#mrkh

[interactyouth]

As the current administrator of this blog, I'm a man with MRKH, and here's some of my experiences with it! I look forward to discussing more of them in the future! <3

[redwolf17]

when you said that you found out about having mkrh (sorry if i got that wrong) at 19 made rereading arya hit differently because i was personally under the impression that this was something your parents found out when you were very little so its something you've always known. unlike arya who didn't have any reason to think something was up. i hope you got a lot of support and love during this time.

thanks 💕

Even though I always wanted kids, I had refused to really think too hard about what my lack of period meant. The OB-Gyn I saw at 17 just did a cursory exam and said I was a late bloomer 🙄 When I saw a different OB-Gyn at 19 (one who was much better at his job and who had major Mr Rogers energy), he promptly, gently told me I didn't have a uterus.

My family were baffled/surprised but did their best to be supportive. It was still a really rough summer though, especially because I often babysat my three young nieces and nephews ☹️ I think I had to babysit the same day I found out, or very soon after, and I remember cuddling my 2 year old nephew while sobbing, much to his confusion.

But unlike me, Arya doesn't want kids, so she got a mixed blessing rather than a massive obstacle/inconvenience.

[intersexbliss]

Like, I met a bunch of teenagers with MRKH a decade ago when I was 15, and none of them were like me.

I didn’t even fit in with people that were SUPPOSED to be like me!

I was the only one there whose parents and doctors had known since birth.

I was the only one with unilateral, profound deafness.

I was the only one with unilateral renal agenesis.

I’ve since learned of the existence of two people with MRKH who are deaf and missing a kidney, so that’s been amazing, but… for so, so long, I truly didn’t know anyone like me.

[intersex-support]

Just out of curiosity's sake... I was diagnosed with vaginal agenesis in 2016, and up until 2018 (when I got a hysterectomy), I had a uterus. But I had/have heart defects and spinal malformations. Would MRKH be accurate?

Hi! I did a bit of research and it looks MRKH is one of the things that can cause vaginal agenesis, but is not the only cause of vaginal agenesis. MRKH is caused by the Mullerian ducts not developing typically, and can have different effects on the development of the uterus.

So basically, that's something you'd probably need to talk to a doctor about to get more clarification on what your diagnosis of vaginal agenesis means for you, but MRKH is very often associated with vaginal agenesis.

[nezoid]

"Fitting In" Q&A with Maddie Ziegler and Molly McGlynn at Laemmle NoHo 7 - 02/03/24

[digitalfishwish]

I was going to see a surgeon called Dr. Keith in NJ for a vaginoplasty (I am transmasc afab w mrkh), and he was insistent on me losing weight because “anesthesia wouldn’t clear me” and his robotic tools “weren’t long enough to go through my stomach”.

I suffered through weight loss drugs for half a year, mourning my lack of appetite. But apparently I wasn’t trying hard enough anyway because when I tried to schedule the surgery, they told me I had to be at the target weight before they would pick a date, which meant getting the surgery done this summer (the only time I could feasibly do it due to future plans) was going to be impossible, as he said he was already booked up for the summer.

I gave into despair. I was miserably depressed. And then my mom suggested I get in touch with this specialist, Dr. Pfeifer in NYC, who I originally saw when I was diagnosed with MRKH as a teen. My first meeting with her, she said not only do I not have to lose weight, but she could do the surgery this summer. (She also said the robotics were unnecessary)

Friends, I’m currently posting from my hospital bed at the end of a week’s stay from my vaginoplasty. Don’t let fatphobic doctors lie to your face about what they can or can’t do.

if you get top surgery do they leave the milk glands in?

also why do you have to lose weight to get phalloplasty?

hi anon,

top surgery removes the majority of breast tissue, including the mammary glands. after top surgery are not able to produce milk.

and fatphobia, mostly.

[dyivf01]

国内顶尖三代试管代孕机构V：JPSGBB

提供辅助生殖方面的项目，包括：三代试管，二代试管，代孕，供卵，洗精

HIV梅毒患者可以通过洗精技术后做试管拥有健康后代

三代试管可选性别，包生男孩生女孩

卵巢功能衰退、MRKH综合征人群可试管代孕获得宝宝

帮助有生育需求的人或家庭圆梦生子，如夫妻助孕、同性求子、单身带娃

[yardfile]

A female friend born with internal testes once told me, “I guess I’m technically intersex, but I don’t care or call myself that. I’m just a cisgender woman who has testes.” This just goes to show that ideas about who falls into “intersex” vary widely. Perhaps the real question is not “who counts as intersex” but: how can we all be free from harmful expectations on our bodies, and what kind of community do we need to build to achieve that world? - Maddie Rose

[redwolf17]

When you didn't realize they'd put your snarky comment into your official patient notes 😭

[digitalfishwish]

(sorry for the double reblog, I posted to the wrong blog)

Just tacking this on, hope you don’t mind Spider: anon, even binarizing these surgeries is rough, esp. on intersex people. I’m afab nonbinary transmasc, but I was born with MRKH, which meant (for my case) that I was born without a uterus or vagina. I am currently seeing a doctor in the pursuit of getting a vaginoplasty, which boy is it hard to find people who can or even will do this surgery on afabs because it’s so ‘uncommon’.

