#Chronic inflammatory demyelinating polyneuropathy
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redroses07 · 3 months ago
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The worst part about being chronically ill/ living with a rare disease, is I have to explain that I’m not in class cause I had an episode, fell on the floor, then couldn’t get out of bed.
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cljordan-imperium · 10 months ago
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CJ is sick...my immune system has declared war...shots have been fired...steroids are being deployed... wie ein Modder- Igel fühlen
Ich fühl mich wie gematschte Bananen
Ich fühl mich scheiße
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And gifts for my German besties for accurate descriptions of how I feel @saltysupercomputer @dreaminggoblin @writingmaidenwarrior
And I'm not contagious, so they're safe
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God, what a journey. I have CIDP.
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On the 8th of May I was told that my official diagnosis is 'CIDP' (Chronic Inflammatory Demyelinating Polyneuropathy) I have gone from the introverted but all-out goth willing to wear that blue dress into a hospital (first pic) to (with a fresh haircut) the dying to be out of the house, sill goth, geek (last pic)
I say this not to beg for sympathy but to say I'm officially disabled and finally at a comfortable point to say that, I am weird, I am Autistic, and I'm practically wheelchair-bound.
I am a rare case, most CIDP cases aren't in their early 20s with no prior illnesses before this happens to them, but I am lucky enough to live in the UK and have free healthcare, I can complain about wait times in A&E, or the slow way hospitals communicate, but I'm writing this to say that you should look out for yourself, cause you never know what will happen.
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oleander-teacup · 5 months ago
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hey cidp gang. my dad was officially diagnosed after suspecting for several years just a few months ago and is having a really hard time with coming to terms with needing a mobility aid.
what would you suggest for easing someone into using a mobility aid? as someone else with autoimmune issues i use braces galore but i dont feel weird about using them because i know they help me to like. literally walk. so i dont exactly know where he's coming from here. any advice?
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disabledsysboxes · 3 months ago
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Autoimmune - 4
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joebustillos · 2 years ago
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JBB's DRP for 11/29/2: Grateful Life Lessons
JBB’s DRP for 11/29/2: Grateful Life Lessons
For the next couple weeks I will be posting the Gratitude Journal prompts that are being given to my students and my response post. I can only image how different the words “life lesson” must mean to a middle school student versus the experiences of a sixty-something teacher. I’ve mentioned this more than a couple times but in 2012 I was diagnosed with an auto-immune illness CIDP (Chronic…
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does-truth-matter · 6 months ago
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The CDC has quietly changed who should AVOID the MMR vaccine.
https://www.cdc.gov/vaccines/vpd/mmr/public/index.html
They now state that ANYONE that “Has a parent, brother or sister with a history of immune system problems” should AVOID THE MMR VACCINE!
What exactly is an 'immune system problem?" Every autoimmune disorder.
* Achalasia
* Addison’s disease
* Adult Still's disease
* Agammaglobulinemia
* Alopecia areata
* Amyloidosis
* Amyotrophic lateral sclerosis (Lou Gehrigs)
* Ankylosing spondylitis
* Anti-GBM/Anti-TBM nephritis
* Antiphospholipid syndrome
* Autoimmune angioedema
* Autoimmune dysautonomia
* Autoimmune encephalomyelitis
* Autoimmune hepatitis
* Autoimmune inner ear disease (AIED)
* Autoimmune myocarditis
* Autoimmune oophoritis
* Autoimmune orchitis
* Autoimmune pancreatitis
* Autoimmune retinopathy
* Autoimmune urticaria
* Axonal & neuronal neuropathy (AMAN)
* Baló disease
* Behcet’s disease
* Benign mucosal pemphigoid
* Bullous pemphigoid
* Castleman disease (CD)
* Celiac disease
* Chagas disease
* Chronic inflammatory demyelinating polyneuropathy (CIDP)
* Chronic recurrent multifocal osteomyelitis (CRMO)
* Churg-Strauss Syndrome (CSS) or Eosinophilic Granulomatosis (EGPA)
