#sicklecelleducation

[sensacore]

#WorldSickleCellDay is Celebrated on 19th June Every Year to #SpreadAwareness of the Disease. So Let Us all Come Together on This Day to Educate Others and Have an Aware #SickleCellDay!

[gaspe302]

Most Common SickleCell Facts!

[emmahb20]

#treatment day. My last round was successful. Thaught I’d share a lil of my hospital visit. Thanks for all the prayers and support. #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelleducation #sicklecellsucks #sicklecellwarrior #sicklecellmatters (at The Children's Hospital of Philadelphia Research Institute) https://www.instagram.com/p/BuwA0qjAetQjLy5qCoTxvGAHIWeY2_19WUSCJQ0/?utm_source=ig_tumblr_share&igshid=wbyblrjlrlh9

[empressempathidi]

And bc it's considered "rare" there's not a lot of funding when compared to other diseases that affect far less ppl. We can connect the dots on why (I mean, the way this #whitesupremacy is set up...) or we can make it plain. The majority of people living with #SickleCellDisease or #SCD in the #UnitedStates are #black. #African #AfricanAmerican #Hispanic #Latino. Doesn't matter what you wanna call yourself to make yourself feel better in this #whitesupremacist system; The apathetic indifference, racial injustices, & DISRESPECTFUL treatment to #blackpeople in this society trickle down to #healthcare, lack of empathy, & cold hard dollars for a cure even though Sickle Cell is the most pervasive genetic blood disorder IN. THE. WORLD. Narrow minded ppl call it "the black #disease" when that is completely inaccurate & dismissive. But I know in my aching bones (even the teeth rn) if more #whitepeople had it or saw their babies writhing in excruciating pain crises they'd find a cure as soon as humanly possible. (Yes, Europeans have it..Just at a smaller percentage) More focus means more caring, which means more #dollars to research & produce cures (that aren't life-threatening anyway). Despite all the #racist & #political nonsense, we are #SickleCellWarriors & we ALWAYS #keeppushing. And while I'm in rant mode, DON'T call us "sicklers"! At least, don't call me one. I find it incredibly disrespectful & demeaning. I know some of us label ourselves that (like that's all we are), but it always annoyed the hell outta me even as a child. This cold & rainy weather got me achy which has me irritable af & makes me give ZERO FUCKS about your salty #whitetears. Already had a #whitewoman mad at my earlier posts. #sorrynotsorry Gonna go have a self-care session. I'll be positive later. #Cancer #moodyaf #youvebeenwarned https://www.cdc.gov/ncbddd/sicklecell/data.html Repost from @sicklecell101 - Although sickle cell is considered rare in the U.S. and other western countries, it is common in other parts of the world, with 20-25 millions living with #sicklecell disease and millions more living with #sicklecelltrait. #SickleCell101 #SickleCellAwareness #SickleCellEducation

[najaamplee]

To Learn more about Sickle Cell Disease, Please visit: Facebook.com/speakonsc . . #najaamlee #Goshingaboutit #SickleCellEducation #inspire #instagood #strongminds #takeaction #challangeyou #sicklecellday #SpeakOnSC #sicklecellwarriors #sicklecell #HEALING #healthcare #health #wellness #lifestyle #Lifestylecoach #SpeakOnSickleCellObama #sicklecellanemia #igers #instagood #instadaily #Women #men #najaamleeunitessicklecell (at Najaam Lee Art and Healing)

[sickle-strong]

repost from @sicklecell101 "When in #pain, think of these 4 words as a foundation to be pain free." @tj_saysnatural 1. Anti-inflammatory 2. Blood-builder 3. Hydration 4. Nutrients Learn more about #natural wellness for #sicklecell by following @tj_saysnatural, president of Sickle Cell Natural Wellness Group, Inc. #SickleCell101 #SickleCellEducation #SickleCellAwareness #sicklecell ||| Like what you see? Get notified every time we post. Go to our page and select the ••• (three dots) on the top right corner and select 'Turn on Post Notifications'. ||| #instarepost20

