#im coming out of my hole because i need some holiday spirit
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Happy Halloween from me and the girls! We're working today but we'd love to hear about how y'all are celebrating with your partners!
#digiirl#unreality#digimon#digimon rp#lady speaks#one day only#im coming out of my hole because i need some holiday spirit#pun intended lmao
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manifestation and religion
disclaimer: im going to write my opinions on religion and if you consider yourself a believer - dont get offended as we all have different experiences and beliefs. also, i will be mentioning some stuff that most people find weird and unusual so please keep your mind open and leave your judgment somewhere else.
i wrote quite a bit and then my clumsy ass accidentally closed all tabs and everything was gone so this time ill write my intro in short version. so we all heard the saying ‘’be careful what you wish for it may come true’’. well it does come true and it has proved to me so many times, and before i get to the basics of law of attraction and manifestation I am going to say a bit of background how i got to it all.
as most of my country i was raised christian and had to practice the religion until i was 14/15 and got my holy confirmation so after that i was finally happy that i did not have to go to church if i did not want to. my family is not super religious, we do follow the holiday traditions and such as its normal in our country, but personally i dont give them much meaning. two of my family members are religious and i am grateful because in a place as my hometown our parents gave us free will when i came to religion (after our confirmation only :P) .
with all my experience and research i came to realise that christianity is most rotten, corrupted, vile and disgusting religion there is. there are exceptions that were better than rest, that is a small number unfortunately. i always considered myself agnostic, there is no defined god but there is something bigger than humankind and its still unknown. and you look at all the religions you will find that mostly all of them have same stories, people and facts, just bit amended to their culture. so to explain a bit, here is internet definition of agnosticism # Agnosticism is the view that the existence of God, of the divine or the supernatural is unknown or unknowable. Another definition provided is the view that "human reason is incapable of providing sufficient rational grounds to justify either the belief that God exists or the belief that God does not exist." and no, atheist is not the same. heres couple of pictures giving some insights
so now that we have that sorted out i would like to stress out that i never had anything against people who believe in god or dont believe in god, i have friends who are strong believers and friends who are atheist, its just called being adult and accepting people as they are. not enough people can do that.
so i did lots of research on religions and i do like polytheism ( Polytheism is the worship of or belief in multiple deities, which are usually assembled into a pantheon of gods and goddesses, along with their own religions and rituals) so i always had huge interest in roman and Greek deities, Egyptian as well and for a while was reading about Hinduism. of course i read a lot about all other older civilizations and most of them are based on polytheism.
during my exploring i came across a doctrine about paganism (havent fully finished all the books and here is a link if anyone would be interested in buying https://despot-infinitus.com/proizvod/paganizam-u-teoriji-i-praksi-doktrina-paganizma/) and i really liked the whole idea of it and i am still actively considering of becoming a white witch/wicca and reading those books inspired adding bit more on my pentagram tattoo, which is actually representing five elements so with added moons it represents triple goddess symbol.
many people ask me is that devils sign and am i a satanist, and that is ridiculous assumption based on only one symbol. and as a matter of fact i have been reading about satanism itself as well (of course i have) and its quite surprisingly peaceful religion and makes more sense than christianity does. to read more about their rules (which are way better than 10 commandments) click here - https://en.wikipedia.org/wiki/LaVeyan_Satanism#Basic_tenets
those who know me a bit better know that i love paranormal stuff and that i have strong connection with it and that caused a lot of paranormal experiences in my life (i bring all the ghosts to your yard aaayyy) so i recently also discovered demonology ( Demonology is the study of demons or beliefs about demons. They may be human, or nonhuman, separable souls, or discarnate spirits which have never inhabited a body.) and that you can actually learn how to practice it and cant lie that also interests me as well as you contact demons and entities and you work together to learn about world and history and you give them chance to peacefully experience the world (they literally posses you and that way they get to taste food and emotions etc)
yes this is quite informative post as well. and yes, you will all probably deem me insane after reading all this. and what i noticed is that all of them mentioned above work on the principle of cooperation, you have to give to receive. and i dont mean like you have to make blood sacrifices to get your wishes, i mean you have to put in some effort in it and show good intentions and most important of all - you have to show some respect.
so to finally get to the reason why you are all here. manifestation and law of attraction.
there were loads of instances in my life where i noticed small details that most of people wouldnt notice and after googling them one word kept coming up - universe. so automatically when you start look into that law of attraction and manifestation come up as well, they all g hand in hand like little happy family.
