#livingwithRSD

[crpskills-blog]

RSDKILLS.COM - Living & Surviving The Most Painful Condition

Living with the MOST PAINFUL condition known to man!

RSD - REFLEX SYMPATHETIC DYSTROPHY READ MORE >>>

RSDKILLS.COM | RSDHOPE.NET | CRPSHOPE.NET

RSD aka CRPS{Chronic Regional Pain Syndrome} aka Causalgia {RSD TYPE II} is one those diagnosis that you hope to never…EVER hear from your doctor.  What you think you know about pain {physical} will change forever. If you’re a religious person I can almost guarantee you that your faith will be tested. If you’re an atheist – you’d most likely start believing in GOD. If you don’t believe in anything -= you’ll count the days till you die or, in most cases, end up killing yourself.  YES – the pain is that bad! This condition’s has been nicknamed the “suicide disease” for an obvious reason. Mentally Healthy people don’t try to kill themselves for fun. It’s that bad where Death can seem like the ONLY choice. RSDKILLS.COM is here to Educate, SPREAD AWARENESS,tell my story and even yours! All factual information will be sourced so you can verify.  In the event of my demise I would like this website to live on along with my legacy. This website contains raw material of suffering and pain that you've most likely never seen or heard before BUT it also shows you that there is hope...maybe not a cure but at least to make people aware, make them know what we go through and hopefully we can inspire some positive change.  

RSD/CRPS FACT SHEET

WHAT IS RSD/CRPS? Reflex sympathetic dystrophy syndrome (RSD) is a disorder that causes lasting pain, usually in an arm or leg, and it shows up after an injury, stroke, or even heart attack. But the severity of pain is typically worse than the original injury itself. Doctors don’t know exactly what causes it, but they are able to treat many cases. The term reflex sympathetic dystrophy syndrome is actually not a name that doctors use anymore. It’s an older term used to describe one form of Complex Regional Pain Syndrome (CRPS). RSD is sometimes called Type I CRPS, and it’s caused by injury to tissue with no related nerve damage. READ MORE >>>

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Hitting a 10 on the pain scale

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[rsdhope]

This goes for pretty much everything. Denial is ok in very small amounts but not to make an entire fiction out of the truth. On another note : Wishing everyone a happy and pain free day (at least managed) #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net https://www.instagram.com/p/CMmu9zXjFll/?igshid=15z2gmzvvtaf8

[crpskills-blog]

Hitting a 10 on the pain scale

This is another dictation meaning I'm not typing this I'm simply reciting it and my device is doing the typing for me. This is great if you are like me and only have one available hand to use. I know most keyboards and devices have things like swipe, autocorrect, and predictive type analysis. However, I find them to be quite annoying and the learning curve for the program is also a pain in the rear end. Let me clarify: I don't mean the time it takes from me to learn how to use the program I mean the time it takes the program to learn and adapt to my voice etc etc etc. How to keep pushing forward. I wish I could tell you that it's easy, I wish I could say just tough it out, be strong, have a strong will, have a great family, have wonderful friends.... While those are nice things to have when it comes down to it and it really really hurts.. I'm talking about a 10 on the Pain Scale( the normal one that everyone uses) or 50 on the McGill scale (I know rsd's not rated 50 but trying to make a point) you would be in the fetal position or whatever position crying and screaming in pain. If you're lucky your house or room would have enough isolation so that no one can hear your screams. You can reach for your medication, don't follow what your doctor tell you and go ahead and take some more... The only thing that's going to come out of this is nothing. You'll get no relief and you'll short yourself medication that you will need for the rest of the month. The fact of the matter is most people with RSD/CRPS that's up to stage two or three will be on some sort of medication. Even if you're not at a stage 2 or 3 you will need medication to get through the day. I digress...

