#Spoonie blogger

[majaurukalo]

But the way we perceive health and ability is truly problematic. No, eating protein shakes, avoiding ultra processed food, training everyday, running on the treadmill, etc. don’t put you out of the “dangers” of disability and illness (if we want to call it that).

No one is immune to illness, bad genes, accidents or old age. And becoming disabled or ill isn’t synonym of failure or “bad behaviours”.

Our bodies are fragile. Human beings are fragile. That’s why disability needs to be taken into account more seriously and considered as a social issue. For you, your loved ones and all the people you don’t know of but who deserve to be treated with dignity and respect no matter the state of their health and abilities.

I didn’t get sick at one year of age because I deserved it or because I was morally corrupt. How could I be? I was 1. It just happened. It was an autoimmune disease. That’s it.

[melodymorningdew]

As it turns out, PSTD nightmares to start the day are NOT a good sign.

[bitchasindog]

i don’t care if i’m 5 foot. i belong on a cat walk.

[totally-sick-blogger]

Rating random fidget/stim toys out of 10

- tangles 5/10 - they’re fun but when they come apart I can never get them back together

- wacky tracks 10/10 - everything I love about tangles but without the things I hate

- large pop-its 7/10 - it depends on the shape tbh

- small pop-its 8.5/10 - they’re not my preferred fidget toy but I still really like them!! Especially the ones that only have 1 or 2 bubbles on them

- mochi animal thingies 7/10 - they’re very fun to play with and very easy to travel with but they make your hands smell weird and I don’t enjoy that.

- plastic rainbow wiggly slugs 8/10 - they’re kinda big which makes them harder to travel with but otherwise I have no notes.

- foam stress balls 5.5/10 - they’re always either fantastic or hard as a rock with no in between

- filled stress balls 2/10 - I have a love/hate relationship with these because they’re so fun to play with but they nearly always end up exploding.

- literally anything made out of that sticky rubber material 0/10 - I have no explanation I just hate these

- floam 10/10 - I am the number one floam fan

- play dough 7.5/10 - I like playing with it but I wish it didn’t smell as strong

- kinetic sand 5.5/10 - I have love/hate relationship with it and I can’t explain why

- bubble rap 7.5/10 - the og stim toy. But also it’s so loud and I don’t love that.

This was not nearly as helpful or well thought out as my usual posts but I hope you were at least entertained by it <3

Let me know your favourite stim toys in the comments !!!

[crazycatsiren]

"You're just looking for attention!"

Says the attention seeker who's butting onto posts that are clearly not for them.

[majaurukalo]

Look, I get it, disability support is not as trendy as being an LGBTQ+ supporter or against racism, we might not have all that cool music and colourful parade floats, our flag has a lot of black. It’s not fashionable. No business puts the disabled flag in their logos on July.

Some of us make non-disabled people uncomfortable (to their own admission) because of how we exist in this world. Some of us slouch and drool, some of us have tics and spasms, some of us are missing limbs or parts of our faces. We might have bulky mobility aids and big and noisy equipment, some of us can’t avoid to attract attention, some of us are shaped in a “weird” way. We might walk and move too slowly or take a lot of time to express ourselves, to form thoughts and words. Some of us don’t speak. Many of us can’t fit in, can’t hide our disabilities and the way we look.

No, it’s not trendy or fashionable. I get it.

But the problem is that society has decided that there is only one standard to exist, to look, to be. The rest is abnormal, wrong, sick, broken…

It’s the mindset that needs to change. We should open up to all the different possibilities we could encounter, to the idea that what we are used to see is not necessarily the only right thing. Because there is no a “right” way to exist, to go through this World, to live, to look, to be. The more we open up to all of this, the more liberating it will feel. And it will be easier to accept the possibility of a future disability that might happen, to us and the people we love.

It’s not enough to just say “yes, disabled people deserve rights”. There should be an active step forward. Be uncomfortable. Get used to the idea of being around people who are not the “standard”. Be uncomfortable with the idea of a body and a mind that don’t work like you are used to.

[melodymorningdew]

I have a rash literally all over me and I'm so itchy not even my meds can knock me out. What is even causing it????? I'm so tired. Please send help.

[vanillabat99]

Hey, can I ask you a thyroid question? Is the ratio of FT3 to FT4 important or not? I keep running into conflicting info. If the ratio is high (but FT4 and FT3 themselves are normal), does that indicate hyperthyroidism (in the sense that T4 to T3 conversion is too fast) or not? If so, combined with low TSH, (low but still normal), is that reason to test for TRAb? My mom had Graves Disease (and has Hashimoto now). I'm losing weight very slightly when I only ever gained before. Pituitary being stepped on by a benign brain tumour. Endocrinologist appointment in March (and that's because the GPdecided it was "urgent"). Anti-TPO very slightly elevated. I had small lumps on last ultrasound. Not panicking or anything, but is that a form of hyperthyroidism or not? Should I insist on TRAb (I can't afford to do the test with my own money), or not?

Hi!! Apologies for not answering this right away, I needed some time to think about it!!

I really appreciate that you are asking me, however I do not think I am qualified to answer any of your questions :( My knowledge of hyperthyroidism is very limited, and I only really know surface-level stuff. Any further details are for my own personal health maintenance and I'm not sure if they're broadly applicable. On top of that, my memory isn't very good, so any info I share might not be accurate anyways, which is not ideal for topics like this.

I'm really sorry you're going through all that!! I hope you are able to get answers soon!! I will post this in hopes that someone can help you more than I am able to. Wishing you the best 💕💕💕

[raredye]

So a quick note from the editor of Rare Dye...

