#I probably need antibiotics
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I think I might have some kind of chest infection.
#i keep hacking up green and brown and bloody gunk out of my lungs and sinuses#i probably need antibiotics#but i wanna try and get over it myself before doing that. antibiotics are great dont get it twisted#but if youre generally healthy enough/strong enough to fight off an infection yourself i think its good that you do so#so many of my patients at work have MRSA/VRE/ESBL/MDRO (antibiotic resistant bacterial infections) that i wanna avoid it if at all possible#but oughghh this shit sucks#ive been taking tons of hot showers and drinjung a shitton if fluids and taking the occasional shot of nyquil#plus ive been percussing my chest like how ive seen Resp. therapists do#and its helping. vut i still just feel like absolute shit
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Im incredibly miserable right now, I was awake all night for the second time in a row from coughing. And what's worse is that I kept my datemate up, again. I literally took cough medicine before bed too and it didn't work at all
#now Im up hours before Im supposed to be because I want some time to rest from all the coughing#and to give my datemate the chance to sleep a little bit#I think I slept 2 hours the entire night if I was lucky#the rsst was spent tossing and turning and coughing#my chest hurts#and my throat hurts worse than before. Im never gonna get my voice back#I wish I could see a doctor but I can't anymore#of course I'd get badly sick when my insurance was terminated#I probably need antibiotics#and some strong prescription cough medicine#but I can't. AMD I have to work on top of all this#I barely have time to rest and recover#but I can't afford to call out#I have no money for a different cough medicine either I literally spent my last $10 on delsym#Im literally crying rn idk what to do anymore#I just want to get well#sam's rants about life
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Hey so. It looks like that time again where I have to ask for a little help
My insurance ran out and I had to pay out of pocket for my physiotherapy session today. It's also a short pay week because hubby lost a day of work due to his inner ear problem last week
Long story short:
After paying the rent, this is the situation. Hubby Jon has about $160 in his account, not enough to get me out of overdraft. I'm trying to decide whether to cancel our meal kits or skimp on groceries, we can't afford both. I mean. Technically between us we have negative $55 so... we can't really afford either
I also have a minor medical procedure scheduled for tomorrow and I'd sure like to have food in the house while I'm recovering. It would be one less thing to worry about.
Anyway.
If you have a few bucks to spare, I would appreciate a tip over at my Ko-Fi:
Thank you for reading
#as always please do not feel pressured to tip if you are in a tough spot yourself#i will not die if u don't donate. i will mooch off family for loans if i need to. i'd rather not but if it comes to that i will#and i do have enough food in the house to last at least... 3-4 days? probably more if i get creative#but yeah. not gonna die. a little help would just be nice#mod post#financial stuff#ko-fi#btw the recovery time should only be a few days it's a minor procedure no worries. i have god and codeine on my side. also antibiotics
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Teaching about all the artists dying of pneumonia while having pneumonia yourself, what a way to go!
Live while it lasts.
#ballet#diagnosis dance historian#diagnosis dance history teacher#hello michail fokin and anna pavlova#pneumonia#I am constantly being told pneumonia si no joke#while I feel completely OK#the only sign of illness being the antibiotics I need to take#three weeks ago however#well that was the proper fun!#and let’s not dwell on the minor details of me being in Paris then#going to theatre almost every night#hoping against hope i would not die there spitting my lungs on the ground#with a mask on#no worries#I am somehow a responsible human being#although my lungs on fire would probably disagree
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#can I just. scream for a second#so as is news to no one#we need to start over the entire us medical system from scratch#also I would like to be flayed alive and start over from scratch in the skin department as well#anyway for context: I've had some kind of rash/acne/infection/irritation all over my legs for over a year now#have tried various products and changed habits and products to try and get rid of it to no avail#everyone said you should really just go to a dermatologist#(I was not that inclined to do so bc the previous and only time I'd seen a dermatologist it was not a good experience. very condescending#also I don't like making appointments and stuff. girl I don't have time)#but I decided to be an adult and go (my insurance info seemed to imply I could go with zero copay even)#spoilers: that was not the case#anyway so I show up and surprise surprise: it sucked#she was dismissive and condescending imo. was literally like 'well it could be A B or C but I can't tell'#'all of those are basically impossible to get rid of anyway but the things to try are X Y or Z'#I asked to try Z since X and Y are things that I already tried and did nothing (which I had told her!!!)#but she just kept being like 'you just need to stop picking at it. that's the real problem and that's what's exacerbating your scarring'#(wow thanks never thought of that!) (she also insinuated that my scarring was ugly)#girl I'm not 5 years old I understand.