#what is the fucking point i can get SSRIs from my primary care i need my gd meds

[cremainsinmorningrays]

there should just be one doctor's office and I go in there and say what I need and they bring in the guy who can do that I'm so tired of scheduling with people only to be told they can't do that!!!!!

[deathordecaf]

A (not so) Brief Introduction

Hello to you, entirely hypothetical reader!

My Name is Alessa —or rather that is the name I will be using for the sake of privacy. You see my intention with this blog is two-fold:

To share the information & tools I have learned regarding mental health, in an accessible format for myself, those like me, and those who wish to simply satiate their curiosity.

To keep a record for reflection on my personal journey, in an attempt to provide myself with some perspective on my conditions and appreciate the progress being made, as all too often we are blind to our progress when we need to recognise it most.

As such some of the entries here may be, well, personal. This may not be just so for me, but to those close to me as well. So for the sake of privacy pseudonyms will be used.

But enough waffling! This brief introduction is rapidly growing in length, so in no particular order here are a few key things about me that may provide context to myself as the narrator of this blog:

I am 25 rapidly approaching 26 —making me practically a fossil in Tumblr terms

I come from the land down under

I have a very Australian attitude to swearing in that I often fail to notice I’m swearing at all. Those who to umbrige to so-called “strong language” may not appricate my liberal usage in writting.

I was Diagnosed with Generalised anxiety & OCD at approx. 15yrs

I was also diagnosed with ADHD (ADD at the time) and like many 90′s kids (particularly girls), my parent did not take this to be a legitimate concern and neither treated nor informed me of my condition before they themselves forgot that incident entirely!

I have been on and off a number of antidepressants since my GAD diagnosis. Predominately SSRIs with a couple SNRIs threw in for good measure.

SSRIs and SNRIs show mixed to no results until I was in my early 20s when the newest pills on the block would (after making me disoriented and sick for a week) make me feel fan-fucking-tasic! For About a month or so before my inevitable plumment into my realisation, once again, that i was in fact human garbage & hiding under my desk until the fear subsided in another few month.

I do not like taking SSRIs; it’s not them, it it’s me.

I was bullied ruthlessly in primary school In an attempt to escape the constant bullying we tried changing my school, this was an abject failure and I returned to my previous school and dealt with the bullying I knew.

By the time I reach high school I developed a 0% drama policy, made A number of close friends 

I took a Gap year after high school, to really wallow in depression for the first time and ensure that I cut with as many of my social ties as possible, before they realised the truth that i was actual human garbage.

Despite not correctly completing enough qualifying subject in my senior year of High School to apply for university; I took an “alternative pathway to study” test the year following my graduation and scored in the top 5% percent of participants and then enrolled in an art programme in University the following year.

I began a perpetual cycle of dropping in and out of university and working until I became frustrated with my lack of direction or purpose, then returning to study again.

I studied Sociology partially because it interested my and partially because I thought I was to emotional to study psychology like I wanted.

I realised I would never leave this cycle without ongoing professional help.

I was sexually assaulted and had a complete mental breakdown and finally sought the help I needs.

I was now suspecting my Dysthymic + GAD +subclinical OCD combo I’d been labeled with was less than accurate and went to a Psychiatrist for a differential diagnosis

I was was diagnosis with ADHD (again, but this was news to me) and my Psychiatrist agreed the after somewhere in the vicinity of 6+ variety of SSRI was a good enough sample sizes to say they were a good Fit.

I begin taking dexamphetamine (for ADHD + off label depression treatment) and Mirtazipine (for anxiety + chronic insomnia I have had since childhood)

Thing start getting better 

Now here’s the “good” bit

 I have a job a love

 I’ve decided paying for education is for suckers

 I’m planning to start a new business to run while working this current jobs (i already have 2)

I’m working on two art projects

My partner and I are living together for the 2nd year so I now know he won’t leave randomly (because that’s definitely NOT a thing i have immense fear around as a result of a number of traumatic events that I’m pretending to not be effected by)

I’ve finally committed to being a vegetarian

dropped 10kgs

I’m hardly sleeping

I’m bursting with amazing ideas

Secretly convinced I’m going to change the world or at the very least Australia (because I’ve got to be “realistic”

I feel amazing, people love me, I love me

So because I’m finally “normal”, i decide i don’t need therapy anymore I’ve decided I CAN BE MY OWN THERAPIST JUST AS WELL! 

