#like aren't they frozen people??? i forgot where exactly sadnesses come from but it could prolly make sense

[luifaro]

one thing i appreciate about the sadnesses is how they're so polite. like if i'm talking to my friends they'll just stand there and wait instead of continuing to chase me. i know this probably wasn't intentional and is just a side effect of cutscenes but it's still so funny bc today we were yapping and this sadness was behind us right. when we left the convo it just ran in the opposite direction instead of chasing so it looked like it wanted to join the conversation but got too scared and ran off instead...

anyways sadness ocs when!!!

EDIT: googled it and YEEAHH ODILE coming in clutch they're actually the remnants of people defeated by the king so yeah this idea actually makes sense (kind of)

[sanchoyo]

danny phantom, season 3, episodes 7-13 thoughts! cannot believe im finishing this series so fast. ...cannot believe it ended like that...uh. one of the weirdest finales to a show I think I've seen, it really stood out against the rest of the series, and not in a good way, in my opinion. I paused to yell in caps lock...several times, I think, out of anger... BUT. ANYWAY, HERE WE GO.

see prev episode thoughts in this tag <3

-the fentons putting the kids to Work in the lab, with NO SAFETY GEAR. AT ALL. THEY JUST GOT BACK FROM SCHOOL AND ARE TIRED!!! and when jack asked how danny his day was and danny tried to say it was bad jack cut him off :( for the 400th time, i am stealing these kids.

-maddie and jack IMMEDIATELY SELLING THEIR LAB AND WORK FOR A LOT OF MONEY. and danny cant get into the portal anymore, oh no!!! he could always just steal vlads I Guess.

-THEY ARE VLADS NEW NEIGHBOR. OH MY GOD. this is a sitcom format. a butler came with the new mansion. i would absolutely try a kiwi fudge milkshake, why is the butler disgusted.

-the..guys in white bought the lab to shoot a missile. into the ghost zone thru the portal. bro i hate these guys

-jazz straight up setting her new bedroom up in the library. i am very very jealous

-"RATED E, FOR ENTRAILS"

-I like how the 14 year olds very quickly realize if the giw destroy the ghost zone itll destroy OUR ZONE because its just. like. the other side of the quarter so to speak. and the giw, a fully funded government agency, didnt consider that...(or worse, are willing to risk that anyway...)

-a...graphic novel version of the constitution? what in the world have you been READING SAM

-'cool, I always wanted to be called a meddling kid!' scooby doo reference...

-can they keep the butler. I love him.

-ecto latte....I also want to try that. is ectoplasm edible...

-YESS I KNEW DANNY WOULD USE VLAD'S PORTAL. vindicated.

-DANNY WHY DIDNT YOU JUST ASK JOHNNY NICELY. STEALING HIS BIKE IS SO SO RUDE.

-youngblood is also into astronaut stuff, thats really cute. and him being like 'phantom, dude!! :D' ALL EXCITED. THATS ADORABLE.

-the slapstick comedy of the giw slipping and falling and running into shit in the lab. is funny, but also, because this lab has NOOO safety codes in practice. god its a wonder dannys the only one to have died here...

-JOHNNY, SKULKER AND YOUNGBLOOD HELPING DANNY!!! I keep saying it but the other ghosts helping him. is my fav thing in the world. and, it's a really good thing the missile in the real world was harmless...otherwise the fentons wouldn't have had a home/lab to come back to...

-WULF WANTED POSTER!!! we havent seen wulfy in so long :( very funny the box ghost is offended by how much these ghosts are wanted for. first off, what do ghosts even DO WITH MONEY. does the ghost zone have its own currency??? what are ghosts BUYING

-the box ghost is So Funny, im so glad hes still got his bubble wrap. u are VERY wanted in THIS house box ghost. you are SO scary king. dont give up on ur dreams

-this needs to be a meme format. I made a transparent version, very very messily, for future use.

