#invisbleillnessawarenessmonth

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🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓 Day 19 #EDSAwarenessMonth2018 #FragileButUnbreakable #EDSChallenge #MayForEDS 🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓 Have you experienced Ableism? Oh wow, simply....Yes. everything from "You don't look sick" to "you're too pretty to be disabled" or "that's unlucky" I had a very ableist partner who believed I was on too much meds, or manipulated using my illnesses are a tool to get out of plans. I've even be a victim of cyber crime by two men who allegedly knew more than me what a disability is. It's not funny, it hurts. Sometimes I can shake it off, sometimes it hits me, and sometimes I even cry. The only response is to keep going, rise above it. You have never got to explain yourself to people like this, that's entirely up to you if you want to. #butyoudontlooksick #ChronicIllness #InvisbleIllnessawarenessmonth #disabledwomen #disabilities #disability #straightouttacollagen #ableism

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From MCM Community, continued in comments. Hey hey hey I’m Fran, 18 and I suffer from severe myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome. Well I say suffer, I used to suffer, now I don’t - I live with it. Suffering is the wrong word for me. #InvisbleIllnessawarenessmonth #m.e #myalgicencephalomyelitis continued in comments.

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From the MCM Community "Hi all! I’m Tia I’m 22 and I have a few invisible illnesses, first of all I knew I was different all my life I didn’t fit in with anyone and that I just didn’t do things like other people my age did. It took till I was 18 to be diagnosed with ADHD after years of pushing and being turned down so they tried me with meds but something was off, it made me worse and I became very aggressive, violent and like a demon so I came off them straight away and yet again fought to be seen again. After a year I was diagnosed with Aspergers and also dyspraxia which makes me useless when it comes to motor skills and multi tasking so explains why I struggle with things and due to me being bullied as well all my life I was also diagnosed with anxiety and depression which thankfully I am mood stabilisers so they help a huge deal! One thing I noticed was I never had regular periods either (If you hate blood stop reading) I would be clear for months and months then suddenly it would be like a dam and that heavy flow would last for say a month and a half so I went to my gp which immediately sent me to the hospital for a scan and just my luck! I was diagnosed with Polycystic Ovary Syndrome a very severe case as my ovaries were covered in very large cysts and an ex partner at the time thought it was a STD and well dumped me for it (it’s a family passed down syndrome) so that made my depression worse so I was upped on my mood stabilisers and also was put on hormone treatment which have been a blessing! Thankfully now it’s sorted and I have my husband supporting me too! I still have my down days but everyday is a new day and I’m just happy it’s getting easier 🙂" #InvisbleIllnessawarenessmonth #adhd #PCOS #MCMComicCon

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From the MCM Community "I’m Helen. I’m 26 and I have a chronic stomach condition (currently unnamed as my doctors are still trying to figure it out), Restless Legs Syndrome and anxiety disorder. Diagnosed with anxiety at 16, my stomach issue at 22. My hobbies are streaming on Twitch & cosplaying! I often can’t get out of the house, and always need to have someone with me to make sure I don’t pass out/freak out. I have managed small local conventions but it’s been tough. I still don’t let it hold me back, though- I may be terrified of going outside, but in cosplay I feel like I can be someone I’m not and use it to push through. I also always have to carry Gavisvon on me for the reflux side of my stomach issues (get them on prescription which I didn’t even know you could do lol). Photo credit to Outbreak Photography" #Restlesslegssyndrome #InvisbleIllnessawarenessmonth #Anxiety #Twitch #Cosplayer #MCMComicCon

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"I’m Abi and I have hyper mobility syndrome meaning my joints are in constant pain 🙂" 🦓♥️ #EDSAwarenessMonth2018 #FragileButUnbreakable #MayForEDS #InvisbleIllnessawarenessmonth #hypermobilitysyndrome #HMS

