#neurocardiogenic syncope

[whatshouldwecallchronicillness]

When I meet someone with my condition who is stable and lives a mostly normal life...

[micah-has-fallen]

October is Dysautonomia Awareness month and Vitassium has a 31 day challenge. And I want to participate but lack consistency so I’ll prob do them in clumps. Anyways here’s a screenshot of the list :)

See y’all in a few days!

(I’m probably doing Inktober too but that won’t be posted here lol, it’ll be the month of consistency challenges)

[katesncva]

pots is so fun cause i literally straight up went to a school camp, in the 90° heat, went into a flare, and then passed out 10 times consecutively. i literally had both the school nurses in my camp cabin with me taking my heart rate and blood pressure then got sent home immediately because i couldn't stay the rest of the time my school was supposed to stay there. that was last wednesday.

thursday, friday, saturday, and sunday are relatively fine, i just passed out 5-7 times which i expected cause i was in a flare.

then i go back to school on monday, literally already passed out 3 times that morning, and passed out 8 times at school. in total, i passed out 19 times on monday.

then tuesday i literally throw up cause of anxiety and pass out 25 (16 of which are at school) times.

and today (wednesday) i passed out over 20 times at school and over 30 times today in total. and i had thrown up 3 times cause of my anxiety.

the crash/flare pots has put me in is quite rough and i literally don't want to go to school tomorrow because of it. and i'm not always standing when i pass out, in fact half of my faints are sitting at my seat in class. i swear if i pass out even more tomorrow at school i will go jump off a cliff (jk i won't actually).

also none of my faints are worrisome because i'm only out for like 10-20 seconds and have only had 10 this past week actually be "big" faints (the whole episode lasts slightly longer but i also feel dead and VERY lightheaded even after fainting. usually i can walk 5-10 minutes after a normal faint but for a "big" faint, i can't get off the floor for 30 minutes haha).

but seriously, if you have any tips on fainting, in relation to dysautonomia (pots and/or vasovagal syncope since i think i also have vvs cause my heart rate will drop sometimes when i stand up) please tell me. i'm literally dying out here and my grades are going to start suffering soon 😭 i think it might be cause i keep pushing, and i strongly suspect i have me/cfs, but like i will not be surviving the rest of the week if it keeps getting worse.

[crowcussion]

only hot people pass out daily

[spookietrex]

Rereading some of my old notes from my childhood best friend from when I was 17

Childhood best friend: Hey Spookie, why do all of your main characters in your stories always pass out?

17 year old me: That's not normal?

[mynameis-a]

fainting disorders are some of the dumbest things

i just blacked out while sitting down

how the fuck does that even happen

[10-dutchies-12-bicycles]

orthostatic intolerance is insane youll be like "i rly rly RLY need to go to the grocery store within the next 45 mins before it closes but alas. i am SO fucking tired for NO REASON?????" and then you go lie down in bed and ure like "wow i suddenly have so much energy!! :3 i feel fine now!!"

[aqg-arts]

Sphhhssshhh

Imagine fainting bc you have a fainting disorder

COULDN'T BE ME

🫲👁🕳👁🫱

[jiaade]

October is Dysautonomia awareness month.

Dysautonomia is an umbrella term (for multiple medical conditions) that can cause malfunctioning in someone’s autonomic nervous system.

The autonomic nervous system is responsible for a multitude of bodily functions, such as the regulation of blood pressure, heart rate, digestion, temperature control, etc.

I want to make one thing very clear: dysautonomia is not rare. It is very common and massively under-diagnosed. There is no cure for dysautonomia and managing symptoms is the focus of treatment.

Dysautonomia Resources

*My favorite book about dysautonomia:

•The Dysautonomia Project: Understanding Autonomic Nervous System Disorders for Physicians and Patients by Freeman, Kelly, et al.

*Websites:

•The Dysautonomia Project: https://thedysautonomiaproject.org/

•Dysautonomia International: http://www.dysautonomiainternational.org/index.php

[whatshouldwecallchronicillness]

When my exercise tracker watch tells me my stats are unhealthy...