-this is a Fellow and a Friend

-box ghost accidentally bringing lunch for everyone, and giving people at the mall free shoes. SHOES ARE SO EXPENSIVE, ID BE SO GRATEFUL. helpful king. i feel SO bad for him lmao, he's putting in SO much effort. he wants the evil aesthetic So bad but hes Just Too Silly. I understand your plight, box ghost....

-oh my god. pandoras BOX. 'THOSE OF US IN THE BOX TRADE' HOW MANY ARE IN THIS BOX TRADE. I WANT IN. pandora is a multi-armed ghost goddess and i love her.

-SKULKER WHY ARE YOU RUNNING FROM THE EVIL UNICORN?? YOURE A HUNTER!! JUST SHOOT IT!!!!!!! JUST HUNT IT!!!

-box ghost...where did you get the cowboy hat. I respect it, i just want to know

-JAZZ COMING IN WITH THE BAZOOKA TO FIGHT THE 10 HEADED DRAGON!!! YEAH!!!!!!!!!!! and the rest of the fentons I Guess

-ignoring the sam/danny moments. I simple do not see them.

-...why doesnt danny just fly over the maze. or do the whole 'real world people act as ghosts in the ghost zone' and turn back!!! I know its just to show off the ghost greek monster designs. but STILL.

-danny being like. um. hi pandora. i found your box. >< polite...PANDORA IS SO GIANT. GIANT GHOST WOMAN. SHES GOING TO BEAT BOX GHOSTS ASS. another ghost thats nice to danny to add to the list :) and HER FORCING BOX GHOST TO APOLOGIZE. and having sandwiches with danny after making box ghost clean up. I LOVE HER.

-DANNYS 'BEWARE' AT THE END JAKHDJFKN

-okay, when dash pulled out danny's seat and was calling him buddy, for half a second I was like 'this is a prank, hes gonna pull it back' BUT THEN FRIGHT KNIGHT MY BELOVED IS BACK. AND EVERYONE STARTS CHANTING FOR DANNY TO BEAT HIS ASS WITH GHOST POWERS AND DANNY DOES WAY TOO EASILY, and im like, yup, this is a dream LMAO

-danny is getting an A+ in science :) my smart son

-DANNY WAKING UP FROM THE DREAM RIGHT BEFORE KISSING SAM AND BEING LIKE 'that was a dream...no, a NIGHTMARE!' same. not to be a hater but, shouldve been val. maybe I am a hater

-...danny running and checking the 'tapes'...why is his whole house constantly being recorded. hes been in ghost form/fights plenty of times in his house. does he have to run and wipe the tapes after?? every single time?? god

-letting this image speak for itself

-this is SO cursed

-NOCTURN'S DESIGN FUCKS SO HARD. the Venice mask vibes. also his space pattern not moving while the rest of his animation does is big chowder vibes. but this guy is basically the sandman but Evil, huh. I love dream plots. also, nocturn's design feels very similar to clockwork, like, red eyes and a scar over the same eye, but also just the purple, and the Cosmic Vibes. I want to see them fight. anyway nocturn's va was also avatar roku AND alfred in several batman cartoons.

-the 'sleepwalkers' designs were super cute in shape (kinda remind me of oogie boogie! pillow-cased shaped, which is appropriate for the 'king of dreams's minions) until I looked closer at their eyes. why do they look sewn shut!! (they open their eyes a few times, so they aren't, but they look like it...)

-I like how this show has been pretty consistent (with a few exceptions) about a Ghost Being Huge (or getting larger) = Very Powerful

-2 months of summer camping??? wtf, do camping things usually take that long?? I've never been to a camping...thing like that. but isnt that basically their entire summer??

-'the entirety of nature is your bathroom!' and thats why I do no camping despite loving nature LMAO.

