#speak for yourself aac

[dakotac0le]

No but unfortunalty i do think ricky potts is very good rep of being disabled and being nonverbal / mute beacuse literlly the core theme of his charcter is jsut. Lonlieness and isolation and creating fantasies in your head where you are *important* and *valued* and also importantly . Not disabled and not nonverbal. And living there instead. And also his fantasies are quite explicity sexual in a very teenageresque way. WICH IS WILD FOR A NONVERBAL DISABLED CHARCTER . hes a fully rounded guy (tm) in the way 90% of mute charcters very much are not.

but whyd they make him speaking yall.

[primrosebitch]

This is so true, I'm physically disabled with many chronic illnesses and I also have adhd and suspect I'm autistic, and this is also true for physical disabilities

As an example way back when i first developed my chronic illnesses and all that I'd say I had low support needs for my physical disability, but I still had support needs. I was exempt from pe, allowed to use the elevator, if there was something that required a lot of walking I was accommodated so that I didn't have to walk as much, I let/had others carry heavy stuff for me because I wasn't able to without lots of pain, when I hung out with friends we made sure it didn't include anything that I wasn't able to do, and there are probably tons of other small things I don't remember or that have become so needed for me that I forget it's not universal.

And looking at that list it seems like a lot, but it really isn't, because I'm not basing what level of support I need on able bodied people, I'm basing it off of other disabled people.

Nowadays I'd say I have mid level support needs for my physical disabilities, I need to use a walker if I'm doing any large (for me) amount of walking (the amount is basically nothing for able bodied people lol), I'm not in school anymore but for reference (and because it's the easiest way to explain) if I was I would only be able to go like 2 or 3 days a week, I would be using my walker, I would be given more time on tests and assignments because of my brain fog, I would be given more travel time between classes, I would be allowed to type instead of hand write because hand writing makes my hands hurt and cramp up a lot, I would be allowed to just go and take a nap if I got tired because I have so much fatigue and I need to take naps to function, I would get extra breaks because if I don't my brain just stops working and I can't do any work, and I also still need all of the accommodations I needed before and there are almost certainly more that I can't remember right now.

Like look at how much more I need now, and I still consider my support needs mid because I'm comparing what I need to what other physically disabled people need and some people are unable to wash themselves or feed themselves (specifically the put food in mouth, chew, and swallow part) or they can't physically leave the house or even their bed, like how can I have high support needs when I am able to do all of that, like sure showering is super tiring but I can still shower, I can still feed myself, I can still go out and do stuff and I might be tired afterwards but I still left the house.

I think what low support needs people get wrong when they feel invalidated by the terms low support needs vs high support needs is that they think "low support needs" implies "insignificant support needs/no support needs". But that's not what it means. Every disabled person has support needs. Just because they are on the low end compared to certain other disabled people's, that does not imply that they aren't real and valid. Someone else needing more support than you doesn't imply that your disability isn't a real disability

[clownrecess]

(Tw for a VERY brief mention of infantilization)

I want to talk about interacting with AAC users in person, specifically for speaking people.

1. Being an AAC user, I get left behind during conversations a lot because it takes me longer to add in my statement. By the time I'm done, the topic has oftentimes changed and then what I want to say isnt relevant anymore, and sometimes wont even be understood because to everyone else what I just said was out of place and random. This feels really frustrating and sometimes isolating, as well as embarrassing. Please wait for us, we want to converse too.

2. Sometimes when I am not yet done responding, people will watch me and try to guess what I'm going to say. If all I've got down so far is "I already", people might go "I already.. know!" "I already.. saw!" etc. Please stop doing that. Even if you got the idea correct, you might use the wrong words, which frustrates me. And even if you say it all correctly it's still frustrating, imagine if someone tried to guess what you were saying by interrupting you every time you started to talk. It's annoying.

3. Dont comment on what in our folders. If I open a folder to get to another word, and whilst doing that you see a different word in it that's funny or inappropriate or whatever, keep it to yourself. Its annoying. You have acsess to those words, and it isnt treated as weird, so why is it for me?

4. Don't infantilize us. We aren't perpetually children. We are our age. Treat us as if we are a speaking person of our age.

[drdemonprince]

Apologies if this comes thru twice, my tumblr is not consistent about actually sending asks.

Do you have any tips or resources for someone who struggles to be comfortable with conversations around sex/kink/etc?

Long story short, I grew up LDS, so despite being a very queer, horny & sex-positive adult who has long been removed from religion, I struggle to talk about sex or my kinks, even with my therapist. It's caused some issues in my long term relationship on and off. It feels both embarrassing and wrong. I have been trying my damndest to get past this and I feel like I make very little or no progress, and the lack of progress is making me frustrated.