So law of attraction is something you all definitely had experience with. Basically its what you put out to the world is what you get. Simple change of mindset can change everything in your life. Have you noticed when you are happy and spreading happiness everything around you seems nicer, people are nicer to you, nice things happen and then when you are in bad mood everything is going bad.
Sounds familiar? That is law of attraction for you people. you’re releasing/giving good vibes to the atmosphere and people around you so universe makes sure to give good things back. notice that give and take relationship here? Dont be fooled tho, its not always as simple as it sounds. it is especially hard when you get into that deep hole of feeling bad a and depressed. it is really hard to change your train of thoughts and get yourself to think positive. universe wont award you for one good thought, it has to be series of it and you really need to feel them. you truly need to be in a good moment to get something back from universe.
say thank you to people serving you, ask people how are they, show that you care, pick up a paper from street and throw it in a bin, smile to everyone, pet a random animal on a street, anything counts. and dont do it just because you expect something huge from universe as most of the time universe will give back with good things as well, someone will help you, smeone will compliment you, you’ll get free cup of coffee, just random things like that. you will be surprised that good things will come to you in a moment you need. it also makes you more grateful for everything in your life and makes your everyday nicer and more positive.
then we come to manifestation.
thiiiiiis my people is bit more complicated than just law of attraction, but one without other does not go. there is no definition of the manifestation, but it is a fact that if you want something really bad universe will give it to you. i had universe manifest so many of my things that i wanted, just took a bit of time. maybe it has happened for you too. sit and think how many things did you wish for and you have them now? there are certainly more than few things that come to your mind. i can easily name at least 10 things that universe manifested for me without even realizing that was it.
there are many ways to manifest something and it is impossible for me to write everything about it in this post as it is bit more complicated than law of attraction, but i will try to outline some things and believe me when you google manifestation you will find loads of examples and you can read for days about it.
every single wish you want to manifest you can, it just requires some work and that is the hardest part. there are many ways of manifesting something, scribbling, drawing, visualizing, meditating and many more - you need to find something that works the best for you. you need to have clear vision of what you want (general idea wont work), you have to want it really strongly and you need to start working towards it, even little steps - remember when i said you have to give to receive, same with universe. it wont just drop it in your lap because you decided it would be beneficial for you.
and have in mind very important thing universe will always provide and it will give you what you deserve when you are ready for it.
so yes, it means it can take waaaay longer than you expect it, it may not be hours, days it may be years, it just means that you are not ready for it yet but that doesnt mean universe is not working on bringing it to you. all the work you put into it will definitely be worth it.
for example i fell in love in marketing in university and always wanted a job in that field. it did not get easy to me at all. i spent long five years applying for the jobs and either getting rejections or no answer. and believe me that could put me in such bad mood sometimes that i just wanted to give up on everything. add to that anxiety struggles and that makes it even harder. and as mentioned in the last year i worked on myself mentally, my anxiety has been on lower levels for a while and it does spike up now and then and it messes things up, but i’ve been happier mentally then i ever was in last 5 years and towards end of the last year more and more good things started to come my way and then i finally got that long awaited job.
i am still looking a proper way to thank universe for making it happen for me as that is also important thing for manifestation.
going to use myself as example - being a cheerleader, moving to another country, going to enrique iglesias concerts, visiting loch ness and Neuschwanstein Castle and many more were just big wishes at one point and so far they all came true and i couldnt be happier. it can be small things as well, once i tried to test it and i wanted to manifest a drink date. so i kept thinking how i will go for a drink with someone next week. and it happened, next week i went for a drink with a guy i just met, completely unexpectedly. i didnt specify anything else other than gooing for a drink at that was the only thing that happened.