-sam, at least TRY TO BE NICE TO THE OTHER GIRLS YOU'RE GOING TO BE SHARING A CABIN WITH. also, the amount of times people in this show have their SHOES ON THE BED!!! IM DISGUSTED

-swamp creature Is A Ghost. Big Foot is a Ghost. starting to think in this universe, every single cryptid or legend is a Ghost Actually

-paulina crying not only because star is missing, but because SHE FORGOT HER SUNBLOCK AND SHE BURNS SO EASILY!!!! okay girlfriends

-ghost cops are the real monsters at the camp. i.......I mean. fair. no one missed you walker

-WULF!!!!!!!!!!! WULF IS BACK!!!!!!!! MY FRIEND WULF :D MI AMAS VIN!!!!! kaj danny lernis Esperanto :)

-'relax kid, we arent here to do any harm' *immediately shoots danny* yeah. ghost cops. and also danny bringing walker 'wulf' and walker IMMEDIATELY SUCKING DANNY IN A THERMOS. FUCK OFF

-haha walker Bald. and haha walker Frozen Now

-the fenton thermos can...reverse its polarity to close portals? okay

-LIBERA MIA AMIKO. :")

-ohhh they end the ep with them star gazing, thats pretty cute...

-dani is back! ...with a new voice actress? wiki says AnnaSophia was in 3 diff movies in 2007 when this aired, so she was probably too busy... (including, bridge to terabithia aka the movie that ripped my heart out that I mentioned in the first ep Dani was in...kinda wanna rewatch it now)

-shes still scared of vlad, who's still being creepy and spying on her. 'shes hardly going to come home to daddy!' I WONDER WHY. also does vlad's cat look more evil than last time? love the concept of him going shopping for cats and being like 'give me your most EVILEST looking cat, please, so I can pet it in my spinny chair dramatically!' ...oh god white cat hair on his black suit. I have a black cat and her hair is still way too noticeable..

-vlad has a big 'valerie' button in his office. can he be pressing that button every episode, thanks

-'theres a GIRL called dani phantom?' yeah valerie. no relation, obviously, even with her looking EXACTLY like danny. so sad valerie just wants to help her dad and her get out of the place theyre in now and vlad using her. ill MAUL HIM

-dani having to STEAL FOOD. :( and valerie immediately being like oh poor kid :(( and trying to help her!!! and then dani immediately helping valerie!! this episode is starting SO well

-...and then valerie catching her. DAMN IT. and being surprised dani knew danny?? HELLO VALERIE I KNOW YOURE SMARTER THAN THIS. I AM SO SORRY THEY WROTE YOU THIS WAY. I STILL LOVE AND BELIEVE IN U !!!

-valerie lying her ASS off for a chance at gettin danny. ok <3 also 'they couldnt catch a ghost if it was living under their own roof' JSDHKJHNK

-danny. why dont you just tell valerie!! this would be so much easier if he was direct. there is NO way valerie would hurt danny (fenton) she'd be HORRIFIED. esp since she got on board helping dani!!

*is held* :)

-look at valerie and danny. flying together. about to go beat vlads ass together <333

-DANI SCREAMING AS VLAD IS MELTING HER. WHAT THE FUCCCK

-...fucking vlad convincing valerie hes a good dude with his stupid duplication. FUCK. DANNY JUST TELL H E R

-jesus christ how many times has danny had to watch loved ones die. even if she didnt stay perma-dead. glad they fixed her...

-valerie and dani pranking danny when he came out, oh :( cute...them havin fun and laughing together...babies

-BUT THEYRE JUST LETTING DANI LEAVE, AGAIN??? SHE WAS PREVIOUSLY STEALING FOOD. CHRIST GIVE HER A PLACE TO LIVE. OR A FAMILY. actually, I think it'd be really cute if, since danny isnt ready to out himself, dani went and lived with valerie?? dunno if her dad would have the money but,, it'd be a cute concept. big sis valerie...

-'tomorrow, it's game on!' 'and ill be ready to play!' THE FLIRTING....DANNY/VALERIE REAL

-oh my god,, valerie found out about vlad in the end. But he doesn’t know she knows!!! the DRAMA!!! HOLY SHIT THAT ENDING.

-this episode was. SO Much and probably one of my favorites out of s3. (I mean, there has been a gross lack of valerie this whole season, so thats not a hard choice to make...)

-FINALE EPISODE TIME.

-the title screen looks different! so no title card...