Do you find sex & kink easier to write about? Can you show potential partners fiction or images depicting what you like, rather than saying it out loud?

I think your primary source of your distress here is that you think you aren't operating the way you should, when I'd much rather see you focus on finding accomodations for how you currently work. Journal. Run a horny blog. Reblog things you like on bdsmlr. Share porn with partners. Write an email to your therapist. Use hand signals or other nonverbals during actual sex. Wear a gag so you don't feel the pressure to talk. Use communication cards. Use an AAC. Whatever works for you!

It might be that with time and repeated use of other communication methods, speaking about these topics gets easier. But if talking about it is hard, there are a lot of other ways to express yourself! Plenty of neurodivergent people have verbal blocks around sex, emotions, or other shame-ridden topics, and if you're one of them, that's fine!

[nonspeakingkiku]

AAC device in the wild! Inspired by others on here doing this. (multiple are restaurants because we go to them a lot (compared to other kinds of places) some of these pics are old.

A mexican restaurant

ID: An ipad in a pink and purple case and an accent 1000 with a red frame and LAMP VI on the screen sitting on a wooden table. End ID

Another mexican restaurant

ID: the ipad from the previous picture wih a hot pink fox beanie baby laying on it wit speak for yourself open on it. End ID

A christmas party

ID: the ipad from the previous picture on a green table cloth covered table with two fox beanie babies, a purple stencil letterboard, a paper santa hat decoration, and an empty ornament. End ID

Another restaurant Yah moo - a burger place

ID: a purple stencil letterboard with a brown fox beanie baby on it, sitting ona wooden table. End ID

Aldi

ID: the ipad in the pink and purple case on Kiku's lap. Kiku is sitting in a wheelchair with an attached basket. End ID

At a park!

ID: Same ipad from the last picture sitting on a cocomelon pattern blanket, open to the home screen. End ID

Another restaurant (think steak and shake?)

ID: the ipad from previous pictures sitting on a white table with a purple stencil letterboard End ID

Yet another restaurant 😂 (don't know what this one was. Possibly a sushi place)

ID: an ipad in a purple waterproof case attatched to a chest harness and propped up on the edge of a dark wooden table in front of the ipad is laminated letterboard. End ID

In a car

ID: the ipad from the last picture propped up on Kiku's knee, with a laminate letterboard on the other knee, and a communication card and speaker worn on a lanyard. End ID

Target

ID: Kiku sitting in a carolines cart holding faer ipad, communication board, and cane in his lap, and wearing faer phone on a lanyard. End ID

[zebulontheplanet]

Um, I take back what I said. Speak for yourself is honestly one of the best apps I’ve tried so far and the motor planning aspect of it works so well for me. Do I need to customize it a lot? Yeah. But I don’t really mind that to be honest. It’s a really good app and after only three days of using it I’m picking it up really fast and becoming fluent in it.

This is the first symbol based AAC that I’ve actually felt confident using and becoming fluent in. It’s really a shame that it’s $300. I’d buy it in a heartbeat.

I’ve been trying out speak for yourself free trial lately and it’s ok. The vocabulary doesn’t really make sense in my head.

I really wish I had lamp though, it looks like it makes a lot of sense and looks amazing. If only though lol. Maybe one day!

[magz]

This one of many way to help disabled people. Can "donate" voice through Vocal ID so that those not able reliably speak can have more variety Text-To-Speech voice in their AAC devices (Alternative Augmentative Communication). Can also "donate" to preserve own voice for future.

Recording can take 2 to 3 hours total, which can be done bit at a time. If done outside a voice donation clinic or recording booth - what needed is a headset with microphone, a quiet environment, and google chrome.

Can make Voice Contributor account or if want to make voice charity drive so more people donate voice, can visit VoiceDrive Ambassador page for more info how to do it.

Quote:

Rapel Patel speech scientist and founder of VocaliD says, “Millions of people rely on synthetic speech to communicate everyday. Yet, they’re given a limited set of generic, robotic sounding voices. Voices that don’t fit their body or personality.” Voices are a part of our identity. If you never met me but spoke to me on the phone, in just a few words you would likely deduce that I am a young woman from New York. Our voice showcases our age group, region we come from, our physical size, our gender identity etc. and our vocal output expresses our emotion, thoughts and ideas. If you donate your voice, vocaliD can mix your vocal recordings with the vocal recordings of an AAC user to create a custom voice for the AAC user.

Of other side, instead of donating...

For using Vocal ID for yourself, there are two main options.

"Vocal ID Legacy" where you preserve the voice for yourself - which end up cost $1499 u.s. dollars (if insurance not cover it).

