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#sicklecelleducation
medicalhelpdesk · 1 year
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With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anaemia) and can block blood flow causing pain (sickle cell crisis).
Infections, pain and fatigue are symptoms of sickle cell disease.
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urganic-tuts · 1 year
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World Sickle Cell Awareness Day is a significant global observance held annually on June 19th to raise awareness about sickle cell disease (SCD). Sickle cell disease is a genetic disorder that affects the red blood cells, causing them to become misshapen and fragile. This condition primarily affects people of African, Mediterranean, Middle Eastern, and Indian descent. World Sickle Cell Awareness Day plays a crucial role in educating the public, healthcare professionals, and policymakers about the challenges faced by individuals living with SCD and advocating for improved care and support for affected communities.
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gaspe302 · 5 years
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Most Common SickleCell Facts!
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sicklecell101 · 6 years
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Sickle cells are not only sickle or crescent shape. There are other characteristics of sickle cells that contribute to disease complications. #SickleCell101 #sicklecell #sicklecelleducation
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agassorg · 2 years
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#sicklecell #sicklecellawareness #sicklecelldisease #sicklecellanemia #sicklecellwarrior #sicklecellmatters #sicklecellawarenessmonth #sicklecellstrong #sicklecellfighter #sicklecell101 #sicklecelltrait #sicklecelleducation #sicklecelldiseaseawarenessghana #sicklecelladvocate #ilovesomeonewithscd #sicklecellsucks #scdawarenessghana #sjorgrenssyndrome #loinpainhematuriasyndrome #sicklecellcrisis #sicklecellwarriors #sicklecellfamily #lphs #sicklecellfacts #sicklecelllife #siproject #sicklecellsupport #sicklecelldisorder #sicklecellsoldier #becauseitmatters (at India) https://www.instagram.com/p/Ce-VyEqvfLO/?igshid=NGJjMDIxMWI=
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sensacore · 2 years
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#WorldSickleCellDay is Celebrated on 19th June Every Year to #SpreadAwareness of the Disease. So Let Us all Come Together on This Day to Educate Others and Have an Aware #SickleCellDay!
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relationshipclarity · 6 years
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[Our Sickle Cell Story] My son has Hemoglobin SS. I never knew I carried the SC trait until I was pregnant with Pharaoh and I definitely didn't know his father did either. When both parents have the trait there is a 25% your child will get the full-blown disease. I worried about it a lot when I was pregnant. You don't know if your child has the disease until they are a year old because up until that time they are still carrying the mothers hemoglobin and the test results are not accurate. I found out Pharaoh's diagnosis in the worst way(The Dr. had terrible bedside manners) A short time after he turned 1yrs he was very lethargic his body very limp and I rushed him to the ER( he was actually in the ER the day before) so they had his blood results in the system. When the doctor came into the room she said verbatim "his blood levels drop drastically compared to the other day, but that's what happens when you have SC" I was like he has what? And after that life changed again for us in so many ways because this was the 3rd chronic illness he was diagnosed with by the age of 1. Motherhood took on new meaning as I took on a caregiver's role. #thisisus We are wiser and more resilient because of it all. _ _ _ From that experience, I realized how important it is to know your partner's medical history beyond STD's. But I often wonder how many couples talk about genetics or go to genetic counseling? And if they do and they find out that if they decide to have kids that