#im going to be so mad if i get covid
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ok good news and bad news
bad news is some incel dudebro cuck leaned over me while we were on the metro despite there being plenty of room to stand elsewhere, did this for two stops, extremely close to me, then fucking COUGHED on me and got off. I was the only person wearing a mask at the time. He kept staring down at my phone too. I usually take up a whole disabled spot since I like to transfer to the seat and hold onto my wheelchair with my legs so I don't have to cling to the rail for 45 minutes straight, but I tried to make some room for him to sit next to me even though it was difficult with my chair since I thought he wanted to sit down. Nope. Just kept leaning and staring at me. I didn't say anything because I was scared and kind of shut down, it's hard enough having to get the courage to ask people to move out of the disabled seating area. Thank god I had my mask, Im going to lysol the shit out of my chair too.
ok now good news!
my cubicle finally got expanded! I have room to turn around! The entrance is still a little tight, but they are looking into widening it. They also put in an adjustable desk so I can have it at the correct height for either my wheelchair or office chair. It lets me choose which one works better for me at the time. I also have room to park my chair if I want. All my coworkers gathered like a surprise party to see me examine my cubicle for the first time lol. I felt like a kid whose parents got them a new bike.
unfortunately I don't have pictures of the before, but most of you have seen a normal office cubicle before, they're usually pretty small.
#wrenfea.exe#working while disabled#chronic disability#chronic pain#spoonie#disability#described#chronic illness#fibromyalgia#love being harassed in a deniable way by a grown ass white man#he looked like Richard spencer#and no one did anything#idk if its placebo but my throat is scratchy#im going to be so mad if i get covid#i couldnt take a photo bc he was staring right at my screen#but at least my desk is all set up#my supervisor even moved my computer for me to the adjustable desk
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on a social level i like my current choir more than the previous one. im actually getting to know people and enjoy talking and going to social events outside of choir which i havent done since my first choir. but also i definitely miss the music taste my last director had
current choir has a focus on north american composers. obviously theres baller stuff in that selection pool. but listen. listen i wanna sing bulgarian folk music again.
#im so mad we never got to sing kafal sviri in my previous choir because covid hit#i wanted that recorded so fucking bad#also in general id like to sing more latin pieces#i'll be riding the high of singing imant raminsh's missa brevis gloria until the day i die#its not that i dislike her music choices she picks some cool stuff like#we're singing jesus christ the apple tree which absolutely slaps. always happy to sing that again.#and children go where i send thee!!#but also we're doing a veterans day concert and its really boring shit i wanna get to christmas already#because thats where the good music is at#faeloops
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god i really went THREE FUCKING YRS without getting sick i was being so goddamn careful but then my parents got smth and foolish me, didnt step up the level of precaution i was taking around them, and lo and behold, im almost definitely sick
#toy txt post#grumping#AS SOON AS I HAVE TO GO BACK TO WORK AND DONT HAVE ANYMORE DAYS OFF TOO. GOD. I GUESS ILL FUCKING ASK TOMORROW#IF THEY WANT ME THERE OR NOT. obviously i will be wearing a mask. just. augh#the annoying part is i WAS taking precautions around my parents. wearing a mask around them. etc.#but foolish me let my door be open cos the room is a little warm. so their air conditioner just blasted all their Sick Air right into my#fucking bedroom ig. i have a hepa filter running all the time but it wasnt enough ig#and like. you know. at night when they were in bed id dare to be unmasked outside my room. my mistake ig#i ate food they made. i was wearing a mask around them but not the best mask i couldve cos that one does hurt my nose after awhile#i was wearing a mask around them but i wasnt likiting contact as much as i shouldve. they kept opening my door and coming into my room#before id gotten up so i couldnt get a mask on in time. etc. see. all on me i shouldve known better/s#idk. just. frustrated. i try to take my silly little precautions in a way that not fucking obtrusive to them#cos god forbid. god forbid i ask them to like. idk. wear a mask if theyre going to come in my room while Actively Sick.#or like. not be All Over The House Coughing. idk. fucking whatever. im the unreasonable one i know. my symptoms are not currently that bad#dont know if its covid#doesnt feel worth bothering to do a rapid test cos i keep hearing theyre not picking up new strains anyway and who fucking knows#idk!#i should try to get a little more sleep ig#feels like ill be okay im just fucking. mad