-vlad has his own fucked up satellite that looks like him?? okay. why does the animation look so different?? are they mixing cg in?? for what. anyway, vlad and the gang in SPACE. danny is 100% living his astronaut dreams rn

-'defeating frostbite' YOU BETTER NOT HAVE. YOU STOLE HIS COOL MAP. FUCK YOU VLAD

-wait oh my god. vlad is the final series boss, isn't he. I half expected a fake out, for another boss to show up midway, and for him to finally have to have a real truce with danny for this ep. ITS THE FINALE. VLAD FEELS SO UNDERWHELMING.

-And it's like-- his character isn't bad, i just feel like..he has more potential! they WANT him to seem like some smart super evil genius, but the way he's written makes that SO hard to believe...but the solid backstory and design is THERE and its FRUSTRATING.

-...DANNY CALLING VLAD OUT SAYING HE NEEDS THERAPY LMAOO THATS WHAT IVE BEEN SAYING.

-my grandpa technus is in the finale too :) 'well look on the bright side, at least im not downloading them illegally!' he says while stealing dvds. feels like hes calling me out. im watching this series on a bootleg website lmao. anyway, him turning the tech into a transformer. love that

-mASters BLASters sTOp diSAsterS shut the fuck up. you will never be valerie or danny. bite chomp kill. violence

-like this if u crie everytiem

-my god the 3d/cgi mixed in looks SO BAD IT DIDNT AGE WELL AT ALL

-the white stripe in dannys hair kinda rules tho. did he just KILL HIS GHOST HALF??? 'revert his human half back to normal' UM. you ever unkill yourself. why are his friends/jazz so mad about it, he'll be in a lot less danger!! christ. they can still hunt ghosts!! as humans!! if they want to!! hes 14 if he wanted to be normal. let him. vlads stupid little team has things COVERED apparently. why are they acting like this. jazz would never act like this. is this fake whats going ON

-oh my god jack was in a college band. vlad was also in the band. what did instruments they play. i didnt need that headline to tell me they sucked, but i want to KNOW MORE REGARDLESS

-valerie was here for 0.3 seconds.

-sam calling danny selfish. the audacity. no one is stopping YOU from hunting ghosts, girl. valerie does it!!

-I'm halfway through the episode and incredibly underwhelmed so far.

-why would they send jack and 3 teens to space to destroy the asteroid. why not professional astronauts. not even the 3 teens that have already been to space this episode...

-jack getting beat up by teenagers. ON TV. IN SPACE. I GUESS. I GUESS EVERYONE AGREED TO SEND JACK BECAUSE..VLAD SAID SO? we know it was to embarrass jack, but why would everyone agree. why didnt any other space program Do More or whatever, they sent like, 3 rockets/missiles tops?? no way

-danny attempting to punch vlad in the face. i WISH HE WOULDVE LANDED THAT HIT.

-vlad outed himself on live tv, on purpose? and BLASTED AT THE TEENAGERS HE HIRED. LMAO. HES HOLDING THE WORLD HOSTAGE, MAKING THEM PAY HIM BILLIONS TO STOP THE STUPID ASTROID. THATS YOUR GRAND PLAN??? REALLY. REALLY. im like. lmfao

-jack just now, on the last episode GETTING TOLD HE MADE VLAD A GHOST. THIS SHOULDVE HAPPENED WAY SOONER. jack's reaction was one of the only times in this entire show hes seemed human. 'an old friend? no. you? yes.' GET HIS ASSSS ACTUALLY. HE STRAIGHT UP LEFT VLAD IN SPACE. GOD DAMN. that is a Murder! I mean, I guess vlad could fly back to earth, but...I mean, he'll have to, right? no food in space. (that we KNOW of...)

-'thE WHolE EArtH, INTangiBLe?!' oh my god.

-...the white strand of hair somehow still had ghost dna, I guess, and getting blasted turned him back into phantom. I GUESS. I GUESS.

-the fentons being the first to clap for danny despite not knowing hes phantom...that was sweet. and very sudden character development, not at all gradual over the course of time or episodes like it probably should have been...