So, there you are laying on the floor screaming wanting to paint stop, asking God for help, asking guardian Angel to come help you, taking extra medication, doing whatever you can to try to make it stop - but guess what? It doesn't. The next logical step would be go to emergency room right? Good luck with that. In my experience as soon as you go to the emergency room for pain and when you tell them you already been diagnosed with chronic regional pain syndrome, or RSD.. First off, they'll be completely stumped. They have no idea what you're talkin about, even be attending physician who you'll meet eventually. I remember once going to mayo Clinic. The pain was intolerable.. So I thought I'd give mayo another shot. Do you know what the physician told me? He walked into the room, had no idea what chronic regional pain syndrome is or if you want to use RSD that's fine too.. Point is he knew nothing about it yet he was extremely dismissive of my current condition and the fact that I needed help. Keep in mind I've been going through this for 10 years so I know when I go to the emergency room or to see any doctor. I had my entire medical history, all MRI, excetera excetera excetera. I even brought all my medication with me he can count the pills to see and to show him that I'm not abusing or misusing my medication. I simply just needed help. This moron told me, I had brain surgery and I'm back at work. If I can handle that you can handle this and then gave me my discharge papers. Man.... This was not my only negative experience with the famous Mayo Clinic. So, what now? Endurance After what you read so far does it come as a surprise that RSD /CRPS is nickname the suicide disease. I mean, if you can somehow imagine... The fact that matters most people can't because either they haven't experienced real suffering or seen someone they love suffer, thus making them incapable of empathy or sympathy towards anyone going through anything like this. The first time you hit an actual 10 pain Scale and I'm not talkin about a stupid migraine or your menstrual cycle pain... I'm talking about suffering, man. Tired of explaining it, tired of trying to get people to understand... Just tired. Please don't try to compare what you're going through or f****** menstrual cycle 2 what I'm trying so explain here... I digress. To endure this kind of suffering, which really is inhumane, takes a lot of strength. So, please do not think for one second that any of this makes me weak, less than, a coward, or any other ridiculous sayings or phrases that comes to mind. To endure means you have to take your regular dosage of medication and literally endure this flare up until it's over. God won't help you, crying won't help you, your family can't help you... Literally nothing can help you. If I'm going to be completely honest the only place that can help you if you get to this level is a Hospital. As I mentioned earlier most hospitals will eradicate you, give you some bulshit reason and dismiss you without any sympathy, empathy or compassion. All of this all of this is dewpider ignorance and simple let's call it misunderstanding of what your condition really can do to you and how painful it really is. (pain is not the word, agony is contiguous but not quite there... I'm digressing again. When I lived in New York I was lucky to find a hospital to help in situations like these. It goes without saying you obviously need insurance. I will not name the hospital because people, generally, have a tendency to abuse things. After they've helped me so many times, I will not send possible Junkies to that Hospital. It will be a task, a very difficult one at that, to find that solitude. As I said before, endure. " adapt, overcome, achieve" If you are going to go to emergency room or see a new doctor please review our page on this matter. In the header navigation and once it's been added it should automatically link you to that section, it will help. Read the full article

[crpskills-blog]

Hitting a 10 on the pain scale

This is another dictation meaning I'm not typing this I'm simply reciting it and my device is doing the typing for me. This is great if you are like me and only have one available hand to use. I know most keyboards and devices have things like swipe, autocorrect, and predictive type analysis. However, I find them to be quite annoying and the learning curve for the program is also a pain in the rear end. Let me clarify: I don't mean the time it takes from me to learn how to use the program I mean the time it takes the program to learn and adapt to my voice etc etc etc. How to keep pushing forward. I wish I could tell you that it's easy, I wish I could say just tough it out, be strong, have a strong will, have a great family, have wonderful friends.... While those are nice things to have when it comes down to it and it really really hurts.. I'm talking about a 10 on the Pain Scale( the normal one that everyone uses) or 50 on the McGill scale (I know rsd's not rated 50 but trying to make a point) you would be in the fetal position or whatever position crying and screaming in pain. If you're lucky your house or room would have enough isolation so that no one can hear your screams. You can reach for your medication, don't follow what your doctor tell you and go ahead and take some more... The only thing that's going to come out of this is nothing. You'll get no relief and you'll short yourself medication that you will need for the rest of the month. The fact of the matter is most people with RSD/CRPS that's up to stage two or three will be on some sort of medication. Even if you're not at a stage 2 or 3 you will need medication to get through the day. I digress...