once wished for more money (also nothing specific stupid me haha) and after two days i found €5 on the floor. not much but universe did provide what i wanted :D
as i’ve said, manifestation is more complicated than law attraction and requires strong mind and strong will, so not only that you get what you wish and work for - it makes you a better person as well! To end this i am going to leave couple of links you can visit and see more about them, or if you’re more adventurous just google manifestation and enjoy your journey :) https://medium.com/thrive-global/9-principles-of-conscious-manifestation-3d2df7a4a87
https://elysesantilli.com/what-is-manifestation/
https://blog.mindvalley.com/manifestation/
https://www.youtube.com/channel/UCZNFXNnKOLdA5ZD7Sn2p5aQ/videos
https://www.youtube.com/channel/UCvptCAXYmDZMOffniGRfomQ/videos
#new post#manifestation#law of attraction#universe#believe#follow#Followme#follow for follow#fun#religion#thoughts
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dead mans coffee
July / 2020
Just woke up in my front seat, at a rest stop in Tennessee. First thing I saw was my ALL WILL SUFFER tattoo on my leg. A constant reminder of a different person. Tomorrow I’m getting coffee with Skrillex’s right hand man in Nashville, and I’m nursing a cold coffee in the heat watching this crazy lightning shoot across the skyline. It looks like the end of the world. Or some fucked up Lucero song. I must’ve pulled over for a second and closed my eyes and just dropped dead for hours while parked, I’m on the way to my hotel.
I am sitting in a diner on broadway in Nashville, TN. Nursing another shitty coffee booking meetings. As the texts come in I ignore them because they are covering the screen and distracting me from reading and studying how to properly sell my soul to the devil at the crossroads In Mississippi.
Clarksdale, Mississippi
12:30 am
Where Robert Johnson, Bob Dylan, and now, Matty Carlock, sold their souls to the devil.
December / 2020
Sitting in my home, in Hollywood, CA. I have the window open, and I hear the subtle sound of LA breathing, cars passing on the boulevard, sirens off in the distance, and a vinyl record of mine spinning at the lowest volume possible for me to still hear yet ignore it. I feel calm and at peace, although, it seems like a parallel feeling is war, confusion, imposter syndrome, abandonment, and skeptical. How could these two umbrellas of emotion coexist? Its very interesting. Ive been recording so much music that has nothing to do with my artist project. Its been liberating to put that aside for something greater. A new focus. Leaving artistry a vessel solely for extreme self expression and cathartic release.
July / 2020
Winding the day down, 10:30pm. With an open tab that reads “Tigers Jaw holiday show” - on pause. I open my Mac book on my couch, ready to go through stems and ratchet strip club beats, and it catches my eye. I press play and it leads me down a rabbit hole. I find myself watching “Never Saw It Coming” right into “Chemicals” / live in Boston. Like lightning it struck through my entire body. Maybe it was the 2 hour long conversation with Andy? And the memories we were trading. The bond we have over hard times, innocence, violence, literal blood on the pavement, years of freezing in the winter....nowhere to go. The people that were around - we made forever memories to these two songs. I right away, made a playlist that consists of “The Sun, I Saw Water, Chemicals, Never Saw It Coming, and Planes”. On top of that I found the live acoustic set they recorded and put out. When I was young on DIY tours, sleeping on floors, dirty as shit, poor as shit, a human being at the very best.....the uncertainty of my near future was so bleak. I remember Title Fight came out with their record “Shed” - and the song “where am I?” would lay me down on long drives, or on the floor. I’d watch white lines pass one by one by one into the abyss of nothing.
The line
“Another floor
A different ceiling than the night before
Where am I?
While you’re back home”
Missing my girlfriend at that current time, leaving, and just laying on a strangers floor thinking where am I while you’re back home? What am I doing? Maybe there’s nothing only this moment?
On the tigers jaw live EP they covered this acoustic and it’s everything right now. I am fortunate to live a block away from the sunset strip - and I grabbed my skateboard and just bolted into the night.
This SO SPECIFIC FEELING of these songs. That nobody in this environment will ever understand. It’s so beautiful. It’s so real. It’s so raw. It’s exactly what I need right now - as the past 3 weeks I’ve been living here have moved faster than the past 4 years. A loss of identity easily awaits you. It’s like you fight your whole life for that moment, to get to where you dream of, to get a shot. Scrape and crawl. And then reset. Since I’ve been living in Hollywood my day to day has been a huge mirror for me. The parts of myself I’ve been trying out run have caught me. Maybe all of this could coexist?