-sam and danny kissing. IT SHOULDVE BEEN VALERIE, BUT OKAY, I GUESS. also, its a little underwhelming, considering theyve kissed already...

-ALL of the ghosts being ready to beat danny's ass? really. no they wouldn't, they've worked together before, and some of those ghosts are friendly!! cringe. why is the last ep written like this. I mean they came thru at the last minute but. was really cringing for a minute there, why did they write it like that

-valerie is there for another 0.3 seconds! ....she should've been more involved. dani is also there! for also like 0.3 seconds. almost fast enough to miss. (btw, I think shes still homeless at this point, are, we going to...do ANYTHING ABOUT THAT IN THE LAST 5 MINS OF THE SHOW)

-the cgi smoke or whatever it is. this whole post is me saying the cgi is bad, but IT IS.

-'danny or should we say. DAAANNNNY.' this is like the 3rd or 4th time hes been outed damn, but to the whole world, again. and valerie saw, and is just. an extra in the bg clapping. bro im so mad.

-TUCKER IS THE NEW MAYOR? WHAT THE FUCK?? HES 14.

-i think. this is still linked to the dream ep a few times ago. hes still dreaming. this is a plot a 14 year old would write. this feels like a bad fanfic. so much got rushed, and not tied up. vlad wasnt really even the villain this episode, a fucking. non-being asteroid was.

-they kiss again. ok. sure. whatever at this point.

-VLAD IS NOW A FREE-ROAMING SPACE NOMAD. I GUESS. THATS. SURE. WHATEVER. THE END, I GUESS. cannot believe I'm saying this, but: they did vlad dirty.

-IF YOU'RE GOING TO MAKE HIM A VILLAIN, MAKE HIM A VILLAIN!!! DON'T MAKE IT A METEOR!!! STOP BEING WISHY WASHY WHO WANTS TO SEE DANNY VS ASTEROID!!! I didnt even WANT vlad to be the final villain because his character is SO back and forth (esp this season.) but he has done some FUCKED UP SHIT AND I WANTED THE WRITERS TO DOUBLE DOWN, PERSONALLY, IF THEY HAD TO MAKE HIM THE FINAL BOSS. the cabin ep where he basically held danny and maddie hostage? FUCKED. THE DANI THING? FUCKED. FUCKING COMMIT AND MAKE HIM ACTUALLY SCARY OR HAVE HIM FUCK OFF AND AGREE TO A TRUCE!! WHAT IS THIS DYING IN SPACE NONSENSE. (and, he will (fully) die out there, right? still half human, still needs food and water. I imagine he'll like, slowly half-die but this time his human side is dying. will he come back 100% ghost? we dONT KNOW. WE DONT GET TO SEE, ITS PLAYED LIKE SOME FUNNY THING AT THE END, THEN THATS IT!!! WHAT!!!)

-I don't know how to articulate how FRUSTRATING THAT IS. having him basically out himself and ''hold the world hostage'' does not track at all in my brain. like. he's always been scary because he is HUMAN, TOO. like, if he was 100% ghost, he'd be LESS scary, but vlad MASTERS has more power and influence than vlad PLASMIUS because of his position as mayor, his money, too, and his (supposed, s3 made me doubt it) intelligence/manipulation skills, and his being in good graces with jack made it HARD FOR DANNY. him outing himself for,, money and to 'control the world' i guess?? MONEY WAS NEVER HIS LIKE, MAIN GOAL. yeah obv he likes money and is materialistic and values his Rich Life, but hes got billions, the end goal? 1. getting maddie (and or danny as his son, but to me he always treated that as secondary) 2. ruining jack. this feels like they wanted to say 'oh he just wants POWER' which is. HMM?? OKAY?? obv he /does/ want power (usually over certain ppl, tho), but seeing him try to get it like this FELT WEIRD SOMEHOW. weird like the ep where he tried and failed to take over various historical civilizations, because like,, how is that realistically going to do anything for him?? just, being in that time forever and never seeing maddie aka Goal #1 again?? HELLO??? this was like that, but worse