So, there you are laying on the floor screaming wanting to paint stop, asking God for help, asking guardian Angel to come help you, taking extra medication, doing whatever you can to try to make it stop - but guess what? It doesn't. The next logical step would be go to emergency room right? Good luck with that. In my experience as soon as you go to the emergency room for pain and when you tell them you already been diagnosed with chronic regional pain syndrome, or RSD.. First off, they'll be completely stumped. They have no idea what you're talkin about, even be attending physician who you'll meet eventually. I remember once going to mayo Clinic. The pain was intolerable.. So I thought I'd give mayo another shot. Do you know what the physician told me? He walked into the room, had no idea what chronic regional pain syndrome is or if you want to use RSD that's fine too.. Point is he knew nothing about it yet he was extremely dismissive of my current condition and the fact that I needed help. Keep in mind I've been going through this for 10 years so I know when I go to the emergency room or to see any doctor. I had my entire medical history, all MRI, excetera excetera excetera. I even brought all my medication with me he can count the pills to see and to show him that I'm not abusing or misusing my medication. I simply just needed help. This moron told me, I had brain surgery and I'm back at work. If I can handle that you can handle this and then gave me my discharge papers. Man.... This was not my only negative experience with the famous Mayo Clinic. So, what now? Endurance After what you read so far does it come as a surprise that RSD /CRPS is nickname the suicide disease. I mean, if you can somehow imagine... The fact that matters most people can't because either they haven't experienced real suffering or seen someone they love suffer, thus making them incapable of empathy or sympathy towards anyone going through anything like this. The first time you hit an actual 10 pain Scale and I'm not talkin about a stupid migraine or your menstrual cycle pain... I'm talking about suffering, man. Tired of explaining it, tired of trying to get people to understand... Just tired. Please don't try to compare what you're going through or f****** menstrual cycle 2 what I'm trying so explain here... I digress. To endure this kind of suffering, which really is inhumane, takes a lot of strength. So, please do not think for one second that any of this makes me weak, less than, a coward, or any other ridiculous sayings or phrases that comes to mind. To endure means you have to take your regular dosage of medication and literally endure this flare up until it's over. God won't help you, crying won't help you, your family can't help you... Literally nothing can help you. If I'm going to be completely honest the only place that can help you if you get to this level is a Hospital. As I mentioned earlier most hospitals will eradicate you, give you some bulshit reason and dismiss you without any sympathy, empathy or compassion. All of this all of this is dewpider ignorance and simple let's call it misunderstanding of what your condition really can do to you and how painful it really is. (pain is not the word, agony is contiguous but not quite there... I'm digressing again. When I lived in New York I was lucky to find a hospital to help in situations like these. It goes without saying you obviously need insurance. I will not name the hospital because people, generally, have a tendency to abuse things. After they've helped me so many times, I will not send possible Junkies to that Hospital. It will be a task, a very difficult one at that, to find that solitude. As I said before, endure. " adapt, overcome, achieve" If you are going to go to emergency room or see a new doctor please review our page on this matter. In the header navigation and once it's been added it should automatically link you to that section, it will help. Read the full article

[crpskills-blog]