March 2nd / 2021
Spring is here. Its 75 degrees in LA and theres this new thing I noticed while driving around…..the overbearing smell of flowers in the air. It sounds like a movie. Its fucked up cause It felt like a funeral in my car. I was like what the fuck is happening? It smells like a small funeral in here….are my dreams dying? Am I dying? Is punk dead? Okay its just a Ryan gosling movie out here I guess. Whatever lets go. Here’s some hatrebreed. But the windows are down. My mood is different. My spirit is lifted, which ive been desperate to say. I automatically get punched in the guts with the feeling of driving so fucking fast, and blasting title fight. Skateboarding. Looooooooooong drives with fucked up friends to out of state shows no one will be at. Im listening to Stab by Title Fight - off the Shed LP. What a specific time in my life this brings back. That I usually talk about on this little throw up blog often. Spring is such a pivotal time in my life every year. Since covid shows stopped - human decency stopped - community stopped - my natural habitat was taken from me, and all of my friends and family. I remember living in New York in 2011. At the New Yorker. I was studying at the Institute Of Audio Research to be a janitor in my home town. Because that’s what they teach you. Instead of studying compression, and listening to washed up hacks talk to me about music, I would walk out my building onto 8th ave. B Line it Penn Station. Get on the LIRR and ride that shit right into the best LI shows every night I could. Id meet all my friends from Jersey / NYC / Philly and even Baltimore because it was so common to make it a priority to no matter what, drive hours on end to support a hardcore shows and to not lose touch with the hundreds around the country that you call family. Drive to Richmond for a shows on a Monday night, go off, hit a diner after with your new found tribe, then drive home, be back at 6 am, and just stumble into your bullshit job with a black eye or scratches all over you. It was all worth it. Probably quit that job anyway to go on tour with your friends band and live as gypsies for the entire summer too. Spring embodies this spirit for me. Church parking lots in Doylestown, PA - full of kids from all over the country, who left their problems in their hometown, to just get on the road with their best friends and basically start a new life. It is just amazing how formative those years were for a lot of my friends. I have people I met at shows from all over the country messaging me always checking in, and supporting, and sometimes it feels like I know them better than my first cousins, aunts and uncles. We were at war together. We fought against the world together. We found ourselves together. We created shit from nothing. Determination and passion. Oh no….Planes by Tigers Jaw just came on. You know the vibe. This shit just hits so different now as a pop / hip hop producer. This PA scene, mixed with NJHC, just stood me up and gave me confidence to have my own voice, my own thoughts, and to fight back. Something about being in a shitty car and it smells like dirty vans and like…..axe to cover up the smell. BELTING Basement and car moshing and almost driving off a bridge. Listen. I know every single blog is about this. But fuck you fight me. ITS CALLED SELF EXPRESSION GRANDMA. SO STRAP INTO YOUR BOOT THINGS AND ENJOY THE RIDE TO NOWHERE. Its been crazy living in LA. I live directly on Hollywood BLVD, on the Walk Of Fame. Where I was almost killed two weeks ago over someones gang that my ass is not in. My guy looked at me and said YO YOU MATTY? And I was listening to Taylor swift in my headphones walking back from Starbucks and it was so funny how different my energy was. I was like bro can you kill me already dude because these Taylor tones are so good that they gunna just end up killing me anyway. So perfect timing. I think the guy was mad at my friend to say the least lol. But every night its loud 808’s, the sounds of the city, amazing energy, and neon lights shining in from lit up billboards off the BLVD. Its such a culture shock for me. I feel like im too aggressive just from being east coast. But its just what it is. It took me a little to adapt to being in sessions and meetings with seasoned people in this industry who have major cuts and recognition. But I just learned to double down on myself, and be as authentic as I possibly can be. Theres nothing like crushing writing sessions in the pop realm, then turning off my shit, unplugging, and run into the night with my skateboard and old punk records. It’s almost like my own secret that is becoming my blood. I haven’t been communicating with the ones who like my music, have interest in what im doing, come to my shows etc - since I touched down here….I just unplugged….started writing HEAVY and decided to dedicate months to getting better, learning, becoming smarter, discovering a vision that’s much broader than what were sold, finding myself, making sure my wisdom is parallel to my age - if not wise beyond my years. A lot of artists and bands SING, PLAY, PERFORM, PROMOTE. But I have decided to WATCH, ATTEND, and LISTEN. Everynight I sit down with tea, unplug, and spin records on my turntable…in the dark, in my living room, alone….all kinds of records. From The National, to Springsteen, to Title Fight, to Hendrix, to the rare Troublemaker LP and 7” I have…..Sharon Van Etten, Jesse Malin…..ugh. Its just bliss. Pure bliss. Right now im drinking coffee and bouncing from listening to Into It Over It and American Football. I spent all last night rapping my ass off, mixing, and singing ref vocals for other people. It was so fun. Im finding a lot of my new material is this spirit im talking about - but over hip hop production. I want to tell my life story and combat the stereotypes of modern rap and pop music with true intentions and unique tones of untold stories that press, radio, and this market usually doesn’t get fed. Ive also realized a lot of music I was promoting over the past year to come out (prior to the pandemic) hasn’t come out….and I know people are questioning that….what is happening? So before covid I had German solo dates booked - and then I was going to the UK right after. I have a bunch of single drops lined up with music videos. Some you can guess with who. And then the pandemic hit and I canceled everything and decided to pivot my focus into my passion for songwriting and production, instead of sitting around “waiting for shows to come back.” I pretended that shows were never going to come back and doubled down on my career as a producer, that at the time, still is, moving forward at a faster rate than my artist shit. So I packed my shit after offers, and opportunity presented themselves. Touched down on a Tuesday, with meetings that Friday. Off to the races. In sessions that following Monday. Fast forward here we are. Hungry, learning, learnt, turned 30. Looking at the next decade like Mcgregor at the weigh in. Fight ready. Ive learned so much since the fall that all of the music I had planned on releasing, I loaded it back up, tore it apart, and re built it. So its not stale, so its not expired, so its not “then”….so its NOW. Which im so glad I did, and im doing. I don’t think ive been in the booth more. My mind is so stimulated by this wave im on. And its got me in a good place. Now that the spirit of spring is here, my mental health is going to be taking a big leap as well and im going to do everything I can to just flood all of this content. I think Never Meant by American Football is the best song ever made. Me and Mike were talking about doing a song together a few months ago and that would be such a trip for me.
I wanted to talk about my recent trip to Joshua Tree. I was invited by Christopher Thorn from Blind Melon to live at his studio for a few days to write together. I didn’t really know what to expect. I met him once or twice thru Clinch, and just around the Sea Hear Now circle back east, and I was familiar with No Rain (his hit). We got on the phone, picked a weekend where it’d work for both of us, got some covid tests, and boom. Packed my shit again (right off a flight back from New York, where I shot 3 music videos, and did 1 remote session in 2 fucking days), and drove out to the desert. There is no address so I had a map. It was epic. It was in the desert desert. Like THE DESERT FAM. Coyotes at night, snakes and shit. The air was so dry, your lips would get chapped to let you know death was right around the corner so you better man up baby boy. Beforehand - from all the traveling and flights, and burning myself out on videos and sessions, I found myself listening to a lot of acoustic Nebraska Springsteen type shit. John Moreland, or even like acoustic bayside, Lucero, Leonard Cohen, Tom Waits…..just pure music with no samples, not gridded, not sold, no machine, no click, just real live country music inspired by the human condition….of the earth. It was just speaking to my soul…..so when we booked this to get in the room together….man was I ready. I don’t think ive had an experience so fruitful to the soul. And ive played shows in Slovenia, and sipped espresso on a bridge that looked like a painting, staring at subtle mountain tops off in the distance like I was a character in some book. We started working at night and ran it up till like 3 am. As the sun came down the lights off in the distance miles and miles away were so clear because we were just the only life form around….and it would just shine into the studio windows and reflect on the perimeter making it seem like we were surrounded by New York City. It did a lot for my soul to play drums, acoustic, sing, play piano, shred electric, even mix a little. I felt like I made a very fast lifelong friend. Its been a minute since I got on with someone like that. We talked a lot about growing up touring. And wed finish each others sentences regarding topics that ONLY people like us would know. Like Subway being a life line for DIY touring, or the weird strange feelings of comfort from rest stops in the middle of nowhere at 4 am, the rest stop coffee that you get to just make the next 2 hours of the drive into town bearable. But then you see your boy from your band in the other aisle so you throw shit at him. Then you all stumble back into the van/bus and just disappear into the night. This shit was so needed for me. When Id wake up, id make espresso, and just sit out front and listen to Joe Rogan, at this random chair that was behind his studio, facing the mountains. Just endless property waiting to leave you 6 feet in the ground. I sat there and sipped my espresso, and just reflected on the long journey of my career. How many random moments like this ive found myself in since I was 15. In the middle of the desert where Springsteen hangs out with my heroes, off the strength of my songwriting. Or in Romania drinking coffee, fucked off, on a bench far from the venue, by random train lines in the pouring rain by myself. The farthest from humanity I can be. Or the random VFW hall in my head that I don’t even know where it is, with my little punk crew, who all smell like complete shit and cigarettes and soda, fucked off god knows where, just to finger point and sing along to this band we found on myspace that were in OUR hometown the weekend prior singing to our band. Theres just an endless string of memories that can go on forever, with stories that just fulfill a lifetime, of conversations that just make the white lines on I95 move faster. Or just everyone is quiet - reading a book - texting - exhausted from the night prior - and you just ABRUPTLY turn on teenage dream by Katy Perry SOOOO LOUD - take your shirt off and start dropping it like its hot from the passenger front seat, and catch a mid afternoon front flip stage dive into the backseat. From those youthful days of this underground spirit, to existing in a realm of pure monsters of my craft, I truly believe this next decade could co exist and be one for the books. Damn I feel good. Also me and Sasso started a book club called BSU and you can’t be in it because you probably read books and the only rule for our book club besides not speaking about book club is, you can’t read books. Okay im going to go buy a bike right now so I can ride It to Mexico and get abducted by the cartel and sold for bitcoin. FAREWELL EARTHLINGZ.