-this was such a weird ending to an entire show. why did season 3 only have 13 episodes?? why did it feel so weirdly paced?? WHY WAS THE ENDING LIKE THAT. I think. I am going to pretend I did not see that. fucked up, dudes. I'm like...hm. I shouldn't have watched that because now I'm mad. valerie sweetie im SO sorry you shouldve been more present. it felt like..if they knew this season was going to be short, and the last season, they should've spent more time wrapping up EVERYONE'S plot lines for the entire season. imagine how cool it wouldve been if every single ep of season 3 was working towards something, a big, nice wrap up at the end, with nothing feeling TOO rushed because they'd been heading towards the End for the whole season....

I will probably end up writing a follow up full series thoughts post. In a couple of days so I can sit with my thoughts. BUT. overall, I really liked the show! (ignoring the finale and some of the moments that aged pretty poorly...) it was charming and a fun concept and very fun to watch in general :) and I am pretending the finale didnt happen <3 and I’m gonna dive RIGHT into the dp tags and mix fanart and posts in my queue, very excited to run and look at that 🏃🏻 (and, of course, make more fanart myself hehe >:3)

[jedimaster941]

A Declaration of Lost Independence

A Declaration of Lost Independence

As we get older, as we live life, like stone eroding under the power of crashing waves, our bodies break down. And as our bodies break down, we become more and more unable to do things. Sometimes not to the standard we once did, and sometimes we lose the ability completely. We lose things that bring us joy, and we lose things that bring us to life. Whether it be slowly or quickly, we all lose our independence. Aging is something, like it or not, we have all signed up for. We will get older, our bodies will break down, and we will lose our overall independence. It’s not ideal, but we understand it to be true.

For Chronically ill people, however, we can lose our independence rather suddenly, and it has absolutely nothing to do with natural aging. If someone aged 78 years has trouble walking, getting dressed, or going to the bathroom, very few would question it. But imagine you are 28 years old and you have the same difficulties. Think of how you would feel. In this article I will discuss the ways in which people with chronic illness lose their independence in the areas of physical, mental, social, and dietary, and the toll it takes on us when the things that we should be able to do becomes out of reach.

*This post features responses from chronically ill patients whom I asked…*

------------------------------

Physical

Loss of physical independence is the area that most people think about when illness takes over. It is at least the most public. People see wheelchairs, walkers, canes, crutches, and handicapped placards. They are also readily aware when someone takes a little longer to stand up, when they have trouble buttoning a shirt, or their handwriting becomes illegible. If someone gets to know a disabled person well enough they may also become aware of PIK lines, feeding tubes, and colostomy bags among others.

When someone is chronically ill/disabled their bodies are the primary victim of their disease. In one way or another, our bodies are malfunctioning. As my primary care physician said to me once, “We are all getting older, you're a just doing it a lot faster”. (If anyone is curious, I did not take offense, I appreciated that he acknowledged my illness and my lack of certain abilities)

Our independence is very much directly lost in these examples. We lose the ability of climb stairs, walk short distances, wash ourselves, cook food, and one I’d like to discuss a little more, exercise.

Doctors and online experts tell us we need to exercise. I can’t disagree with that. Exercise is important to keeping what we have left tip top. However, when we can’t climb stairs, walk short distances, or wash ourselves, how do you expect us to get the the gym to do some Cross Fit? I know for me, exercise of any kind hurts and has lasting effects. Some of my readers may remember how not long ago I walked a peppy poodle for half a mile and my legs hurt for three days after. This wasn't from being out of shape, this was due of my condition. Yes, exercise, but understand sometimes it's more harm than help.

I used to be a distance runner, a golfer, and could give the best piggy back rides. Now, due to Ankylosing Spondylitis, I can’t do any of that. And believe me when I tell you, that hurts me mentally as well.

Mental

With chronic illness and disability there comes a mental toll as well. Both in the areas of cognitive ability, and depression.

First, let's touch on cognitive ability which will then (as all of these sections do) we will move on to depression.

