#medical community

[elekid]

TIME SENSITIVE POST $60 NEEDED FOR MEDS

Hi I literally just got out of the hospital and back home from trying to pick up my meds wit my new insurance, and surprise! the insurance I'm on doesn't cover one of my vital medications...seeing as its the weekend, therefore my case worker and basically everyone else isn't at work rn, I'm electing to use a coupon for this pickup only. >_> goodrx coupon for luvox puts it at $22.68, other meds im gonna guess will cost $4 each..lmk if u can find a cheaper coupon for walmart pharmacy I would rly appreciate it.

TLDR due to the mistakes of the US medical system, I am asking for help from strangers on the internet for $60 to cover the cost of my meds for this month + the overdraft fee on grim's acct.

paypal.me/furbyfridays <- pay grim

https://venmo.com/u/retrovirus666 <- pay me

i cannot handle any more workload, So I cannot offer commissions at this time. Anything you can spare $1 $2 $3 I Promise I will Be Equally Grateful. The pharmacy closes in 5 hrs.

[elekid]

Whenever I see posts like this wherein the focal point of the argument is people sharing personal experiences within like-minded individualist groups, i.e. lgbt+ people, freeks, geeks, all the unwanted- right? We Are Vulnerable Alone But Strong Together. Sometimes This produces a result, which, to put it bluntly- When We Weirdos congregate, sometimes we entirely miss the point. It's true! I have been sucked into or created this vortex many times. Like, I only read this cause it hooked me by being about medical malpractice/negligence- something i am waaaay too familiar with. See? It's not like, bad, but its strong. be careful.

Aaaaannnnd my black mom raised me, which meant any doctor/psych visits, she was there with me. Like, yeah? All this stuff happen to sooo many family and friends that it begins to blend together in my mind. I'm starting to wonder what the angle actually *is*- not to us, but to the medical professionals with the power of control over everyones health. Like...I am very mourning your pain and suffering but I mean with good will that you're missing the point. This is a misdirection of the core issues which create roadblocks to healthcare, and I bet my bottom dollar that many healthcare professionals at this point in the US know it too. They notice it works, to rattle you and push where you are soft. Baiting you at the angle they see as the chink in your armor. I have sooo often fallen for the bait, lost my composure in one way or another, and been preyed upon by the waiting vultures. The passive aggression is reaching new heights everyday.

I'm going to break some things about the healthcare system in america down for you.

Every healthcare worker is scrambling chatting going to conventions and conferences dinners clubs- the list goes on- all in order to share information about public healthcare. These are typically private events.

Talking to older disabled people can and will save your life. Talking to any other patients is a vital part of surviving. Why? See bullet point one. The enemy is already there.

You're absolutely not wrong about the privilege's of being clocked as a man in the healthcare system- if you are also clocked as white, able bodied enough that you can be useful, etc... I found out pretty quickly that being seen as a dude did not matter most often, and a lot of times has made things MUCH worse...

Lets say I have this friend who has been abused by the medical system since birth (forced reassignment surgery we all know.) Let's say that friend is a trans guy who passed even before going on T. He only sees women doctors, nurses, psych's, etc. It is not as though he has anything against the Misters-He simply has strict guidelines and boundaries about who he will and won't see. Last time I saw him, he said he wasn't feeling so bullied or scared.

PLEASE please pleaaase please don't forget covid please burn it into your heart that it was the opening of the floodgates of hell for disabled people. We don't work, we're not allowed to save more than like $1.5K, we often do not own nor drive our own vehicle..

TBQH in the eyes of the US Department of Health and Human Services, every disabled person is a sack of moldy potatoes taking up too much space and STINKING up the kitchen. Also, we cost the government a LOT of money. Covid was like mana from heaven! yaay yaaay look how many sick and useless people died wheee whoopee^___^!! <- every SSI employee

I think that sharing our stories and shit is really cool, and by no means stop! Let's play the quiet game now and learn...could read or watch a video or listen only...perhaps helpful places to start would be social graces, ANY history of the practice of medicine in the US, Libgen some reports right from the source, talk to the next patient you see while at the doctor!

Maybe less talky about me and more think and question about how we can still win? IDK abt yall but Im bored of going around in circles talking abt the same traumas we all went thru

The biggest male privilege I have so far encountered is going to the doctor.

I lived as a woman for 35 years. I have a lifetime of chronic health issues including chronic pain, chronic fatigue, respiratory issues, and neurodivergence (autistic + ADHD). There's so much wrong with my body and brain that I have never dared to make a single list of it to show a doctor because I was so sure I would be sent directly to a psychologist specializing in hypochondria (sorry, "anxiety") without getting a single test done.

And I was right. Anytime I ever tried to bring up even one of my health issues, every doctor's initial reaction was, at best, to look at me with doubt. A raised eyebrow. A seemingly casual, offhand question about whether I'd ever been diagnosed with an anxiety disorder. Even female doctors!

We're not talking about super rare symptoms here either. Joint pain. Chronic joint pain since I was about 19 years old. Back pain. Trouble breathing. Allergy-like reactions to things that aren't typically allergens. Headaches. Brain fog. Severe insomnia. Sensitivity to cold and heat.

There's a lot more going on than that, but those were the things I thought I might be able to at least get some acknowledgement of. Some tests, at least. But 90% of the time I was told to go home, rest, take a few days off work, take some benzos (which they'd throw at me without hesitation), just chill out a bit, you'll be fine. Anxiety can cause all kinds of odd symptoms.