the child would be at risk of inheriting a genetic disease, do they take that risk or what? That's a hard conversation. _ _ #sickleawareness #resilience #relationshipclarity #singleparentcaregiver #sicklewarriors #breakthesicklecycle #findacure #endsicklecell #Repost @sicklecell101 (@get_repost) ・・・ What type of #sicklecell disease were you or a loved one diagnosed with? How do you describe your severity? The most common types of sickle cell disease (SCD) are sickle cell anemia (hgb SS), sickle c disease (hgb SC) and sickle beta #thalassemia (hgb Sβ+/0). There are other types of abnormal hemoglobin genes that can be paired with the sickle gene to result in SCD. #sicklecell101 #sicklecelleducation https://www.instagram.com/p/BnO9Nu7nh6k/?utm_source=ig_tumblr_share&igshid=k42bo4c944ec
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World sickle cell awareness day 2020 This day is observed on 19th of June every year, commenced by United Nations General Assembly in 2008, to spread awareness about this diseases. Sickle cell is a blood diseases which is genetically inherited and every year over 3 lakh children born with this disorder according to a report of World Health Organisation (WHO). With quite awareness and some medicines, this diseases can be cured. . Follow : @local2globalindia . . #local2globalindia . . #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellmatters #sicklecellstrong #sicklecelltrait #sicklecellfighter #sicklecellsucks #cancer #sicklecelllife #sicklecellcrisis #sicklecelleducation #sicklecellfamily #sicklecellpain #sicklecellsurvivor #emergency #nurserydecor #safwa #nurseann #nurserystyle #nurserypint #keychain #paramediclife #cardiacnurse #button #nurseryinspiration https://www.instagram.com/p/CBmxduKJM6l/?igshid=1sijeghb4tvjv
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Today, June 19th is known as World Sickle Cell day which is a day set to create awareness on the Sickle Cell Anaemia disease. Sickle Cell Anaemia is an inherited form of anemia — a condition in which there aren't enough healthy red blood cells to carry adequate oxygen throughout your body. The sickle-shaped cells sticks to vessel walls, causing a blockage that slows or stops the flow of blood. This is a condition called anemia, and it can make you feel tired as the lack of oxygen can cause attacks of sudden, severe pain, called pain crises. I have had several people affected with the dreaded ailment and only three weeks lost another friend to it (this was more painful as we thought she had beat it having lived with it for over 45 years). But I can tell you this: the people who have the Sickle Cell (SS) trait live an amazing life (negating the repeated visits to ER and long hospital stays) and we are even more thankful for the 'Bone Marrow Transplant' procedure now available and is known to be the only cure for the genetic blood disorder. So to my awesome/strong Young Boys & Girls, Men & Women; please always remember your good times, your passion and your dreams. You have an obligation to yourself to create a safe, comfortable and fantastic life, and you can do it. Keep fighting to live your best life. We wish you nothing but the best, (less or no crises) & lots of success and fun ❤️❤️❤️ The World is Yours - Take It! We celebrate YOU 👏🏾👏🏾👏🏾 The Renaissance Journey continues... (😇 to the fallen soldiers - RIP Data O & Andrew N ✊🏾) • • • • • #SickleCell #SickleCellAwareness #SickleCellDay #SickleCellWarrior #SickleCellMatters #SickleCellAnemia #SickleCellEducation #WorldSickleCellDay #WorldSickleCellDay2019 #LifeAfterSickleCell #GeneticBloodDisorder #MentalHealthAwareness #Health #BlackHealth #PurposeDriven #WakeUpAndWin #StayMotivated #LivePurposefully #Lifestyle #BeInspired #BeEmpowered #IntentionalLiving #LifestyleBlogger #OnTheBlog #BlogOnBlogs #TheRenaissanceLady https://www.instagram.com/p/By6Zl2Xp6y3/?igshid=ysx5aw8922hs
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najaamplee · 5 years
