#ibd awarness

[karathraces]

it's funny how all the focus on psoriasis is appearance and not how serious it is when there's a girl on instagram with my level of severe rosacea and the comments are more vile than any i've seen about cutaneous psoriasis. and i was completely covered and didn't hide it and i only ever got rude comments about my rosacea and i don't go out without using concealer as foundation in the colder months now

[tropotropotropo]

Happy ostomy awareness day, tumblr! Feel free to ask me anything about having an ostomy.

[cfs-crohns-colitis-warrior]

IBD stands for inflammatory bowel disease. There are two main types of IBD: Ulcerative Colitis and Crohn’s Disease.

Ulcerative Colitis (otherwise known as UC) affects the large bowel.

Crohn’s Disease affects the who digestive tract, from mouth to anus.

IBD is an autoimmune disease, whereby your immune system attacks your body, and where it attacks depends on which version of IBD you have.

Both conditions can affect everyone differently, and some people manage better than others, through no fault of their own of course. Some people have long periods of remission and very little medication. Some people require long term medication. Some people require surgery.

No matter how your IBD is treated, the identifying symptoms are always the same. The symptoms include, but are not limited to:

- Needing the loo a lot, diarrhoea

- Blood in poo

- Sickness and nausea

- Stomach pains

- Fatigue

Anyone who suffers with IBD knows it’s no walk in the park, and there’s currently no cure. All we can do is try our best to manage our symptoms.

If you know multiple people with IBD, don’t expect them all do be able to do the same things or cope with their illness in the same way. IBD, just like any other chronic illness, affects everyone differently.

If anyone would like to reblog with more information, if you think I’ve missed anything or just want to add things I might not be aware of, please feel free to do so!

Happy World IBD Day!

[pacehpstuff]

Inflammatory Bowel Disease (IBD) Podcast- PACE Hospitals

IBD is a chronic inflammatory condition of the gastrointestinal tract, and it's more than just an inconvenience. It's a daily challenge for those who live with it, impacting everything from diet to daily routines. In this episode of Inflammatory Bowel Disease (IBD) Podcast, we'll unpack exactly what IBD is, its different forms, common symptoms, and the ongoing efforts in research and treatment.

PACE Hospitals believes in the holistic approach for the Patient Empowerment, along with catering the top notch treatment and patient care, it aims for the Preventive Care and Digital Health through health and wellness podcasts delivered by the Award winning team of medical experts. Subscribe for your dose of healthcare knowledge, inspiration, and hope.

Join our PACE Hospitals Podcast episode with Dr. Govind Verma - Interventional Gastroenterologist, Transplant Hepatologist & Endosonologoist at PACE Hospitals, Hitech City, Hyderabad, India, to understand that IBD is a complex and often misunderstood set of disorders that significantly impact the lives of those diagnosed. 

Subscribe for engaging conversations with PACE Hospitals experts as they discuss a wide range of health topics, from the intricacies of the human body to the latest innovations in healthcare. Your well-being is our priority, and we're here to guide you every step of the way. Join our medical podcast as we unravel the mysteries of health and provide practical advice for achieving your health and wellness goals.

[severinetherat]

It can tiring out there, take one of these with you.

[avpdvoidspace]

Watching something about a very cool person who is diagnosed with an obsessive compulsive spectrum disorder that drives an obsessive interest in playing video games in a very specific way. He's not autistic, not diagnosed not does he suspect himself that he's autistic, but frustratingly it seems that people popularly headcanon that diagnosis onto him. It's frustrating because obsessive compulsive spectrum disorders can also give you something very similar to 'special interests' but they have their own spin on them that this guy very clearly has. Clear to me because I'm also diagnosed with one of these disorders (ocpd, myself) and enjoy things in a very similar way that is both very specific and probably seems bizarre to an outside person.

I'm also tired of people assuming that because I'm neurodivergent and obsessive about interests that I must be autistic because it's not helpful for me to be categorized in a way that means my needs that are unique to having an OCSD won't be acknowledged or met.

I think it's great that there's more awareness around autism and that autistic people are advocating for themselves, but it also sucks to have lesser known or talked about neurodivergences lumped in with autism and adhd in a really unhelpful way.