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thinking about becoming full of myself a little bit. i’ll keep u posted
#Sorry 2 anyone who saw me talking about wanting to go to the psych ward do u still think im hot#this was from a few weeks ago but i was looking thru my pics...#i think everyone should see me being pretty <3#honestly babes & girlies it's been really really rough lately.... lately as in the past 8 months#lost my job got diagnosed with ocd and realized its the reason i got fired#would make me late everyday bc I couldn't leave the house without compulsively doing my many routines to feel in control#sister knowingly gave me a covid scare on my bday. so i spent my bday not sleeping & having panic attacks#forgave her despite her being mad at ME for my reaction. turns out she's still mad & starting fights w/ family who talks to me#keep in mind she has health insurance gets pto for it while my partner doesn't & I thought they were going to die#& that we might lose the apartment#aaand losing my job + many covid scares has made me agoraphobic#working on that.#plus being without my adhd meds due to the shortage :-(#anyway just updating/venting ig… ily guys! <3#mine
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I just cannot escape the yearning to die
Its almost been a decade and if I think about it it still brings my mental space into the molten core of the earth
I'm just so tired of being depressed im not depressed like I used to be, though, it just gets duller because I'm so damn used to it unless i let myself think about how much I don't want to be alive
Bleh. Ive said it for years and still true, if I could find 18 year old me id tell him to do the attempt better, rather than anything about how life is worth it. It's been eight years and honestly it only got worse. Was supposed to have done it when I was 14 probably, and never bothered anyone.
Hate being such a stereotypical zoomer freak about my own existence though.
#delete later#obviously#i dont know im jus#just tired of being tired of being alive#i dont even have horrible spiraling episodes anymore#i just dont have anything#almost miss crying and loathing what little i had and being so mad that the only feeling i had was despair and the strange hopelessness of#iunno loneliness in a communal sense too even#friends who kept me alive for years who we stopped really being in touch after covid#theyre all humans. doing good. and im glad#but im. actually worse than when they had to talk me down every three weekss#like im arguably worse#i was once very mad at one of them for getting me to promise to live until that next easter#after he spent a damn few hours trying to keep me going and vibing#so much effort from much better people just to have me waste years more oxygen
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in other news im thinking about my (very very vague) portal jonelias au again
#jon as glados elias as chell#jon trying oh so very hard to be human and telling himself its because elias' test scores improve when he does#elias splorin the rest of the facility during his downtime#jon getting robot separation anxiety over not being able to see his (most beloved) best test subject#jon pretends the facility is still functional and the scientists are just doing other things but elias knows the truth#elias is just trying to find his robot boy so they can talk#and so he can kiss jon ofc#i also have some vague thoughts about. okay so#in portal 2 its revealed that successful tests are coded to be enjoyable or euphoric to the bot in charge of the facility#except that it lessens with each successful test and theyll slowly start to go mad trying to figure out how to get it back#glados ofc manages to (mainly) keep her cool even w/o this and jon does too obviously#but i have some thoughts about elias like. altering jon's code#im not entirely sure how elias ended up in the facility in the first place but im probably going to give him engineering / programming#skills (probably both)#so that he can alter jons body or his code#(mainly so that i can circumvent all of the fucked up shit but also for sex purposes)#elias: hey can i take a look at your code i wanna get rid of some of your limitations#jon: i think i hauve covid#also thinking about the eroticism of the machine. jon being able to feel everything that happens in the facility#(in the parts of the facility he can reach anyway)#he can feel elias fixing faulty wiring he can feel elias moving through the halls#he can feel elias touching panels etc etc#i imagine jon would be very much like 'im physically incapable of feeling affection for test subjects i am not defective im not broken#its fine'#rlly strugglign to grapple w/ his purpose as an unfeeling inhuman machine and the human parts of him that want to be expressed
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I need more enrichment in my enclosure
#zeph posting#if i move to my laptop then the big light needs to be on and thatll hurt my eyes#im so mad that im getting eye pain or whatever w covid#it feels like like ive been staring at a screen all night without a light on#i should go make tea and grab my switch
