#ostomybag

[advinhealthcare]

Advin Health Care - Colostomy Bag

It is a waterproof pouch used to collect waste from the body.

Email: exports@advinhealthcare.com

Website: https://advinhealthcare.com

#advinhealthcare #advingastrology #colostomybag #ostomybag #medicaldevices #gastrology #gastrologyproduct #gastrologyequipment #gastrologyinstrument #gastroenterology #gastroenterologyinstrument #gastrologie #gastrologista #gastrologist

[drchintamanigodbole]

Stoma Bag Kya hai? Colostomy in Hindi | Stoma Care I Dr. Chintamani Godbole - GI Cancer Specialist

A stoma is a crucial medical opening in the abdominal wall, carefully created by surgeons to allow waste to exit the body when conventional bowel movements through the rectum are not possible. This procedure is often necessary for individuals who have undergone surgery to remove or bypass sections of their large intestine, including the colon and rectum, rendering the normal bowel function impractical.

This video will take us through essential insights on stoma care, sharing valuable tips and best practices to ensure comfort and well-being. Understanding how to manage and maintain a stoma bag properly is vital for individuals living with this condition, and we are here to provide you with the guidance you need.

We will explore the difference between temporary and permanent stomas, shedding light on these two essential aspects of stoma procedures.

Stay tuned for more empowering content and remember, knowledge is power when it comes to living a healthy life with a stoma.

For consultation, contact Dr. Chintamani Godbole

📲 84518 65944

🌐 drchintamanigodbole.com

📍 Attachments:

✅ Jaslok Hospital

✅ Nanavati Max Hospitall

✅ Shushrusha Hospital

✅ Zen Hospital

#stoma #ostomy #stomabag #ileostomy #ostomybag #colostomy #stomacare #smallintestine #largeintestine #stomalife #ostomylife #DrChintamaniGodbole #HealthTips #HealthyHabits #HealthyLivingTips #MedicalAdvice #colorectalsurgeon #colorectalcancer #gastrointestinalsurgeon #peritonealsurfaceoncology #laparoscopic #colorectalcancer

[livinglife-ibdstyle]

Happy World Ostomy Day!!

First thing, happy world ostomy day to the 750,000 - 1 million people who have an ostomy!

Now if you are wondering what an ostomy is then that is what I want to discuss, along with what it is like living with one.

Lets begin..

An ostomy is a surgical opening in the abdominal area that can be temporary or permanent. During surgery, and depending on which organ is used, they take one of three organs and surgical make a incision in your abdomen and stitch that piece to the outside. That piece the ostomy bag covers is called a stoma. Organs used is your small intestine and that is called an Ileostomy, this is what I have. The large intestine a.k.a. the colon is another and is called a Colostomy. Then there is also the urostomy, which are the ureter tubes that run from the kidneys to the bladder.

An example of how an ostomy works. I am going to use an Ileostomy for this example due to the fact it is what I have myself.

To note: Ileostomy is the small intestine and I was a CNA and nursing student so you might get TMI here.

Say I eat something.. lets go Spaghetti, I am Italian after all.

In you mouth saliva helps to break down that spaghetti I am eating to turn them into enzymes to help breakdown things like starches . Now in the esophagus the broken down food moves by a process called peristalsis, a wave like motion that helps push food along by the muscle relaxing and tightening. All that happens for the food to land in the stomach where food sits and waits for its turn to be broke down further and absorbed with the help of acid and those and other enzymes. Once in the small intestine they don't have long to be absorbed more like they would in a normal person because there time in the intestine is cut sort due to the surgeries I had, same for others. After going through what part of the small intestine we have it goes out through the stoma, which you do not feel, and into the ostomy bag that is worn over it. That is how we go to the bathroom and how our digestive tract works.

Now think for a Colostomy It goes all the way to the large intestine before going into the bag.

Then the Urostomy is for drinking, or absorb any thing with fluid in it, it goes from your kidney into your ureters into the bag.

Everyday life varies from person to person. An ostomy shouldn't interfere minus emptying the contents of the bag. Yes we can lay on our stomach, yes we can wear tight clothes and that crop top you are in love with at the store. A two piece bathing suit, bring it on, No reason why you do not wear them and people with ostomies workout to be fitness competitors and are football players. A few years back, I didn't think "oh my 18 surgeries and ostomy is going to stop me" No I got in a wrestling ring and learn Jujitsu. Yes, my trainers both had a hard time with it but you keep going or find a new trainer. Now unfortunately my Crohn's got worse to the point some days I can't get out of bed. But if you love something, do it. Don't let anything stop you.

xoxo

Sarah Rae

[thegoldenlily3]

Part 1of 2

Trigger warning! Graphic photos in this post.

4-6-17 In the very first photo, I have a horrible tooth ache and had no idea the pain and agony it was going to bring. It ultimately changed my life and for a very long time it was changed for the worse. In the photos following, you’ll see me change and look like death and then recover. You’ll see me living life to the fullest but behind closed doors or under my shirt rather, you’ll see how much I’ve had to overcome. This is my story.

On October 30th 2013, I had a colonoscopy and was diagnosed with Ulcerative Colitis(UC) which is a chronic inflammatory bowel disease(IBD) and an autoimmune disease. I was prescribed Canasa suppositories and my symptoms when away for about a year or so and then came back. I had to get a new Gastroenterologist doctor because my previous one had retired. He wasn’t much help anyway. My new GI doctor was amazing and caring and she saved my life. She prescribed me Lialda(NSAID) and Uceris(steroid).

