#Child Life Specialist
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I HAVE OFFICIALLY STARTED VOLUNTEERING AT A HOSPITAL!
I did my first every shift earlier today (itâs about 11 pm on a Friday night rn) and it was a lot but good! Iâm a patient escort rn and a ârunnerâ, Iâm the one who has to go around and personally escort patients or visitors around the hospital. I walked nearly 3 miles in total today from all of it. My legs hurt. And itâs a huge ass hospital, so big that I got lost a couple times and one time, I needed help from another volunteer to get back to the lobby.
But after I complete my 100 hours, which will approximately be in late December, I can transfer to a different department and I REALLY want to get to the pediatric playrooms. Volunteering there will be one step closer to my dreams of becoming a child life specialist.
SoâŠyeah. I just wanted to share this because Iâm really happy and kinda proud of myself. Thatâs all.
If yâall read all do this, thank you for reading :)
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Remember that post about how healthcare workers canât wear costumes on Halloween bc they might have to do something serious in a silly costume?
I boldly thought to myself, that doesnât apply to child life because weâre there to normalize the environment for kids and support their coping!
⊠and then last night I supported a teenage trauma patient in a room full of serious people in scrubs wearing a 3d foam hotdog costume. It was awkward. Oopsies!
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"During a typical day as a child life specialist, we could go from a medical play session, to preparing a child for a procedure, providing support for siblings of hospitalized children, to helping create milestone activities. Every day has its own unique tasks and challenges, but the goal is the same: helping patients and their families cope with being at the hospital."
Mallory Gutchall, Certified Child Life Specialist, Family and Volunteer Services
#Mallory#Gutchall#Child Life#Child Life Specialist#Medical Play#Procedure#Support#Milestones#Challenges#Goal#Family and Volunteer Services
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New Beginnings
There is so much I want to say about what has recently been going on in my life.
I was really struggling emotionally in college, particularly with my depression, anxiety, eating disorder issues, and suicidality. It wasn't a new struggle, but it was bad at that time, and I was consumed with my problems. When I discovered my current field (child life specialist) in a class I was taking, my life dramatically shifted. I felt that God had placed this in my life because not only was it a perfect fit for both my gifts and goal to serve others, but it saved me from my toxic struggle with myself.
(For those that don't know, child life specialists help hospitalized children cope with medical experiences, teach children about their diagnoses, and provide support during procedures - learn more here.)
In deciding to pursue child life, I felt passionate, excited, and I was focused on others, rather than myself. It was a very competitive field and took years to complete my schooling, clinical practicum and internship in multiple children's hospitals, along with passing my exam to become certified. When I applied for my first job, the only program that exists near my family, due to complicated social factors I won't get into now, that manager said she would never consider hiring me.
To say that I was shocked and crushed was an understatement - I cried for days, my chest hurt as if someone punched it, and I felt so lost and confused. Why would God lead me to a field that if followed, would not allow me to live with my family, friends, and faith community? I was at such a low place that the only comfort I found was at the foot of the cross, and I prayed this prayer: "Jesus, my dreams have died and I bury them at your feet. Let Your Blood pour out onto them, that You may water them, and something beautiful may grow." I prayed this over and over again, every moment that I felt abandoned.
I then pursued jobs in other hospitals and got a job out of state - it was about 4 hours away from my family. I have been at this job for two years, and while I have been able to truly live my dream helping kids cope with illness, injuries, and traumas, I had trouble coping with being so far from my support system. This October we had so many deaths and horrific cases in a row I broke down in my boss's office and told her I don't know if I can continue to do this alone out here. I told my mom that if I couldn't find a job closer to home by Christmas of this year, I will have to abandon the field I worked so hard for and feel so called to do, for my own mental health.
On Good Friday - Good Friday, the day on which Jesus's blood was poured out for the world - my dream job becomes available only minutes away from my family.
The problem was that it was with the same health system that had previously told me they would never consider for me for their team.
I applied, and the process was agonizing - every step seemed to take so long, even though each only took a few days, and the waiting was painful because I knew I was hoping against hope that they would consider me, yet this hope and joy would bubble up inside me because I knew this was from God. I just knew, and no matter how much I tried to put my feelings in their proper place, I just knew.
My interviews went wonderfully and I was offered the job within 10 minutes of leaving their office. I was in the car driving and was overwhelmed with knowing my dream being resurrected when I had accepted long ago it would never, ever happen. God found a way to bring me home.
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Let's see...in the interim since my last post we've had strep (again), norovirus, and judging by the rash developing on the baby, strep yet again.... To top it all off, our pediatrician is going to dismiss the baby from their practice by the end of the month if we won't agree to every single vaccine recommended before his second birthday by the holy and inerrant *CDC* even though he's already gotten 90% of them....It's been 5 months of this bullsh*t and I'm tired....
#life update#bad doctors#I've never had the kids be sick for basically months on end before#Gee I wonder why this is happening#Must be a coincidence#Gosh this all infuriates me#'Every child must be fully vaccinated to protect the unvaccinated like you' WTH#No internist or PCP or specialist requires complete vaccination records for their patients#This is something only pediatricians do#It's not hard to see why
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So these people kind of exist!!!! They are called CCLS- certified child life specialists (worst named profession ever imo)
their job is to explain medical procedures in developmentally appropriate language, prepare people for procedures or stuff through hands on learning, build coping plans and support people through procedures, and normalize the medical environment through normal life activities!!!!
They usually work with kids and are most prevalent in big childrenâs hospitals, but their work is being expanded to more places and age groups because of how awesome and helpful they are for everyone!
You can usually find out if a hospital has them on the website under auxiliary or supportive services- often grouped in with chaplaincy. You can request that they be consulted if you could use their help!!!
Iâm a new CLS and I love this profession! The national certifying association is the ACLP (Association of child life professionals) and they have lots of great info in their website!