Hitting a 10 on the pain scale

This is another dictation meaning I'm not typing this I'm simply reciting it and my device is doing the typing for me. This is great if you are like me and only have one available hand to use. I know most keyboards and devices have things like swipe, autocorrect, and predictive type analysis. However, I find them to be quite annoying and the learning curve for the program is also a pain in the rear end. Let me clarify: I don't mean the time it takes from me to learn how to use the program I mean the time it takes the program to learn and adapt to my voice etc etc etc. How to keep pushing forward. I wish I could tell you that it's easy, I wish I could say just tough it out, be strong, have a strong will, have a great family, have wonderful friends.... While those are nice things to have when it comes down to it and it really really hurts.. I'm talking about a 10 on the Pain Scale( the normal one that everyone uses) or 50 on the McGill scale (I know rsd's not rated 50 but trying to make a point) you would be in the fetal position or whatever position crying and screaming in pain. If you're lucky your house or room would have enough isolation so that no one can hear your screams. You can reach for your medication, don't follow what your doctor tell you and go ahead and take some more... The only thing that's going to come out of this is nothing. You'll get no relief and you'll short yourself medication that you will need for the rest of the month. The fact of the matter is most people with RSD/CRPS that's up to stage two or three will be on some sort of medication. Even if you're not at a stage 2 or 3 you will need medication to get through the day. I digress...

So, there you are laying on the floor screaming wanting to paint stop, asking God for help, asking guardian Angel to come help you, taking extra medication, doing whatever you can to try to make it stop - but guess what? It doesn't. The next logical step would be go to emergency room right? Good luck with that. In my experience as soon as you go to the emergency room for pain and when you tell them you already been diagnosed with chronic regional pain syndrome, or RSD.. First off, they'll be completely stumped. They have no idea what you're talkin about, even be attending physician who you'll meet eventually. I remember once going to mayo Clinic. The pain was intolerable.. So I thought I'd give mayo another shot. Do you know what the physician told me? He walked into the room, had no idea what chronic regional pain syndrome is or if you want to use RSD that's fine too.. Point is he knew nothing about it yet he was extremely dismissive of my current condition and the fact that I needed help. Keep in mind I've been going through this for 10 years so I know when I go to the emergency room or to see any doctor. I had my entire medical history, all MRI, excetera excetera excetera. I even brought all my medication with me he can count the pills to see and to show him that I'm not abusing or misusing my medication. I simply just needed help. This moron told me, I had brain surgery and I'm back at work. If I can handle that you can handle this and then gave me my discharge papers. Man.... This was not my only negative experience with the famous Mayo Clinic. So, what now? Endurance After what you read so far does it come as a surprise that RSD /CRPS is nickname the suicide disease. I mean, if you can somehow imagine... The fact that matters most people can't because either they haven't experienced real suffering or seen someone they love suffer, thus making them incapable of empathy or sympathy towards anyone going through anything like this. The first time you hit an actual 10 pain Scale and I'm not talkin about a stupid migraine or your menstrual cycle pain... I'm talking about suffering, man. Tired of explaining it, tired of trying to get people to understand... Just tired. Please don't try to compare what you're going through or f****** menstrual cycle 2 what I'm trying so explain here... I digress. To endure this kind of suffering, which really is inhumane, takes a lot of strength. So, please do not think for one second that any of this makes me weak, less than, a coward, or any other ridiculous sayings or phrases that comes to mind. To endure means you have to take your regular dosage of medication and literally endure this flare up until it's over. God won't help you, crying won't help you, your family can't help you... Literally nothing can help you. If I'm going to be completely honest the only place that can help you if you get to this level is a Hospital. As I mentioned earlier most hospitals will eradicate you, give you some bulshit reason and dismiss you without any sympathy, empathy or compassion. All of this all of this is dewpider ignorance and simple let's call it misunderstanding of what your condition really can do to you and how painful it really is. (pain is not the word, agony is contiguous but not quite there... I'm digressing again. When I lived in New York I was lucky to find a hospital to help in situations like these. It goes without saying you obviously need insurance. I will not name the hospital because people, generally, have a tendency to abuse things. After they've helped me so many times, I will not send possible Junkies to that Hospital. It will be a task, a very difficult one at that, to find that solitude. As I said before, endure. " adapt, overcome, achieve" If you are going to go to emergency room or see a new doctor please review our page on this matter. In the header navigation and once it's been added it should automatically link you to that section, it will help. Read the full article

