#Crps
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It's amazing how differently people treat you based on what mobility aid you're using. When I'm using my cane I get funny looks from people because I'm a young person and "do you really need that?". Almost nobody holds the door for for me and when I drop something almost nobody helps me pick it up.
When I'm using my forearm crutches people are a little nicer but not by much. I get less funny looks and more people hold the door for me, but still hardly anyone helps me pick up stuff I drop. And if I'm out alone shopping or something, nobody helps me reach stuff on high shelves unless I ask. I get not wanting to come off as ableist by offering to help, but if you see someone clearly struggling you might want to step in.
Now when I'm using my wheelchair, that's a whole different ballgame. Almost everyone is holding doors, helping me pick up stuff, helping me with high shelves, and being really nice to me. But people often infantilize me when I'm using a wheelchair. They always smile at me, which sounds nice, but it's usually in a way you would smile at a little kid out in public. If I'm with someone then people will talk to them instead of me, and if I'm alone people will talk slowly to me or in a high pitched voice.
It's literally not that hard to be normal around disabled people I just don't get it.
#crps#disability#actually disabled#disabled#cripplepunk#mobility aid#cane user#crutch user#wheelchair user
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#chronic illness#chronic pain#chronic fatigue#chronic disability#fibromyalgia#fibro problems#complex regional pain syndrome#CRPS#cripple punk#arthritis#spoonie#invisible illness#invisible disability#cherrys images
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❤️🧡💛💚💙💜
#chronic fatigue#chronic illness#chronic pain#chronically ill#pots syndrome#potsie#amps#crps#mcas#heds#ehlers danlos syndrome#hypermobile ehlers danlos#invisible illness
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Emily Barker, a model with paraplegia and complex regional pain syndrome, in Sinéad O’Dwyer SS23, photography by Paul Phung
#emily barker#photography#sinéad o'dwyer#fashion#model#runway#disabled models#disability#modeling#crps#paraplegic#paraplegia#chronic pain#wheelchair user#paul phung
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One of my favorite parts of recovery that i didn't expect to enjoy so much is being able to keep my room clean and tidy up my space smei regularly. Still no deep cleaning, but just organizing my space, picking up trash, putting away clothes. It's really nice, i genuinely enjoy it and having a clean space. I haven't had that in many years because of my disability, and now i can do it sometimes. Feels good.
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Happy disability pride month to people with pain disorders :)
Be that CRPS, AMPS, fibromyalgia, or anything else :). Your pain is real, and you are not alone <3
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Oof me rn
#my meme#spoonie#spoonie memes#chronic illness#chronic pain#chronically ill#crps#complex regional pain syndrome
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hey i am desperately trying to get out of my job. the above conversation is a very common occurrence, just to give an example of why i need to get out for the sake of my mental health. i got cussed out within my first five minutes of clocking in this morning. i get called slurs all the time.
in addition to this, i am physically disabled with CRPS, which is considered to be literally the most painful chronic condition that we know of, and i have polyarthritis too. it makes working a traditional 9-5 extremely difficult. i am constantly in excruciating pain.
i have a bachelor's in drawing and painting, and i want to paint full-time. it's the only thing that is ever going to bring me peace. here are a few of the paintings i have done within the past year or so:
i have a patreon that costs only $2 a month for the lowest tier.
i'm a quarter of the way to being able to being able to make that my full-time thing. you don't even have to care about the things i post there. you can just throw $2 my way once a month and feel like you've done a good deed. it costs less than a cheeseburger at mcdonald's. if just a quarter of my followers subscribed at the base level, i would be at my goal.
please please please help me get out of my day job. i cannot do this anymore. i am desperate. i am literally in a mental health crisis over this job and i'm out of other options because of my disability. i am so not good.
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I know the pictures suck but i made armrest covers for my wheelchair with a bag on them!
I had to remove a pocket from a pair of pants because a seam was touching my knee so i recycled them into bags!
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“None of us know for sure what’s out there. That’s why we keep looking. Keep the faith. Travel hopefully. The universe will surprise you constantly.” - The Doctor
I don’t talk about it very often on this blog but I have a rare neuropathic condition called Complex Regional Pain Syndrome. It causes me constant, debilitating full-body pain along with a host of other symptoms that affect every aspect of my life.
I got sick when I was 9 years old. I am 25 now and over the years my condition has deteriorated. I’ve developed several comorbidities which in combination have become life threatening.
In 2021 I was admitted to hospice. I was only able to make it through with the support of my friends who found new treatment options and set up a fundraiser for me. I’m beginning another round of treatment soon and with your help I will be able to afford the care I need during this lengthy recovery process.
These last few years have been the hardest of my life, but also the most hopeful. This disease has taken so much from me but I refuse to give up. I know I have a future, I just need help getting there.