Honestly I feel similarly about saying I have IBD and people assuming it's the same thing as IBS. They're both serious conditions but have completely different causes and, more importantly, treatments and triggers. Even if they cause some of the same symptoms, I couldn't possibly benefit from some of the things that could help someone with IBS.

[raapija]

Käärijä facts you need to know:

He's been perma-banned to Habbo Hotel for stealing people's shit

He has a vocational school qualification for interior design and upholstery (interior design was his dream job for a long time as he used to really like designing rooms in Habbo Hotel with stolen shit)

He's suffered from IBD since 2009, and has had his large intestine removed (he used to be embarrassed about it, but now speaks openly about his experience to spread awareness)

He used to be a scooter kid, proof:

The name "Käärijä" is a nickname he got from friends for always winning at betting games and getting all the money (kääriä rahaa=wrap up money/collect money, käärijä=wrapper/collector, it really doesn't translate to English that well 😂)

He has naturally blonde hair (and blue eyes)

He used to play hockey until he was 19

He debuted the bowl cut in 2015 and has kept it ever since

He's a huge Rammstein fan, hence the chest tattoo

He's said he'll never make music in English, only Finnish

He has a doppelganger named Häärijä, or Paidaton Kiehuja, who makes appearances during live shows (and somehow he's even shorter than Jere 🥺)

He had a translator in Liverpool, but didn't end up needing him as he learned the language so quickly and the broken English became a sort of a trademark for him

He lives in a 20m² apartment (and really wants to move out to a bigger one)

Before going green, he always wore a yellow suit to gigs (now still in use by Häärijä)

He used to play drums

He also used to steal Pokémon cards 💀

[fourtified-au]

Happy Pride Month!

We're nearly 10 days into June already BUT I'm glad that I could sit down and draw something for the occasion. Just in case it's hard to tell what flags they're wearing...

Tord: Bisexual, Biromantic Asexual, Aceflux, disability flag, and IBD awareness ribbon

Matt: Gay, Demisexual, and mental health awareness ribbon

Little bonus art from June 2023 that I never posted for some reason down below the cut LOL.

[yrfemmehusband]

It's endometriosis awareness month! Here's some general knowledge on my condition, as misinformation is constantly spread about it.

Endometriosis is a disease affecting 1 in 10 people with uteruses. A tissue similar to the endometrial lining, of period blood, grows and sheds on the outside of the uterus. As the menstrual cycle comes, the blood has nowhere to go. This causes intense pain and irritation to surrounding organs. It is one of the most painful diseases recorded.

Endometriosis was first discovered in 1860, though it was recognized in the Hippocratic Corpus around 4,000 years ago. Treatments have varied through the years, starting out with bloodletting, leeches, hanging upside down, exorcisms, genital mutilation, and chemical douches. During the Middle ages, the perception of chronic pelvic pain shifted from a recognized condition to something caused by hysteria, promiscuity, or it was made up. In the hayday of Hippocratic practice, Endometriosis was more common than it is today, likely due to the inaccessibility of diagnosis compared to 4,000 years ago. Somehow.

Today, treatments include birth control, surgery, hysterectomy, and pain relief. There is no cure.

It takes an average of 7-12 years for someone to receive a diagnosis.

Anyone can get endometriosis, including cis men

A hysterectomy is not a cure, as endometriosis will continue to grow and spread to other organs

The pain one experiences due to endometriosis does not correlate with staging. Staging reveals how extensive endometriosis lesions are, not pain. Someone with stage 1 could experience excruciating pain, while someone with stage 4 and frozen pelvis can experience no pain.

Endometriosis lesions are not endometrial lining. The tissue is similar, but not the same. Thus, no one actually knows what endometriosis actually is.

It is only diagnosable through laparoscopic surgery. It can be detected via imaging such as ultrasound or MRI, but more often than not, it isn't seen. You can have completely clear tests up until your surgery and still have even the higher stages of Endo (like me!) (this one was for all you undiagnosed people, you're not crazy!)

Endometriosis is comorbid with many things, including pelvic floor dysfunction, adenomyosis, vulvodynia, uterine cancer and fibroids, ovarian cancer, many autoimmune and inflammatory conditions (rheumatoid arthritis, MS, IBD), and cardiovascular disease.

