#disabilityblog

[bread-tab]

relatable disability/chronic illness moods as portrayed by murderbot:

you are always in one of two states: devastatingly efficient, or incapacitated.

you're just going around thinking you are acting like a normal human and then people randomly get very concerned and ask "are you okay???"

"this may cost me the use of my limbs" is a normal and acceptable calculation in the course of your daily activities

[gender-trash]

dunno how much i've blogged abt my eye problems here but they've been getting worse lately -- the most life-impacting effect is that i can't safely drive, like, at all, because i am seeing double so bad i cannot see the god damned lane markings or tell how far away from me other cars are, but the most *irritating* is that i can barely read light-text-on-dark-background. because it makes the double vision worse. i can strain to read it briefly, but it gives me a headache to do it for too long. and i don't know if you've been on the internet in the past -- oh, i don't know -- fourish years? but at some point everyone decided dark themes were GREAT and """reduce eyestrain""" (LOL. LMAO EVEN) and if you don't use a dark theme you're some kind of n00b scrub.

which, like, i have enough self-confidence at this point that i don't actually care much if someone thinks i'm a n00b, but it gets more irritating when designers of ux interface stuff just fucking decide that, well, THEY like dark themes and goddamn it so will everyone else. at work we have a custom CLI for starting/stopping/reconfiguring deployments of code onto robots, and it's a wrapper around docker-compose, except the docker-compose ui colors presuppose a dark theme and there's this fucking light gray that's almost invisible in my beloved solarized light terminal colorscheme, and there's some, like. environment variable that you in theory can set to modify the colors but it doesn't work (possibly because of the custom CLI wrapper?) so i've resigned myself to just not being able to read the light gray docker compose output. i slacked someone in infra abt this and he MORALIZED AT ME ABOUT HOW DARK THEMES ARE BETTER and then just pointed me back at the environment variable and i was like "thanks! ^_^" because what else am i going to fucking do

or, more recently, the UI team updated our [thing] editor tool to use a new code editor that supports autocomplete! yay! except that for whatever reason they decided to make the default theme light-blue-on-dark-blue with like a 9pt font. in lieu of ripping out chris's throat with my teeth (which would have been difficult because he lives in canada) i just thought about it really hard and then, grumpily, made myself a custom build of the [thing] editor that uses solarized light + 14pt font size. but i swear to fuck the NEXT time i am forced by my employer to use some kind of tool that i need to hack or work around to be able TO FUCKING SEE IT i am going to start biting

:) (<- vibrating with barely-suppressed rage)

[alishawhittam]

I have just read this out to Becks , it’s strange admitting to people even though they live this with me. It is funny looking from the outside in . If you have any behaviour that you feel you do too often and you want to talk , message me. Life with Myalgic Encephalomyelitis is really hard , the hardest thing is that most of us don’t just have ME. Please read and share this as you may have a friend who is feeling all alone without someone to talk to , they may feel embarrassed or scared to admit it . I write to get things off my chest but most importantly to highlight issues that most people don’t know exist . Sending you all love 😘 https://alishawhittam.com/obsessive-compulsive-disorder/ #myalgicencephalomyelitis #ME #myalgicencephalomyelitisawareness #ocd #mentalhealthmatters #mentalhealthblogger #anxiety #blogger #disabled #disabilityawareness #disabilityblogger #disabilityblog https://www.instagram.com/p/CCv9xwIn4Y-/?igshid=1pu3efr5mqetk

[localvoicesparkview]

Self Care; Staying Productive — Terminally Tough

Self Care; Staying Productive — Terminally Tough

Importance of taking care of yourself when living with a disability. 

When health conditions isolate you, it is important to keep yourself busy. I struggle with physically keeping busy due to my lack of mobility, so it is vital that I keep my brain as active as possible. One thing I have learnt is to keep working on yourself, as some people haven’t always been afflicted […]

via Self Care;…

[martynsibley]

Writing a manifesto is vital for your ability to change the world! . But it can be overwhelming. . I will walk you through getting clear on your cause, as well as communication and commitment, to go be the change you want to see in the world! . Why is a manifesto so important? - It gives you clarity in what you want to have an impact on, why you care, and how you’ll achieve it. - It allows you to share your vision with the world, and build a tribe of like-minded people to go on the journey together. . Join my VIP Academy today to be a part of the challenge! Challenge starts 1/20/2020! Link is in Bio . . . #xceptionaled #xed #slp #slpeeps #specialneeds #disability #martynsibley #disabilityawareness #disabilityhorizons #vipacademy #disabilitycommunity #disabilityblogger #disabilityblog #ceu #continuingeducation #newyearschallnge https://www.instagram.com/p/B7RjKNGpXp2/?igshid=1rhl9nn87qpzx

[painmanagementprincess-blog]

Stronger

Do you know the best part of coping with pain?  Realizing that I am stronger than I thought, while being the weakest person in the room.