And "Bespoke Voice" where you choose a voice from recordings, with option to 'blend' the voice with your own if still have some ability to - with varied cost.

[five-thousand-loaves-of-bread]

2 and 4!

If you were to write a book (or make other media!) involving disability, what kind of book would you write?

Is there any popular disability theory that you disagree with?

2. book (etc) on disability

ooooo!!!!! feel like much would be like tumblr posts tagged as loaf screm. but more polished! with personal anecdotes but not autobiography - life too weird n not ready tell it all n be scrutinized. would have more societal analysis (like loaf screm tumblr posts) than only memoir about self, but would have live experience weave in narrative so much that not just world analysis.

want talk about much of same thing as tumblr: existing as nonverbal full time AAC n wheelchair user, I/DD, n regression. what it like not be able mouth speak, what it like not be able communicate via language irl majority of time. what it like losing your abilities n feel like stuck in limbo of not belong anywhere bc you not born this way but also you not stay way you born. the exclusion by so many people even people of own community. the disavow n throw under bus n punch down of disability community. how there more than one disability community. how privilege play into disability. so many things.

it something really! really want do!!! fantasized many many times!!! it unrealistic in moment but! maybe some day!!!! shove down people throat force world hear me >:)

.

3. disability theory disagree with

this mix of theory itself n how people talk about n use it… but social model.

many people say social model say you only disabled bc society n… that not exactly right. because social model define word bit differently n separate effects of society on you n call that disability, from effects of own body on you n call that impairment. so can’t summarize it as “only disabled by society” when by disability you use common definition of experience in world AND in own body.

but in mean time. my experience of society & my experience of own body mind, not separable. nor want separate them n only call one part disability. because if look at etomology look at prefix look at construction look at dis+ability, my body mind dis my ability too.

n disagree with people who only know of medical n social model n so call social model perfect thing in world n try apply it for everything everyone n call medical model useless n oppressive for all n shouldn’t be used for all.

biopsychosocial model my beloved. but also there so many more disability models beyond these 3! n people experience so wide, no one model going be accurate for everyone in all situations!

n also giving social model a L for phrase itself so terribly.

another thing is disability studies n thus disability theory, suffer from much same problem as talk about on tumblr of social media community. it an echo chamber it elitist. it make you think you write another complicated incomprehensible theory article that keep repeat yourself in most un-plain language ever is you be hyper aware of societal power n solving it.

scholarship n theory have its uses n learn lots from it n use many ideas learn from it in own advocacy here (even if it just 1% n force to throwing away 99% that didn’t understand), but need stop treating like it will single-handedly save world n it itself so woke it so free of problems, that it n authors isolated from societal power dynamics. n other jargon used. especially if those theory stay at theory n not get read n used in practice down on ground by people who do direct work. which, honestly, sound like some of you (academics) aren’t exactly try make this happen you trying keep it locked gatekept bc you keep write incomprehensible things

ask game

[howtocareforbunnyboys]

Communicating with smalls who can't speak right now

To clarify: this post is written for carers of age regressors who experience temporary loss of speech from time to time. My small one sometimes regresses too small to speak, and when he's big, overstimulation can also cause a verbal shutdown.

This post is written by an autistic person with autistic friends, family, and an autistic partner, but it is not about nonverbal autistic people. I'm not nonverbal, and neither are any of my close friends or family members, so I lack the adequate experience to know how to accommodate someone who does not process words the same way as someone who can verbalize.

Outline:

What to ask? (Help for how to proceed, written with non-autistic carers in mind)

Leeloo AAC app (method)

Option chart (method)

Sign language (method)

Understanding sensory management

🌷 🪻 🌻 🪻 🌷

What to ask: (Autistic triage, lol)

If your small one is overstimulated, then the first step is to determine what is causing irritation.

"Are you overstimulated?" Can work for older kids, but "is everything too much?" May work better for younger regressors. Similarly, "is everything too quiet?" Is a great way to ask if they're understimulated.

"Do you know what the problem is?" Opens the door for them to point to the problem, cover their eyes/ears, or tug on their clothes.

If they answer no, start removing stimuli and asking if it's better. E.g., dim the light and ask "is it better with the light low?" If they indicate yes, repeat question 1. If they indicate no, ask if they want the light back up.

If there's still a problem and it's not external, it's probably an internal stimulus. They may be hungry, thirsty, or need to use the restroom. They may need to switch positions, stretch their limbs, or treat a minor injury. They may feel nauseated, have dry eyes, or need a shower. Interoception can be really hard for autistic people, and any of these stimuli can register as just pain, distress, discomfort, or overstimulation, without a clear source.