One example of how child life can help especially for autistic ppl is this: if an autistic person needs a blood draw but is terrified of needles and unsure about the environment, CCLS might:
Walk you through how the procedure works using actual medical materials
Explain what itâll feel like, smell like, sound like, look like, etc
Show you pictures or videos of the environment, in as much detail as would be helpful
Make a social story or visual schedule to support you
Help you make a plan to cope before, during and after the blood draw
Support you in using that plan during the blood draw
Work with the phlebotomist/other medical personnel so they interact with you in a way thatâs helpful (and advocate with and for you if that person is stubborn or just not willing)
Modify the environment by having them turn lights or music off, bringing in sensory equipment or fidgets, and setting up an alternate waiting area or even location for the procedure if possible
Debrief with you afterwords and help you come back to baseline
Child life rocks!
~~~also~~~ this is just one possible outline for one circumstance! Seriously, look into child life, we can help with so so so so many things!!!
I know I have said this before but there really should be a nice safe place with kind sweet nurses that you can go to when youâre so so scared and they can walk through medical procedures with you in a no-stakes environment so you can go as slow as needed or just quit if you want to bc itâs not medically necessary. so then you can learn what to expect and what your reactions to things really are and then if/when those things comes up for real youâll know what to ask for and what to refuse and what to expect in general. practice medicine. autism doctor practice. please I wanna spend an hour with a super kind nurse where we can test different things and figure out how to make IVs not hurt so bad I black out and whether Iâm one of the lucky people to react badly to injected lidocaine. and thereâs no way for me to have this bc itâs not a thing!!!
#Lilly chit chats#child life#CCLS#child life specialist#autism#asd#actually autistic#autism awareness#support services#medical care#medical anxiety
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literally I get her perspective but if you knew what our arguments looked like on the reg youâd know that itâs actually painful to go thru another bout of her making a situation about her pain and her guilt
#and her feeding me variations of âget off your ass and do somethingâ was kind of crazy#when I just spent 6 years of my life trying to undo a mental health crisis brought on by the fact she refused to take me to a mental health#specialist when advised by doctors and child services but thatâs neither here nor there lol#mrow.org
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normally I'm not very critical of movies but oh my gosh. the one I just watched was so bad (I sat here for a while trying to figure out the best way to word this but the benadryl has already kicked in. no thoughts head empty). like genuinely how the fuck did this get funding. How did it make it into THEATERS?
#the movie is Forever My Girl (2018) btw#I like some of the actors in the movie which is part of why I decided to watch it in the first place#but the story???? girl WHAT#I'm no child life specialist but that child should probably not be left unsupervised with a man who is probably a danger to himself without#other adults to supervise him and take care of his every need#âHow do I buy an espresso machine onlineâ âHow do I use my credit cardsâ fucking WHAT?!#I know it's fictional. I know it's fake.#I know the film (and probably the book it's based on too) are meant to be corny and appeal almost painfully to all the tropes it contains#but wow. Holy??#I was about to say I'm speechless but obviously not because I've been rambling this entire post#my cat is about to break another one of my blinds. My train of thought has stopped (probably for the best tbh) bc he's trying to climb#through the closed blinds again. He's already broken 2 of the individual shades/pieces#guess who isn't getting their security deposit back!!!#This gal oh yeah.#but in all seriousness I love my cat#He's a good boy and he rarely gives me any kind of problems#shut up Lauren#I've been passing the time while I've been sick by playing a ridiculous amount of sudoku#and also by watching movies#so far I've watched Mr. & Mrs. Smith (2005)#The Interpreter (2005)#The Accountant (2016)#and Forever My Girl (2018)#anyway. me & my cat say good night <333
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I just realised tomorrow marks the 7ths week of me being sick and feeling like garbage lol It's some ups and downs but generally it's been a while since I've been healthy and none knows whats up which is nice.
#been to the doctor so many times#and at least my general doc is trying but she cant figure out what's wrong#and the throat specialist I've been to twice in one month got a very helpful âsounds like stress and you imagine allâ for me#like thanks i keep having my ear throat and nose inflamed constantly and nothing i tried so far helped but surely its stress#my doc suspected a virus but we also didnt find any active anti bodies#so i was just told to rest and was off work for two weeks that also did nothing#so i worked again even tho my doc was like maybe not but i got psychological issues being home with nothing to do#gotta go to my dentist tomorrow to see if the source is there#but im sure its my ears but I'll never go back to that doc#i was there twice a month cuz it kept getting worse and got a stress stamp#stress i didnt even have lately cuz i got a healthy fuck you all work motivation now#and now I'll lose all chance for promotion cuz i cant do my usual 200% and my bosses translate that with: she broken now bye#going great#also don't really have motivation to draw anymore#I started to build model sets but idk if anyone would wanna see those#I also got a cyst on my ovaries and got an appointment in july#that gives me serious pms like i never had it before but ok#someone knows a doc that'll remove the whole uterus i don't need that shit anymore#anyways in case anyone's been wondering where i am lately or if anyone even read this my asks are open if anyone wants to ask smth#or ask my OCs they live rent free in my head and are very precious to me#even my new car is named Michael#he's cute and my record so far been 190km/h#one day I'll do the 225 he can do#just get off the road that day pls#that car was the onyl thing i worked for so idk what to do with my life now#save for car repairs maybe#anyone wants a pic of my child#he's orange#I'm very proud of myself i managed to save up for him quiet fast#these tags are wild but I'm feeling a bit more energetic thanks to some plant supplements my uncle gave me
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do u ever stare at the wall and think abt how in a couple days ur gonna get so many calls from doctors and insurance and pharmacies and
#sick shit#like. this has been since i was 6 man#im tired#ANOTHER ct scan with nothing#ANOTHER endoscopy with nothing#im. god.#i should be happy abt that#i should feel grateful and lucky that i dont have a horrible disease#but after being sick your whole life? seeing specialist after specialist since a young child?#being told 'youre my youngest patient!' and 'but youre too young to be in pain'#idunno man#its exhausting#and ive never met anyone with the same story
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Please help Rajaa, Khaled, and their one year old son escape!!
