#ibdmomsonthehill

[crazycreolemommy]

Ready for the advocacy marathon! Coffee brewed, pencils sharpened and devices charged. @crohnscolitisfoundation #DayOnTheHill has officially begun with #TeamCalifornia virtually from our couches. • My follow-ups are usually done from the comfort of my home or an airplane. However, the best advocating is down with a resounding group voice. So, #IBD patients, caregivers, advocates, and physicians are gathering today with the Crohn’s & Colitis Foundation to advocate for legislation that could increase the quality of life for those affected by IBD. • Today we are asking for Senators and members of The House of Representatives to co-sponsor two bi-partisan bills in the House and Senate. The Safe Step Act and the Medical Nutrition Equity Act. The Safe Step Act helps to reform Step Therapy on the federal level (specifically employer-sponsored insurance) and will help patients with chronic conditions across the board. The Medical Nutrition Equity Act will help patients get insurance coverage for their medical foods without having to go the surgical route of getting a feeding tube. • These bills can help to change patient’s lives significantly. Your stories can help gain co-sponsors. If you would like to share your story, please dm me. Also share your story using the hashtags: #StepUp4IBD & #ibdmomsonthehill (if you’re a mom affected by IBD). Our democracy changes its course when you help to steer it! https://www.instagram.com/p/CAar159jvKD/?igshid=1dnbz26ngvrh2

[ibdmoms-blog]

It’s s beautiful day in the neighborhood. The IBDMoms (@about_ibd & @crazycreolemama ) are on Capitol Hill with @digestivehealthmatters . We are advocating for a robust legislative agenda put together by the #IFFGD & @ddnc for Gastro related diseases. • Do you have questions for us? Concerns to share? Stories to give? Comment, dm, email. #iffgdhillday #ibdmomsonthehill (at Washington, District of Columbia) https://www.instagram.com/p/BzGN6OBAKfS/?igshid=133a19xjokfc4

[crazycreolemommy]

Wondering how you can participate tomorrow? • please post photos here on Instagram and in your Instagram stories and share using the hashtags: #safestepact #steptherapyreform #ibdmomsonthehill https://www.instagram.com/p/B4yeJigAgcn/?igshid=1m04r1qait2fi

[crazycreolemommy]

On my darkest days, when things feel out of control, I remember who I am and what I’m capable of. • Here is where I take control. Using my voice, my platform, my resources, my passion to create change for all. • Monday and Tuesday I will be in Washington D.C. with @digestivehealthmatters to advocate for legislation related to Gastro diseases. Bills like Step Therapy Reform & patient protections in healthcare coverage. All essential elements to living as a healthy person. • Follow me, @about_ibd & @ibdmoms for information straight from #CapitolHill! #ibdmomsonthehill #crazycreolelobbyingmommy 📸: me https://www.instagram.com/p/BzELF_hAipF/?igshid=19c1u5lfmg00w

[crazycreolemommy]

Tomorrow is another day on Capitol Hill. I’m honored to have the ability, the access and the platform to be able to help change things for patients at the legislative level. So ready for tomorrow! ❤️ #ibdmomsonthehill #ibdmoms #crazycreolemommylife #crazycreolelobbyingmommy #ibdindc #advocacy (at The White House) https://www.instagram.com/p/BxOblbJA6iB/?igshid=1hmx8mq9ffwl5

[crazycreolemommy]

Tell us your stories. Let us take them with us to The Hill tomorrow! • Today is the deadline. Please send in your stories by 6pm est, TODAY! • Be The Change! • • • • • #healthcare #advocacy #ibd #chroniccondition #patientstories #ibdmoms #ibdmomsonthehill #ibdindc #capitolhill (at Philadelphia, Pennsylvania) https://www.instagram.com/p/BxM7wVbgNu5/?igshid=16fmgj7vh7kwt

[crazycreolemommy]

The women in my family have never been able to keep quiet whenever they see something is wrong. Publicly or privately, I was taught to stand up for the right thing. • So, if you’ve followed me for a while, you know that I often go to #WashingtonDC to advocate on behalf of patients to Congress. The why is very easy. I’m a patient and someone spoke up for me, when I couldn’t speak for myself. Someone made sure that research and development on chronic diseases had a proper budget. That healthcare legislation that included patients with pre existing conditions was passed. That pediatric patient stories were heard. Now it’s my turn to do my part. So I’m heading back to D.C. once again to do what needs to be done. • I’ll be joined my partner in crime, @about_ibd . So follow our @ibdmoms to get all the goods on what is happening on #CapitolHill! • • • • • #ibdmoms #ibdmomsonthehill #ibdindc #onthehill #advocacy #ibd #crohnsdisease #ulcerativecolitis #colitis #crohns #momlife #crazycreolelobbyingmommy https://www.instagram.com/p/BxKuG8RA0zx/?igshid=hn2eyfwujstc

[ibdmoms-blog]

We are going to #WashingtonDC again and we want to take YOUR stories!! Please help us change the way Congress sees patients, by using your voice! • Submit your story by May 8th at 6pm est. • #ibdindc #IBDMomsOnTheHill #Advocacy #Congress #IBDMoms #IBD #congress #healthcare #healthcarecoverage (at Washington, District of Columbia) https://www.instagram.com/p/BxBa7DoArJ4/?utm_source=ig_tumblr_share&igshid=1bo58xtvnyznt

[ibdmoms-blog]

Next week @about_ibd & @crazycreolemama will be back in Washington D.C. to talk to our legislators. This time we were invited by @crohnscolitisfoundation for their #PublicPolicy day on the hill. The CCF Day on the Hill is an annual event where the foundation and its volunteers visit lawmakers to to discuss legislation that affects #IBD patients. Follow us on all of our social media for live updates and information! • If you will be joining us for #ibdindc , please come up and take a pic. Perhaps if we have enough moms, we might have an impromptu #IBDMomsMeetup in #washingtondc ! • Don’t forget our twitter chat will be live from DC! • • • • • #ibd #ibdmoms #parenting #chronicillness #advocacy #ostomy #jpouch #crohns #ulcerativecolitis #lobbying #IBDMomsOnTheHill https://www.instagram.com/p/Bw-J-p1g6ig/?utm_source=ig_tumblr_share&igshid=osn9lsl5y9ju

[crazycreolemommy]

Listen to Democracy Revival! on TuneIn #NowPlaying #BreakingThrough #MomsRising #IBDMoms #BrookeAbbott #CrazyCreoleMommy #IBD #Parenting #SafeStepAct #Treatment #ChronicConditions #IBDonTheHill #IBDMomsOnTheHill #HealthCare