my pain is not just chronic. it's fucking forever. it's going to get worse. how do I even begin to explain that to new people?
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The internet opening new doors for people with degenerative diseases to see and meet other people like them has been incredible in so many ways. However, it can also be quite horrifying seeing your future.
Normalising it and sharing your life and showing others that life is still worth living with your disease is amazing. But yeah, just see the future symptoms you’ll potentially develop is sometimes scary.
Especially seeing people with your condition dying. Then you reach the age which they died and it’s so bittersweet yet terrifying. And with conditions where your future is completely uncertain. Yes that could mean you won’t need to use a wheelchair, or a feeding tube, or oxygen, or anything else, but you COULD.
Seeing that play out when in the past maybe you could have had more hope with the uncertainty sometimes doesn’t feel like a positive.
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The whumpee trying new mobility aids. They help, somewhat. But the more they use them, the more they hurt.
Crutches bruise their armpits and misalign their hips. Canes cause wrist pain, eventually causing their entire arm to get too tired to use it. A wheelchair requires upper body strength they haven’t quite honed yet.
They wonder if it’s worth it to even use one if they’d be in pain anyways.
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psychiatrists and pro-psychiatry ableists often label antipsychiatry as fearmongering, which is hilarious not only because it isn’t true but because psychiatry itself relies on fearmongering to continue existing. “accept this treatment or i will label you as noncompliant” is not care, it’s a threat.
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god the human spine is such a shitshow. i’d much rather trade back my thumbs and self-recognition for a neutral horizontal spine and pelvis cuz this fucking upright mess is not worth it lmfao worst evolution ever award !
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I appreciate a lot all the asks and be sure I've read them, just please be patient with me because I'm kinda going through stuff that has me a little overwhelmed <3 <3
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i kinda hate that im asking this but - if i were to open up commissions to help save up for a motorized wheelchair (one that i can actually use / transport bc the one i bought was a lie but since it's completely brand new / unused + put together already im going to sell it to pay for some of the cost) would anybody be interested ?
like. i would be open to doing art / writing / moodboards / phone backgrounds and such. i'd make it pwyw bc i know ppl don't have much money these days and i'm very unsure of how to do my own pricing.
the motorized wheelchair i need is a little over $3k (which. yowch. ik.) and i can probably get ~$2k for the one i bought bc that's what i spent, but i'd be willing to negotiate w/ a nice person, so im going to need to save up ~$1k for it :(
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HEADCANONS ABOUT CAMERON AND DONNA BEING GAY FOR PRIDE MONTH 2024 (3/?)
Cameron J. Howe would love wearing a mask, at both pride events/protests and everywhere else, she would love being able to hide her OUTRAGEOUSLY BEAUTIFUL FACE from everyone except her LOVING WIFE
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what if we all held hands and agreed that judging people by the severity of their disability was maybe bad, actually, especially so in community spaces, and also that someone with a 'benign' condition can actually have super disabling symptoms and it's wild to call it benign in the first place, or say that no one with that condition can call it degenerative despite experiencing, you know, degeneration,
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Degen Ep 56 is out now!
We discuss some of the Spring Anime that we’re really excited for!!
I wanna know if yall got any underdogs for spring!?
Spotify- http://tinyurl.com/Spotify56
Apple- http://tinyurl.com/Apple56deg
YT Video- http://tinyurl.com/Degen65
Discord- https://discord.gg/ymdWrMeejU
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i think banri’s dropping/throwing shit is supposed to allude to him struggling from neurological damage from getting in that car crash but i also have minor neurological issues that give me the same tic and have since childhood so i just got really fucking excited to see smth similar in an anime before realizing it’s supposed to be a bad thing
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