#Alert-crp
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nervousatrophy · 9 days ago
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Hello hello!
I’ve been here a while but only recently decided to start a blog about being disabled so here I am doing an introduction :)
So some things about me (relevant and not):
You can call me Pluto; I go by she/they pronouns and am queer
I’m 18 and (if things work out) will be going to college for astronomy and astrophysics
I really like space so expect that to be featured as well maybe :)
I have CRPS and POTS; CRPS I’ve had for 7 years but have only been diagnosed for 4 while I’ve had POTS for probably a very long time? Had the symptoms so shrug
I mostly struggle with chronic pain, chronic twitching/convulsions/jerking, muscle spasms, fatigue, lapses in memory, speech difficulties (I can but it’s hard, tiresome, and breaks), atrophy, and fainting
Not an actual diagnosis, but my body apparently doesn’t absorb nutrients properly? As in I’m constantly deficient in everything and anything 9/10? My body can’t produce enough iron and struggles to absorb carbs so we ball I guess? Also contributes to me being tired all the time
I have done almost any treatment under the Sun; but only recently started going to pain management (went to my first ever appointment a few days ago!) and will be starting spinal injections in a month so fingers crossed for me (especially because I’ve been in physical therapy for 6 years and I’m tired man)
I use a cane mostly, but should probably look into learning how to use my walker probably, getting a crutch, or using my wheelchair more often due to my CRPS progressing so yippee (if anyone has tips for the walker please reach out I’m struggling here)
And that’s it for now!
Have as good as an evening as you can :]
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the-s1lly-corner · 1 year ago
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TADC CAST COMFORTING THE READER WHEN THEY HAVE A NIGHTMARE
been a minute since i did a group post like this; might make a crp version of this too later.. though i already kind of have one of those, i might rewrite it mwehehehehe genuinely unsure if i did this before, i know i did this with jax and i had a bad dream scenario where the canon characters are the ones with the bad dream plus it wasnt the full cast but shrugs
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CAINE:
i dont think he would waste anytime in waking you up, probably shakes you awake.. maybe talks really loudly too because this man is probably incapable of speaking in a whisper. he explains that he noticed you getting restless in your sleep.. what? no he totally wasnt watching you sleep...! thats not the point! since you dont need to sleep in the digital world and hes well aware of that i dont think he would try to get you to go back to sleep. if anything he might be thrilled that youre awake again because that means he can spend time with you... is it selfish? a little, yeah, but does it truly matter if you dont need rest? leaving that up to you! takes this as a chance to get started on the days activities and as a moment to have you all to himself
POMNI:
shakes you awake too, but much more gently than caine.. probably just grabs one of your shoulders and rocks you until you wake up. you likely woke her up, but i dont think she would tell you... she doesnt want you to feel bad about that... lets you know that if you want to talk about it , that shes all ears! takes one of your hands and gently pats it while you speak... offers to take you outside so you can walk around on the grounds and get some of that cool simulated fresh air.. it probably turns into both of you talking about your dreams to one another.... though, now that i think about it, can you have dreams in the digital world?