The doctor who did my top surgery put me on a two year waitlist, then invited me to an info session where, when I asked, afab vaginoplasty would not be covered, and to message her afterward. Upon messaging, I was then informed that my old doctor didn’t even do vaginoplasties for afabs. Imagine if I had waited 2-3 years for that appointment only to find that out.

So yeah, when you binarize any medical procedure, you invariably leave people out. Vaginoplasty can be for any sex.

hi, we're a bit confused by

"The first vaginoplasty in Berlin was '31; the same patient had an oophorectomy in '26. That's what those dots are referring to. :)"

surely a vaginoplasty is a trans fem op and oophorectomy (ovaries yeet) is a trans masc op? or are we missing something here? did you maybe mean orchiectomy?

I meant orchiectomy and was extremely tired; I'd been awake for a long time bc I turned in deadline work this morning. Thank you for correcting me!

[weshallc]

BBC UK Race Across the World finale.

I liked all the couples this year and appreciate all their unique challenges and congratulations to whoever wins.

However, the brother and sister team of Betty and James won so many hearts.

[thesnakeandthemoon]

Fitting in (2023)

dir. by Molly McGlean

[digitalfishwish]

cw: tmi?

Call me “bad trans rep” the way I’m a white afab bisexual transmasculine enby with short blue hair and pronouns, top surgery and all, only to now be getting vaginoplasty so I can finally have PiV sex lol

I’m out here experiencing shrimp genders previously unknown to man, get on my level gatekeepers lmaooo

[jonathanmoya1955]

Fitting In: All the Missing Female Pieces

MOVIE INFO VIA ROTTEN TOMATOES: A coming-of-age “traumedy” that follows 16-year-old Lindy (Maddie Ziegler) who is unexpectedly diagnosed with a reproductive condition, MRKH syndrome. The diagnosis upends her plans to have sex, her presumptions about womanhood and sexuality, her relationship with her mother (Emily Hampshire), and most importantly, herself. REVIEW: Elevation Pictures Fitting In…

[randomrichards]

FITTING IN:

Teen has a crisis

Has MRKH Syndrome

Learning to adapt

[batmanisagatewaydrug]

Hey sex witch! Thanks for all you do.

I've got a fun little "bodies are weird" info dump that I hope you will deem worthy of sharing. I figured it might be reassuring for some of your trans followers, but mostly I wanna help normalize that yeah, reproductive organs are actually kinda wild and don't always match what you'd expect from basic sex ed and also NOT ALL WOMEN MENSTRUATE STOP ACTING LIKE A WOMB IS 🌺THE MAGICAL ESSENCE OF WOMANHOOD UWU 🌺

So, there's this condition called MRKH. It's a birth defect that affects roughly 1 in 5,000 baby girls (And, as I only learned very recently, it apparently counts as intersex? 🏳️‍🌈)

Basically, MRKH is when the female reproductive system doesn't fully develop, leading to a wide variety of results. One or both ovaries could be missing. Or maybe there's ovaries but no uterus. Or uterus but no ovaries. Or a weird mix of the above. Another possibility is the cervix/vagina not developing, resulting a normal vulva that's only got a blind pocket in it 🤷‍♀️

I got the "no uterus outside, only a blind pocket outside" variety. I didn't get diagnosed until age 19 because the OB-GYN that I saw at age 17 shrugged off my lack of period as me just being a late bloomer. Probably because she didn't bother to do a cursory examination, not even after her nurse discovered that she could barely get more a Q-tip inside me 😑

Aaaanyway, upon diagnosis I was given the choice of either surgery or physical therapy if I wanted to be able to have penetrative sex (to his credit, my new gyno didn't present getting a vagina as mandatory/urgently necessary, just optional). I chose physical therapy, which meant that for every night for roughly a year I got to use the ✨build your own vagina kit✨ (heinous pink dilators that looked like crayons and smelled like a hospital)

It wasn't fun, but it was effective. Not a single one of my partners has ever known there was something different about my junk unless I specifically told them. So to anyone reading this who also has non-standard bits, remember, there are more of us than you think 💕 And to anyone reading this who does have standard bits, hey, the more you know! 🌈⭐️

god I love when people send in stuff like this :)