At the end of March 2017, I had horrible tooth pain and called my dentist and they prescribed me Tramadol and Augmentin. The Tramadol made me sick so I called and had them switch the med and they gave me Clindamycin and that made me sick too. They gave me Hydrocodone and that also made me sick so they just had me taking Ibuprofen and Augmentin. I started to have a bad reaction to the Augmentin and got sores all in my throat and mouth and was throwing up and had severe diarrhea. I finished the antibiotic but went to the er because of the pain in my mouth and the vomiting. Mary’s magic mouthwash was prescribed to me to help with the sores and also nausea meds. The only time I was able to get any sleep was when this mouthwash numbed my mouth and throat. For weeks, I was unable to eat or drink anything nor was I able to take my UC meds and my heart rate was high. I went to the er multiple times during this whole ordeal because I couldn’t stop throwing up and all they would do is give me fluids and nausea meds then send me home. I went to an er and waited for 3 hours all the while throwing up with no end in sight and ended up leaving to go to a different hospital. On April 15th, I was pacing the house back and forth because I was miserable and didn’t know what to do. I didn’t want to go to the er yet again for them to just send me right back home. I remember I was pacing by the front door and my husband Issaac went to check the mail. I watched him and then started to say his name over and over because I felt like something was really wrong. Next thing I remember is Issaac kneeling over me and having shoes stabbing me in the back. I had passed out and my eyes were open the whole time but I was unresponsive. Issaac had ran in and thought I was dead. He called 911 and they wouldn’t answer. He used my finger to unlock my phone and dialed 911 and had both phones ringing and finally got an answer. (Fun fact for iPhones: if you press the big button on the side it will call 911 and they can track your location. Dialing 911 will not allow them to track your location.) The ambulance took me to the er and they did 2 EKG’s, CT scan(only after Issaac asked them to because I hit my head when I fell.), chest X-ray, and blood work. I was also tested for CDiff many times but it was always negative. Again, I was given fluids and sent home. They said it was normal for a lot of people to live with an elevated heart rate so they weren’t concerned. A couple days later I went to my primary care doctors office. My doctor was on maternity leave so I saw a different doctor. He did blood work and then wanted me to take depression meds. That was a hard NO! He said I wasn’t getting better because I was depressed about being sick. Yes, I was absolutely miserable and sad about it. BUT, there was something more going on. I wasn’t getting better and I knew it wasn’t my fault. I had to keep advocating for myself because I wasn’t getting help from any of these doctors I’ve seen. I think I went to the er again at some point and was sent home. Then they called me and said my potassium levels were too low and they didn’t think I’d be able to get down the prescribed potassium drink. So we went back to the er. Again. The er wouldn’t take the word of the doctor from another hospital so they did blood work again. We went to a different hospital because the wait at the previous one was way too long. So I received potassium through an iv and that is not comfortable. It burned as it went through my arm. I was also given Magnesium. I was sent home the next day.

Even though the sores were finally gone from my mouth, I was still struggling to swallow. I had my GI doctor schedule an upper Endoscopy which I had done on April 20th. My esophagus had no damage and there wasn’t anything stuck in there. While I was under anesthesia, my GI doctor did a Flexible Sigmoidoscopy. This a colonoscopy but only through a small portion of the colon. It was then that I finally, FINALLY after a month of being so sick that I was admitted to the hospital. My doctor said I looked like I was going to die. She said my colon was so severely inflamed that she couldn’t let me go home even though a patient being admitted after a procedure being done by her makes her look bad. She saved my life and I’m eternally grateful. I had 10 er visits and a scheduled dr visit and none of these doctors thought to have my colon checked knowing that I had UC and continued to show anemia in the blood tests they all ran. It all finally made sense. I wasn’t able to take my UC meds and I was taking 800mg of Ibuprofen for the tooth ache I had. This is what caused my UC to flare up. Why couldn’t 11 doctors put that together?

While I was in the hospital, I received 3 Iron infusions to raise my hemoglobin. I also had a speech therapist come in and she helped me with my throat issue. I was still struggling to swallow and she said that I was protecting my self subconsciously. She worked with me and I was finally able to swallow normally. I was so happy to finally eat a meal without a struggle. I was released 5 days later on April 25th even though I felt I should have stayed. The very next day I woke Issaac up because I was shivering and my teeth were rattling like crazy. My heart rate was 145. Issaac called 911 and we went to the er for the 11th time within a months time. I was put in the observation unit at Methodist which was in the basement because they didn’t have any rooms in the er available. I remember telling a nurse that I needed to go to the bathroom and I wasn’t allowed to get up on my own. She said ok and that she’d be back but when she got back, it was too late...She was gone for a long time. I at least was wearing a hospital gown. I was later put into constant care in the er. My heart rate had gone up to 180 and I was shivering and rattling teeth again. It was uncontrollable and the nurses looked at me like I was faking it. They hooked a heart monitor onto me and suddenly changed their tune because my heart rate was at 200. I believe they gave me aspirin and eventually I was transferred to another room where I waited for a permanent room because I was being admitted again. On April 28, I was admitted and I had another night of the shivering episode with my heart rate at 190. I’m trying to remember what this felt like but I can’t. I was so out of it and not even aware of my surroundings. It was on this day that our grass had been cut and it turned out to be our next door neighbor. We were very thankful for that.