[eyeright]

This #sicklecell fact is to address the misconception that sickle cell is contagious. Sickle cell is not contagious, it is a genetic disorder, where the gene is passed down through generations. Sickle cell must to be passed down to you in order for you to have it. Please share this vital information! For more information, please visit sc101.org. #SickleCell101 #TeamSickleCell #SickleCellAwarenessMonth #SickleCellAwareness #SickleCellEducation

[sicklecellmn]

Repost @asonefoundation This week we are all about #sicklecell and the SPLEEN. Many people think this organ is “expendable” but it’s assistance with filtering blood and infection control is vital. Most people living with sickle cell disease either lose their spleen or it stops working by the time the reach adulthood. This puts them at a much greater risk for infection. #sicklecelldisease #sicklecellwarrior #sicklecelleducation https://www.instagram.com/p/CCn38A-jeLN/?igshid=yxekz4i5wrbo

[sicklecellmn]

Reposted from @sicklecell101 The STOP Trial was a monumental sickle cell study that provided an additional treatment option for sickle cell disease. It created a trend of transfusion for different types of complications pertaining to SCD and ushered in exchange transfusion for SCD to prevent iron overload.⁠⠀ ⁠⠀ In the following years of the STOP trial, the total stroke rate in children with #sicklecell disease decreased.⁠⠀ ⁠⠀ Sources⁠⠀ Adams RJ1, et al. “Prevention of a first stroke by transfusions in children with sickle cell anemia and abnormal results on transcranial Doppler ultrasonography.” 1998⁠⠀ ⁠⠀ Lee, Margaret T et al. “Stroke Prevention Trial in Sickle Cell Anemia (STOP): extended follow-up and final results.” 2006⁠⠀ ⁠⠀ #scdstudies #sicklecell101⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ .⁠⠀ #sicklecell101 #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ #sicklecell⁠⠀Rp https://www.instagram.com/p/B4PwvShDUkJ/?igshid=17c2vidc9jl96

[sicklecellmn]

It is said that sickle cell originated in five different parts of the world– mostly in Africa and Middle East/Asia: Benin, Cameroon, Bantu, Saudi Arabia/India, and Senegal.⁠ ⁠ Most African Americans with SCD have the Benin variation. ⁠ ⁠ Sources:⁠ ⁠ Serjeant GR, Ghosh K, Patel J. Sickle cell disease in India: A perspective. Indian J Med Res. 2016⁠ ⁠ Loggetto SR. Sickle cell anemia: clinical diversity and beta S-globin haplotypes. Rev Bras Hematol Hemoter. 2013⁠ Rp @sicklecell101 .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ #sicklecell101 #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ #sicklecell⁠Rp - #regrann https://www.instagram.com/p/B3e1a5bAAMz/?igshid=13ua7r3w3mhdi

[sicklecellmn]

And smiling through the pain...⁠ Rp @sicklecell101 ⁠ #qotd #sicklecell⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ #sicklecell101 #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣⁠Rp - #regrann https://www.instagram.com/p/B3e1Q3Sgv_r/?igshid=1pq8ftr3ai3iy

[sicklecellmn]

When I push my daughter on the swing on a hot day, my arm will go into crisis the next day. 💥💪🏾⁠ ⁠ It is important to listen to your body so you can identify triggers and learn how to avoid them.⁠ ⁠ What are your triggers?⁠ ⁠ #sc101asks #sicklecell101⁠ Rp @sicklecell101 - .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ #sicklecell⁠Rp - #regrann https://www.instagram.com/p/B3c6JugAeXY/?igshid=1ogdv4eac3rx

[sicklecellmn]