* Cicatricial pemphigoid
* Cogan’s syndrome
* Cold agglutinin disease
* Congenital heart block
* Coxsackie myocarditis
* CREST syndrome
* Crohn’s disease
* Dermatitis herpetiformis
* Dermatomyositis
* Devic’s disease (neuromyelitis optica)
* Discoid lupus
* Dressler’s syndrome
* Endometriosis
* Eosinophilic esophagitis (EoE)
* Eosinophilic fasciitis
* Erythema nodosum
* Essential mixed cryoglobulinemia
* Evans syndrome
* Fibromyalgia
* Fibrosing alveolitis
* Giant cell arteritis (temporal arteritis)
* Giant cell myocarditis
* Glomerulonephritis
* Goodpasture’s syndrome
* Granulomatosis with Polyangiitis
* Graves’ disease
* Guillain-Barre syndrome
* Hashimoto’s thyroiditis
* Hemolytic anemia
* Henoch-Schonlein purpura (HSP)
* Herpes gestationis or pemphigoid gestationis (PG)
* Hidradenitis Suppurativa (HS) (Acne Inversa)
* Hypogammalglobulinemia
* IgA Nephropathy
* IgG4-related sclerosing disease
* Immune thrombocytopenic purpura (ITP)
* Inclusion body myositis (IBM)
* Interstitial cystitis (IC)
* Juvenile arthritis
* Juvenile diabetes (Type 1 diabetes)
* Juvenile myositis (JM)
* Kawasaki disease
* Lambert-Eaton syndrome
* Leukocytoclastic vasculitis
* Lichen planus
* Lichen sclerosus
* Ligneous conjunctivitis
* Linear IgA disease (LAD)
* Lupus
* Lyme disease chronic
* Meniere’s disease
* Microscopic polyangiitis (MPA)
* Mixed connective tissue disease (MCTD)
* Mooren’s ulcer
* Mucha-Habermann disease
* Multifocal Motor Neuropathy (MMN) or MMNCB
* Multiple sclerosis
* Myasthenia gravis
* Myositis
* Narcolepsy
* Neonatal Lupus
* Neuromyelitis optica
* Neutropenia
* Ocular cicatricial pemphigoid
* Optic neuritis
* Palindromic rheumatism (PR)
* PANDAS
* Parkinson's disease
* Paraneoplastic cerebellar degeneration (PCD)
* Paroxysmal nocturnal hemoglobinuria (PNH)
* Parry Romberg syndrome
* Pars planitis (peripheral uveitis)
* Parsonage-Turner syndrome
* Pemphigus
* Peripheral neuropathy
* Perivenous encephalomyelitis
* Pernicious anemia (PA)
* POEMS syndrome
* Polyarteritis nodosa
* Polyglandular syndromes type I, II, III
* Polymyalgia rheumatica
* Polymyositis
* Postmyocardial infarction syndrome
* Postpericardiotomy syndrome
* Primary biliary cirrhosis
* Primary sclerosing cholangitis
* Progesterone dermatitis
* Psoriasis
* Psoriatic arthritis
* Pure red cell aplasia (PRCA)
* Pyoderma gangrenosum
* Raynaud’s phenomenon
* Reactive Arthritis
* Reflex sympathetic dystrophy
* Relapsing polychondritis
* Restless legs syndrome (RLS)
* Retroperitoneal fibrosis
* Rheumatic fever
* Rheumatoid arthritis
* Sarcoidosis
* Schmidt syndrome
* Scleritis
* Scleroderma
* Sjögren’s syndrome
* Sperm & testicular autoimmunity
* Stiff person syndrome (SPS)
* Subacute bacterial endocarditis (SBE)
* Susac’s syndrome
* Sympathetic ophthalmia (SO)
* Takayasu’s arteritis
* Temporal arteritis/Giant cell arteritis
* Thrombocytopenic purpura (TTP)
* Tolosa-Hunt syndrome (THS)
* Transverse myelitis
* Type 1 diabetes
* Ulcerative colitis (UC)
* Undifferentiated connective tissue disease (UCTD)
* Uveitis
* Vasculitis
* Vitiligo
* Vogt-Koyanagi-Harada Disease
Wonder how many doctors are paying attention?
~shared from Jodi Wilson
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shapedforfighting · 9 months ago
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What's fucked up is that my nerve disorder pills for the pain in my feet have to be taken with food but when I wake up in the morning my feet hurt enough that I don't want to walk on them into the kitchen to make food to take the feet-pain-fixing pills
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eshas90 · 12 days ago
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ptmasterguide · 1 month ago
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Chronic Inflammatory Demyelinating Polyneuropathy
Progressive muscle weakness and loss of sensation in the extremities characterize CIDP, or Chronic Inflammatory Demyelinating Polyneuropathy, a neurological disorder. An autoimmune condition, CIDP means the body’s immune system mistakenly attacks its own nerves. Key features of CIDP: Progressive muscle weakness: This often begins in the feet and legs but can spread to the hands and arms over…
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mordormr · 2 months ago
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Unlocking Growth in the Plasma Fractionation Market: Insights from Leading Research
The Plasma Fractionation Market is projected to be valued at USD 34.90 billion in 2024, with an expected increase to USD 48.55 billion by 2029, reflecting a CAGR of 6.82% over the forecast period (2024-2029).