A few days later, my heart rate was around 100 and my hemoglobin was much better. The diarrhea had slowed down so I wasn’t losing as much blood(because of UC) but I wasn’t eating either. I had iv fluids and they wanted me to drink Gatorade but my body was retaining fluids and I was swollen. That was a very weird experience. They did an Echo Cardiogram which turned out to be normal. My ejection fraction was 65% and 55% or above is considered normal. I know this is what they said but I don’t really know what that means. On April 30th, I received a blood transfusion because the retest of my hemoglobin showed 6.6 grams per deciliter and it should be for women between 12-15.5. A blood transfusion is scary. For the first 15 minutes, the nurse has to stay and watch me as I receive the blood to make sure I don’t have any adverse reactions and reject the blood. It turned out to be fine and I received at least a pint of blood. I feel I received another pint but I can’t remember. So I’ve been in the hospital for 10 days so far and I’ve been taking a steroid called Prednisone this whole time to treat my UC. I was also on morphine for the pain. I received physical therapy to help me walk but they were 3 days late. It turned out that there wasn’t an order for pt even though the doctors mentioned it every time they visited. On May 2nd, I was in severe pain and I went about 4 hours or longer without pain meds. The doctor was supposed to call them in and ended up leaving for the day without doing it. The next day, my bloodwork still showed inflammation so my colon wasn’t responding to the Prednisone. All the Prednisone did was make my head hurt sooo bad. I was taking Tylenol for it and it did nothing. My head hurt non stop for many days. I had warned them that Prednisone wouldn’t treat me right. I had taken it before and it made me so dizzy I had to have Issaac drive me home from work. This time it was just the severe head pain.

On May 5th 2017, I’m still in the hospital but I’m about to be released. For some reason my doctor was switched to a different doctor. This doctor decided to schedule for a colonoscopy. They gave me the bowel prep to drink with some clear Gatorade. This stuff was horrible. I’m supposed to drink it all within an hour and every minute of it sucked. I somehow managed to get it all down at the end of the hour. But then...I adjusted my body very slightly, and I threw it all up! I didn’t know it was coming and I had zero time to prepare for it. I just threw it all up all over my gown and in my gown and all over the blankets. I said to them, “I don’t understand why I have to do this. I have had severe diarrhea and I can’t even eat. There’s nothing in my stomach.” But they made me do the prep again... This time I drank it over the course of like 4 hours and managed to get it down without throwing up. I had the colonoscopy which they said went fine...I was still severely inflamed and they wanted to start me on a biological medicine called Humira and continue the steroids. During a colonoscopy, they insert a colonoscope into your bottom that transmits an image of the lining of the colon. The scope blows air to expand the colon so the doctor can see better. Well, after the procedure I was actually feeling alright but I had so much pressure in my belly and I felt like I needed to poop. I tried over and over to go on the toilet and it just wasn’t happening. But finally, it happened. And I was in bed...The nurses hadn’t been in for a long time and didn’t plan to be in for awhile. I was so embarrassed that I had Issaac clean me before they came in. Imagine a father changing a dirty diaper and gagging the whole time. This was Issaac and he kept running to the toilet afraid he was going to puke. To this day, we still laugh about it. It doesn’t matter how horrible the whole experience was, I can still laugh about it. Later that day, I was feeling a lot of pain and they had moved me to a different room with closer care. I remember this floor had some of the best nurses I’d ever had. Hospital policy was that a patient was to be bathed when changing floors. Issaac stood out in the hall as they transferred me from one bed to the other. This was an out of body experience and I can remember it so vividly. As they raised me off the bed, I started screaming in pain and continued to moan in pain after they transferred me to the new bed. I didn’t have any pain meds but I shouldn’t have been in pain. They were ordered not to give me pain meds because the doctor wanted me to be clear headed when they talked to me. I could tell the nurses felt so badly for me because of how much pain I was in. Issaac could hear me screaming down the hall. i was finally given multiple doses of morphine but it didn’t really touch the pain. I then had a CT scan done to see why I was in so much pain. The CT showed air outside of my colon which meant that the doctor had perforated my bowel during the colonoscopy. They started me on antibiotics and said a surgeon would be in to speak with me about possibly removing my entire colon. The surgeon came in and discussed my options. I either stuck with the antibiotics and steroids to see if I heal or I have the surgery. They said it was very unlikely that my colon would recover because there wasn’t any good colon left. I would have had to take a biological medicine for my UC which meant that my immune system would be even weaker and I wouldn’t be able to work in the Microbiology lab where I was currently employed. Even then, there was a slim chance of recovery. She said that even if I didn’t have a perforation, that this surgery was inevitable in my case. I cried and cried and cried. I asked her if I would still be able to have children and she said yes and that she would put extra tissue around my ovaries to protect them. A lot of people said I should get a second opinion but I wasn’t in that state of mind. All I could think about was being able to have children. I also did not want to be on medicine for the rest of my life.