Rp @sicklecell101 - “I was told that exercise may be too strenuous for my body… Now, I’m down 32 pounds and I work as a fitness coach.”⁠ ⁠ In my past, I was told that exercise may be too strenuous for my body. I was also told that I wouldn’t be able to build lean muscle with my sickle cell disease because exercising too much could cause a crisis. However, when someone tells me I can’t do something, it pushes me to strive harder! I took things at my pace and one day at a time until I got stronger. I made sure to stay healthy and consistent. I worked out 3 times a day, 7 days a week for a year straight, doing weight training and boxing. During training, I made sure to stay hydrated, drinking strictly water. I changed my eating habits too, cutting out fast foods and sodas.⁠ ⁠ Today, I am down 32 pounds, and also do fitness coaching! My confidence is at an all-time high, and I haven’t had a major crisis in almost 2 years. My advice is that anything worth having isn’t going to be easy to obtain. If I can do it, YOU CAN TOO!⁠ ⁠ #sicklecell101 #SC101FOSC ⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ #sicklecell101 #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ #sicklecell⁠ https://www.instagram.com/p/B2fLgdFAfiM/?igshid=1u5j3oy9bg9e8

[sicklecellmn]

I was told at the age of 6 that if I continued to go into sickle cell crises as often as I did, I wouldn’t make it past the age of 10. That’s why when I told my doctor that I was going to become a flight attendant, I saw a look of fear in her eyes. Despite her fears, I vowed to myself that I would somehow use my sickle cell disease coupled with being a flight attendant to inspire others. On my journey, I wrote affirmations, researched blood enriching recipes, invested in myself and made lifestyle changes such as getting ample rest and exercise. These changes did wonders for my mental, physical and emotional wellbeing.⁠ ⁠ Today I am in Year 6 of being a flight attendant! Because of my journey and my achievements, I’ve been asked by the Levine Cancer Institute to mentor other sickle cell patients. When I was younger, I felt that I had to overcompensate being normal to make up for having this disease. But on my journey, I realized there’s nothing normal about me. I’m uniquely and wonderfully made. ⁠ ⁠ My advice to others in my shoes is to remember to put good stuff in– this doesn’t only include food but words as well. I know it sounds cliche but always choose yourself. ⁠@thebeutfulstranger ⁠ #sicklecell101 #SC101FOSC ⁠ Reposted from @sicklecell101 .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ .⁠ #sicklecell101 #sicklecellawareness #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #africa #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ #sicklecell⁠ ⁠ https://www.instagram.com/p/B196zwNAr4N/?igshid=msyagdg1llz8

[sicklecellmn]

Reposted from @sicklecell101 - In the U.S. only 16% of Americans are aware of their sickle cell trait status. Globally, most people with sickle cell trait do not know their trait status due to the lack of a standardized universal testing approach for sickle cell trait.  Source: Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education. Creary S, et. al.   #WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101 .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #sicklecelldisease #sicklecelltrait #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #africa #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣  https://www.instagram.com/p/By6WEgVAIBU/?igshid=1aaacbmapee62

[sicklecellmn]

Reposted from @sicklecell101 - In addition to those of black or African descent, sickle cell also affects Hispanics, South Asians, Caucasians from southern Europe and people from Middle Eastern countries.   Population migration, the Transatlantic slave trade along with many other factors have contributed to the worldwide occurrence of sickle cell disease and trait.   Sickle cell disease is thought to have started from the African continent due to the malaria protective factor of sickle cell trait.  #WorldSickleCellDay #WSCD #SickleCellAwareness #SickleCell101 .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #sicklecelleducation #chronicillness #teamsicklecell #sicklecellanemia #sicklecelldisease #sicklecelltrait #blacklivesmatter #blackhealth #anemiafalciforme #doençafalciforme #falciforme #drepa #drépanocytose #africa #nigeria #ghana #kongo #bahrain #india #jamaica #haiti #trinidadandtobago #uganda #tanzania #tboz⁣ https://www.instagram.com/p/By6VqwEgegE/?igshid=1bzybp8owacuz