[crpskills-blog]

Hitting a 10 on the pain scale

This is another dictation meaning I'm not typing this I'm simply reciting it and my device is doing the typing for me. This is great if you are like me and only have one available hand to use. I know most keyboards and devices have things like swipe, autocorrect, and predictive type analysis. However, I find them to be quite annoying and the learning curve for the program is also a pain in the rear end. Let me clarify: I don't mean the time it takes from me to learn how to use the program I mean the time it takes the program to learn and adapt to my voice etc etc etc. How to keep pushing forward. I wish I could tell you that it's easy, I wish I could say just tough it out, be strong, have a strong will, have a great family, have wonderful friends.... While those are nice things to have when it comes down to it and it really really hurts.. I'm talking about a 10 on the Pain Scale( the normal one that everyone uses) or 50 on the McGill scale (I know rsd's not rated 50 but trying to make a point) you would be in the fetal position or whatever position crying and screaming in pain. If you're lucky your house or room would have enough isolation so that no one can hear your screams. You can reach for your medication, don't follow what your doctor tell you and go ahead and take some more... The only thing that's going to come out of this is nothing. You'll get no relief and you'll short yourself medication that you will need for the rest of the month. The fact of the matter is most people with RSD/CRPS that's up to stage two or three will be on some sort of medication. Even if you're not at a stage 2 or 3 you will need medication to get through the day. I digress...

So, there you are laying on the floor screaming wanting to paint stop, asking God for help, asking guardian Angel to come help you, taking extra medication, doing whatever you can to try to make it stop - but guess what? It doesn't. The next logical step would be go to emergency room right? Good luck with that. In my experience as soon as you go to the emergency room for pain and when you tell them you already been diagnosed with chronic regional pain syndrome, or RSD.. First off, they'll be completely stumped. They have no idea what you're talkin about, even be attending physician who you'll meet eventually. I remember once going to mayo Clinic. The pain was intolerable.. So I thought I'd give mayo another shot. Do you know what the physician told me? He walked into the room, had no idea what chronic regional pain syndrome is or if you want to use RSD that's fine too.. Point is he knew nothing about it yet he was extremely dismissive of my current condition and the fact that I needed help. Keep in mind I've been going through this for 10 years so I know when I go to the emergency room or to see any doctor. I had my entire medical history, all MRI, excetera excetera excetera. I even brought all my medication with me he can count the pills to see and to show him that I'm not abusing or misusing my medication. I simply just needed help. This moron told me, I had brain surgery and I'm back at work. If I can handle that you can handle this and then gave me my discharge papers. Man.... This was not my only negative experience with the famous Mayo Clinic. So, what now? Endurance After what you read so far does it come as a surprise that RSD /CRPS is nickname the suicide disease. I mean, if you can somehow imagine... The fact that matters most people can't because either they haven't experienced real suffering or seen someone they love suffer, thus making them incapable of empathy or sympathy towards anyone going through anything like this. The first time you hit an actual 10 pain Scale and I'm not talkin about a stupid migraine or your menstrual cycle pain... I'm talking about suffering, man. Tired of explaining it, tired of trying to get people to understand... Just tired. Please don't try to compare what you're going through or f****** menstrual cycle 2 what I'm trying so explain here... I digress. To endure this kind of suffering, which really is inhumane, takes a lot of strength. So, please do not think for one second that any of this makes me weak, less than, a coward, or any other ridiculous sayings or phrases that comes to mind. To endure means you have to take your regular dosage of medication and literally endure this flare up until it's over. God won't help you, crying won't help you, your family can't help you... Literally nothing can help you. If I'm going to be completely honest the only place that can help you if you get to this level is a Hospital. As I mentioned earlier most hospitals will eradicate you, give you some bulshit reason and dismiss you without any sympathy, empathy or compassion. All of this all of this is dewpider ignorance and simple let's call it misunderstanding of what your condition really can do to you and how painful it really is. (pain is not the word, agony is contiguous but not quite there... I'm digressing again. When I lived in New York I was lucky to find a hospital to help in situations like these. It goes without saying you obviously need insurance. I will not name the hospital because people, generally, have a tendency to abuse things. After they've helped me so many times, I will not send possible Junkies to that Hospital. It will be a task, a very difficult one at that, to find that solitude. As I said before, endure. " adapt, overcome, achieve" If you are going to go to emergency room or see a new doctor please review our page on this matter. In the header navigation and once it's been added it should automatically link you to that section, it will help. Read the full article

