#I also have hypermobility

[greenunoreversecard]

Having physical ailments is like;"I'm gonna do shit!" While feeling shitty and then wondering why the shitty feeling is getting worse

( I say this because I stood up to fast while my head was already pounding them proceeded to almost pass out while cleaning my room)

[ratcandy]

had a conversation with my mom and now i'm curious

If unsure, go grab yourself a pencil and compare to these examples:

"Correct" ways to hold a pencil:

(if you didn't know there were names for these, yea I had no idea either until I started looking stuff up lmao)

"Wrong" ways to hold a pencil:

I'm mostly curious as someone who has always held her pencil wrong. No matter what teachers/my mom ever did to try and teach me (pencil grips, elastic bands, etc) it just never worked. I wanna know how universal this experience is hdKJH

(rb for sample size, etc etc, the usual)

[gayinajar]

I MIGHT BE ABLE GO SEE A GHOST CONCERT IN APRIL

AND SEE MY LONG DISTANCE GIRLFRIEND FOR THE FIRST TIME

AND ILL BE ABLE BRING MY CANE WITH ME TO TRAVEL

IV NEVER BEEN ABLE DO ANY OF THOSE THINGS BEFORE

IM SO FUCKING EXCITED

[werewolfbarista]

no........could it be ....? new stretch marks above my hips..............?! quick, someone praise me‼️‼️

[fella-lovin-fella]

if you have chronic pain i love you btw. and if you have meds and need them right now, TAKE THEM!!! there's no shame in helping yourself and there's no honor in forcing yourself to be in pain

[havent-thought-of-a-name-lmao]

so i went to a rheumatologist today and found out i have hypermobile joints. and all of the hypermobile joints are pain hotspots: shoulders, elbows, wrists, hips, knees, and ankles (so technically only a 4/9 on the beighton scale but i guess that's why it's just a screening tool). she's also strongly considering myofascial pain syndrome. hypermobility apparently also explains me being ✨ generally fucking clumsy to a really notable degree ✨

it's pretty much just "the hypermobility is probably what's causing my pain, fatigue, etc." which makes a lot of sense but is also interesting because in MY mind with my zero knowledge of how hypermobility can look i was 100% sure that i just. didn't fucking have hypermobile joints. oops.

now i'm just kinda like

aside from letting my PT know that this came up and like. figuring out where to go from here. still getting blood work to rule out other stuff.

right now all i know is that i have some form of symptomatic hypermobility that's making my joints go "yikes" but we still have more testing to do on the autoimmune end. and also x-rays. i am so fucking tired.

[squarebracket-trickster]

Hello, treasured moot, how are you? I feel like being social today and I’m sending around some asks. If you’re feeling up for it, tell me about your favorite thing you’ve written in the past month or so. ✨

Hello beloved moot!

For you<3:

Twilight is well and truly gone. A thick cast of clouds plunges Lady Alice’s rooms into shadow. The sconces in the corridor bleed a flickering light through the doorway and over the whitewashed stone walls. I would fall asleep to this light when I was little, when some feast spilt well into a winter’s night and my parents would crowd us around a grand fire place with fairy tales and true stories – we were never sure which was which – until all the excitement of the night had left us with nothing but a heaviness in our eyes. Then my father would carry us, one by one to our sleeping pads beneath his bed, and my mother would pull the blankets over our shoulders. I wish I could stop thinking about them. I wish I didn’t feel horrible for wishing it. Do my parents want me safe or do they want a daughter that is safe - proper, unproblematic? What parent would not give a kingdom to their daughter if they could? But was queenhood their gift, a life of privilege to shape as I see fit, or is it a burden meant to trap me, a fly to a pot of the sweetest vinegar? Mother, do you still love me though I have made my own choice? Father, are you still proud of me? Everything I've done I've done to spite you. I was a loved child. I am terrified none of it was real.

-- WIPVII, draft 3 (.5), page 80.

Can't believe this nearly got cut from draft 3. I managed to save it but I think it happened like 30 000 words earlier in draft 2.