Rajaa (26) her husband, Khaled (30) and their son Karam (1), are trapped in Gaza and experiencing all they love, including Rajaaâs work as a medical analysis specialist and Khaledâs as a teacher and chef, disappear.
Please help them find safety and stability for themselves and their young son, who is going through what no child should ever have to go through. They are trapped in practically unlivable conditions, surrounded by death and living in fear that every day they could be next.
This fundraiser is currently at $3999 out of a $20,000 goal, and they can use all they help you can give.
If you have even a dollar to spare, please, please consider sending it towards this family in great need. Thank you.
(Vetted by @90-ghost)
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This is kinda gonna be a niche rant post but Iâm really struggling in my career path lately
âŠ.
So to be a child life specialist you need 600 internship hours. And those internships are insanely competitive so I decided to go to the graduate program that basically matches you with internships. AND I STILL CANT GET A FUCKING INTERNSHIP!!!! The hospital I was supposed to be at this spring dropped me because I was taking too long to get my health clearances and so now Iâm at a freaking EI place which is BARELY CHILD LIFE and my supervisor took me on as a PITY JOB because sheâs an alum from the program.
And then for the fall one program saw my application and didnât even want to interview me! And two others I matched at and interviewed at and they BOTH said I wasnât showing the BREADTH OF KNOWLEDGE they need from interns!!! But I thought the interviews went really well! And most people are accepted by both internships they interview at but apparently Iâm so pathetic nobody wants me as an intern!!!
And now I spoke with my advisor and she said they might not be able to get me into a traditional internship setting because so many places have already chosen interns but if I donât intern in the fall I canât graduate!!!! They might even beg my current internship to take me on for longer! And I canât fucking take another community based setting because itâs not Really child life and I wonât actually have any job experience!!!!!!
Iâm just so upset and I hate myself for fucking up my spring internship and I hate myself for flopping my interviews and I hate myself for being the worst student the programs ever had and I hate hate hate this!!!!!! I should have done something else I should have chosen a different career path
I HATE MYSELF AND THIS STUPID FUCKING PROCESS
Not to mention how exorbitantly expensive this fucking program is!!!! And how high the cost of living is in this city!!! Iâm gonna have so much fucking student debt and no job prospects!!!!
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the lawn is dead. pt.2
hi! i wrote a part 2! iâm on a unofficial hiatus but had some inspiration the last few days and had to finish this. hope it provides a little bit more comfort then the last chapter .. sorry xo
warnings: suicidal themes, self harm themes, themes of depression, anxiety, dark thoughts. viewer discretion advised.
You can describe the carpet of this office better then most people can describe themselves.
Itâs a rug, for the most part, except for the where itâs clear a person has chosen laziness in favour of lifting up the heavier furniture to place the rug down underneath it. Where the rug doesnât cover, there is bleak grey carpet that feels more boring then the time you spend in this room.
Where the carpet lacks in literally everything, the rug makes up for it blindingly.
Itâs a messy mixture of far too many colours, pinks, purples, blues, greens and neutrals. It doesnât make any sense in your mind, why somebody would chose for the focal point of their room to be a rug that doesnât match with any of the furniture. Itâs another sign that the furniture came before the rug, all of the furniture is dark mahogany, beautiful pieces that look as if theyâve come from and English period piece, whereas the rug looks so modern itâs almost painful.
The rest of the furniture has been picked with similar taste.
The painting on the wall looks like what a child would vomit after going to a birthday party. Every time youâve come here youâve had a new analogy, but this week that is the one, it looks like stomach contents and you canât get past it, to the point itâs made you physically nauseated.
From the painting moves onto the bookshelf, where there is a odd mix of medical textbooks, classics and selfawareness books, all stacked in such disarray that you have to keep your eyes away because it makes you uncomfortable.
Beyond the furniture is your psychologist, with her stupid fucking note pad, stupid glasses perched on the very tip of her nose and stupidly calm face that never really changed.
She was supposed to be a specialist, the best of the best, supposed to be the greatest and getting to the bottom of the most famous athletes problems and yet you found pride in alluding her.
One hour, every four days was what you were down to now, a couple of weeks ago it had been every other day and that had been fucking torture.
Sometimes all you wanted to do was rip her eyeballs out, or her brains, or something else. You swore she made your ears bleed and your will to live deteriorate with every second and it was already pretty low.
âYou canât avoid my question forever.â
It was also that annoying tone that sent you, the sort of tone that meant she knew that technically for the whole of the hour she could ask you whatever she pleased and you were technically supposed to answer her. Defiance on your end just ended up in you being suspended from something else that made your life just a tiny bit more liveable.
âNo, I havenât talked to Mapi yet.â
Youâve been avoiding it, there have bits and pieces of homework from your therapist, but this one is by far the hardest.
âHow about Alexia, how does she feel about that.â
You donât want to tell her that you and Alexia are in shambles as it is, add on the pressure of her best friend being psychologically destroyed because of you and just talking about any of it at all and itâs like dynamite.
âSupportive.â
Your therapist nods, but in the way that you know she doesnât quite believe you.
âHave you started to reintegrate with the team? I know last time we talked you mentioned that before the incident youâd been feeling quite isolated because of your ankle injury. Itâs important that you start to normalise your life again before you start to self isolate.â
You donât call it self-isolation, you like to call it self protection. You protect yourself by pushing against the grain, by keeping to yourself. Itâs a lot easier that way.