[crpskills-blog]

Another Short Video showing you what RSD/CRPS feels like

THIS VIDEO IS ABOUT 8 SECONDS....PLEASE KEEP IN MIND THAT RSD/CRPS PATIENTS ARE SUFFERING LIKE THIS 24/X 365 DAYS OUT OF THE YEAR! WE DON'T GET A BREAK!!!!

  I had posted this on our Instagram page and didn't update it here....so for those who didn't see it, here's another look at never ending suffering. Read the full article

[crpskills-blog]

I'm tired of fighting - I'm not OK!

This is a personal post from my mobile device so please excuse any spelling or grammar errors. Here's are the facts I'm in pain all the time I don't have good days anymore .. Maybe good moments or hours It hurts beyond anything you can comprehend. Really please don't try to compare pain and suffering .. I don't want to go there My quality of life is so severely impacted I'm actually qualified for euthanasia I was pounced clinically dead 9 times .. Man  the last time I asked not to be resuscitated. For what it's worth if the decision was not overridden by my wife I wouldn't be writing this NO ONE UNDERSTANDS! EVEYONE who gets close to you has an anterior motive  They don't actually CARE! (at least most people) Makes it impossible to trust people It hurts all the TIME! It's NON STOP! There's no comfortable position Yes I've thought about suicide  I'd be lying to you if I didn't  And you would be a complete fucking idiot if you're suffering 24/x and someone gives you a gun or whatever to end it and you wouldn't  I'm not talking about suffering you've ever felt before. Yes pain is subjective but think for a second why is RSD / CRPS called : the most painful condition known to man. STOP ASKING IF I'M OKAY It's a fight every month at the pharmacy  This again you really won't understand and later on I'll probably wear a body cam to show what you go through Did I mention it hurts? It's past misery, it's past suffering,.... I read the goddam dictionary and I can't find the correct word to describe this I'm sorry I can't be motivational today. Let me clarify my thoughts about suicide  I'm suicidal because I'm in pain not because I just want to to die  I want the suffering to stop  I don't have the time or the patience to explain in some great metaphorical way ... Just know this : imagine having a headache that lasts forever  Would you reach for a bottle of aspirin? What if that doesn't work? What if the dopamine in your brain stops being produced at an acceptable level, meaning tydonol don't work anymore  Would you go to an opiate? If your answer is no... Then you really haven't felt pain or suffered for a prolonged period of time to even get a hint of how this feels like  RSD or CRPS is known as the suicide disease for a reason people.. You don't kill yourself over a headache, even a constant one   That's something I've said before  I'm 10 years in and still going  Today has just been a really really bad pain day. Suicide isn't the solution  If you are feeling that way please seek immediate professional help   Read the full article

[rsdhope]

So yeah...maybe it's a little 'haha' as in funny if you're sense of humor is a bit dark, like myself. Nevertheless, I do feel this way. Obviously I don't look like society's definition of a monster (at least for now. Lol) so what people see and what they DON'T see isn't that obvious. Anyways. Glad to be back on here and I look forward to reading and liking eveything I missed. I hope you have a pain free or at least managed pain day. #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net https://www.instagram.com/p/CMiMo3QDu8t/?igshid=1enwvvtogclxq