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#Repost #ReGram from 2016 - 2 years ago today. Pre-diagnosis. #InvisbleIllnessawarenessmonth ♥️Good day to all. My name is Pen and I have lived with chronic pain nearly all my 20s I'm now 29. Yep it sucks. I have been thinking about how governments around the world have decided to call pain patients addicts because we merely depend on painkillers to live out a slightly less painful life. My new gp cut mine in half after accusing me of being a drug addict. It's been war trying to get them to change their mind. Believe me I'd rather not have any of the 3 page prescription script that I take every day. For various reasons. I suffer with menieres disease and vestibular migraines aswell and depression often comes to visit with his friend anxiety. Not to mention ptsd. He's a bugger. So I thought I'd make a toast to all the chronic pain sufferers in the world which contains effervescent co-codamol (or acetaminophen with codeine), which I need to take nearly every day in order to be able to get up and take a shower or walk my dog, or even pick up this damn phone so I can post you this message. Spoonies and everyone who suffers with a chronic illness are warriors, we have been given so much abuse from general public the media and now our very own governments because of something we never asked for. We still fight daily to smile and tell our loved ones not to worry, summon the strength to make one more step, while these assholes binge on alcohol or well I'm sure some have cocaïne because weed isn't classy enough, and cigars which u chose because oh you had a hard day running the country. #patientsnotaddicts #butyoudontlooksick #throwback

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A post shared by Pen Centavo (@curlsandspoons)

Post Gym - Der eh Der Dead! My body is screaming at me now. 😫 I lost track of time watching iZombie and enjoying my music. I just got super in the zone. I'm no runner but that's the most cardio in one gym session I've ever done in my life period. It really helps that the gym have Netflix, I don't like using my phone really so it's a godsend to encourage me to use it. I deliberately don't watch certain shows at home so I can use them for cardio. I'm really proud of my work today but I am in absolute agony 😶. And I'm super busy this weekend, and may slip in another session tomorrow if I fancy it. I wanna get strong and I'm going to try my hardest. I can deal with being sick, and chronically ill, disabled and what not, but I can't cope being so weak. I'm not going to be an athlete, I'm 31, I'm not going to be in the Olympics or maybe even Paralympics but I dunno it's bugging me. #EDSAwarenessMonth2018 #FibromyalgiaAwarenessMonth #ehlersdanlossyndrome #Fibromyalgia #chronicpain #chronicpainwarrior #Chronicillness #InvisbleIllnessawarenessmonth #postgymselfie #Gains #VeganGains #Beyourbestself #fightingformylife

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Okay I'm dying. I did 20 mins of treadmill walking fast paced, 5 x-trainer (still building back my knee ATM) weight training and bike for 20mins. Sweaty and stinky is understatement. #Sweat #MyAnytimeStory #EDSFitness #EDSAwarenessMonth2018 #InvisbleIllnessawarenessmonth #disabledwomen #DisabledFitness #MyJointsGoOutMoreThanIdo #FragileButUnbreakable #recovery #musclebuilding #itsnotinmyheaditsinmycollagen #connectivetissuedisorder #hypermobileehlersdanlossyndrome #imflexiandiknowit (at Anytime Fitness Canvey Island)

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🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓 🦓♥️🦓Incoming Zebra Post!!!♥️🦓♥️ Meet Tayler, another friend of mine from the Zebra Dazzle. 🦓♥️🦓♥️🦓♥️🦓♥️🦓♥️🦓♥️🦓♥️ Hi! My name is Tayler. I'm 19 and I battle Ehlers Danlos Syndrome, POTS/Dysautonomia, Interstitial Cystitis, complex PTSD, anxiety and depression. I also suffer severe GI problems, neurological symptoms and several other various problems we don't yet have answers for. I left college in my second year because I couldn't physically continue, and I can't work any longer. My health deteriorated very quickly in the span of the past summer, forcing me to find answers. I was diagnosed with Cystitis -prior to that in 2016, then POTS last fall, then EDS shortly after. My mental health suffers due to childhood abuse and neglect, but I've been able to grow and heal so much over the last year and I'm doing better with it. My days are mostly infusing, resting, helping my grandma at her home daycare where I live, and crafting. I hope to start an online store for chronic illness gear, unique ideas I've never seen made and more. My grandmother and my boyfriend have carried me and inspired me to keep going. Without them (and my pup, Summer, too 💕 ) I'm not sure I would have ever had the means or strength to address my health. Maybe one day I can tackle college again and become a veterinarian, my dream career, or open a shop for my crafting passion 🐶🎨 ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ #EDSAwarenessMonth2018 #MayForEDS #FragileButUnbreakable #Zebras #POTS #dysautonomia #interstitialcystitis #complexptsd #Anxiety #Depression #WorldMentalHealthWeek #InvisbleIllnessawarenessmonth #ChronicIllness #invisibleillness

