#postexertionmalaise

[qofu]

So, two busy days Tuesday and Wednesday, including turning up for psychotherapy and it wasn't on due to my therapist being off for annual leave.😂 I forgot! My PIP Re-assessment was this morning which if I lose this benefit I lose my car, my independence, the ability to go out with wheelchair more places, bus pass also goes, blue badge also goes, basically everything. And no matter how much truth I told the medical professional today, I'm still scared shitless they'll think I'm lying. I got home about 3pm and immediately had to go to bed, flooded with a huge wave of Post Exertion Malaise, Fatigue and pain. I only wanted a couple hours sleep, but needed four in the end missing out on seeing the BF this evening. And now despite how tired I still am, I cannot sleep because it's hot, I'm in pain, and seriously uncomfortable, I can't cope with the CPAP on my face as my sinuses are swollen due to hayfever. Tomorrow I am aiming to go see Kurt, but I may not be very well still. My throat is very sore and hard to swallow. The ironic thing I couldn't even stay awake earlier if I wanted to, I would have just passed out whereever I was. My body won! And now it wins again. Alongside stress and the anxiety that my life could change very quickly soon. Yay! 😭 Joys of chronic illness eh am I right? #ehlersdanlossyndrome #chronicpain #ChronicFatigue #invisibleillnessawareness #hEDS #Disabled #Fatigue #PostExertionMalaise #Pain #everythinghurts #insomnia #cantsleep #Sinuspain #puffyface #uncomfortable #ThePrincessAndThePea #ehlersdanlostype3 #EDS #Fibromyalgia #ChronicPainSyndrome #menieresdisease #Anxiety #BorderlinePersonalityDisorder #Depression #MentalHealth #DPAC #DisabledPeople #Fears #Musclepain #neuralgia #Nope #lyingawake