[ollieisamess]

my heart monitor just said there was a malfunction and my silly goofy ass thought i was dying before i processed that it was talking about the monitor itself not my heart

[crowcussion]

GUYS GUYS GUYS HOLY SHIT GOOD NEWS

ok SO i have been fainting and my vision blacking out for years, 9 years i think, and i FINALLY GOT DIAGNOSED!!!!!!!!!!

neurocardiogenic syncope!!!!!!

it might also be vasovagal syncope they might be the same thing but i’m not sure but anyways i know what’s wrong with me and can get help!!!!!!!!

[nerdyenby]

Help what’s this symptom

I have a lot of relatively mild health conditions and I don’t know which one(s) are causing this. I’m pretty sure it’s the neurocardiogenic syncope but it could also be adhd or cfs related?? Basically I experience this several times a day (sometimes worse than others) and it’s driving me crazy that I don’t know how to describe it or what to call it.

It almost always starts when I stand up from sitting/laying for a while, my vision gets a bit blurry but not like actually blurry?? I can’t focus on anything and when it’s in it’s peak it kinda feels like a camera zooming in and out really fast but it’s more of a sensation than a physical thing I’m seeing. The main thing is that I can’t get my eyes to focus, they keep darting around and what I’m looking at and what’s in focus don’t match and it’s really disorienting. It feels like I’m moving in slow motion and my thoughts feel slow too. I’ve called this “feeling spacy” but that means something different in an adhd context that is almost entirely unrelated. Please let me know if this sounds like something you have/know about and what you call it

[stay-pos-cos]

I can no longer dance. When lyrics transport me to a different plane and melodies charm my limbs to sway...

I remain seated, my smile unwavering as children bounce around me, free as the bluebirds overhead.

I am a canary, my body is my cage. Young joints turned old and blood turned against my very heart.

I feel myself deteriorating and yet I press on. What else is there to do? my hand shake as I cook, my vision swims as a bathe, but I persist.

I survive on love and modern medicine. I am whole even if my body is not.

I am not yet twenty and I live as though every breath is my last. Surrounded by family, left behind by peers I soldier on.

[spookymultimedia]

I have a neurocardiogenic syncope so for awareness I thought I would share my experience with this South Park one-shot of Eric Cartman, who has POTS

       "You know, that oral presentation on theology is due today right?" Stan asked Cartman.

"What!? I thought we had like another week on that!?" He shouted as he slammed his locker shut.

"Uh, no Mx.Garrison said it was due today like two days ago. Don't you remember?" Kyle asked and took out his history binder and textbook.

"No xie didn't!"

"Yeah, xie did. Xie said: class be sure to have the presentation ready by Wednesday because it's due this Thursday, which is today. Remember when xie said that, Cartman?" Kyle said, patronizing him.

Carman blinked at him before rolling his eyes, "Whatever, I'll pretend to puke in the waste bin and run to the nurses office. Then I won't have to do the stupid project."

Kyle huffed at him before walking into class,"Idiot."

The students took their seats as Mx.Garrison started the class. Xe called up Craig who did a presentation on Inti the Incan Sun God of Peru. The presentation was pretty long. Craig faced his back to the class and read off of his poster. Cartman groaned in boredom as his dull voice droned on and on. As he sat the room started to feel too hot. He slipped off his coat and looked around, no one else looked uncomfortable. He leaned against his hand and waited for his turn.

When Craig was finally finished he looked back at the class, "That is the end of my presentation on Inti the Incan Sun God of Peru." He started to walk back to his desk when the teacher stopped him.

"Wait, Craig you need to ask the students if they have any questions," xie instructed.

Craig sulked and sighed, "does anyone have any questions on Inti the Incan Sun God of Peru?"

"Do your parents worship Inti?" Bebe asked.

"No they do not, my parents are white and not from Peru."

Bebe blinked at the tan skinned Peruvian kid, "I mean your real parents."

"They are my real parents?" He cocked his head.

"I thought you were adopted?" 

