#systemwide

[hoard-of-glimmers]

DID, Autism, ADHD

[pluralquotebook]

🌻: *host (me) panicking as I'm searching for the headphones since it fucking disappeared, and on the verge of legitimately crying because it's been five minutes and I'm not leaving without them (I'm fine and found them DW)*

🔼: *plays that one Sabrina Carpenter song* PLEASE PLEASE PLEASE-

🌻: NO ONE ASKED-

- 🌻 ; 💌

.

[sleepvines]

Hey, the main user of this blog (Sleep) is currently down in the dumps due to a number of factors including seasonal depression. They could really use a pick-me-up, and honestly the rest of us could too. If you've got any fun stories from your life, pictures of pets, or encouragement, we'd like to see it. Hopefully it might help motivate them while they recover. Thanks.

- Hatchet 🌲

[devotioncrater]

not to get hypochondriac on main, but for nearly a year now i feel as if my body is on a slow decline to the point of dying. i think whatever is killing me is inside my liver or it's in my blood

[incvbare]

maybe i should make this blog a little more flexible… a little updated

[canyourlawnmowerdothis]

crazy to me when someone just has something READY when u ask them what their fursona would be. like they dont already have one, they havent thought about it, they can just judge that about themself in the moment. thats some crazy shit

[polytherian]

i think i unironically fictkin link from botw / totk

[thegraphitepencils]

Clove cigarettes make food taste so much better oml

[blu-orb]

Ow ow ow owwwww...

Being sick is horrible who let bodies hurt this much from *not* being attacked by something.

[hoard-of-glimmers]

Moongender

[mostlysignssomeportents]

Epic Systems, a lethal health record monopolist

Epic Systems makes the dominant electronic health record (EHR) system in America; if you're a doctor, chances are you are required to use it, and for every hour a doctor spends with a patient, they have to spend two hours doing clinically useless bureaucratic data-entry on an Epic EHR.

How could a product so manifestly unfit for purpose be the absolute market leader? Simple: as Robert Kuttner describes in an excellent feature in The American Prospect, Epic may be a clinical disaster, but it's a profit-generating miracle:

https://prospect.org/health/2024-10-01-epic-dystopia/

At the core of Epic's value proposition is "upcoding," a form of billing fraud that is beloved of hospital administrators, including the "nonprofit" hospitals that generate vast fortunes that are somehow not characterized as profits. Here's a particularly egregious form of upcoding: back in 2020, the Poudre Valley Hospital in Ft Collins, CO locked all its doors except the ER entrance. Every patient entering the hospital, including those receiving absolutely routine care, was therefore processed as an "emergency."

In April 2020, Caitlin Wells Salerno – a pregnant biologist – drove to Poudre Valley with normal labor pains. She walked herself up to obstetrics, declining the offer of a wheelchair, stopping only to snap a cheeky selfie. Nevertheless, the hospital recorded her normal, uncomplicated birth as a Level 5 emergency – comparable to a major heart-attack – and whacked her with a $2755 bill for emergency care:

https://pluralistic.net/2021/10/27/crossing-a-line/#zero-fucks-given

Upcoding has its origins in the Reagan revolution, when the market-worshipping cultists he'd put in charge of health care created the "Prospective Payment System," which paid a lump sum for care. The idea was to incentivize hospitals to provide efficient care, since they could keep the difference between whatever they spent getting you better and the set PPS amount that Medicare would reimburse them. Hospitals responded by inventing upcoding: a patient with controlled, long-term coronary disease who showed up with a broken leg would get coded for the coronary condition and the cast, and the hospital would pocket both lump sums:

https://pluralistic.net/2024/06/13/a-punch-in-the-guts/#hayek-pilled

The reason hospital administrators love Epic, and pay gigantic sums for systemwide software licenses, is directly connected to the two hours that doctors spent filling in Epic forms for every hour they spend treating patients. Epic collects all that extra information in order to identify potential sources of plausible upcodes, which allows hospitals to bill patients, insurers, and Medicare through the nose for routine care. Epic can automatically recode "diabetes with no complications" from a Hierarchical Condition Category code 19 (worth $894.40) as "diabetes with kidney failure," code 18 and 136, which gooses the reimbursement to $1273.60.

Epic snitches on doctors to their bosses, giving them a dashboard to track doctors' compliance with upcoding suggestions. One of Kuttner's doctor sources says her supervisor contacts her with questions like, "That appointment was a 2. Don’t you think it might be a 3?"

Robert Kuttner is the perfect journalist to unravel the Epic scam. As a journalist who wrote for The New England Journal of Medicine, he's got an insider's knowledge of the health industry, and plenty of sources among health professionals. As he tells it, Epic is a cultlike, insular company that employs 12.500 people in its hometown of Verona, WI.

The EHR industry's origins start with a GW Bush-era law called the HITECH Act, which was later folded into Obama's Recovery Act in 2009. Obama provided $27b to hospitals that installed EHR systems. These systems had to more than track patient outcomes – they also provided the data for pay-for-performance incentives. EHRs were already trying to do something very complicated – track health outcomes – but now they were also meant to underpin a cockamamie "incentives" program that was supposed to provide a carrot to the health industry so it would stop killing people and ripping off Medicare. EHRs devolved into obscenely complex spaghetti systems that doctors and nurses loathed on sight.