RAGATHA:
sleeps simply so she can rest her mind, so you probably wake her up with your nightmare... might take her a moment to fully realize whats happening, but i dont think she would be upset that youve woken her up due to you being freaked out. very very understanding.. switches on her bedside lamp for you if you dont want to sit in the dark. takes you into her arms and rubs circles into your back. you both kind of just sit there in bed for a while, until you calm down enough to talk about what happened.. if you feel embarrassed or ashamed about it, ragatha is going to stamp out those feelings. nightmares happen to the best of us and its nothing to feel terrible over.. i think she would check in on you throughout the day to make sure youre okay
JAX:
will not take kindly to being woken up. i dont think he would be mean or like. actually get mad at you, but i do think he would be a little annoyed... his attitude kind of says that hes 'so over it'... might even dismiss your fear in his groggy half asleep mind.. tugs you closer to him to try to get you to stop squirming. though if youre still asleep and having the nightmare i think he would wake you up just so that it gets cut off and you can recollect yourself. very blunt in telling you that you were dreaming, and that everything is fine and nothing bad is happening. tries to get you to go back to sleep so he can go back to sleep... though i do think if youre upset about his lack of attention he might try to make it up in his own way during the day when hes more awake and aware
KINGER:
he gets nightmares too, so you guys might be able to relate over that... and in a way it kind of takes away that embarrassment of getting scared and having to wake the other person up... though i dont think kinger sleeps much.. hed much rather stay awake and alert, keep an eye on his surroundings in case something terrible happens.. so your nightmare only lasts for a second, just long enough for kinger to notice and shake you awake. hushed but rushed tones while hes whispering to you asking if youre okay.. visibly calms when he realizes youre not in pain and you just had a bad dream.. offers to let you hold onto him, or maybe even walk around the halls... or would you rather he construct a pillow fort so you feel more secure? really just tell him what to do and hes going to instantly get on it
ZOOBLE:
i think they would be similar to jax in regards to them not being... that attentive when theyre woken up. i do think they would put in more effort than him, though. probably asks whats wrong.. i think they would offer a massage.. i cant explain why, i can just see it in my head. not the best given they feel like hard plastic and theyre uncoordinated from just waking up but the effort is there and it doesnt go to waste.. groggily asks if you want to talk about it.. even props themselves up so they lower the risk of falling back to sleep.. solid effort, giving them a gold star
GANGLE:
i think she'd be a light sleeper so she wakes up fairly fast when you start having your nightmare. very gently shakes you awake... going to take a minute for her to work up the nerve to wake you up since shes unsure if youre actually having a nightmare or just trying to get comfortable in the bed... very quietly asks if youre okay, is slightly relieved that you were in fact having a bad dream and she did not wake you up for nothing.. offers to le you talk about it, i think she would be a good listener... i dont think you guys would go back to sleep, you probably end up getting started on the day... or at least do some activities with one another; likely sticking to one of your rooms instead of going to one of the common areas
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wishful-seeker · 1 year ago
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CRPS is extremely unpredictable.
Yesterday i had to ice my knees 5 different times for 20 minutes each, and take 2 scolding hot baths for 40 minutes each.
Today ive iced once and did physical labor. I was bending over, filling pots with soil, walking a LOT more than usual, and i feel fine afterwards.
But these good days happen literally once every... 5 months maybe? Yup thats not an exaggeration.
5 months ago i could jump on a trampoline for a few minutes a day.
For the past 3 and a half moths ive been stuck in bed.
So hard to have absolutely no stability.
I was doing 2 hr ketamine infusions once every 6 weeks and thats just not doing anything anymore.
Then i found out that is the ketamine protocol for depression, not fucking chronic pain.
Ive basically been taking an advil when i need morphine lmao.
Im gonna have to travel 7 hrs away to a doctor who specializes in CRPS and ketamine.
Honestly super upsetting that my state prioritizes depression treatment over crps so no one here even knows what crps is let alone understands how to treat it.
The correct protocol for k that we will be doing is 5 DAYS STRAIGHT OF 4 HOUR INFUSIONS EVERYDAY, then the weekend off THEN 5 DAYS AGAIN.
And the reason thats in capslock is because ketamine makes you high as fuck, and through IV? Literally feels like im dying and seeing God every single time, which, spoiler alert: is INCREDIBLY hard to deal with. Yeah its cool, but its fucking hard man. Just opens your eyes to a million things and you're hanging onto sanity by a thread.
But its worth it. People get full remission from this, so im doing it.
Wish me luck these next few weeks 🙃
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twig-gy · 11 months ago
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[id: comment from @Trump_Trump reading: "Crp. it’s called listening to your own music" /end id]
RED ALERT TRUMP TRUMP SAID SOMETHING TRUE AND BEAUTIFUL RED ALERT
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bolivia-newton-john2 · 11 months ago
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major L alert loved ones, a second limb has become afflicted with crps
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nijuktikhabar · 1 year ago
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Update yourself with latest job news from nijuktikhabar in odisha and never stay as unemployed!
