#myjointsgooutmorethanido

[qofu]

Post Anaesthesia Water Retention.....a piss take. Honestly sitting on a toilet unable to pee, is frustrating and something they didn't ever warn me about the first time and this time under anaesthesia. Oh lordy it's agony. And I had a laparoscopy and a hysterctopy(they went up my cervix to take a biopsy of my uterus, by basically cranking the cervix open a little) so, i can't even relax my pelvic floors to pee, I can't feel them or if I flex them it hurts. And my usual trick of gently pushing is no joy because my wounds go through that vital area that I need to push. I'd rather be catheterised or be peeing myself it's ouchie. Warning I make puns in my.hashtags . Prepare for that eye rolling emoji 😂 #Laparoscopy #anaesthesia #gynae #ehlersdanlossyndrome #atyourcervix #wombservice #ouchie #spoonieblog #INeedaWee #JustUterine #ovaryacting #ilovepuns #puns #myjointsgooutmorethanido #zebrastrong #EDS #StopInTheNameOfHealth #nhs #SaveOurNHS #PelvicFloorToTheLeft #urethrabekiddingme #fallopianonthefloorlaughing https://www.instagram.com/p/B19b4hYlFxj/?igshid=xketjedx8qml

[ravenquinzel]

When your finger decides that every single joint in it is just going to keep falling out. Honestly, my joints go out more than I do. And that was before the lockdown! . . . #hEDS #eds #chronicillness #ehlersdanlossyndrome #spoonie #chronicpain #hypermobility #invisibleillness #ehlersdanlos #butyoudontlooksick #hypermobileehlersdanlossyndrome #zebrastrong #chronicallyill #hypermobile #spoonielife #chronicillnesswarrior #edsawareness #ehlersdanlosawareness #zebra #hypermobileeds #hypermobileehlersdanlos #hypermobilejoints #hypermobilespectrumdisorder #hypermobileproblems #hypermobilejointsyndrome #hypermobilelife #hypermobilefingers #myjointsgooutmorethanido #myjointsgooutmorethanme #myjointspopoutmorethanido (at Bath, Somerset) https://www.instagram.com/p/B-uPixgjQKi/?igshid=7b89s2zi5dz6

[geneticallyclumsy]

So I'm wearing the greatest tee shirt ever today, featuring my brother in the background. #myface #selfie #cripplepunk #spoonie #ehlersdanlossyndrome #EDS #myjointsgooutmorethanido

[qofu]

@kurtc1989 - "Why are you lying like that?" Me- it's really comfy, why does it look weird?* Kurt - WELL YEAAAAH! 🤣 *(I wasn't formerly aware how fucking weird my lying or sitting positions were. And the ability to lotion my own back) 😎 I hope I'm not the only Zebra/EDS Person out there who finds this position ridiculously comfy sometimes. My hips kinda roll back I'm not sure really what they're doing. They hurt all the time with my lower spine, and legs. But yeah this felt more comfy than trying to stay straight and normal like a regular person. 😂😂 SO I TOOK A PHOTO, cos I have no idea how it looks. It's my normal. Okay I see why everyone keeps on about my "double jointed" and "creepy" cortionist lower half 😂 if anyone was ever creeped out by me, exes, friends who have come and gone and that are still here. I am so SORRY!!! I will probably keep doing it though. 😎🦓😂❤️🌈🤷🤦😉🦓😎😂🤣😊❤️🤦😙🤷 #ehlersdanlossyndrome #hypermobileEhlersDanlosSyndrome #hypermobility #Connectivetissuedisorder #StraightOuttaCollagen #creep #cortionist #flexiblejoints #flexible #gross #sorry #SorryNotSorry #myjointsgooutmorethanido #hips #subluxation

[qofu]

Okay I'm dying. I did 20 mins of treadmill walking fast paced, 5 x-trainer (still building back my knee ATM) weight training and bike for 20mins. Sweaty and stinky is understatement. #Sweat #MyAnytimeStory #EDSFitness #EDSAwarenessMonth2018 #InvisbleIllnessawarenessmonth #disabledwomen #DisabledFitness #MyJointsGoOutMoreThanIdo #FragileButUnbreakable #recovery #musclebuilding #itsnotinmyheaditsinmycollagen #connectivetissuedisorder #hypermobileehlersdanlossyndrome #imflexiandiknowit (at Anytime Fitness Canvey Island)

[qofu]

The reality of your life when your own mother buys you one of these. Am I that unwell? Or weak? #Zimmer #EhlersDanlosSyndrome #Fibromyalgia #fibrozebra #zebras #chronicillness #chronicpain #spoonie #selfcare #reality #disabled #disabledwomen #weakjoints #MenieresDisease #myjointsgooutmorethanido #fighter #warrior #inspiration #everydayifight #courage #pennycentavo