#unfortunately for me that is a compulsion so strong it would probably take years of directed therapy to get me to stop doing that#what I'm here to see you about is to figure out what the problem is and how to stop it from happening in the first place#and STOP TRYING TO MAKE IT A COSMETIC ISSUE#it's causing me pain and discomfort that's the main problem! I would like that to stop!! and me not touching it would not solve that proble#also I wanted to ask her about something else but they were too quick about it. felt very Handled if you know what I mean#but anyway#she gave me a prescription for topical antibiotic which was the thing I had not tried#apparently my insurance doesn't cover it and it's also made of gold and plutonium or something#so she gave me a coupon for it#but get this#when I went to pick it up at the pharmacy they didn't take the coupon#the guy said. 'um this only works for the generic brand. and we don't have the generic brand'
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#sorry i have to be bitchy for a sec but i just saw a h/c fanfic#where one character had an infected cut on the hand#and he was like noooooooo pls dont make me get medical care doctor scary#and the other character was like aww dw beloved ill take care of this ur so brave <3#then like cleaned the wound out or something i guess#meanwhile i am sitting here like 😬 babe 😬#he's got FATIGUE#he's got a FEVER#he's LOSING CONSCIOUSNESS#that hand is probably twice its normal size and smells disgusting#PLEASE GO SEE A DOCTOR#you're in a MODERN SETTING#octenisept and a bandaid isn't gonna cut it get your man some fucking amoclav. he needs antibiotics or he will die.#this has been a psa. theres limits to diy woundcare and they begin at the first sign of infection. because that will kill you.#like theres a reason doctors sawed off limbs as a preventative measure before we had penicillin#rant over
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I am not at all scared about going to my surgeons office tomorrow so he can do whatever he wants with the infection
#this is a lie#obviously i am terrified and very triggered#the good news is i was able to flush a bit of it and it is half the size it was on monday/Tuesday#bad news is that it still has a rock hard line on top of my jaw bone and there is swelling around most of my mollars on that side#because of the progress i might not need a drain placed but he will probably end up sedating me and flushing it to avoid risks#(risks because airway joint and sinus complications or sepsis which are unlikely since I'm on so many antibiotics but you get the point)
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If I go to the ER for a fever that won’t break, neck and head and face pain, nausea, and dizziness so bad I can’t stand with a potential infection, would they laugh at me and tell me to go home? Be honest.
#I don’t want to waste anyone’s time#there are probably people who are sicker than me that need the bed#but I feel like I would feel so much better with some IV fluids and antibiotics
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in a weird place with my illness currently wherein i feel fundamentally alienated from the majority of the online spoonie community because the things happening to my body are so far beyond the scope of chronic fatigue and/or general joint pain that it's like. mindboggling. like we are living fundamentally separate lives like there is very little overlap in our fears or experiences, even when we have some shared symptoms. and at the same time i am fundamentally excluded from online Very Serious Disease (TM) communities because i do not have cancer or a terminal diagnosis and my organ damage has not been quantified yet (even tho several medical professionals have agreed it for sure exists in some form) so i'm not really sick.
i'm just so tired. there's, like..... there are tiers of Feeling Sick when you're chronically ill, and from what i've seen online most spoonies are at a tier of "coping day to day, strategizing," and then people talk about the tier of "if you suddenly unequivocally know that you're going to die extremely soon, you HAVE to go to the hospital, because you are probably right"
there's a middle tier that's more along the lines of "i am not going to die tomorrow but i am going to die. i am helpless and if i don't get help from a doctor i am going to die and i am getting slowly worse because my body is eating itself and/or shutting down because i am going to die. i am in desperate need of immediate medication that i cannot get because i have to wait to see a specialist prescriber and my body will continue to slowly shut down in the meantime and i will continue to slowly die but it will be so slow that nobody will really care"
like where do i go with that what do i do with that. what am i supposed to do about the five-year survival rate for vasculitis being 78% and most of the deaths being people who couldn't see a doctor in time to get the medicine they need. while i'm waiting to see a doctor to get the medicine i need and i'm feeling things get worse and worse. i don't have any community that's going through the same thing because i'm not sick enough but i'm also way way way too sick simultaneously.
i dunno i dunno i dunno. i'm overtired which means that my emotions are fried and people are talking about disability pride month starting tomorrow and that just made me cry because some of my physical issues are so common/widespread that i Should have a community but i just. don't. i don't have a community that's specifically Mine i'm just alone out here or at least that's how it feels. like don't get me wrong i have my family and friends and support network i'm not ALONE alone and all of that is wonderful i just. feel very alone. as far as the current experience goes.