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👩‍⚕️👨‍⚕️Today I want to highlight WORLD SICKLE CELL DAY...a day for celebration of experiencing another day and to bring awareness to this Dis-ease that takes over millions of bodies worldwide. Sickle Cell Disease is a blood disorder affecting the Red blood cells which carry oxygen throughout our bodies... because of this lack of oxygen in our red blood cells , the blood has a hard time distributing proper blood flow and vital oxygen to the organs in the body including the heart, lungs, liver, kidneys, etc... also with this lack of oxygen, the red blood cells deform into banana shapes or 1/4 moon shapes causing traffic jams in the veins. These blockages turn into excruciating pain attacks into the muscles, tissues and bones anywhere in the body. These pain attacks can happen any moment which violently hurts the body making person with this disease enter the hospital frequently for pain treatments. These pain attacks can turn deadly taking the lives of many each year. Sickle Cell Is NOT A JOKE! Sickle Cell is a CHRONIC PAIN DISEASE. ... SICKLE CELL is NOT a Skin Colour Disease It's not a Black Disease It's not a African American Disease It's not a Cultural Disease SICKLE CELL IS A BLOOD DISORDER WHICH CAN AFFECT ANYONE because you carry BLOOD. period. . . Awareness is Key to Understanding. . Beware of Sickle Cell today. You never know the life of a Sickler until you meet them. Compassion is necessary. Imagine waking up each morning IN pain to push yourself to start your day! . . Love. Light. Frequency. Please SHARE. LIKE. HEART. this post today. And tell me in the Comments do you know someone with Sickle Cell? Y. or N. . . . . . #kneepain #backpain #bostonnurses #najaamlee #hemp #workfromhome #scd #sicklecelltrait #chronicillness #selfharm #shutdown #schoolstoprisonpipeline #speakonsicklecellobama #youth #thalassaemia #hiddenpain #hiddendisabilities #theblackchildagenda #sicklecelleducation #sicklecellwarriors #diabetes #nutrition #ifwedontwhowill #adhd #mentalhealth #exclusions #racism #bullying #dyspraxia #dyslexia (at Najaam Lee's Healng Tempal) https://www.instagram.com/p/By5vqR7gc5L/?igshid=17rk99bdd4b59
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medicalhelpdesk · 1 year
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With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anaemia) and can block blood flow causing pain (sickle cell crisis).
Infections, pain and fatigue are symptoms of sickle cell disease.
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emmahb20 · 6 years
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#treatment day. My last round was successful. Thaught I’d share a lil of my hospital visit. Thanks for all the prayers and support. #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelleducation #sicklecellsucks #sicklecellwarrior #sicklecellmatters (at The Children's Hospital of Philadelphia Research Institute) https://www.instagram.com/p/BuwA0qjAetQjLy5qCoTxvGAHIWeY2_19WUSCJQ0/?utm_source=ig_tumblr_share&igshid=wbyblrjlrlh9
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empressempathidi · 7 years
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And bc it's considered "rare" there's not a lot of funding when compared to other diseases that affect far less ppl. We can connect the dots on why (I mean, the way this #whitesupremacy is set up...) or we can make it plain. The majority of people living with #SickleCellDisease or #SCD in the #UnitedStates are #black. #African #AfricanAmerican #Hispanic #Latino. Doesn't matter what you wanna call yourself to make yourself feel better in this #whitesupremacist system; The apathetic indifference, racial injustices, & DISRESPECTFUL treatment to #blackpeople in this society trickle down to #healthcare, lack of empathy, & cold hard dollars for a cure even though Sickle Cell is the most pervasive genetic blood disorder IN. THE. WORLD. Narrow minded ppl call it "the black #disease" when that is completely inaccurate & dismissive. But I know in my aching bones (even the teeth rn) if more #whitepeople had it or saw their babies writhing in excruciating pain crises they'd find a cure as soon as humanly possible. (Yes, Europeans have it..Just at a smaller percentage) More focus means more caring, which means more #dollars to research & produce cures (that aren't life-threatening anyway). Despite all the #racist & #political nonsense, we are #SickleCellWarriors & we ALWAYS #keeppushing. And while I'm in rant mode, DON'T