âIâve been busy.â
Itâs a lie and a blatant one, your days are filled with complete nothingness. You canât play football, not until she clears you, and you know that itâs not going to happen anytime soon based on the trend of your current sessions. There has been the same amount of progress as there was two weeks ago when you started with her. You shut down at every attempt she makes to try and open you up, you talk when you have to. Itâll probably get you sent back to a ward. You donât remember much from your transition from the hospital to home, but you do remember signing something that referred to you making significant process or else you would be sent back.
Progress for your therapist is getting more then two word responses from you. Youâre aware sheâs in kahoots with Alexia, that Alexia is probably providing her more information then you are.
âYouâre giving me the look that means that youâre writing something down along the lines of âunncooperativeâ.â
She is also in kahoots with the staff at Barcelona, another thing you signed was that she would work in conjunction with the clubs doctors to get you back to where you were, or somewhere in the vicinity.
They know every time you have a bad session, youâre guaranteed a consolation call from one of the coaches or even sometimes a teammate check-in telling you how brave you are and how strong you are for doing this.
You donât agree, you nearly took the cowards way out and youâre proud of it. You wish it had fucking worked, every single second, of every single day, you wish youâd succeeded, wished that this hadnât all ended up how it did.
âThatâs not what I wrote, I wrote a observation. Uncooperative would be you refusing to speak to me like you did for our first two sessions, even if you lie itâs still trying.â
You donât want to be curious of her, youâve tried to give her as little attention as possible.
Youâve adapted the act that you call, therapised you.
You do your best job of smiling here and there, or at least when you know that youâre supposed to. Therapised you extends to a few people, Alexia, coaches, physios, people on the street.
You believe youâve become a seasoned liar.
The funniest part is that sometimes you start to believe your act, you start to believe that all the ash and embers in your chest is really alight with flames, like youâre truly alive.
But then, you would pause, sit down, lie down, dissasociate and you would be reminded that that wasnât your body. Your body wasnât a place of life and prosper, it was as dead as anywhere else.
âWhat was the observation?â
You try not to be curious over her, or curious in general, you keep everything to yourself.
âYouâve told me time and time again that you attempted because you believed that not a single person would care if you were gone. Yet you wrote a letter, you knew that somebody would care, somebody would miss you. Guilt is what kept you from doing it earlier and guilt was what kept you from vanishing without a trace. Your conscience was clean in your own words, but thatâs not true, your conscience was anything but clean. So what pushed you over?â
You hate that therapists have a way of worming out weird bits of information that they can use against you to worm out more bits of information, like they know your brain inside to out.
âMy conscience was clean.â
Your therapist pulls her glasses up from her nose and scribbles on her pad again.
âWhyâd you write a note then, specifically why did you write a note to your ex girlfriend?â
There are so many things you could say to that, but you canât quite find the words.
âLet me rephrase to make it easier. When you were in the hospital, and Alexia reacted so viscerally, you werenât surprised. You expected her to feel something about what happened, you didnât seem surprised at all by her words or actions. You knew that she was going to be hurt by what you did. So, how was your conscience truly clean?â
Thinking about Alexia in the hospital makes you feel as nauseous as the furniture does.
Your still mad at her, still mad at yourself for never changing her as your medical contact and medical proxy. It had all been a clusterfuck.
âI didnât know Alexia was going to be there, I though that sheâd washed her hands of me. I left her a note because I thought there had been things left unsaid between us and I didnât want to leave that way.â
Your therapist nods, she doesnât scribble this time and that makes the itchy feeling all over you die down a little bit.
âAlright, letâs move on. Your ankle injury, howâs that going?â
You look to the window, itâs a horrible day outside, just your luck when youâd chosen to walk to your therapists office on what was supposed to be a 20 degree day with sunny skies. It was the epitome of your life, high expectations, low realities.
âWell three weeks between a hospital and psychiatric facility are probably the best thing anybody can do for a injury.â
You let out a self-deprecating chuckle and your therapist does nothing but scribble.
âSo youâve been doing your rehab as advised then?â
Rehab, both kinds, is mind-bogglingly boring. You go to your therapist and she tells you all the ways you have to work to rehab your brain, she gives you medication after medication and exercise after exercise. The same happens every time you see your physio, test after test, exercise after exercise.
Your stuck in the same cycle of boredom, it makes you wonder how people ever expect you to get better when all you are doing is living in a constant state of suffering.
âThe physios are happy with me, say that if I continue on the track that I am I should be back on the pitch in a few weeks, with psychological clearance.â
At the current therapeutic rate your going at, you donât think youâll see a psychological clearance until your 50th birthday, if youïżœïżœïżœre lucky.
âHow does it feel coming back from that injury, especially considering how the decline in your physical health simulatenously resulted in the decrease in your mental health?â
You keep silent, because you know that if you talk then itâs doing to be something emotional. When you donât know how to answer questions without exposing yourself you opt to keep quiet, itâs a obvious tell that you feel uncomfortable with the question. But giving away a tell is a whole lot better then starting an emotional downpour.
âY/n?â
You look at your shoes. You only were allowed to start wearing one on your bad foot a week ago, and youâd forgotten how hard it was to coordinate shoes with your clothes. This morning youâd thought that they matched with your pants but now they look much darker then they truly are against the grey carpet. The mix of your navy adidas that you might have stolen from Mapiâs wardrobe a couple of months ago when she was complaining about the amount of shoes sheâd been sent with your grey wide leg pants was a interesting choice but therapy wasnât a fashion parade. The shoes donât quite fit your feet, thatâsc how you remembered they werenât yours. When youâd taken them, it had been during some kind of team bonding night at Mapi and Ingridâs apartment. Life had been so good, Alexia and you had been so good and for once youâd kind of felt like you were beginning to fit in.Youâd never felt that way before that era of your life.
But like most things, it was now a far distant memory.