On May 6th 2017, I decided to have the surgery. I had a total abdominal colectomy and an ileostomy surgery. My entire larger intestines was removed and they pulled my small intestines outside my stomach wall and created what’s called a stoma. The stoma is covered with a bag that has adhesive on it to stick to my skin. I essentially poop in a bag. I wish I remember more from this time. I can’t remember what it was like waking up to this. I do remember emptying my bag into the toilet though when I was finally able to walk. I couldn’t go alone though. I had to call the nurse every time I wanted to use the bathroom and there was an alarm on the bed if I tried to get up. One time I let it go off and went anyway because I had called them saying I need to go to the bathroom and they took too long. I don’t blame them. Each nurse had way too many patients to care for. At this point, my arms were completely black from all of the blood draws and IVs I received. Each nurse that came to draw my blood was so confident that they could get it even though I told them they wouldn’t be able to without the ultra sound machine. I had a nurse poke me 3 times and one of those times was in my thumb. Every time, they always had to call the team with the ultra sound to draw my blood. I had a Russian nurse for a few days and she was really hard to understand as her accent was strong. My issue with her was that she wouldn’t listen to me and would disagree with everything I said. I had been in the hospital for a few weeks so I knew what to do and I knew what my body could handle. I also had a male nurse who led me to ask my case manager if I could only have female nurses. I didn’t have a problem with the fact that he was a man. My problem was that he was too rough and he probably didn’t know it. I didn’t blame him for that but it was hurting me unnecessarily. He also forced me to walk to the bathroom on my own without help when I wasn’t supposed to be alone. I started taking walks with a walker through the halls after getting pt. Everyone who passed me cheered me on. It was extremely hard. They say every day you spend in bed is 3 days off of your life expectancy. I had been in bed for basically a month or so. After this surgery, I was on a morphine pump which I controlled and Oxycodone. The oxy kept me loopy. I was on 15 mg every dose. I hated taking it. I didn’t worry as much with the morphine as it didn’t really work for me. It helped give me relief for a few minutes but then faded. I pushed that pump button every time I was able to though. It was every 15 minutes. On May 12th, I finally went home.

Through the next couple of weeks, I had follow up appointments with my GI doctor and my surgeon. When I went to see my GI doctor, I told her about some pain I was having on my bottom. The pain from it made it very hard to walk or move or even sleep. She said it looked like an abscess but to confirm with my surgeon. So I went to see my surgeon and for some reason on that day I was pain free and happy so she didn’t think it was concerning. On May 26th I went to the er for the 12th time. I had a fever and was in so much pain. The er took me back immediately since I had just had surgery and they feared I was septic. It turned out to be an abscess and they took me into surgery to drain it. I was given anesthesia because of how much pain I was in. Thankfully I wasn’t septic and this turned out better than they originally thought. I guess since I was on steroids for so long, my body wasn’t able to fight off an infection so the abscess was very large and inflamed. I received another unit of blood and I still had a fever for a few days. The antibiotics were making me sick and I was really struggling to eat. Between the beginning of April and it now being the end of May, I had lost 30 pounds unintentionally. May 31 2017, I was released from the hospital for the third and final time.

Over the next few weeks, I was walking around the neighborhood and family and friends were coming to help care for me so Issaac could go back to work. I started to taper off the Oxy and that was not fun. I was taking such a high dose that I would nod off mid conversation. When I would wake, I would feel like I slept for hours when it was really only minutes and I would get upset because I was so tired and never really got rest. Even though I was high, I remember how I felt and the things I did. I remember trying to dance with Issaac in the kitchen when he was walking me through the house. I remember contacting people on fb that I hadn’t talked to in a long time. All I wanted to do was talk. I was oddly cheerful and accepted my situation. Anyone who really knows me knows that I am a half glass empty kind of person so this was unusual for me. I didn’t realize all of this until after I tapered off the oxy. My Dad was the only person who told me he was worried that when I came down, I would not feel the same. He knew that it wasn’t really me. I remember going to the ball park to watch a softball game with family and I ended up having to leave because I was in pain and I didn’t bring the Oxy with me. I started to cry because I was so embarrassed and sad that I wasn’t strong enough yet to be at one of my favorite places in the world. On June 18th, I was tapering and I had to have Issaac come home because I was feeling horrible and I couldn’t stop crying about it. I called him because I was home alone at this point because I could finally walk to the bathroom alone and make my own food. So I had to call in another order of Oxy to taper down slower because I was trying to go too fast and I was having withdrawal symptoms. I really don’t know why anyone would want to go through that. Eventually, I was completely off the Oxy and I was so happy to not have any withdrawal symptoms.

So Issaac went back to work after spending every single day with me in the hospital. I didn’t have short term disability because there was some confusion when we signed up for insurance together. I tried to appeal and it was denied Mid June, people from work hosted a bake sale at work to raise money for me. Just thinking about it brings tears to my eyes. I never felt that I had people in my life who cared enough to do something like this. Someone also created a go fund me page as well. I was overcome with shame, shock, and most importantly gratitude for such amazing acts of kindness. Issaac handed me the money that was raised and I just lost it. I was so emotional and just couldn’t believe that this was real life. I feel like this whole ordeal is something you hear about happening but never think that it’ll happen to you. Thank you thank you thank you to everyone who contributed to raising money and helping me get better and for all of the continuous prayers during this time.

