#thank you medicare
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#so ive been crying since 5:30am#ive had to cancel my meetings today bc i cant face people#im literally trying to save up all my will power to be able to make it through class tonight#but i just can get over whats just happened#the next few years will break me i know it#ill make sure i persevere but its gonna hurt and its going to be hard#im worried about my grandparents who rely on medicare to survive and get their medication#im worried about my trans and queer friends#im stressed about the threats about the cuts to the board of education#if its gone i loose my ability to finish school#I /rely/ on those loans like it or not#how am i supposed to face my younger sister who dreams of going to school knowing she might not get the same chance bc loans are gone#how am i supposed to watch my little cousin with adhd and autism lose his iep#how am i supposed to live with myself knowing the right to my own body is threatened at every turn#how am i supposed to be able to look both my parents in the eyes ever again and not hold their votes against them#today i let myself morn my hopes i had yesterday#tomorrow i build new hopes for the people i love and those that will be effected by this coming administration#thank god my next therapy appt ended up being schedule for this fri#anyway thanks for reading if you did#i love all of you <3 and i know we can make it through together no matter how tough
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I AM FINALLY OUT OF MY OVERDRAFT
#party time#thank you to everyone who helped me when medicare screwed me over and the other time when i was kinda homeless#i love you all
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Opinion Here’s how to get free Paxlovid as many times as you need it
When the public health emergency around covid-19 ended, vaccines and treatments became commercial products, meaning companies could charge for them as they do other pharmaceuticals. Paxlovid, the highly effective antiviral pill that can prevent covid from becoming severe, now has a list price of nearly $1,400 for a five-day treatment course.
Thanks to an innovative agreement between the Biden administration and the drug’s manufacturer, Pfizer, Americans can still access the medication free or at very low cost through a program called Paxcess. The problem is that too few people — including pharmacists — are aware of it.
I learned of Paxcess only after readers wrote that pharmacies were charging them hundreds of dollars — or even the full list price — to fill their Paxlovid prescription. This shouldn’t be happening. A representative from Pfizer, which runs the program, explained to me that patients on Medicare and Medicaid or who are uninsured should get free Paxlovid. They need to sign up by going to paxlovid.iassist.com or by calling 877-219-7225. “We wanted to make enrollment as easy and as quick as possible,” the representative said.
Indeed, the process is straightforward. I clicked through the web form myself, and there are only three sets of information required. Patients first enter their name, date of birth and address. They then input their prescriber’s name and address and select their insurance type.
All this should take less than five minutes and can be done at home or at the pharmacy. A physician or pharmacist can fill it out on behalf of the patient, too. Importantly, this form does not ask for medical history, proof of a positive coronavirus test, income verification, citizenship status or other potentially sensitive and time-consuming information.
But there is one key requirement people need to be aware of: Patients must have a prescription for Paxlovid to start the enrollment process. It is not possible to pre-enroll. (Though, in a sense, people on Medicare or Medicaid are already pre-enrolled.)
Once the questionnaire is complete, the website generates a voucher within seconds. People can print it or email it themselves, and then they can exchange it for a free course of Paxlovid at most pharmacies.
Pfizer’s representative tells me that more than 57,000 pharmacies are contracted to participate in this program, including major chain drugstores such as CVS and Walgreens and large retail chains such as Walmart, Kroger and Costco. For those unable to go in person, a mail-order option is available, too.
The program works a little differently for patients with commercial insurance. Some insurance plans already cover Paxlovid without a co-pay. Anyone who is told there will be a charge should sign up for Paxcess, which would further bring down their co-pay and might even cover the entire cost.
Several readers have attested that Paxcess’s process was fast and seamless. I was also glad to learn that there is basically no limit to the number of times someone could use it. A person who contracts the coronavirus three times in a year could access Paxlovid free or at low cost each time.
Unfortunately, readers informed me of one major glitch: Though the Paxcess voucher is honored when presented, some pharmacies are not offering the program proactively. As a result, many patients are still being charged high co-pays even if they could have gotten the medication at no cost.
This is incredibly frustrating. However, after interviewing multiple people involved in the process, including representatives of major pharmacy chains and Biden administration officials, I believe everyone is sincere in trying to make things right. As we saw in the early days of the coronavirus vaccine rollout, it’s hard to get a new program off the ground. Policies that look good on paper run into multiple barriers during implementation.
Those involved are actively identifying and addressing these problems. For instance, a Walgreens representative explained to me that in addition to educating pharmacists and pharmacy techs about the program, the company learned it also had to make system changes to account for a different workflow. Normally, when pharmacists process a prescription, they inform patients of the co-pay and dispense the medication. But with Paxlovid, the system needs to stop them if there is a co-pay, so they can prompt patients to sign up for Paxcess.
Here is where patients and consumers must take a proactive role. That might not feel fair; after all, if someone is ill, people expect that the system will work to help them. But that’s not our reality. While pharmacies work to fix their system glitches, patients need to be their own best advocates. That means signing up for Paxcess as soon as they receive a Paxlovid prescription and helping spread the word so that others can get the antiviral at little or no cost, too.
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Here's a LinkedIn post:
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hi, it was just my birthday so i'm gonna ask straight up if i can get some money to make up for the fact that apparently cancer tests are not covered by medicare. i don't wanna get into too much detail but i might have cancer and i would kind of really appreciate some money to get some food as well.
if it means anything i'm a homeless trans person of colour and i'm currently living with someone who tried to kill me a few months back. i wish i was joking but i'm scared for my life right now. i lost 20 kilos since i moved in with them which has made me dangerously underweight. my bmi is 17 which like i hate bmi, this just gives you a basic idea of my situation and malnourishment right now.
i just don't want to have cancer haha and if i do (which it looks like i do.) i just would like some money to eat or at least buy like, hospital grade nutrient powder like hospital sustagen so i don't actually die from malnourishment which is a legitimate concern right now as a homeless person. my laptop has also finally fully bricked itself so i am going to have to take out almost my entire fucking savings just to remain hireable and stable.
pāypāl.me/hoodypet please specify it's for irawhiti as this is a friend's paypal.
thank you so much.