âThe injury wasnât what made me depressed.â
Itâs a half truth, you suppose. Yes, the injury definitely contributed to the factors that trigger your depression, but it wasnât a sole cause.
âI disagree.â
More scribbling on her note pad, in your opinion it must be some psychological form of torture. Youâll google it when you get home, check to make sure that this isnât a form of manipulation to somehow convince you to say the things that she wants you to.
âIf you disagree then tell me why you think that.â
Itâs daring of you to say, there is nearly a 99.99 percent chance that whatever she says you are going to deny vehemently. Even if she hits it right on the nail.
âI think that you donât give yourself enough grace for the challenges that youâve gone through. You came to Barcelona because you were running from things, from your past. Youâve never stopped running, truly. Everytime somebody gets close enough to begin to try and worm their feet into your shoes to try and relive some of it with you, you shut them down and stop it. For most people, shoes are a means of getting to where they want, for you, you keep running because if you stop you feel like youâll suffocate, like your feet will be wrapped up in barb wire and youâll be stuck. For whatever reason, you donât think anybody will ever be able to empathise with that. You think that if you ever let anybody in for long enough that they learn what youâve been running from that theyâll try and stop you, that youâll be faced with everything that youâve ever struggled with. So, you keep running, and running, youâve always been in a state of escape. With your relationship, you finally stopped running, you slowed to a jog. Then, you got injured. All of a sudden you felt like you were stuck and instead of letting yourself finally come to a stop and accepting help and complete love for once in your life, and being vulnerable. You chose to start running again, running from your friends, running from your team, running from every single good thing that youâd gotten in your life until you were so consumed with all the running that you just wanted it all to stop. But you didnât know how to stop parts of your life without stopping other parts, so you chose to stop it all.â
You donât know what to say for a few seconds. Youâve never had the feeling that youâve been experiencing your whole life summed up, you donât know how to feel about it.
You look at your psychologist, and somehow she looks back at you in a way that you somehow feel like she understands, youâve never really felt that way about her.
Itâs always felt like sheâs judging you, like itâs her job to judge every single thing you say. Or at least thatâs the way youâve always seen it. Itâs her job to make sure you donât fall of the rails again, to make decisions about what you can and canât do. Itâs never been a possibility for you that maybe sheâs here for a little bit more then just the business side of it all.
âIs that it? Did you come to a point where it felt like you had no other option but to just make it all stop?â
You bite your lip so hard you think it might just bleed, itâs a mission to try and stop the tears that have begun to cling to the back of your eyes at bay. Youâve never cried during a therapy session, and there is no reason why today should be different. The amount of people youâve cried in front of is limited to a very, very short list of people and you donât intend for your psychologist to be added.
âIt would be okay if that was it. Itâs okay to admit that for you at that time it felt like there was no other option but to make it all stop.â
You feel muzzled, like you canât speak without admitting to something that you donât want to.
âI thought it would make it all better.â
Your therapist puts down her notepad, and you feel a whole load of anxiety rush out of you.
âYou thought it would make what better?â
You keep your tooth pinned to your lip, if it draws blood, it draws blood. The pain helps to take your focus off of the word vomit you can feel coming up.
âEveryone elseâs lives.â
Your response is croaky, and when your therapist points to the glass of water you donât shake your head like normal, you find yourself reaching for it and taking a few tentative sips.
âWhat about your life, what about making your own life better?â
You take a few more sips, because it stalls the conversation for long enough that you can think up an answer that doesnât make it sound like you are completely insane.
âI was never really thinking about it like that.â
You look at her, eye to eye again, and there is this weird understanding between the two of you. You can feel it, whether or not itâs real, for the first time you feel like you arenât crazy for thinking the way that you do. Itâs a weird kind of safety that youâve never had.
âFor a minute, I want you to close your eyes and think about exactly what you want, whether itâs the future, itâs right now. Not football, not other people, nobody else. Just you.â
You humour her, and close your eyes.
For a few seconds, you canât think of much. Youâve never been a future thinker, not beyond emergency plans and second options.
You think about death for a few seconds, a couple of weeks ago it was all you could think of. Permanent, irreversible disappearance. Even then though, it wasnât what you were actually yearning for, not truly, it was just an easy solution to complex problems, problems that still havenât been solved.
You think long and hard, and eventually you find a pleasantness.
You want to resolve things with Alexia, you know that for sure. Itâs been impossible trying to navigate your relationship in your new reality. You want to get to a place where itâs less impossible. You want happiness with her, pure happiness. You also want some kind of return to football, you donât know how. Youâve never really played football because itâs what you love, youâve never loved your sport, itâs more been about having something that could take you places when inevitable wherever you had been was no longer an option because youâd somehow fucked it up.
You want a better relationship with yourself, you want to understand why you think the way you do and why you canât think the same way and be the same way as everyone. You want to get past the fear you have that you will never be the same.
When you have nothing else to think about, you open your eyes, to your psychologist smiling at you.
âThatâs our hour, Iâm really happy to leave this here and circle back to some of it in a couple of days. The progress youâre making is definitely getting bigger and Iâm happy to sign off on you getting some hours in the gym if your physios are happy with it. Iâll call the team tonight and we can work out a plan that works best.â
Youâre in slight disbelief as she speaks.
âYouâre sure?â
You stay seated for the sake of making sure that you havenât somehow dreamt up what sheâs just said.
âIf you try and make some progress with your homework. I want you to try and talk to Mapi, a text message, coffee, something. I want you to talk to Alexia beyond her being a caregiver for you and I want you to make progress with your teammates, donât avoid the gym if you know they are going to be there, donât avoid team events, dip a toe in the water with them and I can guarantee you will have a very different outcome then what you think.â
Contingencies. One thing youâve learnt about therapy is that there are always contingencies, itâs always a give and take, never one or the other.
You nod your head anyways, somehow, with her weird manipulation games youâve managed to agree to something that the version of you from and hour ago never would have.
