housewithnospoons

[housewithnospoons]

my body is a temple

but the god it was made for is gone

its been overrun by mice and bugs

//

my body is a home

but the foundation is cracking

its haunted both by the living and the dead

//

my body is a church

a place of worship

but the priest was killed

//

my body is a temple

so why does it feel like a prison?

[housewithnospoons]

Follow Eadie, the EDS Zebra as she finds her family and her dazzle.

Image Description: 

Image One: A inked Zebra face and a unicorn face look at each other. Black text on a white background under the zebra reads “Hi, my name is Mikayla, I’m an Aussie zebra author who’s been known by many... many names. This is my best friend, an arrow points to the unicorn. Black text on a white background beneath the unicorn reads ‘Hi, I’m Claudia, Charlie to few, Chicken to many. I’m an Australian artist and illustrator. She (an arrow points to the zebra head) calls me a unicorn.  Black centred text between them reads ‘Together we are Blank Expectations. We hope you love this book as much as we’ve loved making it.’

Image Two: A close up of a closed watercolour zebra eye, black text within white stripe reads ‘The little striped horse heard a sound. She heard it clearly, the thunder of hoofbeats wanting to be found.’

Image Three: Black text heading on a white background read ‘All is revealed.’

Below is a cover image by @blankexpectations. The cover reads in a black font, ‘The Littlest Zebra.’ Below, are a line of colourful zebra butts, from left to right; a lime green zebra butt, a purple zebra butt in a wheelchair, a teal zebra butt, a yellow zebra butt and a blue zebra butt.’ A caption written by @mikaylathespoonless on Instagram reads ‘I’m so incredibly proud to announce The Littlest Zebra, a picture book...’

Image Four: Blankexpectations.com.au

A title, ‘Black Expectations’

A menu, with ‘Welcome to our dazzle.’ ‘Buy the book’ and ‘Shop the look’ options displayed.

Beneath the menu is the closed watercolour zebra eye, and Welcome to our dazzle. 

[housewithnospoons]

Spoonie vs Chronic Illness ~ search for hypermobility answers is over (final part!)

Spoonie vs Chronic Illness ~ search for hypermobility answers is over (final part!)

My search for a hypermobility diagnosis has finally ended? (I hope…… )

After months of nerves and planning out medical files for my booked geneticist appointment, it finally came around last week (July). I’ll just go through what happened briefly, my official diagnosis that was given, and my thoughts about it. 

My mum came with me to the appointment for anything I forgot, which is good for the…

[housewithnospoons]

Spoonie vs Family, Let's Connect the dots

Spoonie vs Family, Let’s Connect the dots

So I walk into my mother’s house and have an asthma attack.

I then manage to make it back to my car for my inhaler.

I then sit in my car trying to get control over my breathing.

My mother then hovers in the background wanting to make sure I didn’t die on her nature strip.

Meanwhile, my step-father has walked down to the opposite end of the house, lit a cigarette and walked out on the deck above…

[housewithnospoons]

Spoonie Rant: Scratch that Human Rant… YES I’M STILL SINGLE Edition

Spoonie Rant: Scratch that Human Rant… YES I’M STILL SINGLE Edition

But first backstory, my stepfather has a saying ‘Any cans yet?”

No, he didn’t mean boobs, he was referring to cans of Jim Beam (Alcohol), but what he is really asking is am I still single / am I going to introduce him to my partner. Because in his mind the first step to making a good impression is bringing him alcohol, we shall unpack that one another day… now on with the rant. Side note, the…

[housewithnospoons]

If you see someone walking and get into a wheelchair

If you see someone without noticeable aid get park in a disabled spot, but has the disabled badge visible

If you see someone receiving extra support in school, or extra time in exams

If you see someone receiving something that will help make things more accessible for them

If you see someone wearing something “different” for sensory reasons

Do not yell at them

Do not tell them they don’t need it

Do not tell them “real disabled people will need it”

Do not tell them they’re “not disabled”

[housewithnospoons]

Spoonie vs Life: To the person who taught me to stay silent (Ivy)

Spoonie vs Life: To the person who taught me to stay silent (Ivy)

To the person who taught me to stay silent.

  It was you who carved the first label into my porcelain skin

Branding me like your cattle

You taught me to be afraid of my voice

So I would stay silent mounted on your mantel

You filled my cracks with silver

Expecting me to dance, but then you turned

You taught me that world traded in pretty things and I was defective,

That I was damaged.

I learnt…

[housewithnospoons]

Spoonie Rants: How are you?

Spoonie Rants: How are you?

“How are you?”

“How’s she been going Lately?”