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Mutual Aid for Teen with Covid
Latasha is a teenager I know in STL who just got covid-19 and was in the ER last Thursday with acute respiratory distress, as she’s got severe asthma. She just got out of homelessness. Her new manager tried to withhold her last paycheck and has severely cut her hours. Her paydate is unreliable because of that. She can’t do anything but rest and keep up with schoolwork right now, and having covid is expensive when your medicare doesn’t cover the full price of Albuterol and you live far away from medical services.
There are some things I’ve been doing to try to raise money for her, but it’s going to take a bit longer than I had hoped. I’m posting about donations now because any amount of money goes a long way. Sometimes $15 is the difference between being able to get a ride home/to the next bus stop and having to walk 4-5 hours home. Or sometimes $10 means we can get the rest. It might mean hygiene goods she needs. Et cetera.
That’s (at) latashasmith63112
To be safe we would just need:
$45 for the next Albuterol refill
$10 for an antigen test
$78 for her bus pass (this expires on the 30th)
Sharing this or contributing anything at all towards those will help tremendously. Also, for what it’s worth, I have a friend in the area who’s seen her, I’ve talked to her on the phone weekly, I’ve helped her manage her finances and apply for government services, and I’ve sent her a care package that she picked up. She’s a real kid.
If you do donate let me know and I can put you on the list for a sketch commission—look for my art tag in my description—I’m disabled so I suck at getting them done in a timely fashion, but I will absolutely get them done eventually. Thanks.
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An automatic payment is going through on Monday, and it'll leave us with $20 until July 1st. It's not enough because we need a few things.
Kitty litter - Cacoa needs both her litter boxes flipped. They have about two inches depth each, and it needs to be twice that.
Laundry - we use the laundromat to wash our clothes, and dry them at home. I have just a week's worth of underwear.
Food - our fridge is getting bare. My husband is diabetic and nearly out of food he can safely eat. One of my medications causes constipation and watermelon is the single greatest treatment to fix and prevent it (I take supplements and hydrate all day). Oh, and we're nearly out of protein options.
Fuel - we need to put fuel in the car; currently we have half a tank of gas.
Medication - Medicare won't cover two of my allergy meds because they're cheaper over-the-counter. I'm out of one and nearly out of the other. Without my allergy controlled, my asthma gets significantly worse, and I develop sinus and ear infections. Those infections require antibiotics, and I have a long list of antibiotic allergies.
Please consider purchasing my work. It starts at $0 for digital downloads, and everything in my shop comes with the option to pay more.
I have several options for donating if you're more comfortable with that. For PayPal, you need to mark it as a gift.
This won't be so bad once my husband has a job, but thus far no luck. I won't be opening commissions; burnout is too close, and my hands and wrists are a wreck right now.
Any help is welcomed right now. I have small quilts, quilt tops, original paintings, stock and resource material, and tutorials in my shop.
Thank you!
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Hello! I don’t know if you ever take post ideas, but I just found out today that the Inflation Reduction Act (IRA) signed into law by President Biden in 2022 1). Eliminates the Medicare donut hole starting in 2025 and 2). Allowed lifetime prior authorizations for Medicare patients. That is so amazing! I haven’t heard anything before today about getting rid of the donut hole and it’s so important for those 65 and older. I’m thankful for it being signed into law and will again be voting blue in November! Cheers!
Read about the Reduction Act of 2022
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Well, what GREAT news to wake up too!!!!
Now while this is great news, I will reiterate what I’ve been saying for the past four months since Kamala stepped in…
DO NOT GET COMPLACENT AND THINK WE’VE WON!!! YES this puts us near the finish line but we are NOT there yet!! Unless we ALL do our part and VOTE all of this is meaningless!! Make Phone Calls, Send Emails/Post Cards, Knock On Doors and most of all V-O-T-E!! Get as many people as you can to vote for Kamala be it your friends, cousins, parents, grandparents, old friends from high school and college, coworkers, boyfriends, girlfriends, husbands, wives, stepchildren (if they’re 18 and over) and the list goes on and on but every vote counts!
Because IF Kamala loses because we got overconfident and complacent at the end like we did in 2016 and we get Trump; you WILL get RFK Jr in charge of food and health, primarily WOMEN’S HEALTH.
You will ALSO get our Economy regressing to the point where we have a SECOND Great Depression namely due in part to Trump’s taxes and “biggest mass deportation in history!” plans. Immigrants are a VITAL part of our economy and if you deport ALL of them as well as him wanting a TWO THOUSAND PERCENT Tariff on imported goods? We WILL be in a trade war.
You will also get an excessively aggressive police force who Trump promises to give immunity to and says he will make STOP AND FRISK MANDATORY.
You will also get ELON MUSK running the government like he does Twitter. We all know he FUCKED UP Twitter, now imagine his dumb ass in our GOVERNMENT.
You will also have the ACA, Medicare, Medicaid and Social Security revoked.
And the WORST of this? PRESIDENT JD VANCE WILL be a thing since we all see Trump and how awful he looks. NO WAY IN FUCK does he make it four years. Trump would be even MORE horrific in his second term but Vance would be CATASTROPHIC.
And that’s not even getting into all the Project 2025 bullshit.
Don’t want any of that?
ALL GAS AND NO BRAKES UNTIL WEDNESDAY!!!
Thank You 🙏
#kamala harris#kamala harris for president#kamala harris for potus#kamala harris 2024#vote kamala harris#anti donald trump#fuck donald trump#fuck rfk jr#fuck jd vance#fuck elon musk#non anime#politics#only two more days guys!! let’s NOT have the last four months of hard work be wasted
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Hey, y'all! Can someone please please tell me about the process for finding the right motorized wheelchair??