âIâll try.â
Your therapist smiles and stands up, for whatever reason there is always a part of you that loves the end of your sessions but also never wants to leave.
Whether it seems like it or not, you actually do want to get better, you just donât know what better looks like for you and thatâs scary. Youâve never met the version of yourself that is âbetterâ or ânormalâ. You canât say that you want to be your old self because there hasnât ever been a version of yourself that feels better. Youâve always been in the slums, always been dragging yourself through the thickest mud to try and make it to the end of a day or month or year. You donât actually want to survive like that, you want to live your life properly, or whatever non-sluggish life looks like for you.
Your still desperately trying to work that out.
Alexia is waiting in the carpark as usual, itâs always the same carpark, always the same consolation hot chocolate in her hands afterwards.
Once youâve sat down in her passenger seat, put on your seatbelt and the takeaway cup is settled in your hands she broaches the topic of your session.
âHow was it?â
There is always an awkwardness around your sessions, Alexia picks your up from every one, on the odd occasion sheâll join in if your therapist thinks it would be good. Otherwise, she spends the time sitting in her car and picking up hot drinks.
Itâs infinitely awkward between the two of you, but Alexia in your opinion is mostly to blame for that.
Sheâd been the first person to put her hand up to be your carer, your glorified babysitter.
You know itâs a guilt thing, she feels guilty that part of your pain could have been because of her, even though youâve insisted time and time again that it wasnât.
âFine.â
Therapy is a tough topic for you, mostly because youâve never wanted to be there in the first place. Youâd been tricked into going from the beginning, Alexia insisting that she was taking you to a appointment to check up on your scars when really it had been to your psychologists office. Youâd yelled and screamed and insisted that she take you home, but at the end of the day if you ever wanted to play football again it was obvious you were going to have to suck it up.
You hadnât talked to Alexia for days after that, which is funny because that was less then three weeks ago and now youâre here.
âFine?â
You nod your head, itâs hard to find words after a normal session, but after this one itâs ever harder.
âI made some progress.â
Alexia nods, you know there are probably a hundred questions going through her head right now, but she wonât ask them. Sheâs too scared that if she asks them, sheâll get an answer that will terrify her. One that will restart all of the problems, even if that isnât really how it works. Alexia doesnât understand mental health, thatâs become frighteningly obvious over the past few weeks. She doesnât understand your struggles because sheâs never experienced them. Sheâs never had self hatred or depression or overwhelming anxiety. Itâs what makes you feel so alienated and so out of place amongst your peers. You feel like a shark amongst a sea of dolphins, like you look the same but when it comes down to it you are completely different.
âThatâs good, no?â
You nod your head, disguising the grimace on your face by the mouth of the lid on your hot chocolate.
âShe says I can start doing some hours in the gym.â
Alexia smiles, big and wide, like itâs her whose been given the good news.
âThatâs good bebita, youâll be on the pitch in no time.â
The pitch. Itâs all Alexia cares about.
When you can be back, how she can get you to the point you can be back. Because when Alexia is injured, itâs all she cares about. What she can do to get herself back on the pitch, how she can make the rehab process faster, she thinks of every single logistic and possibility.
You want to make it back to the pitch, or you think you do. But itâs not your priority. Itâs become abundantly clear that your main priority has to be yourself, figuring yourself out.
âMhm.â
You focus your energy on counting how many bike riders pass Alexiaâs car as she navigates through peak city traffic. You get to 38 before she interrupts your intense search for every person on two wheels.
âVickyâs supposed to be coming over later, I promised Iâd help her with a school project. I can go to her house instead if youâd prefer?â
Every time Alexiaâs broached the topic of teammates youâve immediately refused any contact, and your immediate reaction is to say no. but you think about what your therapist said.
âI might text Mapi and see if she wants to talk to me.â
You hear the sound of Alexiaâs shock in the form of a choken sort of cough, she tries to cover it up by slapping her hand against the wheel of her car, but it doesnât do much.
âI think that would be a really good idea, bebita, I think she would be really happy to see you.â
You donât look at Alexia, you donât want to see the look of perplexion or shock or whatever emotion sheâs going through. You havenât seen Mapi since the hospital, and as little as you remember from then, you remember Mapi very clearly.
She had been just as out of it as youâd been, refusing to leave your bedside but Ingrid having to do everything for her to keep her alive. Every time she visited you, she looked like sheâd seen a ghost, or something worse. You werenât sure what was worse, seeing somebody dead or seeing somebody who was hanging on the cliff of life and death and having to save their life, knowing that if action hadnât of been taken they would be dead.
Definitely the latter.
âIâll text her, see if she can come and pick you up before Vicky comes over?â
You nod your head, allowing yourself to focus back on counting your tally, except moving over to motorcycles this time.
You shower with the bathroom door halfway open. There are no sharps anywhere in your apartment, knives, razors, scissors, nail clippers, vegetable peelers, glasses, anything that could cause any kind of bodily harm. For now, you arenât allowed to be left alone for longer then an hour. You sleep with your bedroom door open and Alexia sleeping in the guest room next door. You eat a set meal plan, you do two hours of rehab every single day, you live on a schedule that is so carefully planned that you have no time to yourself and yet every single moment feels lonely.
Itâs a process, youâve been told. Itâs crucial to your recovery that there are measurements in place to assure your âsuccessâ.
Alexia knocks on your door every five minutes whilst you shower, you yell back every time.
It had become a rule after the first time youâd showered with the door open youâd made a joke about using the shower curtain to harm yourself, because what did they really expect you to be doing?
It hadnât gone well, Alexia going silent for a few days and a very heated conversation with your psychologist about the inappropriateness of making jokes about suicide.
It was your trauma, it was your fucking story, and everyone was acting like it was their most sensitive issue.