[rigormortisangel]

i get to start planning w the surgeon for my operations soon, in a few years ill have normal shaped legs and my knees wont bonk against each other anymore and my legs wont ache and spasm constantly

[mxescargot]

“average person gets 3 repetitive strain injuries a year” factoid actualy just statistical error. average person gets 0 repetitive strain injuries per year. Hypermobility Georg, who lives at computer desk,

[bread-that-draws]

Hypermobility is fucked up and evil actually like yeah I am a contortionist and my body can do all these fucked up tricks like Putting Both Feet Behind My Head. Folding Myself Entirely In Half. Bending My Limbs The Wrong Way. And don’t forget STEPPING DOWN A LITTLE TOO HARD AND MY ENTIRE LEG JUST GOES INSIDE OUT THEN SLINGSHOTS ME FORWARD AND I EAT ABSOLUTE SHIT

[practically-an-x-man]

older lady at work who came in looking for skincare products: oh you have such lovely skin, it's so clear and smooth! How do you do it?

me, in my head: well the first step is for your body to form collagen wrong...

[kawamagi-crow]

Anyone else feel guilty of not being "disabled enough"? like, i feel like I can't call myself disabled bc "well, my autism does affect every aspect of my life buttt I'm high functioning and have low to medium support needs!" or "My essential tremors arent that bad, I just can't write sometimes, I'm probably exaggerating stuff."

Ik this is some internalized ableism, and i should sort it out but its just... ik. very hard. same thing with asking for accomodations. sometimes i want to, i really do, but something just makes me think I'm stealing from people who actually need it and its not even that bad, I'm just exaggerating for attention

[average-transdalorian]

Starting to suspect that perhaps my ankle may actually be fucked up in some kind of way instead of just goofing around

[dabeth-is-dead]

Working in retail teaches you a lot about how much the public sucks, but the most surprising to me was just how common it is for people to feel entitled to personal medical history. I wear a knee brace at work to stabilize my kneecap for long shifts, and usually at least one customer asks, "What happened to your leg?" And thinks that that's an appropriate question for a stranger. The weirdest part to me is that if I tell them I was in a car accident (I'm a strong advocate for lying to customers about yourself) they leave that interaction continuing to believe that it was totally fine, but if I answer with some variation on the truth they suddenly get very uncomfortable. Like, sorry I've got an incurable genetic disorder instead of something cool like a tiger attack. Maybe questioning someone's health shouldn't be on your list of small talk topics if you're not prepared for the answer to possibly be upsetting, just a thought.

[ordinarytalk]

Could Symptoms Syndrome maybe chill the f out for a few days?

So ever since one of the instructors at the gym where I take aerial acrobatics classes clued me in to the fact that I'm probably hypermobile, I've been on yet another wild domino-effect ride that I like to call "What do you MEAN that's another symptom of hypermobility?!"

That hurty thing my fingers keep doing is probably subluxation and I might need to get joint braces

Opioids not working on me is part of it

The IBS is part of it

Poor proprioception/being clumsy is part of it

My shoulder is Not Supposed To Be Doing That

Me sometimes needing to punch doors open (because opening them the regular way hurts my wrist) is part of it

My fingertips pointing upwards when I extend my fingers isn't normal and it's called the Flying Bird Sign

The migraines are part of it

The random bouts of dizziness and sometimes blacking out when I stand up is part of it

Bruising all the damn time literally everywhere is part of it

The super heavy giant periods I used to get were part of it

It's comorbid with autism, auditory processing disorders, sensory processing disorders, apraxia, mood disorders including anxiety and depression, asthma, tinnitus, hair loss in all genders, chronically low vitamin D, teeth crowding, bruxism, fucking uticaria, chronic fatigue, and ADHD, aka every single medical problem I have ever had in my entire life except for maybe seasonal allergies.

Oh, and I probably have hEDS, too.

[mothwiingz]

this fucking doctor just tried to tell me theres no way i have hypermobility syndrome and that all my symptoms are probably caused by a food intolerance that my parents dont know about. im a 7/9 on the beighton scale. she didnt even try. she barely touched my joints at all. my fingers can all extend beyond 90 degrees on both hands, my thumbs can bend backwards to touch my forearms, and youre trying to tell me im not hypermobile enough to be diagnosed? fucking hell man

she also told me that i wouldnt have as much issues with fatigue if i exercised more. i DO exercise a lot, and when i push myself, i feel shitty and exhausted and have to spend forever recovering

i did mention using a cane to my mom tho, and she was actually surprisingly supportive and said i could if i wanted to and there was no reason for dad to object. ik he will, ik he’ll have smth to say about it, but at least i have one supportive parent.

i’ll be getting a second opinion abt hypermobility syndrome soon, def seeing a different doctor, but damn that was sooo frustrating