I've needed an electric wheelchair for years, and I've finally gotten the right prescription and the wheelchair-accessible housing I need.
But now I need to pick a wheelchair, and I STILL don't even know where to start.
The main issue is that I have no way of trying out different models of chair, and so I have no way of knowing what will and won't hurt my back - and so I ALSO have no way of knowing if I need a custom wheelchair or not.
I live in the United States in a major metropolitan area, and my insurance will ONLY pay for one chair, so as far as I know, it needs to be the right one on the first try. (Unless there's a trial-and-return policy? I have no idea. I have Medicare and Medicaid.)
I feel like there must be some kind of specialist who can help me find the right chair, but no healthcare provider I've seen has had that kind of expertise.
Where do I find these people? What do I do?? How can I find a place that allows me to try out different chairs?? Literally any advice is appreciated. Thank you in advance. <3
#physically disabled#wheelchair user#cripplepunk#electric wheelchairs#motorized wheelchair#powerchair user#powerchair#power chairs#original#actually crippled#wheelchair#mobility aids#mobility aid#fibromyalgia#degenerative disc disease#custom wheelchair
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Help a disabled, neurodivergent, interracial family get back to the US for medical treatment
After three bouts of COVID and other medical issues over the past six years here in the Philippines, my health has deteriorated to the point at which I'm worried I won't get to watch my little girl grow up unless I can get back to where I can use my Medicare and VA benefits for various surgeries and treatments.
Unfortunately, even with all y'all's help, @thesurestthing and I are still in debt from the two-year ordeal of fixing our daughter's stateless status, so we can't do this on our own. My little sister started a fundraiser for us, and there are a couple of other ways to help, as well. If you can't help, please reblog. Thank you! (The PayPal link takes the lowest fees, but whatever works for you is best!)
If you want more details, they're under the cut:
Six years ago, while still grieving the deaths of my adult sons and a painful breakup, I moved from the US to the Philippines with just what I could carry, in large part because it's actually possible to survive here on the pittance US disability pays. I had kind of given up on life and figured I would sort of drift off eventually. I wasn't going to kick my own bucket, mind you; I just wasn't going to try very hard to keep living. And I figured I'd just pass away someplace beautiful.
Soon after I got here, though, @thesurestthing (also American) started messaging me from the states, told me she was going to come to the Philippines and be my girlfriend (even though I told her no at first), and eventually joined me here. We had a baby under lockdown, and got married.
So now I had something to live for. (And most of y'all know the drama with the error on El's birth certificate that left her stateless and took almost two years and a lot of money to get fixed.)
But I have had health scare after health scare over the past few years, including three bouts of COVID (some of you remember the month I spent hooked up to an oxygen machine), two bouts of pneumonia, a persistent two-year foot infection that took surgery to clear up (and is going to require another surgery to keep cleared up), damage to my heart and scarring in my lungs from long covid, a literal hole in my throat that is growing bigger, a spine injury, joint injuries, osteo and rheumatoid arthritis, a traumatic brain injury that affects my memory and concentration, adhd, bipolar disorder, autism, and other issues.
(Not even getting into the dental stuff--Hope to be able to get that done before we go back, here where it's cheaper, because Medicare doesn't cover that.)
I'm terrified that I won't be alive to watch my little girl grow up unless I can get someplace where I can use my Medicare and VA health benefits.
An old friend of mine is a social worker and on the school board in a small Minnesota city with its own VA clinic, and has offered to help us get settled in there, but we still have to find a place to live (suitable for a couple that includes a physically disabled adult, and who have a toddler), some basic household goods, some cheap used transportation, and need to survive for a couple of months while Zoey looks for work.
Given our situation in general and the fact that right now my disability is our only income, we're probably looking at having to pay at least six months (or possibly an entire year) of rent up front in order to get anyplace to lease to us.
We can't stay with friends because every single stateside friend we have with a spare room also has a cat--and I have an anaphylactic allergic reaction to cats, meaning that I will literally die if I'm around a cat for too long. I've had to go to the ER because I slept in a room that had a blanket in the corner that a cat had momentarily lain on. The only way I can be around cats is if I'm on massive doses of immunosuppressive drugs, which, well... The whole issue here is that I keep getting deathly ill, so suppressing my immune system even more is a non-starter. Oh, and Fel D 1, the protein secreted in cat dander, saliva, and waste, can stay even on hard surface for up to two years, and even longer on porous surfaces.
Again, if we weren't still in so much debt from El's birth certificate debacle, we might be able to do this at least mostly on our own. But as things stand, we can't do it on our own. We need your help.
If you read all of this, thank you very much. And again, if you can't give, please reblog.
For more medical details, check my Rob Gets Medical tag. For more details about Eleanor's birth certificate saga, check my Baby El tag.
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When he [Bob Eubanks] hired me he was the man who promoted the Beatles in LA. I was never really sure he liked them, but the hell, he was getting rich at the Hollywood Bowl. There were many other deals going. One of the drivers, after the first Bowl show, handed the Beatles towels to dry their sweat. He later cut up the towels, encased half-inch squares of towel in plastic, and sold them for five bucks each. The driver was really a radio station newsman. I guess he’s got turned on by now, but in those days he wasn’t very cool. It was all deals then. Anyway, I got to know Eubanks during our first American visit, with the Beatles in 1964, and he said whydoncher work for me buddy, we’ll get rich? So our family of six emigrated.
...