Bathrooms are a bit of a touchy subject, you donât shower in your ensuite bathroom anymore, you canât. The room has permanently been blocked off, completely forgotten about.
The first thing you want to do once youâve ârecoveredâ is leave this apartment, there are to many bad memories, it feels like youâll never be able to recover if your stuck in the same place that you were in when it all went bad.
Itâs a problem for when you can deal with the stress of packing up your whole life and moving it to somewhere.
When you shut the water off and step out of the warm stream you let yourself breathe, showers are the only real alone time you get. Everywhere else you are supervised, watched like a hawk to make sure that you donât try anything else that could jeopardise your return to football. The reality is that Barca canât afford to have you sit on the sideline for a whole season, they need you back, they canât risk another slip up.
Alexia at least gives you the privacy of getting dressed in your own wardrobe, all of your wired bras have been removed, but for the most part itâs all normal.
You get dressed in another sweat suit, itâs become your new uniform over the last few weeks, no draw strings of course.
Your hair gets swept into a messy bun, itâs too much effort to deal with the brushing and braiding and tying that you would have normally gone through with a couple of weeks ago. You arenât allowed to wear jewellery anymore so your accessories consist of pretty much nothing. Youâre bare from the bones to your clothes, your soul feels as bare as the rest of your body.
Youâre allowed to wear laced shoes, but you often opt not to, slip on birkenstocks or uggs are just easier. The Barcelona January chill has been getting to you recently, so you upt for your ugg boots.
Your outfit choice is the most choice you get in your day, so you try and put as little thinking into it as possible, itâs easier for you to just succumb to the reality that everything in your life is controlled by other people.
By the time youâve finished, youâre towing very close to the time Mapi had told Alexia sheâd come and meet you. You collect the things that you might need from your vanity and shove them in your pocket, before making your way out to your living room.
Itâs unofficially become Alexiaâs office, her laptop and books cover your dining table now. She lives out of your apartment, leaves only for training and barcelona commitments, so itâs fair to say that sheâs made herself at home.
When you were living together before, it had bothered you more, having her things everywhere. Alexia is a organiser, of everything and everybody but herself. Youâd spend hours telling her to pick up her shoes from random spots around the apartment floor or getting her to pick up random clothing items laying on top of pieces of furniture. This mess is different, it reflects how the situation is different. There is nothing comfortable about your predicament, itâs not the same kind of comfortable coexistence you had when you were dating Alexia.
There is a boundary between the two of you now and it makes it all so much more confusing.
Alexia isnât just your friend or your teammate, sheâs you caregiver, the person who holds you accountable, unofficially the person who is supposed to keep you from doing anything to yourself. It adds a whole layer of stress to the situation, you canât relax around her the same way you used to.
Your relationship is never going to be the same, but parts of you wished that Alexia hadnât taken over the burden of caring for you, because maybe the two of you could work on rebuilding yourselves as a couple instead of Alexia trying to rebuild you as a person, as if you are a broken lego set that needed to be put back together.
She spends most of her time in your living room, doesnât push the boundary of your bedroom unless itâs needed.
Sheâs sat at the kitchen table, preparing herself to help with whatever project it is that Vicky needs help with.
âShouldnât Vicky have maybe asked one of the younger girls? Youâre practically ancient now, they probably teach the kids these days history from when you were growing up.â
Whatever Alexia looks like sheâs going to be helping with looks like something sheâs definitely not qualified in, although Alexiaâs never the person to say no.
âYouâre acting like Iâm a dinosaur, Iâm only four years older then you.â
She rolls her eyes at you and it feels so normal, for a second you feel so much more normal. Life would be so much easier if everybody stopped treating you like a fine fucking piece of china. An eye roll here or there, a yell here or there, some kind of emotion beyond sympathy would be nice.
âI mean, in comparison to Vicky youâre pretty much from the stone ages.â
Alexia rolls her eyes again, she looks like sheâs about to fight back against you but a knock at the door silences you both.
All of a sudden the little smile is gone and the air goes thick again, thick with the reminder that you canât just exist in a bubble of nothingness were nobody else exists and you can just be free from everything.
Alexia gets up to open the door, and you let her, allowing yourself to loiter around the table and enjoy the moment for just a little bit longer. Itâs that moment that might just get you through what is about to happen.
Alexia calls for you and you know itâs Mapi, you know itâs Mapi because Mapi wonât step foot in your apartment.
Ingrid had come to visit when youâd come home, along with a handful of other people, but Mapi hadnât been one of them. Ingrid had explained that it had been to hard for her, that sheâd made it to the door but couldnât come in, and you couldnât find it in you to blame her.
Mapi smiles at you when she sees you, itâs the first time youâve seen her since the hospital and the both of you look very different since then.
She looks less dead, thatâs the first thing you take notice of. She doesnât look like she would blow away into a puff of smoke if a gust of wind came past. She looks good, she looks healed.
Mapi and you donât talk, for whatever reason, you take the normal walk you would every sunday morning before it happened.
Down from your apartment, onto the main street, up to the mouth of the road, across the street and then onto the boardwalk.
Itâs the main reason you chose your apartment, itâs right next to the beach. Perfect for post matchday swims and a morning walk on the beach. It used to be yours and Mapiâs pregame routine and itâs easy to fall into the rhythm of your feet moving down the sidewalk.
No words are spoken until the two of you are seated on the sand, a wordless agreement that you both come to when your toes hit the beach.
Youâre both seated, your eyes looking over the horizon. Your too scared to break the silence, so you wait for Mapi.
âYou look good, chica.â
You nod your head, you feel better, you must look better then how you did.
âI feel better.â
Mapi nods, when her hand reaches out to sit on top of your own on the sand, you donât flinch away, it feels good to have a physical connection with a person who isnât Alexia.
The silence falls over the two of you again, except this time it feels less uncomfortable. You let it linger for a little bit, before you feel in a place to speak.