July 4th 2017, I finally returned to work. You can see through all of the photos around this time and the rest of the year that I was enjoying life the best I could. In October 2017, I started to have issues with my skin under my bag. This became an issue off and on for over a year. I had been using the same brand of products since surgery for a year and then all of a sudden I couldn’t use it anymore without having an allergic reaction. My skin would start weeping and oozing and was extremely itchy. It also burned badly which over powered the itchiness. Throughout the year of 2018 I struggled with this a lot but I still went on living. The photos I provided are to show how one day I’m very low spirited and the next day I’m blissful. And I was. I was very blessed to enjoy time with family and to go on vacation with Issaac to the Niagara Falls and to go Gen Con. Gen Con was really hard. There was so much walking and I was so weak and still hadn’t built muscles back up. If I stood on my tippy toes, I would fall over from the pain in my calves. Standing outside in the food truck lines was the worst. The heat was making me sweat and interfering with the adhesive of my ostomy bag. Little did I know that this incident would make my skin worse than it ever was before. The photos are a reminder to me of what I’ve overcome. I wanted to create a timeline and show myself how strong our bodies really are. If you’ve read this far, thank you. Part 2 will be posted soon.

[sandiegosisters]

#purpleparty - it's in the bag! Join the #sistersofperpetualindulgence at the Purple Party, this Sunday, Oct 6, 5:30pm at @number_one_fifth in @fabuloushillcrest . This #fundraiser supports @theyouthrally by providing scholarships for kids to go to their camp. #itreallyisforthechildren #ostomyfashion #ostomybag #ostomyhumor #ostomy #endthestomastigma #poopbag #poophumor https://www.instagram.com/p/B3LMTXWJt12/?igshid=fvqv45he5e5p

[rachelfolkster]

*sigh* •••• #multiplesclerosis #mswarrior #crohnsdisease #crohnswarrior #crohns #ileostomy #ostomy #nocolonstillrollin #ostomybag #colectomy (at The Ohio State University Wexner Medical Center) https://www.instagram.com/p/BxBUWdnpBlF/?utm_source=ig_tumblr_share&igshid=zro3md4jglro

[invisibledevour]

💜 May is IBD Awareness Month 💜 As a Crohn’s Disease fighter for nearly 14 years I’ve dealt with a lot of ups & downs both mentally & physically throughout my life. Living with a chronic illness can be incredibly stressful & then add in anxiety & depression, it’s a real struggle. 💜 Not many people like talking about the issues when it comes to Crohn’s or Colitis so let’s change it and flush the stigma! 💜 Ever since having my surgery in 2017 I am able to enjoy & PARTICIPATE in things now that I could only dream of doing, the joy of having an Ileostomy is that I don’t have to fucking tell anyone about it & no one would ever guess that I’ve got a bag under my clothes. 💜 As a advocate for Crohn’s Disease & Ostomys I’m proud as fuck to brag my journey & spread awareness to others so that they understand & answer any Questions. My scars, stoma & bag show how far I’ve come with my battle with Crohn’s & that I’ll never stop fighting my battle. The quality of life that I now have is amazing & I wouldn’t have it any other way. . . . . #FlushTheStigma #CrohnsAwareness #CrohnsDisease #ChronicIllness #CrohnsProblems #CrohnieLife #Crohnie #Ostomy #OstomyBag #Ileostomy #IlestomyBag #IBDAwareness #NoColonStillRollin #Crohns #CrohnsFighter #CrohnsWarrior #IleostomyLife #AKF #AlwaysKeepFighting https://www.instagram.com/p/BxKahUJnY94/?igshid=12dggyq7fktbw

[b-j-d]

More @coloplast samples to try! This time it's the #sensuramioconcave two piece bag that I am trying. Fingers crossed for some positive results. The last time I used Coloplast, the bags didn't stick well and the filters were a real pain in my (non existent) ass (lol). But, I am always willing to try and see what other products are all about. You never know until you try! #ileostomy #ostomy #ostomybag #ulcerativecolitis #ostomate #boweldisease #coloplastcanada #sensuramio #ostomylife #stoma #nocolonstillrollin #permanentostomy #wishmeluck https://www.instagram.com/p/BwDIIr_nUGO/?utm_source=ig_tumblr_share&igshid=r05ux37ej474

[kozmicdreams]

It's #worldostomyday I have a double-loop ileostomy and it's non-permanent so one day I'll get it off but I'm stuck with it for now. I'm not ashamed of it, I'm always up for educating people about it and my Crohn's. And I think it's important to still stay true to yourself when you get something like this, I have green hair, piercings, gauges, tattoos, and an ostomy, a whole new level of body modification lol. Getting my ileostomy was a life saving operation and I'm still so glad I got it. I have an ostomy and I'm proud ✌🏻#ostomybag #ostomy #ileostomy #crohnsdisease #crohns #spoonie #ibs #crohnsawareness #ostomylife #alternative #tattoos #piercings #dyedhair #greenhair #bathroomselfie #glasses #alternativegirl (at Gilbert, Arizona) https://www.instagram.com/p/BonLYT_ArYx/?utm_source=ig_tumblr_share&igshid=1plf90rfbnc2j

[sjhancock86]

I have all of these ostomy supplies. If you can use any of them please contact me. You can pick them up from my office or I can bring them to you. Hate to throw all these supplies away when they could be used by people who need them. Please share this post. #ostomy #ostomylife #ostomybag #ostomyawareness #ostomyfashion #ostomywarrior https://www.facebook.com/1347309040/posts/10217483510663476/ https://www.instagram.com/p/BoPWbPNFYv-hwTeHYASZQHvBJ85bzdSTXBWxjw0/?utm_source=ig_tumblr_share&igshid=10tp4fhsdcn45

[pigletchronicles]