[trueassistech]

Good News for the disabled people.

[monstacompound-blog]

REAL MONSTA!!! #disability #disabilityawareness #disabilitylife #disabilityblog #love #wheelchairsports #wheelchairwod #disabled #disabledsports #disabilitylife #wheelchair #wheelchairmodel #motivationalspeaker #motivationalspeaking #motivated #motivational #veteranfitness #lafitness #lamedia #blackcoach #celebritytrainer #karate #adaptiveathlete #adaptivekarate #adaptiveselfdefense #adaptivefitness #adaptivesports #adversity #fitnessbody #bodyfitness https://www.instagram.com/p/B080-k3nDJi/?igshid=1t8z30omhdupr

[ourwitching]

Executive functioning is your ability to engage in goal-directed behavior: it includes self-control...

[thehomebasedpr0]

Running a Business from Home: 5 Tips for 2014 | Disability.Blog

She specializes on the topic of small business tips and resources. ChamberofCommerce.com helps small businesses grow their business on the web and facilitates connectivity between local businesses and more than 7,000 …

Running a Business from Home: 5 Tips for 2014 | Disability.Blog via Blogger http://ift.tt/1c37lRD

[gender-trash]

I was about to answer a post of yours saying "w h y" but I saw it's from 2016 lol, anyway have a good day

this one, right? i'd probably phrase it differently today, but i still broadly endorse it and am happy to discuss if you have Thoughts :-)

(i get that it's annoying to have to repeat yourself! it is also immensely frustrating to say "sorry what was that?" twenty times a day, especially when the response is frequently "ugh never MIND.")

[gender-trash]

in my culture muttering anything to yourself around a person in earshot is /extremely/ disrespectful if done to a formal acquaintance and pretty damn hurtful if done to a closer relationship. if people here refuse to tell you what they said when you didn't hear them, they probably said something cruel. it's done by school bullies and people having extended arguments.not repeating yourself if the person asking was not part of the conversation is fine: "sorry, i was talking to x". otherwise you are expected to only say things you want everyone present to understand. i know not everywhere is like here, but i find it hard to believe this isn't just a fundamentally disrespectful thing to do. when you speak you're asking for someone's time and attention so you shouldn't waste it. it's not too much to ask.

context

yeah i think my culture broadly agrees as long as you only ask for someone to repeat themselves once or twice per conversation. but plenty of people still get palpably frustrated with me when i'm the one person in a group who needs every utterance repeated a couple times :(

[bread-tab]

also per my previous post, over the course of the last few days i have caught myself ignoring pain/symptoms (insidious internalized ableism, training myself out of it is a work in progress) and have of course responded to that by relating everything to my new special interest and current hyperfixation. this has progressed from

"oof, my organic components didn't like that"

to

"Jack, you lovable dork, you don't have any inorganic components. unless you're counting your glasses"

to

"stop treating yourself like a SecUnit"

and finally

"if you wouldn't do it to your beloved SecUnit don't do it to your squishy human or augmented human self"

growth. 🤌🫴

[bread-tab]

I have a lot of chronic joint pains, due to Undiagnosed Bad Joints Syndrome. At the moment, gold and silver medals for the worst joint awards go to: hip (the baddest) and other hip (the wannabe).

Since a few weeks after starting T, my hips have gotten notably worse, with no other factor I could think of to explain it. I got worried. I spent the next several months continuing to be vaguely worried. Was it some sort of heretofore unknown side effect of testosterone injections? Would I have to go to the doctor about this and maybe get taken off HRT indefinitely? Could the UDBJS be catastrophically interacting with my hormones, causing all the connective tissue in my body to unravel like a cheap sweater?

Just as mysteriously, a couple weeks ago the pain in my hip joints started to ease up. (Partly because the weather warmed up and all my joints liked that.)

The other day I finally realized there's a much simpler explanation for why my hip joints were struggling. I was thinking, "man, I should start lifting weights! That would be a good way to exercise and keep up with the unreasonable speed at which the Niblet is growing."

And then it hit me. I've gained over 30 pounds since starting T. Ergo... my frickin legs are heavier.

🤦

[bread-tab]

unfortunately no amount of scrolling is actually going to make it hurt less to get out of bed

[bread-tab]

I'm lying in bed with joint pain and fatigue and I need to make a decision to either go to work 2+ hours late or call in sick today.

My body is saying "I am not well."

My brain is saying "It's barely worse than usual, it's not contagious, I need the money, what will people think of me?"

Why is it so hard to listen to my own body? Why is pain so unbearably honest?