I’ve even done the “responsible” (please read: deluded) thing and doubled my Mirtazipine dose myself (with out having to waste my doctors time) to help me sleep again, although this doesn’t work so I start combining it with alcohol to knock myself out (this is also increasing)

I’M FINALLY MAKING UP FOR LOST TIME! WHAT COULD POSSIBLY GO WRONG?!

I am depressed

I am more depressed than I have even been

I am not eating because I don’t so the point

It takes me an entire day to sit up right

I keep trying to work, but it’s poor, the stripped my hours back to nothing

I’ve been thinking of hurting myself to try and let the negative feelings out, but i settle for writing nasty thing about myself on my skin and hiding them under my clothes as a reminder that I am human garbage.

We can no longer afford our rent so we move in with my partners parents.

I go to the general practitioner near by she doesn’t want to write a mirtazipine script but does, she asks if I’m okay... I confess I had planned on killing myself a few night ago while visiting my father and his new family and that I only stopped myself because I couldn’t guarantee my three half siblings wouldn’t find my body and be traumatised. I confess I still want to hurt myself and that a feel I am a burden. She wan’t me to go to the hospital immediately but I talk her into a referral instead on the provisor i check in a week later.

At first i hide the for my partner but I confess what happened and i week later i’ve packed my bags and gone to the hospital.

It’s a mess, they ignore me, constantly forget my name, and take my medication away until they can confirm with my psychiatrist that i’m telling the truth. At first all I do is sleep

I don’t realised it but this stress triggers another hypomanic episode, and as I am clearly no longer depressed... they let me go. They don’t notice I’m on a power trip and intentionally making them uncomfortable by mentioning their mistakes in front of my family and laughing about it to my partner.

The goes on for another two week i’m increasingly annoyed by people telling me to pace myself “can’t they see i’m fine?”

Until I experience my first mixed episode. I have never been so scared of myself in my entire life

I’m completely unhinged. Even my partner with all the patience in world sits beside me as body is wracked by sobbing and says “maybe your right. maybe you’re not going to get better” a little part of me dies.

But I’m determined, I’ve spent to last few months actually taking care of myself for the first time in years. I’ve gotten back in contact with my psychiatrist and see hm once a week.

We had concluded I have some degree of Bipolarity and c-PTSD in addition to the ADHD and anxiety.

My mirtazipine has been increased again and Yesterday I’ve started taking Limotrigine and a mood stabilisers

I’ve begun a DBT course (which is part of a university trail to verify the affectivity).

I’ve started learning to embrace slow routine, monitoring my moods and have been drinking in all the possible information I can on my condition

This bring us to now.

I’m still a work in progress but I’ve come a long way and I’m already doing so much better than just 3 months ago. I have decided I will study Psychology like I’ve alway wanted. But I’m not rushing myself to be ready and I will do limit myself to three subjects at a time instead of the typical 4.

Until then my goal everyday is to do 4 simple things:

Ride my exercise bike for 30mins a day

Water my plants as I’ve started a small garden to ground me

Shower once a day

Always to my meds

So that’s an overly long overly intamate look at me... so how are you?

[mentalhorticulture]

How It Began - Now

Well, I figure if I’m going to keep recording my experiences on here, I should probably establish my Origin Story of my bullshit experience with this illness.

After moving back to my hometown to help take care of my mother in September of 2017, I started working a new job and moving into my new place. One morning I woke up and was extremely dizzy. I felt like I was wasted or had a horrible hangover. I shrugged it off for a bit, thinking that maybe it was the stress from all of the commotion, but as I was starting to get settled into my new job while managing the dizziness, I would have episodic periods of feeling extremely lightheaded, nauseous, and like I could not think or stand or see straight. During my first week, I left in the middle of the day and called my mother to come pick me up, since I did not trust myself driving. We called the doctor and I saw a PA in the office who told me I either have Lyme or a viral ear infection. They did a full blood work-up, including 6 tests for Lyme, and nothing came back positive. He told me it was probably a viral ear infection, and that it would just go away on its own. I struggled for almost a month before it fizzled out and I shrugged it off, thinking it must have been an ear infection.