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I know it’s all supposed to be positive for the people watching and i’m supposed to say that it’s going to get better if you’re struggling! But it doesn’t. It’s not any better than it was before. Hell, it’s worse in it’s own way.
There was no Christmas this year. There was no tree, no lights, no presents. No holiday spirit. Nobody was happy. Cats got in the fridge and got our Christmas dinner. We have no money. None. Not a damn dime to our names. So I sold my Xbox, the only thing I have of value left. Then I spent half of the $100 I got for it on Christmas presents for a kid I have seen approximately once this year, my nephew.
I passed off $20 to my mother to fuel her alcohol and nicotine addiction. Went to Walmart to buy the presents for my nephew, and someone stole his biggest present out of our buggy. I needed tampons, and wanted a little pack of incense, got neither.
Im moving out tomorrow, and the people im moving in with probably don’t even fucking want me. I can’t work, I have no income, I’m essentially fucking worthless unless it comes to household tasks.
They would be a lot better off if I just went ahead and killed myself.
But I’m too chickenshit to find out what happens after death.
So yeah, maybe it gets better for some. Bad things only happen to somebody else right? But to everyone else? YOU are somebody else. I’m that somebody else.
Hope is nice, but hope doesn’t feed you when you’re starving. Hope doesn’t pay the power bill. Hope doesn’t stop the padlocks from being put on your door because you can’t afford the taxes on your house.
Hope isn’t going to dig you out of the hole you found yourself in.
#negative#long post#i’m not going to pretend like everything’s OK because it isn’t#the shit happening to me? Could happen to you or anyone else#sometimes you wonder if you would have been better off killing yourself when you were 19#and you reach 22#turns out the answer is yes
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A Winter CSF Leak Update
I’ve received many very similar emails and DMs during the last few days.
“Jodi…?” the messages start out. “I don’t want to bother you but it has been a long time since you posted, and I’m really starting to worry.”
“Jodi: blink twice if you’re ok?”
“Jodi, here is a llama walking into an optometrist’s office in France. I thought of you! Also, ARE YOU OK?”
In a world of easy access to people’s inboxes, readers have only been a pleasure, a virtual cloud of warmth and never a burden. And when so many of you ping at once, I know I am due for an update. In this slow bedrest state, life feels like a woozy Groundhog Day. I love the filaments that connect me to so many of you, reminding me not to lose track of time entirely. I am so humbled by your care.
***
When I was a kid, my mother said my first word was a word. Instead of continuing along those lines, apparently the next thing I started said was a sentence, “see car go by.”
“And then,” my family jokes, “she never stopped talking!”
Being at a loss for words is not a problem I normally have. But yes, I have been very lax at updating because it’s been hard to find words for what I’m feeling.
A Leaky Anniversary
January 26 was the one year anniversary of the patch that sealed me last year. I had a really rough and heart-wrenching time reckoning with where I am on this anniversary. Instead of scaffolding off the slow and arduous recovery that followed the anaphylaxis and procedure, I am in bed.
Again.
For many months.
If you’re just tuning in, the CSF leak that sealed up and was healing reopened because I sat on the ground. Gingerly. Not even enthusiastically. I went from 4-5km walks a day, to no walking in record time.