Being okay with your body starts with looking in the mirroring and acknowledging what you see. Day after day you peer into the reflection that stares back and you listen to the words that pop up in your mind. Hateful words spilled between mistakes made and every new discovery. With each negative criticism that rushes in our angry inner critic takes a seat to get comfortable. Instead of pulling up a chair we replace those words with something kind no matter how silly. Before you know it you'll look up one day and that kind silly thought will begin to bubble to the surface more quickly with ease and what once was a seething rage turns into a timid fondness. When fondness finds it's way to reciprocal love you have found the one. The person who will always find a way get you back to neutral ground. YOU. We are the keys to our own happiness. ~ Listen to her whispers because one day she going to be your biggest hypeman. ~ I love you LJ. #bodypositivity #hanes #ostomy #chronicallyill #Inspiration #bagout #arthritis #jointpain #ostomy #stoma #ostomybag #ostomyawareness #ostomysurgery #ostomymom #ostomylife #bagcovers #ostomate #ulcerativecolitis #ostomylife #spoonie #ostomate #stoma #nocolonstillrollin #getyourbellyout #spooniemom #spoonielife #endstomastigma #chronicillness #spooniesunite #spooniesupport #ostomyblogger https://www.instagram.com/p/CYii0eyMuzV/?utm_medium=tumblr

[garnersupply]

When it comes to living with an ostomy pouch, most ostomates complain of having to cope with an unpleasant odor and the possibility of leakage in addition to all the other jinxes. That is, the ostomate must determine which food is causing the bag to stink, beginning by observing the body's reaction to food and how it affects the ostomy pouch.

[drchintamanigodbole]

What is Stoma? How to Take Care of Stoma Bag I Temporary & Permanent Stoma I Dr. Chintamani Godbole

A stoma is a crucial medical opening in the abdominal wall, carefully created by surgeons to allow waste to exit the body when conventional bowel movements through the rectum are not possible. This procedure is often necessary for individuals who have undergone surgery to remove or bypass sections of their large intestine, including the colon and rectum, rendering the normal bowel function impractical.

In this video, will take us through essential insights on stoma care, sharing valuable tips and best practices to ensure comfort and well-being. Understanding how to manage and maintain a stoma bag properly is vital for individuals living with this condition, and we are here to provide you with the guidance you need.

We will explore the difference between temporary and permanent stomas, shedding light on these two essential aspects of stoma procedures. A colostomy is a surgical operation in which the colon is shortened to remove a damaged part and the cut end diverted to an opening in the abdominal wall. It can be temporary or permanent.

A stoma is an opening in the abdominal wall where a colostomy bag is inserted to collect faces from the digestive tract. Immediately after a colostomy operation, doctors attach a bag to the stoma. Stay tuned for more empowering content and remember, knowledge is power when it comes to living a healthy life with a stoma.

For consultation, contact Dr. Chintamani Godbole

📲 84518 65944

🌐 drchintamanigodbole.com

📍 Attachments:

✅ Jaslok Hospital

✅ Nanavati Max Hospitall

✅ Shushrusha Hospital

✅ Zen Hospital

#stoma #ostomy #stomabag #ileostomy #ostomybag #colostomy #stomacare #smallintestine #largeintestine #stomalife #ostomylife #DrChintamaniGodbole #HealthTips #HealthyHabits #HealthyLivingTips #MedicalAdvice #colorectalsurgeon #colorectalcancer #gastrointestinalsurgeon #peritonealsurfaceoncology #laparoscopic #colorectalcancer

[summerchild-madeofstone]

Happy Anniversary to me and my little Raspberry. Pic no.2 was taken exactly a year ago today (apparently at my request even though I don’t remember), a few hours before I went into surgery. I didn’t know I had #coloncancer at the time. I just knew I was gonna have an #ostomybag and I didn’t want to. Pic no.1 is today - 1 year, 1 (other) emergency surgery, and 1 course of chemo later. . I was planning on saying more but all I really have to say right now is that I’m happy. Post-cancer life is harder than I imagined sure - there’s a lot of trauma to process on top of the mental illness that was already there - but at least I get a post-cancer life thanks to this little #ileostomy right here. So thanks Raspberry. You’ve made life so much better and I honestly can’t remember why I was ever afraid of you. I couldn’t be here without you 💖💖💖 #ostomylife #stomagirl #iwas26 #nevertooyoung #cancersurvivors #cancersucks

[thegoldenlily3]

Part 2/2 My Story 2019

Trigger warning/graphic photos ahead

My goal for 2019 was to sell our house and try to get pregnant. I was told by my surgeon that I should have a baby before I reverse my ileostomy. Even though my colon was removed in 2017, at this time I still had my rectum with active UC(Ulcerative Colitis). My surgeon said I couldn’t wait more than 10 years to get this removed and my ileostomy reversed because the disease can affect other parts of my body. Even then, I am not 100% cured. Since UC is an autoimmune disease, I will always have issues in some way. The disease manifests in ways other than bleeding ulcers in the colon. I’m prone to mouth ulcers because of this and I also believe, although I’ve not read this to be proven, that my skin issues are also a manifestation of my autoimmune disease. I deal with this later on in 2019. I’m also always tired and exhausted from all of the pain both mentally and physically.

