#chronic adrenal insufficiency

[evilwriter37]

Sharing some of my experience living with a rare disease. (And you get to see my adorable face.)

[thechronicpaingame]

[whatshouldwecallchronicillness]

When I forget how to have a normal conversation...

[notavampiretrustme]

“Maybe you should stop spending so much time on your phone”

“it’s not sustainable to order out so much”

“If you have so little energy why do you still go out on the weekends?”

SHUT UP SHUT UP SHUT UP! It’s hard enough for me to exist already don’t you dare suggest I give up the few pleasures that make life worth living just because I’m sick. Don’t you dare question my priorities when you don’t live in a world where you have to sacrifice one basic aspect of life for another.

[tea-and-spoons]

If you made a mistake (or two or five or hundreds) in your medical care, you are still a good person. You still deserve care, you still deserve to feel better 💙

[rattiemattie]

Part of a series I'm working on for a show next year

[b-ditto]

*friend sees my tattoo*

Me: Yeah it's just a medical tattoo,

Friend: 😃 Adrenaline junkie.

That's hilarious and I love you.

[x22817]

Herz got to have her new comfy bed to lay on at my endocrinologist appointment today!

I think the appointment went really well. We discussed the vertigo issues that have been re-emerging along with the joint pain. She wants me to slow down on my taper, so I'm going to stay at this dose for a couple of months. I need to keep my patience hat on and not rush into anything. I'm so used to pushing through feeling bad that I am rushing taper, thus not giving my body the time it needs to adjust.

We're doing a LOT of bloodwork: full thyroid panel, adrenals, testosterone (no point in doing estrogen since my menstrual cycle is regular for the first time in my life), vitamins, minerals, electrolytes, and DHEA

I LOVE not producing hormones *sarcasm*

Having a doctor who actually listens to me and is willing to work with me is such a game changer.

[snapcracklepop-myjoints]

I think the worst combination of chronic illnesses has got to be, hands down, condition that makes you violently ill at least once a week (various), and condition that makes throwing up potentially super dangerous (adrenal insufficiency) like jeez let fucking puke in peace 😭 wtf

[cripticmotherfucker]

Please repost, add tags, boost as much as you can :')

[evilwriter37]

Laying in bed with no energy is really fucking boring, y’all.

[thechronicpaingame]

Today I learned about achenbach syndrome! Ive always had this weird thing with my hands where I get this like spiky pain and it hurts to touch the skin and later on it's bruised (on the inside of my fingers). So when it happened today I decided to have a Google and voila! It's nothing exciting, I just find it so interesting when I find something that's like, oh yeah it's definitely that haha. Medical stuff is my specialist interest and I think always will be haha.

[whatshouldwecallchronicillness]

When I'm on prednisone...

[house-of-slayterr]

Why the hell do my adrenal glands need to be attach my fucking kidneys, I know they live on top of them but can I fucking live. It feels like my god damn organs are being ripped out 😭

[chronicleness]

can't believe accidentally skipping a dose of medication would,,, have Effects on me?? the audacity

[teethwasbones]

Hypopituitarism isn't talked about enough and it's really frustrating. I basically never see it get acknowledged online and not a singular doctor I've ever had understands it and they keep trying to do things that will make my condition worse bc they won't listen to me about it so I have to fucking send giant articles about why they can't reduce my meds based on certain tests bc those tests are only for people with primary endocrine issues (primary hypothyroidism, primary adrenal insufficiency/ addisons) not secondary endocrine issues like secondary hypothyroidism and secondary adrenal insufficiency and arent useable for people like me.

It took me years to get diagnosed and I have permanent neurological damage from my thyroid and adrenal hormones being too low for so long. I'm not about to reduce my meds that make me feel better bc a doctor who doesn't know crap about my condition won't listen to me

Not to mention my case is even more uncommon bc it's not caused by anything they normally test for. (Tumor, and sometimes certain pregnancy complications can cause it, neither are true in my case).

And I don't even have someone I can talk to about it that understands what its like, because I never see anyone talking about it. I feel alone and scared.