I know the options for possible sources for overstimulation is seemingly endless, and being asked questions can itself be overstimulating. You can reduce this problem by identifying for yourself the most likely triggers. For example, if your small just had a meal 20 minutes ago, then hunger probably isn't the culprit. If the noise level in the room (and coming in from the doors and windows) is already low, that's probably not the main problem.

You can also ask some questions silently, by offering them helpful objects (noise-canceling headphones, fidget toys, their phone, blankets, plushies, beverages, etc.)

Lastly, it's important to know that when overstimulation leads to a shutdown or meltdown, it's rarely due to one cause. It's because there's just too much going on all at once. It's not "the light is too bright," it's "the light is too bright, my clothes are uncomfortable, there is a small beeping noise, I'm getting a headache, and I'm carrying stress from events that happened earlier today."

Because it's a cumulative effect, removing some of the irritants (and adding soothing stimuli) can be enough to start to return the person to baseline.

As they approach baseline, they'll be able to think better, and may start to be able to identify problems on their own. For example, when the sharpest lights and noises are blocked and their body is at the right temperature, they may be able to identify "oh, I'm thirsty!" and request a beverage (with gestures, writing, typing, etc).

As they approach baseline, they may be able to verbalize again, or they may still need a break from speaking. The process of your body moving from a high-stress state to a low-stress state takes time. Your body has to filter out all those stress hormones, and build back up the feel-good hormones.

It can be that nothing is actively wrong anymore at that exact moment, but they need some quiet time with their favorite media to rest and recover.

🌷 🪻 🌻 🪻 🌷

Leeloo AAC

If they can still type, the app Leeloo is a free, albeit limited, AAC program.

[Link to Leeloo AAC via Google Play]

Pros:

Mostly free

Can read aloud what you type (TTS)

Has pre-programmed words with pictures in some categories

Cute aesthetic geared towards children

Cons:

Can't add your own words and pictures

Some categories are behind a paywall

Can't record your own pronunciations

For regressors who are old enough to type, this is a great resource.

For regressors who are younger, the limited number of programmed images & words may be a problem.

🌷 🪻 🌻 🪻 🌷

Option chart

The above image shows two ways to show your small options, which they can select through pointing or placing their hand on top of the desired option.

Above the orange line is for yes/no questions. I find that when Bunny is too overstimulated to speak, his needs are often too complex to put into a simple nod or head shake, so an "other" option is essential.

Placing "other" in the center also allows him to point between two options to indicate "yes, but I need accommodations" or "this is similar to what I need, but not quite".

Below the orange line are 3 symbols 🤎🏵⭐️. The specific symbols used don't really matter; I just drew a heart, a flower, and a star because they're simple shapes every kid has seen a thousand times, so it's not difficult visual stimuli for the small one to process.

While you draw the symbols, you explain to them what the options are. After the first question, you can either turn the page to make new symbols, or you can reset the meaning of the same symbols.

If the regressor struggles with resetting the meaning, but you don't want to draw a new set every time, then try just drawing 2-3 sets and switching sets between questions.

You can also place 3 toys in front of the regressor for them to grasp, if they don't respond as well to requests for pointing. This method is excellent for very, very young regressors that struggle to read.

Accommodations for blind / visually impaired regressors :

You can still use the option chart method, of course. You can guide their hand to 3 different, familiar objects, or verbally inform them what you're placing in front of them. It's important that the objects are very different, so they can find and pick up (for example) the cold, metallic spoon, or soft plushie, or smooth stone without confusion.

If you have permission to touch their body, you can assign meaning to different body parts, e.g. right shoulder for yes, left shoulder for no, knee for "maybe/kinda", top of head for "I don't know".

I specify "if you have permission to touch" because verbally indicating body parts will involve the possible factor of right/left confusion. A regressed person may temporarily lose the ability to tell right from left, but if you touch each shoulder, they're likely to be able to remember which shoulder means "yes" and which means "no".

🌷 🪻 🌻 🪻 🌷

Sign Language

I don't think I need to explain this one.

Pros:

Gain the ability to communicate better with more people in your local Deaf community

Gain the ability to communicate with noise-canceling headphones on, thereby reducing your level of auditory stimulation 🎧

Can listen to music and talk at the same time 🎶

Can talk in libraries 📚

Can talk in loud places like buses and trains without wanting to fly out of your skin. 🚌 🚂

Gain the security of knowing that as you age, if you start to lose your hearing, you'll still be able to communicate. 👵🧓👴

Cons:

For many reasons, it's best to learn directly from a Deaf teacher, and that costs money. If you have $10 USD spare per week and access to reliable transportation, you can probably join a beginner class held by your local Deaf resource center without any issues, but not everyone has those things. There are also courses held online, but please try to find one that teaches your regional sign language. (Learning ASL with a San Francisco accent when you live in NYC is perhaps a bit odd, but not as bad as learning sign language from a whole different country.)