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Thanks @taylers.danlos.syndrome for sharing this earlier. It's definitely a better scale. Nabbing this for a printable. Feel free everyone to share, or print. #EDSAwarenessMonth2018 #MayForEDS #FragileButUnbreakable #Fibromyalgia #FibromyalgiaAwarenessMonth #ChronicPain #InvisbleIllnessawarenessmonth #SpoonieLife #SpoonieBlog

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From the MCM Community "I have panic attacks, anxiety, social anxiety and depression. I also have to be careful in some weather conditions as I have muscular damage to the back of my back including shoulders" #PanicAttacks #Anxiety #Social #Depression #InvisbleIllnessawarenessmonth #MCMComicCon

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From the MCM Community Hashimoto's disease here. It's an autoimmune condition that affects energy levels, metabolism, pain receptors, cognition and other cosmetic traits like hair growth etc. There are days where I struggle to concentrate, stay awake, having sharp shooting pains or debilitating stomach issues but you learn to live with it and adapt. I refuse to let it spoil my hobby and I refuse to let it get me down :). #hashimotos #autoimmunecondition #InvisbleIllnessawarenessmonth #MCMComicCon

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From the MCM Community 21, I suffer with crippling anxiety and depression and restless body syndrom. There’s not a single day where I don’t think about suicide, 99% of the time I struggle to even get out of bed. I eat to feel happy which has obviously caused increased weight gain, it’s an endless cycle of hating myself and eating. #Anxiety #InvisbleIllnessawarenessmonth #Depression #MCMComicCon

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From the MCM Community "BPD here. I never know how I’m going to feel one moment to the next in any situation. Every day I struggle to get out of bed and this is the first time he gone public with it. I have to nap every day because social interactions really tire me out and sleep is really my only escape from it. My mood can go super high to super low really really quickly, I’ll be completely ok, to extremely cheery to a wreck in seconds." #BorderlinePersonalityDisorder #InvisbleIllnessawarenessmonth #MCMComicCon

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From the MCM Community I've been in severe pain for much of my life. Undiagnosed Coeliac until I was 40. Suffered arthralgia increasingly as I got older until I was under the chronic pain clinic as painkillers did not touch it. I was diagnosed with fibromyalgia as well. I have osteoporosis from the lack of calcium and vitamin D. I also have chronic arthritis in virtually all my joints resulting in having to walk aided by a crutch. The visible symptom! :( I sympathise with everyone in here. The constant pain 24/7 is something which wears you down physically and mentally every single day of your life. I see why people want to just stop. But the alternative to living with the pain is not an acceptable alternative for me, at the moment! Hope everyone here gets some relief and peace sometimes! X Oops! Almost forgot about the hobbies! :) I run a Wargames club, yeah playing with toy soldiers into my 60's, I'll never grow up, lol. I am also an amateur photographer mainly taking pictures of Cosplayers at Comicons! #Cosplayer #Photography #Coeliac #Arthralgia #Fibromyalgia #chronicpain #InvisbleIllnessawarenessmonth

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From the MCM Community "Hi, I'm kerri, I was diagnosed with fibromalgia and M.E 2 years ago after I had a accident. I suffer also from non epileptic seizures. They are still investigating if I might have MS but I am singer for a hobby and my job too. I sing often at mcm and other cons as guest. And the biggest challenge is sewing and making costumes it takes alot of energy and time. But when I make its through and see what I've made I am very proud. I'll be doing my biggest project for mcm may. Jenny lind from the greatest showman with 10,000 rhinestones" #Fibromyalgia #myalgicencephalomyelitis #M.E #Sewing #InvisbleIllnessawarenessmonth #FibromyalgiaAwarenessMonth #costumemaker #MCMComicCon