#sicklecelladvocate
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medicalhelpdesk · 1 year ago
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With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anaemia) and can block blood flow causing pain (sickle cell crisis).
Infections, pain and fatigue are symptoms of sickle cell disease.
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urganic-tuts · 1 year ago
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World Sickle Cell Awareness Day is a significant global observance held annually on June 19th to raise awareness about sickle cell disease (SCD). Sickle cell disease is a genetic disorder that affects the red blood cells, causing them to become misshapen and fragile. This condition primarily affects people of African, Mediterranean, Middle Eastern, and Indian descent. World Sickle Cell Awareness Day plays a crucial role in educating the public, healthcare professionals, and policymakers about the challenges faced by individuals living with SCD and advocating for improved care and support for affected communities.
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empressempathidi · 2 years ago
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This Wednesday September 21st, I'll be on a #SickleCellWarrior panel speaking about managing #chronicillness x #mentalhealth at @pennmedicine. I specifically asked for questions geared toward mental health and Sickle Cell not only because it is what I personally experience, but because we rarely ever discuss how the physical, medical, and mental traumas intersect and deeply impact the #SickleCellCommunity. We're out here doing the best we can everyday. So many of us do not give ourselves permission to ask for more support, especially emotionally. My sis, bestie, & fellow #SCD #Warrior @ediomi will be representing the @crescentfoundationscd nonprofit to share information on how they offer support to our community. ✌🏼 ❤️‍🔥 ❤️‍🔥 ❤️‍🔥 #overcomingdepression #overcomingstigmas #overcomingfear #overcominganxiety #SickleCell #SickleCellAwareness #Acceptance #SelfAcceptance #SickleCellAwarenessMonth #MentalHealthAwareness #MentalHealthAdvocate #itsokaytonotbeokay #SickleCellAdvocate #SickleCellWarriors #SickleCellAnemia #publicspeaking #publicspeaker https://www.instagram.com/p/CisdvYwOVfa/?igshid=NGJjMDIxMWI=
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warriorqueen81 · 4 years ago
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HAPPY 40TH WARRIOR DAY TO ME!!!🥰💋🌻🦋🥰 #sicklecellwarrior #sicklecelldisease #sicklecellawareness #sicklecellmatters #sicklecellstrong #boldlipsforsicklecell #sicklecellfighter #sicklecelladvocate #sicklecellisme #sicklecelllife #sicklecellsurvivor #sickle https://www.instagram.com/p/COKyxnnrok7W3RSuewzpVlMxqt-YZJvGLld7yY0/?igshid=1bv15p7x2owyd
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djsinquerivers · 5 years ago
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VIDUP JUSCUZ at the National sickle cell awareness event I live with it I rep it 45yrs strong and still going. #sicklecellawareness #sicklecellwarrior #djsinquerivers #sicklecelladvocate #dj #cj #producer #composer #420 #stoner #vaper #914 #718 #wolrdwide #livewide https://www.instagram.com/p/By6GnCRhcq2/?igshid=1l6a3yajzndpz
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agassorg · 2 years ago
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#sicklecell #sicklecellawareness #sicklecelldisease #sicklecellanemia #sicklecellwarrior #sicklecellmatters #sicklecellawarenessmonth #sicklecellstrong #sicklecellfighter #sicklecell101 #sicklecelltrait #sicklecelleducation #sicklecelldiseaseawarenessghana #sicklecelladvocate #ilovesomeonewithscd #sicklecellsucks #scdawarenessghana #sjorgrenssyndrome #loinpainhematuriasyndrome #sicklecellcrisis #sicklecellwarriors #sicklecellfamily #lphs #sicklecellfacts #sicklecelllife #siproject #sicklecellsupport #sicklecelldisorder #sicklecellsoldier #becauseitmatters (at India) https://www.instagram.com/p/Ce-VyEqvfLO/?igshid=NGJjMDIxMWI=
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rdbawa · 3 years ago
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Reposted from @alfavyaps Imagine having a cure to sickle cell,those living with the condition may not necessarily enjoy it but what will the future hold? @irenegotau and @Jiritmwa Bakkuk share their opinion on this prospect. Full video on YouTube @alfavyaps compound #smaece #sicklecelladvocate #sicklecellanemia #scmaag #standingtall #ReactToThis #warrior #survivor #sickleCellAwareness #marryright #knowYourGenotype (at Nigeria) https://www.instagram.com/p/CbrpYTFIpK_/?utm_medium=tumblr
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passionroosevelt · 4 years ago
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Sickle cell disease (SCD) is an inherited blood disorder that is present at birth. Healthy red blood cells with normal hemoglobin are round and move easily all over the body. When someone has SCD, the red blood cells are hard and sticky. They are shaped like the letter C (and like a farm tool called a sickle). These damaged red blood cells (sickle cells) clump together. They can’t move easily through the blood vessels. They get stuck in small blood vessels and block blood flow. This blockage can cause pain. It can also damage major organs. Recognizing how sickle cell impacts your life may help spark important discussions with others. Help me bring more awareness about Sickle Cell Anemia. #passionroosevelt #sicklecelladvocate #motivationalspeaker #awareness #sicklecellanemia #sicklecellwarrior #ifight4aliving #sicklecell #diseasecontrol #health #wellness #healthyliving #sicklecellawareness #sicklecellwarriors #sicklecellmatters #sicklecellsucks #sicklecellstrong #sicklecelltrait #education #enjoylife #liveyourlife https://www.instagram.com/p/CLkV2eGgmWE/?igshid=ae902ejh9oqa
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sicklecellmn · 5 years ago