It takes a lot of time to learn another language, so you'll still need a different method in the meantime.

🌷 🪻 🌻 🪻 🌷

Understanding sensory management

This is probably obvious, but when you're autistic, a great deal of effort goes into curating your sensory input. Speaking as a city-dweller, we live in a loud, stinky, bright, ugly, stressful, uncomfortable world, and we can't change that.

Arranging your schedule/routine to include regular bursts of comfort and happiness, and reducing irritants where possible, is necessary self-care for an autistic person. Disruption to these processes is distressing because we really rely on these skills to manage the uncomfortable world.

[Example] : "I always watch ____ and eat ____ on my lunch break." = Going out to lunch with a friendly coworker will mean giving up my restful time, adding a whole lot of unanticipated stressors, and require conversation during a vital time I use for quiet relaxation. This is how I get through my work day.

[Example] : "I only eat this brand of [food item] and wear [specific clothing type/brand/fabric]. I am upset if this is unavailable." = I know what feels good in my mouth and tastes good, and I know what feels good on my body. Eating/drinking these things gives me a reliable burst of comfort and happiness. Wearing these things gives me a steady stream of reliable comfort/happiness throughout the day.

You can probably think of a point in your life when you were going through a difficult, emotional time, and you were taking things day by day, hour by hour. You got through work 15 minutes at a time, counting down til your next break. You spent your break doing something comforting. Maybe you avoided watching the news and avoided stressful family members.

You probably felt more irritable than usual when the grocery store radio plays a song you dislike, or your shopping cart has a squeaky wheel, or your watchband keeps catching on your arm hair, or the cashier looks like they're judging the nutritional content of your purchases and is considering making a bad joke. Normally, you'd filter out these mundane annoyances, but now they set your teeth on edge.

Maybe there was only one thing you looked forward to each day, like a little oasis. And if something went wrong with that precious thing, then everything you've been trying to keep inside would come spilling out in jagged breaths and hot tears spilling down your red, embarrassed face.

Recalling all this, you might notice that during those difficult, emotional times, non-autistic people use the same skills as we do --- limit stressors, and increase opportunities for comfort and happiness.

You do this naturally for others, already!

When your loved one is in mourning, what do you do for them? You limit stressors (clean their house, do their laundry, run errands for them, etc). You increase their comfort and happiness (give them gifts, make them their favorite foods, take them out to see their favorite sports team/movie franchise, etc).

Why does grieving require similar skills to daily life with autism, even though being autistic can be a joyful experience?

Autistic brains interpret sensory information differently than allistic (non-autistic) brains. We struggle to filter out unimportant stimuli, and we notice fine details, which means there is a LOT of stimuli. We just experience a "louder" external world than allistic people do.

When allistic people are in a heightened emotional state, they temporarily lose the capacity to filter out stimuli. This means that, for a time, they're experiencing a very loud internal world (from the heightened emotion) and a louder than usual external world all at the same time.

So when your autistic loved one freaks out about something you interpret as unimportant, please keep in mind that whatever it is, it's something that is important to them. It's something they were relying on, and looking forward to. The world is so, so loud. We need our reliable comfort and happiness. We need our rest and relaxation, (even if that rest and relaxation is achieved via jumping, spinning, dancing, singing, or making specific noises).

Thanks for reading :). I hope this gave you (and your small) something to discuss or try.

[ohsoconfused]

do you have any trans mute tips?

hello im transmuteflux myself!!!!

TRANSMUTE TIPS ✽

first, you need to figure why youre mute. common reasons are:

- physical damage (apraxia, paralysis, illness, brain damage)

- anxiety/trauma

i cant give you tips on damaging your own throat or brain so ill give you tips an anxiety/trauma induced mutism!

- have a select group of people you talk to and slowly include fewer and fewer people until its only your closest relationships!

- when going somewhere, ask your close relationships who all will be there. be uncomfortable if its too many people/youll have to talk a lot

- keep a little notebook or have your phone ready to communicate through writing

- learn asl, even just the alphabet and basic words!

- invest in an aac (augmentative and alternative communication) device or app!

- strain your voice/hurt your throat as an excuse to not talk. just scream for a bit

- consume media about mutism!!

- opt for non verbal responses such as nodding/shaking your head, shrugging your shoulders, and facial expressions

- opt for texting instead of phone calls

- if you NEED to talk, speak quietly

- stop talking/singing to yourself!!

keep in mind: its okay to have a lot of words in your head!! most mute people do!!

