#emgality

[st-chroma]

haven't had my injection to prevent migraines in over a month bc the specialty pharmacy just. didn't send me a single reminder email last month despite getting one just about every other day for months beforehand. you would think i could remember on my own, but i've got this throbbing pain in my head pretty constantly that makes things difficult to remember and nauseous and fucks up my vision and

[3liza]

hi eliza just wanted to thank you for all the information you’ve shared about your health and treatments etc. various pieces of your advice have really changed my life and outlook on chronic pain. 3 weeks of mexidol and I’ve noticed a few substantial differences. just curious are you still using it? any tips tricks stacking habits or anecdotal things you’ve noticed since the last time you mentioned it? guessing still with LDN. truly, thank you. your shared knowledge means more than I can communicate

it's so encouraging that you found some stuff that worked, thank you so much for letting me know.

im a big Mexidol fan rn!! i think i would like to take it for the rest of my life. i havent found any reports of long term use problems or toxicity, but all the research is in russian so we have to be cautious. i wish I could read all the russian research. i also was OFF mexidol for a weeks recently because of just slow shipping and i noticed a SIGNIFICANT difference. i felt cold all the time, my old nerve injuries started acting up again, various joint and ligament pain returned, and i got a migraine after really having a long stretch of no migraines. i also think my POTS got worse. i'm not sure about what would stack well with Mexidol, its similar as a molecule to vitamin B6 (if im not mistaken) so maybe we could look up stuff that goes well iwth that.

I'm still taking LDN and I think it does help a lot. recently ive been having bad sleep issues that remind me of narcolepsy, and I thought maybe it could be related to the recent new medications, so i tried changing doses and didn't notice any differences. unless it's the Emgality, which is a monthly injection and very long-acting so I can't really experiment with it unless I just delay my next dose, which I might try. the fucking sleep clinic booked me for JUNE.

JUNE.

i hate my life and i hate the fuckening government

[thanakite]

So the most commonly suggested thing that most people have at home that can be used as a sharps/needle disposal is a laundry detergent bottle

That is what I'm using and it worked fine for the Aimovig injectable I was using for my migraines (which either did nothing or made me worse)

Unfortunately, because of the failure of the Aimovig we decided to switch me to Emgality which I did for the first time last night, and the first injection is actually done as 2 injections

Unfortunately I went to put these in my laundry detergent/sharps disposal container and low-and-behold the top of the pen (where the needle is) is WAY too big to fit through either hole!

Like what the fuck?

So I'm of course having to stress about what I should do since these are used needles that need to be disposed of but also have the potential to accidentally stick me again

My eventual solution was to tape up the area and smash it with a hammer until it could be dropped in (taping it prevented the needle and the broken plastic from getting everywhere) and like it did work but was WAY too much work and literally makes no sense seeing as even the Emgality website suggests the detergent bottle for sharps disposal and yet their auto-injectors are incredibly difficult to get inside them

-_-

[renemesis]

⭐️ sure

HI BLAKE!! so doing a biiiig media jump with this one just bc. Well ♡

^PROFESSOR BURNET!! The left picture is from her original feature/debut in a now discontinued application released in conjunction with B2W2 called Pokemon Dream Radar! The right is from her core-game game debut in Sun and Moon! (As well as UsUm obvs hehe)

She studies dreams! Or specifically the "space between dreams and reality" ! She's an extremely kind person, finding and taking in one of the side-protags, an extremely competent professor and shown as very outgoing and likable overall :3 she sometimes get overshadowed by her husband, professor kukui, but she's just as important and fun of a character (ESPECIALLY in the manga, the games/anime don't always do her justice BUT THE MANGA!! GRINS)

^^burnet concept art hehe

[erebusvincent]

I’m trying Emgality on Friday instead of Aimovig because a friend told me she got superior relief from it. I’m looking forward to it because I do get frequent migraines despite taking Aimovig, Ubrelvy, gabapentin, and Botox for them.

[fortunesque]

So, Emgality seems to be helping my migraines, which is great, but...

Ngl, I don't like signing up for a jumpscare once a month with an auto-injector 😂

[v0idwraith]

anyone with chronic migraines who is on emgality how do i make it hurt less it literally takes me 30 minutes to make myself press the inject button

[vulpine111]

I think I did my Aimovig injection properly.

The only thing I'm worried about was how I twisted the orange cap slightly when I pulled it off. The instructions warn against that. The injector's window is yellow now, though. This indicates I got the full dose of medication in.