I've provided links in each point and I deeply encourage you to read my sources, whether you have endo or not. Not enough people understand endometriosis so a lot of us who deal with it don't get grace or compassion, be it in our work lives, relationships, friendships, or family. People with endo, happy endometriosis awareness month.

[certifiedceliac]

hello!! I was curious if either of you have experience with being celiac/food allergies and living on college campus? I might be moving into a dorm next year and was wondering if you had any advice x

By the time I was diagnosed (the first time) I was apartment living in college, so I don't have first hand experience with dorms and celiac. I was on a meal plan at the beginning of my sophmore year but dropped it as it wasn't a good fit--our dining facility just wasn't equipped to minimize cross contact, and none of the fast food chains on campus had good options.

I would reach out to your student or dining services department and ask what policies/procedures they have in place for students with food allergies; is there a dedicated prep area or special handling they take for allergies in dining halls? Are there any groups on campus (formal or informal) for students that have food allergies? You could also reach out to housing or residential services and ask similar questions.

https://celiac.org/event/ibd-and-celiac-disease-college-transition/

If you're US based, Celiac.org is partnering a webinar tomorrow (April 25, 2024) that actually discusses transition to college life with Celiac and IBD!

The Food Allergy & Anaphylaxis Connection Team also has a ton of resources for navigating college with a food allergy. A lot of it is geared towards anaphylaxis responses, but some info is still relevant:

[cfs-crohns-colitis-warrior]

Today is World IBD Day!

I’ve had Crohn’s Colitis officially since the end of 2015, though we suspect I may have had it all my life when we look back at certain things from my childhood. However, 2014 I think is when symptoms were really starting to hint at IBD. I think the symptoms were brought on because I was very stressed after I had just entered the work world with an apprenticeship. I was struggling with the job and was also very annoyed at the low pay you get as an apprentice while having to do extra work outside of the job you’re being paid to do.

I finally went into hospital at the end of 2015 after losing a lot of weight and being unable to get out of bed except to dash to the loo for over a month. I was originally misdiagnosed as just having ulcerative colitis by the doctor who discharged me, and I wasn’t happy about it because she was very rude, and when I asked what UC was she told me that I was young and to Google it.

The following year my dentist referred me to a specialist team regarding my mouth ulcers and they diagnosed me with Crohn’s disease after taking a couple of biopsy’s. Since then, I’ve tried numerous medications, none of which worked well enough for me, and eventually ended up having surgery in 2017. I had a loop ileostomy to cut off flow to my large bowel and see if that helped. It did, but not enough, and my large bowel was just too diseased to keep, so at the start of 2018 I had surgery for a permanent end ileostomy and most of my large bowel removed.

Since then I’ve been well regarding the Crohn’s disease until very recently, where I’ve gone into another flare and am due an MRI scan soon to see what’s happening. I haven’t been brilliantly well since I also ended up developing ME/CFS, but on the Crohn’s side of things I’ve had a good few years at least where I was very much improved. I think I’ve only had flares brought on again due to trying to do too much, which then caused my body to go quite downhill and then I kept ending up with infections last year and had many hospital visits. It’s unsurprising really that that’s caused a new Crohn’s flare up, but fingers crossed a little bit of medication will treat this one and I can start to properly recover again.

Sending out love and care on this World IBD Day to anyone suffering with it. It’s an awful, incurable disease and can take so much of peoples lives away from them. If you have IBD, I wish you long lasting remissions, medications that work, and very long periods of good health!

[brightlotusmoon]

But there is also research to show that public health and well-being improves when high-quality restrooms are available—not only by improving access for people who need to go, but also by cutting down on health hazards like public defecation and urination.

Some states have passed legislation meant to ensure that people with certain chronic conditions, including IBD, can use businesses’ employee-only bathrooms when necessary. But these laws often don’t work as well as intended because of lacking compliance and awareness, prompting the Crohns & Colitis Foundation to start its Open Restrooms Movement.

[lebedame-wegelagerin]

Today is World IBD-Day and my beloved Girlfriend has written a very thorough Article on her Blog about this Disease that‘s been plaguing her for over a Decade and finally got diagnosed this Year, it‘s very informative and well-written, so I can only recommend reading it!