At first, I was in extreme denial that something so small, so inhibited could blow out the scar tissue that had months to form. But one by one, each symptom I had in 2017 came back. I keep detailed daily logs of every symptom, supplement or mediation, and food. I couldn’t deny what I was experiencing.
Then, the grief. The anger. The deep sadness, the kind that suffocates all hope.
We learn about the “stages of grief” in popular culture, but what happens when they just cycle over and over? When you think you’ve come out the other side and can breathe again, when you tilt your face up at a brighter-than-you-remembered sun, only to find that you’re back in the dark?
***
My body, when I releaked, was in far better shape than the initial leak in 2017. Labs last summer showed improvements and lower inflammatory markers. I tried to stay positive. My friends and family came to visit. My inbox overflowed with llama photos.
As fall turned to winter, I saw some wonderful improvements. I stopped having the “brain sag” of my brain smushing into my spine due to low pressure. I moved into “high pressure” again, which is usually a symptom of the leak starting to seal over — the extra CSF produced while leaking backs up against the hole now tentatively closed. I started on the meds to lower intracranial pressure to prevent the fragile seal from bursting due to pressure. I felt cautiously optimistic.
And then a few weeks later in mid-December, I had an awful nightmare in my sleep. I remember it perfectly. And I also remember what woke me up: the excruciating pain in my back.
After an epidural blood patch to seal a CSF leak, the discharge instructions note that there’s to be no bending, lifting, or twisting for many weeks, but also that coughing or sneezing can blow out the patch due to intrathecal pressure. Many fellow leakers have blown out their patches — a clot or glue covering the leak temporarily while your own body can heal with scar tissue underneath — from constipation (pushing), sneezing, coughing, laughing.
Suspend your humanness while you can, the unsaid instructions whisper. Don’t do anything that can compromise this seal.
In my case, this nightmare I had blew out the seal and I was back to square one.
The Roller-Coaster of Ups and Downs
It is difficult for me to express the crazy-making nature of this condition.
No imaging sensitive enough to show a leak in many cases, including where it is located in the spine. Many people are chronically misdiagnosed because their imaging is normal. Normal imaging, the leak experts have learned, does not exclude a leak.
So the best way to know if you are leaking is via your symptoms, which only exacerbates your anxiety about what may or may not be happening in your body. It is a very tough, very exhausting dance to undertake. I have struggled the most with this balance of attempting to stay in touch with my body while also uncurling my clenched hands from the eventual outcome. Science tells us that focusing ad nauseum on our pain can magnify it in our minds, hence the usefulness of mindfulness and other meditation.
When your condition requires a focus on pain, and you also know you need to stay equanimous to heal effectively? That is a total mindfuck.
***
In mid-December, a close family member took a turn for the very worse. The funeral was around Christmas. I was too unwell to attend. Combined with the Re-Re-leak, I spiralled pretty solidly into a very bleak place.
If I’ve learned anything in this madness, it’s that staying in the black hole of despair is not how you heal. With the crutches of visits and calls from close friends, someone to talk with who specializes in grief, and the tools I’ve drawn on at the worst of times, I was able to wrench myself to a better place.
But still, I am not sealed and healed.
***
I put off Duke when I re-leaked because of what happened during the last round of patching. There is a lesson about anxiety in that procedure too: in my most creative of nightmares, I never imagined anaphylaxis as part of what could go wrong.
But it did, and while they will not use fibrin glue again (suspecting that was the cause for anaphylaxis), I’ve written about how my body seems to be stuck in that very reactive, anaphylax-y place. My mast cells degranulated all over the place and LOVED it. They seem to enjoy doing so again and again since, not only to foods but also smells – and even hot showers.
Given how pear-shaped things went last time, I wanted to give my body a long chance to seal before committing to another procedure. When I did seemingly seal up in November, I was so thrilled. It didn’t (and doesn’t) matter to me if it takes a long time, though my parents have the patience of saints. If slow and steady was the way, I was ok with that as long as I sealed up.
I will be honest: my turbulent December and January have tested the limits of my capacity for grace and patience and hope. I have been on bedrest for quite a few months. While I’m not bored, the pain levels are pretty unconscionable and keeping my spirit up has been a mighty challenge.
From my own calculus: if I do need to go back to Duke, I want to know I gave my body a full shot.
