#disabilityblog

[bread-tab]

relatable disability/chronic illness moods as portrayed by murderbot:

you are always in one of two states: devastatingly efficient, or incapacitated.

you're just going around thinking you are acting like a normal human and then people randomly get very concerned and ask "are you okay???"

"this may cost me the use of my limbs" is a normal and acceptable calculation in the course of your daily activities

[gender-trash]

dunno how much i've blogged abt my eye problems here but they've been getting worse lately -- the most life-impacting effect is that i can't safely drive, like, at all, because i am seeing double so bad i cannot see the god damned lane markings or tell how far away from me other cars are, but the most *irritating* is that i can barely read light-text-on-dark-background. because it makes the double vision worse. i can strain to read it briefly, but it gives me a headache to do it for too long. and i don't know if you've been on the internet in the past -- oh, i don't know -- fourish years? but at some point everyone decided dark themes were GREAT and """reduce eyestrain""" (LOL. LMAO EVEN) and if you don't use a dark theme you're some kind of n00b scrub.

which, like, i have enough self-confidence at this point that i don't actually care much if someone thinks i'm a n00b, but it gets more irritating when designers of ux interface stuff just fucking decide that, well, THEY like dark themes and goddamn it so will everyone else. at work we have a custom CLI for starting/stopping/reconfiguring deployments of code onto robots, and it's a wrapper around docker-compose, except the docker-compose ui colors presuppose a dark theme and there's this fucking light gray that's almost invisible in my beloved solarized light terminal colorscheme, and there's some, like. environment variable that you in theory can set to modify the colors but it doesn't work (possibly because of the custom CLI wrapper?) so i've resigned myself to just not being able to read the light gray docker compose output. i slacked someone in infra abt this and he MORALIZED AT ME ABOUT HOW DARK THEMES ARE BETTER and then just pointed me back at the environment variable and i was like "thanks! ^_^" because what else am i going to fucking do

or, more recently, the UI team updated our [thing] editor tool to use a new code editor that supports autocomplete! yay! except that for whatever reason they decided to make the default theme light-blue-on-dark-blue with like a 9pt font. in lieu of ripping out chris's throat with my teeth (which would have been difficult because he lives in canada) i just thought about it really hard and then, grumpily, made myself a custom build of the [thing] editor that uses solarized light + 14pt font size. but i swear to fuck the NEXT time i am forced by my employer to use some kind of tool that i need to hack or work around to be able TO FUCKING SEE IT i am going to start biting

:) (<- vibrating with barely-suppressed rage)

[alishawhittam]

I have just read this out to Becks , it’s strange admitting to people even though they live this with me. It is funny looking from the outside in . If you have any behaviour that you feel you do too often and you want to talk , message me. Life with Myalgic Encephalomyelitis is really hard , the hardest thing is that most of us don’t just have ME. Please read and share this as you may have a friend who is feeling all alone without someone to talk to , they may feel embarrassed or scared to admit it . I write to get things off my chest but most importantly to highlight issues that most people don’t know exist . Sending you all love 😘 https://alishawhittam.com/obsessive-compulsive-disorder/ #myalgicencephalomyelitis #ME #myalgicencephalomyelitisawareness #ocd #mentalhealthmatters #mentalhealthblogger #anxiety #blogger #disabled #disabilityawareness #disabilityblogger #disabilityblog https://www.instagram.com/p/CCv9xwIn4Y-/?igshid=1pu3efr5mqetk

[localvoicesparkview]

Self Care; Staying Productive — Terminally Tough

Self Care; Staying Productive — Terminally Tough

Importance of taking care of yourself when living with a disability. 

When health conditions isolate you, it is important to keep yourself busy. I struggle with physically keeping busy due to my lack of mobility, so it is vital that I keep my brain as active as possible. One thing I have learnt is to keep working on yourself, as some people haven’t always been afflicted […]

via Self Care;…

[martynsibley]

Writing a manifesto is vital for your ability to change the world! . But it can be overwhelming. . I will walk you through getting clear on your cause, as well as communication and commitment, to go be the change you want to see in the world! . Why is a manifesto so important? - It gives you clarity in what you want to have an impact on, why you care, and how you’ll achieve it. - It allows you to share your vision with the world, and build a tribe of like-minded people to go on the journey together. . Join my VIP Academy today to be a part of the challenge! Challenge starts 1/20/2020! Link is in Bio . . . #xceptionaled #xed #slp #slpeeps #specialneeds #disability #martynsibley #disabilityawareness #disabilityhorizons #vipacademy #disabilitycommunity #disabilityblogger #disabilityblog #ceu #continuingeducation #newyearschallnge https://www.instagram.com/p/B7RjKNGpXp2/?igshid=1rhl9nn87qpzx

[painmanagementprincess-blog]

Stronger

Do you know the best part of coping with pain?  Realizing that I am stronger than I thought, while being the weakest person in the room.

[trueassistech]

Good News for the disabled people.