Paul Revere and the Raiders, the Beau Brummels, Joe and Eddie and Jerry Naylor. Plus the Beatles, for though I wasn’t working for them any more they were the love of my life and Bob Eubanks figured that with a love like that you know it can’t be bad. ‘I’m going to have you fly to the Bahamas,’ he said, the night we arrived in Los Angeles, 70,000 miles from England and intending to set up home. ‘Tonight?’ ‘No. Next week.’ Gee, thanks. Maybe we can get a house, find schools, buy some furniture, get used to the heat and, all in one week, fly to the Bahamas. And, also, he said, why didn’t I fly to Sacramento, see Paul Revere and the Raiders, make friends, sign them up and go on stage to say: ‘Hi. I’m Derek Taylor, used to work for the Beatles. I’m now working for Paul Revere and I’m flying to the Bahamas next week to see the Beatles make their new movie and I’m going to take them your love and also the good wishes of Paul Revere and the Raiders.’ I guessed this must be how things work in America, so I did it. I made friends with Paul Revere, signed them up and went on stage and made my speech. Later that night, I went to the motel where Revere and company were staying and he showed me how you could put a match to a fart and there would be green flame. I quite liked the guy. I liked the group too. They were good and they did well. They were all young then (all but Revere and Mark Lindsay who had seen a lot of hard service here and there), and full of hope of taking over from the Beatles. ‘Are we good enough?’ they asked and it was tough to answer ‘No’, so one just hedged and mumbled and begged the question. The next week I flew to the Bahamas with Dave Hull, squarest disc jockey at KRLA, an amiable short-hair who believed that Medicare had to be the worst thing to happen to America since the New Deal. We arrived in Nassau to find the Beatles just leaving for dinner in the town. They were less than glad to see me, old pal in radio drag with a tape-recorder over my shoulders. ‘This is Derek Taylor, reporting from the Bahamas. I have with me Ringo Starr of the Beatles. Hi Ringo. Nice to see you again.’ ‘Hi Derek. Nice to see you again. What are you doing with a microphone under my famed nose?’ What indeed? Bob’s idea was that I would use my relationship with them, my friendship even, and get interviews which would be unique: ‘Not merely interviews, but rather … conversation between friends’ was the slogan we would use to sell the tapes, once they had been cut up, packaged and prepared for use on radio stations. A scale of charges was drawn up – $50, $100, $200, depending on the wattage of the station. None of this was to be communicated to the Beatles. All they were to know was that Derek was doing a little gig for KRLA to get Prestige Publicity some working capital. Before the family and I had arrived in Los Angeles, there had been dozens of commercials on KRLA: ‘Derek Taylor is jetting to town. Derek Taylor? Wow. Yes, folks, Derek Taylor is coming to KRLA.’ Also, above my glamorous name, letters had gone to every showbiz celebrity in town, announcing my coming. Oh, yes, it’s all true. * Paul was very mean in the Bahamas. I mean, mean. Who is to blame him? Not I. Not me.
‘Bloody hell,’ he said when he saw me. ‘Bloody hell, Derek. You with a tape-recorder asking us questions?’
Oh yes, me with a tape-recorder. The thing was what was the thing I was? Their friend or a journalist or their ex-publicist Brian Epstein’s ex-personal assistant or a puppet of Bob Eubanks or a man in search of a career in American radio or what? The answer is I didn’t think there was any choice. I didn’t know about things like that. I mean I wouldn’t rob an old woman with one leg and a blind dog, and I wouldn’t take a bribe and I wouldn’t rape my sister but I would do many, many things if I was told to because that was the way it had always been. I would write a list of Forty Fab Facts you didn’t know about the Beatles and sell them. I would allow myself to be offered to Lloyd Thaxton of Hollywood as a television link man, I would do so many things which now would be quite ridiculous. I would, even, have the extraordinary cheek to turn up in the Bahamas with a tape recorder to interview the Beatles. It was as well I did it then; I couldn’t do it now. God, I must have been brave or daft or something I’m not sure any more. Brian had slipped out of the Bahamas before I arrived. A good idea. We hadn’t been very close since the previous year, 1964, when I had resigned in the Riviera Motel near Kennedy Airport. It was a shame because we lost valuable talking-time and he hadn’t very long to live and many, many people with whom Brian had trouble have their own regrets that their patience was not more extensive and, of course, patience was what you needed with Brian because he could be, if not impossible, then unbearable, and sometimes impossibly unbearable, but many of the people I like most are absolutely terrible. You too? Good.
We were down on the beach at Paradise Island (you reached it by ferry from Nassau; in those days it was owned by Huntington Hartford, later Howard Hughes) and it was a fantastic rich man’s folly with a casing like a palace out of Ben Hur, quite empty, safe doors swinging open, phones out of order – open to wind and water. The beaches that were Paradise, empty but for Beatles paying gold for the privilege, and an army of savage extras, one of whom was Murray the K, disc jockey lately become fifth Beatle and anxious to appear in a movie with them. (‘For the image, man.’) Down on the beach at Paradise Island, Dave Hull had one recorder and mike, I had another. He had given me his mike: ‘This will put more oomph’ (oomph, for Chrissake?) ‘in your voice,’ he said, showing me. ‘Moooore ba aaaaasssss sound, like, deeeeeep.’ OK Dave, I can dig it. The mike was faulty and I popped p’s in the breeze.
We split up between the Beatles. I took John first; caustic John who was really nothing of the sort. He pulled a couple of desultory put downs and then gave me as good a tape as you’ll get if you are asking questions like: ‘Whereja buy your boots?’ and ‘Do you enjoy filming?’ and ‘How old are you?’ of someone you know at least as well as your brother, and maybe better. George told me about going to a family wedding in Liverpool.