Then around Valentine’s Day, I had to make a long drive to pick up my partner who was attending school at the time, and go visit where we used to live to see friends and go to a concert. The morning I had to leave, I woke up, and the dizziness was back. I was so mad, but I had to keep going. I worked all day, left work, drove all night to pick up my partner and go to the concert. I was weak and dizzy, but eager to see my loved ones. I had a beer at the concert, but could not stay out dancing or drinking like I usually would have done if I were feeling better. The next morning I woke up and the vertigo/dizziness was all consuming. I was so nauseous, and could not lift my head up. I fell multiple times as I was trying to get dressed or go to the bathroom. I eventually ended up in what I can only describe as a “gravity vortex” where I cannot do anything except lie flat on the ground and feel like I am getting sucked into the floor. I can’t move my head, arms, legs, and I can barely speak. After a while we decided that I should not drive back, and my partner had to cancel class the next day to drive me home.

Every day, the dizziness, light&sound sensitivity, confusion, fatigue, floaters, disorientation, EXHAUSTION, etc. etc. etc. continued until I decided to call my doc again. I was getting lost on my way to work. I was mixing up words. I was passing out on the floor whenever I exerted any amount of extra energy. I was fucked up. I saw the same PA as before, and he told me I must have been taking too many supplements (I told him I wasn’t taking any), and that all my blood work was clear, so it must be something in my environment that I am ingesting. He rolled his eyes and said, “If you really want to, you can go see an ENT, but I would just keep a journal of what you’ve been doing/ingesting.” The next day I called back and got a referral to an ENT. 

My ENT was great! Super informative and wonderful. Gave me a bunch of options of what it could be and was my first beacon of hope. Maybe it was just a bunch of lose crystals in my inner ear! Maybe all I would need is an MRI to confirm that and some physical therapy and I’m golden! Maybe it’s a vestibular tumor, but who knows! Alright, let’s get this MRI done, STAT then!

Well, my inner ear was crystal clear, but the nurse called me back and said,

“You don’t have anything in your inner ear, but you do have 6 non-distinct white matter lesions. With someone of your age, this is usually indicative of Multiple Sclerosis. We are referring you to a neurologist, STAT.”

I have family members with MS. They are both quadriplegics, one was bedridden, and the other operates her motor chair with her mouth. I knew what MS looked like. I was on lunch at work, went into the next room, closed the door, and asked the nurse to repeat everything back to me on the report again. I hung up the phone, went outside, drove to Hannaford for some reason, and had a massive breakdown in the parking lot.

Fast forward, the neurologist dicks me around and decides my MRI is not urgent enough to be seen right away, because my lesions are benign. I see my neurologist two months later, and he says the same thing to me he had his nurse tell me over the phone. “Could be migraines. Could be MS. Does it look like MS? Not necessarily. Could it be? Yes.” And proceeded to order another MRI of my brain and cervical spine WITH contrast this time to see if there is any new inflammation. However, their office is so backed up, that I can’t get an MRI for another month. So, I just got my second MRI (first with contrast) this past Monday, June 18th... after experiencing a relapse of all of this bullshit since February. It has been nothing short of maddening.

IF this MRI shows any changes from the last one, it is possible that I can be diagnosed with MS without a spinal tap, which would simultaneously be horrible and a relief.

I fucking hate being in this state of limbo.

I fucking hate not knowing if it’s migraines, Lyme, some fucked up autoimmune, etc. etc. or Multiple Sclerosis.

For now, they’re just throwing meds at me and seeing which ones work. I’m on Meclizine and Diazepam for the dizziness, and they started me on Topamax (some sort of GABA inhibitor/anticonvulsant, I believe), but had to immediately take me off of it since it was quite literally making me lose my mind. Now I’m on Nortriptyline as a maintenance med (an SSRI), which has been giving me some relief. I have also started reading The Wahls Protocol, and have been adhering to a nutrient-dense paleo&keto diet, which has also been pretty helpful. Moreso than the meds at this point, actually.

Right now, my dizziness level has subsided to about a 2 or 3 daily, my confusion/focus issues are waining, my fatigue is improving, but NOW my muscles are fucking with me. It’s hard to carry my laptop bag from the car to my office - my shoulder starts to give out. My back is in a constant muscle spasm. My arms and legs get extremely tired and crampy by the end of the day. And, at times, my feet and fingers go numb or burn, like I have just touched a hot stove.

My neuro never made a follow up appointment, but I see my primary on Monday. Perhaps I will have more direction then. Maybe my MRIs will have answers for me. Just maybe.