âI need to say thank you. I know I said some things in the hospital, I meant it in the moment but I want to take it back now. You saved me, you did something so brave and amazing and the version of me now is so grateful that you did.â
Mapi stops your rant, before you can say something else.
âI would have done it for anybody else.â
The problem is you think, that you arenât anybody else. It would be so much easier to give cpr to a random person on the street and never see them again, never have to be worried that you would see them again and there would be some kind of problem.
âBut you did it for me. You saved me from myself, and I want you to know that I genuinely am so thankful for you. You didnât choose the easy option and I put you in a extremely hard position. If anything had of happened to me, you would have blamed yourself and it wouldnât have been your fault but you would have felt like it was.â
Mapi nods, and then you hear a sniffle and it makes you feel horrible.
Mapiâs crying, sheâs crying and you donât know what to do.
âYou begged me to reverse it, in the hospital, you didnât say some things. You begged me to stab you or do something. You told me it was my fault you were alive and that it was my responsibility to undo what Iâd done.â
You take a deep breath, you didnât remember it being that bad, but you remember Alexia telling you that some of the things youâd said had been unrepeatable.
âI canât reverse what I said, in that moment I was in so much pain Maps. I actually canât tell you how much pain i was in, all I wanted was to disappear. Iâm working through not feeling that way and that starts by apologising. You did not deserve to experience what you did. You did not deserve to see what you did. You did not deserve to hear what I said to you. I am sorry. There is nothing I can say that will make any of it okay, I am sorry that for whatever reason god chose you to be the person burdened with this. I am so sorry.â
Mapi sniffles again. You knew that the possibility of no reconciliation was possible, that Mapi would reject any offer of apologies you had, youâd just really hoped it wouldnât be like that.
âYouâve been like a little sister to me. I know you didnât feel like we were that close, but I saw so much of me in you from when I was younger, and that was part of the reason I ended up at your apartment that night. Because I was worried, more then anybody else. I had this weird feeling, and I hated that I was right about it. You were like my little sister, and I watched as they strapped you onto a gurney and wheeled you off whilst telling me that they would try their hardest. I donât blame you, there is no blame for something like this. But I need you to understand that I canât just get over what I www, Iâm working through it, Iâm trying. My therapist has really been helping me, but itâs not going to disappear.â
You nod, Mapi and you have been through two mirroring experiences, and oddly you feel the same way about your own therapy. Youâre working through it, youâre trying, but nothing that has happened is ever going to disappear, with yourself or with your peers.
âMaps, youâre allowed to experience however you want. If you never want to see me again I wonât hate you.â
Mapi shakes her head.
âI donât know how I feel yet, I just need you to know that I understand that the you right now is different to the you from weeks ago, and you are entitled to separate yourself from that person. You donât have to be that person if you donât want to be. Let yourself live in the new version of you, the old version died back then.â
You bite your lip, there is beginning to become a permanent divet from your front teeth, you like it in a weird way.
âIâm trying, Iâm really trying.â
Mapi nods, raising her arm from your hand, to your shoulders, bringing you into her side.
âWeâll try together then, huh? You try for me and Iâll try for you?â
You nod your head, and for the first time it doesnât feel like youâre totally alone in the battle that youâre fighting. Itâs still very much your battle, but it feels like you have somebody in your corner letting you know that you are going to be okay.
âââââââââââââ
well aware itâs not edited⊠if u have an issue with that such my dick xoxo
hope you enjoyed !!!! đ«¶đ«¶đ«¶đ«¶
#woso#sammykworshipper thoughts#woso community#sammykworshipperfics#woso imagine#alexia putellas fic#alexia putellas angst#alexia x reader#alexia putellas x reader#alexia putellas imagine#alexia putellas#mapi leon#mapi leon x reader#i just love mapi#angst except i tried my best to not make it angst#woso one shot#woso fanfics#woso fic#woso x reader#woso appreciation
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âOne of the best parts of my job is helping patients develop a sense of confidence they never knew they had. Our patients face challenges that would be considered difficult even as an adult. Thereâs nothing better than seeing a patient master a skill that they once viewed as a challenge.â
Hanna Mathess, Certified Child Life Specialist, Bone Marrow Transplant/Neuro-Oncology/HematologyÂ
#Hanna#Mathess#Child Life#Specialist#Confidence#Skills#Challenge#Bone Marrow Transplant#Neuro Oncology#Hematology
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Happy Disability Pride and awareness month! Let's talk about Epilepsy!
Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!
First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.
The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)
Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.
If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.
At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.
As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.
And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.
My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit. Here's more about different kinds of seizures. Here's more about common seizure triggers. Here's more about CORRECT seizure first aid. And here's more general information/resources.
Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.
If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.
#epilepsy#epilepsy awareness#actually epileptic#disability pride month#disability awareness month#disability awareness#ok to reblog#disability pride
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Tumblr is my one of my only outlets to talk about my job application because I am keeping my job hunt a secret from most of my family and friends. I just don't want them to get their hopes up, or ask incessantly about how the interviews are going, or get super disappointed if it falls through. Everyone is rooting for me to come home - I would be able to be near my new nephew, my family and second family, my religious community...I am just so excited at that possibility. It's what I've always wanted. I am just beyond happy and relieved that the manager wants to interview me, because (and there is a reason for this belief) I was afraid she wouldn't give me a chance. But she is.
My field is so, so small. Jobs in my field near my family are so, so few. And even fewer are in the hospital unit that I love to work in. That a job is available, it's in the unit I love, and it's a stone's throw away from my family...I have been so hesitant to say it in case this doesn't happen, but it feels like this is from God. And the fact that someone I never thought would ever give me a chance wants to interview me feels unreal.
#sorry if these job posts get annoying but this is the only place I can talk about it#job rambles#adventures of a catholic prospective child life specialist
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