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free-job-alert-services · 2 years ago
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believerschtl · 2 years ago
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MICROBIOLOGY IN BEST HOSPITAL IN KERALA, BELIEVERS CHURCH MEDICAL HOSPITAL
Department of Microbiology has laboratory which caters to the out-patients and in-patients. The laboratory service provided by certified technical staff is supervised by Clinical Microbiologists. Emergency service is provided by the laboratory technician on duty. We ensure accurate and prompt diagnosis of various infections/diseases in the Microbiology laboratory. The reports are released online.
The investigations available in Microbiology are the following
Bacteriology cultures, identification & antimicrobial susceptibility testing by conventional and automated techniques like BacT Alert and Vitek 2 Compact systems.
Mycobacteriology (Microscopy & culture)
Mycology (Microscopy & culture)
Parasitology
Serological tests such as Widal, Rapid Plasma Reagin (RPR), Anti-streptolysin O (ASO) titre, C-reactive protein (CRP) and Rheumatoid factor (RA)
Hepatitis B surface antigen, HIV & HCV antibodies by CLIA
Leptospira, Malarial antigen and Dengue antibody by ELISA and rapid methods
Antinuclear antibody (ANA) and other immunological tests
Inhalant & food allergen panel by line immune assay
H pylori antigen detection in stool
PCR for TB & HBV (TRUNAT)
In house culture, media preparation and quality control are performed routinely. The Department participates in the External Quality Control Scheme by RML and PGIMER (Chandigarh) regularly.
Active participation in Hospital Infection Control Activities by the Department include surveillance activities, antibiotic stewardship, and training programs for Healthcare workers.
OUR DOCTORS
Renu Mathew, Professor & HOD
Marina Thomas, Professor
Tribeni Goswami, Assistant Professor
Anjali Annie Jacob, Assistant Professor
Reena Annie Jose, Assistant Professor
Jennie Ann Johnson Samuel, Assistant Professor
Sherin Susan Abraham, Assistant Professor
Arun Sachu N N, Assistant Professor
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missmitchieg · 1 year ago
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Amanda from I am MindBlind makes videos about life with late diagnosed Autism, ADHD, Aphantasia, and a memory disorder called Severely Deficient Autobiographical Memory.
Irene of The Thought Spot makes videos about Autism, ADHD and chronic pain.
Haylee from Haylee & Jake makes videos about her Medical/cardiac Alert and Mobility service dog
Elinor Brown is a sociology student in the UK living with chronic fatigue syndrome (CFS/ME), Anxiety, and Depression
Becs Wildflower makes content about ADHD, OCD, CPTSD, and dissociation, and other mental health and wellbeing topics.
Amber Aquart is a certified celebrity animal trainer and pet lifestyle expert whose channel is dedicated to sharing all the tips, tricks, training, and reviews on all things animals
LauraKBuzz reviews video game accessibility features
Adventurous Advocates track down the resources, supports, and information you need to have an amazing adventure, vacation, or new experiences
Kasey & Andrea of Adapted Adventures make videos on their personal experience with living an active and independent adapted life, adaptive products and equipment reviews, and traveling vlogs with tips related to wheelchair mobility/accessibility
ADHD Love makes fun little shorts about life with ADHD
Amy Pohl talks about life in a wheelchair with CRPS
Cassidy Huff is a disabled, disability rights activist with Conradi-Hünermann Syndrome which is a form of Dwarfism
Kaelynn Partlow is an Autistic Therapist & Advocate
Taylor from Mom On The Spectrum is a late diagnosed AuDHDer here to share knowledge, resources, and products that empower other neurodivergent people and their loved ones to live freely and creatively
The How To ADHD channel is a place to keep all the strategies Jessica McCabe learned about having and living with ADHD
Oakwyrm is a queer, disabled artist and writer from Finland who makes videos on disability and queer tropes in media
Gina from Fatigued but Fabulous is a writer and disability advocate who creates disability and lifestyle videos with a dose of humour and positivity
✨ list of disabled youtubers y’all should watch because i feel like it lmao ✨
physically disabled:
squirmy and grubs - vlogs -: a physically disabled man and his abled wife life document their life together. they are super funny and the man has written multiple books (which i also recommend)
role with cole and charisma - vlogs -: quadriplegic man and his abled wife make vlogs and discuss/answers questions on their relationship, dating in a wheelchair, etc. and they are just so so cute together i🥺🥺
wheels2walking: videos on spreading awareness and often videos with advice geared towards wheelchair users
spencer2thewest: a gay disabled man (he doesn’t have legs) makes videos on his life, he’s super funny 10/10 we stan
chronically jaquie - vlogs -: while the channel runner sadly passed away 2 years ago, she still has a plethora of content up. her channel has a special place in my heart as she introduced me to service dogs, which led me to getting the one i have today!