Market Overview: Unlocking Growth in the Plasma Fractionation Market
The plasma fractionation market has experienced steady growth, driven by the increasing demand for plasma-derived products to treat various life-threatening conditions. According to insights from Mordor Intelligence, the global plasma fractionation market is projected to grow at a CAGR of 6-7% over the next five years, fueled by advancements in biotechnology, rising geriatric populations, and increasing prevalence of immune and bleeding disorders.
Key Market Drivers
Rising Demand for Immunoglobulins: Immunoglobulins, which are critical in treating immune deficiencies, neurological disorders, and autoimmune diseases, continue to see heightened demand. The increasing incidence of conditions such as primary immune deficiency diseases (PIDD) and Guillain-Barré syndrome is pushing the need for innovative plasma-derived products.
Growing Geriatric Population: As the global population ages, the need for therapies to address age-related diseases such as chronic inflammatory demyelinating polyneuropathy (CIDP) and Alzheimer’s disease has surged. Plasma fractionation products, particularly albumin and coagulation factors, are critical in managing these conditions, thus expanding the market.
Expansion of Healthcare Infrastructure: Emerging markets, particularly in the Asia-Pacific and Latin America, are seeing improvements in healthcare infrastructure, creating new opportunities for plasma-derived therapies. Countries like India, China, and Brazil are increasing investments in healthcare facilities, providing growth avenues for manufacturers.
Increasing Plasma Collection Initiatives: Strategic initiatives to expand plasma collection, especially in the United States and Europe, have played a pivotal role in sustaining market growth. Collaborations between governments, non-profit organizations, and private companies have strengthened plasma collection networks to meet growing demands.
Challenges and Market Constraints
High Costs and Regulatory Hurdles: Plasma fractionation is an expensive process, requiring significant capital investment. Stringent regulatory frameworks governing plasma collection, purification, and fractionation add to operational challenges, impacting pricing and product accessibility.
Supply Chain Disruptions: The plasma fractionation industry heavily depends on a stable supply chain for raw plasma collection and transport. Disruptions caused by geopolitical issues, pandemics, or labour shortages have significantly impacted production capacities in certain regions.
Future Outlook and Growth Opportunities
The Asia-Pacific region is expected to offer the most substantial growth opportunities due to its expanding healthcare infrastructure, increasing patient pool, and improving plasma donation awareness. Technological innovations, including new fractionation techniques and advancements in recombinant DNA technologies, are likely to reduce production costs and enhance product efficacy.
Furthermore, the development of alternative therapies like recombinant plasma proteins and synthetic biologics may emerge as complementary solutions, expanding the range of treatments available to patients.
In conclusion, insights from Mordor Intelligence suggest that the plasma fractionation market is poised for sustained growth, driven by a combination of rising healthcare needs, global plasma collection initiatives, and ongoing biotechnological innovations. Companies that can navigate regulatory complexities and capitalise on emerging markets will be well-positioned for success.
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redroses07 · 4 months ago
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This probably makes me sound like a brat, but I really wish I had the opportunity to go to the Eras Tour again. Of course I’m so grateful that I even got to go once, but when I went in 2023 I was really struggling with my chronic illness and had to spend the concert in a wheelchair. I had just gotten out of the hospital a week before, so I was still learning how to navigate life with a disability. It was an overall very stressful experience for me. I’m now walking again and can’t help but want to see the show again.
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cljordan-imperium · 1 year ago
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This is the first time that the name of a bot has made me legit laugh out loud and HARD. I have an autoimmune condition known as chronic inflammatory demyelinating polyneuropathy - basically my immune system destroys the proteins around my nerves and causes extremely painful peripheral neuropathy. So The idea of an Overpowering Nerve following me?! NOPE! FUCK NOPE! Fuck straight off... *dies laughing*
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newsheadlinesnow · 3 months ago
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Chronic Inflammatory Demyelinating Polyneuropathy Pipeline Assessment 2024 | Clinical Trials, Latest Approvals, Key Players | Sanofi, Johnson & Johnson, Immunovant, UCB S.A., GeNeuro
http://dlvr.it/TCWlLf
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conversationpoint · 3 months ago
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Chronic Inflammatory Demyelinating Polyneuropathy Pipeline Assessment 2024 | Clinical Trials, Latest Approvals, Key Players | Sanofi, Johnson & Johnson, Immunovant, UCB S.A., GeNeuro
http://dlvr.it/TCWk2v
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thesunshinereporter · 3 months ago
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Chronic Inflammatory Demyelinating Polyneuropathy Pipeline Assessment 2024 | Clinical Trials, Latest Approvals, Key Players | Sanofi, Johnson & Johnson, Immunovant, UCB S.A., GeNeuro
http://dlvr.it/TCWk1z
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