But there was one group that loved EHRs: hospital administrators and the private companies offering Medicare Advantage plans (which also benefited from upcoding patients in order to soak Uncle Sucker):

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8649706/

The spread of EHRs neatly tracks with a spike in upcharging: "from 2014 through 2019, the number of hospital stays billed at the highest severity level increased almost 20 percent…the number of stays billed at each of the other severity levels decreased":

https://oig.hhs.gov/oei/reports/OEI-02-18-00380.pdf

The purpose of a system is what it does. Epic's industry-dominating EHR is great at price-gouging, but it sucks as a clinical tool – it takes 18 keystrokes just to enter a prescription:

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2729481

Doctors need to see patients, but their bosses demand that they satisfy Epic's endless red tape. Doctors now routinely stay late after work and show up hours early, just to do paperwork. It's not enough. According to another one of Kuttner's sources, doctors routinely copy-and-paste earlier entries into the current one, a practice that generates rampant errors. Some just make up random numbers to fulfill Epic's nonsensical requirements: the same source told Kuttner that when prompted to enter a pain score for his TB patients, he just enters "zero."

Don't worry, Epic has a solution: AI. They've rolled out an "ambient listening" tool that attempts to transcribe everything the doctor and patient say during an exam and then bash it into a visit report. Not only is this prone to the customary mistakes that make AI unsuited to high-stakes, error-sensitive applications, it also represents a profound misunderstanding of the purpose of clinical notes.

The very exercise of organizing your thoughts and reflections about an event – such as a medical exam – into a coherent report makes you apply rigor and perspective to events that otherwise arrive as a series of fleeting impressions and reactions. That's why blogging is such an effective practice:

https://pluralistic.net/2021/05/09/the-memex-method/

The answer to doctors not having time to reflect and organize good notes is to give them more time – not more AI. As another doctor told Kuttner: "Ambient listening is a solution to a self-created problem of requiring too much data entry by clinicians."

EHRs are one of those especially hellish public-private partnerships. Health care doctrine from Reagan to Obama insisted that the system just needed to be exposed to market forces and incentives. EHRs are designed to allow hospitals to win as many of these incentives as possible. Epic's clinical care modules do this by bombarding doctors with low-quality diagnostic suggestions with "little to do with a patient’s actual condition and risks," leading to "alert fatigue," so doctors miss the important alerts in the storm of nonsense elbow-jostling:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5058605/

Clinicians who actually want to improve the quality of care in their facilities end up recording data manually and keying it into spreadsheets, because they can't get Epic to give them the data they need. Meanwhile, an army of high-priced consultants stand ready to give clinicians advise on getting Epic to do what they need, but can't seem to deliver.

Ironically, one of the benefits that Epic touts is its interoperability: hospitals that buy Epic systems can interconnect those with other Epic systems, and there's a large ecosystem of aftermarket add-ons that work with Epic. But Epic is a product, not a protocol, so its much-touted interop exists entirely on its terms, and at its sufferance. If Epic chooses, a doctor using its products can send files to a doctor using a rival product. But Epic can also veto that activity – and its veto extends to deciding whether a hospital can export their patient records to a competing service and get off Epic altogether.

One major selling point for Epic is its capacity to export "anonymized" data for medical research. Very large patient data-sets like Epic's are reasonably believed to contain many potential medical insights, so medical researchers are very excited at the prospect of interrogating that data.

But Epic's approach – anonymizing files containing the most sensitive information imaginable, about millions of people, and then releasing them to third parties – is a nightmare. "De-identified" data-sets are notoriously vulnerable to "re-identification" and the threat of re-identification only increases every time there's another release or breach, which can used to reveal the identities of people in anonymized records. For example, if you have a database of all the prescribing at a given hospital – a numeric identifier representing the patient, and the time and date when they saw a doctor and got a scrip. At any time in the future, a big location-data breach – say, from Uber or a transit system – can show you which people went back and forth to the hospital at the times that line up with those doctor's appointments, unmasking the person who got abortion meds, cancer meds, psychiatric meds or other sensitive prescriptions.

The fact that anonymized data can – will! – be re-identified doesn't mean we have to give up on the prospect of gleaning insight from medical records. In the UK, the eminent doctor Ben Goldacre and colleagues built an incredible effective, privacy-preserving "trusted research environment" (TRE) to operate on millions of NHS records across a decentralized system of hospitals and trusts without ever moving the data off their own servers:

https://pluralistic.net/2024/03/08/the-fire-of-orodruin/#are-we-the-baddies

The TRE is an open source, transparent server that accepts complex research questions in the form of database queries. These queries are posted to a public server for peer-review and revision, and when they're ready, the TRE sends them to each of the databases where the records are held. Those databases transmit responses to the TRE, which then publishes them. This has been unimaginably successful: the prototype of the TRE launched during the lockdown generated sixty papers in Nature in a matter of months.