You can learn more about my story here:
TV Interview // Radio Interview
You can help by donating, reblogging this post and sharing my fundraiser. Every bit helps!!!
🌟 LINK TO MY FUNDRAISER! 🌟
#fundraising#complex regional pain syndrome#chronic pain#crowdfunding#mutual aid#chronic illness#gofundme#crps#signal boost
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Alright fam, the cane isn’t cutting it more often than not, so I’m looking to get a CHEAP pair of forearm crutches to try out and see if they are enough help. I have recs for good expensive ones, but I don’t want to spend $250+ until I know if this new mobility aid will actually help. Does anyone have a recommendation for forearm crutches around or under $50?
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What do you think about Helen Otis and Judge Angels? or either one of them
Any headcanons, character analysis, uh overall view and stuff
also like grr grr bark bark everytime you post i kick and giggle my feet like a highschool girl your writing has inspired my stuff alot and definetly taught me to expland my uh how do u call this. Oh basically just push me out of my comfort zone. Its so cool I love you please dont turn intoa frisbee
BLOODY PAINTER (My Opinions)
Art by Delucat
TYSM YOURE SO SWEET ILYT!! I’m gonna talk about my opinions on Helen since I don’t know much about Judge Angels :(
In my opinion, Bloody Painter is a solid creepypasta. He’s not my absolute favorite, he’s definitely one I enjoy.
His storyline and personality are so unique to me, compared to many crps, and I feel like he doesn’t get enough recognition for that.
The way Bloody Painter behaves, and his reasons for doing so, are believable, making him a pretty good/accurate depiction of a serial killer, at least in terms of motivation and psychology.
I know the psychological angle in creepypastas isn’t for everyone, but I really appreciate it, and I think his creator did an excellent job with that aspect.
The only unrealistic part would be how he got released from prison, but it’s a creepypasta, that’s not a big deal at all.
I also love his design! It’s unique, and the whole “crazy artist” vibe adds another good layer to his character. It’s gross, but it keeps you intrigued yknow?
I’d give him a 7/10.
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saw this and thought i’d share
*picture not mine*
#chronic fatigue#chronic illness#chronic pain#chronically ill#heds#pots syndrome#potsie#amps#crps#mcas#hypermobile ehlers danlos#hypermobile eds#ehlers danlos life#ehlers danlos awareness#ehlers danlos problems#ehlers danlos zebra#im exhausted#mentally exhausted#ehlers danlos syndrome#education#chronically sick#pain warrior#pots
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Oof it's gonna be a mad one.
I am soooo SICK AND TIRED of people glamorizing chronic mental and physical illnesses. As well as oppression Olympics.
You couldn't shower or brush your teeth recently? Totally fine everyone has bad days.
You haven't done laundry in a while? Rewear those jeans/tshirt/dress.
But bragging that it's been 5 months since you washed your bedding and saying it's not real bed rotting unless you've neglected yourself that long?
Makes me sick. Because there are actual people being mistreated in facilities and in their own homes by supposed caretakers. People that should be getting their teeth and hair brushed daily. People that should be getting wiped down daily if they don't shower as often. It's disgusting to be bragging about things that are considered neglect and abuse to other people.
And the victim complex some people have...
"You don't know what you're talking about because you don't agree"
Like many people have various experiences especially within the disabled community. I personally have never been long term bedridden. But I've had multiple surgeries that have left me extremely restricted in what I can and can't do. Abdominal surgeries that didn't allow me to shower or lift more that 5lbs for weeks at a time. Pain while showering separate from the severe disabling conditions I already have.
I'll never look down or judge someone harshly based on circumstances. But there's a huge difference between feeling bad for someone and knowing they need help vs feeling bad because they refuse to help themselves.
Might be a bit controversial but it's the same group of people who blame their bad decisions on their illness/disability. And ughhh it's so patronizing when there's valid reasons someone can't do something based on their disability and restrictions and abled people use those folks to make laws surrounding our rights as human beings.
#disabled#disabilitydiscussions#thisgrindsmygears#clearlycontroversial#chronically ill#chronic illness#chronic pain#crps#gerd#heds#cyclic vomiting syndrome#gastroparesis#fibromyalgia#vasovagal syncope#dysautomnia#ted talks#autistic#adhd
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Yall ever just wanna transfer your pain to your doctors?
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Wishing my chronic pain could manifest as a person so I can yell, with all my pent up anger, sadness, frustration and grief 'IM TAKING BACK THE LIFE YOU STOLE'
#for what you did to me and what ill do to you#the damage youve inflicted#deathwish is so important to me#ive lost so much to chronic pain and i wont let it take anymore#i cant#it's not a fashion statement it's a deathwish#my chemical romance#mcr#gerard way#mikey way#ray toro#frank iero#jarod alexander#chronic pain#hsd#crps
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