call us "sicklers"! At least, don't call me one. I find it incredibly disrespectful & demeaning. I know some of us label ourselves that (like that's all we are), but it always annoyed the hell outta me even as a child. This cold & rainy weather got me achy which has me irritable af & makes me give ZERO FUCKS about your salty #whitetears. Already had a #whitewoman mad at my earlier posts. #sorrynotsorry Gonna go have a self-care session. I'll be positive later. #Cancer #moodyaf #youvebeenwarned https://www.cdc.gov/ncbddd/sicklecell/data.html Repost from @sicklecell101 - Although sickle cell is considered rare in the U.S. and other western countries, it is common in other parts of the world, with 20-25 millions living with #sicklecell disease and millions more living with #sicklecelltrait. #SickleCell101 #SickleCellAwareness #SickleCellEducation
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scdawarenessghana · 5 years
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Join the @sicklestrongwarriorsfoundation campaign Let's talk sickle cell. Let's help prevent it Let's help understand it Let's create awareness together. I am adding my voice to the know your genotype campaign, what about you? #knowyourgenotypecampaign #sicklestrongwarriorsbfoundation #sicklestrongwarriors ____________________________________________________________ #SickleCellDiseaseAwarenessGhana is a nonprofit project which educates on #SickleCellDisease (#SCD) and focuses on the need for support for treatment in #Ghana. #SickleCell is an inherited condition that currently affects many lives worldwide. #SCDAwarenessGhana because it matters❗ ____________________________________________________________ A #CharisJadlen #SocialImpact Project (#SIProject), a #ThinkMahoganyCSR . #SickleCellAnemia#ILoveSomeoneWithSCD #SDG2#SickleCellAwarenessMonth#HealthAndWellbeing #SickleCellAwarenessMonth2019#BecauseItMatters #besicklesmart#besickleaware #sicklecellmatters #sickletalk #sicklecelleducation https://www.instagram.com/p/B2TPEWMAhNz/?igshid=1wmp8tmonzldp
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thinkmahogany · 5 years
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Join the @sicklestrongwarriorsfoundation campaign Let's talk sickle cell. Let's help prevent it Let's help understand it Let's create awareness together. I am adding my voice to the know your genotype campaign, what about you? #knowyourgenotypecampaign #sicklestrongwarriorsbfoundation #sicklestrongwarriors ____________________________________________________________ #SickleCellDiseaseAwarenessGhana is a nonprofit project which educates on #SickleCellDisease (#SCD) and focuses on the need for support for treatment in #Ghana. #SickleCell is an inherited condition that currently affects many lives worldwide. #SCDAwarenessGhana because it matters❗ ____________________________________________________________ A #CharisJadlen #SocialImpact Project (#SIProject), a #ThinkMahoganyCSR . #SickleCellAnemia#ILoveSomeoneWithSCD #SDG2#SickleCellAwarenessMonth#HealthAndWellbeing #SickleCellAwarenessMonth2019#BecauseItMatters #besicklesmart#besickleaware #sicklecellmatters #sickletalk #sicklecelleducation || #ZuriSeptember (at Mahogany Events by Debra-Jane) https://www.instagram.com/p/B2Po0Kln8Xa/?igshid=yqkqdtixk0qg
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crazycoolgroove · 7 years
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GOOD MONDAY MORNING, FAM!!! In 2006, #SICKLECELLDISEASE (#SCD) was recognized as a global health problem by the #WORLDHEALTHORGANIZATION (#WHO). Two years later, the #UNITEDNATIONSASSEMBLY (#UNA) designated June 19 as #WORLDSICKLECELLDAY (#WSCD), in an attempt to improve public awareness of the disease and to improve the prospects for patients. Additionally; the month of #SEPTEMBER is designated and recognized as #SICKLECELLAWARENESSMONTH. THANK YOU, @SICKLECELL101!!! ❤❤❤❤❤❤❤❤ #GOODMORNING #MONDAY #GOODMONDAY #LOVE #HEALTH #EDUCATION #JUSTLOVE #JUSTPRAY #PUSH #PRAYUNTILSOMETHINGHAPPENS #SICKLECELLSURVIVORS #SICKLECELLWARRIORS #SICKLECELLAWARENESS #SICKLECELLEDUCATION #SICKLECELLRESEARCH #SICKLECELL101#CrazyCoolGroovy #CCG #CCGalatoire #LaissezLesBonTempsRouler
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