I imagine many of my readers are already well versed in the words and terminology used in the discussion of chronic illness. However, if you are new to this world, let me share a term that I, and all of us use probably on a daily basis: “Brain Fog”.

Brain Fog is exactly what it sounds like, a thick layer of fog on your brain. You know how hard it is to see through a covering of fog? Now, imagine that fog is in your head and your brain is trying to see thoughts, feelings, and ideas through it. It’s not easy and often things are lost.

Brain fog is caused by pain and the inability to actually shut down and rest. When people go to sleep their bodies and minds go into power saver mode to recharge, refresh, and do diagnostics checks. However, what happens when you drink caffeine, or you eat a big meal before bed? Well, if you can sleep, your body has now been given other things to work on. The caffeine makes your heart work harder, and your body needs to work to digest that big meal. So what happens? You don’t wake up rested because your body never actually got any rest. The same thing happens every night for people with chronic illness, but without the caffeine and steak dinner. In my case, with Ankylosing Spondylitis, my body is always working to fight off a foreign invader known as the lining between my joints. (I guess it’s actually a domestic invader) For most of us, because of constant pain, we can never get comfortable and even when we do sleep, we aren't actually resting. This lack of true sleep causes our brains to process at a diminished rate limiting our abilities to remember, problem solve, and function.

When I go to the doctor, I bring my wife. Not because I need a supportive hand, but because I need a partner and coach to help me tell the doctor what I need to say, and then remember what the doctor tells me. There have been times I have come home from an appointment solo and either forgot what treatment we discussed or, through my fogginess, made up something completely different because I could have sworn the doctor said she wanted to try bloodletting. (Or was it Methotrexate? I can’t remember) Although I love my wife, and I will always welcome her to join me at an appointment, I'm 37 years old, I shouldn't need someone to be my brain while the doctor checks out my body. While I am not depressed about this, this loss of mental and physical independence can also lead to depression.

I used to run, and I loved running. When my health got worse I took up walking long distance. However, only a few short years later, I couldn't even walk short distances without great pain and weakness. I was 34 the last time I walked with any kind of purpose. Far too young to lose so much ability. When I see people out running, or I drive past the local health club with overly large windows, I get sad longing for my glory days. When I watch American Ninja Warrior I’m sometimes heartbroken. Believe it or not, I used to be able to do stuff like that. It’s crushing to think that somebody actually has the freedom to wake up in the morning, pop up out of bed, and then think to themselves “Well, I think I will run 10 miles, shower, go to work, spend an hour at the gym, play with my kids, and then get 8 hours of restful sleep before doing it all over again.” Here I am thinking, “I hope I can get out of bed.”

Chronic illness can take a great toll on our mental state and subsequent independence.

-------------

Diet

With the chronic illness life, more often than not it seems, comes a list of dietary restrictions. 90% (not actual figures) of life comes from our gut. What we eat and drink. Other than breathing and IV treatments, it’s the only way anything gets into the factory known as our bodies. So, there is much stress put on us by our doctors, friends, family, TV, and the woman on the corner to eat right to better our condition. And not everyone is wrong. There are certain things that improve or worsen our condition. We will listen to the “experts” and try certain things. Excluding things like sugar, dairy, nightshades, and gluten. Or “fad diets” like Paleo, Keto, Vampire, or Atkins.* We might even try Kale! Many of us will try anything if it means we reduce our pain and get a little life back. But, the more foods we give up, the more independence we lose.

Personally this area has been my biggest struggle. Two years ago I went dairy free at the suggestion of a nutritionist, and one year ago I totally cut out sugar. And, I won’t lie, excluding both of those have been fantastic for me! I may not always notice the improvement, but if I happen to slip up on purpose of by accident, I certainly notice then. I am solid and confident in my sugar free/dairy free life, and for the most part I am happy.