It might take a few months of treatment before I notice less headaches. If it doesn't work, then I can try Emgality like originally planned.

[lesboguy-moved]

16, 21, 30, 32, 62!

16: How exactly are you feeling at the moment?

sleepy.... i haven't been getting much sleep past few days cuz i've been working night shifts and i have another one tonight >_<

21: What are your plans for this weekend?

well THIS weekend is almost over but next weekend bunny my bestie bunny is coming over :-) picking em up from the airport on sunday yay

30: What’s irritating you right now?

bruh my cringe ass JOB mostly. never work retail it's hell on earth

32: What is your favourite color?

my good friend olive green

62: What makes you happy?

my doggy :-) and sorry to get gay on main but my besties love the besties a lot. erm viddy games... good food.. nap time.. lots of stuff in the world to be happy about

[3liza]

it's been several months since i quit the Emgality shots and my narcolepsy symptoms are withdrawing at exactly the same rate as the migraines are coming back which is really interesting from a neurological standpoint. but also i am in hell

[ohsweetzombiecthulhu]

I had to redo the emgality loading dose. I was cursing the company with everything I am.

pharmaceutical companies: some ppl who are dependent on injectable medications are scared of needles. to make this ordeal easier for them we have designed this autoinjector device that hurts much more than a regular needle :) 

[yellbug]

every time my body tries to have a migraine but it can't create headache pain because of the medicine i'm taking it makes me feel so devious. you can't get me you little shit head

[renemesis]

32, 51, 62!

HAAAIIIIII!!!

32: What is your favourite color? PINK!! Sometimes it's a pink/purple/yellow tie but pink has been my favorite favorite FAVORITE since I can remember ♡♡

51: Favourite food? UMMM. growing up I was #1 spaghetti fan but as I've gotten older (and gone gluten free hehe) I've become a big potato/rice fan 👍👍

62: What makes you happy? BEING SILLAY!!! Ok I could be a little slash serious here umm. I am chronically very sad and also mean so sometimes it SEEMS like I gain happiness via being mean but. Truly and genuinely one of the biggest sources of my happiness is being able to see/make other people happy - .- whether that's by making art telling jokes sending animal pictures etc etc etc. Teeheee

[cyanomys]

Letting myself be angry at and grieve my illness is a form of healing

I habitually used to call myself lazy or unmotivated when my body fails me or when I listened to my body, when the true reality is that my motivation vastly exceeds my physical capacity. I love life. I love doing things. And then I slam into my limits like a bus into a wall

I learned to blame myself because neither I nor my family were prepared to accept the truth. Because the truth is fucking depressing. Grieving sucks. Accepting my health situation is so much less inspiring than thinking “if I just want to be better harder I’ll get better.”

But blinding myself to reality has caused me to make myself sicker. So much sicker actually. I don’t know how much of my current disability can be attributed to my pushing myself too hard, and what would have happened if I hadn’t. But I’m certain it wouldn’t be as bad.

Fuck it. Having my conditions (vestibular migraine and etc) is a shitty hand to be dealt, and I may never be able to do all the things I wish I could do, and I may be disabled forever. That’s it, I said it, the end.

But that doesn’t mean I’m helpless. Now I have to live in this body and figure out how to make a life with what I have.

If I live within my limits I will a much fuller life than continuing to push myself until I crash over and over, each time slowly chipping away at my abilities and shrinking my world a little more. If I am careful maybe I will even be able to gain back some of what I lost. Patience. I have to accept, and be patient, and be grateful.

Now instead of telling myself “just try harder!” I can say “what compromises can I make to set myself up for success and health.”

Maybe I won’t ever have a “real career.” But I can derive meaning from my hobbies, and maybe even do a little part time work from home someday. I can be grateful for my husband being able to work and support me.

Maybe I won’t ever be able to play roller derby or be a hiker. But I can go on a walk most days and dance a little in my living room. I can be grateful that I am able to stretch my legs.

Maybe I won’t ever be able to go to conventions or play games at busy game stores. But I can play TTRPGs with my friends online, or have friends over for board games. I can be grateful to have a wonderful online community.

Maybe I can’t go on vacations or fly in a plane. But I can go on a picnic with my husband and dog. I can be grateful for good food and that nature is so accessible to me.

[rabbitindisguise]

Me: okie bedtime :)

My body: *anxiety anxiety anxiety* *nausea nausea nausea* *guilt guilt guilt* *pain pain pain*

Me: okie :( deep breath. *inhale* *exhale*

Me: >:3c it worked