At the beginning of 2019 my skin issues around my stoma continued to be bothersome. It had been months and months of having issues with my ostomy bag not wanting to stick and my skin oozing non stop. It wasn’t like I could just treat the skin and be done with it. Anything I would put on my skin would interfere with the adhesive of the bag. So I would cut around the edges and basically jerry rig my appliance so that I could treat my skin in different areas with each bag change. I will say this. For 2 years of having this ileostomy and all of these issues, I only ever had one leak; meaning I only had stool push through the adhesive and get all over me one time. Just one. That is actually really really good. My support groups are full of people that have been worse off than me. I was also fortunate to only have to change my bag once while in public and it was at work. I found a single person bathroom with a sink to use. My surgeon once told me that my stoma was very pretty and she herself thought she did a great job. She was an amazing surgeon here until I got a letter saying she was moving out of state so I needed to find a new surgeon. That was devastating and I definitely cried over it knowing that I would have to start over with someone new.

In April 2019, I finally had allergy testing done. I was actually supposed to get this done in 2017 but they called while I was in the hospital. So the first round of allergy testing was all environmental. They put these patches on my back(not what’s pictured) and they read them same day. They were all negative. Then they used needles to put the most common environmental allergies on the inside of my forearms. I wish I had pictures of that. This may sound like it was painful but it really wasn’t at all. The needle only goes through the surface of the skin. I had so many needles stuck in me in 2017 that I didn’t think twice about this test. This test was also negative. So great news, I have ZERO environmental allergies! A few weeks later, I had the chemical allergy test done. This is the white patches on my back in the picture. I had to go home with these patches on and come back in 2 days and have it read then. I wasn’t allowed to shower through that time nor was I allowed to sweat so I couldn’t go to work. Good thing I’m also a side sleeper. After they read the results, I had to come back in the next day and they read them again. Guys, I’m allergic to some pretty weird stuff:

• Balsam of Peru

• Benzoyl Peroxide

• Butylphenyl Methylpropional

• Carba Mix

• Cocamidopropyl Betaine

• Coconut Diethanolamide

• Compositae Mix

• Decyl Glucoside

• Fragrance Mix

• Iodopropynyl Butylcarbamate

• Nickel Sulfate

• Paraben Mix

• Propolis

• Propylene Glycol

• Thiuram Mix

• Ylang-ylang oil

May of 2019 was a pretty good month. Although I don’t have pictures of it, we went to Tappers Arcade Bar with some friends and we decided to ride the scooters around. The entire time I’m riding, we’re looking for a scooter that wasn’t dead for Issaac to ride. We came across the guys who picked them up and charged them and they started to help look. One of them got on a scooter and was riding pretty fast. We were in this narrow sidewalk and he came flying on my right and I got scared and ran into the half brick wall on my left. I scraped my ankle a little bit but I was pretty much fine. That is until I lifted my shirt...I did that, annnnd my bag fell on the ground in front of everyone. I immediately pulled my shirt down and laughed. For a second I didn’t know what to do and I was like oh I should probably pick that poop bag up off the ground before that guy comes over. I quickly grabbed it and he rushes over. He’s freaking out and worried I got hurt because of him. I reassured him that I was fine. The whole time he’s coming towards me I’m quickly walking towards Tappers while hiding my ostomy bag and my friend is with me the whole time. At this time I was wearing a two piece system so usually I’d be able to click the bag back on. When I hit the bricks, it broke the plastic so I wasn’t able to put the bag back on. Tappers was a ways down the street and we went to the bathroom and Issaac ran to the car to get my supplies down the block. Why he didn’t use a scooter I have no idea! And it turned out I still had the car keys. So my friend came in the bathroom and got the keys for him. She then returned and helped me because I couldn’t really do this on my own without doing it in front of strangers. I basically had my shirt covering my stoma so it got poop all over it and I needed help getting it over my head without it getting all over me. I was actually laughing a lot about this. I just thought the whole situation. Was hilarious. And I had a really fun time on the scooters.

Although in May I had a good time, I was still struggling with my skin issues. My allergy test didn’t really help in that area because a lot of companies won’t release all of the ingredients to their products. So it was then after very hard consideration and talking with Issaac that I decided it was time for a reversal. This meant that I was putting myself at a high risk of not being able to get pregnant. My GI doctor had told me at the beginning of the year that it was probably time to do it now rather than later because I was having a lot of abdominal pain with no explanation. It turned out that my diseased rectum was causing me a lot of pain and I had an ovarian cyst that had burst. So there are a lot of options for me if I can’t get pregnant. I’m a big proponent of adoption. I’ve also thought about IVF and surrogacy. All of these options are really expensive though.

On June 20th of this year, I had a Proctectomy, with a rectal mucosectomy, ileoanal anastomosis, creation of ileal reservoir (JPouch), with a loop ileostomy. In simpler terms, I had my the rest of my rectum removed which was about a foot long. I had my stoma stapled shut and put back into my stomach and my small intestines pulled down to my butt. They used the end of my small intestines to create a j shaped pouch that will act as a new rectum. Then they took a different part of my small intestines and created a new loop ileostomy. My previous one was an end ileostomy where the end of my small intestines was the stoma. A loop ileostomy comes outside and then back in but still with only one hole for output. It’s much smaller and a lot harder to handle. A loop ileostomy is required so that my jpouch can heal.

