, black cat. He sees me looking and smiles. Nico is never short on words and each story is like a voyage.
He met Brittany online in April 2016. He noticed they were both AmeriCorps alumni and shared an interest in anime and Star Trek. At first he hesitated. He was unemployed and she mentioned wanting to eventually move to New York City. Nico was looking for a long-term relationship and she was only in the area to tend to an ill family member. But he took the time to send a few paragraphs and their first date was at a local Thai restaurant. The two now live together in Philadelphia, where she is a teacher and he is a financial administrator for a rare disease center. The couple got engaged in December and they share their apartment with three cats: Apollo, Hera, and Hermes.
“I dated some women for a year here and there, but we’d always break up whenever I finished school or moved states to take a new job. Brittany has really stuck with me.”
Nico claims to have been a nervous kid growing up, dealing with health concerns and wanting to fit in. Sometimes he’d descend into crying fits because he felt emotions too strongly, like a time when one or two misbehaving kids caused his entire class to miss recess.
“I think we get this message as kids, and this is especially true for boys I think, that emotions should be buried or that you handle difficult situations yourself. This is a bad message. It’s harmful. It took me a while to figure out that emotions and friends are strengths rather than weaknesses.”
I don’t see any trace of that nervous kid. Nico leans back in his chair, rubs his hand over stubble, peppers his sentences with “bro”, “dude”, and “man” regardless of gender, and fires off a quick message about different CCHS mutation types. To passerby, he is just a nerd reading a Spider-Man 2099 comic (he points out that it’s a different character than regular Spider-Man,) not one of the biggest names in a very small pond.
But why is he so busy? Why now? After living in a handful of different states and working tons of different jobs, Nico saw some patterns emerging for disabled youth. For one, he says, there’s a knowledge gap and a skills gap between the end of high school and becoming an established adult. The time you spend getting your health under control is time you can’t spend learning life skills. In fact, Nico reveals that he learned how to tie a tie and how to shave by watching YouTube videos.
“When I was on the job market, CCHS moms would always remind me ‘You need a job with good health insurance!’ They wouldn’t stop reminding me. I think they may believe it is easier to get a full-time job with benefits than it really is. Even if you have the schooling and the skills, it’s difficult. Even when you have insurance, it’s tough to understand it.”
So Nico made a checklist to help young adults and their families prepare for independent living. “It’s a conversation families need to have together. It’s not you versus your kid. It’s your whole family versus the problem.”
Other projects followed: a guide to seeking employment while disabled, a guide to CCHS care in schools, one-page factsheets about CCHS for families to give to doctors and nurses, a slew of public speaking appearances, mostly at comic conventions (his talk on disability representation in anime was rated the best panel at GeneriCon 2019, and he repeated the talk at Wizard World Philadelphia this summer.)
He talks animatedly about another idea: setting up a small fund to buy pulse oximeters and other vitals monitoring equipment. “Our bodies send signals that our brains don’t always catch, so we could be ill and not know it. If you have a machine that tells you your oxygen levels are low, that could be the difference between resting at home or exerting yourself and ending up hospitalized or worse. I haven’t fleshed this concept out yet though.”
He also wants to help people with CCHS explain the condition to others. “Stigma kills people and knowledge kills stigma. Our disability is nobody’s fault. It’s not contagious. We haven’t done anything wrong. It’s just the way it goes, dude.”
And he talks about money. Since being elected to the Board in 2015, Nico has worked hard to lead collaboratively and to consult others before taking action. It’s what led to his popular Dungeons and Dragons charity games, which raised several hundred dollars at the last CCHS conference. It’s what led to his “Faces of CCHS” project last November, which was shared on Facebook over one hundred times. His last fundraiser brought in several hundred more dollars.
“We need to make a difference AND get attention at the same time. Good cash flow lets charities steer their own ship; even $10 from a few people helps us go to rich people and say ‘Look, we have all these people participating. They believe in our cause. Will you believe too?”’ and then send them some cute baby photos. That’s a good pitch.” He smiles.
It’s clear Nico loves talking about CCHS and his work in disability issues, but getting to know the man behind the work is frustratingly difficult. I ask him about his hobbies like video games and hiking, but he says it’s difficult for him to find the time for those hobbies: “Sometimes I wish I could finally finish a game, but I don’t go ten minutes without needing to do something or reply to someone.” His lack of free time doesn’t seem to bother him. “Anyone can turn on a PS4. Anyone can read a good book. But not everyone can help a CCHS person or family in need. The work is the important thing here.”
Looking to the future, all Nico sees is hope, the word he has tattooed on his left arm. He plans on seeing a CCHS cure in his lifetime, he tells me. Until then, he’ll keep on making the CCHS journey easier for everyone.
“I think some parents are frightened when they realize their children are growing up in a very different world. And I think CCHS kids are scared by the responsibilities that come with being an independent CCHS adult. It’s less scary when you listen to each other and work together.”
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How To Train Your Dog At Home | Secrets Revealed
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How To Train Your Dog At Home | Secrets Revealed
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