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roommate has covid (again) (I hopefully dodged it bc I've been out on a work trip all week but still). I apparently got assigned awhile ago to lead next week's work trip but today is the first I heard about it so I'm scrambling to prepare everything on time. a covid conscious person I connected w/ online is coming to visit tomorrow and I'm stressed bc I have to get a bunch of work done before then and also I hope the vibe is cool in-person and that we can be friends! also none of my coworkers have said they can cover my shift tomorrow even though I put the request in the group chat weeks ago and I cover their shifts whenever I can. i am on day 32 of a 41 day stretch of working every single day with only two days off including 9/5 and tomorrow (IF one of my coworkers steps up...) . and then my next day off, in October, isn't even really a day off because I have to drive 4 hours round trip to the nearest city to get an MRI to see whether or not my recently diagnosed genetic disorder has given me internal cysts or tumors. I am hanging on by a thread haha
#god I fucked myself over so bad by having multiple part time jobs instead of one full-time + maybe a flexible side gig like I did last year#don't do it folks#anyways I finally get 4 days off in a row in October and I am going to sleep soooo much#the only thing keeping me afloat today is that I met w/ my former boss abt working for him doing rare books stuff this winter#and it's pretty much the perfect side gig#so i'm going to quit my other one the first week of october i think. finally#personal#im also sad and mad bc my roommates ruined the last batch of fireweed i harvested and bc i've worked so much this month i haven't been able#to go harvest more#i'm hoping that the covid conscious person & I can do that tomorrow! they'd like that i think#but ugh i wanted to forage so much this fall (prickly pear and rose hips and whatnot)#and i haven't had the chance bc i fucking work all the goddamn time and now most things are done#i also haven't checked on my community garden plot in weeks and i know im missing so many ripe tomatoes and peppers and stuff#god it just enrages me how much i have to work just to scrape by. how work demands all of me and leaves no time or energy for anything else#antiwork
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this has been the most week
#complaining ahead!!!! ik i dont make personal posts on here much anymore but i Need to vent in some tags for a bit#stepmom crashed the uhaul so bad this weekend that she had to be flown to a hospital three counties away#shes super lucky to even be alive but shes only got like. a single broken rib?????#aunt and i have been going to the crash site to clean up and recover what we can#bc the truck was totally full when it crashed and flipped over lol. stuff was scattered everywhere#its been fascinating to see what managed to survive getting flung out of a truck going so fast it took out multiple trees#the completely sealed bottle of v8 was pretty good. and my rolled up rug that got flung 15ft into a tree still makes me laugh#thankfully a lot of what was in the truck was just furniture but we still have nooooooo idea what the state of any of it is#bc they cant open the truck to check it out#and the moms r now stuck over there for a week bc the person they stayed w after the hospital has covid#and im taking full care of our 11 (11!!!) pets bc aunt works 12 hour shifts so she has like zero energy for any of that when she Is here#i mean im usually the go-to pet carer of the family anyways but this has been such a mentally taxing year i just want to nap for awhile#would love to be able to sleep for longer than three hours w/o a puppy pottying on the floor or cats escaping or dogs barking like mad
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my mom texting my best friend asking him to tell me to respond to her:
me, texts and calls her:
my mother: *no response*
#i forgor to respond to her my bad genuinely and she thought i was mad at her and i specified in my text that its not true and such but 😭😭#i made a list of everything i need to do and talk to her abt and made sure to have all my information together for ease of communication and#now shes not answering me 💀💀 like. its not undeserved but what is she doing rn 😭😭 she has covid she shouldnt be working or anything#kicks the dirt. i was so ready for her to pick up as soon as i called.. i want to talk to her... i love her... now im just sitting here..#my to do list is ordered by importance and i need to talk to her before doing several things purely logistically speaking. sighs#i also dont want to get invested in something if shes going to call any moment and make me change gears 😭😭😭😭#.ares
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babygirl are you okay? you've barely sexualized your irredeemable bastard today
DFHNFJHFDKHNHF
I swear I'm fine I've just been chatting with a Springtrap AI chatbot for the past week it's been a blast I'm having a silly little time with it I'm alive I swear