blind:
the tommy edison experience - comedy maybe??-: a blind man who does a variety of things, his channel self-describe itself as “using humor to answer the most popular questions about living without sight and facing challenges which test other senses”
molly burke: blind youtuber who posts a variety of content, often related to her blindness
deaf:
sign duo - vlogs mostly -: a deaf man and his hearing girlfriend make videos on being deaf, sign language, their relationship, etc.
jessica kellgren-fozard: deaf disabled lesbian discussing deaf disabled lesbian things
neurodivergent:
olivia hops: autistic youtuber who discusses things related to autism, especially autism in women specifically
yo samdy sam: another autistic woman who focuses a lot on that topic! but she also discusses lots of other things on autism
misc:
all access life - gaming -: gaming videos and reviews specifically related to accessibility
wesley the service doodle: most often vlog style videos related to service dogs
special books by special kids: so, it is my understanding this could be a controversial inclusion, however as a disabled person i rlly adore this channel so i felt the need to include it. while the channel runner himself isn’t disabled, he interviews ppl with a wide range of disabilities. i find him incredibly respectful and he always gives ppl the space to say whatever they wish. he most often interviews kids but there are ppl of all ages
more recs are always welcome!! 💖
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secnet · 3 years ago
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Stopień alarmowy ALFA-CRP na terenie całego kraju od 18.01.2022
Premier Mateusz Morawiecki podpisał zarządzenie wprowadzające pierwszy stopień alarmowy ALFA-CRP na obszarze całego kraju. Stopień alarmowy obowiązuje od wtorku 18 stycznia (od godz. 23:59) do niedzieli 23 stycznia 2022 r. (do godziny 23:59). Został wprowadzony ze względu na potencjalne ryzyko zagrożenia bezpieczeństwa systemów teleinformatycznych.
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c-catoutthebox · 3 years ago
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mollies-mad-moments · 4 years ago
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Help??
Might be a long shot, but does anybody know of/have a Medical Alert bracelet, which has space for a lot of information? I have multiple physical conditions and mental health issues, and I’m on so much medication that I cannot actually find one that has space to list all of my conditions and medications. I’ve looked online of course, but I’d be grateful for any recommendations from you guys.
Hope you’re all having positive and low pain days ❤️ stay golden x
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the-s1lly-corner · 1 year ago
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CREEPYPASTA TAKING THE LEAD?!?!?! AGAIN?? genuinely wasnt expecting that nor am i complaining my efforts of writing more crp to make the vote more fair/alert my creepypasta followers were not in vain (i genuinely do not care which fandom wins)
Been thinking of hosting a little thing for when this blog hits 1k, though I'm unsure of what! I was thinking short one shot because it feels weird to have a milestone post just having what I normally post; you know? But I'm.. torn.. this blogs main fandoms are creepypasta and TADC... this blog started as creepypasta and (until recently) held the most posts.. whereas TADC is newer but is responsible for this blogs boom.. though I could do both.. but I want to see what you guys want, since you guys are the reason this is even an option :0! For supporting me you know !!
We're still a few off from 1k, but I like to prep for celebrations early <\\3 I dont really know why
That said, poll time !