[bread-tab]

navigating the structural ableism is just so exhausting like.

what I really need is to rest for a couple weeks and get my ducks in order re: medical care and have people be a little understanding and extend just the barest amount of trust that I'm not a malingerer based on the fact that I work so, so hard when I'm in their presence—so why wouldn't I also be like that at home??

instead I am required to either show up sick to have "good attendance" (physically impossible for even my healthiest and hardest working coworkers srsly, half my coworkers got covid last month) or else call in and be subjected to threats of losing my livelihood, shaming, and being forced to use vacation time instead of unpaid leave to account for every precious hour I didn't spend being assigned menial tasks.

and if I don't show up, god forbid I stay at home and actually recover so I can go back to work sooner. no, I am required to go to the urgent care, pay an extra copay for specialty care, and fight through my medical trauma only to be told half the time that I'm not supposed to be there because they can't treat chronic conditions and I should go to my primary care instead. (wait 1 month for appointment. can't afford copay because I went to urgent care. tests come back negative and have to start over. my fault for not trying hard enough.)

nondiscrimination my dislocated ass

[gender-trash]

I was about to answer a post of yours saying "w h y" but I saw it's from 2016 lol, anyway have a good day

this one, right? i'd probably phrase it differently today, but i still broadly endorse it and am happy to discuss if you have Thoughts :-)

(i get that it's annoying to have to repeat yourself! it is also immensely frustrating to say "sorry what was that?" twenty times a day, especially when the response is frequently "ugh never MIND.")

[bread-tab]

*drinks water*

*drinks water*

`,:/

*drinks water*

*eats some salt*

*drinks water*

*eats a snack*

*drinks water*

*cleans glasses*

*drinks water*

*unclenches jaw*

*drinks water*

*lies down*

*drinks water*

... wait, is this a Real Headache™???

>:O

I used to get a lot of dehydration headaches so now when I get any other kind of headache I just sit here angrily sipping water and wondering why nothing is happening

[monstacompound-blog]

REAL MONSTA!!! #disability #disabilityawareness #disabilitylife #disabilityblog #love #wheelchairsports #wheelchairwod #disabled #disabledsports #disabilitylife #wheelchair #wheelchairmodel #motivationalspeaker #motivationalspeaking #motivated #motivational #veteranfitness #lafitness #lamedia #blackcoach #celebritytrainer #karate #adaptiveathlete #adaptivekarate #adaptiveselfdefense #adaptivefitness #adaptivesports #adversity #fitnessbody #bodyfitness https://www.instagram.com/p/B080-k3nDJi/?igshid=1t8z30omhdupr

[localvoicesparkview]

Talking about my disability is a sensitive subject — BEYOND MY LIMITATIONS

Talking about my disability is a sensitive subject — BEYOND MY LIMITATIONS

Talking about disability! 

You would think that as a person who has spent eight months blogging about my disability that it’s a topic that comes naturally to me, something that I want to shout about from the mountain top, but to be completely transparent I don’t like talking about my disability. You may think that I am completely […]

via Talking about my disability is a sensitive subject —…

[ourwitching]

Executive functioning is your ability to engage in goal-directed behavior: it includes self-control...

[bread-tab]

This.

The medical industry is already doing more than enough gatekeeping. We don't need to add to that ourselves.

'This is a thing only people with X diagnosis do,' can actually be a really hurtful thing to say, and I'm a little bit done with it.

A lot of things you can be diagnosed with have overlapping symptoms, or symptoms that can look superficially similar. And posts that respond to this by going 'Maybe many more people have X than we thought!' Are actually really erasive.

Please, PLEASE, allow for the fact that it's not just people in your group who can have certain experiences.

Some of my diagnoses were arrived at via a very long and painful process, with a lot of medical gas lighting. I don't want to have to explain my entire medical history to avoid either being told I don't have the experiences I have, or that I ACTUALLY have something else instead.

Please also bear in mind that people may have personal histories that would make an additional diagnosis upsetting - not because it's bad in and of itself, but for trauma-related reasons.

When you say 'you have to be X for that experience to be valid' you're forcing someone to come down on an answer for something they may not yet be ready to accept. And sometimes that will mean denying something that's actually true.

Just... STOP with the 'Only X' crap. It's so damaging.

[thehomebasedpr0]

Running a Business from Home: 5 Tips for 2014 | Disability.Blog

She specializes on the topic of small business tips and resources. ChamberofCommerce.com helps small businesses grow their business on the web and facilitates connectivity between local businesses and more than 7,000 …

Running a Business from Home: 5 Tips for 2014 | Disability.Blog via Blogger http://ift.tt/1c37lRD

[gender-trash]

in my culture muttering anything to yourself around a person in earshot is /extremely/ disrespectful if done to a formal acquaintance and pretty damn hurtful if done to a closer relationship. if people here refuse to tell you what they said when you didn't hear them, they probably said something cruel. it's done by school bullies and people having extended arguments.not repeating yourself if the person asking was not part of the conversation is fine: "sorry, i was talking to x". otherwise you are expected to only say things you want everyone present to understand. i know not everywhere is like here, but i find it hard to believe this isn't just a fundamentally disrespectful thing to do. when you speak you're asking for someone's time and attention so you shouldn't waste it. it's not too much to ask.

context

yeah i think my culture broadly agrees as long as you only ask for someone to repeat themselves once or twice per conversation. but plenty of people still get palpably frustrated with me when i'm the one person in a group who needs every utterance repeated a couple times :(