Anyone female-presenting reading this is surely nodding along. Yup, that's just how doctors are.

Except...

I started transitioning about 2.5 years ago. At this point I have a beard, male pattern baldness, a deep voice, and a flat chest. All of my doctors know that I'm trans because I still haven't managed to get all the paperwork legally changed, but when they look at me, even if they knew me as female at first, they see a man.

I knew men didn't face the same hurdles when it came to health care, but I had no idea it was this different.

The last time I saw my GP (a man, fairly young, 30s or so), I mentioned chronic pain, and he was concerned to see that it wasn't represented in my file. Previous doctors hadn't even bothered to write it down. He pushed his next appointment back to spend nearly an hour with me going through my entire body while I described every type of chronic pain I had, how long I'd had it, what causes I was aware of. He asked me if I had any theories as to why I had so much pain and looked at me with concerned expectation, hoping I might have a starting point for him. He immediately drew up referrals for pain specialists (a profession I didn't even know existed till that moment) and physical therapy. He said depending on how it goes, he may need to help me get on some degree of disability assistance from the government, since I obviously shouldn't be trying to work full-time under these circumstances.

Never a glimmer of doubt in his eye. Never did he so much as mention the word "anxiety".

There's also my psychiatrist. He diagnosed me with ADHD last year (meeting me as a man from the start, though he knew I was trans). He never doubted my symptoms or medical history. He also took my pain and sleep issues seriously from the start and has been trying to help me find medications to help both those things while I go through the long process of seeing other specialists. I've had bad reactions to almost everything I've tried, because that's what always happens. Sometimes it seems like I'm allergic to the whole world.

And then, just a few days ago, the most shocking thing happened. I'd been wondering for a while if I might have a mast cell condition like MCAS, having read a lot of informative posts by @thebibliosphere which sounded a little too relatable. Another friend suggested it might explain some of my problems, so I decided to mention it to the psychiatrist, fully prepared to laugh it off. Yeah, a friend thinks I might have it, I'm not convinced though.

His response? That's an interesting theory. It would be difficult to test for especially in this country, but that's no reason not to try treatments and see if they are helpful. He adjusted his medication recommendations immediately based on this suggestion. He's researching an elimination diet to diagnose my food sensitivities.

I casually mentioned MCAS, something routinely dismissed by doctors with female patients, and he instantly took the possibility seriously.

That's it. I've reached peak male privilege. There is nothing else that could happen that could be more insane than that.

I literally keep having to hold myself back from apologizing or hedging or trying to frame my theories as someone else's idea lest I be dismissed as a hypochondriac. I told the doctor I'd like to make a big list of every health issue I have, diagnosed and undiagnosed, every theory I've been given or come up with myself, and every medication I've tried and my reactions to it - something I've never done because I knew for a fact no doctor would take me seriously if they saw such a list all at once. He said it was a good idea and could be very helpful.

Female-presenting people are of course not going to be surprised by any of this, but in my experience, male-presenting people often are. When you've never had a doctor scoff at you, laugh at you, literally say "I won't consider that possibility until you've been cleared by a psychologist" for the most mundane of health problems, it might be hard to imagine just how demoralizing it is. How scary it becomes going to the doctor. How you can internalize the idea that you're just imagining things, making a big deal out of nothing.

Now that I'm visibly a man, all of my doctors are suddenly very concerned about the fact that I've been simply living like this for nearly four decades with no help. And I know how many women will have to go their whole lives never getting that help simply because of sexism in the medical field.

If you know a doctor, show them this story. Even if they are female. Even if they consider themselves leftists and feminists and allies. Ask them to really, truly, deep down, consider whether they really treat their male and female patients the same. Suggest that the next time they hear a valid complaint from a male patient, imagine they were a woman and consider whether you'd take it seriously. The next time they hear a frivolous-sounding complaint from a female patient, imagine they were a man and consider whether it would sound more credible.

It's hard to unlearn these biases. But it simply has to be done. I've lived both sides of this issue. And every doctor insists they treat their male and female patients the same. But some of the doctors astonished that I didn't get better care in the past are the same doctors who dismissed me before.

I'm glad I'm getting the care I need, even if it is several decades late. And I'm angry that it took so long. And I'm furious that most female-presenting people will never have this chance.

[townpostin]

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By Robin Isely

[dunmeshistash]

Everyone should read perfect communication and wolves tell no lies by Ryoko Kui

[adhdandcomics]

"adhd is the easiest disability to have" “sure plenty of people have adhd but most people are faking” “people are abusing the resources that WE need so that’s why i can’t get my adderall!”

there has been an artificial shortage of all adhd medication for the past 4 years in the US. every investigation into this shortage has returned with the unequivocal result that simply nobody thinks we need it enough to solve the problem.

so they point fingers at the “faker” gaming the system to get adderall who “thinks” they have adhd or is “abusing stimulants to get ahead” for a problem that Our system MANUFACTURED.

so we would be at each others throats instead of realizing that our government and big pharma is to blame for all of this. because their First priority is to punish addicts and to punish folks with adhd and to punish anyone who relies on medication. over everything else. even over profit.

[bunnysnhi]

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[whump-in-the-closet]

weak in the knees for situations where a stoic whumpee allows someone to help them. they don't say a word of acceptance but they don't protest either. Too injured to say no and too tired to deny they need it. Just grudgingly letting a gentle hand guide them to a bed or to wrap a wound. Then a quiet, "thank you." in between sharp breathing as they try not to break down in front of someone else. Love love love shielded vulnerability