Monopolies are inefficient, and Epic's outmoded and dangerous approach to research, along with the roadblocks it puts in the way of clinical excellence, epitomizes the problems with monopoly. America's health care industry is a dumpster fire from top to bottom – from Medicare Advantage to hospital cartels – and allowing Epic to dominate the EHR market has somehow, incredibly, made that system even worse.

Naturally, Kuttner finishes out his article with some antitrust analysis, sketching out how the Sherman Act could be brought to bear on Epic. Something has to be done. Epic's software is one of the many reasons that MDs are leaving the medical profession in droves.

Epic epitomizes the long-standing class war between doctors who want to take care of their patients and hospital executives who want to make a buck off of those patients.

Tor Books as just published two new, free LITTLE BROTHER stories: VIGILANT, about creepy surveillance in distance education; and SPILL, about oil pipelines and indigenous landback.

If you'd like an essay-formatted version of this post to read or share, here's a link to it on pluralistic.net, my surveillance-free, ad-free, tracker-free blog:

https://pluralistic.net/2024/10/02/upcoded-to-death/#thanks-obama

Image: Flying Logos (modified) https://commons.wikimedia.org/wiki/File:Over_$1,000,000_dollars_in_USD_$100_bill_stacks.png

CC BY-SA 4.0 https://creativecommons.org/licenses/by-sa/4.0/deed.en

[local-edgelord]

I fucking love fronting and posting on my silly little blog and wearing the clothes I made for me and listening to my edgy playlists and bickering with my headmates over who has to do the dishes and working on both personal and systemwide projects and going on discord and talking to the friends we're out to I FUCKING LOVE EXISTING

[collapsedsquid]

“This strike is illegal,” said Melissa Matella, associate vice president of Systemwide Labor Relations. “UAW’s decision to strike over nonlabor issues violates the no-strike clause of their contracts with UC and sets a dangerous and far-reaching precedent that social, political and cultural issues — no matter how valid — that are not labor-related can support a labor strike.”

And that's why the University of California strongly condemns protestors in Hong Kong and Georgia.

[creature-wizard]

This is your reminder that alter programming/trauma-based mind control is a Satanic Panic conspiracy theory. The stuff you might have heard about gem programming, ribbon programming, Greek letter programming, etc., specifically comes from Fritz Springmeier and Cisco Wheeler, two far right conspiracy theorists who claimed, among many other things, that:

A global satanic conspiracy intends to enthrone the Antichrist in the year 2000. The push toward gay rights is part of this plan.

Said global satanic conspiracy has been practicing trauma-based mind control/alter programming for thousands of years.

The Nazis' eugenics program wasn't actually about eugenics. It was actually a front for researching mind control, and that Project Monarch was based on research conducted by Dr. Josef Mengele (whom they claim was an "adept in Caballistic magic.")

Fairy tales, fantasy media, movies, and television shows are full of deliberate programming. Some (but not all) of the media they implicate includes The Wizard of Oz, The Chronicles of Narnia, Alice in Wonderland, Disney films in general, A Little Princess, Star Trek, Star Wars, E.T., Tiny Toons, The Simpsons, Frankenstein, Bewitched, and Labyrinth.

Basically, anything that doesn't fit the most narrow-minded picture of Good Wholesome Christian Entertainment is is part of the Illuminati's plan to corrupt the youth and lead them down the patch of witchcraft and into satanism.

They claim, and I quote, "drugs, torture, hypnosis and MPD all work to enhance memory" and "most slaves have some photographic memory capability." They also claim that systemwide photographic memory can be created through brain stem scarring.

Babies can learn to read by six months old with the use of subliminal tapes.

Direct quote, "Vice-President Al Gore is a vampire and carries a briefcase of blood with him."

Hillary Clinton is an Illuminati Grand Dame and programmer.

Adrenochrome is a secret black market drug. (Adrenochrome isn't a drug at all.)

Fritz Springmeier and Cisco Wheeler's work is basically a modern mishmash of antisemitic conspiracy tropes and witch panic tropes. Fritz cites fucking Edith Starr Miller as one of his sources.

So why do people "remember" TBMC/RAMCOA? Because they've been coached into it. You can coach people into remembering all kinds of things, as we can very easily see by observing the starseed movement, where people remember past lives in nonexistent places like Lemuria.

If alter programming was a real thing, literature on it would have to exist. I'm talking like, actual manuals that describe in full detail how to conduct all of these rituals and whatnot without killing the victim. The first people who claimed to have experienced this claimed they were programmed back in the 50's, which means it's been seventy years. Not a single manual on this has turned up anywhere; not even in the most depraved child molesters' homes or laptop computers.

RAMCOA is repackaged SRA is repackaged antisemitism and witch panic, end of story.

[canyourlawnmowerdothis]

thw best posts are the ones that a horrible scream to be heard from the other side of ur brain

[spoonbenders-archive]

taking really fucked up pictures of food is a systemwide ability for us due to having a really shitty camera but i literally have no idea what the fuck is wrong with the images warden takes because all of them look like they take place on the sun