Paul decided not to be mean any longer – guessing, correctly, that life was bad enough without rubbing my nose in it – and talked about song-writing (‘we can carve Paul’s up into twenty pieces,’ said Dave. Let’s see, twenty by $100, that’s 2,000 bucks) and Ringo said it was great to be married, a quote you can read even today. It comes up as fresh as ever. That evening we had dinner in the open air, along a fine table laid with white linen and silver from a graceful pantry. I was invited with one of those, ‘Don’t tell a soul, man, just give Dave and Murray the slip, like come alone,’ and it was a nice time. Dave and I flew back to LA next day. Bob Eubanks met us at the airport with press photographers, a frown creasing his handsome, suntanned mask. ‘Hi buddy. Get the tapes?’ ‘Yeah man; got the fucking tapes. Lost me soul, tho’, lost me soul.’ He seemed very glad to hear it. Gayle and Cecil were waiting back at 6290 Sunset, Joan and the kids were at the airport with Bob and by the time we arrived home in Nichols Canyon, where we had just scored a house before I flew to the Bahamas, I was needed in the office to write about my thrilling experiences with the fab Beatles in the sun-drenched Bahamas. I thought maybe I was really earning the stinking $215 a week and Joan wondered if any money could make up for the changes she was having to go through. A few days later, Bob Eubanks and his team of mailers, tape-editors and salesmen were ready to market the tapes, segmented, trailered, packaged. Beatlemania would do the rest. An ad was placed in Billboard. Disaster … No one wanted the tapes, at all. But these, we said, were conversations between friends, we said. No deal, said the thundering silence. And Brian Epstein, through his lawyers in New York, threatened vengeance in the worst way. ‘I back down,’ I told Bob. ‘You stay where you are,’ said Bob. ‘We won’t have hands to count the money.’ Forget it. I backed down and out of Beatle tapes. Also, I never had the lust for gold again. Money doesn’t talk, it swears* and Hollywood is a town of many temptations. I left Bob Eubanks a few weeks later, taking with me 2½ per cent of the Byrds who were then grossing a few hundred a month and Paul Revere and the Raiders who had been paying Eubanks $750 a month but who asked me would I take $350 a month on account of they weren’t all that well heeled (they were in fact very well heeled), and I may not be able to do the job as well without Bob behind me. OK, OK, I’ll take it. This was the middle of 1965. The Byrds’ epoch-making Tambourine Man had been released and it had made Number 1 in the US and was about to do the same in Britain. Revere had yet to have a hit, but they were good on stage. The Byrds and Revere were both Columbia Records and they didn’t really enjoy each other’s music though they shared the same producer, Terry Melcher. Serving them was therefore like walking on a tightrope. It was like pedalling backwards on a one-wheeled cycle with a puncture, body all aching and racked with bennies, between ‘Revere: the finest performing group in North America, Oregon’s answer to Liverpool’, and ‘America’s best group’ which is what I thought about the Byrds then and still do, mostly. When, later, I picked up the Beach Boys, who also wanted their publicist to write ‘best’ and ‘greatest’, it became more a matter for a clever thesaurus than a tired, tired biped with twenty clients and five children.
...
In those days, and the more I write, the further off and the further out they become (remember the McGuinn glasses and David Crosby’s cape?) – in those days there was the Beatles and everyone else and as we flew to Britain, Michael Clarke, Byrd drummer, was asking, did I figure they would get to meet the Beatles? Since ‘These Are Not Merely Interviews, These Are Conversations Between Friends’, the last thing I wanted to do was run into the Beatles! Yet, all the pre publicity to the tour suggested that the Beatles would be intrigued to see what the Byrds were like. So a meeting was unavoidable. On our first night in London, I stayed in the hotel, the Europa in Grosvenor Square. Mike went out with Gene and David (I think they all went out) and at about 4 a.m. Mike woke me and said, ‘We met them, we actually got to meet the Beatles. Paul said “hi” and George wants to see you.’ Oh yeah? Next night it happened that George and John came to Blaises where the Byrds performed to a room no bigger than the one you’re sitting in now, on a stage insufficient to carry all the drum kit. They played louder than anyone else had been known to play, even in Madison Square Garden they were bloody loud, and Blaises or blazes, they were going to tune up and belt the music out. I thought they were marvellous and I think John and George did, but some of the English smirkers smirked and you only need a few English smirkers in a half lit room to feel pleased you’re not proud to be English. Upstairs in Blaises, after the set, John and George sat at a long table and invited us in. Boy, were they big-time then – I’d forgotten. It wasn’t them at all, it was the situation. They were absolutely IT. John sat at the centre of the table, George at the head and they sent for wine for free. It came and we arrived with it. ‘Thanks for the tapes,’ said John, very loud. ‘Which tapes?’ I said, very soft. ‘You know which tapes,’ said John, still very loud. ‘True,’ I said, a little louder, knowing that was the end of that. So it was. We all left, again in that under-the-breath ‘come alone’ way, John grabbing bottles of wine to wave goodbye by way of goodbye to Jim Carter-Fea, then owner of Blaises, By Appointment, Host to the Beatles. We went round to Brian Jones’s apartment where we smoked some hash and some grass and as there was no food in the place and, after the wine had finished, no liquid excepting a half-bottle of milk, solid as chalk, we went out for hamburgers and then went home.
*Bob Dylan
(As Time Goes by Derek Taylor)
(Part I, Part II, Part III, Part IV, Part V, Part VI, Part VII, Part VIII, Part IX, Part X, Part XI)
#derek taylor#as time goes by#love you forever derek#i'm reading#'Paul was very mean in the Bahamas'#the beatles#paul mccartney#ringo starr
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Summoner who experiences Chronic Fatigue & Chronic Pain
How the Artw cast reacts to a Summoner with Chronic Fatigue & Chronic Pain. The gender of the Summoner is not mentioned, this can be read as enby, man, woman, trans, etc. :D
Special thanks to Cora ( @adcmans ) for helping me come up with ideas!!
BTW IF you want to add anything please do in the comments, I'd love to hear your ideas!! Or reblog!! :D
[Disability Rep | Pronouns of Summoner not mentioned | Gender of Summoner not mentioned | Some Suggestive Text | Tooth Rotting Sweet at times ]
Spica
Spica’s part has some stuff about the MC/Summoner to explain the context a bit.
You explained your condition to him first, less due to trust and more due to wanting to get accommodated for your disability ASAP, and not being totally sure how to go about that. He seems the most reasonable and accountable of the bunch.