[positivelyqueer]

Language, understanding and use of, very complicated and multifaceted. Some people know complicated words and jargon, struggle with sentence structure and grammar. Some people few spoken vocabulary words, abundant AAC language. Some people speak very fluently, struggle with writing and reading. Some people limited words and memory, new words have to replace old words. Some people can communicate on par with others but it takes more effort or concentration. Some people variable language understanding and use. Some people no language at all, only pictures and ideas. All good and important. Not all people have language skills as you expect them. Be kind to yourself :)

[neurodivergent-willow]

Survey with non verbal people who are nonverbal from birth results!

Thank you to everyone who responded to this and also everyone who helped spread this survey!

Participants were found by posting on tumblr, and also I posted the link on three discord servers, one for mute people, two for AAC users. Remember this is not a big statistical thing just the experiences and opinions of some people who do not have functional speech 24/7 and haven't since birth! This does not represent the whole nonverbal community!!!!

How did you end up nonverbal?

9 said they are nonverbal from birth, and 43 said they became nonverbal after birth, this is about the 9 people who said they were nonverbal from birth!

Are you nonverbal due to a mental or physical impairment?

1 said mental impairment

1 said physical impairment

5 said both

1 said no

2 said they don't know

Do you expect to ever not be nonverbal?

All 9 said no

Do you want to stop being nonverbal?

1 said yes 100%

2 said yes but some parts are complicated

4 said it's too complicated to say yes or no

2 said no but some parts are complicated

What is your opinion on people saying they "go nonverbal"?

2 said they don't care about it

5 said they don't think it's okay

2 said they don't know how they feel about it

Do you do speech therapy?

4 said yes

5 said no and they are not in the process of getting it

How long of being unable to speak do you think someone should call themselves nonverbal?

Also I am very sorry I tried to find a way to make this easier to read but I didn't want to cut out any parts and it just didn't work.

when it's likely that it won't go away for the time being

half year of be not speak with mouth words not be choice or be have physical problem speak vocal cord damage thing like that

my position has always been that solidarity needs to go beyond what word you call yourself. i think the discussiom so much more nuanced amd real and messy than many make it out to be.

1 or 2 months

i don't really care, people can start using that term when it feels right to them.

~ a year

i think at least a month

Click the boxes of which conditions you have! If you have none of them do not click any of the boxes

9 have autism

6 have intellectual disability

2 have global developmental delay

5 have anxiety

4 have depression

What support needs do you have?

1 said moderate support needs

3 said moderate to high support needs

3 said high support needs

2 said they don't know

What support needs did you have the majority of time that you were 0-10?

1 said low to moderate support needs

7 said high support needs

1 said they don't know

What support needs did you have the majority of time that you were 11-20?

3 said moderate to high support needs

5 said high support needs

1 said they don't know

If you are autistic how much do you mask your autism?

2 said never

1 said Rarley

2 said sometimes

1 said often

1 said all the time

2 said they don't know

Is there anything else you would like to say? 😊

one person said hi, hello!! :D

Two people also said they have cerebral palsy!

[many-of-mycelium]

more transautistic transition advice from a diagnosed cisautistic (pt: diagnosed cisautistic. end pt) !! part 1 is in our pinned !! again, this isn't a joke or bait or trolling or whatever, this is genuine advice based on our and others' experiences and what we've researched

we always feel extremely worried when we make a post/start a conversation/etc that we will mess up by saying something wrong and that they'll hate us for being weird (this is for more reasons but whatever). this even applies to when we reply/comment or when we answer questions. how much do you worry when you talk ??

this is kinda similar to the tone tags paragraph in part 1 but we misunderstand stuff all the time even offline !! do you ask for clarification or, if you (want to) experience what we described in the previous paragraph, remain silent and keep wondering ??

make a social media account on a platform that lets you make private accounts (like Twitter or TikTok) and follow people and organizations that educate others about autism, advocate for autistic rights, and similar things !! make your feed/timeline stimboards, content about your (desired) special interest(s), or anything you want !! if someone tries to follow you and you post stuff about transIDs (you don't have to btw), only accept their request if you're sure they won't harass you !!

speaking of autism and activism, post about problematic organizations and misinformation in a negative light !! make fun of Autism Speaks supporters !! call out those who call low support needs autistics "basically neurotypical" !! if someone said that autism isn't a disability, would you kindly explain to them why it is, or would you leave an angry comment, block them, and post a screenshot of their post that pokes fun at them ?? speaking of harm to autistics, are you transABA and/or iterABA ??

express yourself !! wear a golden infinity pin around supportive people, then, once you're further along with your transition, wear it in public too !! you can also do this with things like AAC devices or communication cards !! if you wanna do it around people you're not close with when you're earlier in your transition, then it's safer to do things like this around people who you won't have to spend a lot of time around (for example, avoid the people you live with) and who are not important to you (also avoid your employer(s)) !!