[rsdhope]

This scar... And you cant even see the whole thing. It's about 5.5inch long with an L shape, the L being about 4inches. There's a story here but I don't think picture does it justice. Bottom line ; This is when I KNEW I was going to live a life of pain and suffering with a degenerative condition that's currently (at the time of that surgery) not understood. I was given the worse case scenario because I normally ask that question and it turns out I'm currently living it! #frustrated #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #surgeryscar #prolife #fuckrsd #hope #scars https://www.instagram.com/p/CEkaYCIDIc4/?igshid=1ix1nc14pjq62

[rsdhope]

Excessive sweating is probably one of the symptoms people don't talk about as much....but it's really really messy and you start to look like you're under severe duress... So let's just say whrn this happens and I'm outside I excuse myself from whstrver I was doing just to go be alone and endure. This usually only comes on when a flare is happening. So not only is my tempermental at this stage, I now have to deal with wiping my face and when I get home shower... Thing is though even though you shower. You can come out and still have the problem! #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #sucide #prolife #fuckrsd #excessiveswesting #sweat https://www.instagram.com/p/CEen26iDicY/?igshid=182b7hhry4pne

[rsdhope]

Lol. I hope at least you got a good laugh. Funny thing is though, it's actually true. I mean.. I don't hsve a diagnosis and if so itd be linked to the trauma of my accident.. Anyways, I'm wishing everyone a pain free /managed pain / no flare day! #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #rsdhope https://www.instagram.com/p/CEb0yj-jC1o/?igshid=1hzftau0tbj6p

[rsdhope]

I knew this was coming since last night. See after a certain amount of time dealing with this bullshit you know when you're going to be knocked on your ass in pain. I've come to the conclusion that normal people can't phantom the idea of a, state of constant pain. I remrber when I wasn't in pain and my friends mother had M A and he told me she was in pain all the time.... Honestly, I couldn't think of it because I didn't hsve anything to compare it to. Pain at that point meant getting in a fight, etc..I'm not making excuses for ignorant people.... Just maybe an insight. #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #sucide #prolife #mmj #inflamation https://www.instagram.com/p/CESthxQjf_M/?igshid=bz3mg7xohbid

[rsdhope]

It's not just the mask, obviously, it's a perpetual anxiety that I hsve every single time I hsve to step outside! Can we please eradicate this virus and move onwards! #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #rsdhope #crpssupport #covid #coronavirus #covidsucks https://www.instagram.com/p/CEPEhRVDRhs/?igshid=1qmu662fy1pxr

[rsdhope]

U R APPRECIATED! All of you plus everyone that's been around. Thank you !! #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #sucide #hope #gratitude #thankful https://www.instagram.com/p/CDrT5EuHuje/?igshid=adc6hcfmygwx

[rsdhope]

#hope I had the mother of all flare ups for the last 2 and a half hours, limbs swollen from inflammation and the pain was intolerable. In times like that... It's hard to do what the words in the picture says but the thing is that's when you need to remrber then more than ever! Don't ever give up ya'll! We might not have a cure yet but we can help each other manage this... **a little bit of kindness goes a far way ** #rsd #crps #rsdkills #crpsawareness #crpswarrior #crpsstrong #crpstype2 #rsdkills.com #reflexsympatheticdystrophy #chronicregionalpainsyndrome #crpskills #CRPSSUFFERING #crpsfighter #chronicpain #chronicexhaustion #invisibleillness #fatigue #anxiety #ptsd #ptss #onehand #livingwithrsd #livingwithonehand #hypersensitivity #crpshope #crpshope.net #sucide #hope #hopeless #nohope #helpless #chronicallynumb https://www.instagram.com/p/CDZH_HmDiQK/?igshid=1k8ahghpqhnib