As for whichever fandom wins/if it's both there will be follow up votes to determine characters and stuff! Rather than a solo request its like a blog/community wide one shot that we all build together !! That sounds fun !
Tags to get the word out + some of my regulars dont follow me but I want them to have a say too since they're partially responsible too ♡
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mcatmemoranda · 2 years ago
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35 week old febrile pt with fever of 101.2, ApO2 86%, tachypneic, wheezing, subcostal retractions, runny nose, nasal flaring. It's a viral illness.
Low oxygen level is not necessarily bad in a child. They can tolerate low oxygen. The emergency is getting the CO2 out.
Giving oxygen for comfort is a myth. Giving oxygen won't make the pt feel better. The emergency is respiratory status: work of breathing, retractions (non-compliant lungs due to mucus), respiratory rate. The red flag is the respiratory status, not so much the hypoxemia.
90-100 is an A
80-90 is a B
70-80 is a C
All of the above are still passing grades.
Below 70 is more worrisome.
No testing is really necessary because it won't necessarily change the management. In children, WBC is 50% sensitive and 50% specific for determining viral vs. bacterial illness. So a CBC in a child isn't necessarily helpful. Viruses can cause elevated WBC in kids (adenovirus can cause WBC of 24). CMP could be helpful if pt is dehydrated. Blood culture utility is low after 2 months of age because false positive rate is double the true positive rate. If baby is septic, then get blood culture.
Abx use in childhood can increase risk of type 1 DM. Obviously, you don't give abxs automatically.
CXR increases risk of giving unnecessary abxs. Procalcitonin and CRP are better than WBC for distinguishing between viral and bacterial infection.
In an infant less than 1 month old, do a full rule out sepsis with: urine, blood, and CSF.
0.4% of infants under 1 month old with fever have meningitis.
The speaker said that the national guidelines say you should use a cutoff of 90% for SpO2, but he wrote that section and wrote it because thats where the data seemed to go, but he says that the data were not based on clinical outcomes, but on the oxygen-hemoglobin dissociation curve. Oxygen doesn't really help or hurt.
There was a study where people did a respiratory score (Respiratory Distress Assessment Index [RDAI]), waited half an hour, then went back and did another respiratory score. Most pts had no change in respiratory status. Some got significantly better and others got significantly worse. There was no intervention done.
Giving alburerol vs placebo had no difference in outcome in one of these studies in the inpatient setting. In the outpt setting, there was a small reduction in severity of illness symptoms, but no difference in hospitalization. Albuterol increases HR. You should not use albuterol.
Albuterol can make you feel crappy.
Steroids are not helpful at all in children under 2 years old. Steroids can mess up children's growth.
So for treatment of bronchiolitis: oxygen is not necessary, steroids are harmful, albuterol isn't necessary.
Mortality is rare in bronchiolitis. 1 in 200,000 die of RSV bronchiolitis.
No medication will make these kids better.
High flow nasal cannula will provide some PEEP. Babies are primary nose breathers. They take shallow breaths and re-breathe CO2-> respiratory acidosis. So high flow helps them breath better.
HFNC rate varies based on hospital. Some dose high flow at 2 L/min/kg up to a max of 30. Most don't exceed 8 L/min/kg. Most use 2 L/min.
Decision to admit depends on whether the kid is in respiratory distress. Assess hydration status. Nasal suctioning can help. The device that the parent sucks works better than the blue bulb.
IV fluids.
Kids under 2 more often get bronchiolitis.
RVP = Respiratory Viral Panel
Pearls: Differential diagnosis comes later to avoid unnecessary testing and therapies.
From the post-test:
A 3-month-old infant presents with respiratory distress. He has had cough, congestion, and fever for the past 3 days. Vital signs are notable for an oxygen saturation of 92% and respiratory rate of 60. Physical exam shows an awake and alert infant with head bobbing, intercostal retractions, and diffuse wheezes. He appears well hydrated.  You diagnose him with bronchiolitis and plan to admit him. 
Which of the following is the most reasonable next step in management of this patient?