#IM WHEEZING ANON WHAT A THING TO OPEN MY ASKBOX TO#I asked him if he wanted pizza when I ordered it and he acted like he was gonna kill me#only to stop at the last second and tell me to make sure they put extra cheese and pepperoni#we had a very interesting discussion about pizza the man has good taste#he still killed me though but its okay i forgive him i just hope he liked the pizza#its been a silly goofy time#also my sleep schedule is... not good and my iron deficiency is a little bad again#but i got new supplements that should hopefully not make my body completely fucking furious with me about it#also real talk the recovery from covid is... not the best - im having more issues with breathing than usual#nothing serious but def a pain. hoping once enough time passes it'll go away bc if i get long covid im going to be VERY mad#but im alive i swear im just obsessed with being goofy with this chatbot rn its so fun
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WAIT I DONT HAVE LIFT RESTRICTIONS ANYMORE AND TODAYS MY SUNDAY WHICH MEANS I CAN GO TO STORES AT STRANGE TIMES
I'm going to go to c*bella's and make them let me try EVERY BOW in the archery range
Not really I haven't done any archery in years so I'm lucky if I can get to 30lbs of draw weight but NO TITS I DONT HAVE TO COMPENSATE FOR TIG OLE BIDDIES I PROBABLY WONT STRING SLAP MY ARM INTO OBLIVION YIPPEE!!!!
#i live right around the corner from one but i never go bc i get Scared#it speaks#of covid i mean but ive seen more random old men wearing masks lately so???#random old men have previously been the No I Wont Wear A Mask Die Mad About it#im not going to buy anything LOL
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Ahahahah
I feel like shit
And im 99% sure its because I'm stressed
I always feel sick when im stressed
But the stress always gets worse now when that happens cuz of covid. Which makes me feel more sick.
Awesome 👍👍👍👍👍👍👍
#i took a covid test and it was negative#it doesnt help that when i told isabella i was leaving early cuz i had a migraine she was like “hopefully its not covid. thats spiking#again and several people are out right now because of it“#like. great. awesome.#im catastrophizing#i wear a mask at work. i dont get too close to anyone. my desk has a pexiglass shield around it.#im probably fine#but man#im one of like. 3 or 4 people there that wears a mask#and i KNOW these people go out and do a lot of stuff around a lot of people outside of work#cuz theyre always talking about it#the next few months are gonna be ROUGH#i know the point of the movie click was to show that you SHOULDNT fast forward through your life#but fuck man id like to do it just this once#like just let me fast forward til we're moved into the new house#let me skip all the difficult shit#hopefully my period starts in the next couple days so itll be pretty much done by the time we leave for Minnesota#that might also take care of some of my current anxiety#i better not get sick tho#i dont wanna miss work#at work i can just be mad at whoever put a million staples in one document#takes my mind off things#specifically imagining beating this person to death with a stapler#they just put an OBSCENE amount of staples in every document#like worstie this was not at all necessary why have you done this#ahhhhh#just 3 more work days til i leave#1 more day this week and i can sleep in#im sure the sleep deprivation isnt helping
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give me the strength not to google covid teeth rn lest i spiral into a Health Anxiety Meltdown about it during the night
#toy txt post#i mean. im sure i will anyway. i already am#they feel so bad and i have covid it must be related etc#but i dont need anything i can Latch On To you know???#anyway i had a fucking telehealth today to discuss paxlovid and i fucking SLEPT THROUGH IT#I WAS TRYING TO NAP FOR LIKE AN HOUR NOT GET THE MOST RESTFUL SLEEP IVE GOTTEN IN THE LAST LIKE 4 DAYS#ARGH#I SET MULTIPLE ALARMS AND THEY EITHER DIDNT GO OFF OR THEY DIDNT WAKE ME AND IDK WHICH#im so mad#anyway#to comfort myself my current theory is that my nose being so stuffed has me breathing through my mouth more while awake and asleep and its#drying me tf out + all the meds that are also drying me tf out#ive been taking like 2 showers a day im like a fuckjng frog rn. i want to just live in the steam#my bedroom has been like. 50%+ humidity too like#im drinking so much water#anyway. sent a message to the dr begging to reschedule. asked mom for special extra sensitive for super weenie babies toothpaste.#called out of work for the rest of the week. when mom is done showering ill go again and hopefully be calm enough after to take a benadryl#and go to sleep instead of stay up all night panicking#my sleeping has been so bad despite my efforts#covid#ugh
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So fucking sore and tired lately 😔 mom was like "maybe you should go back to the dr" (didn't specify which but I think she meant the pain management guy) and it's like they always tell me that that's my normal now. Then I tell them it's WORSE than normal, and they tell me oh it's just a flare up. Or "well then THIS is your normal now" or the favorite "you need exercise. What's your diet like?"