#negative#my specialist appointment is in about three weeks and they did fit me in as fast as possible#because it's an emergency because im dying but there arent enough specialists in a post-covid long covid world. which isnt even what i have#and i am hanging on til the appointment ill be fine hanging on til then but like#imagine having a bacterial infection slowly eating into and spreading through multiple organ systems in your body#and being able to feel it happening and feel how wrong things are going and feel that you are in bad bad trouble#and when you call the doctor they say 'sorry to hear about that bacteria. we'll get you on a 6 month waiting list for antibiotics'#that's what this feels like. like i said i'm tired and i also need to eat probably but i just want it to Stop#autoimmune tag#long post
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Feeling depressed after the dentist appointment. Although figures out why my left eye feels like it's gonna swell shut. Apparently that sinus cavity is almost fully blocked
#d.ont reblog#probably need an antibiotic but i dont have time to do all of that right noa#or the money
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mmmm tastes like going to urgent care tomorrow
#i'll be fine but i probably need to go on antibiotics so it doesn't get serious#and then i can get my third removal. god willing the last i'll need
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save me pho... save me beautiful vietnamese noodle soup... save me...
#should probably call my primary and schedule an appt bc I'm pretty sure i need antibiotics#but ugh :((( hopefully I'll be able to do a virtual appt with her or something#but i was supposed to be measuring my blood pressure twice a day since i last saw her and i haven't done that yikes#fuck and I'm supposed to get bloodwork done too#i am just so.confused how i felt fine yesterday but feel like absolute garbage today#sad :(#rAMbles
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woo!! got my second doctors appointment for my lung problem!!!
#apparently though according to the receptionist I really should have gone to a&e by now lol#I’ve been on antibiotics but they did fuck all so ig we’ll see!!#may have to have a chest X-ray tho probably!#I just hope they give me smn to help bc I can hardly talk or breathe and well I need to breathe tbh
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Un fortunately I Do need to eat and Shower As I have errands To day so I will be Back to attack You All more later
#I Will probably be back be Fore The errands though#To Hit every one soem More#Because I Am crazy#//me it's me i have the errands okay#//my fucking pissfection is back so i need to get another goddamn round of antibiotics#//among other shit i need to do lol#ic
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hospital waiting rooms are the worst but me and my mother made a new bff. hes 8 and cut his hand on his hockey blade and he likes my new shoes and that we have matching hospital bracelets x
#emily.txt#im ok! just going for the probable bronchitis or pneumonia. trynna see if i need antibiotics
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We need better fucking care infrastructure. I should not be trusted with anyone's care ever 💛
#thing is caring for myself? I'm not GREAT at it but i can scrape by#i know my limits i know how much or little i need to survive i know that i can usually more or less bounce back after a tough time#i think if my life fell out from under me i could probably scrape it back even if i wound up doing a lot of couch surfing in the meantime#i genuinely don't know how I'll survive if i have to be fucking sole carer for someone#dad's on his way back now and he's been prescribed antibiotics and hopefully that's that#but at least a couple of times a year there's some shit like this#an awful cough or an infection or a fucking insane choice to like do some diy on the outside of the house standing on the windowsill#he fucking nearly chokes on his food once or twice a week#maybe he's just one of those cockroach type motherfuckers who'll never die no matter how the universe steps on him#but I'm fucking PISSED that he's taking that for granted and won't even sit and fucking talk to me about what happens when his luck runs out#I've been looking after mum alone for what four hours today and I'm already so tired and frustrated i wanna die#i am. a deeply impatient and unsociable creature.#i can be infinitely patient with friends! those are my fave people i chose to have them in my life I'd wait like a fucking mountain for them#mum and i were.... already sort of At Odds before all this started.#i'm the kid she never 100% really wanted and who never really 100% wanted to be here#and now we're stuck together and one day possibly sooner than any of us want it will be. just the two of us.#and i just. i don't know what that looks like. i really don't.#anyway. mental breakdown over hopefullly.#with a bit of luck dad and i actually fucking TALK before the next one#idk man. i never really knew what i wanted to do with my life but i thought I'd have time to figure it out#but maybe I'm just. the unqualified burnout with covid memory damage and a whole ass other human to care for#the exact thing i set out to avoid when i decided never to have kids#anyway. enough oversharing.#thank you anyone who's read my spiralling tag rambles in solidarity i love you#mr. bees speaks
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