empathy !! would you not feel very sad if a loved one's family member passed away, or do you cry when you get a hole in your clothes ?? maybe both ?? you might also fluctuate !!

safe foods and comfort items !! what food can you eat every day without getting bored of it ?? if you couldn't buy/make it anymore, what would you do ?? do you have an object you carry everywhere you can with you ?? what would you do if you had to go somewhere you can't bring it ?? if it got damaged or stolen or whatever, how bad would you feel ?? how similar does a copy need to be to replace it, if it can replace it at all ??

we hope you like our advice !! - Star

[zebulontheplanet]

Curious, what does writing posts with an AAC entail and how is it different? I have never seen an AAC device, as I don't really need aids, so it is hard to imagine. Thanks for explaining if you have the time.

Hello anon ! so making a post with AAC means that I click a series of buttons and it makes the sentence for me . if you google speak for yourself it will come up with the speak for yourself app home page . you can also download speak for yourself free trial and test it out your self ! this whole post was made with speak for yourself ! it is pretty cool . it takes a lot of stress off me and is overall easier for me . it also helps me practice ! which is great . anyways I hope you have a lovely day anon .

[clownrecess]

I don't go to restaurants very often, but I wanted to talk about this anyway: Going to restaurants as an AAC user.

The fear of not being able to convey my thoughts and preferences to the waiter or waitress can make the whole dining experience unpleasant. I tend to worry that the staff may not understand my communication device, or it might be too loud to hear my device in the first place. Due to this, I have my mother (or friend, if I am with a friend) order for me. But this brings up another fear, if they don't know it is a communication device, I become afraid that they think I am an "I-Pad kid", which makes me even more anxious.

Also, ordering at a restaurant often involves a lot of pressure to perform quickly and efficiently, especially during busy times (absolutely not saying that this isn't stressful for staff too because of being rushed). This can be even more stressful for AAC users who are slower at using AAC and need extra time to type their order.

Everyone deserves to have a positive dining experience, regardless of how they communicate. Restaurant staff can play an important role in creating a welcoming and inclusive environment for AAC users. They can take the time to listen carefully, ask questions, and show empathy and patience. And for AAC users, here are a few things that you might be able to do to make it easier for yourself, too:

Prepare your order beforehand

Buy a special case with volume enchantment (I don't know what it's called but I know it exists)

Turn up your volume to the highest option if it's loud

Show the staff member your screen if necessary

Wear a pin explaining you use AAC or are nonspeaking (I recently ordered one off Etsy that says "I hear + understand but don't speak", which I am very excited to receive)

[birdofmay]

30 Days of Autism Acceptance 2023

Hello, apparently I act as a substitute teacher this autism acceptance month 😄 @autie-j is busy, so my therapist and I spontaneously thought of 30 questions for 2023 - to be "published" before 1 April 2023 starts in the timezone UTC+14. Which... wasn't much time. If you see this, we made it! 😎

Rules:

Copy and paste the question you want to answer into an own post - this means don't answer via reblog!

You can answer as many or as few as you like. No force, for real.

Tag your post as #30daysofautismacceptance and #2023

1 April: The typical introduction question! Tell us something about yourself. If you can't think of anything, try these: What do you enjoy to do in your free time? What music or series/show do you like? Are you happy with your current living situation/the people you live with? What's one of your favourite foods?

2 April: When were you diagnosed and when did you know that you're autistic? If you're self-diagnosed, when did you first suspect that you're autistic and when were you sure?

3 April: How good or bad is your memory for things people say? For example verbal instructions. If you're deaf: Can you lip read? Do you think your autism influences your ability to lip read?

4 April: Were/are you in special education? Regular school? Home schooled? A private school? Did it change over time? Did/do you like it?

5 April: Did/do you have accommodations at school/IEP? If not, do you think it would help/have helped you?

6 April: Can you understand what people say when they talk fast, or do you lose track after a while? Was it different when you were younger? Additional question if your hearing is aided: If your hearing is aided, does that trigger sensory overloads sometimes?

7 April: Do you have other diagnoses? What are they? Do you think that some could be incorrect?

8 April: Do you struggle to read long texts or are you one of those people who can read everything with ease (Braille counts too of course)? If you're blind, do you struggle to pay attention when a screen reader reads a long text, or is it ok?

9 April: Did an interest ever turn into an "obsession" for you? If not, do you regularly experience hyperfocus when you engage in your special interest? If nothing applies, tell us about your longest interest, no matter if it's a special interest or not!