However, this does not mean everything is butterflies and unicorns. I still struggle as I’m sure many many of my chronically ill brothers, sisters, and non-binary siblings do. Two examples: My birthday, and the ice cream aisle. On my birthday my co-workers wanted to know what to get me for my party. Typically the birthday treat is cupcakes and fudge. Hello sugar and milk! After much thought, I received the treat of peanuts and pickles. (And I didn't complain) However, it didn’t mean it didn't hurt. My co-workers needed to avoid yummy delicious treats because of my AS. They were supportive, but it didn’t mean I didn’t feel like a party pooper. As for the ice cream aisle, they have dairy free ice cream, and they have sugar free ice cream, but as a friendly store clerk told me, diary free & sugar free ice cream isn't ice cream. I'm out of luck there.

When it comes to dairy and sugar, I have lost my independence. People need to accommodate for me. Oftentimes meaning they might miss out on what they want. When my school does nacho day, frozen custard day, cookie day, etc for staff wellness days, I’m the only one not well. I could tell the people that sorry I can’t eat this, but that opens me up to feeling bad for making them feel bad.

Or when you need to find out if a restruant is accessible. Many would think that with all the handicapped parking spots all places would also be accessible. This is not always true. I have seen places where the "accessible" table is in a door way or up against a wall. The freedom to go to any restaurant one wants is never a guarantee.

When friends want to go out those of us with diet restrictions need to be “that guy/girl”. The one who has hard opinions on what we can eat. Ever stand behind the person at Starbucks who insists on soy milk and Stevia? Have you ever thought “Just take your coffee and drink it! You're holding up the line!” Yeah, that’s us, the ones holding up the line. Doesn't feel good.

We are jealous of those people who can eat whatever they want. Go to any restaurant, order anything off the menu, and even have dessert. This isn't about gaining weight, it's about being able to get out of bed in the morning.

Social

The next topic of how we lose our social independence ties into the three topics above and any others I have not mentioned. Humans are meant to be social. We aren't bears where we can just crawl into our cave and sleep for a few months. If any human crawled into a cave, nobody would be friends with them. Why? Because interacting is one of the standards of human life. We need other people! Sure, there are the mountain folk who go out, kill a deer, make clothing from it, light a fire and live their life in seclusion. (And there is nothing wrong with that) But, most humans need other people to cook our food, make our clothes, work on projects, drive us, and socialize purely for fun. The problem is, for many chronically ill people, getting out of the house and socializing sounds equal to climbing up and living in a mountain.

We are exhausted! Chronic illness takes a lot out of us! Every day can be a struggle to move, breathe, think, and complete other daily activities. Showering can be one of the most difficult activities for some. Doing laundry is pure hell! When most people hate it for the fact they have to do it, for me, folding makes me want to die! Seriously, I don't fully know why, but it hurts so much and takes so much out of me. After doing everything we have to do, we don’t have energy left for what we want to do.

I come home from work, my shoes come off, and I’m done! Very little is going to convince me to put my shoes back on and go out with friends when all I want to do is sleep. Because of this, many chronically ill people are forgotten. We bail on friends two or three times, and they just stop inviting us. But, then we have a good day, we are ready to accept an invite. Do we take it? No. Why? Because, we feel good now, we don’t know if we will feel good later.

Chronic illness symptoms can come in waves. We can have good days (or at least the start of a day) but then we drop. We don’t always know why we drop, but our feelings and mood are in no way guaranteed. So, we don’t risk it. It’s far better to be at home near our bed than 30 minutes away with a group of people you will need to apologize to for leaving early. Declining the invite or simple ghosting is far easier and less harmful to our psyche.

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Chronically ill patients lose all sorts of independence. We can not truly live free with AS, Fibro, EDS, POTS, Lyme, MS, ME or one of the many other chronic illnesses that totally sap us of life. We are not free do do as we like.

While others wake up and get to choose between running, biking, partying, fixing cars, eating amazing food, and/or playing with their kids. We wake up and.. well.. that's it.

In closing. If you know a person with a disability/chronic illness try to be understanding of their limitations. Don’t give them a hard time when they can't do everything you want them to. Our lives are hard enough dealing with all the independence we may have lost.

*I might have made up one of these diets