Answer: start high flow nasal cannula
This infant has the classic presentation of bronchiolitis, an upper respiratory illness prodrome followed by increased respiratory effort, and he is now in respiratory distress. High flow nasal cannula has been shown to decrease escalation of care in bronchiolitis. While this infant does have a fever, the most likely source of fever in an infant of this age with bronchiolitis  is viral, and routine blood cultures are not indicated in this infant.  The American Academy of Pediatrics (AAP) advises against routine screening for serious bacterial illness (such as with blood culture), as the most likely source of fever in an infant of this age is a viral infection. Viral polymerase chain testing (such as with a viral respiratory panel) is also not indicated, as it would not change management in this infant. In infants receiving monthly palivizumab prophylaxis, RSV testing should be performed as monthly prophylaxis would be discontinued.  The AAP also recommends that steroids, such as dexamethasone, should not be administered to infants with bronchiolitis in any setting, as it does not improve outcomes. 
Citation 
Franklin D, Babl FE, Schlapbach LJ, et al. A Randomized Trial of High-Flow Oxygen Therapy in Infants with Bronchiolitis. N Engl J Med. 2018;378(12):1121–1131.
 American Academy of Pediatrics Clinical Practice Guideline: The Diagnosis, Management, and Prevention of Bronchiolitis
The use of chest radiography in infants with lower respiratory tract symptoms suggestive of bronchiolitis is not indicated.  Chest x-ray results in more infants being diagnosed with pneumonia and treated with antibiotics without any benefit.  Infants who receive a chest radiograph do not have more frequent hospitalizations, decreased need for follow-up, or faster recovery times (despite increased antibiotic usage. 
Citation: 
Swingler GH, Hussey GD, Zwarenstein M. Randomised controlled trial of clinical outcome after chest radiograph in ambulatory acute lower-respiratory infection in children. Lancet. 1998;351(9100):404–408. 
Few interventions have been found to decrease hospital length of stay in bronchiolitis. Fewer lapses in superficial nasal suctioning have been associated with a shorter length of stay. Deep (nasopharyngeal) suctioning has been hypothesized to cause airway edema and irritation and thus prolonged length of stay. Use of albuterol and epinephrine have not been associated with shorter lengths of stay.
Citation: 
Mussman GM, Parker MW, Statile A, Sucharew H, Brady PW. Suctioning and length of stay in infants hospitalized with bronchiolitis. JAMA Pediatr. 2013;167(5):414-421. doi:10.1001/jamapediatrics.2013.36
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xxsparksxx · 4 years ago
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My mother. My mother, ladies and gentlemen!
Not content with 1) bacterial blood infection related to her PICC line and 2) fungal infection related to her PICC line, she has now got 3) ANOTHER bacterial blood infection, coming from GOD ONLY KNOWS WHERE.
She's had a central line for a week and that was changed yesterday. She's been throwing fevers, which she NEVER does 'cos of the permanent steroids. Her CRP (marker of infection) has hit TWO HUNDRED AND FORTY. Her previous record, briefly, was 205. 
So basically she's had sepsis for the past four weeks and it's /different infections/ causing it and we now have NO IDEA where it's coming from. But it's 95% probable that this is what's causing the confusion and short term memory issues she’s been suffering with over the past week, which to be frank is really freaking me out because my mother is normally 100% with it, mentally alert, on top of things and knowing what’s going on around her.
You could not make this shit up. If you read it in a novel, you’d think it was farfetched.
jfc my MOTHER!
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fairestmusesismoving · 4 years ago
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Hey. I planned on rping today. But something has been brought to my attention.
I have burned myself out physically and mentally. My crps is beginning to flare again. I want to rp but my health honestly is taking a nose dive.  So I’m probably not going to alert people when I’m on because it gets me anxious to be productive. I’m just going to answer drafts, answers, and anything I owe. I’ll be on slow activity for a bit. Because my boyfriend is right. I’m hurting myself. I should listen to him more and take care of myself before I do worse to myself. Don’t worry, I’m fine. I just needed an intervention right now.
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That Mun on Fire Needs a Nap
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