thechronicpaingame

[thechronicpaingame]

Woke up absolutely raging today. Checked the calendar and what do you know, it's the start of my PMDD week. A benefit to living alone is I can hunker down in these weeks and just not talk to other humans.

[thechronicpaingame]

So sorry to my US friends, specifically my disabled US friends who aren't eligible to emigrate with news of Trump's win. My trans friends, my black friends, my gay friends and honestly just women in general. I am so heartbroken for so many people today. I don't ever really talk politics on here (just because it's not a political blog) but I think I should firmly acknowledge my position in these times. This is forever a safe space for everyone.

I think people in the UK feel shocked, but also I think it's entirely naive to believe we're not headed in the same direction.

Just fucking sucks huh.

[thechronicpaingame]

Ta daaaaa. I still think it's more likely cEDS but they didn't think it was worth sending me for genetics (🙄) but it answers some questions for sure.

Now just have to deal with the added grief (again) that things are not going to get better. I don't know why I have so much trouble with accepting how my life is but honestly I really struggle in that regard. I think I just wanna be able to work and buy a little house for me and my dog but even that is not a reality in my world. I dunno. Ranting.

[thechronicpaingame]

I did this again a few days ago and it sucked again. I will never learn 😂 super high fever this time round (was hallucinating in the night), mostly back to normal besides still having a slight fever. I'd rather a few days of this than full blown flu or covid tho!

Had my flu & covid vaccine yesterday afternoon and man are they hitting me hard this year. I think it's mostly the flu jab as I'm usually super and hit and miss with how it affects me. Covid I've always done okay with. Fever, aches, headache, crippling nausea, the whole 9 yards this year.

[thechronicpaingame]

Gastroparesis said a big fuck you to me tonight and I am in so much pain. Usually I have a lot of discomfort but little pain but tonight is wild.

[thechronicpaingame]

me when the disability disables me: oh what the fuck? this sucks. what the hell man!

[thechronicpaingame]

I am open to every and all gastroparesis tips, and help and everything btw!

Hate to say I told you so to all the doctors but, I TOLD YOU SO (I don't really hate to say it I LOVE to say it, I absolutely relish in saying it) 😙

[thechronicpaingame]

Hate to say I told you so to all the doctors but, I TOLD YOU SO (I don't really hate to say it I LOVE to say it, I absolutely relish in saying it) 😙

[thechronicpaingame]

I got zero answers for this by the way. Couldn't tell me what it was, said maybe it was overall a viral infection, not even any blood tests done. And people wonder why I never seek medical attention generally 🙄

TW : EMETOPHOBIA

Seeing my GP tomorrow about my blood sick incident 😂 the main thing I want an answer to is what exactly did I throw up?! I will not bless you all with the photo, but this was something rubbery in texture, COVERED in blood and bile. Not food. The two people I've showed it to have both said "what the fuck is that" and my sentiments exactly. A piece of stomach tissue? A growth of some kind? I wish I'd kept it so they could've tested it 😂

[thechronicpaingame]

TW : EMETOPHOBIA

Seeing my GP tomorrow about my blood sick incident 😂 the main thing I want an answer to is what exactly did I throw up?! I will not bless you all with the photo, but this was something rubbery in texture, COVERED in blood and bile. Not food. The two people I've showed it to have both said "what the fuck is that" and my sentiments exactly. A piece of stomach tissue? A growth of some kind? I wish I'd kept it so they could've tested it 😂

[thechronicpaingame]

Friends, how are we treating our PMDD? I just spoke to my GP and he's said the best option is the coil but like, things I'm reading online say the opposite.

[thechronicpaingame]

Just your casual Friday morning vomiting blood 🙃 it looked like there was a piece of tissue in there (from somewhere) but besides the nausea and being tired I'm okay so just keeping an eye on things because I refuse to go to a&e to wait 10 hours and be sent home.

[thechronicpaingame]

Back at it again with the pregabalin. Turns out, it was helping! 😂 I honestly thought it wasn't having any effect but I have seen the light on how much worse things can be.

[thechronicpaingame]

After years of struggling I finally had my gastric emptying scan yesterday. Now we wait to see if what I think is gonna be found, is. Or maybe I am just losing my damn mind.

[thechronicpaingame]

Okay maybe the pregabalin was helping? This knee pain is out of control. Nothing is touching it. The only way I can describe it for myself is like one of my polyarteritis flare-ups but confined to my knee. I don't know what to do with myself. Tramadol, paracetamol, ibuprofen, freeze spray. Nothing is lowering the level or intensity of the very deep ache.

[thechronicpaingame]

I feel like I have to have mentioned this before, but does anyone else get awful knee pain before their periods? Me and my sister both suffer horrendously with it for about 5/6 days pre-period starting. I've never heard anyone else talk about it.

[thechronicpaingame]

I've been having so many issues recently with getting my pregabalin that I've just stopped it. So currently in a world of withdrawal 🙃 (I never felt any positive effects from it its just been the withdrawal I've been avoiding but CBA the stress of trying to get it every month). Think I only have a day or two of acute withdrawal left. Today's been rough but nowhere near as bad as when I stopped my tramadol (temporarily). So I'll check back in a few days!

(still having nightly fevers as well 😂 - I have just learnt to live with this now until someone decides to look into it more).