"Why do you think tha-, "

"Okay that's enough. Eric your up, where is your poster?" Mx.Garrison interrupted.

Cartman blinked up at hir, " Um, I left it at home."

"That's fine you can do your presentation without it and turn the poster in tomorrow morning."

"Aw man." He mumbled. He stood up and leaned his weight against the desk. It was hard to stand up. 'Work you stupid legs' he thought to himself. When he got to the front, Kyle eyed him and waited for his grand gross performance. Instead, Cartman stood there quietly. Mx.Garrison looked down at him, giving a disgruntled look. His body broke out into an uncomfortable sweat and his arms started to shake. Kyle noticed his face went pale and how he was breathing weird.

"Eric?" Xie pressed.

Cartman tried to walk away but his legs gave out instead, causing him to suddenly stumble and crash onto the floor with a thud.

"Oh my god! Cartman fainted!!" Stan cried out and pointed.

"Cartman you can't just pretend to be sick for every presentation you forget about." Xie scolded. Carman didn't move. He felt so lightheaded and god he was sweating bullets. A small puddle formed under his arms as he went in and out of consciousness.

"I don't think he's faking it." Kyle walked up to him and Kenny followed him. Kenny grabbed a ruler and poked Eric's back with it. Cartman blinked at Kyle.

"What are you doing?" He whispered.

Eric gave him a disoriented look as Kenny's jabs kept him conscious. 

"Quit it asshole," he mumbled at Kenny, his speech slurred as he spoke. He winced at the bruise on his arm, he wondered if he broke it. 

Mx.Garrison took away the ruler from Kenny, "You two,help Eric to the nurse's office. You can do your presentation for me tomorrow before school, Eric." 

Kyle grunted under Cartman's weight as he managed to get him to walk. Kenny opened the door for them and followed them down the hall.

"I think I'm gonna puke for reals." Cartman groaned.

"Don't you dare." Kyle sneered. They managed to get to the nurses office.  Carman immediately took off his shirt and pants and laid on the cold hard floor.

"What's going on here!?" Mary cried out shocked at the sweaty half naked boy.

"Be painted!" Kenny said through his hoodie and pointed at him. Mary got down next to him.

"Come on kid, sit up for me."

He moaned in pain before he was pulled up. He sat up and looked at the teacher as she spoke to him. He couldn't hear her through. There was a ringing in his ears and his vision grew blurry and fuzz. It was like his eyes were TV static. He stared blankly at the floor. It was a long minute before he was able to see clearly. The ringing in his ears left him. He blinked at Kenny who was holding a water cup to his face.

"Hold on Jenny, I need to get a temperature," She moved Kenny aside and got to him. She took the temperature and looked at it.

"No fever. You can go to your next class when the bell rings!" She said with a smile. Cartman downed the water cup. Kenny trashed it and scampered off to get another one, feeling like a little nurse. 

Cartman's jaw dropped, "Are you shitting me right now?" 

She ignored him and walked off to another kid. Kenny came back with water and gave it to Cartman. "That's enough Kenny! Are you trying to waterboard me?" He whined and sipped the water.

"What's gotten into you?" Kyle asked.

Cartman thought for a moment and looked at the wall. He was still a little dazed. He looked back at Kyle with all the seriousness in the universe.

"Demons." 

[micah-has-fallen]

Day 16: Favorite dysautonomia-friendly activities/hobbies.

- I really enjoy crochet, and coloring, especially when watching a show or listening to an audiobook. Though depending on the day sometimes that much repetitive motion in the arms means I need to take breaks (that ppl are supposed to do anyways to prevent injury lol)

Day 17: Your go-to comfort show/movie during a flare

- Buckle in there’s a bunch.

Shows: She-Ra (2018), Avatar and the last Airbender, Arcane, Adventure Time, Hilda, Over The Garden Wall

Movies: Anything Ghibli, Children of the Sea, anything animated Disney, Kung Fu Panda, The Mitchell’s Vs the Machines

Day 18: Your support system

- My close friends, and my mom.