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It’s Sickle Cell Awareness Month! I hate it when people say “suffering from” a disease. She’s suffering from Sickle Cell.. It’s like they’ve attached doom to your identity... A sentence of nonstop agony to your life story. I’ve always rejected that .. No one is allowed to create my story but ME! I didn’t allow Sickle Cell to give me a sentence of doom but allowed it to give me a reason to live with my WHOLE HEART! I chase every dream... I cherish every moment... I cuss real loud and OFTEN! I tell people how I feel in that moment... And I never hold back my tears.. I laugh extremely loud... And anytime I hear music.. I DANCE! I roll my windows down in the car just because the sounds lets me know I’m alive... My front door stays open just so I can appreciate the sun.. I take drives at night.. to appreciate silence. I HUG and KISS my kids daily to let them know that they are loved. And I LOVE... with my whole entire being.... despite how many times I’ve had my heart broken............... You are the ARCHITECT OF YOUR STORY... To not acknowledge that and fight for the life you want is a tragedy♥️ #lifecoachniki #sicklecellawarenessmonth #sicklecellawarenessmonth#iamsicklecell#sicklecellanemia#sicklecellwarrior#sicklecell101#sicklecelleducation#sicklecellmatters#sicklecell#sicklecellawarenessmonth#sicklecelladvocate#liveyourlife#liveagoodstory💫 Rp @lifecoachniki https://www.instagram.com/p/B2LGSY9gqeG/?igshid=1t3m82vqdj58t
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qtp-cm93 · 6 years ago
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They wanted a speech. I gave them hope and a inspiration to keep going! Thank you BLUE BIRD for having me. #Blessed #SickleCellCommunity #SickleCellAdvocate (at Durham County, North Carolina)
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medicalhelpdesk · 1 year ago
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With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anaemia) and can block blood flow causing pain (sickle cell crisis).
Infections, pain and fatigue are symptoms of sickle cell disease.
0 notes
empressempathidi · 6 years ago
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So part of my #growth is to step outta my 🦀#crabshell ♋ & #share some of my everyday experiences living with #SickleCell. Multiple traumas can stagnate & unconsciously fill you with fear. There was a time where #SickleCellAwareness & advocacy played a large role in my #life. I'd go to every Sickle Cell event, meeting, & walk-a-thon, but somewhere down the line I unconsciously allowed the back to back traumatic experiences suppress my #Spirit. As a result, I isolated myself. Literally closed myself away...Hid myself away with the window curtains drawn. My #ego couldn't #accept all the #health crises, surgeries, & instability. I felt like there was no point in sharing my story because I was in such a dark place and I didn't have a positive word for anybody. . I've worked hard to pull myself up out of the deep well of depression & #feel it's time to be the #SickleCellAdvocate #Ifeel #Iam. Letting go of resistance & negative thought patterns gives space to #allowing what is while working towards #elevating. Perpetually #healing! . #GoodMorning, it's #TransfusionDay! #SickleCellWarrior
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passionroosevelt · 3 years ago
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Did you know that whenever I’m hospitalized for having a Sickle Cell crisis I have to do rehab to walk again so that I can get my strength back in my legs. When the pain is in my legs I can’t stand on them. #sicklecellwarrior September is Sickle Cell Awareness Month. Put a ❤️ in the comments if you care about someone with Sickle Cell Anemia Disease. Please donate blood 🩸 #passionroosevelt #sicklecellawarenessmonth #health #wellness #painmanagement #sicklecellanemia #sicklecelldisease #doctors #treatment #body #pain #chronicillness #blessed #prayer #blooddisorder #donateblood #awareness #quote #healthcare #sundayfunday #sicklecelladvocate #education #knowledge #hospital #lifestyle #healthyliving #sicklecellawareness #sicklecell #sicklecellstrong (at Miami, Florida) https://www.instagram.com/p/CTcp62zAHAp/?utm_medium=tumblr
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sicklecellmn · 5 years ago
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#BelieveMySickleCellPain #SickleCellHurts #CureSCD #ConquerSCD #SickleCellDisease #SickleCellAdvocate #SickleCellMN https://www.instagram.com/p/B2HZJPUgFzd/?igshid=1wd2f1o9qxwd7
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empressempathidi · 3 years ago
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So what are y'all doing this Thursday 9.9.21?? Come out and #support the #SickleCell community at the 2nd Annual @crescentfoundationscd #blooddrive x #AmericanRedCross! * * Many of us who have #SickleCellDisease rely on frequent #bloodtransfusions and that means we rely on people like you who are willing to be #blood #donors. We rely on the kindness of strangers! Thank you! #Donate #RedCrossHouse #September is National #SickleCellAwareness Month #SickleCellMatters * * CONGRATS to @crescentfoundationscd for winning the Founder's Award. Keep up the excellent work! * * #Vote for #SickleCellWarrior and #SickleCellAdvocate @tahirahakilah EVERY DAY til the end month! https://www.phillymag.com/health-hero-2021/#gf_385 https://www.instagram.com/p/CTebpVJrBnX/?utm_medium=tumblr
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sicklecellmn · 6 years ago
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Sickle cell disorder can affect ANYONE, although it predominantly affects people of African and Caribbean descent. (sicklecellsociety.org) • • JOIN us on July 14th,2018 as we throw #africainthevalley where we raise funds and awareness for #SickleCellAnemia for the Chibilu children. Click the link in the bio to get YOUR ticket. • • #africainthevalley #sicklecell #sicklecellanemia #sickelcellawareness #sicklecelldisease #sicklecell101 #sicklecellmatters #sicklestrong #sicklecellsoldier #sicklecelladvocate #sicklecellsupport #sicklecelleducation #sicklecellfreedom #cure #fundraiser #awareness - #regrann Regrann from @africainthevalley -
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