  Rose: I hate these questions.

  I never know what to answer, it always makes me stop the second before I reply, do I say how I’m really feeling? (most likely horrible) or do I say fine, great, alright, to please them and let them hear the answer they want so they can move on with the conversation or their day and not think about me twice?

– Most of…

[housewithnospoons]

Spoonies vs Life: Ableism Edition Pt 2 (Rose)

Spoonies vs Life: Ableism Edition Pt 2 (Rose)

“Oh least it’s not something worse.”

“At least it’s not cancer.”

“Everyone has pain.”

“There are people with worse problems than you”

These sayings I hear every day, from everyone from strangers to my father; they say it to my face when if I so much as tell someone I’m feeling unwell. It’s like you’re not allowed to mention anything because somewhere out there, someone is having it worse.

Once I…

[housewithnospoons]

Spoonie vs Life: Generational Gap

Spoonie vs Life: Generational Gap

Young Spoonies v The Older Generation (Rose)

  The elderly generation is usually a kind and lovely group of people, but surprisingly they can be some of the worst people in regards to young spoonies. They often make comments about their old age and how they are in ‘so much pain’ and seem to have no idea that there are many young chronically ill people because they say things like “Oh you’ll…

[housewithnospoons]

Spoonies vs Life: The little things pt 1

Spoonies vs Life: The little things pt 1

Spoonies vs Doona Cover

  How many spoonies does it take to change/ put a doona cover on?

Answer: The two of us, far longer than I care to admit.

  Spoonies vs Honey

  Squeezing honey is one of the most underrated challenges we’ve encountered as spoonies

  We ended up having to repeatedly heat the honey and it took us about ten minutes to actually get anywhere.

  It is one of the little things,…

[housewithnospoons]

Spoonie Rant: Fake Friends Edition

Spoonie Rant: Fake Friends Edition

  To my emotionally abusive ‘friend’ who ‘understands’  

  You may think you know my pain, but you don’t. You treat victories that have taken me years to win, like lucky dips. Your pain is valid. But, we, we are not the same. You are not in my body. You talk to me of your grief over a future that hasn’t been taken from you. The future I’m already living. Just because I never asked you to…

[housewithnospoons]

Spoonie vs Family: (Ivy) A letter to my family

Spoonie vs Family: (Ivy) A letter to my family

  Ivy: A letter to my family:

  I wish it was easy to talk to you, I wish you could hear the words in my brain and understand that my pain is not poetry.

  I hear you, you know, when you whisper about me,

  I know you don’t understand my illness.

  You look to me for support, and despite it all, I’ve always been there.

  I’ve picked up the pieces, cleaned up your mess, and found shelter from the…

[housewithnospoons]

Spoonie vs Family: Mum, we need to talk

Spoonie vs Family: Mum, we need to talk

Mum,

  I feel like my body has become a book in a public library.

But you don’t get to borrow me every time you need an escape.

You have to stop running.

I’m not your punching bag,

I’m not your getaway driver,

I’m a human being.

I’m not perfect,

My own demons violate my mind

I can’t keep slaying yours.

You aren’t defenceless

You have the weapons to fight back

You stole mine

No, I gave them to you.

[housewithnospoons]

Spoonie vs Friendship: To the friend that doesn’t speak up about their acute pain

Spoonie vs Friendship: To the friend that doesn’t speak up about their acute pain

To the friend that doesn’t speak up about their acute pain

Your pain is just as real as valid, just because yours ends, it doesn’t mean you have to hide it from me. Your pain is real. It doesn’t cease to exist just because it is different from mine. It is okay to talk to me. I’m not going to criticise you for being in pain if anything I can sympathise. Friendship goes both ways. Also, I know…

[housewithnospoons]

Spoonie vs Life: Ableism Edition Pt 1

Spoonie vs Life: Ableism Edition Pt 1

Pain is the body’s way of saying thank you.

It has taken me years to stop believing this. This is what my gymnastics coach would tell me whenever I screamed out in pain, or dislocated a joint. I. Was. A. Child.

I’ve never known a day without pain, this phrase, taught me to ignore my limits, that I was weak, that my suffering was an excuse, that I was not enough. And even now, at 22 I still…

[housewithnospoons]

Spoonies Products: Walking Stick Edition

Spoonies Products: Walking Stick Edition

Fashionable Canes

I found this American site when we were looking for nicer canes, there are not many Australian sites out there except for Amazon.

It has every type of cane category and accessories there could be for canes. –

If you work somewhere professional that only allows traditional canes, there are some quite fancy ones on here.

There are foldable/adjustable canes for travel, and more…