At first, he didn’t quite understand but it certainly didn’t take long with your explanation of your condition. Spica helped you through the process of getting medication through the school due to your… Finances being… Low… (*cough* broke, poor, you have nothing now that you fell through a damn rift- *cough*) Luckily the school easily covered it, taking some of the weight of your anxiety off your shoulders. Wow, their Medicare system is nice. Unlike some places.
Since, to your surprise, Spica checked in on you frequently when you dozed off during meetings or when your pace would slow, asking if you were tired if something hurt, or if you needed to rest.
Spica went with you to pick up some school supplies from one of the village shops, mostly just plenty of pencils with big pencil grips which made it easier to hold. The number of times you’ve lost a pencil simply because it rolled off your desk is… To put it simply, a lot. And a backpack to carry your school stuff in as just holding it wouldn’t quite work for you.
You were quite anxious to start using a mobility aid because then you’d have to explain to everyone why… But Spica made sure to explain to the rest of the Guide Committee just why you were using forearm crutches so they wouldn’t bombard you with questions, after asking if that’d be alright of course.
Upon occasion when you were being stubborn, wanting to keep up with the others, Spica would pull you to the side (-if he had to he would grab your arm just above your elbow and sit you down on the nearest couch beside himself-) and would begin to lecture you- reminding you that it is ok to take breaks & rest. Followed by your comment about his sleep schedule had him stuttering for a moment before coming up with a “good reason” as to why that was totally reasonable. Your expression showed your opinion on that.
It’s safe to say you MADE Spica sleep more hours at night when you could, sometimes he’d be too stubborn. One time he was snappy about it, telling you off harshly though he did apologize later it still stung.
Spica immediately offered to help you ready yourself for the day if you ever felt too tired to do so alone, and you took him up on that offer sometimes, if he could spare some time away from his paperwork.
Spica was the first to offer to take you out for breakfast whenever he could, Arcturus sometimes joined the two of you if they happened to both be free though Spica preferred it to just be the two of you.
Pollux
Before finding out
In class when the Summoner would doze off he’d huff, and puff, but never wake them. Once they woke (or he woke them up after class) he’d chew them out over sleeping through class. Sometimes classes. Threatening to leave them asleep in the classroom next time. (which he never does, it doesn’t take you long to catch on)
You have caught him staring more than once, though you play it off as if you totally didn’t notice him with his head down beside you blatantly gazing at you with big stary eyes.
Sometimes when you’d be writing down your notes your hand would twitch and you’d drop your pencil, having pushed yourself too far. Pollux didn’t notice at first but when you’d take breaks from writing he’d ask why and you’d shrug off his question, picking up the pencil and beginning to work again.
And lunch… Pollux couldn’t quite understand why you’d sleep through lunch of all things, the food was always great. Especially the chocolates he usually kept to himself, that he’d brought as his dessert, he’d sometimes share with you and Arcturus.
Pollux never quite got how you couldn’t keep up with him when he’d run ahead, often telling you to exercise more. It felt insensitive, causing you to show him a bit of a cold shoulder afterward though you knew he just didn’t know about your disability.
Sometimes when you were quite tired and just so happened to be sitting beside Pollux you’d unconsciously doze off while leaning against his shoulder. Pollux would stare at you for a few moments after you leaned against him, then look away and cover his face with his hand, but remain still and quiet so as to not wake you. He would stay there till you woke.
Polly would make rude comments about your disgruntled unkept appearance on bad days, pushing stray hairs into place. Huffed and puffed when he tried fixing up your hair, he got better at that over time. It’s become a sort of daily routine for him to play with your hair during class, sometimes you’d play with his too, he loved it when you did and you could tell by how he squeezed his eyes shut and blushed.
After Spica’s explanation at the meeting
Pollux, much like the others, wondered why you weren’t there till Spica began the Guide Committee meeting. It’s safe to say a lot he was confused about was answered by Spica’s explanation. Why you doze off so much, and why your pencils all have those large grips… And the times you’d just dropped something… He brought up as much during the meeting as he found it concerning that you hadn’t told him, him!.. First... Spica was the most reasonable, he supposed, but you two were close!... Right? He’d work with you on assignments all the time! And share notes… And hangout! (totally didn’t say he wasn’t looking to make friends on day 1)
Pollux is a lil jelly that you didn’t tell him first- he pouts about it.
He was a little pouty around you after that but stopped trying to push you to keep up, or chewing you out over dozing off… Pollux slowed down to your pace whenever he realized he’d been walking at too quick a pace for you. He would constantly glance over his shoulder to make sure you were still there.
He MiGhT try to loop his arm around yours, or just blush a little thinking about it. Maybe if you offered up the idea first he’d go for it.
Alpheratz & Sirius missed the meeting… But Vega didn’t?! Maybe it’s that pathfinding magic, maybe it brought him there? Pollux eyed him up and down, sus.
Will chew anyone out if they harass or bother you at any point about your disability, yap yap BITE!!
The whole hair play routine you two had started kept up, though he’d offer to help you in the morning if that’s okay, totally understandable if you didn’t want someone in your dorm, but it's him so… It’d be ok, right? Just don’t let anyone else in, they might be bad people.
When he and Arcturus showed up at your dorm, they’d be surprised but they are both besties so they help you out together and sometimes you all go out to breakfast at a cafe as a group <3 Sometimes Vega, Alpheratz, Spica, or Sirius might join if they happen to stop by around the same time, or one of them may try to drag you off for themself…
Alpheratz
Before finding out
Alpheratz thought it was a bit weird that you napped nearly as much as him… More than himself sometimes but never questioned it. It was nice having a nap buddy, someone who didn’t nag him for sleeping so often.
After a while he began to expect you to show up at specific nap locations, he’d bring a spare neck pillow just in case you needed one. And a spare blanket.
Sometimes he’d catch you rubbing at your knees or ankles as if they hurt but when he’d as if something happened you’d say you were just a little tired.