[girlhorse]

sorry to bother you, but you made a post talking about signs of GI issues in dogs and was wondering if you could tell me what helped you recognize that enzo has GI problems? it’s something i’m worried about my own dog struggling with, but i have 0 clue what to look for. don’t feel obligated to answer this!

well, first was at 6 months, i noticed Enzo started coughing after he drank, about every other time he drank. It was at first not something i thought much about before it became more consistent. My first vet suggested it could be collapsing trachea (literally only bc hes a toy breed) and said not to worry about it. I saw another vet at that practice, and since i was worried about it i asked her opinion. She said it was possible that it was GERD, and that we could try an antacid eventually to see if it would help.

Other symptoms that I figured were just puppy stuff (and may hve just been puppy stuff!): very rare vomitting of bile in the AM, being a picky eater particularly in the morning, and the very rare soft poop. A lot of these can be explained by pupoy stuff, puppies are notorious for "garbage gut" (eating nonfood items that makes them sick), and sometimes just have sensitive tummies. bilous vomitting in the morning isnt particularly unheard of in healthy dogs or in puppies, sometimes having an empty stomach can make dogs feel nauseous and throw up, but this is more common in dogs with gerd/acid reflux.

one other less common symptom is halitosis aka bad breath. especially if it smells foul, like puke. Puke smell would mean reflux. Other bad smells can be dental issues related to reflux or some dysbiosis in the gut.

GERD tends to get worse overnight, mostly because of how gravity is acting on the stomach. It's easier for stomach acid to travel up the esophagus when the dog is laying down.

Things got worse when he contracted giardia in March. After treatment, his symptoms were better but did not completely resolve. He still had softer stools and I was pretty much washing his butt every day. He also continued to show reflux signs - at this point coughing every single time he drank, and starting to show intermittent (but short) gulping episodes.

video of a gulping episode from today, which is basically just what dogs sometimes do when they feel stomach acid traveling up their esophagus:

These were new, but i was aware of what they were bc of my anxiety induced research spirals from before I knew what his cough was

He also was having bile vomit episodes a little more frequently, though not in a super concerning amount at first.

My vet prescribed a diff diet for Enzo after 2 weeks of no improvement post treatment, even though the fecal tests were negative. This diet worked amazing at first and had his stool firm immediately, I was impressed!

But shortly after, like a week later, he made himself sick by eating cat poop (my current theory) and he was having trouble holding food down for a couple of days. We dosed cerenia and he was fine for a couple days but continued ti have issues with bile vomitting that week. And about a week after he was feeling better, he had an episode of passing bloody stool.

Basically at that point we started screening him for IBD, since a lot of other issues were ruled out. So far nothing has come back conclusive. but before this week, he was doing great with the diet trial of hydrolized food and an added probiotic.

His symptom flared, i ASSUME, because I fed him a bit of chicken. His flare started with increase in coughing (which had gone away!) and progressed to soft stool and eventual reflux episodes especially directly following meals.

i hope this helped. every single dog presents GI issues differently. If you tell me what specifically is concerning you i might be able to help better but i am not a vet, just someone who researches a ton when shes anxious lol

anyway. gi issues suck!

[colitisandme]

World IBD day 🌏

I am one of the millions of warriors living with IBD. There’s numerous symptoms and when I say it’s life changing it absolutely is. Imagine having to scrutinise what you eat, drink, your own symptoms, what medications you take, the sleep quality you have, what your bowel movements are like, pain management and monitoring, if you are bleeding, if you are constipated, exhausted, the constant weight changes, the look out for infections, changes in symptoms, immune system responses, the memorising of toilet stops on a journey/ day out, the constant battles with our drs, in some countries the battles and fear over insurance issues, care costs, medication costs, the fear of accidents, the surgeries, causing some to require intervention and colostomy bags. The anxiety inducing emergency and regular hospital admissions and the constant fear that it could unmanageable. This disease kills. This disease alters lives, this disease is maddening, scary, fear inducing, causes anxiety, depression and loneliness. And yet this is happening to millions of us. Invisible but devastating. I am one of them.Today we raise awareness and stand together. Warriors always. I have met the most incredible, kind, selfless, brave, warm, compassionate beautiful people on this journey to understand my form of colitis, and IBD as a whole and they continue to fight battles of gargantuan scale. So never judge someone. You never know what a person is going through underneath the surface. Be kind always and use today to find out a bit more. Much love and light to you all.