#chronic adrenal insufficiency
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Sharing some of my experience living with a rare disease. (And you get to see my adorable face.)
#ok to reblog#rare disease#rare disease month#rare disease awareness#adrenal insufficiency#chronic adrenal insufficiency#chronic pain#chronic fatigue#chronic illness#spoonie#actually chronically ill#disabled and cute#disability#actually disabled#personal
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When I forget how to have a normal conversation...
#chronic illness humor#spoonie#medically complex#adrenal insufficiency#ehlers danlos#chronic pain#chronic illness#chronic fatigue#dysautonomia#pots#chronically ill#oh like that whole year I thought i was gunna die#yeah that was fun
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Today I learned about achenbach syndrome! Ive always had this weird thing with my hands where I get this like spiky pain and it hurts to touch the skin and later on it's bruised (on the inside of my fingers). So when it happened today I decided to have a Google and voila! It's nothing exciting, I just find it so interesting when I find something that's like, oh yeah it's definitely that haha. Medical stuff is my specialist interest and I think always will be haha.
#chronic illness#fibromyalgia#chronic pain#polyarteritis nodosa#adrenal insufficiency#stills disease#fibro#chronic uti#nausea#psoriasis#achenbach syndrome
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If you made a mistake (or two or five or hundreds) in your medical care, you are still a good person. You still deserve care, you still deserve to feel better 💙
#teaandspoons#disability#chronic illness#spoonie#chronic pain#chronic fatigue#food allergies#celiac disease#mast cell activation syndrome#pots#dysautonomia#mental health#diabetes#adrenal insufficiency
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Part of a series I'm working on for a show next year
#chronic illness#adrenal insufficiency#pituitary tumor#my Bean in my head#hey look ma its my brain!#so many meds#frogs cause frogs#gouache#watercolor#painting#illustration#rare disease#this is why im always tired#chronic fatigue#stress bad
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*friend sees my tattoo*
Me: Yeah it's just a medical tattoo,
Friend: 😃 Adrenaline junkie.
That's hilarious and I love you.
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Herz got to have her new comfy bed to lay on at my endocrinologist appointment today!
I think the appointment went really well. We discussed the vertigo issues that have been re-emerging along with the joint pain. She wants me to slow down on my taper, so I'm going to stay at this dose for a couple of months. I need to keep my patience hat on and not rush into anything. I'm so used to pushing through feeling bad that I am rushing taper, thus not giving my body the time it needs to adjust.
We're doing a LOT of bloodwork: full thyroid panel, adrenals, testosterone (no point in doing estrogen since my menstrual cycle is regular for the first time in my life), vitamins, minerals, electrolytes, and DHEA
I LOVE not producing hormones *sarcasm*
Having a doctor who actually listens to me and is willing to work with me is such a game changer.
#beans beans the magickal fruit#service dog#spoonie#health#endocrinology#endocrinehealth#thyroid#hormones#hormonal balance#hashimoto's thyroiditis#addison's disease#chronic illness#chronically ill#disabled#hrt#testosterone#adrenal fatigue#adrenal insufficiency
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I think the worst combination of chronic illnesses has got to be, hands down, condition that makes you violently ill at least once a week (various), and condition that makes throwing up potentially super dangerous (adrenal insufficiency) like jeez let fucking puke in peace 😭 wtf
#like. ur telling me I have to be MORE aware when I’m puking ??????#I can’t sit up my arms are numb and the muscles in my hands are contracting and turning them into lil crab claws#I want to SLEEP#and instead I have to TAJE PILLS (just threw up ??) and MONITOR MY HEALTH???? fuck off#adrenal insufficiency#disability#actually disabled#chronic illness#mcas#POTS#Chronically ill#ceci says stuff#oadc
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Laying in bed with no energy is really fucking boring, y’all.
#I can’t believe abled people think I do this for fun#chronic fatigue#chronic illness#chronic pain#adrenal insufficiency#disability#spoonie
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When I meet someone with my condition who is stable and lives a mostly normal life...
#adrenal insufficiency#Chronic Illness#spoonie#chronic pain#chronic fatigue#Dysautonomia#POTS#postural orthostatic tachycardia syndrome#oi#orthostatic hypotension#syncope#neurocardiogenic syncope
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#pots#chronic illness#fibromyalgia#chronic pain#polyarteritis nodosa#adrenal insufficiency#stills disease#fibro#chronic uti#nausea#psoriasis
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Please repost, add tags, boost as much as you can :')
#gofundme#chronic illness#chronically ill#disability#disabled#hypothyroidism#adrenal insufficiency#american healthcare#financial help#pandas#chronic fatigue syndrome#functional neurological disorder#FND#CFS#myalgic encephalomyelitis#sciatica#migraines#transgender
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Why the hell do my adrenal glands need to be attach my fucking kidneys, I know they live on top of them but can I fucking live. It feels like my god damn organs are being ripped out 😭
#addisons disease#adrenal insufficiency#chronic illness#pain flare#adrenal crisis#fang rambles#i’m in so much pain
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can't believe accidentally skipping a dose of medication would,,, have Effects on me?? the audacity
#see if i forget synthroid for a day i won't notice#but forgetting hydrocortisone? well. i noticed#adrenal insufficiency#chronic illness
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#babygirlbogus#texas#adrenal insufficiency#panhypopituarism#addisons disease#chronic illness#invisible illness
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Lance vs Lance when SOUP. (April is Adrenal Insufficiency Awareness month! So you will see a bit more of Lance as he is my sickly close-to self insert OC and ableist things said made me ferally draw like 4 illustrations of him + Emily last month and there's really no better time to post them than now I guess.)
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