#LivingWithED

[danaernst]

Understanding Tadarise 20mg

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[croquism]

I just wanna go home... I don't know where that is.. I haven't found it yet..

[vikingstoner69]

So after 5 long years 127 surgeries and two comas on the 4th of July I got the call to get a kidney and on the 5th at 6am they put it in. Everything went absolutely amazing and I am now home.

[fangwhoria]

im so tired of this college is honestly the most fucked up thing you can do to a person

[thecpdiary]

Living with Worry and Anxiety

In a changed global world that is getting harder for me to navigate, since my twin passed, I live with worry and continue to live with anxiety. Losing my twin is still early days, I need to be able to regulate my emotions better. My disability is also concerning, because I have no way of knowing how I'm going to age with it.

Eagle Syndrome

My twin was my safety net and now I have and deal with Eagle Syndrome, every day is a fight to stay well. I want to get into my life, and it's already been on hold because of the pandemic.

I have no idea about my physical disability as I age and the doctors don't know either. All I was told when I found out about cerebral palsy in my forties, was that as I age, brain cells would die and I would start to see physical changes. That uncertainty is a concern, a worry.

The thought of going through the ageing process without my twin is scary

Going through the ageing process without my twin is concerning. I don't know how that looks. I feel better for writing, for getting my thoughts out there, but even with my writing, I still have to get on with my life and that's where I can become stuck.

Living with worry and anxiety

I live with worry and anxiety, often feel overwhelmed and lost, not helped by the external decisions that have been made by the UK government. I can go to bed with worry and wake up to another day feeling lost and alone. Now with Eagle Syndrome, I literally have no idea on anything.

The neuralgia pain I have in my face, pain in my ear and my jaw brings yet more worry and anxiety. My twin was good at being able to find resolutions on illness. She'd know exactly what to do.

For more inspirational, life-changing blogs, please check out my site https://www.thecpdiary.com

[0x4468c7a6a728]

it makes me happy to see my friends having fun together and stuff, but there's also a deep sense of jealousy and longing i can't shake, i get in person social interaction like maybe 1 time per month at the very best, usually a lot less, i'm stuck livingwith my parents for the foreseeable future, and idk i just hate being so isolated all the time

[rakeshouseparty]

Even tho iremade Doc i still want him livingwith nurse charlotte so if any of usee me drawing some grumpy lookin old lady along side him that is her:)

[borisnikol]

Dr. Boris Nikolov is a research physician Managing IMIC Research - a clinic for medical research studies in Alzheimer's Disease, Internal Medicine, Asthma, Gastroenterology- NASH/MASH, Family Medicine, Pain medicine and vaccines

[borisnikolov1]

Dr. Boris Nikolov is a research physician Managing IMIC Research - a clinic for medical research studies in Alzheimer's Disease, Internal Medicine, Asthma, Gastroenterology- NASH/MASH, Family Medicine, Pain medicine and vaccines

[grant1964]

Sleep Walking

I’ve been sleep walkingThese long, long years.I’ve been sleep cryingWith late night tears.I’ve been sleep workingWith no real connection.I’ve been sleep thinkingWith no real reflection.I’ve been sleep livingWith hardly a break.Now I’m sleep dyingAnd wide, wide awake. .

[washwashgalaxy]

The Flute Man By Orisa Onyemachi

The Flute ManI am Onoka the flute man,not the loafer,the weaver of songs,not the failure!I needle shells of foibles,into rhythmsof soul lifting laughterI create ventson the walls of troubled livesto douse the heat of livingwith the skills of my flutingsI heal deeply seated woundstattooed upon the skin of the soul,with the magic of my oja*I lift drowning spiritsfrom the valley of griefto loftier…

[vikingstoner69]

So as some of you may know I have end stage kidney disease and have been working very hard to get on the transplant list. Well this morning I got the call saying I am on the list and at the top so have a bag ready for the call that could happen at any time. So fics may stop for a bit suddenly that's mostly I'm in the hospital with a new kidney.

[ritaltime]

Understanding Amyotrophic Lateral Sclerosis (ALS): Causes, Symptoms, and Treatment

als #ALSawareness #NeurodegenerativeDiseases #MotorNeuronDisease #LouGehrigsDisease #ALSResearch #ALSsymptoms #ALScauses #ALStreatment #ALSsupport #Neurology #ALSfundraising #FightALS #ALSeducation #ALSprevention #ALSadvocacy #ALSimpact #ALSsurvival #ALStherapy #ALSawarenessmonth #LivingwithALS

[owls-howl]

thankful that my body let me spend such a beautiful day out on the water. 💙☀️ . . . . #discoverwisconsin #wisconsin #outdoors #summerinwisconsin #kayaking #girlswithtattoos #explorewisconsin #eds #livingwitheds #ehlersdanlossyndrome (at Seeley Lake) https://www.instagram.com/p/CAUBacTHjx4/?igshid=1snebbcatj18u

[borisnikol]

Dr. Boris Nikolov is a research physician Managing IMIC Research - a clinic for medical research studies in Alzheimer's Disease, Internal Medicine, Asthma, Gastroenterology- NASH/MASH, Family Medicine, Pain medicine and vaccines

[goodearthyoga]

It is EAGLE POSE-itively good to be back home!! #pun #joke #yoganerd ——- But seriously #6amcrew, #backtobasics sometimes means shifting from “low” to NO-impact water exercise. Nerve Damage may limit your quantity, but it is you who drives the quality. ——- Part of work is rest, and at each stage of it life this is a unique balance of ability, tolerance, strength, spirit and support. It’s okay to take it back to the level that serves you...TODAY!! ——- Find success in the present, if only a deep breath and closed eyes for a second. “Shivers down my spine, Body aching all the time!” So say in your heard theses words and say these things... 1) “I breath in.” Breath in for five...SUSPEND at the top. 2) “I breath out.” Let air fall from your body for five. PAUSE at the bottom. The space in between. ——- The truth of the present moment. I’m still thinking of @dianeleeyoga & @karayogadance at @bathyogastudio The words, love, and generosity of your souls was one of the absolute highlights of my trip!! To @sylvia_lane17 @ambershakiralane @abigailgreen81 @corrinruthreilly whose loving generosity knows NO bounds...My heart sends a big warm #cwtch (#welsh for hug) you all from #sunny #La!! Namaste my friends!! #poolyoga #sun #hottub #firstpoolday #wellness #healing #yoga #yogi #neuropathy #livingwith #nervedamage #feet (at Los Angeles, California) https://www.instagram.com/p/BvHKkaxF9fH/?utm_source=ig_tumblr_share&igshid=zixm0f0raw1b