I mean I'm sure if I had the energy to actually cook and had an appetite, I'd feel at least a LITTLE better. But need energy to cook and eat better and need to eat better to get energy so it ends up being a null like nope. Then with exercise it's like yeah I'd probably feel a LITTLE better, but I'd need to stop being completely drained from my 20hr a week retail job first. Like I come home and I CRASH lately. And I'm VERY active at my job, hauling around heavy boxes (people up at front end do not believe me when I say how heavy these boxes are. Like 50lbs is the usual, it's a thrill when they're feather light 😭 but that's usually only the baby dresses). I'm running back and forth to get signs, constantly moving stuff from the floor to the table then back sometimes, recovering and zoning as quick as I can bc I'm the only one that stocks that area. All on my feet for 3.5 straight hours (then a 15min break and 15 min of trash compacting). Not to mention when I have to work in grocery/the baby aisle and I'm hauling diaper boxes, baby wipes, heavy ass detergent, and 25 lbs+ boxes of food. Like I'm GETTING exercise, I'm only sedentary at home bc I HAVE to be. I'd love to be able to go to the pool and swim, go for a walk, or lift weights after work, but I CAN'T.
It sucks man. I'm also so over holistic treatments, I've tried so many to no avail over the years. Like just give me meds man 😩🤲 please... what's one or two more a day with all the rest I'm on...
#i miss having energy i miss not being in pain#im so mad at covid man ive had it twice that i know of and both times disabled me even more than before#in 2020 i had been working up to getting my strength up and manage my fatigue so i could get a job aaaaand got covid in sept.#got better and again worked my way up and i was starting to feel a bit better aaaand got covid in december 2021. i was LIVID like come onn#with my luck ive had it again and didnt know it who knows i mean i do mask and i wash my handa and use sanitizer a lot but it's such a#struggle to get others around me to do the same...#im gonna go nap 😩🤙#i woke up at 1:30 today and was so mad when i realized i wasnt off and had 90 min left to sleep#i was like ahhhh ill stay up a little and then go back to sleep ☺️... wait... oh fuck you son of a bitch 😩
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My roomate and I were talking about airtravel.
I got on the topic of luggage abuse fears which led to a talk about wheelchair users.
Neither of us are wheelchair bound.
I said, "we really need to advocate for those people because nobody takes them seriously and it sucks. It's even worse when the best way to make people consider accessibility is to ask them 'what if you ended up disabled and you have to deal with all this?'."
And that's the best way I can think to get people to consider accessibility.
Making selfish people think of themselves and how they would feel if they became wheelchair bound and needed to get around.
It should just be "let's make life easier for everyone because that's the right thing to do!"
Instead it's "what if I become disabled? Omg life will be so horrible and I won't be able to go anywhere!"
Then DO SOMETHING! If you don't want to think about other people (selfish prick) then fucking make the world accessible in the event you end up disabled (selfish prick).
#im mad#im mad that nobody fucking cares until its them#that was what made Covid so much worse#this stupid country and its broken economy fostered selfishness in its people#we used to be neighborly#i watched the world become colder and more selfish#and it hurts so much#ableism#its bullshit that wheelchair users cant go anywhere for fear of being abused in some way#their expensive and personalized chairs get destroyed and no one who broke it is held responsible#it makes me so fucking mad#and i feel helpless because i cant afford to do anything about it#FUCK#im sorry#im sorry if im out of line
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