My recovery from my first surgery was hard because I was so sick beforehand. This surgery was hard in different ways. I had a different surgeon so he put me on different meds that I had never been on before but he was a great surgeon. I remember one was Gabopentin and I can’t remember the other but I was also on 3 different nausea meds. I ended up getting very very sick and I couldn’t eat my food. Imagine throwing up immediately after having abdominal surgery. I thought that I had been through the worst pain but this was just awful and I remember it very vividly. Issaac would hold a bowl for me because I couldn’t. Then a doctor came in who for some reason I thought he was there for pt but he wasn’t. I still don’t know what kind of doctor he was but he was just there to check on me. I started to throw up while squeezing a pillow into my gut and he held the bowl and held me up. He continued to hold me up and I just kept throwing up to a point where it was just stomach acid. He was the only reason I didn’t fall out of the bed. That there is a great doctor and I can’t even begin to express how grateful I am that he did that. I know it’s his job to be there for his patients but I feel maybe it’s not normal to go home and say you held someone as they threw up over and over and over. I imagine I can find out who he is now and thank him again. So out of the 3 nausea meds, only one really worked but I can’t remember what it’s called. I felt that the new meds were making me sick so I made the nurse request them to be switched to morphine and Oxy like before, only because I knew I reacted well to them. After that, I never got sick again and was able to eat. Another thing that was different with this surgery was my shoulder pain. It was very uncomfortable and I had never felt anything quite like it. I had to use ice packs and lidocaine patches to battle that pain. I guess the pain was from gas that they had injected into my incision after cutting me open to expand the area.

When I got home, I had severe issues with my stoma that I didn’t realize before because the inpatient stoma nurse would change my bag and didn’t say anything about any problems. The sutures had failed all the way around and created what looks like a moat around my stoma. This caused the nerve endings to be exposed and it looks blood red in the photos. Then, my incision glue came off and my incision came apart. For this surgery, they went through the same incision from 2017. My incision created a hole and got pretty deep but not deep enough for reconstruction. I went to see my stoma nurse and she was a God send. She showed me what to do and I had to change my bag style to a deep convex to help get my stoma more above my skin level. The convex basically pushes my skin down. It took me awhile to get a handle on changing this bag with this stoma. My output was much thinner and more frequent because my stoma was higher up in my intestines. My stoma was also much lower on my belly and in a dip of my stomach which also caused problems. The surgeon couldn’t bring it any higher. Because of where my stoma was, I had to have Issaac help me change my bag. He has been great throughout all of this. I would shower and he would set up a station with everything needed to change my bag. I would cut everything and apply everything but he was essentially my eyes for where I couldn’t see. I couldn’t hold a mirror and apply everything because I was laying down. Before with my old ileostomy, I could change it standing up within 5 minutes. This ostomy had me in tears so many times. There were a few occasions where it took us up to 5 hours to change the bag because my output wouldn’t stop. *** In the pictures provided, you can see where my original stoma was and there’s a ring of damaged skin around it where my appliance was. My skin is starting to heal and scab over. It took a couple months for that to go away.

To prepare for my next and final surgery, I had a procedure done called a Contrast Barium Enema. They laid me on my side on the CT bed and inserted a tube into my bottom and injected contrast. They then took xrays while moving me in different positions. This was pretty uncomfortable and I hope to never do it again.

Pre op: Today September 26th, I’m having a loop ileostomy takedown surgery and a flexible sigmoidoscopy. And of course this morning I started my period and am having full on symptoms with cramps and fatigue. No wonder I haven’t felt good the past couple of days. I woke before my alarm this morning. I didn’t sleep well. I’m nauseous and I guess it’s because I’m scared? I don’t know if I’m scared of the surgery itself or if I’m scared of afterward. I think it’s the latter. Right away I told the nurse that I’m a hard stick so she called the team with the ultra sound so as to not waste time with my iv. I really appreciate that. Now it’s just waiting in bed until they get here. 🤘🏻 So a nurse decided to poke me anyway and failed. I do have an iv now in my upper left arm that was done with the ultrasound machine. I’ve got the nausea patch on too.

The surgery was a success. It’s now a few hours after. Waking up was really rough. I couldn’t stop crying and I was nauseous and in pain. They gave me Diladid even though I said before surgery that I didn’t want that. Then they gave me morphine and Oxy and it it took awhile but finally I woke up with no pain. I walked to the bathroom with help which was hard. It didn’t hurt to walk but I’m just so out of it. Even as I write this, I’m nodding off. I just want to get everything down before it’s hours later and I forget everything that happened. I’m still waiting on a room but they just delivered me some Powerade Zero. I ordered that but they first brought me regular Powerade and I made them switch it. So I will be in here for a few days, until I have a bowel movement. It feels so nice already laying in bed and not having the weight of the feeling of a plastic bag on my belly. I feel free. It’s just so liberating.

Thank you for reading this far. I just really needed to get my journey out so it doesn’t feel like it never happened. If this helps just one person either mentally or physically then I would be ecstatic. 🤘🏻✌🏻👩🏻‍🦰

[sandiegosisters]

Stopped giving a #shit? Come to the #purpleparty on Sunday, October 6, 5:30pm at @number_one_fifth in @fabuloushillcrest ! This #fundraiser supports @theyouthrally by providing #scholarships to kids so they can go to camp! #ostomy #ostomyfashion #ostomybag #thereisacampforthat #poophumor #poopbag #endthestomastigma #sistersofperpetualindulgence https://www.instagram.com/p/B3N3t9PJ1Hj/?igshid=4gu91pz2q0