10 April: Can you understand speech when there is background noise? If you're deaf: Could you understand speech when you were younger? If your hearing is aided: Does the sound make listening to speech uncomfortable to you?

11 April: If you learned to speak as a child (definition for this post: the ability to use spontaneous speech (mouth words) to communicate in at least two-word sentences), did your ability to speak improve after that, stayed the same, decrease, or did something happen that you can't speak at all anymore now?

If you never learned to speak, did it take you a while to find a good communication method (for example sign language didn't work, communication board was too confusing, but AAC device is ok)?

12 April: Were/are you in speech therapy? If so, for what? If not, do you think speech therapy could have helped you?

13 April: How important are routines to you? Are your routines more based on time ("I always do this at 6pm!"), on habits ("I always drink from this cup!") or both?

14 April: If you learned to speak as a child, were you a late talker, average age, or did you speak at a really young age? If you never learned to speak, how do you communicate? For example an AAC device, sign language, a communication board, etc.

15 April: If you can perceive the facial expression of others and learned to recognise the meaning to a degree, did you learn that in social skills training, by your own "hard work", or was it a mix of both? Are there patterns that you understand intuitively (for example recognising fear because it's not so different from how you behave when you feel fear)? - if this question doesn't apply to you, you have a day off! :)

16 April: If you can perceive the facial expression of others, but struggle to learn the meaning, are there strategies you use to at least guess if the person reacts in a good, neutral or bad way to you (for example to spot if you made someone angry by accident)? Do you rely on how their voice sounds as a backup? - if this question doesn't apply to you, not even in your childhood, you have a day off! :)

17 April: If you can't perceive the facial expression of others (for example because you focus too much on details, struggle to perceive people in general, or because you're blind), do you pay attention to the tone of their voice? Can you hear if someone is angry if they don't tell you? - if this question doesn't apply to you, you have a day off! :)

18 April: If you can perceive the facial expression of others, how long does it take you to spot a pattern in new people (for example you observe someone for a while and at some point you know "This person is insecure because they always have that look when they're insecure")? - if this question doesn't apply to you, you have a day off! :)

19 April: Did your ability to express yourself improve or worsen/deteriorate over time? Or did it stay the same? Is it different depending on how you communicate (spoken language, written language, signed...)?

20 April: If you can (or could when you were younger) say words with your mouth (echolalia counts), did/do you have a monotone or "odd" voice, speak too loudly/softly, etc.? Did/do you practice to modulate your voice?

21 April: If you can (or could when you were younger) say words with your mouth, did/do you struggle to pronounce words or sounds? For example r, th, s, etc. - if this question doesn't apply to you, you have a day off :)

22 April: If you can speak (the ability to use spontaneous speech (mouth words) to communicate in at least two-word sentences), do you experience speech loss/verbal shutdowns, etc.? Meaning that you normally can speak, but sometimes you suddenly can't anymore. Semiverbal/semispeaking people and unreliably speaking people (apraxia), you count as "speaking" if you can use spontaneous(!) speech most of the time.

If you can't speak, are there times when communication suddenly is harder than usual? If not, was it different when you were younger?

23 April: Do you have balance issues? If not, was it different when you were younger?

24 April: How did your fine motor skills develop? Were you one of the first kids who could tie their shoe laces or do you think you'll probably never learn it? This is an "open question", if you want to ramble, start rambling.

25 April: How did your gross motor skills develop? Did you walk early or did you struggle to walk (if you can walk)? Do you have a bad posture? This is another "open question".

26 April: If you're interested in other people/want contact, how do you normally make contact with others? Do you stay where you are and hope that they approach you, or do you approach them?

If you're not interested in other people, do others respect and understand that? Were you negatively affected by the "autistics are very social actually and want friends, they just don't know how to do that!" mentality (for example that everyone tries to force social interactions because they think you secretly want social contacts)?

27 April: If you have/want real-life friends, how much contact is important for you and when is it too much? Do/would you miss your friends if you wouldn't see each other in person for a while?

28 April: As a child, did you tend to express yourself overly formally? Or did you struggle with grammar? Did you "borrow" words and expressions from other people or media, or did you make up your own words? Or both?

29 April: Was your hand-eye coordination delayed or maybe is still impaired? This includes things like throwing and catching a ball, putting a key into a lock without missing it, etc. Everything where your brain needs to process what your eyes see so that your hands can adjust what they do. If you're blind, tell us if you think your autism made it harder for you to estimate where things are, using your hands.

30 April: If you're interested in other people/want contact, did you try to make friends on your own when you were younger, or didn't you initiate anything because you didn't know what to do?

If you're not interested in other people, did/do you still enjoy online contact? If not, did/do people assume you're lonely and try to interact with you all the time?