thechronicpaingame

[thechronicpaingame]

Turns out my metoclopramide (reglan) side effect was (is) this with an added panic attack on top. (I'm 24 hours no dose and still having symptoms of this this evening).

Any and all dopamine antagonists going on my allergy list you best NEVER give me this shit again. What are you even antagonising my dopamine for it's already pissed off.

[thechronicpaingame]

Any of my metoclopramide homies also have intense anxiety / panic attacks with it?

I asked a GP facebook group and yep, known side effect. I've never known anything like it it is truly miserable.

[thechronicpaingame]

POTS fam help me out here before I self implode. Was given ivabradine to start today, but when I've got home and had a look at contraindicated drugs (I was checking for my antibiotics) it came up with ondanestron (zofran) being a no no? Now it's not on the actual leaflet that came with the ivabradine but anything you look at online says not to be taken together. So is anyone doing this? I really wanna start this med so bad.

[thechronicpaingame]

So in a month or two it is a year of daily fevers and still no one can tell me why (lymphoma ruled out, my normal rheumatological stuff ruled out, infection ruled out). Bloods are mostly normal. Anyone have any ideas?

[thechronicpaingame]

https://www.jci.org/articles/view/144201

Link to the study for all interested 🥰 if you have a little Google though there's plenty of places that explain the study in layman's terms if needed.

Has everyone seen the latest fibromyalgia research? We're almost at the final conclusion of the "is this autoimmune" saga! Very interesting, very good news all round. But also, with all of this present why it hasn't been labelled sooner is beyond me.

[thechronicpaingame]

Has everyone seen the latest fibromyalgia research? We're almost at the final conclusion of the "is this autoimmune" saga! Very interesting, very good news all round. But also, with all of this present why it hasn't been labelled sooner is beyond me.

[thechronicpaingame]

Woke up absolutely raging today. Checked the calendar and what do you know, it's the start of my PMDD week. A benefit to living alone is I can hunker down in these weeks and just not talk to other humans.

[thechronicpaingame]

So sorry to my US friends, specifically my disabled US friends who aren't eligible to emigrate with news of Trump's win. My trans friends, my black friends, my gay friends and honestly just women in general. I am so heartbroken for so many people today. I don't ever really talk politics on here (just because it's not a political blog) but I think I should firmly acknowledge my position in these times. This is forever a safe space for everyone.

I think people in the UK feel shocked, but also I think it's entirely naive to believe we're not headed in the same direction.

Just fucking sucks huh.

[thechronicpaingame]

Ta daaaaa. I still think it's more likely cEDS but they didn't think it was worth sending me for genetics (🙄) but it answers some questions for sure.

Now just have to deal with the added grief (again) that things are not going to get better. I don't know why I have so much trouble with accepting how my life is but honestly I really struggle in that regard. I think I just wanna be able to work and buy a little house for me and my dog but even that is not a reality in my world. I dunno. Ranting.

[thechronicpaingame]

I did this again a few days ago and it sucked again. I will never learn 😂 super high fever this time round (was hallucinating in the night), mostly back to normal besides still having a slight fever. I'd rather a few days of this than full blown flu or covid tho!

Had my flu & covid vaccine yesterday afternoon and man are they hitting me hard this year. I think it's mostly the flu jab as I'm usually super and hit and miss with how it affects me. Covid I've always done okay with. Fever, aches, headache, crippling nausea, the whole 9 yards this year.

[thechronicpaingame]

Gastroparesis said a big fuck you to me tonight and I am in so much pain. Usually I have a lot of discomfort but little pain but tonight is wild.

[thechronicpaingame]

me when the disability disables me: oh what the fuck? this sucks. what the hell man!

[thechronicpaingame]

I am open to every and all gastroparesis tips, and help and everything btw!

Hate to say I told you so to all the doctors but, I TOLD YOU SO (I don't really hate to say it I LOVE to say it, I absolutely relish in saying it) 😙

[thechronicpaingame]

Hate to say I told you so to all the doctors but, I TOLD YOU SO (I don't really hate to say it I LOVE to say it, I absolutely relish in saying it) 😙

[thechronicpaingame]

I got zero answers for this by the way. Couldn't tell me what it was, said maybe it was overall a viral infection, not even any blood tests done. And people wonder why I never seek medical attention generally 🙄

TW : EMETOPHOBIA

Seeing my GP tomorrow about my blood sick incident 😂 the main thing I want an answer to is what exactly did I throw up?! I will not bless you all with the photo, but this was something rubbery in texture, COVERED in blood and bile. Not food. The two people I've showed it to have both said "what the fuck is that" and my sentiments exactly. A piece of stomach tissue? A growth of some kind? I wish I'd kept it so they could've tested it 😂

[thechronicpaingame]

TW : EMETOPHOBIA

Seeing my GP tomorrow about my blood sick incident 😂 the main thing I want an answer to is what exactly did I throw up?! I will not bless you all with the photo, but this was something rubbery in texture, COVERED in blood and bile. Not food. The two people I've showed it to have both said "what the fuck is that" and my sentiments exactly. A piece of stomach tissue? A growth of some kind? I wish I'd kept it so they could've tested it 😂

[thechronicpaingame]

Friends, how are we treating our PMDD? I just spoke to my GP and he's said the best option is the coil but like, things I'm reading online say the opposite.