Having a chronic illness is an unexpected and winding road of a journey. New symptoms seem to pop up all the time, with no explanation and no immediate relief. For the past three months, I've been dealing with symptoms that came out of nowhere. I'm just now finally getting back on track. Whew! This means hopefully an uptick in posting and commentary.

Ok, back to our regularly scheduled program with pretty pictures and stuff. Just wanted to leave space for anyone dealing with chronic illness and or disability. Letting you know that you are seen and believed and a part of Rare Dye is having your needs and concerns in mind. 💕

[newhologram]

Yet another spoonie blogger who worked to spread awareness and share her reality with one of my dx’s passed away. So don’t ever say things like “well at least you’re not terminal!” M.E., fibro, endo, all these diseases still have a body count. RIP Sammy.

[purplebutterflies-blog]

A reminder to all of the Fibro warriors and Chronic Illness Warriors 💜🦋

ALL CREDIT FOR THIS PHOTO GOES TO THE PAGE REBLOGGED: fibro-memes.

[nebulousboundsfloof]

So I follow a few spoonie bloggers and I don't know which one but one of them made a post a while back about using lacrosse balls as PT massagers and I finally had the extra cash to pick some up and OH MY GOD they are the best, I've used foam rollers and tennis balls, and raquette balls, and lacrosse balls are the best option I've ever found (also those things are solid rubber and I now understand why lacrosse has so many injuries, I'm surprised people don't die honestly)

The density is perfect they don't squish when I put weight on them, and the diameter is perfect for getting into those nooks behind the shoulder blades (I have slippery joint shit and am prone to a knot behind them) which are basically impossible to get without either another person or some sort of implement (before this the only tool I've ever found that worked was a percussion gun) they are cheap, I got a three pack for $11 and aside from using them individually, I put them in a lone sock and they were better than a foam roller, or a towel, or a rolled up yoga mat for opening that evil stingray shaped muscle in the middle of my back, I couldn't recommend them any more wholeheartedly if I tried oh my god.

(I'm also going to tentatively going to mention patella stabilizer bands because I don't remember where I heard about them, and they aren't the usual recommendation for knee issues, particularly my slippery patella/joint issues, I've only had them a few hours but they're comfortable and seem to be reducing sliding I'll wear them to work next week to get a better feel for them)

[majaurukalo]

Ableds will always find ways to blame disabled people when they complain about accessibility.

“You ask too much”.

“Maybe this place isn’t for you”.

“It’s expensive, you can’t expect people to spend that money”.

“Just stay at home then”.

“Accessibility is extra work, you shouldn’t be expecting that”.

“The world can’t bend to your needs”.

“Not everyone gets whatever they want, why you should?”

Feel free to add more.

[sheisanimposter]

Attention: cozy girls, sleepy girls, spoonie girls, coquette girlies, academia aesthetic girlies, cottagecore girlies, soft girlies, bougie hot girl femcels and girl bloggers alike

Where do y'all buy your super soft delicate bedding with the silly little flowers? 💕 I want.

[whatsthisascianbullshit]

Dawntrail pinned post woooo

This blog is not certified spoiler-free and largely runs on a queue.

I do tag "expac name spoilers" for major spoilers and include "expac name" or "ffxiv expac name" when something is directly relevant to an expansion but I cannot guarantee that all spoilers will be tagged as what I consider a spoiler may not align with what you consider a spoiler.

My main WoL is part of a shared canon (with some extra AUs sprinkled on top) so I'm already inclined to be a bit more flexible in terms of canon-divergence.

I have so many ships it may as well be an armada.

In order to keep this post shorter than previous pinned posts I've a post for each of my blorbos (so far).

Muireann Uais: duskwight f!elezen, my main girl - anxiety and rage given form. Spoonie witch. She's got a couple of previous shards so she also covers Panthea, Pandora, Ufufu, and Laisirfhíona // about Muireann // Muireann // Muireann Uais

Sami Fashonti keeper of the moon f!miqo'te, teen pop sensation - peer of the twins. She also has a few shards and covers Euturpe and Parthanope // about Sami // Sami // Sami Fashonti

Rammthota Sundwilfwyn sea wolf f!roegadyn, max height femroe need I say more? // about Wyn // about Rammthota // Rammthota // Wyn (note: other Wyns will also be in this tag - I gave her the nickname before I started posting here úps)

Booboo The-fool plainsfolk m!lalafel, remember the movie Elf where a human was raised by Santa's elves and think he's an Elf? Yeah it's that but Booboo was raised by the blunderbeans from the Fall Guys event // about Booboo // Booboo // Booboo the-fool

misc:

Blogger is in Ireland, timezones will be a pain.

I refer to myself as the glitter blob as that is one of the closest things I have to a gender.

I object to the "2 week/1 month embargo on posts and then it's a free for all, no spoilers tagged" because it is so unfair to both new players and current players who can't or won't speed-run through a game. I don't think it's that hard to tag major plot reveals and twists.

Yes even for old expansions.

I block freely and often to curate my own online experience & I advise you do the same.

I don't do chain asks or reblogs (reblog to give previous a star, asks of "send this to 5 people who brighter your day" and the like), nothing against you and it is very flattering to - just timezones can make this awkward especially for reblog-based ones.

While I am generally a bit slow on answering them I do love ask games, fic prompt lists, and tag games. I do my best to send on as many as I can when they come across my dash

[jinxedlucky]

taking recommendations for fitness watches. i need heart rate and blood o2 monitoring, i'm not trying to work out/lose weight im trying to check and see how my heart is reacting to things. asking my fellow spoonie bloggers for their solutions, thank you <3