When you would yawn constantly throughout the day despite having napped alongside him he suspected something may be wrong, occasionally checking your health with his magic but not totally understanding what he saw. Alpheratz began to look into possibilities while you napped in the library with him.
He never really kept his appearance up so when you looked messy it didn’t really phase him, though he’d ask teasingly if your messy hair was some sort of new trend.
Finding out
Slept through the meeting assuming it’d be something unimportant- immediately regretted it after Pollux filled him in after he asked you about your mobility aid while the three of you were out at a sweets shop. Alpheratz had been downright staring at your forearm crutches the entire way there, with a very concerned expression.
Pollux scolds Alpheratz- they bicker a little. It’s cute. Then Alpheratz shoves some gummy worms into Pollux’s mouth to shut him up. Pollux stares Alpheratz down, crossing his arms, frowning, and furrowing his brow as he slowly chews the gummy worms.
After finding out
Now he knows what’s wrong and has a better grasp of just what his magic was showing him when he checked up on you.
From then on when you’d nap together Alpheratz made it a habit to check your physical health status using his magic, just to make sure you were ok. Sometimes he would check in to make sure you took your medication, knowing how forgetful you can be.
When he could, Alpheratz would join you, Arcturus, and Pollux for lunch, to spend time with you and make sure you took your meds.
Sometimes, if you seemed more tired than usual or if he saw you over-exerting yourself he’d just pick you up and take you to a comfy spot to nap. After the first few times, you weren’t so surprised. But the first time… You nearly kicked him between the legs and punched his face- in your defense, you didn’t know it was him, AND like wtf- you both laughed it off.
Both of you worked together to make a little “club room” in the back of the library, you both deemed it the Nap Club Tent. It was a sizeable tent- (you guess the only reason the school allowed you to get away with this was because Alpheratz’s grandfather wanted Alpheratz to warm up to him) inside the tent were plenty of blankets, pillows, and a well-padded floor. Some plushies too, those were purely your touch at first, then Alpheratz added some that he thought you’d like.
Sometimes Alpheratz would offer to help you get ready for the day, a slight blush on his cheeks, then he would quickly offer to hire someone else to help care for you if you wanted.
When you’d go out as a group with Arcturus and Pollux for breakfast he would sometimes join, offering to pay for you and the others though sometimes he’d get up extra early just to take you out by himself.
Arcturus
Before finding out
Arcky found it odd that you would yawn so often, and how you seemed to occasionally limp, but if he pointed it out you’d brush it off and adjust your posture and how you walked. He’d frown, he wasn't sure what was going on but how you acted gave him a bad feeling.
Sometimes when you looked incredibly drowsy while standing he would ask if you needed to sit down with furrowed brows, just what weren’t you telling him?
When he would ask if something was wrong you’d change the topic with ease, Arcturus couldn’t remember what he’d asked after talking about some other random thing.
He had asked Spica if he noticed it as well… Which led Spica to ask you which kicked off the conversation.
Began occasionally stopping by your dorm in the mornings if he was free after seeing how messy and tired you looked most days, offering to help you prepare for the day. He helped when he could though he would often ask you why you looked so tired.
Finding out
Spica explains the situation to him first, being the only other Fili Pferer & Spica’s most trusted confidant. Arcturus was a little worried and sad that you hadn’t told him personally but understood it was probably difficult to talk about. Still pouted a little. But only a little!
After finding out
He helped to explain your disability to Vega and Pollux with Spica.
Later he ran into Sirius… After being chased by that big black dog!! Scary!! He updated Sirius on the recent meeting, assuming he’d just been too busy with missions to show up! Why else would his friend miss the meeting, he must’ve had a good reason! Though Arcky didn’t push Sirius to tell him why he’d missed the meeting.
Arcturus would constantly check up on you whenever he could. (when random Fili Pfere sorcerers weren’t dragging him around) Sometimes he’d go overboard and continue to ask you what he could do to help till you told him you were alright, only then would he stop and sigh in relief.
He likes to offer to make food for you, get you a drink, or sometimes he will just leave a snack with a cute little note wishing you well if he finds you napping. (with a little smiley face)
Will also cover you with a blanket and place a pillow beneath your head VERY CAREFULLY if you don’t already have a blanket and/or pillow.
Might gaze at you for a while if you doze off while hanging out with him before sputtering if you ask him why he was staring.
Began to make it a point to stop by your dorm in the morning to help you prepare for the day whenever he was free, knowing that sometimes just keeping up with your hair and skin care was difficult. Then he would walk with you to the cafeteria for breakfast.
Loves having breakfast with you and Pollux, he wishes the others would join you all more often!! Super excited and happy when everyone or almost everyone shows up!!
Vega
Before finding out
Vega arrived at the meeting right on time to Spica, Pollux, and Arcturus’s surprise. He felt that he should be there, for this particular meeting.
It was plain to see that you weren’t getting enough sleep, the bags under your eyes were telling and the yawning at 9 a.m.! Your symptoms stressed Vega out quite a bit to the point he would constantly be on you about getting plenty of sleep.
Might force you to go back to bed if you doze off during breakfast.
After Spica’s explanation at the meeting
Vega is incredibly worried about you. However, the way he shows this feels more like a nagging older sibling. Sometimes he would give you harsh lectures when you push yourself a little too far.
One time he offered to carry you when you felt too tired to walk, your knees hurting, but when he tried- he apologized so many times after you both fell. His cheeks were utterly red when he looked up at you, atop him, before you got up. From then on, when he was with you he made sure no one blocked your path.
“ MAKE WAY SUMMONER IS TIRED “
If you ever decided to bring up that one time he tried to carry you he’d just DIE.
Constantly offers to carry anything he can for you just to take some of the weight off your shoulders. He will do whatever he can to help.
Grumpy if he can’t have breakfast with you by himself. Might try to drag you away, if only he could. Will not respond to anyone unless the topic is you. Or if he is talking to you.