That way, if – IF – things go awry again during a procedure, I won’t be able to look back and say, “should have given it a bit more time.”
***
So where are we now? It’s February, and almost at my favourite holiday in the world: Vietnamese lunar new year or Tet. An amazing reader named Wendy just sent me a pic of lamp in my name from her family’s temple in Malaysia, a New Year wish of health and prosperity. Lunar new year was a time for reflection and cleaning and cleansing for my years in Asia, and I’ve kept that spirit during my return to Mexico and Canada. New Year starts in a few days, and with it I hope a better climate for healing.
I have seen such progress since the re-leak, progress I didn’t see when first in bed in 2017. I keep flipping into high pressure as it starts to seal, then unsealing. It may be that I need intervention after all, but I still have hope that the JodiDura-that-could comes through this winter. I’m eating a strict and healthy diet, meditating, visualizing, consistently working to bring my mind into a better space.
If I can’t seal during the winter, it certainly won’t be because I didn’t try.
Learning to be the Tortoise
There once was a speedy hare who bragged about how fast he could run. Tired of hearing him boast, Slow and Steady, the tortoise, challenged him to a race. All the animals in the forest gathered to watch. Hare ran down the road for a while and then and paused to rest. He looked back at Slow and Steady and cried out, “How do you expect to win this race when you are walking along at your slow, slow pace?” Hare stretched himself out alongside the road and fell asleep, thinking, “There is plenty of time to relax.” Slow and Steady walked and walked. He never, ever stopped until he came to the finish line. The animals who were watching cheered so loudly for Tortoise, they woke up Hare. Hare stretched and yawned and began to run again, but it was too late. Tortoise was over the line. After that, Hare always reminded himself, “Don’t brag about your lightning pace, for Slow and Steady won the race!”
The moral lesson of the Aesop’s “Tortoise and the Hare” fable is that sometimes you can be more successful by doing things slowly and steadily than by rash action. The race (of life) isn’t necessarily won by the fastest or strongest animal, but by those who persist in the face of obstacles – including the obstacle of time.
I undertook my life in the stubborn spirit of the hare.
I went to law school straight from grade 13 (CEGEP, in Quebec) because someone bet me I couldn’t get in. I took a job in NYC because on my first day of law school, someone said, “you don’t deserve to be here. Go back to high school where you belong. And don’t bother getting a job in New York City – you’ll never succeed.” When I quit my law job, it wasn’t for a two month trip, it was for an open jaw adventure to Siberia that unfurled into a glorious and food-filled new career.
My identity for years was the lawyer who quit her job to eat soup. As I’ve laid in bed on and off since 2017, I’ve watched the travel industry and my fellow writers move on with their lives. Mine feels very stuck. I am very unused to not being able to solve problems by DOING, and it is a monumental shift in my mindset. Above and beyond the leak, my health will require a different way of approaching work.
Apparently it’s time to be the tortoise.
Tortoise pic from one of the first adventures in my round-the-world trip: the Galapagos Islands in Ecuador
I’m still feeling around the edges of what that means for me. Sealing and healing will require me to change a lot about how I approach work and achievement, because excessive doing is a surefire way to undo my progress. There’s a lot here I hope to write about in the future, about learning to get under your mind and into your heart.
About listening to your body before it’s too late.
About not necessarily taking every bet that comes your way as a life challenge.
For now, though, I don’t know what I will redefine life “as.” I trust that it will unfold in its own way. While mourning the life I had, I also feel curious about what comes next.
But first: this leak in my spine needs to be firmly sealed for me to get walking again.
***
Thank you all as always for the caring notes, the questions, and the overwhelming support and love. I am extraordinarily lucky to have such a robust army of cheerleaders around the world.
Many of you have dedicated your meditation practices to my health, and for that I am grateful. I do plan to restart the group meditations next week, on Sunday February 10th. If you are interested in joining, the first 7 weeks are here, and you can enjoy any of the meditations as the tracks are all on that post.
I have been meditating alone here, but with all that unfolded I couldn’t manage the group ones during the holidays. I appreciate how many emails I’ve received asking when they’ll restart, and I am so glad many of you find them helpful and a source of light.
I haven’t written publicly in a long time, but typing this post out with my thumbs felt very good. I missed it. And though I would still be writing if no one was reading, I’m glad to go through this very tough journey with a community like you to help make things better along the way.
Jodi
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