Sirius
Before finding out
Sirius didn’t say much, other than teasing you over just what could be keeping you up to make you that tired. “Were you thinking of me last night Summoner~? I’m so flattered~”
Sometimes he would drag you about with him on a random mission or just more fun which hurt your joints a LOT, when you would tell him you needed to slow down and rest he would tell you to keep pushing forward if you ever want to build your endurance. Not giving what you said or your actions a second thought as he brushed you off.
It certainly stung each time he’d brush you off so you began to give him the cold shoulder if he tried to drag you along one of his schemes.
After Arcturus’s explanation
Spica didn’t specify what the meeting was about beforehand so he just skipped it. Or maybe he would’ve anyway? He’s busy, but with what? O-o sus.
When Arcturus showed up, with the black dog playfully giving chase, he was told what the meeting was about. Though he brushed Arcturus off at first. But when Arcturus mentioned that it was about you, Sirius listened.
How’d he not notice sooner? When thinking back, it seemed quite obvious…
Your pained expression to the sheer amount of times you dozed off… You even told him you needed a break so many times and he just brushed you off… He swore at himself for not thinking more about your health. Adding to the list of things he loathes about himself.
After finding out
Sirius was noticeably more careful around you, not yanking you about or pushing you to keep up with him. Instead, he would pull you into little hidden nooks to hide or teleport away with you in his arms, to hide from the other Sorcerers when he blew something up again.
Slowly you warmed up to him after he began to actually listen to you, but you were always at least a little wary of his intent.
To make up for his carelessness he spoiled you as much as you would let him for a good month, he swore to get you anything if you’d forgive him but you just wanted him to understand and that he did. And still got you things he knew you liked.
If you felt too tired to apply makeup(if you wear that), nail polish, clean your face, and or fix your hair in the morning he’d be there to help, offering to do so when you looked worse for wear and insisting that you call him whenever if you need help getting ready for the day ahead at any time! He would be there, anything for his Summoner.
Sirius also just loved to get to do your hair and nails, and help you choose out a cute outfit for the day! Totally didn’t attempt to peek at you changing like a perv. Denies it after he was caught. Doesn’t try again, but teases you, asking if you’d give him a show.
Beats Alpheratz at getting up early just to take you out to breakfast first, will tease him about it if Alpheratz asks where you’ve been.
Sirius ends up taking you to breakfast quite often when he isn’t out on a mission, sitting beside you with his hand on yours.
#arcana twilight#arcana twilight pollux#artw#arcana twilight spica#arcana twilight alpheratz#arcana twilight sirius#twilight arcana arcturus#twilight arcana vega#disability#disabilityrep#disability representation#rheumarthritis#rheumatoid arthritis
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For the record, here is Donald Trump's official stance on transgender people, taken from his campaign website.
Most notably, he's said this: "I will ask congress to pass a bill establishing that the only genders recognized by the United States government are male and female. And they are assigned at birth."
And here is the full quote...<3 please stay alive, drink water, stay well-fed, and just fucking THRIVE to spite this man:
"The left wing gender insanity being pushed on our children is an act of child abuse. Very simple. Here's my plan to stop the chemical, physical, and emotional mutilation of our youth.
On day one I will revoke Joe Biden's cruel policies on so-called gender-affirming-care. Ridiculous. A process that includes giving kids puberty blockers, mutating their physical appearance, and ultimately performing surgery on minor children. Can you believe this?
I will sign a new executive order instructing every federal agency to cease all programs that promote the concept of sex and gender transition at any age. I will then ask congress to permanently stop federal taxpayer dollars from being used to promote or pay for these procedures, and pass a law prohibiting child sexual mutilation in all 50 states. It will go very quickly.
I will declare that any hospital or healthcare provider that participates in the chemical or physical mutilation of minor youths will no longer meet federal health and safety standards for medicaid and medicare. And will be terminated from the program immediately. Furthermore I will support the creation of a private right of action for victims to sue doctors who have unforgivably performed these procedures on minor children.
The department of justice will investigate big pharma and the big hospital networks to determine whether they have deliberately covered up horrific long term side-effects of sex transitions in order to get rich at the expense of vulnerable patients. In this case, very vulnerable. We will also investigate whether big pharma or others have illegally marketed hormones and puberty blockers which are in no way licensed or approved for this use.
My department of education will inform states and school districts that if any teacher or school official suggests to a child that they could be trapped in the wrong body, they will be faced with severe consequences including potential civil rights violations for sex discrimination, and the elimination of federal funding. As part of our new credential body for teachers (?), we will promote positive education about the nuclear family, the roles of mothers and fathers, and celebrating rather than erasing the things that make men and women different and unique.
I will ask congress to pass a bill establishing that the only genders recognized by the United States government are male and female. And they are assigned at birth. The bill will also make clear that title 9 prohibits men from participating in women's sports, and we will protect the rights of parents from being forced to allow their minor child to assume a gender which is new, and an identity without the parents' consent. The identity will not be new, and it will not be without parental consent.
No serious country should be telling its children that they were born with the wrong gender. A concept that was never heard of in all of human history no one's ever heard of this what's happening today. It was all when the radical left invented it just a few years ago. Under my leadership this madness will end. Thank you very much."
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Me: "Man I got scammed... This sucks."
Hermes: :)
Me: "Hermes no."
Letter I get in the mail today (legitimate): "You have unclaimed funds of (almost exact money I got scammed out of) from your previous Medicare insurance provider! If it is still owed to you, let us know and we will send you a check!"
Thank you Hermes 🐏💛
#hermes#THANK YOU HERMES BUT WHAT THE FUCK#I COMPLAINED ABOUT IT /LAST NIGHT/#STOP BEING SO FAST BRO TAKE A BREATHER OR PERHAPS A BREAK#I DIDNT EVEN ASK FOR THE MONEY BACK I WAS JUST COMPLAINING
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I hit the medicare threshold so now I'm getting a 90% rebate omg thank you chronic illness
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